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42015

Description

https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams.

Link

https://www.hope-clara.de/

Keywords

Versions (2)
  1. 5/4/16 5/4/16 -
  2. 3/15/21 3/15/21 - Dr. rer. medic Philipp Neuhaus
Copyright Holder

CC BY-NC 3.0

Uploaded on

March 15, 2021

DOI

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License

Creative Commons BY-NC 3.0
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    Palliative and Hospice Care Relatives Satisfaction

    German English

    Palliative and Hospice Care Relatives Satisfaction

    1 forms  
    First meeting before start of therapy
    Description

    First meeting before start of therapy

    At the first meeting before the start of the therapy we knew who the contact person was for further contact
    Description

    contact person

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0337611
    At the first meeting before the start of the therapy our contact person had sufficient time for us
    Description

    sufficient time

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0040223
    UMLS CUI [1,2]
    C0205410
    At the first meeting before the start of the therapy we received understandable answers to our questions
    Description

    understandable answers

    Data type

    integer

    Alias
    UMLS CUI [1]
    C1822370
    start of therapy
    Description

    start of therapy

    Alias
    UMLS CUI-1
    C3173309
    at the beginning of the assistance the contact persons were well prepared for us
    Description

    contact person was well prepared

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0439659
    UMLS CUI [1,2]
    C1521721
    UMLS CUI [2,1]
    C0337611
    UMLS CUI [2,2]
    C1998726
    at the beginning of the assistance the staff had sufficient time for us
    Description

    sufficient time

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0439659
    UMLS CUI [1,2]
    C1521721
    UMLS CUI [2,1]
    C0040223
    UMLS CUI [2,2]
    C0205410
    at the beginning of the assistance the staff explained us everything (regarding formalities, the housing facility and the daily routine)
    Description

    explanation

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0439659
    UMLS CUI [1,2]
    C1521721
    UMLS CUI [2]
    C0681841
    symptoms and other issues
    Description

    symptoms and other issues

    the patient's physical pain was treated competently
    Description

    pain

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0030193
    UMLS CUI [1,2]
    C0087111
    UMLS CUI [1,3]
    C0086035
    other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
    Description

    other physical issues

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0683323
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C0087111
    UMLS CUI [1,4]
    C0086035
    Information and time
    Description

    Information and time

    Our relative / we were understandably and sufficiently informed about therapy options (chances and limits, side effects)
    Description

    therapy option

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0510365
    Our relative / we were understandably and sufficiently informed about nursing procedures
    Description

    nursing procedures

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0204636
    when we needed them the doctors had sufficient time
    Description

    doctors time

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C1710470
    UMLS CUI [1,2]
    C0040223
    UMLS CUI [1,3]
    C0205410
    when we needed them the nurses had sufficient time
    Description

    nurses time

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0028661
    UMLS CUI [1,2]
    C0040223
    UMLS CUI [1,3]
    C0205410
    when we needed them the other therapists (psychological therapists, physical therapists) had sufficient time
    Description

    other therapists time

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0871525
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C0040223
    UMLS CUI [1,4]
    C0205410
    when we needed them voluntary workers had sufficient time
    Description

    voluntary workers time

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0042960
    UMLS CUI [1,2]
    C0040223
    UMLS CUI [1,3]
    C0205410
    Expertise and support
    Description

    Expertise and support

    the doctors were competent in supporting or treating our relative
    Description

    Doctors expertise

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0031831
    UMLS CUI [1,2]
    C0870520
    the nurses were competent in supporting or treating our relative
    Description

    nurses expertise

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0028661
    UMLS CUI [1,2]
    C0870520
    the other therapists (psychological therapists, physical therapist) were competent in supporting or treating our relative
    Description

    other therapists expertise

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0871525
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C0870520
    the voluntary workers were competent in supporting or treating our relative
    Description

    voluntary workers expertise

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0042960
    UMLS CUI [1,2]
    C0870520
    Our relative / we received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
    Description

    mental support

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C3693635
    UMLS CUI [1,2]
    C0150355
    Our relative's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
    Description

    patient needs

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0686904
    UMLS CUI [2]
    C0016452
    UMLS CUI [3]
    C0562339
    UMLS CUI [4,1]
    C0679006
    UMLS CUI [4,2]
    C0087111
    UMLS CUI [5]
    C1547409
    After patient death
    Description

    After patient death

    We were informed about our relative's imminent death early enough so that we were not surprised by it
    Description

    early information on the patients death

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C1306577
    UMLS CUI [1,2]
    C1533716
    UMLS CUI [1,3]
    C1279919
    Our relative was treated with dignity after his/her death
    Description

    dignity after death

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0011070
    UMLS CUI [1,2]
    C0001758
    We had enough time to bid farewell
    Description

    time for farewell

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0040223
    We had sufficient mental support after our relative's death
    Description

    Mental support

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C3693635
    UMLS CUI [1,2]
    C1306577
    We received information about further support
    Description

    information about further support

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C1533716
    UMLS CUI [1,2]
    C0344211
    We felt comforted during the time following our relative's death
    Description

    comfort

    Data type

    integer

    Alias
    UMLS CUI [1]
    C1331418
    What helped you most or what did you like best?
    Description

    satisfaction assessment

    Data type

    text

    Alias
    UMLS CUI [1]
    C0242428
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    Similar models

    Palliative and Hospice Care Relatives Satisfaction

    1 forms
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    First meeting before start of therapy
    Item
    At the first meeting before the start of the therapy we knew who the contact person was for further contact
    integer
    C0337611 (UMLS CUI [1])
    contact person
    Code List
    At the first meeting before the start of the therapy we knew who the contact person was for further contact
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    At the first meeting before the start of the therapy our contact person had sufficient time for us
    integer
    C0040223 (UMLS CUI [1,1])
    C0205410 (UMLS CUI [1,2])
    undefined item
    Code List
    At the first meeting before the start of the therapy our contact person had sufficient time for us
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    At the first meeting before the start of the therapy we received understandable answers to our questions
    integer
    C1822370 (UMLS CUI [1])
    Understandable answers
    Code List
    At the first meeting before the start of the therapy we received understandable answers to our questions
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item Group
    start of therapy
    C3173309 (UMLS CUI-1)
    Item
    at the beginning of the assistance the contact persons were well prepared for us
    integer
    C0439659 (UMLS CUI [1,1])
    C1521721 (UMLS CUI [1,2])
    C0337611 (UMLS CUI [2,1])
    C1998726 (UMLS CUI [2,2])
    contact person was well prepared
    Code List
    at the beginning of the assistance the contact persons were well prepared for us
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    at the beginning of the assistance the staff had sufficient time for us
    integer
    C0439659 (UMLS CUI [1,1])
    C1521721 (UMLS CUI [1,2])
    C0040223 (UMLS CUI [2,1])
    C0205410 (UMLS CUI [2,2])
    sufficient time
    Code List
    at the beginning of the assistance the staff had sufficient time for us
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    at the beginning of the assistance the staff explained us everything (regarding formalities, the housing facility and the daily routine)
    integer
    C0439659 (UMLS CUI [1,1])
    C1521721 (UMLS CUI [1,2])
    C0681841 (UMLS CUI [2])
    explanation
    Code List
    at the beginning of the assistance the staff explained us everything (regarding formalities, the housing facility and the daily routine)
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item Group
    symptoms and other issues
    Item
    the patient's physical pain was treated competently
    integer
    C0030193 (UMLS CUI [1,1])
    C0087111 (UMLS CUI [1,2])
    C0086035 (UMLS CUI [1,3])
    pain
    Code List
    the patient's physical pain was treated competently
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
    integer
    C0683323 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C0087111 (UMLS CUI [1,3])
    C0086035 (UMLS CUI [1,4])
    other physical issues
    Code List
    other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item Group
    Information and time
    Item
    Our relative / we were understandably and sufficiently informed about therapy options (chances and limits, side effects)
    integer
    C0510365 (UMLS CUI [1])
    therapy option
    Code List
    Our relative / we were understandably and sufficiently informed about therapy options (chances and limits, side effects)
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    Our relative / we were understandably and sufficiently informed about nursing procedures
    integer
    C0204636 (UMLS CUI [1])
    nursing procedures
    Code List
    Our relative / we were understandably and sufficiently informed about nursing procedures
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    when we needed them the doctors had sufficient time
    integer
    C1710470 (UMLS CUI [1,1])
    C0040223 (UMLS CUI [1,2])
    C0205410 (UMLS CUI [1,3])
    doctors time
    Code List
    when we needed them the doctors had sufficient time
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    when we needed them the nurses had sufficient time
    integer
    C0028661 (UMLS CUI [1,1])
    C0040223 (UMLS CUI [1,2])
    C0205410 (UMLS CUI [1,3])
    nurses time
    Code List
    when we needed them the nurses had sufficient time
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    when we needed them the other therapists (psychological therapists, physical therapists) had sufficient time
    integer
    C0871525 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C0040223 (UMLS CUI [1,3])
    C0205410 (UMLS CUI [1,4])
    other therapists time
    Code List
    when we needed them the other therapists (psychological therapists, physical therapists) had sufficient time
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    when we needed them voluntary workers had sufficient time
    integer
    C0042960 (UMLS CUI [1,1])
    C0040223 (UMLS CUI [1,2])
    C0205410 (UMLS CUI [1,3])
    voluntary workers time
    Code List
    when we needed them voluntary workers had sufficient time
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item Group
    Expertise and support
    Item
    the doctors were competent in supporting or treating our relative
    integer
    C0031831 (UMLS CUI [1,1])
    C0870520 (UMLS CUI [1,2])
    Doctors expertise
    Code List
    the doctors were competent in supporting or treating our relative
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    the nurses were competent in supporting or treating our relative
    integer
    C0028661 (UMLS CUI [1,1])
    C0870520 (UMLS CUI [1,2])
    nurses expertise
    Code List
    the nurses were competent in supporting or treating our relative
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    the other therapists (psychological therapists, physical therapist) were competent in supporting or treating our relative
    integer
    C0871525 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C0870520 (UMLS CUI [1,3])
    other therapists expertise
    Code List
    the other therapists (psychological therapists, physical therapist) were competent in supporting or treating our relative
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    the voluntary workers were competent in supporting or treating our relative
    integer
    C0042960 (UMLS CUI [1,1])
    C0870520 (UMLS CUI [1,2])
    voluntary workers expertise
    Code List
    the voluntary workers were competent in supporting or treating our relative
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    Our relative / we received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
    integer
    C3693635 (UMLS CUI [1,1])
    C0150355 (UMLS CUI [1,2])
    mental support
    Code List
    Our relative / we received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    Our relative's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
    integer
    C0686904 (UMLS CUI [1])
    C0016452 (UMLS CUI [2])
    C0562339 (UMLS CUI [3])
    C0679006 (UMLS CUI [4,1])
    C0087111 (UMLS CUI [4,2])
    C1547409 (UMLS CUI [5])
    patient needs
    Code List
    Our relative's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item Group
    After patient death
    Item
    We were informed about our relative's imminent death early enough so that we were not surprised by it
    integer
    C1306577 (UMLS CUI [1,1])
    C1533716 (UMLS CUI [1,2])
    C1279919 (UMLS CUI [1,3])
    undefined item
    Code List
    We were informed about our relative's imminent death early enough so that we were not surprised by it
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    Our relative was treated with dignity after his/her death
    integer
    C0011070 (UMLS CUI [1,1])
    C0001758 (UMLS CUI [1,2])
    undefined item
    Code List
    Our relative was treated with dignity after his/her death
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    We had enough time to bid farewell
    integer
    C0040223 (UMLS CUI [1])
    undefined item
    Code List
    We had enough time to bid farewell
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    We had sufficient mental support after our relative's death
    integer
    C3693635 (UMLS CUI [1,1])
    C1306577 (UMLS CUI [1,2])
    undefined item
    Code List
    We had sufficient mental support after our relative's death
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    We received information about further support
    integer
    C1533716 (UMLS CUI [1,1])
    C0344211 (UMLS CUI [1,2])
    undefined item
    Code List
    We received information about further support
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    Item
    We felt comforted during the time following our relative's death
    integer
    C1331418 (UMLS CUI [1])
    undefined item
    Code List
    We felt comforted during the time following our relative's death
    CL Item
    strongly agree (1)
    CL Item
    agree (2)
    CL Item
    neutral (3)
    CL Item
    disagree (4)
    CL Item
    strongly disagree (5)
    satisfaction assessment
    Item
    What helped you most or what did you like best?
    text
    C0242428 (UMLS CUI [1])
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