ID

44685

Description

Source: Swedish National Quality Registry for Leukaemia http://www.cancercentrum.se/samverkan/cancerdiagnoser/blod-lymfom-myelom/

Link

http://www.cancercentrum.se/samverkan/cancerdiagnoser/blod-lymfom-myelom/

Keywords

Versions (7)
  1. 10/14/17 10/14/17 - Martin Dugas
  2. 10/14/17 10/14/17 - Martin Dugas
  3. 10/21/17 10/21/17 - Martin Dugas
  4. 10/22/17 10/22/17 - Martin Dugas
  5. 10/22/17 10/22/17 - Martin Dugas
  6. 10/22/17 10/22/17 - Martin Dugas
  7. 9/27/21 9/27/21 -
Copyright Holder

Regionala cancercentrum i samverkan

Uploaded on

September 27, 2021

DOI

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License

Creative Commons BY-NC 3.0
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Swedish MDS registry

English Swedish

Myelodysplastic Syndrome - Registration

2 forms  
ANMÄLNINGSBLANKETT och CANCERANMÄLAN
Description

ANMÄLNINGSBLANKETT och CANCERANMÄLAN

Alias
UMLS CUI-1
C1514821
Inrapporterande sjukhus/klinik
Description

Reporting hospital

Data type

text

Alias
UMLS CUI [1]
C0019994
Inrapporterande läkare
Description

Reporting doctor

Data type

text

Alias
UMLS CUI [1]
C0031831
Rapporteringsdatum
Description

reporting date

Data type

date

Alias
UMLS CUI [1]
C1302584
Personnummer
Description

år mån dag - \d\d\d\d

Data type

text

Alias
UMLS CUI [1]
C1830427
Namn
Description

Name

Data type

text

Alias
UMLS CUI [1]
C1299487
LEDTIDER
Description

LEDTIDER

När skrevs remiss till inrapporterande enhet
Description

Referral written

Data type

date

Alias
UMLS CUI [1]
C2735614
När skrevs remiss till inrapporterande enhet
Description

Referral written

Data type

integer

Alias
UMLS CUI [1]
C2735614
När mottogs remissen av inrapporterande enhet
Description

Referral received

Data type

date

Alias
UMLS CUI [1]
C2735614
När mottogs remissen av inrapporterande enhet
Description

Referral received

Data type

integer

Alias
UMLS CUI [1]
C2735614
Första patientbesök på inrapporterande enhet
Description

First patient visit to reporting unit

Data type

date

Alias
UMLS CUI [1]
C4287881
Diagnos
Description

Diagnos

Alias
UMLS CUI-1
C0011900
Diagnosdatum
Description

Om benmärgsprov ger säker diagnos är diagnosdatum det datum då benmärgsprov togs. I övriga fall det datum då MDS fastställdes utifrån utredning/klinik

Data type

date

Alias
UMLS CUI [1]
C2316983
Diagnos enligt WHO klassifikation
Description

Diagnosis WHO classification

Data type

integer

Alias
UMLS CUI [1]
C1301142
Diagnosis comment
Description

Diagnosis comment

Data type

text

Alias
UMLS CUI [1,1]
C0011900
UMLS CUI [1,2]
C0947611
Patientens MDS uppfattas som
Description

MDS category

Data type

integer

Alias
UMLS CUI [1,1]
C3463824
UMLS CUI [1,2]
C0683312
TEST TO BIOBANK
Description

TEST TO BIOBANK

Alias
UMLS CUI-1
C2347027
Prov till nationella biobank skickat
Description

Samples to national biobank sent

Data type

integer

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0370003
UMLS CUI [1,3]
C1515023
Prov är även skickade till annan biobank
Description

Samples are also sent to another biobank

Data type

integer

Vilken biobank
Description

Which biobank

Data type

text

Alias
UMLS CUI [1]
C2347027
TIDIGARE SJUKDOMAR
Description

TIDIGARE SJUKDOMAR

Alias
UMLS CUI-1
C0683519
Tidigare cytostatikabehandling för malign sjukdom
Description

History of cytostatics for malignant disease

Data type

integer

Alias
UMLS CUI [1,1]
C0010858
UMLS CUI [1,2]
C0455471
Tidigare cytostatikabehandling för icke malign sjukdom
Description

History of cytostatics for non-malignant disease

Data type

integer

Alias
UMLS CUI [1,1]
C0010858
UMLS CUI [1,2]
C0262926
UMLS CUI [1,3]
C1518371
Tidigare strålbehandling
Description

undefined item

Data type

integer

Alias
UMLS CUI [1,1]
C1522449
UMLS CUI [1,2]
C0262926
Tidigare hematologisk sjukdom
Description

History of hematological disease

Data type

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0262926
Om Ja
Description

Previous hematological disease

Data type

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0205156
Tidigare hematologisk sjukdom
Description

Other previous hematological disease

Data type

text

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0205156
UMLS CUI [1,3]
C0205394
Diagnosår och månad för tidigare hematologisk sjukdom
Description

Diagnosis year and month of previous hematological disease

Data type

partialDate

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C2316983
Patientens MDS uppfattas som
Description

MDS perceived as

Data type

integer

Alias
UMLS CUI [1,1]
C3463824
UMLS CUI [1,2]
C0332307
TRANSFUSIONSBEROENDE VID DIAGNOS
Description

TRANSFUSIONSBEROENDE VID DIAGNOS

Alias
UMLS CUI-1
C1879316
Erytrocyter
Description

Erythrocyte transfusion

Data type

integer

Alias
UMLS CUI [1]
C0086252
Hb-värdet innan första blodtransfusionen
Description

Om ja ange Hb-värdet innan första blodtransfusionen gavs

Data type

float

Measurement units
  • g/dl
Alias
UMLS CUI [1,1]
C0019046
UMLS CUI [1,2]
C1979588
g/dl
Trombocyter
Description

Thrombocyte transfusion

Data type

integer

Alias
UMLS CUI [1]
C0086818
BLODPROVER VID DIAGNOSTILLFÄLLET
Description

BLODPROVER VID DIAGNOSTILLFÄLLET

Alias
UMLS CUI-1
C0018941
UMLS CUI-2
C0441942
Hb
Description

Hb

Data type

float

Measurement units
  • g/dl
Alias
UMLS CUI [1]
C0019046
g/dl
MCV
Description

MCV

Data type

text

Measurement units
  • fL
Alias
UMLS CUI [1]
C1948043
fL
LPK
Description

White blood cells

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0023508
10E9/L
Neutrofila granulocyter
Description

Neutrophil granulocytes

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0018183
10E9/L
Neutrofila granulocyter
Description

Neutrophil granulocytes

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0018183
%
Antal monocyter
Description

Monocytes

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0026473
10E9/L
Antal monocyter
Description

Monocytes

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0026473
%
Antal blaster i blod
Description

Blasts in blood

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1,1]
C0368761
UMLS CUI [1,2]
C0229664
10E9/L
Antal blaster i blod
Description

Blasts in blood

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C0368761
UMLS CUI [1,2]
C0229664
%
TPK
Description

Platelets

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0005821
10E9/L
LD
Description

LDH

Data type

float

Measurement units
  • µkat/l
Alias
UMLS CUI [1]
C0202113
µkat/l
S-Erytropoetin
Description

Erythropoetin

Data type

float

Measurement units
  • IE/L
Alias
UMLS CUI [1]
C0014822
IE/L
S-Ferritin
Description

Ferritin

Data type

float

Measurement units
  • µg/l
Alias
UMLS CUI [1]
C0015879
µg/l
JAK2/V617F
Description

JAK2/V617F

Data type

integer

Alias
UMLS CUI [1]
C2210829
BENMÄRGSPROV VID DIAGNOS
Description

BENMÄRGSPROV VID DIAGNOS

Alias
UMLS CUI-1
C0005953
UMLS CUI-2
C0441942
Benmärgsprov utfört
Description

Bone marrow test performed

Data type

integer

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C0884358
Aspirat
Description

Aspirate

Data type

boolean

Alias
UMLS CUI [1]
C0398523
Diagnoslab/klinik
Description

Diagnostic lab / Clinic

Data type

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Preparatnr.
Description

Sample ID

Data type

text

Alias
UMLS CUI [1]
C1299222
Preparatår
Description

Sample year

Data type

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Biopsi
Description

Biopsy

Data type

boolean

Alias
UMLS CUI [1]
C0005558
Diagnoslab/klinik
Description

Diagnostic lab / Clinic

Data type

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Preparatnr.
Description

Sample ID

Data type

text

Alias
UMLS CUI [1]
C1299222
Preparatår
Description

Sample year

Data type

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Cellhalt
Description

biopsi eller snittpreparat

Data type

integer

Alias
UMLS CUI [1,1]
C0007634
UMLS CUI [1,2]
C0456205
Andel blaster i benmärg
Description

Percentage of blasts in bone marrow

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C0439165
%
Exakt blastandel ej angivet benmärgssvar; ingen blastökning
Description

no blast increase

Data type

boolean

Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C1518422
UMLS CUI [1,3]
C0442805
Andel blaster saknas/ej bedömbart
Description

Proportion of blasts missing

Data type

boolean

Alias
UMLS CUI [1,1]
C0587348
UMLS CUI [1,2]
C1705492
Ringsideroblaster >= 15% av erytropoetiska celler
Description

Ring sideroblasts >=15% of erythropoietic cells

Data type

integer

Alias
UMLS CUI [1,1]
C0432608
UMLS CUI [1,2]
C0205217
Fibros grad 2-3
Description

Fibrosis

Data type

integer

Alias
UMLS CUI [1]
C0016059
Cytogenetik vid diagnos (+/ - 6 månader från diagnos)
Description

Cytogenetik vid diagnos (+/ - 6 månader från diagnos)

Alias
UMLS CUI-1
C0010802
UMLS CUI-2
C4071762
Cytogenetics performed
Description

Cytogenetics performed

Data type

integer

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C0884358
Diagnoslab/klinik
Description

Diagnostic lab / Clinic

Data type

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Preparatnr.
Description

Sample ID

Data type

text

Alias
UMLS CUI [1]
C1299222
Preparatår
Description

Sample year

Data type

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Resultat cytogenetik
Description

Result of cytogenetics

Data type

integer

Alias
UMLS CUI [1]
C0010802
Karyotyp textsträng
Description

kopiera in eller skriv fullständiga svaret på cytogenetiken

Data type

text

Alias
UMLS CUI [1]
C1261273
IPSS
Description

IPSS

Alias
UMLS CUI-1
C2827405
Riskgrupp enligt IPSS
Description

IPSS

Data type

integer

Alias
UMLS CUI [1]
C2827405
Riskgrupp enligt IPSS-R
Description

IPSS-R

Data type

integer

Alias
UMLS CUI [1]
C2827405
IPSS-R gick ej att beräkna pga. att något av följande saknades; Hb, neutrofila, Tpk, blastandel i benmärg eller cytogenetik. Kontrollera gärna införd data.
Description

IPSS-R could not be calculated

Data type

boolean

Alias
UMLS CUI [1]
C0686905
DIAGNOSGRUND
Description

DIAGNOSGRUND

Alias
UMLS CUI-1
C0011900
UMLS CUI-2
C0566251
Benmärgsprov gav säker diagnos
Description

Bone marrow tests provided safe diagnosis

Data type

integer

Alias
UMLS CUI [1]
C0005957
WHO performance status
Description

WHO performance status

Data type

text

Alias
UMLS CUI [1]
C1298650
BEHANDLING
Description

BEHANDLING

Alias
UMLS CUI-1
C0087111
Treatment decision after diagnosis
Description

Treatment decision after diagnosis

Data type

integer

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0679006
Behandlingsstart datum
Description

Treatment start date

Data type

date

Alias
UMLS CUI [1]
C3173309
Ännu ej startat behandling
Description

Not yet started treatment

Data type

boolean

Alias
UMLS CUI [1]
C1444646
Behandling enligt
Description

Treatment according to

Data type

integer

Alias
UMLS CUI [1]
C0162791
Vilken studie?
Description

Study name

Data type

text

Alias
UMLS CUI [1]
C2348560
Allogen stamcellstransplantation
Description

Allogeneic stem cell transplantation

Data type

integer

Alias
UMLS CUI [1]
C2242529
UPPFÖLJNING
Description

UPPFÖLJNING

Alias
UMLS CUI-1
C1522577
Sjukhus
Description

Forts behandling och uppföljning sker vid

Data type

text

Alias
UMLS CUI [1]
C0019994
Klinik
Description

Forts behandling och uppföljning sker vid

Data type

text

Alias
UMLS CUI [1]
C0442592
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Similar models

Myelodysplastic Syndrome - Registration

2 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
ANMÄLNINGSBLANKETT och CANCERANMÄLAN
C1514821 (UMLS CUI-1)
Reporting hospital
Item
Inrapporterande sjukhus/klinik
text
C0019994 (UMLS CUI [1])
Reporting doctor
Item
Inrapporterande läkare
text
C0031831 (UMLS CUI [1])
reporting date
Item
Rapporteringsdatum
date
C1302584 (UMLS CUI [1])
patient number
Item
Personnummer
text
C1830427 (UMLS CUI [1])
Name
Item
Namn
text
C1299487 (UMLS CUI [1])
Item Group
LEDTIDER
Referral written
Item
När skrevs remiss till inrapporterande enhet
date
C2735614 (UMLS CUI [1])
Item
När skrevs remiss till inrapporterande enhet
integer
C2735614 (UMLS CUI [1])
undefined item
Code List
När skrevs remiss till inrapporterande enhet
CL Item
Ej aktuellt (1)
C1272460 (UMLS CUI-1)
(Comment:en)
CL Item
Uppgift saknas (2)
C1883066 (UMLS CUI-1)
(Comment:en)
Referral received
Item
När mottogs remissen av inrapporterande enhet
date
C2735614 (UMLS CUI [1])
Item
När mottogs remissen av inrapporterande enhet
integer
C2735614 (UMLS CUI [1])
undefined item
Code List
När mottogs remissen av inrapporterande enhet
CL Item
Ej aktuellt (1)
C1272460 (UMLS CUI-1)
(Comment:en)
CL Item
Uppgift saknas (2)
C1883066 (UMLS CUI-1)
(Comment:en)
First patient visit to reporting unit
Item
Första patientbesök på inrapporterande enhet
date
C4287881 (UMLS CUI [1])
Item Group
Diagnos
C0011900 (UMLS CUI-1)
Date of diagnosis
Item
Diagnosdatum
date
C2316983 (UMLS CUI [1])
Item
Diagnos enligt WHO klassifikation
integer
C1301142 (UMLS CUI [1])
undefined item
Code List
Diagnos enligt WHO klassifikation
CL Item
RA (1)
C0002893 (UMLS CUI-1)
SNOMED - 99803 (Comment:sv)
CL Item
RN (2)
C2826320 (UMLS CUI-1)
SNOMED - 99803 (Comment:sv)
CL Item
RT (3)
C2826321 (UMLS CUI-1)
SNOMED - 99823 (Comment:sv)
CL Item
RCMD (4)
C0796466 (UMLS CUI-1)
SNOMED - 99853 (Comment:sv)
CL Item
RARS (5)
C1264195 (UMLS CUI-1)
SNOMED - 99823 (Comment:sv)
CL Item
RAEB-1 (6)
C1318550 (UMLS CUI-1)
SNOMED - 99833 (Comment:sv)
CL Item
RAEB-2 (7)
C1318551 (UMLS CUI-1)
SNOMED - 99833 (Comment:sv)
CL Item
5q-syndrom (8)
C0740302 (UMLS CUI-1)
SNOMED - 99863 (Comment:sv)
CL Item
MDS,UNS (9)
C3463824 (UMLS CUI-1)
C0205370 (UMLS CUI-2)
SNOMED - 99893 (Comment:sv)
CL Item
CMML (10)
C0023480 (UMLS CUI-1)
SNOMED - 99453 (Comment:sv)
CL Item
Atypisk kronisk myeloid leukemi (11)
C1292772 (UMLS CUI-1)
SNOMED - 98763 (Comment:sv)
CL Item
Juvenil myelomonocytisk leukemi (12)
C0349639 (UMLS CUI-1)
SNOMED - 99463 (Comment:sv)
CL Item
Myelodysplastisk/myeloproliferativ neoplasi, oklassificerbar (13)
C1301355 (UMLS CUI-1)
C0205426 (UMLS CUI-2)
SNOMED - 99753 (Comment:sv)
CL Item
RARS-T (14)
C2826330 (UMLS CUI-1)
SNOMED - 99823 (Comment:sv)
Diagnosis comment
Item
text
C0011900 (UMLS CUI [1,1])
C0947611 (UMLS CUI [1,2])
Item
Patientens MDS uppfattas som
integer
C3463824 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
MDS category
Code List
Patientens MDS uppfattas som
CL Item
Terapirelaterad (1)
(Comment:sv)
C0877578 (UMLS CUI-1)
(Comment:en)
CL Item
De novo (2)
(Comment:sv)
C1515568 (UMLS CUI-1)
(Comment:en)
Item Group
TEST TO BIOBANK
C2347027 (UMLS CUI-1)
Item
Prov till nationella biobank skickat
integer
C2347027 (UMLS CUI [1,1])
C0370003 (UMLS CUI [1,2])
C1515023 (UMLS CUI [1,3])
Samples to national biobank sent
Code List
Prov till nationella biobank skickat
CL Item
Nej (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Planeras men ännu ej utfört (2)
(Comment:sv)
C0424237 (UMLS CUI-1)
(Comment:en)
CL Item
Patienten avböjer biobank/kan ej till fråga (3)
(Comment:sv)
C0420590 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (4)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
Prov är även skickade till annan biobank
integer
Samples are also sent to another biobank
Code List
Prov är även skickade till annan biobank
CL Item
Ja (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Vet ej (2)
C1880386 (UMLS CUI-1)
(Comment:en)
Which biobank
Item
Vilken biobank
text
C2347027 (UMLS CUI [1])
Item Group
TIDIGARE SJUKDOMAR
C0683519 (UMLS CUI-1)
Item
Tidigare cytostatikabehandling för malign sjukdom
integer
C0010858 (UMLS CUI [1,1])
C0455471 (UMLS CUI [1,2])
history of cytostatics for malignant disease
Code List
Tidigare cytostatikabehandling för malign sjukdom
CL Item
Nej (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Uppgift saknas (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
Tidigare cytostatikabehandling för icke malign sjukdom
integer
C0010858 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C1518371 (UMLS CUI [1,3])
history of cytostatics for malignant disease
Code List
Tidigare cytostatikabehandling för icke malign sjukdom
CL Item
Nej (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Uppgift saknas (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
Tidigare strålbehandling
integer
C1522449 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
history of cytostatics for malignant disease
Code List
Tidigare strålbehandling
CL Item
Nej (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Uppgift saknas (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
Tidigare hematologisk sjukdom
integer
C0018939 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
history of cytostatics for malignant disease
Code List
Tidigare hematologisk sjukdom
CL Item
Nej (1)
(Comment:sv)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Uppgift saknas (3)
(Comment:sv)
C0814891 (UMLS CUI-1)
(Comment:en)
Item
Om Ja
integer
C0018939 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
Previous hematological disease
Code List
Om Ja
CL Item
ALL (1)
(Comment:sv)
C0023449 (UMLS CUI-1)
(Comment:en)
CL Item
AML (2)
(Comment:sv)
C0023467 (UMLS CUI-1)
(Comment:en)
CL Item
KML (3)
(Comment:sv)
C0023473 (UMLS CUI-1)
(Comment:en)
CL Item
Myelom (4)
(Comment:sv)
C0026764 (UMLS CUI-1)
(Comment:en)
CL Item
MPN (5)
(Comment:sv)
C0027022 (UMLS CUI-1)
(Comment:en)
CL Item
Lymfom (6)
(Comment:sv)
C0024299 (UMLS CUI-1)
(Comment:en)
CL Item
KLL (7)
(Comment:sv)
C0023434 (UMLS CUI-1)
(Comment:en)
CL Item
MGUS (8)
(Comment:sv)
C0026470 (UMLS CUI-1)
(Comment:en)
CL Item
Annan (9)
(Comment:sv)
C0205394 (UMLS CUI-1)
(Comment:en)
Other previous hematological disease
Item
Tidigare hematologisk sjukdom
text
C0018939 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Diagnosis year and month of previous hematological disease
Item
Diagnosår och månad för tidigare hematologisk sjukdom
partialDate
C0018939 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
Patientens MDS uppfattas som
integer
C3463824 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
MDS perceived as
Code List
Patientens MDS uppfattas som
CL Item
Terapirelaterad (1)
C2924519 (UMLS CUI-1)
(Comment:en)
CL Item
De novo (2)
C1515568 (UMLS CUI-1)
(Comment:en)
Item Group
TRANSFUSIONSBEROENDE VID DIAGNOS
C1879316 (UMLS CUI-1)
Item
Erytrocyter
integer
C0086252 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Erytrocyter
CL Item
Ja (1)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Diagnos främst baserad på blodprov och cytogenetik (2)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
C0010802 (UMLS CUI-3)
(Comment:en)
CL Item
Diagnos främst baserad på enbart blodprover (3)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
(Comment:en)
Hemoglobin before first transfusion
Item
Hb-värdet innan första blodtransfusionen
float
C0019046 (UMLS CUI [1,1])
C1979588 (UMLS CUI [1,2])
Item
Trombocyter
integer
C0086818 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Trombocyter
CL Item
Ja (1)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Diagnos främst baserad på blodprov och cytogenetik (2)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
C0010802 (UMLS CUI-3)
(Comment:en)
CL Item
Diagnos främst baserad på enbart blodprover (3)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
(Comment:en)
Item Group
BLODPROVER VID DIAGNOSTILLFÄLLET
C0018941 (UMLS CUI-1)
C0441942 (UMLS CUI-2)
Hb
Item
Hb
float
C0019046 (UMLS CUI [1])
MCV
Item
MCV
text
C1948043 (UMLS CUI [1])
White blood cells
Item
LPK
float
C0023508 (UMLS CUI [1])
Neutrophil granulocytes
Item
Neutrofila granulocyter
float
C0018183 (UMLS CUI [1])
Neutrophil granulocytes
Item
Neutrofila granulocyter
float
C0018183 (UMLS CUI [1])
Monocytes
Item
Antal monocyter
float
C0026473 (UMLS CUI [1])
Monocytes
Item
Antal monocyter
float
C0026473 (UMLS CUI [1])
Blasts in blood
Item
Antal blaster i blod
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Blasts in blood
Item
Antal blaster i blod
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Platelets
Item
TPK
float
C0005821 (UMLS CUI [1])
LDH
Item
LD
float
C0202113 (UMLS CUI [1])
Erythropoetin
Item
S-Erytropoetin
float
C0014822 (UMLS CUI [1])
Ferritin
Item
S-Ferritin
float
C0015879 (UMLS CUI [1])
Item
JAK2/V617F
integer
C2210829 (UMLS CUI [1])
JAK2/V617F
Code List
JAK2/V617F
CL Item
Ej muterad (1)
C1883559 (UMLS CUI-1)
(Comment:en)
CL Item
Muterad (2)
C0026882 (UMLS CUI-1)
(Comment:en)
CL Item
Ej utfört (3)
C0445106 (UMLS CUI-1)
(Comment:en)
Item Group
BENMÄRGSPROV VID DIAGNOS
C0005953 (UMLS CUI-1)
C0441942 (UMLS CUI-2)
Item
Benmärgsprov utfört
integer
C0005957 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
Erythrocyte transfusion
Code List
Benmärgsprov utfört
CL Item
Ja (1)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Diagnos främst baserad på blodprov och cytogenetik (2)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
C0010802 (UMLS CUI-3)
(Comment:en)
CL Item
Diagnos främst baserad på enbart blodprover (3)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
(Comment:en)
Aspirate
Item
Aspirat
boolean
C0398523 (UMLS CUI [1])
Diagnostic lab / Clinic
Item
Diagnoslab/klinik
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
Preparatnr.
text
C1299222 (UMLS CUI [1])
Sample year
Item
Preparatår
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Biopsy
Item
Biopsi
boolean
C0005558 (UMLS CUI [1])
Diagnostic lab / Clinic
Item
Diagnoslab/klinik
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
Preparatnr.
text
C1299222 (UMLS CUI [1])
Sample year
Item
Preparatår
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Item
Cellhalt
integer
C0007634 (UMLS CUI [1,1])
C0456205 (UMLS CUI [1,2])
Cell contents
Code List
Cellhalt
CL Item
100% (1)
C3817553 (UMLS CUI-1)
(Comment:en)
CL Item
90% (2)
(Comment:en)
CL Item
80% (3)
(Comment:en)
CL Item
70% (4)
(Comment:en)
CL Item
60% (5)
(Comment:en)
CL Item
50% (6)
C3842586 (UMLS CUI-1)
(Comment:en)
CL Item
40% (7)
(Comment:en)
CL Item
30% (8)
(Comment:en)
CL Item
20% (9)
(Comment:en)
CL Item
10% (10)
(Comment:en)
CL Item
Cellhalt saknas (11)
(Comment:en)
CL Item
Exakt cellhalt ej angivet (12)
(Comment:en)
CL Item
Lägre callhalt än normalt (13)
(Comment:en)
CL Item
Normal cellhalt (14)
(Comment:en)
CL Item
Högre cellhalt än normalt (15)
(Comment:en)
Percentage of blasts in bone marrow
Item
Andel blaster i benmärg
float
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
no blast increase
Item
Exakt blastandel ej angivet benmärgssvar; ingen blastökning
boolean
C1982687 (UMLS CUI [1,1])
C1518422 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
Proportion of blasts missing
Item
Andel blaster saknas/ej bedömbart
boolean
C0587348 (UMLS CUI [1,1])
C1705492 (UMLS CUI [1,2])
Item
Ringsideroblaster >= 15% av erytropoetiska celler
integer
C0432608 (UMLS CUI [1,1])
C0205217 (UMLS CUI [1,2])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Ringsideroblaster >= 15% av erytropoetiska celler
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ej bedömbart/svar saknas (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Fibros grad 2-3
integer
C0016059 (UMLS CUI [1])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Fibros grad 2-3
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ej bedömbart/svar saknas (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item Group
Cytogenetik vid diagnos (+/ - 6 månader från diagnos)
C0010802 (UMLS CUI-1)
C4071762 (UMLS CUI-2)
Item
integer
C0010802 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
Cytogenetics performed
Code List
Cytogenetics performed
CL Item
 (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
 (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
 (3)
C1707258 (UMLS CUI-1)
(Comment:en)
Diagnostic lab / Clinic
Item
Diagnoslab/klinik
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
Preparatnr.
text
C1299222 (UMLS CUI [1])
Sample year
Item
Preparatår
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Item
Resultat cytogenetik
integer
C0010802 (UMLS CUI [1])
Result of cytogenetics
Code List
Resultat cytogenetik
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
(Comment:en)
CL Item
-Y (2)
(Comment:en)
CL Item
Inv(3),t(3q),del(3q) (3)
(Comment:en)
CL Item
del(5q) (4)
C1521461 (UMLS CUI-1)
(Comment:en)
CL Item
Del(7q) (5)
C1517990 (UMLS CUI-1)
(Comment:en)
CL Item
-7 (6)
(Comment:en)
CL Item
+8 (7)
(Comment:en)
CL Item
Del(11q) (8)
(Comment:en)
CL Item
del(12p) (9)
(Comment:en)
CL Item
i(17q) (10)
(Comment:en)
CL Item
+19 (11)
(Comment:sv)
(Comment:en)
CL Item
del(20q) (12)
(Comment:sv)
(Comment:en)
CL Item
1 avvikelse (ej listad ovan) (13)
(Comment:sv)
(Comment:en)
CL Item
2 avvikelser inklusive del(5q) (14)
(Comment:sv)
(Comment:en)
CL Item
2 avvikelser inklusive -7 eller del(7q) (15)
(Comment:sv)
(Comment:en)
CL Item
2 övriga avvikelser (16)
(Comment:sv)
(Comment:en)
CL Item
Komplex med 3 avvikelser (17)
(Comment:sv)
(Comment:en)
CL Item
Komplex med >3 avvikelser (18)
(Comment:sv)
(Comment:en)
Karyotype text
Item
Karyotyp textsträng
text
C1261273 (UMLS CUI [1])
Item Group
IPSS
C2827405 (UMLS CUI-1)
Item
Riskgrupp enligt IPSS
integer
C2827405 (UMLS CUI [1])
IPSS
Code List
Riskgrupp enligt IPSS
CL Item
Låg (1)
C0205251 (UMLS CUI-1)
(Comment:en)
CL Item
INT-1 (2)
C3640764 (UMLS CUI-1)
C0205447 (UMLS CUI-2)
(Comment:en)
CL Item
INT-2 (3)
C3640764 (UMLS CUI-1)
C0205448 (UMLS CUI-2)
(Comment:en)
CL Item
Hög (4)
C0205250 (UMLS CUI-1)
(Comment:en)
Item
Riskgrupp enligt IPSS-R
integer
C2827405 (UMLS CUI [1])
IPSS-R
Code List
Riskgrupp enligt IPSS-R
CL Item
Mycket Låg (1)
C0442811 (UMLS CUI-1)
(Comment:en)
CL Item
Låg (2)
C0205251 (UMLS CUI-1)
(Comment:en)
CL Item
INT (3)
C0205103 (UMLS CUI-1)
(Comment:en)
CL Item
Hög (4)
C0205250 (UMLS CUI-1)
(Comment:en)
CL Item
Mycket hög (5)
C0442804 (UMLS CUI-1)
(Comment:en)
IPSS-R could not be calculated
Item
IPSS-R gick ej att beräkna pga. att något av följande saknades; Hb, neutrofila, Tpk, blastandel i benmärg eller cytogenetik. Kontrollera gärna införd data.
boolean
C0686905 (UMLS CUI [1])
Item Group
DIAGNOSGRUND
C0011900 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
Item
Benmärgsprov gav säker diagnos
integer
C0005957 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Benmärgsprov gav säker diagnos
CL Item
Ja (1)
(Comment:sv)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Diagnos främst baserad på blodprov och cytogenetik (2)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
C0010802 (UMLS CUI-3)
(Comment:en)
CL Item
Diagnos främst baserad på enbart blodprover (3)
(Comment:sv)
C0011900 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
(Comment:en)
Item
WHO performance status
text
C1298650 (UMLS CUI [1])
WHO performance status
Code List
WHO performance status
CL Item
Klarar all normal aktivitet utan begränsning (0)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0919414 (UMLS CUI-2)
(Comment:en)
CL Item
Klarar inte fysiskt krävande aktivitet men är uppegående och i stånd till lättare arbete (1)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0205447 (UMLS CUI-2)
(Comment:en)
CL Item
Är uppegående och kan sköta sig själv men klarar inte att arbeta. Är uppe och i rörelse mer än 50% av dygnets vakna timmar (2)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0205448 (UMLS CUI-2)
(Comment:en)
CL Item
Kan endast delvis sköta sig själv. Är bunden till säng eller stol mer än 50% av dygnets vakna timmar (3)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0205449 (UMLS CUI-2)
(Comment:en)
CL Item
Klarar inte någonting. Kan inte sköta sig själv. Är bunden till säng eller stol (4)
(Comment:sv)
C1298651 (UMLS CUI-1)
C0205450 (UMLS CUI-2)
(Comment:en)
CL Item
 (NA)
C1880386 (UMLS CUI-1)
(Comment:en)
Item Group
BEHANDLING
C0087111 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI [1,1])
C0679006 (UMLS CUI [1,2])
Treatment decision after diagnosis
Code List
Treatment decision after diagnosis
CL Item
Induktionskemoterapi (1)
(Comment:en)
C3179010 (UMLS CUI-1)
(Comment:sv)
CL Item
Azacytidine (2)
(Comment:en)
C0004475 (UMLS CUI-1)
(Comment:sv)
CL Item
Hydroxyurea (3)
(Comment:en)
C0020402 (UMLS CUI-1)
(Comment:sv)
CL Item
Erytropoetin (4)
(Comment:en)
C0014822 (UMLS CUI-1)
(Comment:sv)
CL Item
Immunsuppressiv behandling (5)
(Comment:en)
C0021081 (UMLS CUI-1)
(Comment:sv)
CL Item
Lenalidomid (6)
(Comment:en)
C1144149 (UMLS CUI-1)
(Comment:sv)
CL Item
Kelerande behandling (7)
(Comment:en)
C0007975 (UMLS CUI-1)
(Comment:sv)
CL Item
Annat (8)
(Comment:en)
C0205394 (UMLS CUI-1)
(Comment:sv)
CL Item
Endast understödjande behandling (9)
(Comment:en)
C0344211 (UMLS CUI-1)
(Comment:sv)
CL Item
Ingen behandlingsindikation (10)
(Comment:en)
C0521090 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
(Comment:sv)
Treatment start date
Item
Behandlingsstart datum
date
C3173309 (UMLS CUI [1])
Not yet started treatment
Item
Ännu ej startat behandling
boolean
C1444646 (UMLS CUI [1])
Item
Behandling enligt
integer
C0162791 (UMLS CUI [1])
Treatment according to
Code List
Behandling enligt
CL Item
Nationella/Regionala riktlinjer (1)
C0162791 (UMLS CUI-1)
(Comment:sv)
CL Item
Studieprotokoll (2)
C2348563 (UMLS CUI-1)
(Comment:sv)
Study name
Item
Vilken studie?
text
C2348560 (UMLS CUI [1])
Item
Allogen stamcellstransplantation
integer
C2242529 (UMLS CUI [1])
Allogeneic stem cell transplantation
Code List
Allogen stamcellstransplantation
CL Item
Planeras (1)
C1301732 (UMLS CUI-1)
(Comment:en)
CL Item
Kan bli aktuellt (2)
C3844350 (UMLS CUI-1)
C2347946 (UMLS CUI-2)
(Comment:en)
CL Item
Kan ej bli aktuellt (3)
C1272460 (UMLS CUI-1)
(Comment:en)
Item Group
UPPFÖLJNING
C1522577 (UMLS CUI-1)
Hospital
Item
Sjukhus
text
C0019994 (UMLS CUI [1])
Clinic
Item
Klinik
text
C0442592 (UMLS CUI [1])
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