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37 Search results.

Common Data Elements for Retinal Neovascular Diseases - Risk Factors or Past Medical History

- 9/20/21 - 4 forms, 1 itemgroup, 35 items, 2 languages

Itemgroup: Risk Factors; Past Medical History

Common Data Elements for retinal neovascular diseases. The CDEs may be used in clinical routine, clinical trial, patient outcome, quality assurance and registry documentation of Age related macular degeneration (AMD), Diabetic Retinopathy (DR) and Retinal vein occlusion (RVO). The CDEs were developed by the Institute of Medical Informatics of the University Muenster in cooperation with the Department of Ophthalmology of the University Hospital Muenster.

Diagnosis and Examination

1 itemgroup 11 items

Eye Examination

1 itemgroup 18 items

Therapy

1 itemgroup 9 items

CDASH Medical History

- 6/20/18 - 1 form, 4 itemgroups, 13 items, 3 languages

Itemgroups: General information, High Blood Pressure, Appendectomy, Other

modified from http://www.cdisc.org

26672_Common Data Elements Myeloid Leukemia (MDS AML CML) - Global Disease Course

- 9/20/21 - 13 forms, 3 itemgroups, 11 items, 1 language

Itemgroups: Global Disease Course, Red Cell Transfusion, Platelet Cell Transfusion

Common Data Elements Myeloid Leukemia (MDS, AML, CML) for use in clinical routine and clinical trial documentation. https://www.ncbi.nlm.nih.gov/pubmed/27577388

Physical Examination/Follow up

3 itemgroups 14 items

Administrative/Demographic Details

1 itemgroup 11 items

Medical History

3 itemgroups 9 items

Lab: Cytology/Cytogenetics/Cytochemistry

1 itemgroup 29 items

Lab: Immunophenotyping

1 itemgroup 17 items

Lab: Molecular Genetics

1 itemgroup 27 items

Personal History of Allergies, Infectious Diseases, and Immunizations - Adult PhenX Toolkit

- 9/27/17 - 1 form, 7 itemgroups, 45 items, 1 language

Itemgroups: PhenX - personal medical history of allergies, infectious diseases, and immunizations - adult protocol, Noninfectious major illness, Doctor visit sequency, Hospitalization sequence, Surgery sequence, Lab or Imaging - Instance, Physical/Occupational therapy sequence

This protocol is a self- or proxy-administered personal health record from the American Health Information Management Association (AHIMA). The respondent is asked to provide details on the following categories: Medical History, Infectious Diseases, Immunizations, Allergies/Drug Sensitivities, Health Log, Doctor Visits, Hospitalizations, Surgeries, Lab or Imaging, Medical Devices, and Physical/Occupational Therapy. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

NINDS CDE General Health History Friedreich's Ataxia - General Health History

- 9/20/21 - 1 form, 7 itemgroups, 205 items, 1 language

Itemgroups: Behavioral History, Family History, History Data Source and Reliability, Medical history, Pediatric Developmental History, Pregnancy History, Prenatal and Perinatal History

NINDS Common Data Elements (General Health History Friedreich's Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Occupation/Occupational History Protocol PhenX Toolkit

- 9/27/17 - 1 form, 2 itemgroups, 26 items, 1 language

Itemgroups: PhenX - environmental exposures - occupation - occupation history protocol, Job history

This protocol includes several questions about the respondent’s current job, including the job title, industry, activities, when the job was started, hours spent working each week, and normal hours of the day worked. Occupation and industry entries are coded using the Standardized Occupational Classification System (SOC) and the North American Industry Classification System (NAICS) codes from the U.S. Census Bureau. The respondent is asked a number of questions about his longest held job, including name of occupation, industry, types of activities performed, and length of time worked. As an alternative, the respondent is asked specific details about every job he/she has had for 6 months or longer since he/she was 16 years old. Information obtained about each job includes: the name of the company, job title, when the job started and stopped, address of the company, whether it was full-time, part-time, or seasonal work, type of business, main activities on the job, chemicals and materials handled, and tools and equipment used. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

NINDS CDE Medical History Multiple Sclerosis - Medical History

- 6/26/16 - 1 form, 3 itemgroups, 102 items, 1 language

Itemgroups: General Information, Medical History Data Table, medical history

NINDS Common Data Elements, Multiple Sclerosis Medical History Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Behavioral History Multiple Sclerosis - Behavioral History

- 6/26/16 - 1 form, 4 itemgroups, 21 items, 1 language

Itemgroups: General Information, Smoking History, Alcohol History, Drug History

NINDS Common Data Elements, Multiple Sclerosis Behavioral History Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE General Health History Headache - General Health History

- 6/1/16 - 1 form, 1 itemgroup, 552 items, 1 language

Itemgroup: Medical and Family History

NINDS Common Data Elements (General Health History; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Medical and Family History of Headache/Migraine - Medical and Family History of Headache/Migraine

- 6/15/16 - 1 form, 1 itemgroup, 122 items, 1 language

Itemgroup: Medical and Family History of Migraine Headache

NINDS Common Data Elements (Medical and Family History of Headache/Migraine) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Medical History of Friedreich´s Ataxia - Medical History of Friedreich´s Ataxia

- 5/3/16 - 1 form, 1 itemgroup, 29 items, 1 language

Itemgroup: Special medical history

NINDS Common Data Elements (Medical history of Friedreich´s Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE [Medical History][Amyotrophic Lateral Sclerosis] - General Health History

- 5/13/16 - 1 form, 1 itemgroup, 91 items, 1 language

Itemgroup: Medical history

NINDS Common Data Elements [Participant/Subject History and Family History] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

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