ID

44685

Description

Source: Swedish National Quality Registry for Leukaemia http://www.cancercentrum.se/samverkan/cancerdiagnoser/blod-lymfom-myelom/

Link

http://www.cancercentrum.se/samverkan/cancerdiagnoser/blod-lymfom-myelom/

Keywords

Versions (7)
  1. 10/14/17 10/14/17 - Martin Dugas
  2. 10/14/17 10/14/17 - Martin Dugas
  3. 10/21/17 10/21/17 - Martin Dugas
  4. 10/22/17 10/22/17 - Martin Dugas
  5. 10/22/17 10/22/17 - Martin Dugas
  6. 10/22/17 10/22/17 - Martin Dugas
  7. 9/27/21 9/27/21 -
Copyright Holder

Regionala cancercentrum i samverkan

Uploaded on

September 27, 2021

DOI

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License

Creative Commons BY-NC 3.0
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Swedish MDS registry

English Swedish

Myelodysplastic Syndrome - Follow-Up

2 forms  
UPPFÖLJNINGSBLANKETT
Description

UPPFÖLJNINGSBLANKETT

Alias
UMLS CUI-1
C1522577
Inrapporterande sjukhus/klinik
Description

Reporting hospital

Data type

text

Alias
UMLS CUI [1]
C0019994
Anmälande läkare
Description

Reporting doctor

Data type

text

Alias
UMLS CUI [1]
C0031831
Inrapporteringsdatum
Description

reporting date

Data type

date

Alias
UMLS CUI [1]
C1302584
Personnummer
Description

år mån dag - \d\d\d\d

Data type

text

Alias
UMLS CUI [1]
C1830427
Namn
Description

Name

Data type

text

Alias
UMLS CUI [1]
C1299487
Datum för bedömning
Description

Datum för bedömning ska vara så nära som möjligt 1 år efter diagnos (1-årsuppföljning), 3 år efter diagnos (3-årsuppföljning )

Data type

date

Alias
UMLS CUI [1]
C2985720
1 årsuppföljning
Description

Follow-up 1 year

Data type

boolean

Alias
UMLS CUI [1]
C0420338
3 årsuppföljning
Description

Follow-up 3 years

Data type

boolean

Alias
UMLS CUI [1,1]
C1522577
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C0205449
Blodprover
Description

Blodprover

Alias
UMLS CUI-1
C0018941
Hb
Description

Hb

Data type

float

Measurement units
  • g/dl
Alias
UMLS CUI [1]
C0019046
g/dl
MCV
Description

MCV

Data type

text

Measurement units
  • fL
Alias
UMLS CUI [1]
C1948043
fL
LPK
Description

White blood cells

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0023508
10E9/L
Neutrofila granulocyter
Description

Neutrophil granulocytes

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0018183
10E9/L
Neutrofila granulocyter
Description

Neutrophil granulocytes

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0018183
%
Antal monocyter
Description

Monocytes

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0026473
10E9/L
Antal monocyter
Description

Monocytes

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0026473
%
Antal blaster i blod
Description

Blasts in blood

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1,1]
C0368761
UMLS CUI [1,2]
C0229664
10E9/L
Antal blaster i blod
Description

Blasts in blood

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C0368761
UMLS CUI [1,2]
C0229664
%
TPK
Description

Platelets

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0005821
10E9/L
LD
Description

LDH

Data type

float

Measurement units
  • µkat/l
Alias
UMLS CUI [1]
C0202113
µkat/l
S-Erytropoetin
Description

Erythropoetin

Data type

float

Measurement units
  • IE/L
Alias
UMLS CUI [1]
C0014822
IE/L
S-Ferritin
Description

Ferritin

Data type

float

Measurement units
  • µg/l
Alias
UMLS CUI [1]
C0015879
µg/l
Prov till Biobank
Description

Prov till Biobank

Alias
UMLS CUI-1
C2347027
Prov till nationella biobank skickat
Description

Samples to national biobank sent

Data type

integer

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0370003
UMLS CUI [1,3]
C1515023
Prov är även skickade till annan biobank
Description

Samples are also sent to another biobank

Data type

integer

Vilken biobank
Description

Which biobank

Data type

text

Alias
UMLS CUI [1]
C2347027
Benmärgsstatus
Description

Benmärgsstatus

Alias
UMLS CUI-1
C0005953
Är nytt benmärgsprov taget sedan diagnos
Description

Om Ja besvara följande frågor för det senast tagna benmärgsprovet

Data type

integer

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C1711239
UMLS CUI [1,3]
C0011900
Datum för senast tagna benmärgsprov
Description

Bone marrow examination date

Data type

date

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C0011008
Cellhalt
Description

biopsi eller snittpreparat

Data type

integer

Alias
UMLS CUI [1,1]
C0007634
UMLS CUI [1,2]
C0456205
Andel blaster i benmärg
Description

Percentage of blasts in bone marrow

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C0439165
%
Exakt blastandel ej angivet benmärgssvar; ingen blastökning
Description

no blast increase

Data type

boolean

Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C1518422
UMLS CUI [1,3]
C0442805
Andel blaster saknas/ej bedömbart
Description

Proportion of blasts missing

Data type

boolean

Alias
UMLS CUI [1,1]
C0587348
UMLS CUI [1,2]
C1705492
Ringsideroblaster >= 15% av erytropoetiska celler
Description

Ring sideroblasts >=15% of erythropoietic cells

Data type

integer

Alias
UMLS CUI [1,1]
C0432608
UMLS CUI [1,2]
C0205217
Fibros grad 2-3
Description

Fibrosis

Data type

integer

Alias
UMLS CUI [1]
C0016059
Är nytt benmärgsprov taget sedan 1 årsuppföljningen
Description

Om Ja besvara följande frågor för det senast tagna benmärgsprovet

Data type

integer

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C1711239
UMLS CUI [1,3]
C0420338
Datum för senast tagna benmärgsprov
Description

Bone marrow examination date

Data type

date

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C0011008
Cellhalt
Description

biopsi eller snittpreparat

Data type

integer

Alias
UMLS CUI [1,1]
C0007634
UMLS CUI [1,2]
C0456205
Andel blaster i benmärg
Description

Percentage of blasts in bone marrow

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C0439165
%
Exakt blastandel ej angivet benmärgssvar; ingen blastökning
Description

no blast increase

Data type

boolean

Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C1518422
UMLS CUI [1,3]
C0442805
Andel blaster saknas/ej bedömbart
Description

Proportion of blasts missing

Data type

boolean

Alias
UMLS CUI [1,1]
C0587348
UMLS CUI [1,2]
C1705492
Ringsideroblaster >= 15% av erytropoetiska celler
Description

Ring sideroblasts >=15% of erythropoietic cells

Data type

integer

Alias
UMLS CUI [1,1]
C0432608
UMLS CUI [1,2]
C0205217
Fibros grad 2-3
Description

Fibrosis

Data type

integer

Alias
UMLS CUI [1]
C0016059
Cytogenetik
Description

Cytogenetik

Alias
UMLS CUI-1
C0010802
Har ny cytogenetik utförts sedan diagnos
Description

New cytogenetics since diagnosis

Data type

integer

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C1711239
UMLS CUI [1,3]
C0011900
Om ja ange datum för senast tagna Cytogenetikprov
Description

Cytogenetics date

Data type

date

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C0011008
Kromosomavvikelsen
Description

Om Ja ange kromosomavvikelsen

Data type

integer

Alias
UMLS CUI [1]
C0008625
Karyotyp textsträng
Description

kopiera alt.skriv in fullständiga cytogenetik svaret

Data type

text

Alias
UMLS CUI [1]
C1261273
Har ny cytogenetik utförts sedan 1 årsuppföljningen
Description

New cytogenetics since 1 year follow-up

Data type

integer

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C1711239
UMLS CUI [1,3]
C0420338
Om ja ange datum för senast tagna Cytogenetikprov
Description

Cytogenetics date

Data type

date

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C0011008
Kromosomavvikelsen
Description

Om Ja ange kromosomavvikelsen

Data type

integer

Alias
UMLS CUI [1]
C0008625
Karyotyp textsträng
Description

kopiera alt.skriv in fullständiga cytogenetik svaret

Data type

text

Alias
UMLS CUI [1]
C1261273
Är patienten transfusionsberoende
Description

Är patienten transfusionsberoende

Alias
UMLS CUI-1
C1879316
UMLS CUI-2
C3244310
Erytrocyter
Description

Erythrocyte transfusion

Data type

integer

Alias
UMLS CUI [1]
C0086252
Trombocyter
Description

Thrombocyte transfusion

Data type

integer

Alias
UMLS CUI [1]
C0086818
BEHANDLING
Description

BEHANDLING

Alias
UMLS CUI-1
C0087111
Behandling
Description

Flera alternativ är möjliga

Data type

integer

Alias
UMLS CUI [1]
C0087111
Start
Description

Treatment start date

Data type

date

Alias
UMLS CUI [1]
C3173309
Stopp
Description

Treatment stop date

Data type

date

Alias
UMLS CUI [1]
C1531784
Pågår
Description

Ongoing

Data type

boolean

Alias
UMLS CUI [1]
C0549178
Behandling enligt
Description

Treatment according to

Data type

integer

Alias
UMLS CUI [1]
C0162791
Vilken studie?
Description

Study name

Data type

text

Alias
UMLS CUI [1]
C2348560
Allogen stamcellstransplantation
Description

Allogeneic stem cell transplantation

Data type

integer

Alias
UMLS CUI [1]
C2242529
AML Transformation
Description

AML Transformation

Alias
UMLS CUI-1
C1963864
UMLS CUI-2
C0023467
Har MDS-sjukdomen sedan föregående rapport transformerat till akut leukemi?
Description

OBS! Om en patient med MDS transformerar till AML ska patienten även anmälas till AML registret!

Data type

integer

Alias
UMLS CUI [1,1]
C1963864
UMLS CUI [1,2]
C0023467
Om ja, datum
Description

AML transformation date

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C1963864
UMLS CUI [1,3]
C0023467
Har benmärgsprov tagits som bekräftar transformation
Description

Bone marrow test to confirm transformation

Data type

integer

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C0521091
UMLS CUI [1,3]
C1963864
Aspirat
Description

Aspirate

Data type

boolean

Alias
UMLS CUI [1]
C0398523
Diagnoslab/klinik
Description

Laboratory / Clinic

Data type

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Preparatnr.
Description

Sample ID

Data type

text

Alias
UMLS CUI [1]
C1299222
Preparatår.
Description

Sample year

Data type

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Biopsi
Description

Biopsy

Data type

boolean

Alias
UMLS CUI [1]
C0005558
Diagnoslab/klinik
Description

Laboratory / Clinic

Data type

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Preparatnr.
Description

Sample ID

Data type

text

Alias
UMLS CUI [1]
C1299222
Preparatår.
Description

Sample year

Data type

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Allogen stamcellstransplantation
Description

Allogen stamcellstransplantation

Alias
UMLS CUI-1
C2242529
Transplantation genomförd
Description

Transplant completed

Data type

integer

Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C0205197
Datum HLA-typning
Description

HLA typing Date

Data type

date

Alias
UMLS CUI [1,1]
C0242318
UMLS CUI [1,2]
C0011008
Datum Transplantation
Description

Transplantation Date

Data type

date

Alias
UMLS CUI [1,1]
C0040732
UMLS CUI [1,2]
C0011008
Blastreducerande behandling innan transplantation
Description

Blast-reducing treatment before transplantation

Data type

integer

Andel blaster i benmärg vid transplantation
Description

Percentage of bone marrow blasts at transplantation

Data type

integer

Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C0439165
UMLS CUI [1,3]
C0040732
Donator
Description

Donor

Data type

integer

Alias
UMLS CUI [1]
C0013018
Stamcellskälla
Description

Stem Cell Source

Data type

integer

Alias
UMLS CUI [1,1]
C0018956
UMLS CUI [1,2]
C0449416
Typ av konditionering
Description

Type of conditioning

Data type

integer

Alias
UMLS CUI [1]
C0376450
Given konditionering
Description

minst ett val måste anges

Data type

integer

Alias
UMLS CUI [1]
C0376450
Annan konditionering
Description

Other conditioning

Data type

text

Alias
UMLS CUI [1]
C0376450
Uppföljning
Description

Uppföljning

Alias
UMLS CUI-1
C1522577
Patienten avliden
Description

Patient deceased

Data type

boolean

Alias
UMLS CUI [1]
C1555024
Dödsfall Datum
Description

Death date

Data type

date

Alias
UMLS CUI [1]
C1148348
Var dödsorsaken relaterad till MDS-sjukdomen eller dess behandling
Description

MDS related death

Data type

integer

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C3463824
Uppföljning Sjukhus
Description

anges bara om behandling/uppföljning kommer att ske på annat sjukhus/klinik än som rapporterat in

Data type

text

Alias
UMLS CUI [1,1]
C1522577
UMLS CUI [1,2]
C0019994
Klinik
Description

Clinic

Data type

text

Alias
UMLS CUI [1]
C0442592
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Similar models

Myelodysplastic Syndrome - Follow-Up

2 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
UPPFÖLJNINGSBLANKETT
C1522577 (UMLS CUI-1)
Reporting hospital
Item
Inrapporterande sjukhus/klinik
text
C0019994 (UMLS CUI [1])
Reporting doctor
Item
Anmälande läkare
text
C0031831 (UMLS CUI [1])
reporting date
Item
Inrapporteringsdatum
date
C1302584 (UMLS CUI [1])
patient number
Item
Personnummer
text
C1830427 (UMLS CUI [1])
Name
Item
Namn
text
C1299487 (UMLS CUI [1])
Assessment date
Item
Datum för bedömning
date
C2985720 (UMLS CUI [1])
Follow-up 1 year
Item
1 årsuppföljning
boolean
C0420338 (UMLS CUI [1])
Follow-up 3 years
Item
3 årsuppföljning
boolean
C1522577 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0205449 (UMLS CUI [1,3])
Item Group
Blodprover
C0018941 (UMLS CUI-1)
Hb
Item
Hb
float
C0019046 (UMLS CUI [1])
MCV
Item
MCV
text
C1948043 (UMLS CUI [1])
White blood cells
Item
LPK
float
C0023508 (UMLS CUI [1])
Neutrophil granulocytes
Item
Neutrofila granulocyter
float
C0018183 (UMLS CUI [1])
Neutrophil granulocytes
Item
Neutrofila granulocyter
float
C0018183 (UMLS CUI [1])
Monocytes
Item
Antal monocyter
float
C0026473 (UMLS CUI [1])
Monocytes
Item
Antal monocyter
float
C0026473 (UMLS CUI [1])
Blasts in blood
Item
Antal blaster i blod
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Blasts in blood
Item
Antal blaster i blod
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Platelets
Item
TPK
float
C0005821 (UMLS CUI [1])
LDH
Item
LD
float
C0202113 (UMLS CUI [1])
Erythropoetin
Item
S-Erytropoetin
float
C0014822 (UMLS CUI [1])
Ferritin
Item
S-Ferritin
float
C0015879 (UMLS CUI [1])
Item Group
Prov till Biobank
C2347027 (UMLS CUI-1)
Item
Prov till nationella biobank skickat
integer
C2347027 (UMLS CUI [1,1])
C0370003 (UMLS CUI [1,2])
C1515023 (UMLS CUI [1,3])
Samples to national biobank sent
Code List
Prov till nationella biobank skickat
CL Item
Nej (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Ja (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Vet ej (3)
(Comment:en)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
Prov är även skickade till annan biobank
integer
Samples are also sent to another biobank
Code List
Prov är även skickade till annan biobank
CL Item
Ja (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Which biobank
Item
Vilken biobank
text
C2347027 (UMLS CUI [1])
Item Group
Benmärgsstatus
C0005953 (UMLS CUI-1)
Item
Är nytt benmärgsprov taget sedan diagnos
integer
C0005957 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Erythrocyte transfusion
Code List
Är nytt benmärgsprov taget sedan diagnos
CL Item
Nej (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Ja (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Bone marrow examination date
Item
Datum för senast tagna benmärgsprov
date
C0005957 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Cellhalt
integer
C0007634 (UMLS CUI [1,1])
C0456205 (UMLS CUI [1,2])
Cell contents
Code List
Cellhalt
CL Item
100% (1)
C3817553 (UMLS CUI-1)
(Comment:en)
CL Item
90% (2)
(Comment:en)
CL Item
80% (3)
(Comment:en)
CL Item
70% (4)
(Comment:en)
CL Item
60% (5)
(Comment:en)
CL Item
50% (6)
C3842586 (UMLS CUI-1)
(Comment:en)
CL Item
40% (7)
(Comment:en)
CL Item
30% (8)
(Comment:en)
CL Item
20% (9)
(Comment:en)
CL Item
10% (10)
(Comment:en)
CL Item
Cellhalt saknas (11)
(Comment:en)
CL Item
Exakt cellhalt ej angivet (12)
(Comment:en)
CL Item
Lägre callhalt än normalt (13)
(Comment:en)
CL Item
Normal cellhalt (14)
(Comment:en)
CL Item
Högre cellhalt än normalt (15)
(Comment:en)
Percentage of blasts in bone marrow
Item
Andel blaster i benmärg
float
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
no blast increase
Item
Exakt blastandel ej angivet benmärgssvar; ingen blastökning
boolean
C1982687 (UMLS CUI [1,1])
C1518422 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
Proportion of blasts missing
Item
Andel blaster saknas/ej bedömbart
boolean
C0587348 (UMLS CUI [1,1])
C1705492 (UMLS CUI [1,2])
Item
Ringsideroblaster >= 15% av erytropoetiska celler
integer
C0432608 (UMLS CUI [1,1])
C0205217 (UMLS CUI [1,2])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Ringsideroblaster >= 15% av erytropoetiska celler
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ej bedömbart/svar saknas (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Fibros grad 2-3
integer
C0016059 (UMLS CUI [1])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Fibros grad 2-3
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ej bedömbart/svar saknas (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Är nytt benmärgsprov taget sedan 1 årsuppföljningen
integer
C0005957 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0420338 (UMLS CUI [1,3])
Erythrocyte transfusion
Code List
Är nytt benmärgsprov taget sedan 1 årsuppföljningen
CL Item
Nej (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Ja (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Bone marrow examination date
Item
Datum för senast tagna benmärgsprov
date
C0005957 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Cellhalt
integer
C0007634 (UMLS CUI [1,1])
C0456205 (UMLS CUI [1,2])
Cell contents
Code List
Cellhalt
CL Item
100% (1)
C3817553 (UMLS CUI-1)
(Comment:en)
CL Item
90% (2)
(Comment:en)
CL Item
80% (3)
(Comment:en)
CL Item
70% (4)
(Comment:en)
CL Item
60% (5)
(Comment:en)
CL Item
50% (6)
C3842586 (UMLS CUI-1)
(Comment:en)
CL Item
40% (7)
(Comment:en)
CL Item
30% (8)
(Comment:en)
CL Item
20% (9)
(Comment:en)
CL Item
10% (10)
(Comment:en)
CL Item
Cellhalt saknas (11)
(Comment:en)
CL Item
Exakt cellhalt ej angivet (12)
(Comment:en)
CL Item
Lägre callhalt än normalt (13)
(Comment:en)
CL Item
Normal cellhalt (14)
(Comment:en)
CL Item
Högre cellhalt än normalt (15)
(Comment:en)
Percentage of blasts in bone marrow
Item
Andel blaster i benmärg
float
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
no blast increase
Item
Exakt blastandel ej angivet benmärgssvar; ingen blastökning
boolean
C1982687 (UMLS CUI [1,1])
C1518422 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
Proportion of blasts missing
Item
Andel blaster saknas/ej bedömbart
boolean
C0587348 (UMLS CUI [1,1])
C1705492 (UMLS CUI [1,2])
Item
Ringsideroblaster >= 15% av erytropoetiska celler
integer
C0432608 (UMLS CUI [1,1])
C0205217 (UMLS CUI [1,2])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Ringsideroblaster >= 15% av erytropoetiska celler
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ej bedömbart/svar saknas (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Fibros grad 2-3
integer
C0016059 (UMLS CUI [1])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Fibros grad 2-3
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ej bedömbart/svar saknas (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item Group
Cytogenetik
C0010802 (UMLS CUI-1)
Item
Har ny cytogenetik utförts sedan diagnos
integer
C0010802 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Cytogenetics performed
Code List
Har ny cytogenetik utförts sedan diagnos
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ja men ej bedömbar (3)
C1707258 (UMLS CUI-1)
(Comment:en)
Cytogenetics date
Item
Om ja ange datum för senast tagna Cytogenetikprov
date
C0010802 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Kromosomavvikelsen
integer
C0008625 (UMLS CUI [1])
Result of cytogenetics
Code List
Kromosomavvikelsen
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
(Comment:en)
CL Item
-Y (2)
(Comment:en)
CL Item
Inv(3),t(3q),del(3q) (3)
(Comment:en)
CL Item
del(5q) (4)
C1521461 (UMLS CUI-1)
(Comment:en)
CL Item
Del(7q) (5)
C1517990 (UMLS CUI-1)
(Comment:en)
CL Item
-7 (6)
(Comment:en)
CL Item
+8 (7)
(Comment:en)
CL Item
Del(11q) (8)
(Comment:en)
CL Item
del(12p) (9)
(Comment:en)
CL Item
i(17q) (10)
(Comment:en)
CL Item
+19 (11)
(Comment:sv)
(Comment:en)
CL Item
del(20q) (12)
(Comment:sv)
(Comment:en)
CL Item
1 avvikelse (ej listad ovan) (13)
(Comment:sv)
(Comment:en)
CL Item
2 avvikelser inklusive del(5q) (14)
(Comment:sv)
(Comment:en)
CL Item
2 avvikelser inklusive -7 eller del(7q) (15)
(Comment:sv)
(Comment:en)
CL Item
2 övriga avvikelser (16)
(Comment:sv)
(Comment:en)
CL Item
Komplex med 3 avvikelser (17)
(Comment:sv)
(Comment:en)
CL Item
Komplex med >3 avvikelser (18)
(Comment:sv)
(Comment:en)
Karyotype text
Item
Karyotyp textsträng
text
C1261273 (UMLS CUI [1])
Item
Har ny cytogenetik utförts sedan 1 årsuppföljningen
integer
C0010802 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0420338 (UMLS CUI [1,3])
Cytogenetics performed
Code List
Har ny cytogenetik utförts sedan 1 årsuppföljningen
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ja men ej bedömbar (3)
C1707258 (UMLS CUI-1)
(Comment:en)
Cytogenetics date
Item
Om ja ange datum för senast tagna Cytogenetikprov
date
C0010802 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Kromosomavvikelsen
integer
C0008625 (UMLS CUI [1])
Result of cytogenetics
Code List
Kromosomavvikelsen
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
(Comment:en)
CL Item
-Y (2)
(Comment:en)
CL Item
Inv(3),t(3q),del(3q) (3)
(Comment:en)
CL Item
del(5q) (4)
C1521461 (UMLS CUI-1)
(Comment:en)
CL Item
Del(7q) (5)
C1517990 (UMLS CUI-1)
(Comment:en)
CL Item
-7 (6)
(Comment:en)
CL Item
+8 (7)
(Comment:en)
CL Item
Del(11q) (8)
(Comment:en)
CL Item
del(12p) (9)
(Comment:en)
CL Item
i(17q) (10)
(Comment:en)
CL Item
+19 (11)
(Comment:sv)
(Comment:en)
CL Item
del(20q) (12)
(Comment:sv)
(Comment:en)
CL Item
1 avvikelse (ej listad ovan) (13)
(Comment:sv)
(Comment:en)
CL Item
2 avvikelser inklusive del(5q) (14)
(Comment:sv)
(Comment:en)
CL Item
2 avvikelser inklusive -7 eller del(7q) (15)
(Comment:sv)
(Comment:en)
CL Item
2 övriga avvikelser (16)
(Comment:sv)
(Comment:en)
CL Item
Komplex med 3 avvikelser (17)
(Comment:sv)
(Comment:en)
CL Item
Komplex med >3 avvikelser (18)
(Comment:sv)
(Comment:en)
Karyotype text
Item
Karyotyp textsträng
text
C1261273 (UMLS CUI [1])
Item Group
Är patienten transfusionsberoende
C1879316 (UMLS CUI-1)
C3244310 (UMLS CUI-2)
Item
Erytrocyter
integer
C0086252 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Erytrocyter
CL Item
Nej (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Ja (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Item
Trombocyter
integer
C0086818 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Trombocyter
CL Item
Nej (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Ja (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Item Group
BEHANDLING
C0087111 (UMLS CUI-1)
Item
Behandling
integer
C0087111 (UMLS CUI [1])
Treatment decision after diagnosis
Code List
Behandling
CL Item
Induktionskemoterapi (1)
(Comment:en)
C3179010 (UMLS CUI-1)
(Comment:sv)
CL Item
Azacytidine (2)
(Comment:en)
C0004475 (UMLS CUI-1)
(Comment:sv)
CL Item
Hydroxyurea (3)
(Comment:en)
C0020402 (UMLS CUI-1)
(Comment:sv)
CL Item
Erytropoetin (4)
(Comment:en)
C0014822 (UMLS CUI-1)
(Comment:sv)
CL Item
Immunsuppressiv behandling (5)
(Comment:en)
C0021081 (UMLS CUI-1)
(Comment:sv)
CL Item
Lenalidomid (6)
(Comment:en)
C1144149 (UMLS CUI-1)
(Comment:sv)
CL Item
Kelerande behandling (7)
(Comment:en)
C0007975 (UMLS CUI-1)
(Comment:sv)
CL Item
Annan behandling (8)
(Comment:en)
C0418967 (UMLS CUI-1)
(Comment:sv)
CL Item
Endast understödjande behandling (9)
(Comment:en)
C0344211 (UMLS CUI-1)
(Comment:sv)
CL Item
Transplantation (10)
C0040732 (UMLS CUI-1)
(Comment:sv)
CL Item
Ingen behandlingsindikation (11)
C0521090 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
(Comment:sv)
Treatment start date
Item
Start
date
C3173309 (UMLS CUI [1])
Treatment stop date
Item
Stopp
date
C1531784 (UMLS CUI [1])
Ongoing
Item
Pågår
boolean
C0549178 (UMLS CUI [1])
Item
Behandling enligt
integer
C0162791 (UMLS CUI [1])
Treatment according to
Code List
Behandling enligt
CL Item
Nationella/Regionala riktlinjer (1)
C0162791 (UMLS CUI-1)
(Comment:sv)
CL Item
Studieprotokoll (2)
C2348563 (UMLS CUI-1)
(Comment:sv)
Study name
Item
Vilken studie?
text
C2348560 (UMLS CUI [1])
Item
Allogen stamcellstransplantation
integer
C2242529 (UMLS CUI [1])
Allogeneic stem cell transplantation
Code List
Allogen stamcellstransplantation
CL Item
Planeras (1)
C1301732 (UMLS CUI-1)
(Comment:en)
CL Item
Kan bli aktuellt (2)
C3844350 (UMLS CUI-1)
C2347946 (UMLS CUI-2)
(Comment:en)
CL Item
Kan ej bli aktuellt (3)
C1272460 (UMLS CUI-1)
(Comment:en)
Item Group
AML Transformation
C1963864 (UMLS CUI-1)
C0023467 (UMLS CUI-2)
Item
Har MDS-sjukdomen sedan föregående rapport transformerat till akut leukemi?
integer
C1963864 (UMLS CUI [1,1])
C0023467 (UMLS CUI [1,2])
Erythrocyte transfusion
Code List
Har MDS-sjukdomen sedan föregående rapport transformerat till akut leukemi?
CL Item
Nej (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Ja (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
AML transformation date
Item
Om ja, datum
date
C0011008 (UMLS CUI [1,1])
C1963864 (UMLS CUI [1,2])
C0023467 (UMLS CUI [1,3])
Item
Har benmärgsprov tagits som bekräftar transformation
integer
C0005957 (UMLS CUI [1,1])
C0521091 (UMLS CUI [1,2])
C1963864 (UMLS CUI [1,3])
Erythrocyte transfusion
Code List
Har benmärgsprov tagits som bekräftar transformation
CL Item
Nej (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Ja (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Aspirate
Item
Aspirat
boolean
C0398523 (UMLS CUI [1])
Laboratory / Clinic
Item
Diagnoslab/klinik
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
Preparatnr.
text
C1299222 (UMLS CUI [1])
Sample year
Item
Preparatår.
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Biopsy
Item
Biopsi
boolean
C0005558 (UMLS CUI [1])
Laboratory / Clinic
Item
Diagnoslab/klinik
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
Preparatnr.
text
C1299222 (UMLS CUI [1])
Sample year
Item
Preparatår.
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Item Group
Allogen stamcellstransplantation
C2242529 (UMLS CUI-1)
Item
Transplantation genomförd
integer
C0472699 (UMLS CUI [1,1])
C0205197 (UMLS CUI [1,2])
Transplant completed
Code List
Transplantation genomförd
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Transplantation ej aktuellt (2)
C0472699 (UMLS CUI-1)
C1272460 (UMLS CUI-2)
(Comment:en)
CL Item
Planerades men utfördes ej t.ex. pga. sjukdomsprogress (3)
C1301732 (UMLS CUI-1)
C0445106 (UMLS CUI-2)
(Comment:en)
CL Item
Planeras (4)
C1301732 (UMLS CUI-1)
(Comment:en)
CL Item
HLA-typning utförd (Datum) (5)
C0242318 (UMLS CUI-1)
C0884358 (UMLS CUI-2)
(Comment:en)
CL Item
HLA-typning ej utförd (6)
C0242318 (UMLS CUI-1)
C0445106 (UMLS CUI-2)
(Comment:en)
CL Item
Ja (7)
C1705108 (UMLS CUI-1)
(Comment:en)
HLA typing Date
Item
Datum HLA-typning
date
C0242318 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Transplantation Date
Item
Datum Transplantation
date
C0040732 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Blastreducerande behandling innan transplantation
integer
Blast-reducing treatment before transplantation
Code List
Blastreducerande behandling innan transplantation
CL Item
Intensiv kemoterapi (1)
C0392920 (UMLS CUI-1)
(Comment:sv)
CL Item
Azacytidin/Decitabin (2)
C0004475 (UMLS CUI-1)
C0049065 (UMLS CUI-2)
(Comment:sv)
CL Item
Annan (3)
C0205394 (UMLS CUI-1)
(Comment:sv)
CL Item
Ingen (4)
C0549184 (UMLS CUI-1)
(Comment:sv)
Item
Andel blaster i benmärg vid transplantation
integer
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
C0040732 (UMLS CUI [1,3])
Percentage of bone marrow blasts at transplantation
Code List
Andel blaster i benmärg vid transplantation
CL Item
<5% (1)
(Comment:sv)
CL Item
5-9% (2)
(Comment:sv)
CL Item
10-15% (3)
(Comment:sv)
CL Item
>15% (4)
(Comment:sv)
CL Item
Vet ej (5)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
Donator
integer
C0013018 (UMLS CUI [1])
Donor
Code List
Donator
CL Item
Släkting HLA-id syskon (1)
C0080103 (UMLS CUI-1)
C0019721 (UMLS CUI-2)
C0205280 (UMLS CUI-3)
(Comment:sv)
CL Item
Släkting Haploidentisk (2)
C0080103 (UMLS CUI-1)
C3829897 (UMLS CUI-2)
(Comment:sv)
CL Item
Släkting Vet ej (3)
C0375877 (UMLS CUI-1)
C0080103 (UMLS CUI-2)
(Comment:sv)
CL Item
Obesläktad (4)
C3179133 (UMLS CUI-1)
(Comment:sv)
CL Item
Vet ej (5)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
Stamcellskälla
integer
C0018956 (UMLS CUI [1,1])
C0449416 (UMLS CUI [1,2])
Stem Cell Source
Code List
Stamcellskälla
CL Item
Perifera stamceller (1)
C1518999 (UMLS CUI-1)
(Comment:sv)
CL Item
Benmärg (2)
C0005953 (UMLS CUI-1)
(Comment:sv)
CL Item
Navelsträng (3)
C0162371 (UMLS CUI-1)
(Comment:sv)
CL Item
Vet ej (4)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
Typ av konditionering
integer
C0376450 (UMLS CUI [1])
Type of conditioning
Code List
Typ av konditionering
CL Item
Myeloablativ (1)
C1513784 (UMLS CUI-1)
(Comment:sv)
CL Item
Reducerad (RICT) (2)
C1831742 (UMLS CUI-1)
(Comment:sv)
CL Item
Haploidentiskt protokoll (3)
C3829897 (UMLS CUI-1)
(Comment:sv)
CL Item
Vet ej (4)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
Given konditionering
integer
C0376450 (UMLS CUI [1])
Conditioning
Code List
Given konditionering
CL Item
Busulfan (1)
C0006463 (UMLS CUI-1)
(Comment:sv)
CL Item
Treosulfan (2)
C0076959 (UMLS CUI-1)
(Comment:sv)
CL Item
Cyklofosfamid (3)
C0010583 (UMLS CUI-1)
(Comment:sv)
CL Item
Melfalan (4)
C0025241 (UMLS CUI-1)
(Comment:sv)
CL Item
Fludatrabin (5)
C0059985 (UMLS CUI-1)
(Comment:sv)
CL Item
ATG (6)
C0003442 (UMLS CUI-1)
(Comment:sv)
CL Item
Vet ej (7)
C1880386 (UMLS CUI-1)
(Comment:sv)
CL Item
Annan (8)
C0205394 (UMLS CUI-1)
(Comment:sv)
Other conditioning
Item
Annan konditionering
text
C0376450 (UMLS CUI [1])
Item Group
Uppföljning
C1522577 (UMLS CUI-1)
Patient deceased
Item
Patienten avliden
boolean
C1555024 (UMLS CUI [1])
Death date
Item
Dödsfall Datum
date
C1148348 (UMLS CUI [1])
Item
Var dödsorsaken relaterad till MDS-sjukdomen eller dess behandling
integer
C0007465 (UMLS CUI [1,1])
C3463824 (UMLS CUI [1,2])
Erythrocyte transfusion
Code List
Var dödsorsaken relaterad till MDS-sjukdomen eller dess behandling
CL Item
Nej (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Ja (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Follow-Up Hospital
Item
Uppföljning Sjukhus
text
C1522577 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
Clinic
Item
Klinik
text
C0442592 (UMLS CUI [1])
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