ID

46209

Description

DZG Basisdatensatz

Keywords

Versions (4)
  1. 9/19/23 9/19/23 - Dr. Christian Niklas
  2. 7/12/24 7/12/24 - Meike Fünderich
  3. 3/28/25 3/28/25 - Meike Fünderich
  4. 2/4/26 2/4/26 - Ivona Anastasova
Copyright Holder

DZG

Uploaded on

February 4, 2026

DOI

10.21961/mdm:46209

License

Creative Commons BY-NC-SA 4.0
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DZG-Basisdatensatz

German English

DZG Core Dataset

1 forms  
  1. StudyEvent: DZG Core Dataset
    1. DZG Core Dataset
General Information
Description

General Information

administrative gender
Description

is defined as the data which appear on the person’s identity card

Data type

text

Alias
UMLS CUI [1]
C1550327
LOINC
99502-7
inclusion date
Description

is defined as the date on which the examination takes place

Data type

date

Alias
UMLS CUI [1]
C4283761
LOINC
82778-2
age at inclusion
Description

Age at inclusion to the study

Data type

integer

Measurement units
  • years
Alias
UMLS CUI [1]
C5236162
SNOMED CT
424144002
years
phenotype/ main diagnosis
Description

Classification of phenotype, main diagnosis or reason for study inclusion. Specific catalog of DZG.

Data type

text

Alias
UMLS CUI [1]
C4522091
LOINC
86255-7
study
Description

Name of DZG study in which the proband was included. Specific catalog of DZG.

Data type

text

Alias
UMLS CUI [1]
C1629065
LOINC
42796-3
body height
Description

Height is measured in the standing position, without shoes and without head covering. Preferentially, measured data should be collected; only when this is not possible (e.g. in the case of bed-ridden patients) should one estimate the values or resort to information provided by the proband.

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0365282
LOINC
3137-7
cm
body weight
Description

Weight is measured in normal street clothing, without a jacket and without shoes. Preferentially, measured data should be collected; only when this is not possible (e.g. in the case of bed-ridden patients) should one estimate the values or resort to information provided by the proband.

Data type

integer

Measurement units
  • kg
Alias
UMLS CUI [1]
C0365286
LOINC
3141-9
kg
smoker
Description

is defined as current or previous use of cigarettes, cigars, pipes or smokeless tobacco. “Yes” for daily or occasional smoking (≥ 1x/month); "Non-smoker" for never smoked; “Ex-smoker“ for abstinence of more than 6 months

Data type

text

Alias
UMLS CUI [1]
C0453995
SNOMED
229819007
Diseases
Description

Diseases

diabetes
Description

information provided by the proband

Data type

integer

Alias
UMLS CUI [1]
C0011849
SNOMED CT
73211009
initial diagnosis of diabetes
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0011849
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
73211009
arterial hypertension
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0020538
SNOMED CT
38341003
initial diagnosis of arterial hypertension
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0020538
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
38341003
coronary heart disease
Description

initial diagnosis of arterial hypertension

Data type

text

Alias
UMLS CUI [1]
C0010068
SNOMED CT
53741008
initial diagnosis of coronary heart disease
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0010054
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
53741008
chronic lung disease
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0746102
SNOMED CT
413839001
initial diagnosis of chronic lung disease
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0746102
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
413839001
chronic virus infection
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C4014935
SNOMED CT
34014006
initial diagnosis of chronic virus infection
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C4014935
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
34014006
chronic mycobacteriosis
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0026918
SNOMED CT
88415009
initial diagnosis of chronic mycobacteriosis
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0026918
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
88415009
hospital-associated infection
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0205721
SNOMED CT
408678008
initial diagnosis of hospital-associated infection
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0205721
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
408678008
malignant tumor
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0006826
SNOMED CT
363346000
initial diagnosis of malignant tumor
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0006826
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
363346000
neurological disease
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0027765
SNOMED CT
118940003
initial diagnosis of neurological disease
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0027765
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
118940003
mental illness
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0004936
Snomed CT
74732009
initial diagnosis of mental illness
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0004936
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
74732009
heart failure
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0018801
SNOMED CT
84114007
initial diagnosis of heart failure
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0018801
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
84114007
atrial fibrillation
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0004238
SNOMED CT
49436004
initial diagnosis of atrial fibrillation
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0004238
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
49436004
dyslipidemia
Description

information provided by the proband

Data type

text

Alias
UMLS CUI [1]
C0242339
SNOMED CT
370992007
initial diagnosis of dyslipidemia
Description

information provided by the proband

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0242339
SNOMED CT [1,1]
432213005
SNOMED CT [1,2]
704326004
SNOMED CT [1,3]
370992007
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Similar models

DZG Core Dataset

1 forms
  1. StudyEvent: DZG Core Dataset
    1. DZG Core Dataset
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
General Information
Item
administrative gender
text
C1550327 (UMLS CUI [1])
99502-7 (LOINC)
CL.1
Code List
administrative gender
CL Item
male (1)
LA15170-6 (LOINC)
CL Item
female (2)
LA13504-8 (LOINC)
CL Item
divers (3)
LA32969-0 (LOINC)
inclusion_date
Item
inclusion date
date
C4283761 (UMLS CUI [1])
82778-2 (LOINC)
age_at_inclusion
Item
age at inclusion
integer
C5236162 (UMLS CUI [1])
424144002 (SNOMED CT)
phenotype_main_diagnosis
Item
phenotype/ main diagnosis
text
C4522091 (UMLS CUI [1])
86255-7 (LOINC)
study
Item
study
text
C1629065 (UMLS CUI [1])
42796-3 (LOINC)
body_height
Item
body height
integer
C0365282 (UMLS CUI [1])
3137-7 (LOINC)
body_weight
Item
body weight
integer
C0365286 (UMLS CUI [1])
3141-9 (LOINC)
Item
smoker
text
C0453995 (UMLS CUI [1])
229819007 (SNOMED)
CL.4
Code List
smoker
CL Item
yes (1)
77176002 (SNOMED CT)
CL Item
non-smoker (2)
266919005 (SNOMED CT)
CL Item
ex-smoker (3)
8517006 (SNOMED CT)
Item Group
Diseases
Item
diabetes
integer
C0011849 (UMLS CUI [1])
73211009 (SNOMED CT)
CL.5
Code List
diabetes
CL Item
type 1 (1)
46635009 (SNOMED CT)
CL Item
type 2 with insulin (2)
237599002 (SNOMED CT)
CL Item
type 2 without insulin (3)
44054006 (SNOMED CT)
CL Item
type 3 (4)
8801005 (SNOMED CT)
CL Item
gestational diabetes (5)
11687002 (SNOMED CT)
CL Item
no (6)
410516002 (SNOMED CT)
initial_diagnosis_of_diabetes
Item
initial diagnosis of diabetes
date
C2316983 (UMLS CUI [1,1])
C0011849 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
73211009 (SNOMED CT [1,3])
Item
arterial hypertension
text
C0020538 (UMLS CUI [1])
38341003 (SNOMED CT)
CL.12
Code List
arterial hypertension
CL Item
yes (1)
410515003 (SNOMED CT)
CL Item
no (2)
410516002 (SNOMED CT)
Initial_diagnosis_of_arterial_hypertension
Item
initial diagnosis of arterial hypertension
date
C2316983 (UMLS CUI [1,1])
C0020538 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
38341003 (SNOMED CT [1,3])
Item
coronary heart disease
text
C0010068 (UMLS CUI [1])
53741008 (SNOMED CT)
CL.13
Code List
coronary heart disease
CL Item
yes (1)
410515003 (SNOMED CT)
CL Item
no (2)
410516002 (SNOMED CT)
initial_diagnosis_of_coronary_heart_disease
Item
initial diagnosis of coronary heart disease
date
C2316983 (UMLS CUI [1,1])
C0010054 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
53741008 (SNOMED CT [1,3])
Item
chronic lung disease
text
C0746102 (UMLS CUI [1])
413839001 (SNOMED CT)
CL.14
Code List
chronic lung disease
CL Item
yes (1)
410515003 (SNOMED CT)
CL Item
no (2)
410516002 (SNOMED CT)
initial_diagnosis_of_chronic_lung_disease
Item
initial diagnosis of chronic lung disease
date
C2316983 (UMLS CUI [1,1])
C0746102 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
413839001 (SNOMED CT [1,3])
Item
chronic virus infection
text
C4014935 (UMLS CUI [1])
34014006 (SNOMED CT)
CL.7
Code List
chronic virus infection
CL Item
HIV (1)
86406008 (SNOMED CT)
CL Item
hepatitis B (2)
66071002 (SNOMED CT)
CL Item
hepatitis C (3)
50711007 (SNOMED CT)
CL Item
other (4)
34014006 (SNOMED CT)
CL Item
no (5)
410516002 (SNOMED CT)
initial_diagnosis_of_chronic_virus_infection
Item
initial diagnosis of chronic virus infection
date
C2316983 (UMLS CUI [1,1])
C4014935 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
34014006 (SNOMED CT [1,3])
Item
chronic mycobacteriosis
text
C0026918 (UMLS CUI [1])
88415009 (SNOMED CT)
CL.8
Code List
chronic mycobacteriosis
CL Item
tuberculosis (1)
56717001 (SNOMED CT)
CL Item
other infection with mycobacteria (2)
88415009 (SNOMED CT)
CL Item
no (3)
410516002 (SNOMED CT)
initial_diagnosis_of_chronic_mycobacteriosis
Item
initial diagnosis of chronic mycobacteriosis
date
C2316983 (UMLS CUI [1,1])
C0026918 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
88415009 (SNOMED CT [1,3])
Item
hospital-associated infection
text
C0205721 (UMLS CUI [1])
408678008 (SNOMED CT)
CL.9
Code List
hospital-associated infection
CL Item
bloodstream infection (1)
91302008 (SNOMED CT)
CL Item
pneumonia (2)
425464007 (SNOMED CT)
CL Item
wound infection (3)
76844004 (SNOMED CT)
CL Item
other (4)
408678008 (SNOMED CT)
CL Item
no (5)
410516002 (SNOMED CT)
initial_diagnosis_of_hospital_associated_infection
Item
initial diagnosis of hospital-associated infection
date
C2316983 (UMLS CUI [1,1])
C0205721 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
408678008 (SNOMED CT [1,3])
Item
malignant tumor
text
C0006826 (UMLS CUI [1])
363346000 (SNOMED CT)
CL.10
Code List
malignant tumor
CL Item
solid tumor (1)
369757002 (SNOMED CT)
CL Item
non solid tumor (2)
363346000 (SNOMED CT)
CL Item
no (3)
410516002 (SNOMED CT)
initial_diagnosis_of_malignant_tumor
Item
initial diagnosis of malignant tumor
date
C2316983 (UMLS CUI [1,1])
C0006826 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
363346000 (SNOMED CT [1,3])
Item
neurological disease
text
C0027765 (UMLS CUI [1])
118940003 (SNOMED CT)
CL.11
Code List
neurological disease
CL Item
yes (1)
410515003 (SNOMED CT)
CL Item
no (2)
410516002 (SNOMED CT)
initial_diagnosis_of_neurological_disease
Item
initial diagnosis of neurological disease
date
C2316983 (UMLS CUI [1,1])
C0027765 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
118940003 (SNOMED CT [1,3])
Item
mental illness
text
C0004936 (UMLS CUI [1])
74732009 (Snomed CT)
CL.1
Code List
mental illness
CL Item
yes (1)
410515003 (SNOMED CT)
CL Item
no (2)
410516002 (SNOMED CT)
initial_diagnosis_of_mental_illness
Item
initial diagnosis of mental illness
date
C2316983 (UMLS CUI [1,1])
C0004936 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
74732009 (SNOMED CT [1,3])
Item
heart failure
text
C0018801 (UMLS CUI [1])
84114007 (SNOMED CT)
CL.2
Code List
heart failure
CL Item
yes (1)
410515003 (SNOMED CT)
CL Item
no (2)
410516002 (SNOMED CT)
initial_diagnosis_of_heart_failure
Item
initial diagnosis of heart failure
date
C2316983 (UMLS CUI [1,1])
C0018801 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
84114007 (SNOMED CT [1,3])
Item
atrial fibrillation
text
C0004238 (UMLS CUI [1])
49436004 (SNOMED CT)
CL.3
Code List
atrial fibrillation
CL Item
yes (1)
410515003 (SNOMED CT)
CL Item
no (2)
410516002 (SNOMED CT)
initial_diagnosis_of_atrial_fibrillation
Item
initial diagnosis of atrial fibrillation
date
C2316983 (UMLS CUI [1,1])
C0004238 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
49436004 (SNOMED CT [1,3])
Item
dyslipidemia
text
C0242339 (UMLS CUI [1])
370992007 (SNOMED CT)
CL.4
Code List
dyslipidemia
CL Item
yes (1)
410515003 (SNOMED CT)
CL Item
no (2)
410516002 (SNOMED CT)
initial_diagnosis_of_dyslipidemia
Item
initial diagnosis of dyslipidemia
date
C2316983 (UMLS CUI [1,1])
C0242339 (UMLS CUI [1,2])
432213005 (SNOMED CT [1,1])
704326004 (SNOMED CT [1,2])
370992007 (SNOMED CT [1,3])
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