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NSCH 2016 Children Ages 12-17 - B. This Child as an Infant

- 2021-09-20 - 11 Formulär, 1 Item-grupp, 3 Dataelement, 1 Språk
Item-grupp: Infant
Study part: Children Ages 12-17 National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

A. This Child’s Health

1 Item-grupp 108 Dataelement

D. Experience with This Child’s Health Care Providers

1 Item-grupp 30 Dataelement

E. This Child’s Health Insurance Coverage

1 Item-grupp 18 Dataelement

F. Providing for This Child’s Health

1 Item-grupp 8 Dataelement

I. About Your Family and Household

1 Item-grupp 34 Dataelement

K. Household Information

1 Item-grupp 15 Dataelement

NSCH 2016 Children Ages 0-5 - B. This Child as an Infant

- 2021-09-20 - 11 Formulär, 1 Item-grupp, 10 Dataelement, 1 Språk
Item-grupp: Infant
Study part: Children Ages 0-5 National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

D. Experience with This Child’s Health Care Providers

1 Item-grupp 18 Dataelement

F. Providing for This Child’s Health

1 Item-grupp 8 Dataelement

E. This Child’s Health Insurance Coverage

1 Item-grupp 18 Dataelement

C. Health Care Services

1 Item-grupp 49 Dataelement

A. This Child’s Health

1 Item-grupp 99 Dataelement

I. About Your Family and Household

1 Item-grupp 32 Dataelement

NSCH 2016 Children Ages 6-11 - B. This Child as an Infant

- 2021-09-20 - 11 Formulär, 1 Item-grupp, 3 Dataelement, 1 Språk
Item-grupp: Infant
Study part: Children Ages 6-11 National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

F. Providing for This Child’s Health

1 Item-grupp 8 Dataelement

E. This Child’s Health Insurance Coverage

1 Item-grupp 18 Dataelement

I. About Your Family and Household

1 Item-grupp 34 Dataelement

K. Household Information

1 Item-grupp 15 Dataelement

G. This Child’s Learning

1 Item-grupp 11 Dataelement

H. About You and This Child

1 Item-grupp 21 Dataelement

NS-CSHCN 2009 - SECTION 9.5: ADD/ADHD Questions (only asked of children who currently have ADD/ADHD)

- 2021-09-17 - 14 Formulär, 3 Item-grupper, 26 Dataelement, 1 Språk
Item-grupper: SECTION 9.5, C95Q01A, SECTION 9.5 continuation
National Survey of Children with Special Health Care Needs, 2009/10 Survey Design and Sponsorship: Maternal and Child Health Bureau at the Health Resources and Services Administration in partnership with National Center for Health Statistics at the Centers for Disease Control, Child and Adolescent Health Measurement Initiative, and a National Technical Expert Panel Data Collection: National Center for Health Statistics at the Centers for Disease Control Geographic Areas: Nationwide, all 50 states and the District of Columbia Periodicity: 2001, 2005/06, 2009/10, yearly as of 2016/17 Population sampled: Non-institutionalized children with special health care needs (CSHCN) in the US ages 0-17 years Sample size range: Nationally: between 38,000 and 40,000 State: approximately 750 Representative: Weighted to be representative of the US population of non-institutionalized CSHCN ages 0-17 Topics: Assesses overall health and health status of CSHCN, including medical home, adequate health insurance, access to needed services, and adequate care coordination. Other topics include functional difficulties, transition services, and shared decision-making. http://childhealthdata.org/learn/NS-CSHCN

SECTION 11: Additional Demographics

1 Item-grupp 3 Dataelement

SECTION 10: Demographics

1 Item-grupp 10 Dataelement

SECTION 1: NIS/SLAITS Eligibility

1 Item-grupp 4 Dataelement

SECTION 2: Initial Demographics

1 Item-grupp 14 Dataelement

Registry Formular AIEOP-BFM ALL 2009 DRKS00003772 NCT01117441 - Registry Formular AIEOP-BFM ALL 2009 NCT01117441

- 2021-03-15 - 1 Formulär, 6 Item-grupper, 31 Dataelement, 1 Språk
Item-grupper: Patient Information, Eligibility Criteria, Steroid therapy and chemotherapy regimen, Concomitant studies and storage of clinical samples, Laboratory Diagnostic, Identification and Signature
International Collaborative Treatment Protocol For Children And Adolescents With Acute Lymphoblastic Leukemia. Phase 3 Study. Registry Formular (Please send this to study centre until Day 8) Clinical Trial Number: NCT01117441.

Ministry of Health, Ethiopia- Child Growth Monitoring Register - Child Growth Monitoring Register

- 2016-07-15 - 1 Formulär, 4 Item-grupper, 30 Dataelement, 1 Språk
Item-grupper: Facility information, Personal information, Growth monitoring and services, Total count
Form provided by Binyam Tilahun. Source: http://www.moh.gov.et/ (Ministry of Health, Ethiopia)

NSCH 2016 Household Screener - Household Screener

- 2017-01-06 - 1 Formulär, 6 Item-grupper, 158 Dataelement, 1 Språk
Item-grupper: Households, youngest sibling, Sibling Information, Sibling Information, Sibling Information, Sibling Information
Study part: Household Screener National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry - 18 year follow up Health monitoring of children and adolescents with Cerebral Palsy

- 2017-12-19 - 1 Formulär, 14 Item-grupper, 149 Dataelement, 2 Språk
Item-grupper: 18 year follow up, Demography, Community Outreach, School, leisure / free time, Medical background data, Additional handicap, Attention to daily life, activities, Pediatric Evaluation of Disability Inventory (PEDI), Functional skills, Help Requirements, General self-assessed health, Background issues regarding socio-emotional and practical support to Parents / Guardians
Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry Source: https://old.liu.se/habq/habq-formular-cp?l=sv Registry owner:Gunilla Rydberg, HabQ, Region Skåne, Child and youth rehabilitation, Skåne University Hospital (SUS), 205 02 Malmö gunilla.rydberg@skane.se Copyright:old.liu.se (habq) 18 year follow up Health monitoring of children and adolescents with Cerebral Palsy

Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry - 12 year follow up Health monitoring of children and adolescents with Cerebral Palsy

- 2017-12-19 - 1 Formulär, 18 Item-grupper, 210 Dataelement, 2 Språk
Item-grupper: 12 year follow up, Demography, Community Outreach, School, leisure / free time, Medical background data, Additional handicap, Cognitive functions, WPPSI-III scale, WISC-IV scale, Attention to daily life, activities, Pediatric Evaluation of Disability Inventory (PEDI), Functional skills, Help Requirements, General self-assessed health, Communication - Language - Eating, Background issues regarding socio-emotional and practical support to Parents / Guardians
Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry Source: https://old.liu.se/habq/habq-formular-cp?l=sv Registry owner:Gunilla Rydberg, HabQ, Region Skåne, Child and youth rehabilitation, Skåne University Hospital (SUS), 205 02 Malmö gunilla.rydberg@skane.se Copyright:old.liu.se (habq) 12 year follow up Health monitoring of children and adolescents with Cerebral Palsy

Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry - 15 year follow up Health monitoring of children and adolescents with Cerebral Palsy

- 2017-12-19 - 1 Formulär, 14 Item-grupper, 149 Dataelement, 2 Språk
Item-grupper: 15 year follow up, Demography, Community Outreach, School, leisure / free time, Medical background data, Additional handicap, Attention to daily life, activities, Pediatric Evaluation of Disability Inventory (PEDI), Functional skills, Help Requirements, General self-assessed health, Background issues regarding socio-emotional and practical support to Parents / Guardians
Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry Source: https://old.liu.se/habq/habq-formular-cp?l=sv Registry owner:Gunilla Rydberg, HabQ, Region Skåne, Child and youth rehabilitation, Skåne University Hospital (SUS), 205 02 Malmö gunilla.rydberg@skane.se Copyright:old.liu.se (habq) 15 year follow up Health monitoring of children and adolescents with Cerebral Palsy

Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry - 6 year follow up Health monitoring of children and adolescents with Cerebral Palsy

- 2017-12-19 - 1 Formulär, 18 Item-grupper, 206 Dataelement, 2 Språk
Item-grupper: 6 year follow up, Demography, Community Outreach, Preschool/School, leisure / free time, Medical background data, Additional handicap, Cognitive functions, WPPSI-III scale, WISC-IV scale, Attention to daily life, activities, Pediatric Evaluation of Disability Inventory (PEDI), Functional skills, Help Requirements, General self-assessed health, Communication - Language - Eating, Background issues regarding socio-emotional and practical support to Parents / Guardians
Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry Source: https://old.liu.se/habq/habq-formular-cp?l=sv Registry owner:Gunilla Rydberg, HabQ, Region Skåne, Child and youth rehabilitation, Skåne University Hospital (SUS), 205 02 Malmö gunilla.rydberg@skane.se Copyright:old.liu.se (habq) 6 year follow up Health monitoring of children and adolescents with Cerebral Palsy

Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry - 9 year follow up Health monitoring of children and adolescents with Cerebral Palsy

- 2017-12-18 - 1 Formulär, 14 Item-grupper, 147 Dataelement, 2 Språk
Item-grupper: 9 year follow up, Demography, Community Outreach, School, leisure / free time, Medical background data, Additional handicap, Attention to daily life, activities, Pediatric Evaluation of Disability Inventory (PEDI), Functional skills, Help Requirements, General self-assessed health, Background issues regarding socio-emotional and practical support to Parents / Guardians
Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry Source: https://old.liu.se/habq/habq-formular-cp?l=sv Registry owner:Gunilla Rydberg, HabQ, Region Skåne, Child and youth rehabilitation, Skåne University Hospital (SUS), 205 02 Malmö gunilla.rydberg@skane.se Copyright:old.liu.se (habq) 9 year follow up Health monitoring of children and adolescents with Cerebral Palsy

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