ID

44821

Description

Dokumentation des Follow-Up für Patienten mit AML am Universitätsklinikum Heidelberg. Prof. Dr. med. Sascha Dietrich; Dr. med. Tim Sauer; Medizinischen Klinik V - Klinik für Hämatologie, Onkologie, Rheumatologie - Universitätsklinikum Heidelberg

Keywords

Versions (1)
  1. 1/31/22 1/31/22 - Dr. Christian Niklas
Copyright Holder

Sascha Dietrich; Tim Sauer

Uploaded on

January 31, 2022

DOI

10.21961/mdm:44821

License

Creative Commons BY-SA 4.0
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Klinische Dokumentation Med. V - Follow Up AML

German English

Klinische Dokumentation Med. V AML

1 forms  
Patient Master Data
Description

Patient Master Data

Alias
UMLS CUI [1]
C1320722
Patient Name
Description

Current family name of the patient at the day of reporting

Data type

text

Alias
UMLS CUI [1]
C1299487
Patient title
Description

Any academic title of a patient, all abbreviated and separated by "space". Examples: I.E; B.S; MD;Prof.; etc

Data type

text

Alias
UMLS CUI [1]
C0421450
Patient name suffix
Description

Any suffix to a patient name. Examples: Baron of ; Lady; Baronesse; of; van; etc

Data type

text

Alias
UMLS CUI [1,1]
C0030705
UMLS CUI [1,2]
C1718089
Patient given name
Description

Given names of a patient. More than one given name may be separated by "space"

Data type

text

Alias
UMLS CUI [1]
C1443235
Patient birth name
Description

Family name of patient at birth

Data type

text

Alias
UMLS CUI [1]
C1549652
Patient previous names
Description

Any previous names of a patient, maybe separated by "space"

Data type

text

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0027365
Patient gender
Description

Differentiation of a person by sexual characteristics

Data type

integer

Alias
UMLS CUI [1]
C0079399
Patient Birth Date
Description

Day month and year of a patient´s birth according to gregorian calendar

Data type

date

Alias
UMLS CUI [1]
C0421451
Patient body height
Description

Körpergröße

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0005890
cm
Patient body weight
Description

Körpergewicht

Data type

integer

Measurement units
  • kg
Alias
UMLS CUI [1]
C0005910
kg
Patient body surface area
Description

Körperoberfläche

Data type

integer

Measurement units
  • m^2
Alias
UMLS CUI [1]
C0005902
m^2
Patient age (in years)
Description

Patient Alter

Data type

integer

Measurement units
  • Jahre
Alias
UMLS CUI [1]
C0001779
Jahre
Diagnosis
Description

Diagnosis

Alias
UMLS CUI [1,1]
C0011900
UMLS CUI [1,2]
C0023467
General classification of the diagnosed AML
Description

AML Grobklassifikation

Data type

integer

Alias
UMLS CUI [1,1]
C1301142
UMLS CUI [1,2]
C0023467
AML diagnosis classification in more detail
Description

AML Feinklassifikation

Data type

text

Alias
UMLS CUI [1,1]
C0023467
UMLS CUI [1,2]
C2348235
UMLS CUI [1,3]
C0011900
Date of initial diagnosis
Description

Date specified in day, month and year on which the reportable diagnosis was first clinically or microscopically diagnosed by a physician. DD.MM.YYYY. Date unknown: Insert 00 unknown day and month: Insert 00:00

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0024299
Risk classification of the acute myeloic leukemia according to cytogenetics and molecular mutations
Description

AML Risikoklassifikation

Data type

integer

Alias
UMLS CUI [1,1]
C0023467
UMLS CUI [1,2]
C0033325
UMLS CUI [1,3]
C0449560
UMLS CUI [1,4]
C0017399
Referring physician
Description

Referring physician

Alias
UMLS CUI [1]
C1709880
Name of referring physician
Description

Name Zuweiser

Data type

text

Alias
UMLS CUI [1,1]
C0027365
UMLS CUI [1,2]
C1709880
Location of referring physician
Description

Ort Zuweiser

Data type

text

Alias
UMLS CUI [1,1]
C0450429
UMLS CUI [1,2]
C1709880
Previous therapy
Description

Previous therapy

Alias
UMLS CUI [1]
C1514463
Previous immuno- or chemotherapy
Description

Vorangegangene Chemo-/Immuntherapie

Data type

integer

Alias
UMLS CUI [1]
C1514461
UMLS CUI [2]
C1514457
Previous radiation therapy
Description

Vorangegangene Bestrahlungstherapie

Data type

integer

Alias
UMLS CUI [1]
C0279134
Previous myelodysplatic syndrome
Description

Vorangegangenes MDS

Data type

integer

Alias
UMLS CUI [1,1]
C3463824
UMLS CUI [1,2]
C0332152
Previous myeloproliferative/ myelodysplastic disease
Description

Vorausgehende myeloproliferative/ myelodysplastische Erkrankung

Data type

integer

Alias
UMLS CUI [1,1]
C3463824
UMLS CUI [1,2]
C0332152
UMLS CUI [2,1]
C1333046
UMLS CUI [2,2]
C0332152
Characteristics at initial diagnosis
Description

Characteristics at initial diagnosis

Alias
UMLS CUI [1,1]
C4071762
UMLS CUI [1,2]
C1521970
Date of diagnosis
Description

Diagnosedatum

Data type

date

Alias
UMLS CUI [1]
C2316983
Hemoglobin concentration
Description

Hb-Wert

Data type

float

Measurement units
  • g/dl
Alias
UMLS CUI [1]
C0518015
g/dl
Leucocytes measurement
Description

Leukozyten

Data type

float

Measurement units
  • /nl
Alias
UMLS CUI [1]
C0023508
/nl
Thrombocytes measurement
Description

Thrombozyten

Data type

float

Measurement units
  • /nl
Alias
UMLS CUI [1]
C0005821
/nl
Peripheral blast cells
Description

Periphere Blasten

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C0022885
UMLS CUI [1,2]
C1274040
UMLS CUI [1,3]
C0368761
%
LDH concentration
Description

LDH-Konzentration

Data type

float

Measurement units
  • U/l
Alias
UMLS CUI [1,1]
C0202113
UMLS CUI [1,2]
C0439457
U/l
Bone marrow cytology
Description

KM-Zytologie

Data type

text

Alias
UMLS CUI [1,1]
C3854434
UMLS CUI [1,2]
C0010819
Proportion of blast cells in bone marrow
Description

Blastenanteil im Knochenmark

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C3899187
UMLS CUI [1,2]
C0475264
UMLS CUI [1,3]
C0439165
%
Please note down the results of the FACS examination at initial diagnosis.
Description

Durchflusszytometrie Befund

Data type

text

Alias
UMLS CUI [1,1]
C0079366
UMLS CUI [1,2]
C0243095
UMLS CUI [1,3]
C4071762
Please note down the moleculargenetic findings at initial diagnosis.
Description

Molekulargenetik

Data type

text

Alias
UMLS CUI [1,1]
C0086345
UMLS CUI [1,2]
C0243095
UMLS CUI [1,3]
C4071762
Please note down the results of the FISH examination at initial diagnosis.
Description

FISH

Data type

text

Alias
UMLS CUI [1,1]
C0162789
UMLS CUI [1,2]
C4071762
Karyotype
Description

Karyotyp

Data type

text

Alias
UMLS CUI [1]
C1261273
AML relapse
Description

AML relapse

Alias
UMLS CUI [1,1]
C0277556
UMLS CUI [1,2]
C0023467
The following characteristics refer to the ... (number) relapse.
Description

Charakteristika bei x. Rezidiv

Data type

integer

Alias
UMLS CUI [1,1]
C1521970
UMLS CUI [1,2]
C0277556
UMLS CUI [1,3]
C0023467
UMLS CUI [1,4]
C1265611
UMLS CUI [1,5]
C0023467
Date of relapse
Description

Rezidivdatum

Data type

date

Alias
UMLS CUI [1]
C0807712
Hemoglobin concentration
Description

Hb-Wert

Data type

float

Measurement units
  • g/dl
Alias
UMLS CUI [1,1]
C0518015
UMLS CUI [1,2]
C0277556
g/dl
Leukocytes measurement
Description

Leukozyten-Wert

Data type

float

Measurement units
  • /nl
Alias
UMLS CUI [1,1]
C0023508
UMLS CUI [1,2]
C0277556
/nl
Thrombocytes measurement
Description

Thrombozyten-Wert

Data type

float

Measurement units
  • /nl
Alias
UMLS CUI [1,1]
C0005821
UMLS CUI [1,2]
C0277556
/nl
Peripheral blast cells
Description

Periphere Blasten

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C0022885
UMLS CUI [1,2]
C0368761
UMLS CUI [1,3]
C0277556
%
LDH concentration
Description

LDH-Konzentration

Data type

float

Measurement units
  • U/l
Alias
UMLS CUI [1,1]
C0202113
UMLS CUI [1,2]
C0277556
U/l
Bone marrow cytology
Description

KM-Zytologie

Data type

text

Alias
UMLS CUI [1,1]
C3854434
UMLS CUI [1,2]
C0010819
UMLS CUI [1,3]
C0277556
Proportion of blast cells in bone marrow
Description

KM-Blastenanteil

Data type

integer

Measurement units
  • %
Alias
UMLS CUI [1,1]
C0368761
UMLS CUI [1,2]
C0005953
UMLS CUI [1,3]
C0277556
%
Please note down the results of the FACS examination.
Description

Durchflusszytometrie Befund

Data type

text

Alias
UMLS CUI [1,1]
C0079366
UMLS CUI [1,2]
C0277556
Please note down the moleculargenetical results.
Description

Molekulargenetik Befund

Data type

text

Alias
UMLS CUI [1,1]
C0086345
UMLS CUI [1,2]
C0243095
UMLS CUI [1,3]
C0277556
Please note down the results of the FISH examination.
Description

FISH-Befund

Data type

text

Alias
UMLS CUI [1,1]
C0162789
UMLS CUI [1,2]
C0243095
UMLS CUI [1,3]
C0277556
Karyotype
Description

Karyotyp

Data type

text

Alias
UMLS CUI [1]
C1261273
Course of measurable disease
Description

Course of measurable disease

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C1513041
Date
Description

Datum

Data type

date

Alias
UMLS CUI [1]
C0011008
Initial diagnosis/ course of disease
Description

Erst/ Verlauf

Data type

text

Alias
UMLS CUI [1]
C0449259
Other information to complete the course of measurable disease (MRD)
Description

Sonstiges

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0449259
ABL transcripts
Description

ABL-Transkripte

Data type

text

Alias
UMLS CUI [1]
C0004891
ABL transcripts ratio (%)
Description

ABL-Transkripte: Ratio

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C0004891
UMLS CUI [1,2]
C0456603
%
Secondary diagnoses
Description

Secondary diagnoses

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0332138
Please note down the patient´s secondary diagnoses.
Description

Nebendiagnosen

Data type

text

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0332138
Biobank
Description

Biobank

Alias
UMLS CUI [1]
C2347027
Patient ID
Description

Patienten-ID

Data type

text

Alias
UMLS CUI [1]
C1269815
Specimen collection date
Description

Datum

Data type

date

Alias
UMLS CUI [1]
C1302413
Specimen ID
Description

Proben-ID

Data type

text

Alias
UMLS CUI [1]
C1299222
Current diagnostics
Description

Current diagnostics

Alias
UMLS CUI [1,1]
C0430022
UMLS CUI [1,2]
C0521116
Please note down the histopathologic findings.
Description

Histopathologischer Befund

Data type

text

Alias
UMLS CUI [1]
C0428093
Where has the histopathologic examination been performed?
Description

Histopathologischer Befund Erhebung

Data type

integer

Alias
UMLS CUI [1,1]
C0677043
UMLS CUI [1,2]
C0677043
UMLS CUI [1,3]
C0038951
Please note down the results of the FISH examination.
Description

FISH Befund

Data type

text

Alias
UMLS CUI [1,1]
C0162789
UMLS CUI [1,2]
C0243095
Where has the FISH examination been performed?
Description

FISH Befund Erhebung

Data type

integer

Alias
UMLS CUI [1,1]
C0162789
UMLS CUI [1,2]
C0243095
UMLS CUI [1,3]
C0450429
UMLS CUI [1,4]
C0038951
Please note down the results of FACS.
Description

Durchflusszytometrie Befund

Data type

text

Alias
UMLS CUI [1,1]
C0079366
UMLS CUI [1,2]
C0243095
Where has the FACS examination been performed?
Description

Durchflusszytometrie Befunderhebung

Data type

integer

Alias
UMLS CUI [1,1]
C0079366
UMLS CUI [1,2]
C0243095
UMLS CUI [1,3]
C0450429
Please note down the results of the bone marrow biopsy.
Description

Knochenmarkpunktion

Data type

text

Alias
UMLS CUI [1]
C0005957
Please note down the results of the molecular-biological examination.
Description

Molekularbiologie

Data type

text

Alias
UMLS CUI [1]
C1513388
Please note down the immunocytologic results.
Description

Immunzytologie

Data type

text

Alias
UMLS CUI [1,1]
C0010819
UMLS CUI [1,2]
C0079611
Please describe the symptoms of the patient.
Description

Symptomassessment

Data type

text

Alias
UMLS CUI [1]
C3494437
Where have the patient´s symptoms been assessed?
Description

Symptomassessment Erhebung

Data type

integer

Alias
UMLS CUI [1,1]
C3494437
UMLS CUI [1,2]
C0450429
Please note down the results of diagnostic imaging.
Description

Bildgebung

Data type

text

Alias
UMLS CUI [1]
C0011923
Where has the diagnostic imaging been performed?
Description

Bildgebung Erhebung

Data type

integer

Alias
UMLS CUI [1,1]
C0011923
UMLS CUI [1,2]
C0450429
Modality of diagnostic imaging
Description

Bildgebung Modalität

Data type

integer

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0449851
UMLS CUI [1,3]
C0011923
Please note down the modality of diagnostic imaging if not listed above.
Description

Bildgebung - alternative Modalität

Data type

text

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0449851
UMLS CUI [1,3]
C0011923
Please note down the results of classical cytogenetics.
Description

Klassische Zytogenetik

Data type

text

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C0243095
Where has the classical cytogenetical examination been performed?
Description

Klassische Zytogenetik - Erhebung

Data type

integer

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C0450429
Please note down the results of the blood tests.
Description

Blutwerte

Data type

text

Alias
UMLS CUI [1,1]
C0018941
UMLS CUI [1,2]
C0243095
Where have the blood tests been performed?
Description

Blutwerte - Erhebung

Data type

integer

Alias
UMLS CUI [1,1]
C0018941
UMLS CUI [1,2]
C0450429
Please note down the results of other diagnostic procedures performed.
Description

Andere Diagnostik

Data type

text

Alias
UMLS CUI [1,1]
C0430022
UMLS CUI [1,2]
C0205394
Where has the other diagnostic procedure been performed?
Description

Andere Diagnostik - Erhebung

Data type

integer

Alias
UMLS CUI [1,1]
C0430022
UMLS CUI [1,2]
C0450429
The patient´s current status
Description

The patient´s current status

Alias
UMLS CUI [1,1]
C0449437
UMLS CUI [1,2]
C0521116
The patient´s status
Description

Patientenstatus

Data type

integer

Alias
UMLS CUI [1]
C0449437
The primary tumor´s status
Description

Erkrankungsstatus

Data type

text

Alias
UMLS CUI [1,1]
C0677930
UMLS CUI [1,2]
C0475752
Date of last contact
Description

Letzter Kontakt

Data type

date

Alias
UMLS CUI [1]
C0805839
Karnofsky score
Description

Karnofsky-Index

Data type

integer

Measurement units
  • %
Alias
UMLS CUI [1]
C0206065
Performance status
Description

ECOG Performance Status

Data type

integer

Alias
UMLS CUI [1]
C1520224
Course of therapy
Description

Course of therapy

Alias
UMLS CUI [1,1]
C0750729
UMLS CUI [1,2]
C0087111
Please note down the disease which has indicated the therapy.
Description

Erkrankung - Therapie

Data type

text

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C1314792
UMLS CUI [1,3]
C0012634
Is the therapy ...?
Description

Therapie

Data type

integer

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C1444656
UMLS CUI [2,1]
C0087111
UMLS CUI [2,2]
C0549178
UMLS CUI [3]
C0520253
Intention of systemic therapy
Description

Indicates what the systemic therapy is aiming at

Data type

text

Alias
UMLS CUI [1,1]
C0162425
UMLS CUI [1,2]
C0087111
Systemic therapy start date
Description

Indicates when the systemic treatment was started. dd.mm.yyyy

Data type

date

Alias
UMLS CUI [1]
C3173309
Type of therapy
Description

Art der Therapie

Data type

text

Alias
UMLS CUI [1]
C0087111
Systemic therapy protocol. Please give the name of protocol in usual abbreviations.
Description

Indicates the protocol used for systemic treatment.

Data type

text

Alias
UMLS CUI [1]
C0949634
Number of therapeutic cycles performed
Description

Anzahl der durchgeführten Zyklen

Data type

integer

Alias
UMLS CUI [1,1]
C0949634
UMLS CUI [1,2]
C1265611
Systemic therapy end date
Description

Indicates the date systemic therapy was stopped. dd.mm.yyyy

Data type

date

Alias
UMLS CUI [1]
C1531784
Please describe the response to treatment.
Description

Therapieansprechen

Data type

text

Alias
UMLS CUI [1]
C0521982
Was the therapy part of a study?
Description

Studie - Therapie

Data type

integer

Alias
UMLS CUI [1]
C0949266
Please note down the name of the study.
Description

Studienbezeichnung

Data type

text

Alias
UMLS CUI [1]
C2348560
Comments
Description

Kommentar

Data type

text

Alias
UMLS CUI [1]
C0947611
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Similar models

Klinische Dokumentation Med. V AML

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Patient Master Data
C1320722 (UMLS CUI [1])
Patienenname
Item
Patient Name
text
C1299487 (UMLS CUI [1])
Patiententitel
Item
Patient title
text
C0421450 (UMLS CUI [1])
Patienten Namenszusatz
Item
Patient name suffix
text
C0030705 (UMLS CUI [1,1])
C1718089 (UMLS CUI [1,2])
Patienten-Vorname
Item
Patient given name
text
C1443235 (UMLS CUI [1])
Patienten-Geburtsname
Item
Patient birth name
text
C1549652 (UMLS CUI [1])
Patienten - frühere Namen
Item
Patient previous names
text
C0205156 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Item
Patient gender
integer
C0079399 (UMLS CUI [1])
Patient gender
Code List
Patient gender
CL Item
male (1)
C0086582 (UMLS CUI-1)
CL Item
female (2)
C0086287 (UMLS CUI-1)
CL Item
other/intersexual (3)
C0205394 (UMLS CUI-1)
CL Item
unknown (4)
C0439673 (UMLS CUI-1)
Patienten Geburtsdatum
Item
Patient Birth Date
date
C0421451 (UMLS CUI [1])
Körpergröße
Item
Patient body height
integer
C0005890 (UMLS CUI [1])
Körpergewicht
Item
Patient body weight
integer
C0005910 (UMLS CUI [1])
Körperoberfläche
Item
Patient body surface area
integer
C0005902 (UMLS CUI [1])
Patient Alter
Item
Patient age (in years)
integer
C0001779 (UMLS CUI [1])
Item Group
Diagnosis
C0011900 (UMLS CUI [1,1])
C0023467 (UMLS CUI [1,2])
Item
General classification of the diagnosed AML
integer
C1301142 (UMLS CUI [1,1])
C0023467 (UMLS CUI [1,2])
Primary tumor ICD-Code
Code List
General classification of the diagnosed AML
CL Item
Acute myeloic leukemia (AML) with recurrent genetic aberration (1)
(Comment:de)
C0023467 (UMLS CUI-1)
C0008625 (UMLS CUI-2)
C2945760 (UMLS CUI-3)
(Comment:en)
CL Item
Acute myeloic leukemia (AML) with myelodysplasy associated changes (AML-MRC) (2)
(Comment:de)
C0023467 (UMLS CUI-1)
C0332281 (UMLS CUI-2)
C3463824 (UMLS CUI-3)
(Comment:en)
CL Item
Therapy associated acute myeloic leukemia (t-AML) (3)
(Comment:de)
C1336735 (UMLS CUI-1)
(Comment:en)
CL Item
Acute myeloic leukemia (AML), not otherwise specified (NOS) (4)
(Comment:de)
C0023467 (UMLS CUI-1)
C1518425 (UMLS CUI-2)
(Comment:en)
CL Item
Myleoic sarkoma (5)
(Comment:de)
C2939461 (UMLS CUI-1)
C1517060 (UMLS CUI-2)
(Comment:en)
CL Item
Down-Syndrom associated transient abnormal myelopoesis (TAM) (6)
(Comment:de)
C0013080 (UMLS CUI-1)
C0332281 (UMLS CUI-2)
C0018951 (UMLS CUI-3)
C0005953 (UMLS CUI-4)
C0205161 (UMLS CUI-5)
C0205374 (UMLS CUI-6)
(Comment:en)
CL Item
Down-Syndrom associated acute myeloic leukemia (7)
(Comment:de)
C0013080 (UMLS CUI-1)
C0332281 (UMLS CUI-2)
C0023467 (UMLS CUI-3)
(Comment:en)
CL Item
Blastic plasmacytoid dendritic neoplasm (8)
(Comment:de)
C1301363 (UMLS CUI-1)
(Comment:en)
CL Item
Acute leukemia with unclear line assignment (9)
(Comment:de)
C0085669 (UMLS CUI-1)
C3845108 (UMLS CUI-2)
C0008902 (UMLS CUI-3)
(Comment:en)
AML Feinklassifikation
Item
AML diagnosis classification in more detail
text
C0023467 (UMLS CUI [1,1])
C2348235 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Erstdiagnose des Lymphoms
Item
Date of initial diagnosis
date
C2316983 (UMLS CUI [1,1])
C0024299 (UMLS CUI [1,2])
Item
Risk classification of the acute myeloic leukemia according to cytogenetics and molecular mutations
integer
C0023467 (UMLS CUI [1,1])
C0033325 (UMLS CUI [1,2])
C0449560 (UMLS CUI [1,3])
C0017399 (UMLS CUI [1,4])
AML Risikoklassifikation
Code List
Risk classification of the acute myeloic leukemia according to cytogenetics and molecular mutations
CL Item
Favorable (1)
C0278250 (UMLS CUI-1)
(Comment:en)
CL Item
Intermediate (2)
C3640764 (UMLS CUI-1)
(Comment:en)
CL Item
Unfavorable (3)
C3640815 (UMLS CUI-1)
(Comment:en)
Item Group
Referring physician
C1709880 (UMLS CUI [1])
Name Zuweiser
Item
Name of referring physician
text
C0027365 (UMLS CUI [1,1])
C1709880 (UMLS CUI [1,2])
Ort Zuweiser
Item
Location of referring physician
text
C0450429 (UMLS CUI [1,1])
C1709880 (UMLS CUI [1,2])
Item Group
Previous therapy
C1514463 (UMLS CUI [1])
Item
Previous immuno- or chemotherapy
integer
C1514461 (UMLS CUI [1])
C1514457 (UMLS CUI [2])
Vorangegangene Chemo-/Immuntherapie
Code List
Previous immuno- or chemotherapy
CL Item
no  (0)
CL Item
yes (1)
Item
Previous radiation therapy
integer
C0279134 (UMLS CUI [1])
Vorangegangene Bestrahlungstherapie
Code List
Previous radiation therapy
CL Item
no  (0)
CL Item
yes (1)
Item
Previous myelodysplatic syndrome
integer
C3463824 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
Vorangegangenes MDS
Code List
Previous myelodysplatic syndrome
CL Item
no  (0)
CL Item
yes (1)
Item
Previous myeloproliferative/ myelodysplastic disease
integer
C3463824 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C1333046 (UMLS CUI [2,1])
C0332152 (UMLS CUI [2,2])
Vorausgehende myeloproliferative/ myelodysplastische Erkrankung
Code List
Previous myeloproliferative/ myelodysplastic disease
CL Item
no  (0)
CL Item
yes (1)
Item Group
Characteristics at initial diagnosis
C4071762 (UMLS CUI [1,1])
C1521970 (UMLS CUI [1,2])
Diagnosedatum
Item
Date of diagnosis
date
C2316983 (UMLS CUI [1])
Hb-Wert
Item
Hemoglobin concentration
float
C0518015 (UMLS CUI [1])
Leukozyten
Item
Leucocytes measurement
float
C0023508 (UMLS CUI [1])
Thrombozyten
Item
Thrombocytes measurement
float
C0005821 (UMLS CUI [1])
Periphere Blasten
Item
Peripheral blast cells
float
C0022885 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
C0368761 (UMLS CUI [1,3])
LDH-Konzentration
Item
LDH concentration
float
C0202113 (UMLS CUI [1,1])
C0439457 (UMLS CUI [1,2])
KM-Zytologie
Item
Bone marrow cytology
text
C3854434 (UMLS CUI [1,1])
C0010819 (UMLS CUI [1,2])
Blastenanteil im Knochenmark
Item
Proportion of blast cells in bone marrow
float
C3899187 (UMLS CUI [1,1])
C0475264 (UMLS CUI [1,2])
C0439165 (UMLS CUI [1,3])
Durchflusszytometrie Befund
Item
Please note down the results of the FACS examination at initial diagnosis.
text
C0079366 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C4071762 (UMLS CUI [1,3])
Molekulargenetik
Item
Please note down the moleculargenetic findings at initial diagnosis.
text
C0086345 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C4071762 (UMLS CUI [1,3])
FISH
Item
Please note down the results of the FISH examination at initial diagnosis.
text
C0162789 (UMLS CUI [1,1])
C4071762 (UMLS CUI [1,2])
Karyotyp
Item
Karyotype
text
C1261273 (UMLS CUI [1])
Item Group
AML relapse
C0277556 (UMLS CUI [1,1])
C0023467 (UMLS CUI [1,2])
Item
The following characteristics refer to the ... (number) relapse.
integer
C1521970 (UMLS CUI [1,1])
C0277556 (UMLS CUI [1,2])
C0023467 (UMLS CUI [1,3])
C1265611 (UMLS CUI [1,4])
C0023467 (UMLS CUI [1,5])
Charakteristika bei x. Rezidiv
Code List
The following characteristics refer to the ... (number) relapse.
CL Item
first (1)
(Comment:en)
CL Item
second (2)
(Comment:en)
CL Item
third (3)
(Comment:en)
CL Item
fourth (4)
(Comment:en)
CL Item
fifth (5)
(Comment:en)
CL Item
sixth (6)
(Comment:en)
CL Item
seventh (7)
(Comment:en)
Rezidivdatum
Item
Date of relapse
date
C0807712 (UMLS CUI [1])
Hb-Wert
Item
Hemoglobin concentration
float
C0518015 (UMLS CUI [1,1])
C0277556 (UMLS CUI [1,2])
Leukozyten-Wert
Item
Leukocytes measurement
float
C0023508 (UMLS CUI [1,1])
C0277556 (UMLS CUI [1,2])
Thrombozyten-Wert
Item
Thrombocytes measurement
float
C0005821 (UMLS CUI [1,1])
C0277556 (UMLS CUI [1,2])
Periphere Blasten
Item
Peripheral blast cells
float
C0022885 (UMLS CUI [1,1])
C0368761 (UMLS CUI [1,2])
C0277556 (UMLS CUI [1,3])
LDH-Konzentration
Item
LDH concentration
float
C0202113 (UMLS CUI [1,1])
C0277556 (UMLS CUI [1,2])
KM-Zytologie
Item
Bone marrow cytology
text
C3854434 (UMLS CUI [1,1])
C0010819 (UMLS CUI [1,2])
C0277556 (UMLS CUI [1,3])
KM-Blastenanteil
Item
Proportion of blast cells in bone marrow
integer
C0368761 (UMLS CUI [1,1])
C0005953 (UMLS CUI [1,2])
C0277556 (UMLS CUI [1,3])
Durchflusszytometrie Befund
Item
Please note down the results of the FACS examination.
text
C0079366 (UMLS CUI [1,1])
C0277556 (UMLS CUI [1,2])
Molekulargenetik Befund
Item
Please note down the moleculargenetical results.
text
C0086345 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C0277556 (UMLS CUI [1,3])
FISH-Befund
Item
Please note down the results of the FISH examination.
text
C0162789 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C0277556 (UMLS CUI [1,3])
Karyotyp
Item
Karyotype
text
C1261273 (UMLS CUI [1])
Item Group
Course of measurable disease
C0449259 (UMLS CUI [1,1])
C1513041 (UMLS CUI [1,2])
Datum
Item
Date
date
C0011008 (UMLS CUI [1])
Erst/ Verlauf
Item
Initial diagnosis/ course of disease
text
C0449259 (UMLS CUI [1])
Sonstiges
Item
Other information to complete the course of measurable disease (MRD)
text
C0205394 (UMLS CUI [1,1])
C0449259 (UMLS CUI [1,2])
ABL-Transkripte
Item
ABL transcripts
text
C0004891 (UMLS CUI [1])
ABL-Transkripte: Ratio
Item
ABL transcripts ratio (%)
float
C0004891 (UMLS CUI [1,1])
C0456603 (UMLS CUI [1,2])
Item Group
Secondary diagnoses
C0009488 (UMLS CUI [1,1])
C0332138 (UMLS CUI [1,2])
Nebendiagnosen
Item
Please note down the patient´s secondary diagnoses.
text
C0009488 (UMLS CUI [1,1])
C0332138 (UMLS CUI [1,2])
Item Group
Biobank
C2347027 (UMLS CUI [1])
Patienten-ID
Item
Patient ID
text
C1269815 (UMLS CUI [1])
Datum
Item
Specimen collection date
date
C1302413 (UMLS CUI [1])
Proben-ID
Item
Specimen ID
text
C1299222 (UMLS CUI [1])
Item Group
Current diagnostics
C0430022 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
Histopathologischer Befund
Item
Please note down the histopathologic findings.
text
C0428093 (UMLS CUI [1])
Item
Where has the histopathologic examination been performed?
integer
C0677043 (UMLS CUI [1,1])
C0677043 (UMLS CUI [1,2])
C0038951 (UMLS CUI [1,3])
Histopathologischer Befund Erhebung
Code List
Where has the histopathologic examination been performed?
CL Item
Internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
External (2)
C3844314 (UMLS CUI-1)
(Comment:en)
FISH Befund
Item
Please note down the results of the FISH examination.
text
C0162789 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Item
Where has the FISH examination been performed?
integer
C0162789 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C0450429 (UMLS CUI [1,3])
C0038951 (UMLS CUI [1,4])
Histopathologischer Befund Erhebung
Code List
Where has the FISH examination been performed?
CL Item
Internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
External (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Durchflusszytometrie Befund
Item
Please note down the results of FACS.
text
C0079366 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Item
Where has the FACS examination been performed?
integer
C0079366 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
C0450429 (UMLS CUI [1,3])
Histopathologischer Befund Erhebung
Code List
Where has the FACS examination been performed?
CL Item
Internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
External (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Knochenmarkpunktion
Item
Please note down the results of the bone marrow biopsy.
text
C0005957 (UMLS CUI [1])
Molekularbiologie
Item
Please note down the results of the molecular-biological examination.
text
C1513388 (UMLS CUI [1])
Immunzytologie
Item
Please note down the immunocytologic results.
text
C0010819 (UMLS CUI [1,1])
C0079611 (UMLS CUI [1,2])
Symptomassessment
Item
Please describe the symptoms of the patient.
text
C3494437 (UMLS CUI [1])
Item
Where have the patient´s symptoms been assessed?
integer
C3494437 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Histopathologischer Befund Erhebung
Code List
Where have the patient´s symptoms been assessed?
CL Item
Internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
External (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Bildgebung
Item
Please note down the results of diagnostic imaging.
text
C0011923 (UMLS CUI [1])
Item
Where has the diagnostic imaging been performed?
integer
C0011923 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Histopathologischer Befund Erhebung
Code List
Where has the diagnostic imaging been performed?
CL Item
Internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
External (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Item
Modality of diagnostic imaging
integer
C0332307 (UMLS CUI [1,1])
C0449851 (UMLS CUI [1,2])
C0011923 (UMLS CUI [1,3])
Bildgebung Modalität
Code List
Modality of diagnostic imaging
CL Item
CT (1)
C0040405 (UMLS CUI-1)
(Comment:en)
CL Item
MRT (2)
C0024485 (UMLS CUI-1)
(Comment:en)
CL Item
Ultrasound (3)
C1456803 (UMLS CUI-1)
(Comment:en)
CL Item
PET (4)
C0032743 (UMLS CUI-1)
(Comment:en)
CL Item
Other (5)
C0205394 (UMLS CUI-1)
(Comment:en)
Bildgebung - alternative Modalität
Item
Please note down the modality of diagnostic imaging if not listed above.
text
C0332307 (UMLS CUI [1,1])
C0449851 (UMLS CUI [1,2])
C0011923 (UMLS CUI [1,3])
Klassische Zytogenetik
Item
Please note down the results of classical cytogenetics.
text
C0010802 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Item
Where has the classical cytogenetical examination been performed?
integer
C0010802 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Histopathologischer Befund Erhebung
Code List
Where has the classical cytogenetical examination been performed?
CL Item
Internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
External (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Blutwerte
Item
Please note down the results of the blood tests.
text
C0018941 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Item
Where have the blood tests been performed?
integer
C0018941 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Histopathologischer Befund Erhebung
Code List
Where have the blood tests been performed?
CL Item
Internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
External (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Andere Diagnostik
Item
Please note down the results of other diagnostic procedures performed.
text
C0430022 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Where has the other diagnostic procedure been performed?
integer
C0430022 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Histopathologischer Befund Erhebung
Code List
Where has the other diagnostic procedure been performed?
CL Item
Internal (1)
C0205102 (UMLS CUI-1)
(Comment:en)
CL Item
External (2)
C3844314 (UMLS CUI-1)
(Comment:en)
Item Group
The patient´s current status
C0449437 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
Item
The patient´s status
integer
C0449437 (UMLS CUI [1])
Localization of distant metastases
Code List
The patient´s status
CL Item
Alive (1)
(Comment:de)
C2584946 (UMLS CUI-1)
(Comment:en)
CL Item
Dead (2)
(Comment:de)
C0011065 (UMLS CUI-1)
(Comment:en)
Item
The primary tumor´s status
text
C0677930 (UMLS CUI [1,1])
C0475752 (UMLS CUI [1,2])
Erkrankungsstatus
Code List
The primary tumor´s status
CL Item
No tumor detectable (K)
(Comment:en)
CL Item
Remaining tumor (residual tumor) (T)
(Comment:en)
CL Item
Remaining tumor (residual tumor) progress (P)
(Comment:en)
CL Item
Remaining tumor (residual tumor) no changes (N)
(Comment:en)
CL Item
Local relapse (R)
(Comment:en)
CL Item
Questionable finding (F)
(Comment:en)
CL Item
Unknown (U)
(Comment:en)
CL Item
Missing information (X)
(Comment:en)
Letzter Kontakt
Item
Date of last contact
date
C0805839 (UMLS CUI [1])
Item
Karnofsky score
integer
C0206065 (UMLS CUI [1])
Karnofsky-Index
Code List
Karnofsky score
CL Item
10 (1)
CL Item
20 (2)
CL Item
30 (3)
CL Item
40 (4)
CL Item
50 (5)
CL Item
60 (6)
CL Item
70 (7)
CL Item
80 (8)
CL Item
90 (9)
CL Item
100 (10)
Item
Performance status
integer
C1520224 (UMLS CUI [1])
ECOG Performance Status
Code List
Performance status
CL Item
Fully Active, Able To Carry On All Pre-disease Performance Without Restriction. (Karnofsky 90-100%) (0)
C1828078 (UMLS CUI-1)
(Comment:en)
CL Item
Restricted In Physically Strenuous Activity But Ambulatory And Able To Carry Out Work Of A Light Or Sedentary Nature, E.g., Light Housework, Office Work. (Karnofsky 70-80%) (1)
C1827388 (UMLS CUI-1)
(Comment:en)
CL Item
Ambulatory And Capable Of All Selfcare But Unable To Carry Out Any Work Activities. Up And About More Than 50% Of Waking Hours. (Karnofsky 50-60%) (2)
C1828242 (UMLS CUI-1)
(Comment:en)
CL Item
Capable Of Only Limited Selfcare, Confined To Bed Or Chair More Than 50% Of Waking Hours. (Karnofsky 30-40%) (3)
C1827126 (UMLS CUI-1)
(Comment:en)
CL Item
Completely Disabled. Cannot Carry On Any Selfcare. Totally Confined To Bed Or Chair. (Karnofsky 10-20%) (4)
C1827528 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (5)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Course of therapy
C0750729 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Erkrankung - Therapie
Item
Please note down the disease which has indicated the therapy.
text
C0087111 (UMLS CUI [1,1])
C1314792 (UMLS CUI [1,2])
C0012634 (UMLS CUI [1,3])
Item
Is the therapy ...?
integer
C0087111 (UMLS CUI [1,1])
C1444656 (UMLS CUI [1,2])
C0087111 (UMLS CUI [2,1])
C0549178 (UMLS CUI [2,2])
C0520253 (UMLS CUI [3])
Therapie
Code List
Is the therapy ...?
CL Item
Indicated (1)
C1444656 (UMLS CUI-1)
(Comment:en)
CL Item
Currently continuing (2)
C0549178 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
(Comment:en)
CL Item
Completed (3)
C0205197 (UMLS CUI-1)
(Comment:en)
Item
Intention of systemic therapy
text
C0162425 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Intention of radiotherapy
Code List
Intention of systemic therapy
CL Item
Curative (K)
C1276305 (UMLS CUI-1)
(Comment:en)
CL Item
Palliative (P)
C1285530 (UMLS CUI-1)
(Comment:en)
CL Item
Other (S)
C0205394 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (X)
C0439673 (UMLS CUI-1)
(Comment:en)
Startdatum der Therapie
Item
Systemic therapy start date
date
C3173309 (UMLS CUI [1])
Art der Therapie
Item
Type of therapy
text
C0087111 (UMLS CUI [1])
Therapieschema
Item
Systemic therapy protocol. Please give the name of protocol in usual abbreviations.
text
C0949634 (UMLS CUI [1])
Anzahl der durchgeführten Zyklen
Item
Number of therapeutic cycles performed
integer
C0949634 (UMLS CUI [1,1])
C1265611 (UMLS CUI [1,2])
Enddatum der Therapie
Item
Systemic therapy end date
date
C1531784 (UMLS CUI [1])
Therapieansprechen
Item
Please describe the response to treatment.
text
C0521982 (UMLS CUI [1])
Item
Was the therapy part of a study?
integer
C0949266 (UMLS CUI [1])
Studie - Therapie
Code List
Was the therapy part of a study?
CL Item
no  (0)
CL Item
yes (1)
Studienbezeichnung
Item
Please note down the name of the study.
text
C2348560 (UMLS CUI [1])
Kommentar
Item
Comments
text
C0947611 (UMLS CUI [1])
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