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ICHOM Chronic Kidney Disease - Patient-reported Outcome

- 4/30/20 - 1 form, 2 itemgroups, 41 items, 1 language
Itemgroups: Administrative Data, Patient-Reported Health and Wellbeing
CHRONIC KIDNEY DISEASE DATA COLLECTION Version 1.0.0 Revised October 25th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Chronic Kidney Disease Stage G3a/A3 | Chronic Kidney Disease StageG 3b/A2/A3 | Chronic Kidney Disease Stage G4 | Chronic Kidney Disease Stage G5 (KDIGO 2012 Stages) Treatment Approaches: Pre-RRT = Pre-Renal Replacement Therapy | HD = Haemodialysis | PD = Peritoneal Dialysis | Tx = Renal Transplantation | CC = Conservative Care This ODM-file contains patient reported outcome variables, to be collected at baseline and 6-monthly (HD, PD and CC) or annually (Pre-RRT and Tx) after that, from the following surveys: PROMIS-Global Health and PROMIS-29: Free for use in clinical practice. As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. RAND-36: The RAND 36-Item Short Form Survey (SF-36) was developed at RAND as part of the Medical Outcomes Study: https://www.rand.org/health/surveys_tools/mos/36-item-short-form.html . Publication: Verberne WR, Das-Gupta Z, Allegretti AS, et al. Development of an International Standard Set of Value-Based Outcome Measures for Patients With Chronic Kidney Disease: A Report of the International Consortium for Health Outcomes Measurement (ICHOM) CKD Working Group. American Journal of Kidney Diseases. Volume 73, Issue 3, 2019, Pages 372-384, ISSN 0272-6386, https://doi.org/10.1053/j.ajkd.2018.10.007 ICHOM was supported for the Chronic Kidney Disease Standard Set by NSW Agency for Clinical Innovation, Providence Health and Services, ERCPA, santeon and Dutch Kidney Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Renal risk score

- 1/25/18 - 1 form, 1 itemgroup, 7 items, 1 language
Itemgroup: Renal risk score
Given the high internal validity of this renal risk score, this score can be helpful to identify in- dividuals at increased risk for progressive chronic kidney disease (CKD). Halbesma, Nynke, et al. (2011) "Development and validation of a general population renal risk score." Clinical Journal of the American Society of Nephrology 6(7), 1731-1738.

Stuivenberg Hospital Acute Renal Failure (SHARF) II score T0 - Stuivenberg Hospital Acute Renal Failure (SHARF) II score T48

- 1/25/18 - 2 forms, 1 itemgroup, 9 items, 1 language
Itemgroup: SHARF score T48
A prognostic scoring system for hospital mortality in acute renal failure (Stuivenberg Hospital Acute Renal Failure, SHARF score) was developed in a single-centre study. The scoring system consists of two scores, for the time of diagnosis of acute renal failure (ARF) and for 48 h later, each originally based on four parameters (age, serum albumin, prothrombin time and heart failure). The SHARF II score is the result of a re-evaluation and modification and includes three more variables (serum bilirubin, sepsis and hypotension). References: Lins, R. L., Elseviers, M. M., Daelemans, R., Arnouts, P., Billiouw, J. M., Couttenye, M., ... & De Broe, M. E. (2004). Re-evaluation and modification of the Stuivenberg Hospital Acute Renal Failure (SHARF) scoring system for the prognosis of acute renal failure: an independent multicentre, prospective study. Nephrology dialysis transplantation, 19(9), 2282-2288. Lins, R. L., Elseviers, M., Daelemans, R., Zachée, P., Gheuens, E., Lens, S., & De Broe, M. E. (2000). Prognostic value of a new scoring system for hospital mortality in acute renal failure. Clin Nephrol, 53(1), 10-7.

Stuivenberg Hospital Acute Renal Failure (SHARF) II score T0

1 itemgroup 9 items

JAMA kidney failure risk score

- 8/10/17 - 1 form, 1 itemgroup, 9 items, 1 language
Itemgroup: JAMA kidney failure risk equation
The JAMA kidney failure risk equation is a model including the variables age, sex, estimated GFR, albuminuria, serum calcium, serum phosphate, serum bicarbonate, and serum albumin which is used to predict progression to kidney failure in patients with chronic kidney disease (CKD). Reference: Tangri, N., Stevens, L. A., Griffith, J., Tighiouart, H., Djurdjev, O., Naimark, D., ... & Levey, A. S. (2011). A predictive model for progression of chronic kidney disease to kidney failure. Jama, 305(15), 1553-1559. Publication granted by Navdeep Tangri.

QMMI score

- 9/27/21 - 1 form, 1 itemgroup, 12 items, 1 language
Itemgroup: QMMI score
In the context of the Quality Measurement and Management Initiative (QMMI) Coronary Revascularization Project, this "clinical prediction rule for in-hospital major adverse outcomes, defined as death, renal failure, reinfarction, cardiac arrest, cerebrovascular accident, or coma, in patients who underwent coronary artery bypass grafting (CABG)", was developed. Reference: Fortescue, E. B., Kahn, K., & Bates, D. W. (2001). Development and validation of a clinical prediction rule for major adverse outcomes in coronary bypass grafting. The American journal of cardiology, 88(11), 1251-1258.

Logistic Organ Dysfunction System (LODS) score

- 1/25/18 - 1 form, 7 itemgroups, 19 items, 1 language
Itemgroups: Neurologic System, Cardiovascular System, Renal System, Pulmonary System, Hematologic System, Hepatic System, total score
The LOD System provides an objective tool for assessing severity levels for organ dysfunction in the ICU, a critical component in the conduct of clinical trials. Reference: Jean-Roger Le Gall, Janelle Klar, Stanley Lemeshow, Fabienne Saulnier, Corinne Alberti, Antonio Artigas, Daniel Teres. The Logistic Organ Dysfunction System: A New Way to Assess Organ Dysfunction in the Intensive Care Unit. JAMA. 1996;276(10):802–810. doi:10.1001/jama.1996.03540100046027

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