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26672_Common Data Elements Myeloid Leukemia (MDS AML CML) - Global Disease Course

- 20/09/21 - 13 moduli, 3 itemgroups, 11 elementi, 1 linguaggio
Itemgroups: Global Disease Course, Red Cell Transfusion, Platelet Cell Transfusion
Common Data Elements Myeloid Leukemia (MDS, AML, CML) for use in clinical routine and clinical trial documentation. https://www.ncbi.nlm.nih.gov/pubmed/27577388

Physical Examination/Follow up

3 itemgroups 14 elementi

Administrative/Demographic Details

1 ItemGroup 11 elementi

Medical History

3 itemgroups 9 elementi

Lab: Cytology/Cytogenetics/Cytochemistry

1 ItemGroup 29 elementi

Lab: Immunophenotyping

1 ItemGroup 17 elementi

Lab: Molecular Genetics

1 ItemGroup 27 elementi

dbGaP phs001336 ECLS Survival in Pediatric HCT Recipient with Presumed Cardiac GVHD - pht006204.v1.p1

- 02/03/23 - 4 moduli, 1 ItemGroup, 3 elementi, 1 linguaggio
ItemGroup: pht006204
Principal Investigator: Matt Zinter, MD, University of California, San Francisco, San Francisco, CA, USA MeSH: Bone Marrow Transplantation,Hematopoietic Stem Cell Transplantation,Graft vs Host Disease,Myocarditis https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001336 We report the case of a 15-year-old female with hypodiploid pre-B acute lymphoblastic leukemia status post allogeneic hematopoietic stem cell transplantation (HCT) from a matched unrelated male donor who presented on transplant day +75 with cardiac arrest due to ventricular fibrillation associated with fulminant myocarditis. Using conventional diagnostics, an exhaustive search for microbial pathogens in the heart biopsy as well as nasopharynx, blood, urine, and endotracheal aspirate was performed but did not uncover a candidate pathogen. The family consented to a research study for the use of unbiased next-generation genomic sequencing for pathogen identification in the myocardial biopsy. DNA sequencing was performed on 1.5 x 10sup8/sup sequencing pairs and no microbial pathogens were identified. Interestingly, a significant component of Y-chromosomal human DNA was identified, suggesting infiltration of at least 10 donor leukocytes per host cell. This finding is grossly consistent with the lymphocyte:myocyte ratio in the biopsy according to visual inspection at 40x magnification. This case merits discussion due to (1) her survival after 17 days of veno-arterial extracorporeal life support (ECLS) and (2) the possibility of cardiotropic graft versus host disease (GVHD).

pht006205.v1.p1

1 ItemGroup 3 elementi

pht006206.v1.p1

1 ItemGroup 8 elementi

pht006207.v1.p1

1 ItemGroup 5 elementi

Bone Marrow Transplantation University Hospital Cologne

- 27/03/17 - 1 modulo, 2 itemgroups, 23 elementi, 1 linguaggio
Itemgroups: Examination after Stem Cell Transplatation, medication
Hospital Routine Documentation Subform at the University Hospital Cologne. Original Form name: MED1_KMT_Tx

EBMT Inherited Disorders Follow up

- 09/07/16 - 1 modulo, 7 itemgroups, 108 elementi, 1 linguaggio
Itemgroups: FOLLOW UP MULTIPLE SCLEROSIS, GRAFT VERSUS HOST DISEASE (GvHD) SINCE LAST REPORT, OTHER COMPLICATIONS SINCE LAST REPORT, ADDITIONAL THERAPIES SINCE LAST FOLLOW UP, GRAFT ASSESSMENT AND HAEMOPOIETIC CHIMAERISM, LAST DISEASE AND PATIENT STATUS, ADDITIONAL NOTES IF APPLICABLE
ODM form derived from 15pp EBMT Multiple Sclerosis 13MS please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

EBMT Inherited Disorders General Information - EBMT Inherited Disorders

- 09/07/16 - 1 modulo, 8 itemgroups, 101 elementi, 1 linguaggio
Itemgroups: EBMT FORM GENERAL INFORMATION, PATIENT, DISEASE, SPECIFICATIONS OF THE DISEASE, STATUS OF DISEASE AT HSCT, ADDITIONAL TREATMENT POST-HSCT, BEST DISEASE RESPONSE AT 100 DAYS POST-HSCT, FORMS TO BE FILLED IN
ODM form derived from 16pp EBMT Multiple Myeloma 10PCD. please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

EBMT Donor outcome Long term follow up report after last donation procedure

- 01/06/16 - 1 modulo, 9 itemgroups, 43 elementi, 1 linguaggio
Itemgroups: Donor outcome Long term follow up report after last donation procedure, TRANSPLANT CENTRE AND RECIPIENT IDENTIFICATION, COLLECTION CENTRE IDENTIFICATION, PRODUCT, DONOR DATA, FOLLOW UP OR DEATH REPORT, SAE/SAR SINCE LAST REPORT, DONOR STATUS ON THIS DATE, DONOR BEHAVIOUR
reference: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Eligibility Acute Leukemia NCT01362985

- 07/12/15 - 1 modulo, 2 itemgroups, 11 elementi, 1 linguaggio
Itemgroups: Criteria, Exclusion Criteria
Analysis of Data Collected in the European Group for Blood and Marrow Transplantation (EBMT) Registry for Off-Label Transplant Use of Plerixafor; ODM derived from: https://clinicaltrials.gov/show/NCT01362985

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