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Table of contents
  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
    1. 7.1. Anesthesiology
    1. 7.2. Dermatology
    1. 7.3. ENT
    1. 7.4. Geriatrics
    1. 7.5. Gynecology/Obstetrics
    1. 7.6. Internal Medicine
      1. Hematology
      1. Infectious Diseases
      1. Cardiology/Angiology
      1. Pneumology
      1. Gastroenterology
      1. Nephrology
      1. Endocrinology/Metabolic Diseases
      1. Rheumatology
    1. 7.7. Neurology
    1. 7.8. Ophthalmology
    1. 7.9. Palliative Care
    1. 7.10. Pathology/Forensics
    1. 7.11. Pediatrics
    1. 7.12. Psychiatry/Psychosomatics
    1. 7.13. Radiology
    1. 7.14. Surgery
      1. General/Visceral Surgery
      1. Neurosurgery
      1. Plastic Surgery
      1. Thoracic Surgery
      1. Trauma/Orthopedics
      1. Vascular Surgery
    1. 7.15. Urology
    1. 7.16. Dental Medicine/OMS
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Medical history Nuclear medicine UKM - Medical history

- 9/20/21 - 1 form, 5 itemgroups, 69 items, 2 languages
Itemgroups: Patient demographics, Medical history, Eyes, Thyroid gland, Finding
Medical history form converted to ODM format. Routine documentation of University Hospital of Münster. Publication granted by Univ.-Prof. Dr. med. Michael Schäfers

NINDS CDE General Health History Headache - General Health History

- 6/1/16 - 1 form, 1 itemgroup, 552 items, 1 language
Itemgroup: Medical and Family History
NINDS Common Data Elements (General Health History; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Medical History Multiple Sclerosis - Medical History

- 6/26/16 - 1 form, 3 itemgroups, 102 items, 1 language
Itemgroups: General Information, Medical History Data Table, medical history
NINDS Common Data Elements, Multiple Sclerosis Medical History Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Behavioral History Multiple Sclerosis - Behavioral History

- 6/26/16 - 1 form, 4 itemgroups, 21 items, 1 language
Itemgroups: General Information, Smoking History, Alcohol History, Drug History
NINDS Common Data Elements, Multiple Sclerosis Behavioral History Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Medical and Family History of Headache/Migraine - Medical and Family History of Headache/Migraine

- 6/15/16 - 1 form, 1 itemgroup, 122 items, 1 language
Itemgroup: Medical and Family History of Migraine Headache
NINDS Common Data Elements (Medical and Family History of Headache/Migraine) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Diagnosis Nuclear medicine UKM - Diagnosis

- 5/25/17 - 1 form, 3 itemgroups, 38 items, 2 languages
Itemgroups: Patient demographics, Befund, Medical history
Diagnosis form converted to ODM format. Routine documentation of University Hospital of Münster. Publication granted by Univ.-Prof. Dr. med. Michael Schäfers

Dental records Oral and maxillofacial surgery - Dental records

- 9/17/21 - 1 form, 6 itemgroups, 37 items, 2 languages
Itemgroups: Patient demographics, Orthodontics, Restorative dentistry, Dental Prosthesis, Insurance, Dental record
Dental records form converted to ODM format. Routine documentation of University Hospital of Münster. Publication granted by surgery Prof. Dr. Edgar Schäfer

FAST Multiple Sclerosis Tool - Five-Dimensional Approach for surveillance and therapy tool

- 10/23/17 - 1 form, 7 itemgroups, 20 items, 1 language
Itemgroups: Administrative, Dimension 1, Dimension 2, Dimension 3, Dimension 4.1, Dimension 4.2, Dimension 5
FAST(Five-Dimensional Approach for surveillance and therapy) tool, published by Yavor Yalachkov, Christian Foerch, Mathias Wahl and Johannes Gehrig in July 2017 in Frontiers in Neurology. Reference: Yalachkov Y, Foerch C, Wahl M and Gehrig J (2017) A Proposal for a Patient-Oriented Five-Dimensional Approach for Surveillance and Therapy in Multiple Sclerosis. Front. Neurol. 8:313. doi: 10.3389/fneur.2017.00313

Risk assessment Oral and maxillofacial surgery - Risk assessment

- 9/17/21 - 1 form, 4 itemgroups, 33 items, 2 languages
Itemgroups: Patient demographics, Assessment, Anesthesia, Insurance
Risk assessment form converted to ODM format. Routine documentation of University Hospital of Münster. Publication granted by surgery Prof. Dr. Edgar Schäfer

Medical History CRFs Multiple Sclerosis Tysabri NCT00027300

- 1/27/17 - 1 form, 2 itemgroups, 16 items, 1 language
Itemgroups: Medical History, If 'Yes' record each detail below.
The purpose of this study is to determine the safety and efficacy of natalizumab in the treatment of individuals who have been diagnosed with relapsing remitting multiple sclerosis (MS). It is hoped that natalizumab will prevent certain types of white blood cells from moving out of the bloodstream into organs, including the brain, that are being damaged by autoimmune disease (a disease in which the body's own immune system attacks certain organs). These white blood cells are thought to cause inflammation that can result in lesions (small areas of damage) in the brain. These lesions are thought to be the cause of relapses and disability in MS. Documentation process: This form is to be obtained in Screening.

Swedish Stroke Registry RIKSSTROKE - Riks-Stroke questions for a relative of a stroke patient

- 11/29/17 - 1 form, 1 itemgroup, 33 items, 2 languages
Itemgroup: Riks-Stroke questions for a relative of a stroke patient
Schwedisches Schlaganfallregister RIKSSTROKE Quelle: http://www.riksstroke.org/eng/ Riksstroke – a Swedish national quality register for stroke care primarily aimed at health professionals and decision makers in health care. We collect, analyze and follow-up data on morbidity and hospital stay. Riks-Stroke questions for a relative of a stroke patient

Baseline Visit (Day 1): Medical History BG00012 Monotherapy Safety and Efficacy Extension Study in Multiple Sclerosis (MS) (ENDORSE) NCT00835770

- 6/8/16 - 1 form, 3 itemgroups, 7 items, 1 language
Itemgroups: Subject Identification, Medical history Update, Medical history List
The primary objective of this study is to evaluate the long-term safety profile of BG00012 (dimethyl fumarate). Secondary objectives of this study are to evaluate the long-term efficacy of BG00012 using clinical endpoints and disability progression, to evaluate further the long-term effects of BG00012 on multiple sclerosis (MS) brain lesions on magnetic resonance imaging (MRI) scans in participants who had MRI scans as part of Studies 109MS301 (NCT00420212) and 109MS302 (NCT00451451) and to evaluate the long-term effects of BG00012 on health economics assessments and the visual function test. NCT00835770 Part: Baseline Visit (Day 1)

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