ID

41621

Beskrivning

Study Title: LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients https://leoss.net Study Indication: COVID-19 Date: 14.10.2020, 15:18 Published with permission by Prof. Dr. med. J.-J. Vehreschild. LEOSS is mandated by the ESCMID Emerging Infections Task Force (EITaF) and supported by the German Infectious Disease Society. It aims at a better understanding of the implications of the new virus on patients by systematically documenting patient data across Europe (Text adapted from leoss.net). For more information please visit the official website. This document is for Rheuma-related baseline data. All questions refer to the day of diagnosis (diagnosis means first positive virus result). Please note that only cases with known outcome are collected at LEOSS! If a text field can't be filled out, note 'ND' (for not determined)

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https://leoss.net

Nyckelord

Versioner (3)
  1. 2020-11-05 2020-11-05 -
  2. 2020-11-27 2020-11-27 -
  3. 2021-04-24 2021-04-24 -
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LEOSS

Uppladdad den

27 november 2020

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LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients

Engelsk

Rheuma-related baseline data

1 Formulär  
Rheumatic disease
Beskrivning

Rheumatic disease

Alias
UMLS CUI-1
C3495832
Adult-onset Still's disease
Beskrivning

Adult-onset Still's disease

Datatyp

integer

Alias
UMLS CUI [1]
C0085253
Behçet's disease
Beskrivning

Behçet's disease

Datatyp

integer

Alias
UMLS CUI [1]
C0004943
Dermatomyositis
Beskrivning

Dermatomyositis

Datatyp

integer

Alias
UMLS CUI [1]
C0011633
Eosinophilic granulomatosis with polyangiitis (EGPA)
Beskrivning

Eosinophilic granulomatosis with polyangiitis (EGPA)

Datatyp

integer

Alias
UMLS CUI [1]
C0008728
Familial mediterranean fever
Beskrivning

Familial mediterranean fever

Datatyp

integer

Alias
UMLS CUI [1]
C0031069
Giant cell arteritis (including temporal arteritis)
Beskrivning

Giant cell arteritis (including temporal arteritis)

Datatyp

integer

Alias
UMLS CUI [1]
C0039483
Gout
Beskrivning

Gout

Datatyp

integer

Alias
UMLS CUI [1]
C0018099
Granulomatosis with polyangiitis (GPA)
Beskrivning

Granulomatosis with polyangiitis (GPA)

Datatyp

integer

Alias
UMLS CUI [1]
C3495801
IgA vasculitis (Purpura Schönlein Hennoch)
Beskrivning

IgA vasculitis (Purpura Schönlein Hennoch)

Datatyp

integer

Alias
UMLS CUI [1]
C0034152
Juvenile idiopathic arthritis
Beskrivning

Juvenile idiopathic arthritis

Datatyp

integer

Alias
UMLS CUI [1]
C3495559
Leucocytoclastic vasculitis 
Beskrivning

Leucocytoclastic vasculitis 

Datatyp

integer

Alias
UMLS CUI [1]
C2973529
Microscopic polyangiitis
Beskrivning

Microscopic polyangiitis

Datatyp

integer

Alias
UMLS CUI [1]
C2347126
Mixed connective tiussue disease
Beskrivning

Mixed connective tiussue disease

Datatyp

integer

Alias
UMLS CUI [1]
C0026272
Polyarteritis nodosa
Beskrivning

Polyarteritis nodosa

Datatyp

integer

Alias
UMLS CUI [1]
C0031036
Polymyalgia rheumatica
Beskrivning

Polymyalgia rheumatica

Datatyp

integer

Alias
UMLS CUI [1]
C0032533
Polymyositis
Beskrivning

Polymyositis

Datatyp

integer

Alias
UMLS CUI [1]
C0085655
Psoriatic arthritis
Beskrivning

Psoriatic arthritis

Datatyp

integer

Alias
UMLS CUI [1]
C0003872
Relapsing polychondritis
Beskrivning

Relapsing polychondritis

Datatyp

integer

Alias
UMLS CUI [1]
C0032453
Rheumatoid arthritis
Beskrivning

Rheumatoid arthritis

Datatyp

integer

Alias
UMLS CUI [1]
C0003873
Sarcoidosis
Beskrivning

Sarcoidosis

Datatyp

integer

Alias
UMLS CUI [1]
C0036202
Sjögren's syndrome
Beskrivning

Sjögren's syndrome

Datatyp

integer

Alias
UMLS CUI [1]
C1527336
Spondyloarthritis (including nr-axSpA and axSpA)
Beskrivning

Spondyloarthritis (including nr-axSpA and axSpA)

Datatyp

integer

Alias
UMLS CUI [1]
C0949690
UMLS CUI [2]
C3889038
UMLS CUI [3]
C3203547
Systemic lupus erythematosus
Beskrivning

Systemic lupus erythematosus

Datatyp

integer

Alias
UMLS CUI [1]
C0024141
Systemic sclerosis
Beskrivning

Systemic sclerosis

Datatyp

integer

Alias
UMLS CUI [1]
C0036421
Takayasu arteritis
Beskrivning

Takayasu arteritis

Datatyp

integer

Alias
UMLS CUI [1]
C0039263
Other
Beskrivning

Other

Datatyp

integer

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C3495832
Other, please specify
Beskrivning

Other, specify

Datatyp

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C3495832
UMLS CUI [1,3]
C1521902
Unknown
Beskrivning

Unknown

Datatyp

integer

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C3495832
Disease duration
Beskrivning

Disease duration

Alias
UMLS CUI-1
C0872146
Disease duration
Beskrivning

Disease duration

Datatyp

integer

Alias
UMLS CUI [1]
C0872146
Organ manifestations
Beskrivning

Organ manifestations

Alias
UMLS CUI-1
C1280464
UMLS CUI-2
C0678852
Arthritis
Beskrivning

Arthritis

Datatyp

integer

Alias
UMLS CUI [1]
C0003864
Central nervous system (CNS)
Beskrivning

Central nervous system (CNS)

Datatyp

integer

Alias
UMLS CUI [1]
C3714787
Ear, nose, throat (ENT)
Beskrivning

Ear, nose, throat (ENT)

Datatyp

integer

Alias
UMLS CUI [1]
C0150934
Gastrointestinal
Beskrivning

Gastrointestinal

Datatyp

integer

Alias
UMLS CUI [1]
C0521362
Heart
Beskrivning

Heart

Datatyp

integer

Alias
UMLS CUI [1]
C0018787
Oesophagus
Beskrivning

Oesophagus

Datatyp

integer

Alias
UMLS CUI [1]
C0014876
Peripheral nervous system (PNS)
Beskrivning

Peripheral nervous system (PNS)

Datatyp

integer

Alias
UMLS CUI [1]
C0206417
Pulmonal
Beskrivning

Pulmonal

Datatyp

integer

Alias
UMLS CUI [1]
C0035237
Raynaud's phenomenon
Beskrivning

Raynaud's phenomenon

Datatyp

integer

Alias
UMLS CUI [1]
C0034735
Renal
Beskrivning

Renal

Datatyp

integer

Alias
UMLS CUI [1]
C0022646
Skin
Beskrivning

Skin

Datatyp

integer

Alias
UMLS CUI [1]
C1123023
Other
Beskrivning

Other

Datatyp

integer

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1280464
Other, please specify
Beskrivning

Other, specify

Datatyp

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1521902
UMLS CUI [1,3]
C1280464
Unknown
Beskrivning

Unknown

Datatyp

integer

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C1280464
Is data entry for this section finished?
Beskrivning

Is data entry for this section finished?

Alias
UMLS CUI-1
C4684556
UMLS CUI-2
C1828479
UMLS CUI-3
C0205197
Is data entry for this section finished?
Beskrivning

Is data entry for this section finished?

Datatyp

integer

Alias
UMLS CUI [1,1]
C4684556
UMLS CUI [1,2]
C1828479
UMLS CUI [1,3]
C0205197
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Similar models

Rheuma-related baseline data

1 Formulär
Name
Typ
Description | Question | Decode (Coded Value)
Datatyp
Alias
Item Group
Rheumatic disease
C3495832 (UMLS CUI-1)
Item
Adult-onset Still's disease
integer
C0085253 (UMLS CUI [1])
Adult-onset still's disease
Code List
Adult-onset Still's disease
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Behçet's disease
integer
C0004943 (UMLS CUI [1])
Behçet's disease
Code List
Behçet's disease
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Dermatomyositis
integer
C0011633 (UMLS CUI [1])
Dermatomyositis
Code List
Dermatomyositis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Eosinophilic granulomatosis with polyangiitis (EGPA)
integer
C0008728 (UMLS CUI [1])
Eosinophilic granulomatosis with polyangiitis (EGPA)
Code List
Eosinophilic granulomatosis with polyangiitis (EGPA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Familial mediterranean fever
integer
C0031069 (UMLS CUI [1])
Familial mediterranean fever
Code List
Familial mediterranean fever
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Giant cell arteritis (including temporal arteritis)
integer
C0039483 (UMLS CUI [1])
Giant cell arteritis (including temporal arteritis)
Code List
Giant cell arteritis (including temporal arteritis)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Gout
integer
C0018099 (UMLS CUI [1])
Gout
Code List
Gout
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Granulomatosis with polyangiitis (GPA)
integer
C3495801 (UMLS CUI [1])
Granulomatosis with polyangiitis (GPA)
Code List
Granulomatosis with polyangiitis (GPA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
IgA vasculitis (Purpura Schönlein Hennoch)
integer
C0034152 (UMLS CUI [1])
IgA vasculitis (Purpura Schönlein Hennoch)
Code List
IgA vasculitis (Purpura Schönlein Hennoch)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Juvenile idiopathic arthritis
integer
C3495559 (UMLS CUI [1])
Juvenile idiopathic arthritis
Code List
Juvenile idiopathic arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Leucocytoclastic vasculitis 
integer
C2973529 (UMLS CUI [1])
Leucocytoclastic vasculitis 
Code List
Leucocytoclastic vasculitis 
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Microscopic polyangiitis
integer
C2347126 (UMLS CUI [1])
Microscopic polyangiitis
Code List
Microscopic polyangiitis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Mixed connective tiussue disease
integer
C0026272 (UMLS CUI [1])
Mixed connective tiussue disease
Code List
Mixed connective tiussue disease
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Polyarteritis nodosa
integer
C0031036 (UMLS CUI [1])
Polyarteritis nodosa
Code List
Polyarteritis nodosa
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Polymyalgia rheumatica
integer
C0032533 (UMLS CUI [1])
Polymyalgia rheumatica
Code List
Polymyalgia rheumatica
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Polymyositis
integer
C0085655 (UMLS CUI [1])
Polymyositis
Code List
Polymyositis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Psoriatic arthritis
integer
C0003872 (UMLS CUI [1])
Psoriatic arthritis
Code List
Psoriatic arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Relapsing polychondritis
integer
C0032453 (UMLS CUI [1])
Relapsing polychondritis
Code List
Relapsing polychondritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Rheumatoid arthritis
integer
C0003873 (UMLS CUI [1])
Rheumatoid arthritis
Code List
Rheumatoid arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Sarcoidosis
integer
C0036202 (UMLS CUI [1])
Sarcoidosis
Code List
Sarcoidosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Sjögren's syndrome
integer
C1527336 (UMLS CUI [1])
Sjögren's syndrome
Code List
Sjögren's syndrome
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Spondyloarthritis (including nr-axSpA and axSpA)
integer
C0949690 (UMLS CUI [1])
C3889038 (UMLS CUI [2])
C3203547 (UMLS CUI [3])
Spondyloarthritis (including nr-axSpA and axSpA)
Code List
Spondyloarthritis (including nr-axSpA and axSpA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Systemic lupus erythematosus
integer
C0024141 (UMLS CUI [1])
Systemic lupus erythematosus
Code List
Systemic lupus erythematosus
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Systemic sclerosis
integer
C0036421 (UMLS CUI [1])
Systemic sclerosis
Code List
Systemic sclerosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Takayasu arteritis
integer
C0039263 (UMLS CUI [1])
Takayasu arteritis
Code List
Takayasu arteritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0205394 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Other:
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other, specify
Item
Other, please specify
text
C0205394 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Unknown
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Disease duration
C0872146 (UMLS CUI-1)
Item
Disease duration
integer
C0872146 (UMLS CUI [1])
Disease duration
Code List
Disease duration
CL Item
<2 years (1)
CL Item
2 - 5 years (2)
CL Item
6 - 10 years (3)
CL Item
11 - 20 years (4)
CL Item
Unknown (5)
Item Group
Organ manifestations
C1280464 (UMLS CUI-1)
C0678852 (UMLS CUI-2)
Item
Arthritis
integer
C0003864 (UMLS CUI [1])
Arthritis
Code List
Arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Central nervous system (CNS)
integer
C3714787 (UMLS CUI [1])
CNS
Code List
Central nervous system (CNS)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Ear, nose, throat (ENT)
integer
C0150934 (UMLS CUI [1])
ENT
Code List
Ear, nose, throat (ENT)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Gastrointestinal
integer
C0521362 (UMLS CUI [1])
Gastrointestinal
Code List
Gastrointestinal
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Heart
integer
C0018787 (UMLS CUI [1])
Heart
Code List
Heart
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Oesophagus
integer
C0014876 (UMLS CUI [1])
Oesophagus
Code List
Oesophagus
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Peripheral nervous system (PNS)
integer
C0206417 (UMLS CUI [1])
PNS
Code List
Peripheral nervous system (PNS)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Pulmonal
integer
C0035237 (UMLS CUI [1])
Pulmonal
Code List
Pulmonal
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Raynaud's phenomenon
integer
C0034735 (UMLS CUI [1])
Raynaud's phenomenon
Code List
Raynaud's phenomenon
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Renal
integer
C0022646 (UMLS CUI [1])
Renal
Code List
Renal
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Skin
integer
C1123023 (UMLS CUI [1])
Skin
Code List
Skin
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0205394 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
Other:
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other, specify
Item
Other, please specify
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
C1280464 (UMLS CUI [1,3])
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
Unknown
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Is data entry for this section finished?
C4684556 (UMLS CUI-1)
C1828479 (UMLS CUI-2)
C0205197 (UMLS CUI-3)
Item
Is data entry for this section finished?
integer
C4684556 (UMLS CUI [1,1])
C1828479 (UMLS CUI [1,2])
C0205197 (UMLS CUI [1,3])
BL_Completed
Code List
Is data entry for this section finished?
CL Item
Yes (1)
CL Item
No (2)
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