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NINDS CDE Imaging Diagnostics Epilepsy - Imaging Diagnostics

- 22/4/16 - 1 Formulaire, 5 Groupes Item, 148 Eléments de données, 1 Langue
Groupes Item: Functional Magnetic Resonance Imaging, Ictal SPECT Localization, Magnetic Resonance Imaging, MEG Acquisition, PET Localization
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Non-Imaging Diagnostics Recommendations Multiple Sclerosis - Non-Imaging Diagnostics Recommendations

- 13/4/21 - 1 Formulaire, 6 Groupes Item, 52 Eléments de données, 1 Langue
Groupes Item: ECG, Pulmonary Function Tests, Scalp Electroencephalogram, Immune Cell, Electrophysiology, Studies Nerve Conduction
NINDS Common Data Elements, Multiple Sclerosis Non-Imaging Diagnostics Recommendations Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Retinal Digital Photography Protocol PhenX Toolkit

- 27/9/17 - 1 Formulaire, 1 Groupe Item, 15 Eléments de données, 1 Langue
Groupe Item: PhenX - retinal digital photography protocol
Two 45¿ digital retinal images (Field 1 and 2) will be taken of each eye of the participant using the Canon Non-Mydriatic Retinal CR6-45NM camera with a digital Canon D60 camera back (6.3 megapixels per image). Field 1 is centered on the optic disc and Field 2 is centered on the macula, providing photographic documentation of the optic disc, macula, and substantial portions of the temporal arcades. These photographs may be graded for retinal microvascular characteristics, including focal arteriolar narrowing, arterio-venous nicking, retinopathy (e.g., microaneurysms, retinal hemorrhages) and other conditions. In addition, generalized arteriolar narrowing is quantified using a computer assisted measure of retinal vascular caliber. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

NINDS CDE Imaging Analysis Technique and Results – Baseline Multiple Sclerosis - Imaging Analysis Technique and Results – Baseline

- 14/8/16 - 1 Formulaire, 15 Groupes Item, 195 Eléments de données, 1 Langue
Groupes Item: analysis lesion mri, analysis GD-ENHANCING LESIONS, analysis lesion mri, ANALYSIS BRAIN VOLUME, ANALYSIS VENTRICULAR VOLUME, ANALYSIS GRAY MATTER VOLUME, ANALYSIS GRAY MATTER LESIONS, ANALYSIS WHITE MATTER VOLUME, VOLUMETRIC ANALYSIS BRAIN REGIONAL, volumetric analyses, ANALYSIS SPINAL CORD LESIONS, SPINAL CORD VOLUME AREA, Tissue Integrity Measures, MTR, DTI
NINDS Common Data Elements, Multiple Sclerosis Imaging Analysis Technique and Results – Baseline Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Acute coronary syndrome (clinical) DSS 2013- Ventricular ejection fraction cluster Metadata Online Registry (METeOR)

- 4/9/16 - 1 Formulaire, 2 Groupes Item, 6 Eléments de données, 1 Langue
Groupes Item: Person, Ventricular ejection fraction test
Health sector data set specifications from METeOR, Australia's repository for national metadata standards, developed by the Australian Institute of Health and Welfare (http://meteor.aihw.gov.au/content/index.phtml/itemId/345165) Acute coronary syndrome (clinical) DSS 2013-: The scope for the ACS data set specification is to collect data on the period between when a person with ACS symptoms was first referred to a hospital or directly presented at a hospital, and when a person leaves the hospital, either from the emergency department or is discharged from the hospital. Ventricular ejection fraction cluster: The ventricular ejection fraction is the fraction of blood pumped out of a ventricle with each heart beat. Impaired ventricular ejection fraction can be indicative of damage to the heart muscle, such as that sustained during myocardial infarction. The ventricular ejection fraction cluster collects information on the timing, measurement type and results of a ventricular ejection fraction measurement during the current hospital presentation. Metadata and Classifications Unit Australian Institute of Health and Welfare GPO Box 570 Canberra ACT 2601

Acute coronary syndrome (clinical) DSS 2013- Functional stress test cluster Metadata Online Registry (METeOR)

- 4/9/16 - 1 Formulaire, 2 Groupes Item, 6 Eléments de données, 1 Langue
Groupes Item: Functional stress test, Person
Health sector data set specifications from METeOR, Australia's repository for national metadata standards, developed by the Australian Institute of Health and Welfare (http://meteor.aihw.gov.au/content/index.phtml/itemId/345165) Acute coronary syndrome (clinical) DSS 2013-: The scope for the ACS data set specification is to collect data on the period between when a person with ACS symptoms was first referred to a hospital or directly presented at a hospital, and when a person leaves the hospital, either from the emergency department or is discharged from the hospital. Functional stress test cluster: A functional stress test evaluates arterial blood flow to the heart muscle during increased cardiac work through physical exercise or pharmacological methods. The functional stress test cluster collects information on the timing, characteristics and results of a functional stress test performed during the current hospital presentation. Metadata and Classifications Unit Australian Institute of Health and Welfare GPO Box 570 Canberra ACT 2601

Acute coronary syndrome (clinical) DSS 2013- Electrocardiogram cluster Metadata Online Registry (METeOR)

- 4/9/16 - 1 Formulaire, 2 Groupes Item, 10 Eléments de données, 1 Langue
Groupes Item: Electrocardiogram, Person
Health sector data set specifications from METeOR, Australia's repository for national metadata standards, developed by the Australian Institute of Health and Welfare (http://meteor.aihw.gov.au/content/index.phtml/itemId/345165) Acute coronary syndrome (clinical) DSS 2013-: The scope for the ACS data set specification is to collect data on the period between when a person with ACS symptoms was first referred to a hospital or directly presented at a hospital, and when a person leaves the hospital, either from the emergency department or is discharged from the hospital. Electrocardiogram cluster: An electrocardiogram (ECG) measures the electrical activity of the heart over time. The evaluation of an ECG provides important diagnostic information relevant to the risk stratification, diagnosis and management of acute coronary syndromes. The electrocardiogram cluster collects information on the timing of each ECG and specific diagnostic characteristics determined from the ECG: • ECG change type and location • Bundle-branch block status • Q waves status • ST-segment elevation in lead V4R Metadata and Classifications Unit Australian Institute of Health and Welfare GPO Box 570 Canberra ACT 2601

OPS Chapter 3 Diagnostic Imaging

- 20/9/21 - 1 Formulaire, 1 Groupe Item, 1 Élément de données, 2 Langues
Groupe Item: OPS 3
derived from: OPS - German Procedure Classification https://www.dimdi.de/static/en/klassi/ops/index.htm DIMDI publishes the OPS classification on behalf of the Federal Ministry of Health; it is in the public domain. Its use in inpatient care is laid down in 301 Volume V of the German Social Security Code (SGB V) and for surgical procedures in the outpatient sector in 295 SGB V.

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