ID

41621

Description

Study Title: LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients https://leoss.net Study Indication: COVID-19 Date: 14.10.2020, 15:18 Published with permission by Prof. Dr. med. J.-J. Vehreschild. LEOSS is mandated by the ESCMID Emerging Infections Task Force (EITaF) and supported by the German Infectious Disease Society. It aims at a better understanding of the implications of the new virus on patients by systematically documenting patient data across Europe (Text adapted from leoss.net). For more information please visit the official website. This document is for Rheuma-related baseline data. All questions refer to the day of diagnosis (diagnosis means first positive virus result). Please note that only cases with known outcome are collected at LEOSS! If a text field can't be filled out, note 'ND' (for not determined)

Link

https://leoss.net

Keywords

  1. 11/5/20 11/5/20 -
  2. 11/27/20 11/27/20 -
  3. 4/24/21 4/24/21 -
Copyright Holder

LEOSS

Uploaded on

November 27, 2020

DOI

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License

Creative Commons BY 4.0

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LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients

Rheuma-related baseline data

Rheumatic disease
Description

Rheumatic disease

Alias
UMLS CUI-1
C3495832
Adult-onset Still's disease
Description

Adult-onset Still's disease

Data type

integer

Alias
UMLS CUI [1]
C0085253
Behçet's disease
Description

Behçet's disease

Data type

integer

Alias
UMLS CUI [1]
C0004943
Dermatomyositis
Description

Dermatomyositis

Data type

integer

Alias
UMLS CUI [1]
C0011633
Eosinophilic granulomatosis with polyangiitis (EGPA)
Description

Eosinophilic granulomatosis with polyangiitis (EGPA)

Data type

integer

Alias
UMLS CUI [1]
C0008728
Familial mediterranean fever
Description

Familial mediterranean fever

Data type

integer

Alias
UMLS CUI [1]
C0031069
Giant cell arteritis (including temporal arteritis)
Description

Giant cell arteritis (including temporal arteritis)

Data type

integer

Alias
UMLS CUI [1]
C0039483
Gout
Description

Gout

Data type

integer

Alias
UMLS CUI [1]
C0018099
Granulomatosis with polyangiitis (GPA)
Description

Granulomatosis with polyangiitis (GPA)

Data type

integer

Alias
UMLS CUI [1]
C3495801
IgA vasculitis (Purpura Schönlein Hennoch)
Description

IgA vasculitis (Purpura Schönlein Hennoch)

Data type

integer

Alias
UMLS CUI [1]
C0034152
Juvenile idiopathic arthritis
Description

Juvenile idiopathic arthritis

Data type

integer

Alias
UMLS CUI [1]
C3495559
Leucocytoclastic vasculitis 
Description

Leucocytoclastic vasculitis 

Data type

integer

Alias
UMLS CUI [1]
C2973529
Microscopic polyangiitis
Description

Microscopic polyangiitis

Data type

integer

Alias
UMLS CUI [1]
C2347126
Mixed connective tiussue disease
Description

Mixed connective tiussue disease

Data type

integer

Alias
UMLS CUI [1]
C0026272
Polyarteritis nodosa
Description

Polyarteritis nodosa

Data type

integer

Alias
UMLS CUI [1]
C0031036
Polymyalgia rheumatica
Description

Polymyalgia rheumatica

Data type

integer

Alias
UMLS CUI [1]
C0032533
Polymyositis
Description

Polymyositis

Data type

integer

Alias
UMLS CUI [1]
C0085655
Psoriatic arthritis
Description

Psoriatic arthritis

Data type

integer

Alias
UMLS CUI [1]
C0003872
Relapsing polychondritis
Description

Relapsing polychondritis

Data type

integer

Alias
UMLS CUI [1]
C0032453
Rheumatoid arthritis
Description

Rheumatoid arthritis

Data type

integer

Alias
UMLS CUI [1]
C0003873
Sarcoidosis
Description

Sarcoidosis

Data type

integer

Alias
UMLS CUI [1]
C0036202
Sjögren's syndrome
Description

Sjögren's syndrome

Data type

integer

Alias
UMLS CUI [1]
C1527336
Spondyloarthritis (including nr-axSpA and axSpA)
Description

Spondyloarthritis (including nr-axSpA and axSpA)

Data type

integer

Alias
UMLS CUI [1]
C0949690
UMLS CUI [2]
C3889038
UMLS CUI [3]
C3203547
Systemic lupus erythematosus
Description

Systemic lupus erythematosus

Data type

integer

Alias
UMLS CUI [1]
C0024141
Systemic sclerosis
Description

Systemic sclerosis

Data type

integer

Alias
UMLS CUI [1]
C0036421
Takayasu arteritis
Description

Takayasu arteritis

Data type

integer

Alias
UMLS CUI [1]
C0039263
Other
Description

Other

Data type

integer

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C3495832
Other, please specify
Description

Other, specify

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C3495832
UMLS CUI [1,3]
C1521902
Unknown
Description

Unknown

Data type

integer

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C3495832
Disease duration
Description

Disease duration

Alias
UMLS CUI-1
C0872146
Disease duration
Description

Disease duration

Data type

integer

Alias
UMLS CUI [1]
C0872146
Organ manifestations
Description

Organ manifestations

Alias
UMLS CUI-1
C1280464
UMLS CUI-2
C0678852
Arthritis
Description

Arthritis

Data type

integer

Alias
UMLS CUI [1]
C0003864
Central nervous system (CNS)
Description

Central nervous system (CNS)

Data type

integer

Alias
UMLS CUI [1]
C3714787
Ear, nose, throat (ENT)
Description

Ear, nose, throat (ENT)

Data type

integer

Alias
UMLS CUI [1]
C0150934
Gastrointestinal
Description

Gastrointestinal

Data type

integer

Alias
UMLS CUI [1]
C0521362
Heart
Description

Heart

Data type

integer

Alias
UMLS CUI [1]
C0018787
Oesophagus
Description

Oesophagus

Data type

integer

Alias
UMLS CUI [1]
C0014876
Peripheral nervous system (PNS)
Description

Peripheral nervous system (PNS)

Data type

integer

Alias
UMLS CUI [1]
C0206417
Pulmonal
Description

Pulmonal

Data type

integer

Alias
UMLS CUI [1]
C0035237
Raynaud's phenomenon
Description

Raynaud's phenomenon

Data type

integer

Alias
UMLS CUI [1]
C0034735
Renal
Description

Renal

Data type

integer

Alias
UMLS CUI [1]
C0022646
Skin
Description

Skin

Data type

integer

Alias
UMLS CUI [1]
C1123023
Other
Description

Other

Data type

integer

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1280464
Other, please specify
Description

Other, specify

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1521902
UMLS CUI [1,3]
C1280464
Unknown
Description

Unknown

Data type

integer

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C1280464
Is data entry for this section finished?
Description

Is data entry for this section finished?

Alias
UMLS CUI-1
C4684556
UMLS CUI-2
C1828479
UMLS CUI-3
C0205197
Is data entry for this section finished?
Description

Is data entry for this section finished?

Data type

integer

Alias
UMLS CUI [1,1]
C4684556
UMLS CUI [1,2]
C1828479
UMLS CUI [1,3]
C0205197

Similar models

Rheuma-related baseline data

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Rheumatic disease
C3495832 (UMLS CUI-1)
Item
Adult-onset Still's disease
integer
C0085253 (UMLS CUI [1])
Code List
Adult-onset Still's disease
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Behçet's disease
integer
C0004943 (UMLS CUI [1])
Code List
Behçet's disease
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Dermatomyositis
integer
C0011633 (UMLS CUI [1])
Code List
Dermatomyositis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Eosinophilic granulomatosis with polyangiitis (EGPA)
integer
C0008728 (UMLS CUI [1])
Code List
Eosinophilic granulomatosis with polyangiitis (EGPA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Familial mediterranean fever
integer
C0031069 (UMLS CUI [1])
Code List
Familial mediterranean fever
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Giant cell arteritis (including temporal arteritis)
integer
C0039483 (UMLS CUI [1])
Code List
Giant cell arteritis (including temporal arteritis)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Gout
integer
C0018099 (UMLS CUI [1])
Code List
Gout
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Granulomatosis with polyangiitis (GPA)
integer
C3495801 (UMLS CUI [1])
Code List
Granulomatosis with polyangiitis (GPA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
IgA vasculitis (Purpura Schönlein Hennoch)
integer
C0034152 (UMLS CUI [1])
Code List
IgA vasculitis (Purpura Schönlein Hennoch)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Juvenile idiopathic arthritis
integer
C3495559 (UMLS CUI [1])
Code List
Juvenile idiopathic arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Leucocytoclastic vasculitis 
integer
C2973529 (UMLS CUI [1])
Code List
Leucocytoclastic vasculitis 
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Microscopic polyangiitis
integer
C2347126 (UMLS CUI [1])
Code List
Microscopic polyangiitis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Mixed connective tiussue disease
integer
C0026272 (UMLS CUI [1])
Code List
Mixed connective tiussue disease
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Polyarteritis nodosa
integer
C0031036 (UMLS CUI [1])
Code List
Polyarteritis nodosa
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Polymyalgia rheumatica
integer
C0032533 (UMLS CUI [1])
Code List
Polymyalgia rheumatica
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Polymyositis
integer
C0085655 (UMLS CUI [1])
Code List
Polymyositis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Psoriatic arthritis
integer
C0003872 (UMLS CUI [1])
Code List
Psoriatic arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Relapsing polychondritis
integer
C0032453 (UMLS CUI [1])
Code List
Relapsing polychondritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Rheumatoid arthritis
integer
C0003873 (UMLS CUI [1])
Code List
Rheumatoid arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Sarcoidosis
integer
C0036202 (UMLS CUI [1])
Code List
Sarcoidosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Sjögren's syndrome
integer
C1527336 (UMLS CUI [1])
Code List
Sjögren's syndrome
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Spondyloarthritis (including nr-axSpA and axSpA)
integer
C0949690 (UMLS CUI [1])
C3889038 (UMLS CUI [2])
C3203547 (UMLS CUI [3])
Code List
Spondyloarthritis (including nr-axSpA and axSpA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Systemic lupus erythematosus
integer
C0024141 (UMLS CUI [1])
Code List
Systemic lupus erythematosus
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Systemic sclerosis
integer
C0036421 (UMLS CUI [1])
Code List
Systemic sclerosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Takayasu arteritis
integer
C0039263 (UMLS CUI [1])
Code List
Takayasu arteritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0205394 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other, specify
Item
Other, please specify
text
C0205394 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Disease duration
C0872146 (UMLS CUI-1)
Item
Disease duration
integer
C0872146 (UMLS CUI [1])
Code List
Disease duration
CL Item
<2 years (1)
CL Item
2 - 5 years (2)
CL Item
6 - 10 years (3)
CL Item
11 - 20 years (4)
CL Item
Unknown (5)
Item Group
Organ manifestations
C1280464 (UMLS CUI-1)
C0678852 (UMLS CUI-2)
Item
Arthritis
integer
C0003864 (UMLS CUI [1])
Code List
Arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Central nervous system (CNS)
integer
C3714787 (UMLS CUI [1])
Code List
Central nervous system (CNS)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Ear, nose, throat (ENT)
integer
C0150934 (UMLS CUI [1])
Code List
Ear, nose, throat (ENT)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Gastrointestinal
integer
C0521362 (UMLS CUI [1])
Code List
Gastrointestinal
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Heart
integer
C0018787 (UMLS CUI [1])
Code List
Heart
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Oesophagus
integer
C0014876 (UMLS CUI [1])
Code List
Oesophagus
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Peripheral nervous system (PNS)
integer
C0206417 (UMLS CUI [1])
Code List
Peripheral nervous system (PNS)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Pulmonal
integer
C0035237 (UMLS CUI [1])
Code List
Pulmonal
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Raynaud's phenomenon
integer
C0034735 (UMLS CUI [1])
Code List
Raynaud's phenomenon
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Renal
integer
C0022646 (UMLS CUI [1])
Code List
Renal
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Skin
integer
C1123023 (UMLS CUI [1])
Code List
Skin
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0205394 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other, specify
Item
Other, please specify
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
C1280464 (UMLS CUI [1,3])
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Is data entry for this section finished?
C4684556 (UMLS CUI-1)
C1828479 (UMLS CUI-2)
C0205197 (UMLS CUI-3)
Item
Is data entry for this section finished?
integer
C4684556 (UMLS CUI [1,1])
C1828479 (UMLS CUI [1,2])
C0205197 (UMLS CUI [1,3])
Code List
Is data entry for this section finished?
CL Item
Yes (1)
CL Item
No (2)

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