ID

44223

Description

Age Related Macular Degeneration Registry. The National Eye Database (NED) is a service supported by the Ministry of Health (MOH) as an approach to collect health information. It collects data on incidences and distributions, and evaluates risk factors as well as treatment outcome of visually threatening eye diseases such as cataract, diabetic retinopathy, glaucoma and contact lens related corneal ulcer. National Eye Database, Clinical Research Centre, Kepong-Selayang Highway 68100, Batu Caves Selangor. http://www.acrm.org.my/ned/index.htm.

Link

http://www.acrm.org.my/ned/index.htm

Keywords

Versions (2)
  1. 12/4/17 12/4/17 -
  2. 9/20/21 9/20/21 -
Copyright Holder

National Eye Database (NED)

Uploaded on

September 20, 2021

DOI

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License

Creative Commons BY-NC 3.0
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Age Related Macular Degeneration Registry National Eye Database (NED)

English

Age Related Macular Degeneration Registry

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Office Use:
Description

Office

Data type

text

Alias
UMLS CUI [1]
C0442603
Centre:
Description

undefined item

Data type

text

i) Hospital / Clinic:
Description

Hospital

Data type

text

Alias
UMLS CUI [1]
C0019994
ii) Date of Notification:
Description

Date of Notification

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C0422202
Section 1: Demography
Description

Section 1: Demography

Alias
UMLS CUI-1
C0011298
1. Patient Name:
Description

Patient Name

Data type

text

Alias
UMLS CUI [1]
C1299487
2. Identification Card Number :
Description

Identification Number

Data type

text

Alias
UMLS CUI [1]
C1300638
Old IC
Description

Identification Number

Data type

text

Alias
UMLS CUI [1]
C1300638
Other ID document No
Description

Specific type (eg passport of armed forces ID )

Data type

text

Alias
UMLS CUI [1]
C1300638
3. Address (Postcode):
Description

Postcode

Data type

text

Alias
UMLS CUI [1]
C0421454
3. Address (Town/ City)
Description

Town

Data type

text

Alias
UMLS CUI [1]
C1555315
3. Address (State):
Description

State

Data type

text

Alias
UMLS CUI [1]
C1442792
4. Date of Birth:
Description

Date of Birth

Data type

date

Alias
UMLS CUI [1]
C0421451
5. Age at presentation:
Description

in years and months

Data type

text

Alias
UMLS CUI [1]
C0001779
6. Gender
Description

Gender

Data type

text

Alias
UMLS CUI [1]
C0079399
7. Ethnicity
Description

Ethnicity

Data type

text

Alias
UMLS CUI [1]
C0015031
Section 2: Risk Factors
Description

Section 2: Risk Factors

Alias
UMLS CUI-1
C0035648
1. Risk factors-None
Description

None

Data type

boolean

Alias
UMLS CUI [1]
C0549184
1. Risk factors- Diabetes Mellitus (DM)
Description

Diabetes Mellitus

Data type

boolean

Alias
UMLS CUI [1]
C0011849
1. Risk factors- Hypertension (HPT)
Description

Hypertension

Data type

boolean

Alias
UMLS CUI [1]
C0020538
1. Risk factors- Past Stroke
Description

Stroke

Data type

boolean

Alias
UMLS CUI [1]
C0038454
1. Risk factors- Ischemic Heart Disease (IHD)
Description

Myocardial Ischemia

Data type

boolean

Alias
UMLS CUI [1]
C0151744
1. Risk factors- Hypercholesterolemia
Description

Hypercholesterolemia

Data type

boolean

Alias
UMLS CUI [1]
C0020443
1. Risk factors- Smoking
Description

Smoking

Data type

boolean

Alias
UMLS CUI [1]
C1519384
If yes,
Description

smoking

Data type

text

Alias
UMLS CUI [1]
C1519384
1. Risk factors- Myopia right eye
Description

Myopia right eye

Data type

boolean

Alias
UMLS CUI [1,1]
C0027092
UMLS CUI [1,2]
C0229089
If yes, myopia right eye
Description

Myopia right eye

Data type

text

Alias
UMLS CUI [1,1]
C0027092
UMLS CUI [1,2]
C0229089
1. Risk factors- Myopia left eye
Description

Myopia left eye

Data type

boolean

Alias
UMLS CUI [1,1]
C0027092
UMLS CUI [1,2]
C0229090
If yes, myopia left eye
Description

Myopia left eye

Data type

text

Alias
UMLS CUI [1,1]
C0027092
UMLS CUI [1,2]
C0229090
1. Risk factors- Cataract surgery within last 3 months prior to onset of symptoms in the affected eye(s)
Description

Cataract surgery

Data type

boolean

Alias
UMLS CUI [1]
C2939459
If yes, cataract surgery of
Description

Cataract surgery

Data type

text

Alias
UMLS CUI [1]
C2939459
Section 3: Quality of Life
Description

Section 3: Quality of Life

Alias
UMLS CUI-1
C0034380
i) Are you currently driving, at least once a while?
Description

driving

Data type

boolean

Alias
UMLS CUI [1]
C0004379
If yes, do you have difficulty driving during daytime in familiar places
Description

difficulty driving during daytime in familiar places

Data type

boolean

Alias
UMLS CUI [1]
C3174290
If no, reason:
Description

reason

Data type

text

Alias
UMLS CUI [1]
C0566251
ii) Because of your eye sight, do you have difficulty reading ordinary print in newspaper?
Description

difficulty reading ordinary print in newspaper

Data type

boolean

Alias
UMLS CUI [1]
C3176682
Section 4: Medical History
Description

Section 4: Medical History

Alias
UMLS CUI-1
C0262926
i) Metamorphopsia
Description

Metamorphopsia

Data type

boolean

Alias
UMLS CUI [1]
C0271185
ii) Scotoma
Description

Scotoma

Data type

boolean

Alias
UMLS CUI [1]
C0036454
iii) Blurring of vision
Description

Blurred vision

Data type

boolean

Alias
UMLS CUI [1]
C0344232
iv) Duration of symptoms
Description

Duration of symptoms

Data type

text

Alias
UMLS CUI [1,1]
C0449238
UMLS CUI [1,2]
C1457887
v) Previous treatment for AMD:
Description

Therapy AMD

Data type

boolean

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0242383
If yes, what treatment
Description

Therapy AMD

Data type

text

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0242383
Section 5: Clinical features
Description

Section 5: Clinical features

Alias
UMLS CUI-1
C3554759
1. Affected eye
Description

Affected eye

Data type

text

Alias
UMLS CUI [1,1]
C0449642
UMLS CUI [1,2]
C0015392
2. Vision right eye
Description

Vision right eye

Data type

text

Alias
UMLS CUI [1,1]
C0042789
UMLS CUI [1,2]
C0229089
2. Vision left eye
Description

Vision left eye

Data type

text

Alias
UMLS CUI [1,1]
C0042789
UMLS CUI [1,2]
C0229090
3) Fundus Finding right eye- i) Type of AMD
Description

Age related macular degeneration

Data type

text

Alias
UMLS CUI [1]
C0242383
3) Fundus Finding right eye- ii) Presence of Drusen
Description

Drusen

Data type

boolean

Alias
UMLS CUI [1]
C0035312
If Yes,
Description

Retinal Drusen

Data type

text

Alias
UMLS CUI [1]
C0035312
3) Fundus Finding right eye- iii) Presence of Central Geographic Atrophy
Description

Geographic Atrophy

Data type

boolean

Alias
UMLS CUI [1]
C1536085
3) Fundus Finding right eye- iv) Presence of Pigment Epithelial Detachment
Description

Pigment Epithelial Detachment

Data type

boolean

Alias
UMLS CUI [1]
C0339546
3) Fundus Finding right eye- v) Presence of Subretinal Hemorrhage
Description

Subretinal Hemorrhage

Data type

boolean

Alias
UMLS CUI [1]
C0271049
3) Fundus Finding right eye- vi) Presence of Disciform Scar:
Description

Disciform Scar

Data type

boolean

Alias
UMLS CUI [1]
C4476587
3) Fundus Finding left eye- i) Type of AMD
Description

Age related macular degeneration

Data type

text

Alias
UMLS CUI [1]
C0242383
3) Fundus Finding left eye- ii) Presence of Drusen
Description

Drusen

Data type

boolean

Alias
UMLS CUI [1]
C0035312
If Yes,
Description

Retinal Drusen

Data type

text

Alias
UMLS CUI [1]
C0035312
3) Fundus Finding left eye- iii) Presence of Central Geographic Atrophy
Description

Geographic Atrophy

Data type

boolean

Alias
UMLS CUI [1]
C1536085
3) Fundus Finding left eye- iv) Presence of Pigment Epithelial Detachment
Description

Pigment Epithelial Detachment

Data type

boolean

Alias
UMLS CUI [1]
C0339546
3) Fundus Finding left eye- v) Presence of Subretinal Hemorrhage
Description

Subretinal Hemorrhage

Data type

boolean

Alias
UMLS CUI [1]
C0271049
3) Fundus Finding left eye- vi) Presence of Disciform Scar:
Description

Disciform Scar

Data type

boolean

Alias
UMLS CUI [1]
C4476587
Section 6: Investigation
Description

Section 6: Investigation

Alias
UMLS CUI-1
C0220825
1. OCT Right eye
Description

OCT Right eye

Data type

text

Alias
UMLS CUI [1,1]
C0920367
UMLS CUI [1,2]
C0229089
If done, findings
Description

OCT

Data type

text

Alias
UMLS CUI [1]
C0920367
Others, specify
Description

specify

Data type

text

Alias
UMLS CUI [1]
C1521902
1. OCT left eye +
Description

OCT left eye

Data type

text

Alias
UMLS CUI [1,1]
C0920367
UMLS CUI [1,2]
C0229090
If done, findings
Description

OCT

Data type

text

Alias
UMLS CUI [1]
C0920367
Others, specify
Description

specify

Data type

text

Alias
UMLS CUI [1]
C1521902
2. FFA right eye
Description

Fluorescence Angiography right eye

Data type

text

Alias
UMLS CUI [1,1]
C0086305
UMLS CUI [1,2]
C0229089
If done, findings:
Description

Fluorescence Angiography

Data type

text

Alias
UMLS CUI [1]
C0086305
ii) Type of choroidal neovascularization (CNV)
Description

Choroidal Neovascularization

Data type

text

Alias
UMLS CUI [1]
C0600518
iii) Location of CNV
Description

Location CNV

Data type

text

Alias
UMLS CUI [1,1]
C1515974
UMLS CUI [1,2]
C0600518
2. FFA left eye
Description

Fluorescence Angiography left eye

Data type

text

Alias
UMLS CUI [1,1]
C0086305
UMLS CUI [1,2]
C0229090
If done, findings:
Description

Fluorescence Angiography

Data type

text

Alias
UMLS CUI [1]
C0086305
ii) Type of choroidal neovascularization (CNV)
Description

Choroidal Neovascularization

Data type

text

Alias
UMLS CUI [1]
C0600518
iii) Location of CNV
Description

Location CNV

Data type

text

Alias
UMLS CUI [1,1]
C1515974
UMLS CUI [1,2]
C0600518
3. ICG right eye
Description

Indocyanine green angiography right eye

Data type

text

Alias
UMLS CUI [1,1]
C0430879
UMLS CUI [1,2]
C0229089
3. If done, findings:
Description

Indocyanine green angiography right eye

Data type

text

Alias
UMLS CUI [1,1]
C0430879
UMLS CUI [1,2]
C0229089
3. ICG left eye
Description

Indocyanine green angiography left eye

Data type

text

Alias
UMLS CUI [1,1]
C0430879
UMLS CUI [1,2]
C0229090
3. If done, findings:
Description

Indocyanine green angiography left eye

Data type

text

Alias
UMLS CUI [1,1]
C0430879
UMLS CUI [1,2]
C0229090
Section 7: Diagnosis
Description

Section 7: Diagnosis

Alias
UMLS CUI-1
C0011900
a) Diagnosis Right eye
Description

Diagnosis Right eye

Data type

integer

Alias
UMLS CUI [1,1]
C0011900
UMLS CUI [1,2]
C0229089
Others, specify
Description

Specify

Data type

text

Alias
UMLS CUI [1]
C1521902
b) Diagnosis left eye +
Description

Diagnosis left eye

Data type

integer

Alias
UMLS CUI [1,1]
C0011900
UMLS CUI [1,2]
C0229090
Others, specify
Description

Specify

Data type

text

Alias
UMLS CUI [1]
C1521902
Section 8: Treatment
Description

Section 8: Treatment

Alias
UMLS CUI-1
C0087111
a) Right eye: Treatment?
Description

Therapy Right eye

Data type

boolean

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0229089
If yes, type of treatment
Description

Therapy

Data type

integer

Alias
UMLS CUI [1]
C0087111
Others, specify
Description

specify

Data type

text

Alias
UMLS CUI [1]
C1521902
b) Left eye: Treatment? +
Description

Therapy Left eye

Data type

boolean

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0229090
If yes, type of treatment
Description

Therapy

Data type

integer

Alias
UMLS CUI [1]
C0087111
Others, specify
Description

specify

Data type

text

Alias
UMLS CUI [1]
C1521902
Form filled by:
Description

Form filled by

Data type

text

Alias
UMLS CUI [1]
C3273494
Form filled by:
Description

Form filled by

Data type

text

Alias
UMLS CUI [1]
C3273494
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Similar models

Age Related Macular Degeneration Registry

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Office
Item
Office Use:
text
C0442603 (UMLS CUI [1])
undefined item
Item
Centre:
text
Hospital
Item
i) Hospital / Clinic:
text
C0019994 (UMLS CUI [1])
Date of Notification
Item
ii) Date of Notification:
date
C0011008 (UMLS CUI [1,1])
C0422202 (UMLS CUI [1,2])
Item Group
Section 1: Demography
C0011298 (UMLS CUI-1)
Patient Name
Item
1. Patient Name:
text
C1299487 (UMLS CUI [1])
Identification Number
Item
2. Identification Card Number :
text
C1300638 (UMLS CUI [1])
Identification Number
Item
Old IC
text
C1300638 (UMLS CUI [1])
Identification Number
Item
Other ID document No
text
C1300638 (UMLS CUI [1])
Postcode
Item
3. Address (Postcode):
text
C0421454 (UMLS CUI [1])
Town
Item
3. Address (Town/ City)
text
C1555315 (UMLS CUI [1])
State
Item
3. Address (State):
text
C1442792 (UMLS CUI [1])
Date of Birth
Item
4. Date of Birth:
date
C0421451 (UMLS CUI [1])
Age
Item
5. Age at presentation:
text
C0001779 (UMLS CUI [1])
Item
6. Gender
text
C0079399 (UMLS CUI [1])
undefined item
Code List
6. Gender
CL Item
Male (Male)
C0086582 (UMLS CUI-1)
(Comment:en)
CL Item
Female (Female)
C0086287 (UMLS CUI-1)
(Comment:en)
Item
7. Ethnicity
text
C0015031 (UMLS CUI [1])
undefined item
Code List
7. Ethnicity
CL Item
Malay (Malay)
C0024549 (UMLS CUI-1)
(Comment:en)
CL Item
Chinese (Chinese)
C0152035 (UMLS CUI-1)
(Comment:en)
CL Item
Indian (Indian)
C1524069 (UMLS CUI-1)
(Comment:en)
CL Item
Orang Asli (Orang Asli)
C3875078 (UMLS CUI-1)
(Comment:en)
CL Item
Melanau (Melanau)
C3875090 (UMLS CUI-1)
(Comment:en)
CL Item
Kadazan/Murut /Bajau (Kadazan/Murut /Bajau)
C3875081 (UMLS CUI-1)
(Comment:en)
CL Item
Iban (Iban)
C3875071 (UMLS CUI-1)
(Comment:en)
CL Item
Bidayuh (Bidayuh)
C3875070 (UMLS CUI-1)
(Comment:en)
CL Item
Others (Others)
C0205394 (UMLS CUI-1)
(Comment:en)
Item Group
Section 2: Risk Factors
C0035648 (UMLS CUI-1)
None
Item
1. Risk factors-None
boolean
C0549184 (UMLS CUI [1])
Diabetes Mellitus
Item
1. Risk factors- Diabetes Mellitus (DM)
boolean
C0011849 (UMLS CUI [1])
Hypertension
Item
1. Risk factors- Hypertension (HPT)
boolean
C0020538 (UMLS CUI [1])
Stroke
Item
1. Risk factors- Past Stroke
boolean
C0038454 (UMLS CUI [1])
Myocardial Ischemia
Item
1. Risk factors- Ischemic Heart Disease (IHD)
boolean
C0151744 (UMLS CUI [1])
Hypercholesterolemia
Item
1. Risk factors- Hypercholesterolemia
boolean
C0020443 (UMLS CUI [1])
Smoking
Item
1. Risk factors- Smoking
boolean
C1519384 (UMLS CUI [1])
Item
If yes,
text
C1519384 (UMLS CUI [1])
undefined item
Code List
If yes,
CL Item
Current (Current)
C0521116 (UMLS CUI-1)
(Comment:en)
CL Item
Past (Past)
C1444637 (UMLS CUI-1)
(Comment:en)
Myopia right eye
Item
1. Risk factors- Myopia right eye
boolean
C0027092 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
Item
If yes, myopia right eye
text
C0027092 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
undefined item
Code List
If yes, myopia right eye
CL Item
<2 d (<2 d)
CL Item
2-8 d (2-8 d)
CL Item
>8 d (>8 d)
Myopia left eye
Item
1. Risk factors- Myopia left eye
boolean
C0027092 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
Item
If yes, myopia left eye
text
C0027092 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
undefined item
Code List
If yes, myopia left eye
CL Item
<2 d  (<2 d)
CL Item
2-8 d  (2-8 d)
CL Item
>8 d (>8 d)
Cataract surgery
Item
1. Risk factors- Cataract surgery within last 3 months prior to onset of symptoms in the affected eye(s)
boolean
C2939459 (UMLS CUI [1])
Item
If yes, cataract surgery of
text
C2939459 (UMLS CUI [1])
Cataract surgery
Code List
If yes, cataract surgery of
CL Item
Right eye (Right eye)
C0229089 (UMLS CUI-1)
(Comment:en)
CL Item
Left eye (Left eye)
C0229090 (UMLS CUI-1)
(Comment:en)
Item Group
Section 3: Quality of Life
C0034380 (UMLS CUI-1)
driving
Item
i) Are you currently driving, at least once a while?
boolean
C0004379 (UMLS CUI [1])
difficulty driving during daytime in familiar places
Item
If yes, do you have difficulty driving during daytime in familiar places
boolean
C3174290 (UMLS CUI [1])
Item
If no, reason:
text
C0566251 (UMLS CUI [1])
reason
Code List
If no, reason:
CL Item
never drive (never drive)
(Comment:en)
CL Item
gave up because of poor eye sight (gave up because of poor eye sight)
C0042798 (UMLS CUI-1)
(Comment:en)
CL Item
others (others)
C0205394 (UMLS CUI-1)
(Comment:en)
difficulty reading ordinary print in newspaper
Item
ii) Because of your eye sight, do you have difficulty reading ordinary print in newspaper?
boolean
C3176682 (UMLS CUI [1])
Item Group
Section 4: Medical History
C0262926 (UMLS CUI-1)
Metamorphopsia
Item
i) Metamorphopsia
boolean
C0271185 (UMLS CUI [1])
Scotoma
Item
ii) Scotoma
boolean
C0036454 (UMLS CUI [1])
Blurred vision
Item
iii) Blurring of vision
boolean
C0344232 (UMLS CUI [1])
Duration of symptoms
Item
iv) Duration of symptoms
text
C0449238 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
Therapy AMD
Item
v) Previous treatment for AMD:
boolean
C0087111 (UMLS CUI [1,1])
C0242383 (UMLS CUI [1,2])
Item
If yes, what treatment
text
C0087111 (UMLS CUI [1,1])
C0242383 (UMLS CUI [1,2])
undefined item
Code List
If yes, what treatment
CL Item
PDT (PDT)
C0750653 (UMLS CUI-1)
(Comment:en)
CL Item
Anti VEGF (Anti VEGF)
(Comment:en)
CL Item
PDT + Anti VEGF (PDT + Anti VEGF)
(Comment:en)
CL Item
Intravitral Triamcinolone (Intravitral Triamcinolone)
C0040864 (UMLS CUI-1)
C1554888 (UMLS CUI-2)
(Comment:en)
CL Item
Argon Laser (Argon Laser)
C0392247 (UMLS CUI-1)
(Comment:en)
Item Group
Section 5: Clinical features
C3554759 (UMLS CUI-1)
Item
1. Affected eye
text
C0449642 (UMLS CUI [1,1])
C0015392 (UMLS CUI [1,2])
Affected eye
Code List
1. Affected eye
CL Item
Right eye (Right eye)
C0229089 (UMLS CUI-1)
(Comment:en)
CL Item
Left eye (Left eye)
C0229090 (UMLS CUI-1)
(Comment:en)
CL Item
Both eyes (Both eyes)
C0229118 (UMLS CUI-1)
(Comment:en)
Item
2. Vision right eye
text
C0042789 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
Vision right eye
Code List
2. Vision right eye
CL Item
Unaided (Unaided)
CL Item
With glasses/ Pin hole (With glasses/ Pin hole)
Item
2. Vision left eye
text
C0042789 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
Vision right eye
Code List
2. Vision left eye
CL Item
Unaided (Unaided)
CL Item
With glasses/ Pin hole (With glasses/ Pin hole)
Item
3) Fundus Finding right eye- i) Type of AMD
text
C0242383 (UMLS CUI [1])
Age related macular degeneration
Code List
3) Fundus Finding right eye- i) Type of AMD
CL Item
Exudative (Exudative)
C0271084 (UMLS CUI-1)
(Comment:en)
CL Item
Nonexudative (Nonexudative)
C0271083 (UMLS CUI-1)
(Comment:en)
Drusen
Item
3) Fundus Finding right eye- ii) Presence of Drusen
boolean
C0035312 (UMLS CUI [1])
Item
If Yes,
text
C0035312 (UMLS CUI [1])
Retinal Drusen
Code List
If Yes,
CL Item
Soft (Soft)
C1720452 (UMLS CUI-1)
(Comment:en)
CL Item
Hard (Hard)
C1719777 (UMLS CUI-1)
(Comment:en)
Geographic Atrophy
Item
3) Fundus Finding right eye- iii) Presence of Central Geographic Atrophy
boolean
C1536085 (UMLS CUI [1])
Pigment Epithelial Detachment
Item
3) Fundus Finding right eye- iv) Presence of Pigment Epithelial Detachment
boolean
C0339546 (UMLS CUI [1])
Subretinal Hemorrhage
Item
3) Fundus Finding right eye- v) Presence of Subretinal Hemorrhage
boolean
C0271049 (UMLS CUI [1])
Disciform Scar
Item
3) Fundus Finding right eye- vi) Presence of Disciform Scar:
boolean
C4476587 (UMLS CUI [1])
Item
3) Fundus Finding left eye- i) Type of AMD
text
C0242383 (UMLS CUI [1])
Age related macular degeneration
Code List
3) Fundus Finding left eye- i) Type of AMD
CL Item
Exudative (Exudative)
C0271084 (UMLS CUI-1)
(Comment:en)
CL Item
Nonexudative (Nonexudative)
C0271083 (UMLS CUI-1)
(Comment:en)
Drusen
Item
3) Fundus Finding left eye- ii) Presence of Drusen
boolean
C0035312 (UMLS CUI [1])
Item
If Yes,
text
C0035312 (UMLS CUI [1])
Retinal Drusen
Code List
If Yes,
CL Item
Soft (Soft)
C1720452 (UMLS CUI-1)
(Comment:en)
CL Item
Hard (Hard)
C1719777 (UMLS CUI-1)
(Comment:en)
Geographic Atrophy
Item
3) Fundus Finding left eye- iii) Presence of Central Geographic Atrophy
boolean
C1536085 (UMLS CUI [1])
Pigment Epithelial Detachment
Item
3) Fundus Finding left eye- iv) Presence of Pigment Epithelial Detachment
boolean
C0339546 (UMLS CUI [1])
Subretinal Hemorrhage
Item
3) Fundus Finding left eye- v) Presence of Subretinal Hemorrhage
boolean
C0271049 (UMLS CUI [1])
Disciform Scar
Item
3) Fundus Finding left eye- vi) Presence of Disciform Scar:
boolean
C4476587 (UMLS CUI [1])
Item Group
Section 6: Investigation
C0220825 (UMLS CUI-1)
Item
1. OCT Right eye
text
C0920367 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
OCT Right eye
Code List
1. OCT Right eye
CL Item
done (done)
CL Item
not done (not done)
Item
If done, findings
text
C0920367 (UMLS CUI [1])
OCT
Code List
If done, findings
CL Item
Subretinal fluid (Subretinal fluid)
C2721564 (UMLS CUI-1)
(Comment:en)
CL Item
Pigment epithelial detachment (Pigment epithelial detachment)
C0339546 (UMLS CUI-1)
(Comment:en)
CL Item
others (others)
C0205394 (UMLS CUI-1)
(Comment:en)
specify
Item
Others, specify
text
C1521902 (UMLS CUI [1])
Item
1. OCT left eye +
text
C0920367 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
OCT Right eye
Code List
1. OCT left eye +
CL Item
done (done)
CL Item
not done (not done)
Item
If done, findings
text
C0920367 (UMLS CUI [1])
OCT
Code List
If done, findings
CL Item
Subretinal fluid (Subretinal fluid)
C2721564 (UMLS CUI-1)
(Comment:en)
CL Item
Pigment epithelial detachment (Pigment epithelial detachment)
C0339546 (UMLS CUI-1)
(Comment:en)
CL Item
others (others)
C0205394 (UMLS CUI-1)
(Comment:en)
specify
Item
Others, specify
text
C1521902 (UMLS CUI [1])
Item
2. FFA right eye
text
C0086305 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
OCT Right eye
Code List
2. FFA right eye
CL Item
done (done)
CL Item
not done (not done)
Item
If done, findings:
text
C0086305 (UMLS CUI [1])
Fluorescence Angiography
Code List
If done, findings:
CL Item
CNV (CNV)
C0600518 (UMLS CUI-1)
(Comment:en)
CL Item
Scar (Scar)
C0271036 (UMLS CUI-1)
(Comment:en)
CL Item
PED (PED)
C3840040 (UMLS CUI-1)
(Comment:en)
Item
ii) Type of choroidal neovascularization (CNV)
text
C0600518 (UMLS CUI [1])
Choroidal Neovascularization
Code List
ii) Type of choroidal neovascularization (CNV)
CL Item
Classic (Classic)
C1282040 (UMLS CUI-1)
(Comment:en)
CL Item
Minimally classic (Minimally classic)
(Comment:en)
CL Item
Predominantly classic (Predominantly classic)
(Comment:en)
CL Item
Occult (Occult)
C2174712 (UMLS CUI-1)
(Comment:en)
Item
iii) Location of CNV
text
C1515974 (UMLS CUI [1,1])
C0600518 (UMLS CUI [1,2])
Location CNV
Code List
iii) Location of CNV
CL Item
Subfoveal (Subfoveal)
C0442185 (UMLS CUI-1)
(Comment:en)
CL Item
Juxtafoveal (Juxtafoveal)
C2932677 (UMLS CUI-1)
(Comment:en)
CL Item
Extrafoveal (Extrafoveal )
C0442088 (UMLS CUI-1)
(Comment:en)
Item
2. FFA left eye
text
C0086305 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
OCT Right eye
Code List
2. FFA left eye
CL Item
done (done)
CL Item
not done (not done)
Item
If done, findings:
text
C0086305 (UMLS CUI [1])
Fluorescence Angiography
Code List
If done, findings:
CL Item
CNV (CNV)
C0600518 (UMLS CUI-1)
(Comment:en)
CL Item
Scar (Scar)
C0271036 (UMLS CUI-1)
(Comment:en)
CL Item
PED (PED)
C3840040 (UMLS CUI-1)
(Comment:en)
Item
ii) Type of choroidal neovascularization (CNV)
text
C0600518 (UMLS CUI [1])
Choroidal Neovascularization
Code List
ii) Type of choroidal neovascularization (CNV)
CL Item
Classic (Classic)
C1282040 (UMLS CUI-1)
(Comment:en)
CL Item
Minimally classic (Minimally classic)
(Comment:en)
CL Item
Predominantly classic (Predominantly classic)
(Comment:en)
CL Item
Occult (Occult)
C2174712 (UMLS CUI-1)
(Comment:en)
Item
iii) Location of CNV
text
C1515974 (UMLS CUI [1,1])
C0600518 (UMLS CUI [1,2])
Location CNV
Code List
iii) Location of CNV
CL Item
Subfoveal (Subfoveal)
C0442185 (UMLS CUI-1)
(Comment:en)
CL Item
Juxtafoveal (Juxtafoveal)
C2932677 (UMLS CUI-1)
(Comment:en)
CL Item
Extrafoveal (Extrafoveal )
C0442088 (UMLS CUI-1)
(Comment:en)
Item
3. ICG right eye
text
C0430879 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
OCT Right eye
Code List
3. ICG right eye
CL Item
done (done)
CL Item
not done (not done)
Item
3. If done, findings:
text
C0430879 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
undefined item
Code List
3. If done, findings:
CL Item
Polyps (Polyps)
C0032584 (UMLS CUI-1)
(Comment:en)
CL Item
Plaque (Plaque)
C0332461 (UMLS CUI-1)
(Comment:en)
CL Item
No Abnormality (No Abnormality)
C1298908 (UMLS CUI-1)
C1704258 (UMLS CUI-2)
(Comment:en)
Item
3. ICG left eye
text
C0430879 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
OCT Right eye
Code List
3. ICG left eye
CL Item
done (done)
CL Item
not done (not done)
Item
3. If done, findings:
text
C0430879 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
undefined item
Code List
3. If done, findings:
CL Item
Polyps (Polyps)
C0032584 (UMLS CUI-1)
(Comment:en)
CL Item
Plaque (Plaque)
C0332461 (UMLS CUI-1)
(Comment:en)
CL Item
No Abnormality (No Abnormality)
C1298908 (UMLS CUI-1)
C1704258 (UMLS CUI-2)
(Comment:en)
Item Group
Section 7: Diagnosis
C0011900 (UMLS CUI-1)
Item
a) Diagnosis Right eye
integer
C0011900 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
Diagnosis Right eye
Code List
a) Diagnosis Right eye
CL Item
Early AMD (1)
C4231168 (UMLS CUI-1)
(Comment:en)
CL Item
Intermediate AMD (2)
(Comment:en)
CL Item
Advanced AMD: Geographic Atrophy  (3)
C1536085 (UMLS CUI-1)
(Comment:en)
CL Item
Advanced AMD: Disciform Scar (4)
C4476587 (UMLS CUI-1)
(Comment:en)
CL Item
Polypoidal choroidal vasculopathy (PCV) (5)
C1504336 (UMLS CUI-1)
(Comment:en)
CL Item
Choroidal Neovascularization (CNV): Active (6)
C4272907 (UMLS CUI-1)
(Comment:en)
CL Item
Choroidal Neovascularization (CNV): Resolved (7)
(Comment:en)
CL Item
Others (8)
C0205394 (UMLS CUI-1)
(Comment:en)
Specify
Item
Others, specify
text
C1521902 (UMLS CUI [1])
Item
b) Diagnosis left eye +
integer
C0011900 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
Diagnosis Right eye
Code List
b) Diagnosis left eye +
CL Item
Early AMD (1)
C4231168 (UMLS CUI-1)
(Comment:en)
CL Item
Intermediate AMD (2)
(Comment:en)
CL Item
Advanced AMD: Geographic Atrophy  (3)
C1536085 (UMLS CUI-1)
(Comment:en)
CL Item
Advanced AMD: Disciform Scar (4)
C4476587 (UMLS CUI-1)
(Comment:en)
CL Item
Polypoidal choroidal vasculopathy (PCV) (5)
C1504336 (UMLS CUI-1)
(Comment:en)
CL Item
Choroidal Neovascularization (CNV): Active (6)
C4272907 (UMLS CUI-1)
(Comment:en)
CL Item
Choroidal Neovascularization (CNV): Resolved (7)
(Comment:en)
CL Item
Others (8)
C0205394 (UMLS CUI-1)
(Comment:en)
Specify
Item
Others, specify
text
C1521902 (UMLS CUI [1])
Item Group
Section 8: Treatment
C0087111 (UMLS CUI-1)
Therapy Right eye
Item
a) Right eye: Treatment?
boolean
C0087111 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
Item
If yes, type of treatment
integer
C0087111 (UMLS CUI [1])
Therapy
Code List
If yes, type of treatment
CL Item
PDT (1)
C0750653 (UMLS CUI-1)
(Comment:en)
CL Item
Anti VEGF (2)
(Comment:en)
CL Item
PDT + Anti VEGF (3)
(Comment:en)
CL Item
Intravitral Triamcinolone (4)
C0040864 (UMLS CUI-1)
C1554888 (UMLS CUI-2)
(Comment:en)
CL Item
Argon Laser (5)
C0392247 (UMLS CUI-1)
(Comment:en)
CL Item
Other (6)
C0205394 (UMLS CUI-1)
(Comment:en)
specify
Item
Others, specify
text
C1521902 (UMLS CUI [1])
Therapy Left eye
Item
b) Left eye: Treatment? +
boolean
C0087111 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
Item
If yes, type of treatment
integer
C0087111 (UMLS CUI [1])
Therapy
Code List
If yes, type of treatment
CL Item
PDT (1)
C0750653 (UMLS CUI-1)
(Comment:en)
CL Item
Anti VEGF (2)
(Comment:en)
CL Item
PDT + Anti VEGF (3)
(Comment:en)
CL Item
Intravitral Triamcinolone (4)
C0040864 (UMLS CUI-1)
C1554888 (UMLS CUI-2)
(Comment:en)
CL Item
Argon Laser (5)
C0392247 (UMLS CUI-1)
(Comment:en)
CL Item
Other (6)
C0205394 (UMLS CUI-1)
(Comment:en)
specify
Item
Others, specify
text
C1521902 (UMLS CUI [1])
Item
Form filled by:
text
C3273494 (UMLS CUI [1])
Form filled by
Code List
Form filled by:
CL Item
Medical Retinal (MR) Specialist (Medical Retinal (MR) Specialist)
CL Item
Vitreo- Retinal (VR) Specialist (Vitreo- Retinal (VR) Specialist)
CL Item
MR or VR fellow (MR or VR fellow)
CL Item
Other specialist (Other specialist)
CL Item
Medical officer (Medical officer)
Item
Form filled by:
text
C3273494 (UMLS CUI [1])
Form filled by
Code List
Form filled by:
CL Item
Medical Retinal (MR) Specialist (Medical Retinal (MR) Specialist)
CL Item
Vitreo- Retinal (VR) Specialist (Vitreo- Retinal (VR) Specialist)
CL Item
MR or VR fellow (MR or VR fellow)
CL Item
Other specialist (Other specialist)
CL Item
Medical officer (Medical officer)
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