ID

42263

Beschreibung

Study Title: LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients https://leoss.net Study Indication: COVID-19 Date: 19.03.2021 Published with permission by Prof. Dr. med. J.-J. Vehreschild. LEOSS, a multi-center cohort study, has been created to get more in-depth knowledge about the epidemiology and clinical course of patients infected with SARS-CoV-2. Initiated by the ESCMID Emerging Infections Task Force (EITaF) and the German Infectious Disease Society, and supported by all German Centers for Health Research (DZG), LEOSS has developed into an international network of contributors. Via an integrative research approach with anonymous recruitment and collection of routine data in an open science context, LEOSS is building a uniform clinical dataset and providing real-time analyses. For more information feel free to explore https://leoss.net/. . This document is for the rheumatological sub-cohort. All questions refer to the day of diagnosis (diagnosis means first positive virus result). Please note that only cases with known outcome are collected at LEOSS! If a text field can't be filled out, note 'ND' (for not determined)

Link

https://leoss.net

Stichworte

Versionen (3)
  1. 05.11.20 05.11.20 -
  2. 27.11.20 27.11.20 -
  3. 24.04.21 24.04.21 -
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LEOSS

Hochgeladen am

24. April 2021

DOI

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LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients

Englisch

Rheumatological sub-cohort

1 Formulare  
Rheumatic disease
Beschreibung

Rheumatic disease

Alias
UMLS CUI-1
C3495832
Adult-onset Still's disease
Beschreibung

Adult-onset Still's disease

Datentyp

boolean

Alias
UMLS CUI [1]
C0085253
Behçet's disease
Beschreibung

Behçet's disease

Datentyp

boolean

Alias
UMLS CUI [1]
C0004943
Dermatomyositis
Beschreibung

Dermatomyositis

Datentyp

boolean

Alias
UMLS CUI [1]
C0011633
Eosinophilic granulomatosis with polyangiitis (EGPA)
Beschreibung

Eosinophilic granulomatosis with polyangiitis (EGPA)

Datentyp

boolean

Alias
UMLS CUI [1]
C0008728
Familial mediterranean fever
Beschreibung

Familial mediterranean fever

Datentyp

boolean

Alias
UMLS CUI [1]
C0031069
Giant cell arteritis (including temporal arteritis)
Beschreibung

Giant cell arteritis (including temporal arteritis)

Datentyp

boolean

Alias
UMLS CUI [1]
C0039483
Gout
Beschreibung

Gout

Datentyp

boolean

Alias
UMLS CUI [1]
C0018099
Granulomatosis with polyangiitis (GPA)
Beschreibung

Granulomatosis with polyangiitis (GPA)

Datentyp

boolean

Alias
UMLS CUI [1]
C3495801
IgA vasculitis (Purpura Schönlein Hennoch)
Beschreibung

IgA vasculitis (Purpura Schönlein Hennoch)

Datentyp

boolean

Alias
UMLS CUI [1]
C0034152
Juvenile idiopathic arthritis
Beschreibung

Juvenile idiopathic arthritis

Datentyp

boolean

Alias
UMLS CUI [1]
C3495559
Leucocytoclastic vasculitis 
Beschreibung

Leucocytoclastic vasculitis 

Datentyp

boolean

Alias
UMLS CUI [1]
C2973529
Microscopic polyangiitis
Beschreibung

Microscopic polyangiitis

Datentyp

boolean

Alias
UMLS CUI [1]
C2347126
Mixed connective tiussue disease
Beschreibung

Mixed connective tiussue disease

Datentyp

boolean

Alias
UMLS CUI [1]
C0026272
Polyarteritis nodosa
Beschreibung

Polyarteritis nodosa

Datentyp

boolean

Alias
UMLS CUI [1]
C0031036
Polymyalgia rheumatica
Beschreibung

Polymyalgia rheumatica

Datentyp

boolean

Alias
UMLS CUI [1]
C0032533
Polymyositis
Beschreibung

Polymyositis

Datentyp

boolean

Alias
UMLS CUI [1]
C0085655
Psoriatic arthritis
Beschreibung

Psoriatic arthritis

Datentyp

boolean

Alias
UMLS CUI [1]
C0003872
Relapsing polychondritis
Beschreibung

Relapsing polychondritis

Datentyp

boolean

Alias
UMLS CUI [1]
C0032453
Rheumatoid arthritis
Beschreibung

Rheumatoid arthritis

Datentyp

boolean

Alias
UMLS CUI [1]
C0003873
Sarcoidosis
Beschreibung

Sarcoidosis

Datentyp

boolean

Alias
UMLS CUI [1]
C0036202
Sjögren's syndrome
Beschreibung

Sjögren's syndrome

Datentyp

boolean

Alias
UMLS CUI [1]
C1527336
Spondyloarthritis (including nr-axSpA and axSpA)
Beschreibung

Spondyloarthritis (including nr-axSpA and axSpA)

Datentyp

boolean

Alias
UMLS CUI [1]
C0949690
UMLS CUI [2]
C3889038
UMLS CUI [3]
C3203547
Systemic lupus erythematosus
Beschreibung

Systemic lupus erythematosus

Datentyp

boolean

Alias
UMLS CUI [1]
C0024141
Systemic sclerosis
Beschreibung

Systemic sclerosis

Datentyp

boolean

Alias
UMLS CUI [1]
C0036421
Takayasu arteritis
Beschreibung

Takayasu arteritis

Datentyp

boolean

Alias
UMLS CUI [1]
C0039263
Other rheumatic disease
Beschreibung

Other rheumatic disorder

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C3495832
Indicate other rheumatic disease
Beschreibung

Indicate other rheumatic disorder

Datentyp

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C3495832
UMLS CUI [1,3]
C1521902
Unknown
Beschreibung

Rheumatic disorder, unknown

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C3495832
Organ manifestations
Beschreibung

Organ manifestations

Alias
UMLS CUI-1
C1280464
UMLS CUI-2
C0678852
UMLS CUI-3
C3495832
Arthritis
Beschreibung

Rheumatic disorder: Arthritis

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0003864
UMLS CUI [1,2]
C3495832
Central nervous system (CNS)
Beschreibung

Rheumatic disorder: Central nervous system (CNS)

Datentyp

boolean

Alias
UMLS CUI [1,1]
C3714787
UMLS CUI [1,2]
C3495832
Ear, nose, throat (ENT)
Beschreibung

Rheumatic disorder: Ear, nose, throat (ENT)

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0150934
UMLS CUI [1,2]
C3495832
Gastrointestinal
Beschreibung

Rheumatic disorder: Gastrointestinal

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0521362
UMLS CUI [1,2]
C3495832
Heart
Beschreibung

Rheumatic disorder: Heart

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0018787
UMLS CUI [1,2]
C3495832
Oesophagus
Beschreibung

Rheumatic disorder: Oesophagus

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0014876
UMLS CUI [1,2]
C3495832
Peripheral nervous system (PNS)
Beschreibung

Rheumatic disorder: Peripheral nervous system (PNS)

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0206417
UMLS CUI [1,2]
C3495832
Pulmonal
Beschreibung

Rheumatic disorder: Pulmonal

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0035237
UMLS CUI [1,2]
C3495832
Raynaud's phenomenon
Beschreibung

Rheumatic disorder: Raynaud's phenomenon

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0034735
UMLS CUI [1,2]
C3495832
Renal
Beschreibung

Rheumatic disorder: Renal

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0022646
UMLS CUI [1,2]
C3495832
Skin
Beschreibung

Rheumatic disorder: Skin

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1123023
UMLS CUI [1,2]
C3495832
Other organ manifestation
Beschreibung

Rheumatic disorder: Other organ manifestation

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1280464
UMLS CUI [1,3]
C0678852
UMLS CUI [1,4]
C3495832
Indicate other organ manifestation
Beschreibung

Rheumatic disorder: Indicate other organ manifestation

Datentyp

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1521902
UMLS CUI [1,3]
C1280464
UMLS CUI [1,4]
C0678852
UMLS CUI [1,5]
C3495832
Unknown
Beschreibung

Rheumatic disorder: Organ manifestation, unknown

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C1280464
UMLS CUI [1,3]
C0678852
UMLS CUI [1,4]
C3495832
Disease duration
Beschreibung

Disease duration

Alias
UMLS CUI-1
C3495832
UMLS CUI-2
C0449238
Disease duration
Beschreibung

Indicate disease duration before diagnosis of SARS-CoV-2.

Datentyp

integer

Alias
UMLS CUI [1,1]
C3495832
UMLS CUI [1,2]
C0449238
Is data entry for this section finished?
Beschreibung

Is data entry for this section finished?

Alias
UMLS CUI-1
C4684556
UMLS CUI-2
C1828479
UMLS CUI-3
C0205197
Is data entry for this section finished?
Beschreibung

Is data entry for this section finished?

Datentyp

integer

Alias
UMLS CUI [1,1]
C4684556
UMLS CUI [1,2]
C1828479
UMLS CUI [1,3]
C0205197
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Ähnliche Modelle

Rheumatological sub-cohort

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Rheumatic disease
C3495832 (UMLS CUI-1)
Adult-onset Still's disease
Item
Adult-onset Still's disease
boolean
C0085253 (UMLS CUI [1])
Behçet's disease
Item
Behçet's disease
boolean
C0004943 (UMLS CUI [1])
Dermatomyositis
Item
Dermatomyositis
boolean
C0011633 (UMLS CUI [1])
Eosinophilic granulomatosis with polyangiitis (EGPA)
Item
Eosinophilic granulomatosis with polyangiitis (EGPA)
boolean
C0008728 (UMLS CUI [1])
Familial mediterranean fever
Item
Familial mediterranean fever
boolean
C0031069 (UMLS CUI [1])
Giant cell arteritis (including temporal arteritis)
Item
Giant cell arteritis (including temporal arteritis)
boolean
C0039483 (UMLS CUI [1])
Gout
Item
Gout
boolean
C0018099 (UMLS CUI [1])
Granulomatosis with polyangiitis (GPA)
Item
Granulomatosis with polyangiitis (GPA)
boolean
C3495801 (UMLS CUI [1])
IgA vasculitis (Purpura Schönlein Hennoch)
Item
IgA vasculitis (Purpura Schönlein Hennoch)
boolean
C0034152 (UMLS CUI [1])
Juvenile idiopathic arthritis
Item
Juvenile idiopathic arthritis
boolean
C3495559 (UMLS CUI [1])
Leucocytoclastic vasculitis 
Item
Leucocytoclastic vasculitis 
boolean
C2973529 (UMLS CUI [1])
Microscopic polyangiitis
Item
Microscopic polyangiitis
boolean
C2347126 (UMLS CUI [1])
Mixed connective tiussue disease
Item
Mixed connective tiussue disease
boolean
C0026272 (UMLS CUI [1])
Polyarteritis nodosa
Item
Polyarteritis nodosa
boolean
C0031036 (UMLS CUI [1])
Polymyalgia rheumatica
Item
Polymyalgia rheumatica
boolean
C0032533 (UMLS CUI [1])
Polymyositis
Item
Polymyositis
boolean
C0085655 (UMLS CUI [1])
Psoriatic arthritis
Item
Psoriatic arthritis
boolean
C0003872 (UMLS CUI [1])
Relapsing polychondritis
Item
Relapsing polychondritis
boolean
C0032453 (UMLS CUI [1])
Rheumatoid arthritis
Item
Rheumatoid arthritis
boolean
C0003873 (UMLS CUI [1])
Sarcoidosis
Item
Sarcoidosis
boolean
C0036202 (UMLS CUI [1])
Sjögren's syndrome
Item
Sjögren's syndrome
boolean
C1527336 (UMLS CUI [1])
Spondyloarthritis (including nr-axSpA and axSpA)
Item
Spondyloarthritis (including nr-axSpA and axSpA)
boolean
C0949690 (UMLS CUI [1])
C3889038 (UMLS CUI [2])
C3203547 (UMLS CUI [3])
Systemic lupus erythematosus
Item
Systemic lupus erythematosus
boolean
C0024141 (UMLS CUI [1])
Systemic sclerosis
Item
Systemic sclerosis
boolean
C0036421 (UMLS CUI [1])
Takayasu arteritis
Item
Takayasu arteritis
boolean
C0039263 (UMLS CUI [1])
Other rheumatic disorder
Item
Other rheumatic disease
boolean
C0205394 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Indicate other rheumatic disorder
Item
Indicate other rheumatic disease
text
C0205394 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Rheumatic disorder, unknown
Item
Unknown
boolean
C0439673 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Item Group
Organ manifestations
C1280464 (UMLS CUI-1)
C0678852 (UMLS CUI-2)
C3495832 (UMLS CUI-3)
Rheumatic disorder: Arthritis
Item
Arthritis
boolean
C0003864 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Central nervous system (CNS)
Item
Central nervous system (CNS)
boolean
C3714787 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Ear, nose, throat (ENT)
Item
Ear, nose, throat (ENT)
boolean
C0150934 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Gastrointestinal
Item
Gastrointestinal
boolean
C0521362 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Heart
Item
Heart
boolean
C0018787 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Oesophagus
Item
Oesophagus
boolean
C0014876 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Peripheral nervous system (PNS)
Item
Peripheral nervous system (PNS)
boolean
C0206417 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Pulmonal
Item
Pulmonal
boolean
C0035237 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Raynaud's phenomenon
Item
Raynaud's phenomenon
boolean
C0034735 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Renal
Item
Renal
boolean
C0022646 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Skin
Item
Skin
boolean
C1123023 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Rheumatic disorder: Other organ manifestation
Item
Other organ manifestation
boolean
C0205394 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
C0678852 (UMLS CUI [1,3])
C3495832 (UMLS CUI [1,4])
Rheumatic disorder: Indicate other organ manifestation
Item
Indicate other organ manifestation
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
C1280464 (UMLS CUI [1,3])
C0678852 (UMLS CUI [1,4])
C3495832 (UMLS CUI [1,5])
Rheumatic disorder: Organ manifestation, unknown
Item
Unknown
boolean
C0439673 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
C0678852 (UMLS CUI [1,3])
C3495832 (UMLS CUI [1,4])
Item Group
Disease duration
C3495832 (UMLS CUI-1)
C0449238 (UMLS CUI-2)
Item
Disease duration
integer
C3495832 (UMLS CUI [1,1])
C0449238 (UMLS CUI [1,2])
Disease duration
Code List
Disease duration
CL Item
<2 years (1)
CL Item
2 - 5 years (2)
CL Item
6 - 10 years (3)
CL Item
11 - 20 years (4)
CL Item
Unknown (5)
Item Group
Is data entry for this section finished?
C4684556 (UMLS CUI-1)
C1828479 (UMLS CUI-2)
C0205197 (UMLS CUI-3)
Item
Is data entry for this section finished?
integer
C4684556 (UMLS CUI [1,1])
C1828479 (UMLS CUI [1,2])
C0205197 (UMLS CUI [1,3])
BL_Completed
Code List
Is data entry for this section finished?
CL Item
Yes (1)
CL Item
No (2)
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