ID

43760

Beschrijving

NINDS Common Data Elements (General Health History Friedreich's Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Trefwoorden

  1. 29-04-16 29-04-16 -
  2. 20-09-21 20-09-21 -
Geüploaded op

20 september 2021

DOI

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Licentie

Creative Commons BY-NC 3.0

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NINDS CDE General Health History Friedreich's Ataxia

General Health History

  1. StudyEvent: ODM
    1. General Health History
Behavioral History
Beschrijving

Behavioral History

Date of evaluation
Beschrijving

Assessment Date

Datatype

date

Alias
UMLS CUI [1]
C2985720
Study ID
Beschrijving

Study ID

Datatype

text

Alias
UMLS CUI [1]
C2826693
Study site name
Beschrijving

Study site

Datatype

text

Alias
UMLS CUI [1]
C2825164
Subject ID
Beschrijving

Subject ID

Datatype

text

Alias
UMLS CUI [1]
C2348585
Current tobacco use?
Beschrijving

Regular use of cigarettes, cigars, chewing tobacco or pipes within past year

Datatype

integer

Alias
UMLS CUI [1]
C1519384
Past tobacco use?
Beschrijving

Regular use of cigarettes, cigars, chewing tobacco or pipes prior to the past year

Datatype

integer

Alias
UMLS CUI [1]
C1519384
Age started tobacco use
Beschrijving

Age started tobacco use

Datatype

integer

Maateenheden
  • yrs
Alias
UMLS CUI [1]
C2827019
yrs
Age stopped tobacco use
Beschrijving

Age stopped tobacco use

Datatype

integer

Maateenheden
  • yrs
Alias
UMLS CUI [1]
C2827008
yrs
Ongoing tobacco use
Beschrijving

Ongoing tobacco use

Datatype

boolean

Alias
UMLS CUI [1]
C0154517
Type(s) of tobacco used
Beschrijving

Choose all that apply

Datatype

integer

Alias
UMLS CUI [1]
C3166496
Type of tobacco used: if other type, please specify
Beschrijving

Tobacco use type

Datatype

text

Alias
UMLS CUI [1]
C3166496
Average number of cigarettes smoked per day
Beschrijving

Skip if cigarettes is NOT an answer in prior Q

Datatype

integer

Alias
UMLS CUI [1]
C1608325
Current drinker?
Beschrijving

Consumed at least one drink within past year

Datatype

integer

Alias
UMLS CUI [1]
C0552479
Past drinker?
Beschrijving

Consumed at least one drink prior to the past year

Datatype

integer

Alias
UMLS CUI [1]
C0552479
Age started drinking
Beschrijving

Age started drinking

Datatype

integer

Maateenheden
  • yrs
Alias
UMLS CUI [1]
C2827019
yrs
Age quit drinking
Beschrijving

Age quit drinking

Datatype

integer

Maateenheden
  • yrs
Alias
UMLS CUI [1]
C2827008
yrs
Ongoing use
Beschrijving

Ongoing use

Datatype

boolean

Alias
UMLS CUI [1,1]
C0038586
UMLS CUI [1,2]
C0549178
How often do you have a drink containing alcohol?
Beschrijving

In the U.S., a single drink serving contains about 14 grams of ethanol or "pure" alcohol.12 ounces of beer equals 8-9 ounces of malt liquor. 8-9 ounces of malt liquor equals 5 ounces of wine. 5 ounces of wine equals 1.5 ounces of hard liquor.

Datatype

integer

Alias
UMLS CUI [1]
C2826656
How many alcoholic drinks do you have on a typical day when you are drinking?
Beschrijving

Number of drinks

Datatype

integer

Alias
UMLS CUI [1]
C0551555
How often do you have six or more drinks on one occasion?
Beschrijving

Amount of drinks

Datatype

integer

Alias
UMLS CUI [1]
C3698589
Have you ever been hospitalized for an alcohol-related problem?
Beschrijving

(e.g., esophageal varices, delirium tremens (DTs), cirrhosis, etc.)

Datatype

integer

Alias
UMLS CUI [1,1]
C0184666
UMLS CUI [1,2]
C0848950
Current drug user?
Beschrijving

Use of any illicit drug within the past year

Datatype

integer

Alias
UMLS CUI [1]
C0038586
Current drug user: if yes, please specify illicit drug type(s) used
Beschrijving

Choose all that apply

Datatype

integer

Alias
UMLS CUI [1]
C0038586
Current user: if other illicit drug(s), please specify
Beschrijving

Drug use history

Datatype

text

Alias
UMLS CUI [1]
C0038586
Family History
Beschrijving

Family History

Does the participants first degree blood relative have a history of Ataxia
Beschrijving

Family history of Ataxia

Datatype

integer

Alias
UMLS CUI [1,1]
C0004134
UMLS CUI [1,2]
C0241889
Relationship of Family Member to Participant/ Subject (Choose all that apply)
Beschrijving

Relationship

Datatype

integer

Alias
UMLS CUI [1]
C0015608
Does the participant/subject’s first degree blood relatives have a history of Cardiomyopathy?
Beschrijving

Family history of Cardiomyopathy

Datatype

integer

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0878544
Relationship of Family Member to Participant/ Subject (Choose all that apply)
Beschrijving

Relationship

Datatype

integer

Alias
UMLS CUI [1]
C0015608
Does the participant/subject’s first degree blood relatives have a history of Diabetes mellitus
Beschrijving

Family history of diabetes mellitus

Datatype

integer

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0011849
Relationship of Family Member to Participant/ Subject (Choose all that apply)
Beschrijving

Relationship

Datatype

integer

Alias
UMLS CUI [1]
C0015608
Does the participant/subject’s first degree blood relatives have a history of Friedreich’s Ataxia
Beschrijving

Family History of Friedreich’s Ataxia

Datatype

integer

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0016719
Relationship of Family Member to Participant/ Subject (Choose all that apply)
Beschrijving

Relationship

Datatype

integer

Alias
UMLS CUI [1]
C0015608
Does the participant/subject’s first degree blood relatives have a history of Mitochondrial Disease
Beschrijving

Family History of Mitochondrial Disease

Datatype

integer

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0751651
Relationship of Family Member to Participant/ Subject (Choose all that apply)
Beschrijving

Relationship

Datatype

integer

Alias
UMLS CUI [1]
C0015608
History Data Source and Reliability
Beschrijving

History Data Source and Reliability

Indicate how the medical/family history information was obtained
Beschrijving

Choose all that apply

Datatype

integer

Alias
UMLS CUI [1]
C0683836
If other information source, please specify
Beschrijving

Information source

Datatype

text

Alias
UMLS CUI [1]
C0683836
If the medical/ family history information was not obtained from the participant/subject, indicate the reason(s) the information were obtained from alternate source(s
Beschrijving

Reason for alternate information source

Datatype

integer

Alias
UMLS CUI [1,1]
C0683836
UMLS CUI [1,2]
C0566251
If other reason for alternate information source, please specify
Beschrijving

Reason for alternate information source

Datatype

text

Alias
UMLS CUI [1,1]
C0683836
UMLS CUI [1,2]
C0566251
Overall assessment of the reliability of the medical/family history information obtained:
Beschrijving

Reliability

Datatype

integer

Alias
UMLS CUI [1]
C0035036
Medical history
Beschrijving

Medical history

Date Medical History Taken
Beschrijving

Date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Have you experienced problems with constitutional symptoms in the past?
Beschrijving

Constitutional symptoms (e.g., fever, weight loss)

Datatype

boolean

Alias
UMLS CUI [1]
C0009812
Please specify the constitutional symptom you experienced. If there´s more than one, please describe one be one.
Beschrijving

Constitutional symptoms (e.g., fever, weight loss...)Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description

Datatype

text

Alias
UMLS CUI [1]
C0009812
Start date of constitutional symptom
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of constitutional symptom
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with your eyes in the past?
Beschrijving

Eye problems

Datatype

boolean

Alias
UMLS CUI [1]
C0262477
Please specify the eye problems you experienced. If there´s more than one, please describe one be one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description

Datatype

text

Alias
UMLS CUI [1]
C0262477
Start date of eye problems
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of eye problems
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced ENT or mouth problems in the past?
Beschrijving

Otorhinolaryngologic conditions

Datatype

boolean

Alias
UMLS CUI [1]
C0029896
Please specify the otorhinolaryngologic conditions or problems with your mouth you experienced. If there´s more than one, please describe one be one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description

Datatype

text

Alias
UMLS CUI [1]
C0029896
Start date of your ENT or mouth problems
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of your ENT or mouth problems
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with your cardiovascular system in the past?
Beschrijving

Cardiovascular diseases

Datatype

boolean

Alias
UMLS CUI [1]
C0007222
Please specify the problems you experienced with your cardiovascular system. If there´s more than one, describe it one by one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0007222
Start date of your cardiovascular problems
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of your cardiovascular problems
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced respiratory problems in the past?
Beschrijving

Respiratory disorders

Datatype

boolean

Alias
UMLS CUI [1]
C0035204
Please specify the respiratory problems you experienced. If there´s more than one, describe it one by one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0035204
Start date of your respiratory problems
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of your respiratory problems
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced gastrointestinal problems in the past?
Beschrijving

Gastrointestinal system

Datatype

boolean

Alias
UMLS CUI [1]
C0012240
Please specify the gastrointestinal problem you experienced. If there´s more than one, describe it one by one
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0012240
Start date of your gastrointestinal problems
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of your gastrointestinal problems
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with your genitourinary system in the past?
Beschrijving

Genitourinary system

Datatype

boolean

Alias
UMLS CUI [1]
C0042066
Please specify the problems with your genitourinary system. If there´s more than one, describe it one by one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0042066
Start date of your genitourinary problems
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of your genitourinary problems
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with musculoskeletal system in the past?
Beschrijving

Musculoskeletal system

Datatype

boolean

Alias
UMLS CUI [1]
C0026860
Please specify the problem with your musculoskeletal system. If there´s more than one, describe it one by one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0026860
Start date of your musculoskeletal problem
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of your musculoskeletal problem
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with your skin or your breast in the past?
Beschrijving

Integumentary system

Datatype

boolean

Alias
UMLS CUI [1]
C0037267
Please specify the problems with your integumentary system you experienced. If there´s more than one, describe it one by one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0037267
Start date of your problems with the integumentary system
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of your problems with the integumentary system
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced neurological problems with in the past?
Beschrijving

Neurological problems

Datatype

boolean

Alias
UMLS CUI [1]
C0221571
Please specify the neurological problems you experienced. If there´s more than one, please describe it one be one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0221571
Start date of the neurological problem
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of the neurological problem
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with your mental health in the past?
Beschrijving

Mental disorders

Datatype

boolean

Alias
UMLS CUI [1]
C0004936
Please specify the mental problem you experienced. If there´s more than one, please describe it one by one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0004936
Start date of your mental illness
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of your mental illness
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with your endocrine system in the past?
Beschrijving

Endocrine system diseases

Datatype

boolean

Alias
UMLS CUI [1]
C0014130
Please specify the endocrine system disease you experienced. If there´s more than one,please describe it one by one
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0014130
Start date of the endocrine system disease
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of the endocrine system disease
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with diseases of blood and bloodforming organs in the past?
Beschrijving

Hematological disease

Datatype

boolean

Alias
UMLS CUI [1]
C0018939
Please specify the disease of blood and bloodforming organs you experienced. If there´s more than one,please describe it one by one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0018939
Start date of your problems with the blood or bloodforming system
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of the problems with your blood or bloodforming system
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with lymphatic diseases in the past?
Beschrijving

Lymphatic disease

Datatype

boolean

Alias
UMLS CUI [1]
C0024228
Please specify the problem with your lymphatic system you experienced. If there´s more than one, please describe it one by one
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0024228
Start date of your problems with the lymphatic system
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of your problems with the lymphatic system
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with allergies in the past?
Beschrijving

Allergies

Datatype

boolean

Alias
UMLS CUI [1]
C0020517
Please specify the allergy you experienced. If there´s more than one, please describe it one by one.
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0020517
Start date of the allergy
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of the allergy
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the allergy persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Have you experienced problems with your immune system in the past?
Beschrijving

Immunologic diseases

Datatype

boolean

Alias
UMLS CUI [1]
C0021053
Please specify the problem with your immune system you experienced. If there´s more than one, please desribe it one by one
Beschrijving

Enter all significant medical history items, including surgeries, EXCEPT the problem/condition that is the focus of this study. Use only one line per description.

Datatype

text

Alias
UMLS CUI [1]
C0021053
Start date of your problems with the immune system
Beschrijving

Start date

Datatype

date

Alias
UMLS CUI [1]
C0011008
End date of the problems with your immune system
Beschrijving

End date

Datatype

date

Alias
UMLS CUI [1]
C0011008
Is the symptom persistent?
Beschrijving

Ongoing

Datatype

boolean

Alias
UMLS CUI [1]
C0549178
Cardiac condition
Beschrijving

Cardiovascular History

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0007222
Arrhythmia
Beschrijving

Cardiocascular history

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0007222
If cardiac arrhythmia is present,please specify type
Beschrijving

Select all that apply

Datatype

integer

Alias
UMLS CUI [1]
C0003811
If other Type of cardiac arrhythmia, please specify
Beschrijving

Arrhythmia

Datatype

text

Alias
UMLS CUI [1]
C0003811
Type of cardiac arrhythmia is unknown
Beschrijving

Arrhythmia

Datatype

boolean

Alias
UMLS CUI [1]
C0003811
Heart failure
Beschrijving

Cardiovascular history

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0007222
Ischemia heart disease
Beschrijving

Cardiovascular history

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0007222
Abnormal echocardiogram
Beschrijving

Cardiovascular history

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0007222
If abnormal echocardiogram,LVH?
Beschrijving

Abnormal echocardiogram

Datatype

integer

Alias
UMLS CUI [1]
C0476369
If abnormal echocardiogram: decreased LV function
Beschrijving

Abnormal echocardiogram

Datatype

integer

Alias
UMLS CUI [1]
C0476369
If other abnormal echocardiogram, please specify
Beschrijving

Abnormal echocardiogram

Datatype

text

Alias
UMLS CUI [1]
C0476369
Cardiac surgery/mechanical intervention
Beschrijving

Cardiovascular history

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0007222
If Cardiac surgery/mechanical intervention,please specify
Beschrijving

Select all that apply

Datatype

integer

Alias
UMLS CUI [1,1]
C0018821
UMLS CUI [1,2]
C0581396
Date of most recent surgery
Beschrijving

Cardiac surgery/mechanical intervention

Datatype

date

Alias
UMLS CUI [1,1]
C0018821
UMLS CUI [1,2]
C0581396
Congenital heart disease
Beschrijving

Cardiovascular history

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0007222
Diabetes mellitus (type I or type II)?
Beschrijving

Endocrine history

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0014130
Diabetes mellitus:If yes
Beschrijving

Diabetes mellitus

Datatype

integer

Alias
UMLS CUI [1]
C0011849
Diabetes mellitus age at diagnosis
Beschrijving

Diabetes mellitus age at diagnosis

Datatype

integer

Maateenheden
  • yrs
Alias
UMLS CUI [1,1]
C0011849
UMLS CUI [1,2]
C1828181
yrs
Diabetes mellitus complications
Beschrijving

Select all that apply

Datatype

integer

Alias
UMLS CUI [1,1]
C0011849
UMLS CUI [1,2]
C0009566
Diabetes mellitus: other complications,please specify
Beschrijving

Diabetes mellitus complications

Datatype

text

Alias
UMLS CUI [1,1]
C0011849
UMLS CUI [1,2]
C0009566
Indicate the treatments taken for diabetes
Beschrijving

Select all that apply

Datatype

integer

Alias
UMLS CUI [1,1]
C0011849
UMLS CUI [1,2]
C0087111
Clinical depression within the past year
Beschrijving

Psychiatric history

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0004936
Depressive disorder diagnosis
Beschrijving

Depressive disorder diagnosis

Datatype

integer

Alias
UMLS CUI [1]
C0011581
Age at which participant/subject experienced first depressive episode or was first diagnosed with depression, whichever is earlier (years):
Beschrijving

Age at diagnosis/onset

Datatype

integer

Maateenheden
  • yrs
Alias
UMLS CUI [1,1]
C1828181
UMLS CUI [1,2]
C0150907
yrs
Clinical anxiety within the past year
Beschrijving

Psychiatric History

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0004936
Anxiety disorder diagnosis
Beschrijving

Anxiety disorder diagnosis

Datatype

integer

Alias
UMLS CUI [1]
C0003469
Psychotic disorder diagnosis
Beschrijving

Psychiatric history

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0004936
Psychotic disorder diagnosis: If Yes, choose all disorders that apply
Beschrijving

Psychotic disorder diagnosis

Datatype

integer

Alias
UMLS CUI [1]
C0033975
If other psychotic disorder diagnosis,please specify
Beschrijving

Psychotic disorder diagnosis

Datatype

text

Alias
UMLS CUI [1]
C0033975
Cancer
Beschrijving

Miscellaneous History

Datatype

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0205395
Cancer diagnosis:if yes, please specify type of cancer diagnosed with
Beschrijving

Cancer diagnosis

Datatype

text

Alias
UMLS CUI [1]
C0920688
Cancer diagnosis: treated with head or neck radiation?
Beschrijving

Cancer diagnosis

Datatype

integer

Alias
UMLS CUI [1]
C0920688
Pediatric Developmental History
Beschrijving

Pediatric Developmental History

Does/did the participant/ subject have ADHD/ADD?
Beschrijving

ADHD/ADD

Datatype

integer

Alias
UMLS CUI [1,1]
C1263846
UMLS CUI [1,2]
C0041671
Does/did the participant/ subject have delayed acquisition of language/cognitive milestones, diagnosed by a pediatrician or neurologist?
Beschrijving

Delayed acquisition of language/cognitive milestones

Datatype

integer

Alias
UMLS CUI [1,1]
C0023012
UMLS CUI [1,2]
C1959866
Does/did the participant/ subject have delayed acquisition of motor milestones, diagnosed by a pediatrician or neurologist?
Beschrijving

Delayed acquisition of motor milestones

Datatype

integer

Alias
UMLS CUI [1]
C1854301
Does/did the participant/ subject have social delay?
Beschrijving

Social delay

Datatype

integer

Alias
UMLS CUI [1]
C3840125
Does/did the participant/ subject have hand preference before 12 months of age?
Beschrijving

Early hand preference

Datatype

integer

Alias
UMLS CUI [1,1]
C0422881
UMLS CUI [1,2]
C0517081
Does/did the participant/ subject have abnormality of the gait noted by parents or a physician at the time the child began walking?
Beschrijving

Abnormality of the gait

Datatype

integer

Alias
UMLS CUI [1,1]
C0575081
UMLS CUI [1,2]
C0599196
Does/did the participant/ subject have special education?
Beschrijving

Special education

Datatype

integer

Alias
UMLS CUI [1]
C0013649
School placement
Beschrijving

School placement

Datatype

integer

Alias
UMLS CUI [1]
C0455002
If other school placement, please specify
Beschrijving

School placement

Datatype

text

Alias
UMLS CUI [1]
C0455002
Does/did the participant/subject receive any specialized therapies and services?
Beschrijving

Specialized therapies and services

Datatype

integer

Alias
UMLS CUI [1]
C0013649
Did the patient receive speech therapy?
Beschrijving

Specialized therapies and services

Datatype

boolean

Alias
UMLS CUI [1]
C0037831
Did the patient receive Occupational Therapy?
Beschrijving

Specialized therapies and services

Datatype

boolean

Alias
UMLS CUI [1]
C1318464
Did the patient receive Physical Therapy?
Beschrijving

Specialized therapies and services

Datatype

boolean

Alias
UMLS CUI [1]
C0949766
Did the patient receive Sensory Integration
Beschrijving

Specialized therapies and services

Datatype

boolean

Alias
UMLS CUI [1]
C0695560
Did the patient receive Social Skills Training
Beschrijving

Specialized therapies and services

Datatype

boolean

Alias
UMLS CUI [1]
C0150777
Did the patient receive Adaptive Physical Education
Beschrijving

Specialized therapies and services

Datatype

boolean

Alias
UMLS CUI [1,1]
C0031805
UMLS CUI [1,2]
C0814282
Did the patient receive Behavior Support Plan
Beschrijving

Specialized therapies and services

Datatype

boolean

Alias
UMLS CUI [1]
C0150143
Did the patient receive Crisis Management Plan
Beschrijving

Specialized therapies and services

Datatype

boolean

Alias
UMLS CUI [1]
C1443432
If patient received other specialized therapies and services, please specify
Beschrijving

Specialized therapies and services

Datatype

text

Alias
UMLS CUI [1]
C0013649
Pregnancy History
Beschrijving

Pregnancy History

Does participant/ subject have a history of prior pregnancy? (both term and not to term)
Beschrijving

Prior pregnancy

Datatype

integer

Alias
UMLS CUI [1]
C0032967
Number of pregnancies
Beschrijving

Number of pregnancies

Datatype

integer

Alias
UMLS CUI [1]
C0422807
Year of last delivery or miscarriage
Beschrijving

Date of last delivery or miscarriage

Datatype

integer

Maateenheden
  • year
Alias
UMLS CUI [1,1]
C3262384
UMLS CUI [1,2]
C0000786
year
Number of miscarriages
Beschrijving

Number of miscarriages

Datatype

integer

Alias
UMLS CUI [1]
C0429916
Prenatal and Perinatal History
Beschrijving

Prenatal and Perinatal History

Mother’s age at the time she gave birth to the participant/subject
Beschrijving

Mother’s age at the time she gave birth

Datatype

integer

Maateenheden
  • yrs
Alias
UMLS CUI [1]
C2136466
yrs
Number of live born children the participant/subject’s mother has delivered
Beschrijving

Number of live born children

Datatype

integer

Alias
UMLS CUI [1]
C0425981
Total number of times the participant/subject’s mother has been pregnant, regardless of whether these pregnancies were carried to term
Beschrijving

(A current pregnancy, if any, is included in this count)

Datatype

integer

Alias
UMLS CUI [1]
C3812254
Previous pregnancy loss
Beschrijving

Previous pregnancy loss

Datatype

integer

Alias
UMLS CUI [1]
C0687675
Preeclampsia during pregnancy of the participant/subject?
Beschrijving

Preeclampsia is defined as a physician diagnosis of either preeclampsia or pregnancy-induced hypertension

Datatype

integer

Alias
UMLS CUI [1]
C0032914
Another hypertensive disorder during pregnancy of the participant/subject?
Beschrijving

Hypertensive disorder during pregnancy

Datatype

integer

Alias
UMLS CUI [1,1]
C0020538
UMLS CUI [1,2]
C0032962
Oligohydramnios
Beschrijving

condition in pregnancy characterized by a deficiency of amniotic fluid

Datatype

integer

Alias
UMLS CUI [1]
C0079924
Gestational onset diabetes during pregnancy of the participant/subject?
Beschrijving

Gestational onset diabetes

Datatype

integer

Alias
UMLS CUI [1]
C0085207
Fever during delivery of participant/subject?
Beschrijving

Fever during delivery

Datatype

integer

Alias
UMLS CUI [1]
C1389671
Prolonged rupture of membraines (i.e., > 24 hours) during delivery of participant/subject?
Beschrijving

Prolonged rupture of membraines

Datatype

integer

Alias
UMLS CUI [1]
C0405050
Second stage of labor more than two hours?
Beschrijving

Prolonged second stage of labor

Datatype

integer

Alias
UMLS CUI [1]
C0157266
Meconium staining of the amniotic fluid?
Beschrijving

Meconium staining

Datatype

integer

Alias
UMLS CUI [1]
C0426209
Birth weight
Beschrijving

pounds/ounces OR grams

Datatype

float

Alias
UMLS CUI [1]
C0005612
Gestational Age at Birth
Beschrijving

Gestational Age at Birth

Datatype

float

Maateenheden
  • weeks
Alias
UMLS CUI [1]
C0456129
weeks
APGAR 5 Minute score
Beschrijving

APGAR

Datatype

integer

Alias
UMLS CUI [1]
C0003533
APGAR 10 Minute score
Beschrijving

APGAR

Datatype

integer

Alias
UMLS CUI [1]
C0003533
Mode of delivery of the neonate
Beschrijving

Mode of delivery

Datatype

integer

Alias
UMLS CUI [1]
C1555567
Route of delivery of the neonate
Beschrijving

Route of delivery

Datatype

integer

Alias
UMLS CUI [1]
C3656414
If Caesarean section, timing of procedure
Beschrijving

Caesarean section

Datatype

integer

Alias
UMLS CUI [1]
C0007876
Delivery modality type of the neonate
Beschrijving

Presentation at delivery

Datatype

integer

Alias
UMLS CUI [1]
C2114311
Instrument(s) used to assist with the delivery of the participant/subject?
Beschrijving

Assisted delivery

Datatype

integer

Alias
UMLS CUI [1]
C0877233
Resuscitation of the participant/subject at delivery?
Beschrijving

Resuscitation of newborn

Datatype

integer

Alias
UMLS CUI [1]
C0374651
Intravascular catheter placed in newborn period?
Beschrijving

Intravascular catheter

Datatype

integer

Alias
UMLS CUI [1]
C0179777
Placenta sent for pathology?
Beschrijving

Placenta sent for pathology

Datatype

integer

Alias
UMLS CUI [1,1]
C0032043
UMLS CUI [1,2]
C0444061
Placental abnormalities?
Beschrijving

Placental abnormalities

Datatype

integer

Alias
UMLS CUI [1]
C1306893
Cord abnormalities?
Beschrijving

Cord abnormalities include tight nuchal cord, umbilical cord knot, and body cord.

Datatype

integer

Alias
UMLS CUI [1]
C0266785
Fetal heart rate abnormality?
Beschrijving

Fetal heart rate abnormalities are considered present if a treating physician noted repetitive or prolonged late decelerations, fetal bradycardia, nonreassuring fetal heart tracing, or fetal distress according to electronic fetal heart rate monitoring

Datatype

integer

Alias
UMLS CUI [1]
C0695245
Decreased fetal movement?
Beschrijving

Decreased fetal movement refers to a maternal report of decreased fetal movement before labor or decreased fetal movement during a nonstress test

Datatype

integer

Alias
UMLS CUI [1]
C0235659
Chorioamnionitis
Beschrijving

Chorioamnionitis is defined as a maternal temperature of at least 37.8 degrees C [100.4 degrees F] or a physician diagnosis of chorioamnionitis according to clinical symptoms alone

Datatype

integer

Alias
UMLS CUI [1]
C0008495
Other pregnancy/delivery risk factors
Beschrijving

Pregnancy/delivery risk factors

Datatype

integer

Alias
UMLS CUI [1,1]
C0242786
UMLS CUI [1,2]
C1171158

Similar models

General Health History

  1. StudyEvent: ODM
    1. General Health History
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Behavioral History
Assessment Date
Item
Date of evaluation
date
C2985720 (UMLS CUI [1])
Study ID
Item
Study ID
text
C2826693 (UMLS CUI [1])
Study site
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
text
C2348585 (UMLS CUI [1])
Item
Current tobacco use?
integer
C1519384 (UMLS CUI [1])
Code List
Current tobacco use?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Past tobacco use?
integer
C1519384 (UMLS CUI [1])
Code List
Past tobacco use?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Age started tobacco use
Item
Age started tobacco use
integer
C2827019 (UMLS CUI [1])
Age stopped tobacco use
Item
Age stopped tobacco use
integer
C2827008 (UMLS CUI [1])
Ongoing tobacco use
Item
Ongoing tobacco use
boolean
C0154517 (UMLS CUI [1])
Item
Type(s) of tobacco used
integer
C3166496 (UMLS CUI [1])
Code List
Type(s) of tobacco used
CL Item
Filtered cigarettes(Answer next Q) (1)
CL Item
Cigars (2)
CL Item
Other, specify (3)
CL Item
Non-filtered cigarettes(Answer next Q) (4)
CL Item
Pipes (5)
CL Item
Low tar cigarettes(Answer next Q) (6)
CL Item
Chewing tobacco (7)
Tobacco use type
Item
Type of tobacco used: if other type, please specify
text
C3166496 (UMLS CUI [1])
Item
Average number of cigarettes smoked per day
integer
C1608325 (UMLS CUI [1])
Code List
Average number of cigarettes smoked per day
CL Item
Less than one cigarette per day (1)
CL Item
1 cigarette per day (2)
CL Item
2 to 5 cigarettes per day (3)
CL Item
6 to 15 cigarettes per day(about ½ pack) (4)
CL Item
16 to 25 cigarettes per day (about 1 pack) (5)
CL Item
26 to 35 cigarettes per day (about 1 ½ packs) (6)
CL Item
More than 35 cigarettes per day (about 2 packs or more) (7)
CL Item
Unknown (8)
Item
Current drinker?
integer
C0552479 (UMLS CUI [1])
Code List
Current drinker?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Past drinker?
integer
C0552479 (UMLS CUI [1])
Code List
Past drinker?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Age started drinking
Item
Age started drinking
integer
C2827019 (UMLS CUI [1])
Age quit drinking
Item
Age quit drinking
integer
C2827008 (UMLS CUI [1])
Ongoing use
Item
Ongoing use
boolean
C0038586 (UMLS CUI [1,1])
C0549178 (UMLS CUI [1,2])
Item
How often do you have a drink containing alcohol?
integer
C2826656 (UMLS CUI [1])
Code List
How often do you have a drink containing alcohol?
CL Item
Monthly or less  (1)
CL Item
2 - 4 times/ month  (2)
CL Item
2 - 3 times/ week  (3)
CL Item
4 or more times/ week (4)
CL Item
Unknown(Skip if Question 1 and Question 2 are both NO) (5)
Item
How many alcoholic drinks do you have on a typical day when you are drinking?
integer
C0551555 (UMLS CUI [1])
Code List
How many alcoholic drinks do you have on a typical day when you are drinking?
CL Item
1 or 2  (1)
CL Item
3 or 4  (2)
CL Item
5 or 6  (3)
CL Item
7, 8, or 9  (4)
CL Item
10 or more (5)
CL Item
Unknown (Skip if Q1 and Q2 are both NO) (6)
Item
How often do you have six or more drinks on one occasion?
integer
C3698589 (UMLS CUI [1])
Code List
How often do you have six or more drinks on one occasion?
CL Item
Never  (1)
CL Item
Less than monthly  (2)
CL Item
Monthly  (3)
CL Item
Weekly  (4)
CL Item
Daily or almost daily (5)
CL Item
Unknown (6)
Item
Have you ever been hospitalized for an alcohol-related problem?
integer
C0184666 (UMLS CUI [1,1])
C0848950 (UMLS CUI [1,2])
Code List
Have you ever been hospitalized for an alcohol-related problem?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Current drug user?
integer
C0038586 (UMLS CUI [1])
Code List
Current drug user?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Current drug user: if yes, please specify illicit drug type(s) used
integer
C0038586 (UMLS CUI [1])
Code List
Current drug user: if yes, please specify illicit drug type(s) used
CL Item
Sedatives (e.g., sleeping pills, barbiturates, Seconal, Quaaludes, or Chloral Hydrate) (1)
CL Item
Tranquilizers or anti-anxiety drugs (e.g., Valium®, Librium, muscle relaxants, or Zanax) (2)
CL Item
Painkillers (e.g., Codeine, Darvon, Percodan, Dilaudid, or Demerol) (3)
CL Item
Stimulants (e.g., Preludin, Benzedrine, Methadrine, uppers, or speed) (4)
CL Item
Marijuana, hash, THC, or grass (5)
CL Item
Cocaine or crack (6)
CL Item
Hallucinogens (e.g., Ecstasy, LSD, mescaline, psilocybin, PCP, angel dust, or peyote) (7)
CL Item
Inhalants or Solvents (e.g., amyl nitrate, nitrous oxide, glue, tolune, or gasoline) (8)
CL Item
Heroin (9)
CL Item
Other, specify: (e.g., Methadone, Elavil, steroids,Thorazine, or Haldol) (10)
Drug use history
Item
Current user: if other illicit drug(s), please specify
text
C0038586 (UMLS CUI [1])
Item Group
Family History
Item
Does the participants first degree blood relative have a history of Ataxia
integer
C0004134 (UMLS CUI [1,1])
C0241889 (UMLS CUI [1,2])
Code List
Does the participants first degree blood relative have a history of Ataxia
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Relationship of Family Member to Participant/ Subject (Choose all that apply)
integer
C0015608 (UMLS CUI [1])
Code List
Relationship of Family Member to Participant/ Subject (Choose all that apply)
CL Item
Mother  (1)
CL Item
Father  (2)
CL Item
Sibling (3)
CL Item
Half-Sibling (4)
CL Item
Child (5)
Item
Does the participant/subject’s first degree blood relatives have a history of Cardiomyopathy?
integer
C0241889 (UMLS CUI [1,1])
C0878544 (UMLS CUI [1,2])
Code List
Does the participant/subject’s first degree blood relatives have a history of Cardiomyopathy?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Relationship of Family Member to Participant/ Subject (Choose all that apply)
integer
C0015608 (UMLS CUI [1])
Code List
Relationship of Family Member to Participant/ Subject (Choose all that apply)
CL Item
Mother  (1)
CL Item
Father  (2)
CL Item
Sibling (3)
CL Item
Half-Sibling (4)
CL Item
Child (5)
Item
Does the participant/subject’s first degree blood relatives have a history of Diabetes mellitus
integer
C0241889 (UMLS CUI [1,1])
C0011849 (UMLS CUI [1,2])
Code List
Does the participant/subject’s first degree blood relatives have a history of Diabetes mellitus
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Relationship of Family Member to Participant/ Subject (Choose all that apply)
integer
C0015608 (UMLS CUI [1])
Code List
Relationship of Family Member to Participant/ Subject (Choose all that apply)
CL Item
Mother  (1)
CL Item
Father  (2)
CL Item
Sibling (3)
CL Item
Half-Sibling (4)
CL Item
Child (5)
Item
Does the participant/subject’s first degree blood relatives have a history of Friedreich’s Ataxia
integer
C0241889 (UMLS CUI [1,1])
C0016719 (UMLS CUI [1,2])
Code List
Does the participant/subject’s first degree blood relatives have a history of Friedreich’s Ataxia
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Relationship of Family Member to Participant/ Subject (Choose all that apply)
integer
C0015608 (UMLS CUI [1])
Code List
Relationship of Family Member to Participant/ Subject (Choose all that apply)
CL Item
Mother  (1)
CL Item
Father  (2)
CL Item
Sibling (3)
CL Item
Half-Sibling (4)
CL Item
Child (5)
Item
Does the participant/subject’s first degree blood relatives have a history of Mitochondrial Disease
integer
C0241889 (UMLS CUI [1,1])
C0751651 (UMLS CUI [1,2])
Code List
Does the participant/subject’s first degree blood relatives have a history of Mitochondrial Disease
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Relationship of Family Member to Participant/ Subject (Choose all that apply)
integer
C0015608 (UMLS CUI [1])
Code List
Relationship of Family Member to Participant/ Subject (Choose all that apply)
CL Item
Mother  (1)
CL Item
Father  (2)
CL Item
Sibling (3)
CL Item
Half-Sibling (4)
CL Item
Child (5)
Item Group
History Data Source and Reliability
Item
Indicate how the medical/family history information was obtained
integer
C0683836 (UMLS CUI [1])
Code List
Indicate how the medical/family history information was obtained
CL Item
Participant/Subject (1)
CL Item
Family, specify relation: (2)
CL Item
Friend (3)
CL Item
Physician (4)
CL Item
Chart/Medical record (5)
CL Item
Other, specify (6)
Information source
Item
If other information source, please specify
text
C0683836 (UMLS CUI [1])
Item
If the medical/ family history information was not obtained from the participant/subject, indicate the reason(s) the information were obtained from alternate source(s
integer
C0683836 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
Code List
If the medical/ family history information was not obtained from the participant/subject, indicate the reason(s) the information were obtained from alternate source(s
CL Item
Dementia (1)
CL Item
Aphasia (2)
CL Item
Other cognitive impairment (3)
CL Item
Not fluent in examiner’s language (4)
CL Item
Poor historian (5)
CL Item
Too young (6)
CL Item
Other, specify (7)
Reason for alternate information source
Item
If other reason for alternate information source, please specify
text
C0683836 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
Item
Overall assessment of the reliability of the medical/family history information obtained:
integer
C0035036 (UMLS CUI [1])
Code List
Overall assessment of the reliability of the medical/family history information obtained:
CL Item
Definitely reliable  (1)
CL Item
Probably reliable  (2)
CL Item
Not reliable (3)
Item Group
Medical history
Date
Item
Date Medical History Taken
date
C0011008 (UMLS CUI [1])
Constitutional symptoms
Item
Have you experienced problems with constitutional symptoms in the past?
boolean
C0009812 (UMLS CUI [1])
Constitutional symptoms
Item
Please specify the constitutional symptom you experienced. If there´s more than one, please describe one be one.
text
C0009812 (UMLS CUI [1])
Start date
Item
Start date of constitutional symptom
date
C0011008 (UMLS CUI [1])
End date
Item
End date of constitutional symptom
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Eye problems
Item
Have you experienced problems with your eyes in the past?
boolean
C0262477 (UMLS CUI [1])
Eye problems
Item
Please specify the eye problems you experienced. If there´s more than one, please describe one be one.
text
C0262477 (UMLS CUI [1])
Start date
Item
Start date of eye problems
date
C0011008 (UMLS CUI [1])
End date
Item
End date of eye problems
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Otorhinolaryngologic conditions
Item
Have you experienced ENT or mouth problems in the past?
boolean
C0029896 (UMLS CUI [1])
Otorhinolaryngologic conditions
Item
Please specify the otorhinolaryngologic conditions or problems with your mouth you experienced. If there´s more than one, please describe one be one.
text
C0029896 (UMLS CUI [1])
Start date
Item
Start date of your ENT or mouth problems
date
C0011008 (UMLS CUI [1])
End date
Item
End date of your ENT or mouth problems
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Cardiovascular diseases
Item
Have you experienced problems with your cardiovascular system in the past?
boolean
C0007222 (UMLS CUI [1])
Cardiovascular Diseases
Item
Please specify the problems you experienced with your cardiovascular system. If there´s more than one, describe it one by one.
text
C0007222 (UMLS CUI [1])
Start date
Item
Start date of your cardiovascular problems
date
C0011008 (UMLS CUI [1])
End date
Item
End date of your cardiovascular problems
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Respiratory disorders
Item
Have you experienced respiratory problems in the past?
boolean
C0035204 (UMLS CUI [1])
Respiration disorders
Item
Please specify the respiratory problems you experienced. If there´s more than one, describe it one by one.
text
C0035204 (UMLS CUI [1])
Start date
Item
Start date of your respiratory problems
date
C0011008 (UMLS CUI [1])
End date
Item
End date of your respiratory problems
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Gastrointestinal system
Item
Have you experienced gastrointestinal problems in the past?
boolean
C0012240 (UMLS CUI [1])
Gastrointestinal system
Item
Please specify the gastrointestinal problem you experienced. If there´s more than one, describe it one by one
text
C0012240 (UMLS CUI [1])
Start date
Item
Start date of your gastrointestinal problems
date
C0011008 (UMLS CUI [1])
End date
Item
End date of your gastrointestinal problems
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Genitourinary system
Item
Have you experienced problems with your genitourinary system in the past?
boolean
C0042066 (UMLS CUI [1])
Genitourinary system
Item
Please specify the problems with your genitourinary system. If there´s more than one, describe it one by one.
text
C0042066 (UMLS CUI [1])
Start date
Item
Start date of your genitourinary problems
date
C0011008 (UMLS CUI [1])
End date
Item
End date of your genitourinary problems
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Musculoskeletal system
Item
Have you experienced problems with musculoskeletal system in the past?
boolean
C0026860 (UMLS CUI [1])
Musculoskeletal System
Item
Please specify the problem with your musculoskeletal system. If there´s more than one, describe it one by one.
text
C0026860 (UMLS CUI [1])
Start date
Item
Start date of your musculoskeletal problem
date
C0011008 (UMLS CUI [1])
End date
Item
End date of your musculoskeletal problem
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Integumentary system
Item
Have you experienced problems with your skin or your breast in the past?
boolean
C0037267 (UMLS CUI [1])
Integumentary system
Item
Please specify the problems with your integumentary system you experienced. If there´s more than one, describe it one by one.
text
C0037267 (UMLS CUI [1])
Start date
Item
Start date of your problems with the integumentary system
date
C0011008 (UMLS CUI [1])
End date
Item
End date of your problems with the integumentary system
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Neurological problems
Item
Have you experienced neurological problems with in the past?
boolean
C0221571 (UMLS CUI [1])
Neurological problems
Item
Please specify the neurological problems you experienced. If there´s more than one, please describe it one be one.
text
C0221571 (UMLS CUI [1])
Start date
Item
Start date of the neurological problem
date
C0011008 (UMLS CUI [1])
End date
Item
End date of the neurological problem
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Mental disorders
Item
Have you experienced problems with your mental health in the past?
boolean
C0004936 (UMLS CUI [1])
Mental disorders
Item
Please specify the mental problem you experienced. If there´s more than one, please describe it one by one.
text
C0004936 (UMLS CUI [1])
Start date
Item
Start date of your mental illness
date
C0011008 (UMLS CUI [1])
End date
Item
End date of your mental illness
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Endocrine system diseases
Item
Have you experienced problems with your endocrine system in the past?
boolean
C0014130 (UMLS CUI [1])
Endocrine system diseases
Item
Please specify the endocrine system disease you experienced. If there´s more than one,please describe it one by one
text
C0014130 (UMLS CUI [1])
Start date
Item
Start date of the endocrine system disease
date
C0011008 (UMLS CUI [1])
End date
Item
End date of the endocrine system disease
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Hematological disease
Item
Have you experienced problems with diseases of blood and bloodforming organs in the past?
boolean
C0018939 (UMLS CUI [1])
Hematological disease
Item
Please specify the disease of blood and bloodforming organs you experienced. If there´s more than one,please describe it one by one.
text
C0018939 (UMLS CUI [1])
Start date
Item
Start date of your problems with the blood or bloodforming system
date
C0011008 (UMLS CUI [1])
End date
Item
End date of the problems with your blood or bloodforming system
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Lymphatic disease
Item
Have you experienced problems with lymphatic diseases in the past?
boolean
C0024228 (UMLS CUI [1])
Lymphatic disease
Item
Please specify the problem with your lymphatic system you experienced. If there´s more than one, please describe it one by one
text
C0024228 (UMLS CUI [1])
Start date
Item
Start date of your problems with the lymphatic system
date
C0011008 (UMLS CUI [1])
End date
Item
End date of your problems with the lymphatic system
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Allergies
Item
Have you experienced problems with allergies in the past?
boolean
C0020517 (UMLS CUI [1])
Allergies
Item
Please specify the allergy you experienced. If there´s more than one, please describe it one by one.
text
C0020517 (UMLS CUI [1])
Start date
Item
Start date of the allergy
date
C0011008 (UMLS CUI [1])
End date
Item
End date of the allergy
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the allergy persistent?
boolean
C0549178 (UMLS CUI [1])
Immunologic diseases
Item
Have you experienced problems with your immune system in the past?
boolean
C0021053 (UMLS CUI [1])
Immunologic diseases
Item
Please specify the problem with your immune system you experienced. If there´s more than one, please desribe it one by one
text
C0021053 (UMLS CUI [1])
Start date
Item
Start date of your problems with the immune system
date
C0011008 (UMLS CUI [1])
End date
Item
End date of the problems with your immune system
date
C0011008 (UMLS CUI [1])
Ongoing
Item
Is the symptom persistent?
boolean
C0549178 (UMLS CUI [1])
Item
Cardiac condition
integer
C0262926 (UMLS CUI [1,1])
C0007222 (UMLS CUI [1,2])
Code List
Cardiac condition
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Arrhythmia
integer
C0262926 (UMLS CUI [1,1])
C0007222 (UMLS CUI [1,2])
Code List
Arrhythmia
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
If cardiac arrhythmia is present,please specify type
integer
C0003811 (UMLS CUI [1])
Code List
If cardiac arrhythmia is present,please specify type
CL Item
Atrial fibrillation (1)
CL Item
Atrial flutter (2)
CL Item
Supraventricular tachycardia (3)
CL Item
Ventricular tachycardia (4)
CL Item
Bradycardia (5)
CL Item
Other, specify (6)
Arrhythmia
Item
If other Type of cardiac arrhythmia, please specify
text
C0003811 (UMLS CUI [1])
Arrhythmia
Item
Type of cardiac arrhythmia is unknown
boolean
C0003811 (UMLS CUI [1])
Item
Heart failure
integer
C0262926 (UMLS CUI [1,1])
C0007222 (UMLS CUI [1,2])
Code List
Heart failure
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Ischemia heart disease
integer
C0262926 (UMLS CUI [1,1])
C0007222 (UMLS CUI [1,2])
Code List
Ischemia heart disease
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Abnormal echocardiogram
integer
C0262926 (UMLS CUI [1,1])
C0007222 (UMLS CUI [1,2])
Code List
Abnormal echocardiogram
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
If abnormal echocardiogram,LVH?
integer
C0476369 (UMLS CUI [1])
Code List
If abnormal echocardiogram,LVH?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
If abnormal echocardiogram: decreased LV function
integer
C0476369 (UMLS CUI [1])
Code List
If abnormal echocardiogram: decreased LV function
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Abnormal echocardiogram
Item
If other abnormal echocardiogram, please specify
text
C0476369 (UMLS CUI [1])
Item
Cardiac surgery/mechanical intervention
integer
C0262926 (UMLS CUI [1,1])
C0007222 (UMLS CUI [1,2])
Code List
Cardiac surgery/mechanical intervention
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
If Cardiac surgery/mechanical intervention,please specify
integer
C0018821 (UMLS CUI [1,1])
C0581396 (UMLS CUI [1,2])
Code List
If Cardiac surgery/mechanical intervention,please specify
CL Item
Coronary artery bypass graft (CABG) (1)
CL Item
Cardiac valve surgery, including non-open surgery (i.e., percutaneous valvuloplasty) (2)
CL Item
Pacemaker (3)
CL Item
Implantable cardic defibrillator  (4)
CL Item
Other, specify (5)
Cardiac surgery/mechanical intervention
Item
Date of most recent surgery
date
C0018821 (UMLS CUI [1,1])
C0581396 (UMLS CUI [1,2])
Item
Congenital heart disease
integer
C0262926 (UMLS CUI [1,1])
C0007222 (UMLS CUI [1,2])
Code List
Congenital heart disease
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Diabetes mellitus (type I or type II)?
integer
C0262926 (UMLS CUI [1,1])
C0014130 (UMLS CUI [1,2])
Code List
Diabetes mellitus (type I or type II)?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Diabetes mellitus:If yes
integer
C0011849 (UMLS CUI [1])
Code List
Diabetes mellitus:If yes
CL Item
Type I (1)
CL Item
Type II (2)
Diabetes mellitus age at diagnosis
Item
Diabetes mellitus age at diagnosis
integer
C0011849 (UMLS CUI [1,1])
C1828181 (UMLS CUI [1,2])
Item
Diabetes mellitus complications
integer
C0011849 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
Code List
Diabetes mellitus complications
CL Item
Nephropathy (1)
CL Item
Neuropathy (2)
CL Item
Retinopathy (3)
CL Item
Other, specify (4)
CL Item
None (5)
Diabetes mellitus complications
Item
Diabetes mellitus: other complications,please specify
text
C0011849 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
Item
Indicate the treatments taken for diabetes
integer
C0011849 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Code List
Indicate the treatments taken for diabetes
CL Item
Diet (1)
CL Item
Oral medication (2)
CL Item
Insulin (3)
CL Item
None (4)
Item
Clinical depression within the past year
integer
C0262926 (UMLS CUI [1,1])
C0004936 (UMLS CUI [1,2])
Code List
Clinical depression within the past year
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Depressive disorder diagnosis
integer
C0011581 (UMLS CUI [1])
Code List
Depressive disorder diagnosis
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Age at diagnosis/onset
Item
Age at which participant/subject experienced first depressive episode or was first diagnosed with depression, whichever is earlier (years):
integer
C1828181 (UMLS CUI [1,1])
C0150907 (UMLS CUI [1,2])
Item
Clinical anxiety within the past year
integer
C0262926 (UMLS CUI [1,1])
C0004936 (UMLS CUI [1,2])
Code List
Clinical anxiety within the past year
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Anxiety disorder diagnosis
integer
C0003469 (UMLS CUI [1])
Code List
Anxiety disorder diagnosis
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Psychotic disorder diagnosis
integer
C0262926 (UMLS CUI [1,1])
C0004936 (UMLS CUI [1,2])
Code List
Psychotic disorder diagnosis
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Psychotic disorder diagnosis: If Yes, choose all disorders that apply
integer
C0033975 (UMLS CUI [1])
Code List
Psychotic disorder diagnosis: If Yes, choose all disorders that apply
CL Item
Schizophrenia (1)
CL Item
Bipolar disorder (2)
CL Item
Depression with psychotic features (3)
CL Item
Dementia with psychotic ideation (4)
CL Item
Other, specify (5)
Psychotic disorder diagnosis
Item
If other psychotic disorder diagnosis,please specify
text
C0033975 (UMLS CUI [1])
Item
Cancer
integer
C0262926 (UMLS CUI [1,1])
C0205395 (UMLS CUI [1,2])
Code List
Cancer
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Cancer diagnosis
Item
Cancer diagnosis:if yes, please specify type of cancer diagnosed with
text
C0920688 (UMLS CUI [1])
Item
Cancer diagnosis: treated with head or neck radiation?
integer
C0920688 (UMLS CUI [1])
Code List
Cancer diagnosis: treated with head or neck radiation?
CL Item
Yes (1)
CL Item
No/Not documented (2)
CL Item
Unknown (3)
Item Group
Pediatric Developmental History
Item
Does/did the participant/ subject have ADHD/ADD?
integer
C1263846 (UMLS CUI [1,1])
C0041671 (UMLS CUI [1,2])
Code List
Does/did the participant/ subject have ADHD/ADD?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Does/did the participant/ subject have delayed acquisition of language/cognitive milestones, diagnosed by a pediatrician or neurologist?
integer
C0023012 (UMLS CUI [1,1])
C1959866 (UMLS CUI [1,2])
Code List
Does/did the participant/ subject have delayed acquisition of language/cognitive milestones, diagnosed by a pediatrician or neurologist?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Does/did the participant/ subject have delayed acquisition of motor milestones, diagnosed by a pediatrician or neurologist?
integer
C1854301 (UMLS CUI [1])
Code List
Does/did the participant/ subject have delayed acquisition of motor milestones, diagnosed by a pediatrician or neurologist?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Does/did the participant/ subject have social delay?
integer
C3840125 (UMLS CUI [1])
Code List
Does/did the participant/ subject have social delay?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Does/did the participant/ subject have hand preference before 12 months of age?
integer
C0422881 (UMLS CUI [1,1])
C0517081 (UMLS CUI [1,2])
Code List
Does/did the participant/ subject have hand preference before 12 months of age?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Does/did the participant/ subject have abnormality of the gait noted by parents or a physician at the time the child began walking?
integer
C0575081 (UMLS CUI [1,1])
C0599196 (UMLS CUI [1,2])
Code List
Does/did the participant/ subject have abnormality of the gait noted by parents or a physician at the time the child began walking?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Does/did the participant/ subject have special education?
integer
C0013649 (UMLS CUI [1])
Code List
Does/did the participant/ subject have special education?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
School placement
integer
C0455002 (UMLS CUI [1])
Code List
School placement
CL Item
Full-time regular education without aide (1)
CL Item
Full-time regular education with one to one aide (2)
CL Item
Regular education with pull-out for certain areas (3)
CL Item
Special education w/ minimal inclusion (e.g., lunch) (4)
CL Item
Full-time special education with no inclusion (5)
CL Item
Special (MR/DD) school (6)
CL Item
Home-school (7)
CL Item
Not in school (8)
CL Item
Other, specify (9)
School placement
Item
If other school placement, please specify
text
C0455002 (UMLS CUI [1])
Item
Does/did the participant/subject receive any specialized therapies and services?
integer
C0013649 (UMLS CUI [1])
Code List
Does/did the participant/subject receive any specialized therapies and services?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Specialized therapies and services
Item
Did the patient receive speech therapy?
boolean
C0037831 (UMLS CUI [1])
Specialized therapies and services
Item
Did the patient receive Occupational Therapy?
boolean
C1318464 (UMLS CUI [1])
Specialized therapies and services
Item
Did the patient receive Physical Therapy?
boolean
C0949766 (UMLS CUI [1])
Specialized therapies and services
Item
Did the patient receive Sensory Integration
boolean
C0695560 (UMLS CUI [1])
Specialized therapies and services
Item
Did the patient receive Social Skills Training
boolean
C0150777 (UMLS CUI [1])
Specialized therapies and services
Item
Did the patient receive Adaptive Physical Education
boolean
C0031805 (UMLS CUI [1,1])
C0814282 (UMLS CUI [1,2])
Specialized therapies and services
Item
Did the patient receive Behavior Support Plan
boolean
C0150143 (UMLS CUI [1])
Specialized therapies and services
Item
Did the patient receive Crisis Management Plan
boolean
C1443432 (UMLS CUI [1])
Specialized therapies and services
Item
If patient received other specialized therapies and services, please specify
text
C0013649 (UMLS CUI [1])
Item Group
Pregnancy History
Item
Does participant/ subject have a history of prior pregnancy? (both term and not to term)
integer
C0032967 (UMLS CUI [1])
Code List
Does participant/ subject have a history of prior pregnancy? (both term and not to term)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Number of pregnancies
Item
Number of pregnancies
integer
C0422807 (UMLS CUI [1])
Date of last delivery or miscarriage
Item
Year of last delivery or miscarriage
integer
C3262384 (UMLS CUI [1,1])
C0000786 (UMLS CUI [1,2])
Number of miscarriages
Item
Number of miscarriages
integer
C0429916 (UMLS CUI [1])
Item Group
Prenatal and Perinatal History
Mother’s age at the time she gave birth
Item
Mother’s age at the time she gave birth to the participant/subject
integer
C2136466 (UMLS CUI [1])
Number of live born children
Item
Number of live born children the participant/subject’s mother has delivered
integer
C0425981 (UMLS CUI [1])
Number of pregnancies
Item
Total number of times the participant/subject’s mother has been pregnant, regardless of whether these pregnancies were carried to term
integer
C3812254 (UMLS CUI [1])
Item
Previous pregnancy loss
integer
C0687675 (UMLS CUI [1])
Code List
Previous pregnancy loss
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Preeclampsia during pregnancy of the participant/subject?
integer
C0032914 (UMLS CUI [1])
Code List
Preeclampsia during pregnancy of the participant/subject?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Another hypertensive disorder during pregnancy of the participant/subject?
integer
C0020538 (UMLS CUI [1,1])
C0032962 (UMLS CUI [1,2])
Code List
Another hypertensive disorder during pregnancy of the participant/subject?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Oligohydramnios
integer
C0079924 (UMLS CUI [1])
Code List
Oligohydramnios
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Gestational onset diabetes during pregnancy of the participant/subject?
integer
C0085207 (UMLS CUI [1])
Code List
Gestational onset diabetes during pregnancy of the participant/subject?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Fever during delivery of participant/subject?
integer
C1389671 (UMLS CUI [1])
Code List
Fever during delivery of participant/subject?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Prolonged rupture of membraines (i.e., > 24 hours) during delivery of participant/subject?
integer
C0405050 (UMLS CUI [1])
Code List
Prolonged rupture of membraines (i.e., > 24 hours) during delivery of participant/subject?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Second stage of labor more than two hours?
integer
C0157266 (UMLS CUI [1])
Code List
Second stage of labor more than two hours?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Meconium staining of the amniotic fluid?
integer
C0426209 (UMLS CUI [1])
Code List
Meconium staining of the amniotic fluid?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Birth weight
Item
Birth weight
float
C0005612 (UMLS CUI [1])
Gestational Age at Birth
Item
Gestational Age at Birth
float
C0456129 (UMLS CUI [1])
Item
APGAR 5 Minute score
integer
C0003533 (UMLS CUI [1])
Code List
APGAR 5 Minute score
CL Item
0 (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
10 (10)
Item
APGAR 10 Minute score
integer
C0003533 (UMLS CUI [1])
Code List
APGAR 10 Minute score
CL Item
0 (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
10 (10)
Item
Mode of delivery of the neonate
integer
C1555567 (UMLS CUI [1])
Code List
Mode of delivery of the neonate
CL Item
Spontaneous  (1)
CL Item
Induced  (2)
CL Item
Unknown (3)
Item
Route of delivery of the neonate
integer
C3656414 (UMLS CUI [1])
Code List
Route of delivery of the neonate
CL Item
Vaginal (1)
CL Item
Caesarean (2)
Item
If Caesarean section, timing of procedure
integer
C0007876 (UMLS CUI [1])
Code List
If Caesarean section, timing of procedure
CL Item
Emergency  (1)
CL Item
Elective  (2)
CL Item
Unknown (3)
Item
Delivery modality type of the neonate
integer
C2114311 (UMLS CUI [1])
Code List
Delivery modality type of the neonate
CL Item
Breech  (1)
CL Item
Cephalic  (2)
CL Item
Unknown (3)
Item
Instrument(s) used to assist with the delivery of the participant/subject?
integer
C0877233 (UMLS CUI [1])
Code List
Instrument(s) used to assist with the delivery of the participant/subject?
CL Item
None  (1)
CL Item
Vaccum  (2)
CL Item
Forceps  (3)
CL Item
Vaccum and Forceps  (4)
CL Item
Unknown (5)
Item
Resuscitation of the participant/subject at delivery?
integer
C0374651 (UMLS CUI [1])
Code List
Resuscitation of the participant/subject at delivery?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Intravascular catheter placed in newborn period?
integer
C0179777 (UMLS CUI [1])
Code List
Intravascular catheter placed in newborn period?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Placenta sent for pathology?
integer
C0032043 (UMLS CUI [1,1])
C0444061 (UMLS CUI [1,2])
Code List
Placenta sent for pathology?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Placental abnormalities?
integer
C1306893 (UMLS CUI [1])
Code List
Placental abnormalities?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Cord abnormalities?
integer
C0266785 (UMLS CUI [1])
Code List
Cord abnormalities?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Fetal heart rate abnormality?
integer
C0695245 (UMLS CUI [1])
Code List
Fetal heart rate abnormality?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Decreased fetal movement?
integer
C0235659 (UMLS CUI [1])
Code List
Decreased fetal movement?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Chorioamnionitis
integer
C0008495 (UMLS CUI [1])
Code List
Chorioamnionitis
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Other pregnancy/delivery risk factors
integer
C0242786 (UMLS CUI [1,1])
C1171158 (UMLS CUI [1,2])
Code List
Other pregnancy/delivery risk factors
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)

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