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  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
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26672_Common Data Elements Myeloid Leukemia (MDS AML CML) - Global Disease Course

- 9/20/21 - 13 forms, 3 itemgroups, 11 items, 1 language
Itemgroups: Global Disease Course, Red Cell Transfusion, Platelet Cell Transfusion
Common Data Elements Myeloid Leukemia (MDS, AML, CML) for use in clinical routine and clinical trial documentation. https://www.ncbi.nlm.nih.gov/pubmed/27577388

Physical Examination/Follow up

3 itemgroups 14 items

Administrative/Demographic Details

1 itemgroup 11 items

Medical History

3 itemgroups 9 items

Lab: Cytology/Cytogenetics/Cytochemistry

1 itemgroup 29 items

Lab: Immunophenotyping

1 itemgroup 17 items

Lab: Molecular Genetics

1 itemgroup 27 items

EHR4CR Complete Data Inventory - EHR4CR Data Inventory

- 2/10/17 - 1 form, 13 itemgroups, 122 items, 1 language
Itemgroups: Demographics, Diagnoses and Procedures, Vital Signs, Laboratory, Generic Laboratory Data, Medication, Adverse Events, Medical History, Clinical Findings, ECG, Patient Reported Outcome, Substance Use, Study Participation Status
Compilation of Feasibility, Patient Identification & Recruitment and Clinical Trial Execution data inventories. https://www.ncbi.nlm.nih.gov/pubmed/24410735 https://www.ncbi.nlm.nih.gov/pubmed/25991199 https://www.ncbi.nlm.nih.gov/pubmed/27875988

Acute Myeloid Leukemia - Treatment Details

- 9/20/21 - 13 forms, 6 itemgroups, 39 items, 1 language
Itemgroups: Therapeutic procedure; Details, Adverse Event, Hemopoietic stem cell transplant, Platelet Engraftment, Neutrophil Engraftment, Therapeutic procedure; Status
Acute Myeloid Leukemia Common Data Elements Holz

Medical History

6 itemgroups 20 items

Lab: Cytology/Cytogenetics/Cytochemistry

3 itemgroups 43 items

Lab: Molecular Genetics, Immunophenotyping, Cytogenetics

1 itemgroup 1 item

Physical Examination/Follow-up

4 itemgroups 27 items

Lab: Infectiology

1 itemgroup 11 items

Lab: Molecular Genetics

1 itemgroup 23 items

DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Diagnostic Criteria - CRF Diagnostic Criteria

- 9/20/21 - 1 form, 20 itemgroups, 378 items, 1 language
Itemgroups: Date of visit, Mild cognitive impairment (MCI), Dementia in Alzheimer's Disease (AD), Posterior cortical atrophy (PCA), Vascular dementia, Frontotemporal dementia, behavioral variant, Primary progressive aphasia (PPA), Progressive nonfluent aphasia (PNFA), Logopenic progressive aphasia (LPA), Semantic dementia (SemD), Idiopathic Parkinson's disease (IPS), Morbus parkinson along with MCI (PD-MCI), Dementia in Parkinsons disease, Dementia with Lewy bodies (DLB), Progressive supranuclear palsy, Corticobasal degeneration (CBD), Multiple system atrophy (MSA), Essential tremor (ET), Amyotrophic lateral sclerosis (ALS), Depression
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

SpezifischeDiagnosen MS University Hospital Muenster (UKM) Subform

- 9/20/21 - 1 form, 1 itemgroup, 23 items, 1 language
Itemgroup: Diagnosen
Hospital Routine Documentation Subform at the University Hospital Muenster. Original Form name: SpezifischeDiagnosen.

Hematology/ Oncology request form University Hospital Cologne

- 9/17/21 - 1 form, 5 itemgroups, 73 items, 1 language
Itemgroups: patient information, laboratory procedure requested, radiology request, other examination, nursing medication request
Hospital Routine Documentation Subform at the University Hospital Cologne. Original Form name: HO-Anforderungsbogen

Hematology/ Oncology request elaboration form University Hospital Cologne

- 9/17/21 - 1 form, 4 itemgroups, 74 items, 1 language
Itemgroups: patient information, laboratory procedure requested, radiology request, other examination
Hospital Routine Documentation Subform at the University Hospital Cologne. Original Form name: HO-Ausarbeitungsbogen

Hematology/ Oncology execution form University Hospital Cologne - Hematology/ Oncology execution elaboration form University Hospital Cologne

- 9/17/21 - 1 form, 4 itemgroups, 75 items, 1 language
Itemgroups: patient information, laboratory procedure executed, radiologic examination execution, other examination
Hospital Routine Documentation Subform at the University Hospital Cologne. Original Form name: HO-Durchführungsbogen

clinic internal medicine B SHIP-Trend-1 body impedance analysis measurements

- 2/6/21 - 1 form, 1 itemgroup, 22 items, 2 languages
Itemgroup: body impedance analysis measurements
body impedance analysis measurements form of SHIP Study (Study of Health in Pomerania), conducted by the University Medicine of Greifswald. SHIP unique domain name TREND.TREND1.IMB.BIAMES. ODM derived from https://www.fvcm.med.uni-greifswald.de/dd_service/data_use_explore.php. Further information: http://www2.medizin.uni-greifswald.de/cm/fv/ship.html. Publication granted by Prof. Völzke. Reference: Völzke H, et al. Cohort profile: the study of health in Pomerania. Int J Epidemiol. 2011;40(2):294-307. PMID: 20167617

medical examination SHIP-Trend-1 KNEESCORE: KSS

- 2/4/21 - 1 form, 1 itemgroup, 34 items, 2 languages
Itemgroup: KNEESCORE: KSS
KNEESCORE: KSS form of SHIP Study (Study of Health in Pomerania), conducted by the University Medicine of Greifswald. SHIP unique domain name TREND.TREND1.MEX.PHYSEXAM.KNEESCORE. ODM derived from https://www.fvcm.med.uni-greifswald.de/dd_service/data_use_explore.php. Further information: http://www2.medizin.uni-greifswald.de/cm/fv/ship.html. Publication granted by Prof. Völzke. Reference: Völzke H, et al. Cohort profile: the study of health in Pomerania. Int J Epidemiol. 2011;40(2):294-307. PMID: 20167617 The English version of this form is under development.

clinic internal medicine B SHIP-Trend-1 Vascular stiffness measurement

- 1/30/21 - 1 form, 1 itemgroup, 41 items, 2 languages
Itemgroup: Vascular stiffness measurement
Vascular stiffness measurement form of SHIP Study (Study of Health in Pomerania), conducted by the University Medicine of Greifswald. SHIP unique domain name TREND.TREND1.IMB.VAE.VAEOPD. ODM derived from https://www.fvcm.med.uni-greifswald.de/dd_service/data_use_explore.php. Further information: http://www2.medizin.uni-greifswald.de/cm/fv/ship.html. Publication granted by Prof. Völzke. Reference: Völzke H, et al. Cohort profile: the study of health in Pomerania. Int J Epidemiol. 2011;40(2):294-307. PMID: 20167617 The English version of this form is under development.

medical examination SHIP-Trend-1 hip knee score

- 1/24/21 - 1 form, 1 itemgroup, 26 items, 1 language
Itemgroup: hip knee score
hip knee score form of SHIP Study (Study of Health in Pomerania), conducted by the University Medicine of Greifswald. SHIP unique domain name TREND.TREND1.MEX.PHYSEXAM.ANGLE. ODM derived from https://www.fvcm.med.uni-greifswald.de/dd_service/data_use_explore.php. Further information: http://www2.medizin.uni-greifswald.de/cm/fv/ship.html. Publication granted by Prof. Völzke. Reference: Völzke H, et al. Cohort profile: the study of health in Pomerania. Int J Epidemiol. 2011;40(2):294-307. PMID: 20167617

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