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International Prostate Symptom Score - IPSS

- 4/4/19 - 1 form, 1 itemgroup, 7 items, 2 languages
Itemgroup: Urination
The International Prostate Symptom Score (IPSS) is a questionnaire about the disease benign prostatic hyperplasia. This questionnaire was created in 1992 by the American Urological Association, the original name was "AUA symptom score" or "AUA-7" (American Urological Association symptom score 7). For each of the seven symptoms, zero to five points are awarded: Residual urinary sensation, urge to urinate again two hours after last toilet visit, urinary stuttering, inability to postpone urination, weak urinary stream, urination pressure and frequency of urination at night. According to this point system, patients are divided into those with mild (IPSS<8), moderate (IPSS=8-19) and severe (IPSS=20-35) symptoms. A therapy is usually started from a value greater than 7 and existing distress. Barry MJ et al. The American Urological Association symptom index for benign prostatic hyperplasia. The Measurement Committee of the American Urological Association. J Urol. 1992. https://www.ncbi.nlm.nih.gov/pubmed/1279218 https://de.wikipedia.org/wiki/International_Prostate_Symptom_Score Before applying for a DOI to reproduce the instrument in a publication, permission of the Journal of Urology is required. https://eprovide.mapi-trust.org/instruments/international-prostate-symptom-score

ICHOM Advanced Prostate Cancer - Baseline Patient-reported Form

- 4/30/20 - 1 form, 4 itemgroups, 67 items, 1 language
Itemgroups: Administrative Data, Demographic factors, Baseline Clinical Factors, Degree of health
ADVANCED PROSTATE CANCER DATA COLLECTION Version 2.3.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: All patients with advanced prostate cancer, either having metastatic disease or biochemical recurrence progressing after salvage treatment or ineligible for salvage treatment. Patients with biochemical recurrence treated with salvage therapy are referred to the localized prostate cancer set. Treatment Approaches: Hormonal Therapy | Chemotherapy | Immunotherapy | Radiopharmaceuticals | Radiation | Interventions for Complications of Local Progression This form contains patient-reported variables, to be assessed at baseline. Questionnaires used in this form: Expanded Prostate Cancer Index Composite (EPIC-26): The EPIC-26 is free for all health care organizations, and a license is not needed. The scoring guide may be found at http://www.med.umich.edu/urology/research/EPIC/EPIC-26-Scoring-1.2007.pdf ; Wei J, Dunn R, Litwin M, Sandler H, and Sanda M. "Development and Validation of the Expanded Prostate Cancer Index Composite (EPIC) for Comprehensive Assessment of Health-Related Quality of Life in Men with Prostate Cancer", Urology. 56: 899-905, 2000. For registries choosing to implement the EPIC‐CP rather than the EPIC‐26, we recommend using the same variable IDs as the corresponding EPIC‐26 questions. This means that only questions 2, 3, 4a, 4b, 4d, 4e, 5, 6e, 6b, 7, 8b, 9, 12, 13a, 13c, and 13d of the EPIC-26 are administered. Utilization of Sexual Medications/Devices: The Utilization of Sexual Medications/Devices is free for all health care organizations, and a license is not needed (according to ICHOM). Refer to http://dx.doi.org/10.1016/j.urology.2006.01.077 for more information European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30): For use of the EORTC QLQ-C30 a license is needed, therefore the questions will not be part of this version of the standard set. (eortc.be) The following paper has been published about development of this standard set: Morgans AK, van Bommel ACM, Stowell C, Abrahm JL, Basch E, Bekelman JE, et al. Development of a Standardized Set of Patient-centered Outcomes for Advanced Prostate Cancer: An International Effort for a Unified Approach. Eur Urol. 2015 Nov;68(5):891–8. For the standard set ICHOM has been supported by the Movember Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

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