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Top 300 Dataset of the Medical Informatics Initiative Germany (MII) - Laboratory Tests (Overview)

- 4/29/19 - 1 form, 1 itemgroup, 300 items, 2 languages
Itemgroup: Laboratory Tests
The Top 300 Dataset (Kerndatensatz Labor) was developed by the Medical Informatics Initiative Germany (MII) and contains frequency-sorted, LOINC-coded analyses of the university clinics in Göttingen, Gießen, Munich, Greifswald and Erlangen. This form shows an overview of the preferred presentation of the most common laboratory parameters. Official german translations were used where available. https://www.medizininformatik-initiative.de/de/labordaten-in-der-medizininformatik-initiative Explanation of abbreviations (english / german): Bld = Blood / Blut BldA = arterial blood / arterielles Blut Ser = Serum / Serum Plas = Plasma / Plasma RBC = Red blood cells / Erythrozyten PPP = Platelet poor plasma / plättchenarmes Plasma Urine sed = Urine sediment / Urinsediment CSF = Cerebral spinal fluid / Liquor Body fld = Body fluid / Körperflüssigkeit

CDASH Lab Result Assessment (Scenario 3, Part 2) - CDASH LAB Result Assessment (Scenario 3, Part 2)

- 9/20/21 - 1 form, 1 itemgroup, 2 items, 2 languages
Itemgroup: LAB Abnormal result
modified from http://www.cdisc.org

26672_Common Data Elements Myeloid Leukemia (MDS AML CML) - Global Disease Course

- 9/20/21 - 13 forms, 3 itemgroups, 11 items, 1 language
Itemgroups: Global Disease Course, Red Cell Transfusion, Platelet Cell Transfusion
Common Data Elements Myeloid Leukemia (MDS, AML, CML) for use in clinical routine and clinical trial documentation. https://www.ncbi.nlm.nih.gov/pubmed/27577388

Physical Examination/Follow up

3 itemgroups 14 items

Administrative/Demographic Details

1 itemgroup 11 items

Medical History

3 itemgroups 9 items

Lab: Cytology/Cytogenetics/Cytochemistry

1 itemgroup 29 items

Lab: Immunophenotyping

1 itemgroup 17 items

Lab: Molecular Genetics

1 itemgroup 27 items

PCORnet Common Data Model (CDM) - Lab results V4.1

- 9/20/21 - 1 form, 1 itemgroup, 29 items, 1 language
Itemgroup: Lab results CM
Lab results This table is used to store quantitative and qualitative measurements from blood and other body specimens. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure. http://www.pcornet.org/pcornet-common-data-model/

Top 300 Laboratory Value Dataset of the Medical Informatics Initiative Germany (MII) (Extended Version) - SERO

- 12/6/19 - 11 forms, 17 itemgroups, 46 items, 1 language
Itemgroups: Rheumatoid factor, Thyroglobulin Ab, Neutrophil cytoplasmic Ab.perinuclear, Neutrophil cytoplasmic Ab.classic, Thyroperoxidase Ab, Thyrotropin receptor Ab, Smith extractable nuclear Ab, Nuclear Ab, SCL-70 extractable nuclear Ab, Mitochondria Ab, Tissue transglutaminase Ab.IgA, Mitochondria M2 Ab, PM-SCL extractable nuclear Ab, Cyclic citrullinated peptide Ab, Jo-1 extractable nuclear Ab, DNA double strand Ab, Myeloperoxidase Ab
The Top 300 Dataset (Kerndatensatz Labor) was developed by the Medical Informatics Initiative Germany (MII) and contains frequency-sorted, LOINC-coded analyses of the university clinics in Göttingen, Gießen, Munich, Greifswald and Erlangen. This form shows a detailed description containing primary and secondary LOINC codes of the 300 most common laboratory parameters. For each of the 300 laboratory parameters an itemgroup was created with all accepted variants of the laboratory parameters as items (secondary LOINC codes), the first item being the preferred LOINC variant of the MII (primary LOINC code). The itemgroup title is based on the primary LOINC code. The list is divided into subforms by the associated classes of laboratory parameters. If more than one class, the parameters can be found in the MIXED subform. An overview of the preferred presentation can also be found in the MDM portal (Laboratory Tests (Overview)). https://www.medizininformatik-initiative.de/de/labordaten-in-der-medizininformatik-initiative Explanation of abbreviations for types of specimen and classes/subforms: Type of specimen: Bld = Blood BldA = arterial blood Ser = Serum Plas = Plasma RBC = Red blood cells PPP = Platelet poor plasma Urine sed = Urine sediment CSF = Cerebral spinal fluid Body fld = Body fluid Classes (Subforms): CHEM = Chemistry HEM/BC = Hematology/Blood Cell Count COAG = Coagulation study UA = Urinalysis CELLMARK = Cell markers CLIN = clinical not elsewhere classified DRUG/TOX = drug levels & toxicology SERO = serology MICRO = Microbiology SPEC = Specimen characteristics

DRUG/TOX

17 itemgroups 55 items

MICRO

10 itemgroups 15 items

UA

12 itemgroups 30 items

CELLMARK

5 itemgroups 9 items

SPEC

5 itemgroups 5 items

CLIN

1 itemgroup 1 item

Sentinel Common Data Model Laboratory Results

- 8/25/19 - 1 form, 1 itemgroup, 33 items, 1 language
Itemgroup: Laboratory Results
Sentinel: Overview and Description of the Common Data Model v7.0.0 "The primary goal ofSentinel is to build and operate a national public health surveillance system to monitor the safety of FDA-regulated medical products, including drugs, biologics, and devices. Sentinel is part of the Sentinel Initiative, the FDA’s response to a congressional mandate to create an active surveillance system using electronic health data.The Sentinel program will undertake three major types of activities: (1) prospective evaluation of accumulating experience about specific medical products and specific suspected safety problems; (2) evaluation of the impact of FDA actions (e.g., labeling changes) on medical practice and health outcomes; and (3) rapid assessment of past experience in response to FDA questions about specific exposures and outcomes." For more information about Sentinel visit the website at: www.sentinelsystem.org For comments and suggestions, please email: info@sentinelsystem.org The SCDM Laboratory Result Table contains 1 record per result/entry. Only include resulted lab tests.1 Data Partners are strongly encouraged to review the comprehensive Sentinel Common Data Model Laboratory Result Table Documentation (v1.0) for details on how to populate each variable.

Acute Myeloid Leukemia - Treatment Details

- 9/20/21 - 13 forms, 6 itemgroups, 39 items, 1 language
Itemgroups: Therapeutic procedure; Details, Adverse Event, Hemopoietic stem cell transplant, Platelet Engraftment, Neutrophil Engraftment, Therapeutic procedure; Status
Acute Myeloid Leukemia Common Data Elements Holz

Medical History

6 itemgroups 20 items

Lab: Cytology/Cytogenetics/Cytochemistry

3 itemgroups 43 items

Lab: Molecular Genetics, Immunophenotyping, Cytogenetics

1 itemgroup 1 item

Physical Examination/Follow-up

4 itemgroups 27 items

Lab: Infectiology

1 itemgroup 11 items

Lab: Molecular Genetics

1 itemgroup 23 items

CDASH LAB Information (Scenario 3, Part 1)

- 6/20/18 - 1 form, 1 itemgroup, 5 items, 1 language
Itemgroup: LAB Information
modified from http://www.cdisc.org

NINDS CDE Laboratory Test Recommendations Table 6 – Urinalysis Multiple Sclerosis - Laboratory Test Recommendations Table 6 – Urinalysis

- 9/17/21 - 1 form, 1 itemgroup, 22 items, 1 language
Itemgroup: Urinalysis
NINDS Common Data Elements, Multiple Sclerosis Laboratory Test Recommendations Table 6 – Urinalysis Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Laboratory tests Friedreich´s Ataxia - Laboratory tests

- 5/2/16 - 1 form, 9 itemgroups, 379 items, 1 language
Itemgroups: Laboratory Tests Information, Complete Blood Count Laboratory Tests, Electrolyte Laboratory Tests, Lipid Laboratory Tests, Chemistry Laboratory Tests, Liver Function Laboratory Tests, Urinalysis Tests, Oxidative Stress Measures, Pregnancy Tests
NINDS Common Data Elements (Laboratory tests;Friedreich´s Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Laboratory Tests Recommendations Table 7 – Leukapheresis Multiple Sclerosis - Laboratory Tests Recommendations Table 7 – Leukapheresis

- 8/15/16 - 1 form, 1 itemgroup, 9 items, 1 language
Itemgroup: Leukapheresis
NINDS Common Data Elements, Multiple Sclerosis Laboratory Tests Recommendations Table 7 – Leukapheresis Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Laboratory Tests Recommendations Table 2 – Chemistries Multiple Sclerosis - Laboratory Tests Recommendations Table 2 – Chemistries

- 8/14/16 - 1 form, 1 itemgroup, 32 items, 1 language
Itemgroup: Chemistries
NINDS Common Data Elements, Multiple Sclerosis Laboratory Tests Recommendations Table 2 – Chemistries Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

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