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42263

Beschreibung

Study Title: LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients https://leoss.net Study Indication: COVID-19 Date: 19.03.2021 Published with permission by Prof. Dr. med. J.-J. Vehreschild. LEOSS, a multi-center cohort study, has been created to get more in-depth knowledge about the epidemiology and clinical course of patients infected with SARS-CoV-2. Initiated by the ESCMID Emerging Infections Task Force (EITaF) and the German Infectious Disease Society, and supported by all German Centers for Health Research (DZG), LEOSS has developed into an international network of contributors. Via an integrative research approach with anonymous recruitment and collection of routine data in an open science context, LEOSS is building a uniform clinical dataset and providing real-time analyses. For more information feel free to explore https://leoss.net/. . This document is for the rheumatological sub-cohort. All questions refer to the day of diagnosis (diagnosis means first positive virus result). Please note that only cases with known outcome are collected at LEOSS! If a text field can't be filled out, note 'ND' (for not determined)

Link

https://leoss.net

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Versionen (3)
  1. 05.11.20 05.11.20 -
  2. 27.11.20 27.11.20 -
  3. 24.04.21 24.04.21 -
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LEOSS

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24. April 2021

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    LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients

    Englisch

    Rheumatological sub-cohort

    1 Formulare  
    Rheumatic disease
    Beschreibung

    Rheumatic disease

    Alias
    UMLS CUI-1
    C3495832
    Adult-onset Still's disease
    Beschreibung

    Adult-onset Still's disease

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0085253
    Behçet's disease
    Beschreibung

    Behçet's disease

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0004943
    Dermatomyositis
    Beschreibung

    Dermatomyositis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0011633
    Eosinophilic granulomatosis with polyangiitis (EGPA)
    Beschreibung

    Eosinophilic granulomatosis with polyangiitis (EGPA)

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0008728
    Familial mediterranean fever
    Beschreibung

    Familial mediterranean fever

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0031069
    Giant cell arteritis (including temporal arteritis)
    Beschreibung

    Giant cell arteritis (including temporal arteritis)

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0039483
    Gout
    Beschreibung

    Gout

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0018099
    Granulomatosis with polyangiitis (GPA)
    Beschreibung

    Granulomatosis with polyangiitis (GPA)

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C3495801
    IgA vasculitis (Purpura Schönlein Hennoch)
    Beschreibung

    IgA vasculitis (Purpura Schönlein Hennoch)

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0034152
    Juvenile idiopathic arthritis
    Beschreibung

    Juvenile idiopathic arthritis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C3495559
    Leucocytoclastic vasculitis 
    Beschreibung

    Leucocytoclastic vasculitis 

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C2973529
    Microscopic polyangiitis
    Beschreibung

    Microscopic polyangiitis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C2347126
    Mixed connective tiussue disease
    Beschreibung

    Mixed connective tiussue disease

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0026272
    Polyarteritis nodosa
    Beschreibung

    Polyarteritis nodosa

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0031036
    Polymyalgia rheumatica
    Beschreibung

    Polymyalgia rheumatica

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0032533
    Polymyositis
    Beschreibung

    Polymyositis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0085655
    Psoriatic arthritis
    Beschreibung

    Psoriatic arthritis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0003872
    Relapsing polychondritis
    Beschreibung

    Relapsing polychondritis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0032453
    Rheumatoid arthritis
    Beschreibung

    Rheumatoid arthritis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0003873
    Sarcoidosis
    Beschreibung

    Sarcoidosis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0036202
    Sjögren's syndrome
    Beschreibung

    Sjögren's syndrome

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C1527336
    Spondyloarthritis (including nr-axSpA and axSpA)
    Beschreibung

    Spondyloarthritis (including nr-axSpA and axSpA)

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0949690
    UMLS CUI [2]
    C3889038
    UMLS CUI [3]
    C3203547
    Systemic lupus erythematosus
    Beschreibung

    Systemic lupus erythematosus

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0024141
    Systemic sclerosis
    Beschreibung

    Systemic sclerosis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0036421
    Takayasu arteritis
    Beschreibung

    Takayasu arteritis

    Datentyp

    boolean

    Alias
    UMLS CUI [1]
    C0039263
    Other rheumatic disease
    Beschreibung

    Other rheumatic disorder

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0205394
    UMLS CUI [1,2]
    C3495832
    Indicate other rheumatic disease
    Beschreibung

    Indicate other rheumatic disorder

    Datentyp

    text

    Alias
    UMLS CUI [1,1]
    C0205394
    UMLS CUI [1,2]
    C3495832
    UMLS CUI [1,3]
    C1521902
    Unknown
    Beschreibung

    Rheumatic disorder, unknown

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0439673
    UMLS CUI [1,2]
    C3495832
    Organ manifestations
    Beschreibung

    Organ manifestations

    Alias
    UMLS CUI-1
    C1280464
    UMLS CUI-2
    C0678852
    UMLS CUI-3
    C3495832
    Arthritis
    Beschreibung

    Rheumatic disorder: Arthritis

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0003864
    UMLS CUI [1,2]
    C3495832
    Central nervous system (CNS)
    Beschreibung

    Rheumatic disorder: Central nervous system (CNS)

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C3714787
    UMLS CUI [1,2]
    C3495832
    Ear, nose, throat (ENT)
    Beschreibung

    Rheumatic disorder: Ear, nose, throat (ENT)

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0150934
    UMLS CUI [1,2]
    C3495832
    Gastrointestinal
    Beschreibung

    Rheumatic disorder: Gastrointestinal

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0521362
    UMLS CUI [1,2]
    C3495832
    Heart
    Beschreibung

    Rheumatic disorder: Heart

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0018787
    UMLS CUI [1,2]
    C3495832
    Oesophagus
    Beschreibung

    Rheumatic disorder: Oesophagus

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0014876
    UMLS CUI [1,2]
    C3495832
    Peripheral nervous system (PNS)
    Beschreibung

    Rheumatic disorder: Peripheral nervous system (PNS)

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0206417
    UMLS CUI [1,2]
    C3495832
    Pulmonal
    Beschreibung

    Rheumatic disorder: Pulmonal

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0035237
    UMLS CUI [1,2]
    C3495832
    Raynaud's phenomenon
    Beschreibung

    Rheumatic disorder: Raynaud's phenomenon

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0034735
    UMLS CUI [1,2]
    C3495832
    Renal
    Beschreibung

    Rheumatic disorder: Renal

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0022646
    UMLS CUI [1,2]
    C3495832
    Skin
    Beschreibung

    Rheumatic disorder: Skin

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C1123023
    UMLS CUI [1,2]
    C3495832
    Other organ manifestation
    Beschreibung

    Rheumatic disorder: Other organ manifestation

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0205394
    UMLS CUI [1,2]
    C1280464
    UMLS CUI [1,3]
    C0678852
    UMLS CUI [1,4]
    C3495832
    Indicate other organ manifestation
    Beschreibung

    Rheumatic disorder: Indicate other organ manifestation

    Datentyp

    text

    Alias
    UMLS CUI [1,1]
    C0205394
    UMLS CUI [1,2]
    C1521902
    UMLS CUI [1,3]
    C1280464
    UMLS CUI [1,4]
    C0678852
    UMLS CUI [1,5]
    C3495832
    Unknown
    Beschreibung

    Rheumatic disorder: Organ manifestation, unknown

    Datentyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0439673
    UMLS CUI [1,2]
    C1280464
    UMLS CUI [1,3]
    C0678852
    UMLS CUI [1,4]
    C3495832
    Disease duration
    Beschreibung

    Disease duration

    Alias
    UMLS CUI-1
    C3495832
    UMLS CUI-2
    C0449238
    Disease duration
    Beschreibung

    Indicate disease duration before diagnosis of SARS-CoV-2.

    Datentyp

    integer

    Alias
    UMLS CUI [1,1]
    C3495832
    UMLS CUI [1,2]
    C0449238
    Is data entry for this section finished?
    Beschreibung

    Is data entry for this section finished?

    Alias
    UMLS CUI-1
    C4684556
    UMLS CUI-2
    C1828479
    UMLS CUI-3
    C0205197
    Is data entry for this section finished?
    Beschreibung

    Is data entry for this section finished?

    Datentyp

    integer

    Alias
    UMLS CUI [1,1]
    C4684556
    UMLS CUI [1,2]
    C1828479
    UMLS CUI [1,3]
    C0205197
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    Ähnliche Modelle

    Rheumatological sub-cohort

    1 Formulare
    Name
    Typ
    Description | Question | Decode (Coded Value)
    Datentyp
    Alias
    Item Group
    Rheumatic disease
    C3495832 (UMLS CUI-1)
    Adult-onset Still's disease
    Item
    Adult-onset Still's disease
    boolean
    C0085253 (UMLS CUI [1])
    Behçet's disease
    Item
    Behçet's disease
    boolean
    C0004943 (UMLS CUI [1])
    Dermatomyositis
    Item
    Dermatomyositis
    boolean
    C0011633 (UMLS CUI [1])
    Eosinophilic granulomatosis with polyangiitis (EGPA)
    Item
    Eosinophilic granulomatosis with polyangiitis (EGPA)
    boolean
    C0008728 (UMLS CUI [1])
    Familial mediterranean fever
    Item
    Familial mediterranean fever
    boolean
    C0031069 (UMLS CUI [1])
    Giant cell arteritis (including temporal arteritis)
    Item
    Giant cell arteritis (including temporal arteritis)
    boolean
    C0039483 (UMLS CUI [1])
    Gout
    Item
    Gout
    boolean
    C0018099 (UMLS CUI [1])
    Granulomatosis with polyangiitis (GPA)
    Item
    Granulomatosis with polyangiitis (GPA)
    boolean
    C3495801 (UMLS CUI [1])
    IgA vasculitis (Purpura Schönlein Hennoch)
    Item
    IgA vasculitis (Purpura Schönlein Hennoch)
    boolean
    C0034152 (UMLS CUI [1])
    Juvenile idiopathic arthritis
    Item
    Juvenile idiopathic arthritis
    boolean
    C3495559 (UMLS CUI [1])
    Leucocytoclastic vasculitis 
    Item
    Leucocytoclastic vasculitis 
    boolean
    C2973529 (UMLS CUI [1])
    Microscopic polyangiitis
    Item
    Microscopic polyangiitis
    boolean
    C2347126 (UMLS CUI [1])
    Mixed connective tiussue disease
    Item
    Mixed connective tiussue disease
    boolean
    C0026272 (UMLS CUI [1])
    Polyarteritis nodosa
    Item
    Polyarteritis nodosa
    boolean
    C0031036 (UMLS CUI [1])
    Polymyalgia rheumatica
    Item
    Polymyalgia rheumatica
    boolean
    C0032533 (UMLS CUI [1])
    Polymyositis
    Item
    Polymyositis
    boolean
    C0085655 (UMLS CUI [1])
    Psoriatic arthritis
    Item
    Psoriatic arthritis
    boolean
    C0003872 (UMLS CUI [1])
    Relapsing polychondritis
    Item
    Relapsing polychondritis
    boolean
    C0032453 (UMLS CUI [1])
    Rheumatoid arthritis
    Item
    Rheumatoid arthritis
    boolean
    C0003873 (UMLS CUI [1])
    Sarcoidosis
    Item
    Sarcoidosis
    boolean
    C0036202 (UMLS CUI [1])
    Sjögren's syndrome
    Item
    Sjögren's syndrome
    boolean
    C1527336 (UMLS CUI [1])
    Spondyloarthritis (including nr-axSpA and axSpA)
    Item
    Spondyloarthritis (including nr-axSpA and axSpA)
    boolean
    C0949690 (UMLS CUI [1])
    C3889038 (UMLS CUI [2])
    C3203547 (UMLS CUI [3])
    Systemic lupus erythematosus
    Item
    Systemic lupus erythematosus
    boolean
    C0024141 (UMLS CUI [1])
    Systemic sclerosis
    Item
    Systemic sclerosis
    boolean
    C0036421 (UMLS CUI [1])
    Takayasu arteritis
    Item
    Takayasu arteritis
    boolean
    C0039263 (UMLS CUI [1])
    Other rheumatic disorder
    Item
    Other rheumatic disease
    boolean
    C0205394 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Indicate other rheumatic disorder
    Item
    Indicate other rheumatic disease
    text
    C0205394 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    C1521902 (UMLS CUI [1,3])
    Rheumatic disorder, unknown
    Item
    Unknown
    boolean
    C0439673 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Item Group
    Organ manifestations
    C1280464 (UMLS CUI-1)
    C0678852 (UMLS CUI-2)
    C3495832 (UMLS CUI-3)
    Rheumatic disorder: Arthritis
    Item
    Arthritis
    boolean
    C0003864 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Central nervous system (CNS)
    Item
    Central nervous system (CNS)
    boolean
    C3714787 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Ear, nose, throat (ENT)
    Item
    Ear, nose, throat (ENT)
    boolean
    C0150934 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Gastrointestinal
    Item
    Gastrointestinal
    boolean
    C0521362 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Heart
    Item
    Heart
    boolean
    C0018787 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Oesophagus
    Item
    Oesophagus
    boolean
    C0014876 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Peripheral nervous system (PNS)
    Item
    Peripheral nervous system (PNS)
    boolean
    C0206417 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Pulmonal
    Item
    Pulmonal
    boolean
    C0035237 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Raynaud's phenomenon
    Item
    Raynaud's phenomenon
    boolean
    C0034735 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Renal
    Item
    Renal
    boolean
    C0022646 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Skin
    Item
    Skin
    boolean
    C1123023 (UMLS CUI [1,1])
    C3495832 (UMLS CUI [1,2])
    Rheumatic disorder: Other organ manifestation
    Item
    Other organ manifestation
    boolean
    C0205394 (UMLS CUI [1,1])
    C1280464 (UMLS CUI [1,2])
    C0678852 (UMLS CUI [1,3])
    C3495832 (UMLS CUI [1,4])
    Rheumatic disorder: Indicate other organ manifestation
    Item
    Indicate other organ manifestation
    text
    C0205394 (UMLS CUI [1,1])
    C1521902 (UMLS CUI [1,2])
    C1280464 (UMLS CUI [1,3])
    C0678852 (UMLS CUI [1,4])
    C3495832 (UMLS CUI [1,5])
    Rheumatic disorder: Organ manifestation, unknown
    Item
    Unknown
    boolean
    C0439673 (UMLS CUI [1,1])
    C1280464 (UMLS CUI [1,2])
    C0678852 (UMLS CUI [1,3])
    C3495832 (UMLS CUI [1,4])
    Item Group
    Disease duration
    C3495832 (UMLS CUI-1)
    C0449238 (UMLS CUI-2)
    Item
    Disease duration
    integer
    C3495832 (UMLS CUI [1,1])
    C0449238 (UMLS CUI [1,2])
    Disease duration
    Code List
    Disease duration
    CL Item
    <2 years (1)
    CL Item
    2 - 5 years (2)
    CL Item
    6 - 10 years (3)
    CL Item
    11 - 20 years (4)
    CL Item
    Unknown (5)
    Item Group
    Is data entry for this section finished?
    C4684556 (UMLS CUI-1)
    C1828479 (UMLS CUI-2)
    C0205197 (UMLS CUI-3)
    Item
    Is data entry for this section finished?
    integer
    C4684556 (UMLS CUI [1,1])
    C1828479 (UMLS CUI [1,2])
    C0205197 (UMLS CUI [1,3])
    BL_Completed
    Code List
    Is data entry for this section finished?
    CL Item
    Yes (1)
    CL Item
    No (2)
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