ID

41619

Description

Study Title: LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients https://leoss.net Study Indication: COVID-19 14.10.2020, 16:02 Published with permission by Prof. Dr. med. J.-J. Vehreschild. LEOSS is mandated by the ESCMID Emerging Infections Task Force (EITaF) and supported by the German Infectious Disease Society. It aims at a better understanding of the implications of the new virus on patients by systematically documenting patient data across Europe (Text adapted from leoss.net). For more information please visit the official website. This document is for Neurology - related baseline data. If a text field can't be filled out, note 'ND' (for not determined).

Link

https://leoss.net

Keywords

  1. 10/31/20 10/31/20 -
  2. 11/27/20 11/27/20 -
  3. 5/7/21 5/7/21 -
  4. 5/27/21 5/27/21 - Sarah Riepenhausen
  5. 5/27/21 5/27/21 - Sarah Riepenhausen
Copyright Holder

LEOSS

Uploaded on

November 27, 2020

DOI

To request one please log in.

License

Creative Commons BY 4.0

Model comments :

You can comment on the data model here. Via the speech bubbles at the itemgroups and items you can add comments to those specificially.

Itemgroup comments for :

Item comments for :

In order to download data models you must be logged in. Please log in or register for free.

LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients

Neurology - related baseline data

Specification of neurological comorbidities
Description

Specification of neurological comorbidities

Alias
UMLS CUI-1
C0009488
UMLS CUI-2
C2348235
UMLS CUI-3
C0027763
Brain tumor
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0006118
Encephalitis
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0014038
Epilepsy
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0014544
Hemorrhagic Stroke
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0553692
Ischemic Stroke
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0948008
Meningitis
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0025289
Migraine
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0149931
Myasthenia, bulbar
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0026896
UMLS CUI [1,2]
C1856507
Myasthenia, generalized
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0751339
Myasthenia, ocular
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0751340
Myositis
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0027121
Sinus/venous Thrombosis
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C4538576
UMLS CUI [2,1]
C0027763
UMLS CUI [2,2]
C0042487
Subarachnoid bleeding
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0038525
Transitory ischemic attack (TIA)
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0007787
Other:
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0009488
UMLS CUI [1,3]
C0027853
Other, please specify:
Description

Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0009488
UMLS CUI [1,3]
C0027853
UMLS CUI [1,4]
C1521902
Unknown
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C0009488
UMLS CUI [1,3]
C0027853
Cerebrovascular disease
Description

Cerebrovascular disease

Alias
UMLS CUI-1
C0007820
If hemorrhagic stroke: Pattern of bleeding
Description

If hemorrhagic stroke: Pattern of bleeding

Data type

integer

Alias
UMLS CUI [1,1]
C0553692
UMLS CUI [1,2]
C0449774
If ischemic stroke: Most likely cause of stroke (TOAST)
Description

If ischemic stroke: Most likely cause of stroke (TOAST)

Data type

integer

Alias
UMLS CUI [1,1]
C0948008
UMLS CUI [1,2]
C1710306
Year of diagnosis
Description

Year of diagnosis of cerebrovascular disease

Data type

integer

Alias
UMLS CUI [1,1]
C0439234
UMLS CUI [1,2]
C0011900
UMLS CUI [1,3]
C0007820
Year of diagnosis, to specify
Description

Year of diagnosis of cerebrovascular disease, to specify

Data type

text

Alias
UMLS CUI [1,1]
C0439234
UMLS CUI [1,2]
C0011900
UMLS CUI [1,3]
C1521902
UMLS CUI [1,4]
C0007820
Modified rankin scale at admission
Description

Modified rankin scale at admission

Data type

integer

Alias
UMLS CUI [1,1]
C2984908
UMLS CUI [1,2]
C0457453
MoCA score at admission
Description

MoCA score at admission

Data type

text

Alias
UMLS CUI [1,1]
C2984908
UMLS CUI [1,2]
C0457453
Atrial fibrillation
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0004238
Internal carotid artery stenosis > 50 %
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0205250
UMLS CUI [1,2]
C0340569
Medication
Description

Medication

Alias
UMLS CUI-1
C0013227
UMLS CUI-2
C0007820
Aspirin
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0004057
UMLS CUI [1,2]
C0007820
Statins
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007820
UMLS CUI [1,2]
C0360714
Warfarin
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007820
UMLS CUI [1,2]
C0043031
Dabigatran
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007820
UMLS CUI [1,2]
C2348066
Apixaban
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007820
UMLS CUI [1,2]
C1831808
Rivaroxaban
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C1739768
UMLS CUI [1,2]
C0007820
Edoxaban
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007820
UMLS CUI [1,2]
C2975435
Clopidogrel
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007820
UMLS CUI [1,2]
C0070166
None
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0549184
UMLS CUI [1,2]
C0007820
UMLS CUI [1,3]
C0013227
Unknown
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C0007820
UMLS CUI [1,3]
C0013227
MS subtype
Description

MS subtype

Alias
UMLS CUI-1
C0449560
UMLS CUI-2
C0026769
MS subtype
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0026769
UMLS CUI [1,2]
C0449560
MS: Immunomodulatory medication at diagnosis of SARS-CoV-2
Description

MS: Immunomodulatory medication at diagnosis of SARS-CoV-2

Alias
UMLS CUI-1
C1963758
UMLS CUI-2
C0011900
UMLS CUI-3
C5203676
UMLS CUI-4
C0026769
Alemtuzumab
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0383429
Azathioprine
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0004482
Beta-Interferon
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0015980
Cladribine
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0092801
Dimethyl fumarate
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0058218
Fingolimod
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C1699926
Glatiramer acetate
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0289884
Intravenous immunoglobuline
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0085297
Low dose Corticosteroids (<100 mg Prednisolone equivalent / d)
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0445550
UMLS CUI [1,2]
C0001617
Mitoxantrone
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0026259
Natalizumab
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C1172734
Ocrelizumab
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C1882138
Rituximab
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0393022
Siponimod
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C3657824
Teriflunomide
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C1718383
Other
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1963758
Other
Description

Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1963758
UMLS CUI [1,3]
C1521902
Unknown
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C1963758
None
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0549184
UMLS CUI [1,2]
C1963758
MS: Immunomodulatory therapy was discontinued...
Description

MS: Immunomodulatory therapy was discontinued...

Alias
UMLS CUI-1
C1963758
UMLS CUI-2
C0558681
UMLS CUI-3
C0026769
Immunomodulatory therapy was discontinued...
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0558681
UMLS CUI [1,2]
C1963758
... prophylactically (fill in weeks before diagnosis)
Description

Note: This question is critical for the further course of the questionnaire.

Data type

float

Measurement units
  • weeks
Alias
UMLS CUI [1,1]
C0199176
UMLS CUI [1,2]
C1963758
UMLS CUI [1,3]
C0558681
UMLS CUI [1,4]
C0439230
UMLS CUI [1,5]
C0332152
UMLS CUI [1,6]
C0011900
UMLS CUI [1,7]
C3846158
weeks
Relapse treatment for multiple sclerosis in the last three months
Description

Relapse treatment for multiple sclerosis in the last three months

Alias
UMLS CUI-1
C0856120
UMLS CUI-2
C0087111
UMLS CUI-3
C0332185
Relapse treatment for multiple sclerosis in the last three months
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0856120
UMLS CUI [1,2]
C0087111
UMLS CUI [1,3]
C0332185
Severity of MS and B-cells at diagnosis of SARS-CoV-2
Description

Severity of MS and B-cells at diagnosis of SARS-CoV-2

Alias
UMLS CUI-1
C5203676
UMLS CUI-2
C0011900
UMLS CUI-3
C0521117
UMLS CUI-4
C0026769
UMLS CUI-5
C0004561
Severity of MS at diagnosis of SARS-CoV-2
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0026769
UMLS CUI [1,2]
C0521117
UMLS CUI [1,3]
C5203676
UMLS CUI [1,4]
C0011900
B-cells at diagnosis of SARS-CoV-2
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0004561
UMLS CUI [1,2]
C5203676
UMLS CUI [1,3]
C0011900
Neurological diagnostic: If neurological imaging (cCT, cMRI) was performed, please specify
Description

Neurological diagnostic: If neurological imaging (cCT, cMRI) was performed, please specify

Alias
UMLS CUI-1
C0086143
UMLS CUI-2
C0027855
UMLS CUI-3
C0011923
UMLS CUI-4
C1521902
cCT - Uncomplicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0040405
UMLS CUI [1,2]
C0443334
UMLS CUI [1,3]
C0205390
cCT - Complicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0040405
UMLS CUI [1,2]
C0231242
UMLS CUI [1,3]
C0205390
cCT - Critical phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0040405
UMLS CUI [1,2]
C1511545
UMLS CUI [1,3]
C0205390
cMRI - Uncomplicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0024485
UMLS CUI [1,2]
C0443334
UMLS CUI [1,3]
C0205390
cMRI - Complicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0024485
UMLS CUI [1,2]
C0231242
UMLS CUI [1,3]
C0205390
cMRI - Critical phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0024485
UMLS CUI [1,2]
C1511545
UMLS CUI [1,3]
C0205390
Neurological diagnostic: If an EEG was performed, please specify
Description

Neurological diagnostic: If an EEG was performed, please specify

Alias
UMLS CUI-1
C0086143
UMLS CUI-2
C0027855
UMLS CUI-3
C0013819
UMLS CUI-4
C1521902
EEG - Uncomplicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0013819
UMLS CUI [1,2]
C0443334
UMLS CUI [1,3]
C0205390
EEG - Complicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0013819
UMLS CUI [1,2]
C0231242
UMLS CUI [1,3]
C0205390
EEG - Critical phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0013819
UMLS CUI [1,2]
C1511545
UMLS CUI [1,3]
C0205390
Neurological diagnostic: If electrophysiology was performed, please specify
Description

Neurological diagnostic: If electrophysiology was performed, please specify

Alias
UMLS CUI-1
C0086143
UMLS CUI-2
C0027855
UMLS CUI-3
C0013816
UMLS CUI-4
C1521902
Ephy - Uncomplicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0013816
UMLS CUI [1,2]
C0443334
UMLS CUI [1,3]
C0205390
Ephy - Complicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0013816
UMLS CUI [1,2]
C0231242
UMLS CUI [1,3]
C0205390
Ephy - Critical phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0013816
UMLS CUI [1,2]
C1511545
UMLS CUI [1,3]
C0205390
Neurological diagnostic: If a spinal tap was performed, please specify
Description

Neurological diagnostic: If a spinal tap was performed, please specify

Alias
UMLS CUI-1
C0086143
UMLS CUI-2
C0027855
UMLS CUI-3
C0037943
UMLS CUI-4
C1521902
Cell count - Uncomplicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007584
UMLS CUI [1,2]
C0007806
UMLS CUI [1,3]
C0443334
UMLS CUI [1,4]
C0205390
Cell count - Complicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007584
UMLS CUI [1,2]
C0007806
UMLS CUI [1,3]
C0231242
UMLS CUI [1,4]
C0205390
Cell count - Critical phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007584
UMLS CUI [1,2]
C0007806
UMLS CUI [1,3]
C1511545
UMLS CUI [1,4]
C0205390
Glucose concentration - Uncomplicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0202040
UMLS CUI [1,2]
C0443334
UMLS CUI [1,3]
C0205390
Glucose concentration - Complicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0202040
UMLS CUI [1,2]
C0231242
UMLS CUI [1,3]
C0205390
Glucose concentration - Critical phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0202040
UMLS CUI [1,2]
C1511545
UMLS CUI [1,3]
C0205390
Lactate concentration - Uncomplicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C1167936
UMLS CUI [1,2]
C0443334
UMLS CUI [1,3]
C0205390
Lactate concentration - Complicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C1167936
UMLS CUI [1,2]
C0231242
UMLS CUI [1,3]
C0205390
Lactate concentration - Critical phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C1167936
UMLS CUI [1,2]
C1511545
UMLS CUI [1,3]
C0205390
Protein concentration - Uncomplicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0201943
UMLS CUI [1,2]
C0443334
UMLS CUI [1,3]
C0205390
Protein concentration - Complicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0201943
UMLS CUI [1,2]
C0231242
UMLS CUI [1,3]
C0205390
Protein concentration - Critical phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0201943
UMLS CUI [1,2]
C1511545
UMLS CUI [1,3]
C0205390
Oligoclonal bands type - Uncomplicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0201942
UMLS CUI [1,2]
C0332307
UMLS CUI [1,3]
C0443334
UMLS CUI [1,4]
C0205390
Oligoclonal bands type - Complicated phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0201942
UMLS CUI [1,2]
C0332307
UMLS CUI [1,3]
C0231242
UMLS CUI [1,4]
C0205390
Oligoclonal bands type - Critical phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0201942
UMLS CUI [1,2]
C0332307
UMLS CUI [1,3]
C1511545
UMLS CUI [1,4]
C0205390
Cerebrospinal fluid: Pathogen and antibody testing status
Description

Cerebrospinal fluid: Pathogen and antibody testing status

Alias
UMLS CUI-1
C1167875
UMLS CUI-2
C0450254
UMLS CUI-3
C0003241
Bacteria
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007806
UMLS CUI [1,2]
C0004611
Fungi
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007806
UMLS CUI [1,2]
C0016832
Virus
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007806
UMLS CUI [1,2]
C0042776
Antineuronal Antibody Status
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007806
UMLS CUI [1,2]
C3203587
Phase
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007806
UMLS CUI [1,2]
C0205390
Neurodegeneration
Description

Neurodegeneration

Alias
UMLS CUI-1
C0524851
Please specify: Dementia
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0497327
UMLS CUI [1,2]
C1521902
Other dementia, please specify
Description

Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0497327
UMLS CUI [1,3]
C1521902
Please specify: Movement disorder
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0026650
UMLS CUI [1,2]
C1521902
Please specify Motoneuron Disease
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0026609
UMLS CUI [1,2]
C0012634
UMLS CUI [1,3]
C1521902
Other:
Description

Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0026609
UMLS CUI [1,3]
C0012634
UMLS CUI [1,4]
C1521902
Disease duration
Description

Disease duration

Data type

integer

Alias
UMLS CUI [1,1]
C0872146
UMLS CUI [1,2]
C0524851
Neurological status prior to current illness: History of Gait
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0746866
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C5203676
UMLS CUI [2,1]
C0016928
UMLS CUI [2,2]
C0019664
Neurological status prior to current illness: History of falls
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0746866
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C5203676
UMLS CUI [2,1]
C0085639
UMLS CUI [2,2]
C0019664
Neurological status prior to current illness: Cognitive status
Description

Please fill in gap result of MoCa test if available, if not fill in "NA" (https://www.mocatest.org). Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0746866
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C5203676
UMLS CUI [2]
C0945985
Mild cognitive impairment
Description

Please fill in gap result of MoCa test if available, if not fill in "NA" (https://www.mocatest.org). Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C1270972
UMLS CUI [1,2]
C1521902
Mild dementia
Description

Please fill in gap result of MoCa test if available, if not fill in "NA" (https://www.mocatest.org). Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C0497327
UMLS CUI [1,3]
C2945599
Moderate dementia
Description

Please fill in gap result of MoCa test if available, if not fill in "NA" (https://www.mocatest.org). Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C3494871
Severe dementia
Description

Please fill in gap result of MoCa test if available, if not fill in "NA" (https://www.mocatest.org). Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C3494652
Neurological status prior to current illness: Speech
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0746866
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C0221423
UMLS CUI [2]
C0037817
Neurological status prior to current illness: Swallowing
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0746866
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C0221423
UMLS CUI [2]
C0011167
Neurological status prior to current illness: Respiration
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0746866
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C0221423
UMLS CUI [2]
C0035203
Previous nursing need
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0204650
UMLS CUI [1,2]
C0205156
Neurological medication prior to current disease
Description

Neurological medication prior to current disease

Alias
UMLS CUI-1
C2064865
UMLS CUI-2
C0332152
UMLS CUI-3
C5203676
None
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C2064865
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C5203676
UMLS CUI [1,4]
C0549184
Antidementive drugs
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C4722077
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C5203676
Antidepressant drugs
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0332152
UMLS CUI [1,2]
C5203676
UMLS CUI [1,3]
C0003289
Antiepileptic drugs
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0332152
UMLS CUI [1,2]
C5203676
UMLS CUI [1,3]
C0003299
Antipsychotic drugs
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0332152
UMLS CUI [1,2]
C5203676
UMLS CUI [1,3]
C0040615
Levodopa
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0023570
UMLS CUI [2]
C0003405
Dopamine Agonists
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1]
C0178601
UMLS CUI [2]
C0003405
Other
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0003405
UMLS CUI [1,2]
C0205394
Other, please specify
Description

Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1521902
UMLS CUI [1,3]
C0003405
Riluzole
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007680
UMLS CUI [1,2]
C0205394
UMLS CUI [2]
C0073379
Other
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007680
UMLS CUI [1,2]
C0205394
Other, please specify
Description

Note: This question is critical for the further course of the questionnaire.

Data type

text

Alias
UMLS CUI [1,1]
C0007680
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C1521902
Unknown
Description

Note: This question is critical for the further course of the questionnaire.

Data type

integer

Alias
UMLS CUI [1,1]
C0007680
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0439673
Is data entry for this section finished?
Description

Is data entry for this section finished?

Alias
UMLS CUI-1
C4684556
UMLS CUI-2
C1828479
UMLS CUI-3
C0205197
Is data entry for this section finished?
Description

Is data entry for this section finished?

Data type

integer

Alias
UMLS CUI [1,1]
C4684556
UMLS CUI [1,2]
C1828479
UMLS CUI [1,3]
C0205197

Similar models

Neurology - related baseline data

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Specification of neurological comorbidities
C0009488 (UMLS CUI-1)
C2348235 (UMLS CUI-2)
C0027763 (UMLS CUI-3)
Item
Brain tumor
integer
C0006118 (UMLS CUI [1])
Code List
Brain tumor
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Encephalitis
integer
C0014038 (UMLS CUI [1])
Code List
Encephalitis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Epilepsy
integer
C0014544 (UMLS CUI [1])
Code List
Epilepsy
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Hemorrhagic Stroke
integer
C0553692 (UMLS CUI [1])
Code List
Hemorrhagic Stroke
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Ischemic Stroke
integer
C0948008 (UMLS CUI [1])
Code List
Ischemic Stroke
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Meningitis
integer
C0025289 (UMLS CUI [1])
Code List
Meningitis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Migraine
integer
C0149931 (UMLS CUI [1])
Code List
Migraine
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Myasthenia, bulbar
integer
C0026896 (UMLS CUI [1,1])
C1856507 (UMLS CUI [1,2])
Code List
Myasthenia, bulbar
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Myasthenia, generalized
integer
C0751339 (UMLS CUI [1])
Code List
Myasthenia, generalized
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Myasthenia, ocular
integer
C0751340 (UMLS CUI [1])
Code List
Myasthenia, ocular
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Myositis
integer
C0027121 (UMLS CUI [1])
Code List
Myositis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Sinus/venous Thrombosis
integer
C4538576 (UMLS CUI [1])
C0027763 (UMLS CUI [2,1])
C0042487 (UMLS CUI [2,2])
Code List
Sinus/venous Thrombosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Subarachnoid bleeding
integer
C0038525 (UMLS CUI [1])
Code List
Subarachnoid bleeding
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Transitory ischemic attack (TIA)
integer
C0007787 (UMLS CUI [1])
Code List
Transitory ischemic attack (TIA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other:
integer
C0205394 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0027853 (UMLS CUI [1,3])
CL Item
not quoted (0)
CL Item
quoted (1)
Other neurological comorbidities, to specify
Item
Other, please specify:
text
C0205394 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0027853 (UMLS CUI [1,3])
C1521902 (UMLS CUI [1,4])
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0027853 (UMLS CUI [1,3])
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Cerebrovascular disease
C0007820 (UMLS CUI-1)
Item
If hemorrhagic stroke: Pattern of bleeding
integer
C0553692 (UMLS CUI [1,1])
C0449774 (UMLS CUI [1,2])
Code List
If hemorrhagic stroke: Pattern of bleeding
CL Item
Lobar hemorrhage (1)
CL Item
Loco typico for hypertensive origin (2)
CL Item
Multifocal disseminated bleedings (3)
CL Item
Unknown (4)
Item
If ischemic stroke: Most likely cause of stroke (TOAST)
integer
C0948008 (UMLS CUI [1,1])
C1710306 (UMLS CUI [1,2])
Code List
If ischemic stroke: Most likely cause of stroke (TOAST)
CL Item
Cardioembolic (CE) (1)
CL Item
Large-arteryatherosclerosis (LAA) (2)
CL Item
Small artery occlusion(SAO) (3)
CL Item
Other causes (OTH) (4)
CL Item
Undefined (UND) (5)
CL Item
Unknown (6)
Item
Year of diagnosis
integer
C0439234 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
C0007820 (UMLS CUI [1,3])
Code List
Year of diagnosis
CL Item
known (0)
CL Item
unknown (1)
Year of diagnosis of cerebrovascular disease, to specify
Item
Year of diagnosis, to specify
text
C0439234 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
C0007820 (UMLS CUI [1,4])
Item
Modified rankin scale at admission
integer
C2984908 (UMLS CUI [1,1])
C0457453 (UMLS CUI [1,2])
Code List
Modified rankin scale at admission
CL Item
1 - No significant disability. Able to carry out all usual activities, despite some symptoms (1)
CL Item
2 - Slight disability. Able to look after own affairs without assistance, but unable to carry out all previous activities (2)
CL Item
3 - Moderate disability. Requires some help, but able to walk unassisted (3)
CL Item
4 - Moderately severe disability. Unable to attend to own bodily needs without assistance, and unable to walk unassisted (4)
CL Item
5 - Severe disability. Requires constant nursing care and attention, bedridden, incontinent (5)
CL Item
6 - Dead (6)
CL Item
Unknown (7)
CL Item
0 - No symptoms (0)
MoCA score at admission
Item
MoCA score at admission
text
C2984908 (UMLS CUI [1,1])
C0457453 (UMLS CUI [1,2])
Item
Atrial fibrillation
integer
C0004238 (UMLS CUI [1])
Code List
Atrial fibrillation
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Internal carotid artery stenosis > 50 %
integer
C0205250 (UMLS CUI [1,1])
C0340569 (UMLS CUI [1,2])
Code List
Internal carotid artery stenosis > 50 %
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item Group
Medication
C0013227 (UMLS CUI-1)
C0007820 (UMLS CUI-2)
Item
Aspirin
integer
C0004057 (UMLS CUI [1,1])
C0007820 (UMLS CUI [1,2])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Statins
integer
C0007820 (UMLS CUI [1,1])
C0360714 (UMLS CUI [1,2])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Warfarin
integer
C0007820 (UMLS CUI [1,1])
C0043031 (UMLS CUI [1,2])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Dabigatran
integer
C0007820 (UMLS CUI [1,1])
C2348066 (UMLS CUI [1,2])
Code List
Dabigatran
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Apixaban
integer
C0007820 (UMLS CUI [1,1])
C1831808 (UMLS CUI [1,2])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Rivaroxaban
integer
C1739768 (UMLS CUI [1,1])
C0007820 (UMLS CUI [1,2])
Code List
Rivaroxaban
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Edoxaban
integer
C0007820 (UMLS CUI [1,1])
C2975435 (UMLS CUI [1,2])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Clopidogrel
integer
C0007820 (UMLS CUI [1,1])
C0070166 (UMLS CUI [1,2])
Code List
Clopidogrel
CL Item
not quoted (0)
CL Item
quoted (1)
Item
None
integer
C0549184 (UMLS CUI [1,1])
C0007820 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,3])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C0007820 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,3])
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
MS subtype
C0449560 (UMLS CUI-1)
C0026769 (UMLS CUI-2)
Item
MS subtype
integer
C0026769 (UMLS CUI [1,1])
C0449560 (UMLS CUI [1,2])
Code List
MS subtype
CL Item
PPMS (1)
CL Item
RRMS/CIS (2)
CL Item
SPMS (3)
CL Item
Unknown (4)
Item Group
MS: Immunomodulatory medication at diagnosis of SARS-CoV-2
C1963758 (UMLS CUI-1)
C0011900 (UMLS CUI-2)
C5203676 (UMLS CUI-3)
C0026769 (UMLS CUI-4)
Item
Alemtuzumab
integer
C0383429 (UMLS CUI [1])
Code List
Alemtuzumab
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Azathioprine
integer
C0004482 (UMLS CUI [1])
Code List
Azathioprine
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Beta-Interferon
integer
C0015980 (UMLS CUI [1])
Code List
Beta-Interferon
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Cladribine
integer
C0092801 (UMLS CUI [1])
Code List
Cladribine
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Dimethyl fumarate
integer
C0058218 (UMLS CUI [1])
Code List
Dimethyl fumarate
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Fingolimod
integer
C1699926 (UMLS CUI [1])
Code List
Fingolimod
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Glatiramer acetate
integer
C0289884 (UMLS CUI [1])
Code List
Glatiramer acetate
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Intravenous immunoglobuline
integer
C0085297 (UMLS CUI [1])
Code List
Intravenous immunoglobuline
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Low dose Corticosteroids (<100 mg Prednisolone equivalent / d)
integer
C0445550 (UMLS CUI [1,1])
C0001617 (UMLS CUI [1,2])
Code List
Low dose Corticosteroids (<100 mg Prednisolone equivalent / d)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Mitoxantrone
integer
C0026259 (UMLS CUI [1])
Code List
Mitoxantrone
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Natalizumab
integer
C1172734 (UMLS CUI [1])
Code List
Natalizumab
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Ocrelizumab
integer
C1882138 (UMLS CUI [1])
Code List
Ocrelizumab
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Rituximab
integer
C0393022 (UMLS CUI [1])
Code List
Rituximab
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Siponimod
integer
C3657824 (UMLS CUI [1])
Code List
Siponimod
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Teriflunomide
integer
C1718383 (UMLS CUI [1])
Code List
Teriflunomide
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0205394 (UMLS CUI [1,1])
C1963758 (UMLS CUI [1,2])
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other Immunomodulatory medication, to specify
Item
Other
text
C0205394 (UMLS CUI [1,1])
C1963758 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C1963758 (UMLS CUI [1,2])
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item
None
integer
C0549184 (UMLS CUI [1,1])
C1963758 (UMLS CUI [1,2])
Code List
None
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
MS: Immunomodulatory therapy was discontinued...
C1963758 (UMLS CUI-1)
C0558681 (UMLS CUI-2)
C0026769 (UMLS CUI-3)
Item
Immunomodulatory therapy was discontinued...
integer
C0558681 (UMLS CUI [1,1])
C1963758 (UMLS CUI [1,2])
Code List
Immunomodulatory therapy was discontinued...
CL Item
No (6)
CL Item
Yes, at diagnosis of SARS-CoV-2 (7)
CL Item
... prophylactically (fill in weeks before diagnosis) (22)
CL Item
Yes at worsening of symptoms (23)
... prophylactically (fill in weeks before diagnosis)
Item
... prophylactically (fill in weeks before diagnosis)
float
C0199176 (UMLS CUI [1,1])
C1963758 (UMLS CUI [1,2])
C0558681 (UMLS CUI [1,3])
C0439230 (UMLS CUI [1,4])
C0332152 (UMLS CUI [1,5])
C0011900 (UMLS CUI [1,6])
C3846158 (UMLS CUI [1,7])
Item Group
Relapse treatment for multiple sclerosis in the last three months
C0856120 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
C0332185 (UMLS CUI-3)
Item
Relapse treatment for multiple sclerosis in the last three months
integer
C0856120 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C0332185 (UMLS CUI [1,3])
Code List
Relapse treatment for multiple sclerosis in the last three months
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item Group
Severity of MS and B-cells at diagnosis of SARS-CoV-2
C5203676 (UMLS CUI-1)
C0011900 (UMLS CUI-2)
C0521117 (UMLS CUI-3)
C0026769 (UMLS CUI-4)
C0004561 (UMLS CUI-5)
Item
Severity of MS at diagnosis of SARS-CoV-2
integer
C0026769 (UMLS CUI [1,1])
C0521117 (UMLS CUI [1,2])
C5203676 (UMLS CUI [1,3])
C0011900 (UMLS CUI [1,4])
Code List
Severity of MS at diagnosis of SARS-CoV-2
CL Item
Walking distance unrestricted (1)
CL Item
500 meters without walking aid (2)
CL Item
Use of walking aid (3)
CL Item
Wheelchair (4)
CL Item
Bedridden (5)
CL Item
Unknown (6)
Item
B-cells at diagnosis of SARS-CoV-2
integer
C0004561 (UMLS CUI [1,1])
C5203676 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Code List
B-cells at diagnosis of SARS-CoV-2
CL Item
CD19/CD20 depleted (0/µl resp. 0%) (1)
CL Item
CD19/CD20 count decreased (<90/µl resp. <6%) (7)
CL Item
CD19/CD20 count normal (90/µl-660/µl resp. 6%-25%) (8)
CL Item
Not done (11)
CL Item
Unknown (12)
Item Group
Neurological diagnostic: If neurological imaging (cCT, cMRI) was performed, please specify
C0086143 (UMLS CUI-1)
C0027855 (UMLS CUI-2)
C0011923 (UMLS CUI-3)
C1521902 (UMLS CUI-4)
Item
cCT - Uncomplicated phase
integer
C0040405 (UMLS CUI [1,1])
C0443334 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
cCT - Uncomplicated phase
CL Item
Normal (1)
CL Item
Bleeding (2)
CL Item
Inflammation (3)
CL Item
Ischemia (4)
CL Item
Other pathological result (5)
CL Item
Not done (6)
Item
cCT - Complicated phase
integer
C0040405 (UMLS CUI [1,1])
C0231242 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
cCT - Complicated phase
CL Item
Normal (1)
CL Item
Bleeding (2)
CL Item
Inflammation (3)
CL Item
Ischemia (4)
CL Item
Other pathological result (5)
CL Item
Not done (6)
Item
cCT - Critical phase
integer
C0040405 (UMLS CUI [1,1])
C1511545 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
cCT - Critical phase
CL Item
Normal (1)
CL Item
Bleeding (2)
CL Item
Inflammation (3)
CL Item
Ischemia (4)
CL Item
Other pathological result (5)
CL Item
Not done (6)
Item
cMRI - Uncomplicated phase
integer
C0024485 (UMLS CUI [1,1])
C0443334 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
cMRI - Uncomplicated phase
CL Item
Normal (1)
CL Item
Bleeding (2)
CL Item
Inflammation (3)
CL Item
Ischemia (4)
CL Item
Other pathological result (5)
CL Item
Not done (6)
Item
cMRI - Complicated phase
integer
C0024485 (UMLS CUI [1,1])
C0231242 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
cMRI - Complicated phase
CL Item
Normal (1)
CL Item
Bleeding (2)
CL Item
Inflammation (3)
CL Item
Ischemia (4)
CL Item
Other pathological result (5)
CL Item
Not done (6)
Item
cMRI - Critical phase
integer
C0024485 (UMLS CUI [1,1])
C1511545 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
cMRI - Critical phase
CL Item
Normal (1)
CL Item
Bleeding (2)
CL Item
Inflammation (3)
CL Item
Ischemia (4)
CL Item
Other pathological result (5)
CL Item
Not done (6)
Item Group
Neurological diagnostic: If an EEG was performed, please specify
C0086143 (UMLS CUI-1)
C0027855 (UMLS CUI-2)
C0013819 (UMLS CUI-3)
C1521902 (UMLS CUI-4)
Item
EEG - Uncomplicated phase
integer
C0013819 (UMLS CUI [1,1])
C0443334 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
EEG - Uncomplicated phase
CL Item
Normal (1)
CL Item
Global Slowing (2)
CL Item
Spike/Wave Configurations (3)
CL Item
Other pathological result (4)
CL Item
Not done (5)
Item
EEG - Complicated phase
integer
C0013819 (UMLS CUI [1,1])
C0231242 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
EEG - Complicated phase
CL Item
Normal (1)
CL Item
Global Slowing (2)
CL Item
Spike/Wave Configurations (3)
CL Item
Other pathological result (4)
CL Item
Not done (5)
Item
EEG - Critical phase
integer
C0013819 (UMLS CUI [1,1])
C1511545 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
EEG - Critical phase
CL Item
Normal (1)
CL Item
Global Slowing (2)
CL Item
Spike/Wave Configurations (3)
CL Item
Other pathological result (4)
CL Item
Not done (5)
Item Group
Neurological diagnostic: If electrophysiology was performed, please specify
C0086143 (UMLS CUI-1)
C0027855 (UMLS CUI-2)
C0013816 (UMLS CUI-3)
C1521902 (UMLS CUI-4)
Item
Ephy - Uncomplicated phase
integer
C0013816 (UMLS CUI [1,1])
C0443334 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Ephy - Uncomplicated phase
CL Item
Normal (1)
CL Item
Myopathy (2)
CL Item
Neuropathy (3)
CL Item
Mixed (4)
CL Item
Other pathological result (5)
CL Item
Not done (6)
Item
Ephy - Complicated phase
integer
C0013816 (UMLS CUI [1,1])
C0231242 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Ephy - Complicated phase
CL Item
Normal (1)
CL Item
Myopathy (2)
CL Item
Neuropathy (3)
CL Item
Mixed (4)
CL Item
Other pathological result (5)
CL Item
Not done (6)
Item
Ephy - Critical phase
integer
C0013816 (UMLS CUI [1,1])
C1511545 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Ephy - Critical phase
CL Item
Normal (1)
CL Item
Myopathy (2)
CL Item
Neuropathy (3)
CL Item
Mixed (4)
CL Item
Other pathological result (5)
CL Item
Not done (6)
Item Group
Neurological diagnostic: If a spinal tap was performed, please specify
C0086143 (UMLS CUI-1)
C0027855 (UMLS CUI-2)
C0037943 (UMLS CUI-3)
C1521902 (UMLS CUI-4)
Item
Cell count - Uncomplicated phase
integer
C0007584 (UMLS CUI [1,1])
C0007806 (UMLS CUI [1,2])
C0443334 (UMLS CUI [1,3])
C0205390 (UMLS CUI [1,4])
Code List
Cell count - Uncomplicated phase
CL Item
0,4/μL (normal) (1)
CL Item
5-30/μL (2)
CL Item
31-200/μL (3)
CL Item
201-500/μL (4)
CL Item
>500/μL (5)
CL Item
Not done / unknown (6)
Item
Cell count - Complicated phase
integer
C0007584 (UMLS CUI [1,1])
C0007806 (UMLS CUI [1,2])
C0231242 (UMLS CUI [1,3])
C0205390 (UMLS CUI [1,4])
Code List
Cell count - Complicated phase
CL Item
0,4/μL (normal) (1)
CL Item
5-30/μL (2)
CL Item
31-200/μL (3)
CL Item
201-500/μL (4)
CL Item
>500/μL (5)
CL Item
Not done / unknown (6)
Item
Cell count - Critical phase
integer
C0007584 (UMLS CUI [1,1])
C0007806 (UMLS CUI [1,2])
C1511545 (UMLS CUI [1,3])
C0205390 (UMLS CUI [1,4])
Code List
Cell count - Critical phase
CL Item
0,4/μL (normal) (1)
CL Item
5-30/μL (2)
CL Item
31-200/μL (3)
CL Item
201-500/μL (4)
CL Item
>500/μL (5)
CL Item
Not done / unknown (6)
Item
Glucose concentration - Uncomplicated phase
integer
C0202040 (UMLS CUI [1,1])
C0443334 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Glucose concentration - Uncomplicated phase
CL Item
Normal (1)
CL Item
Reduced (2)
CL Item
Increased (3)
CL Item
Not done / unknown (4)
Item
Glucose concentration - Complicated phase
integer
C0202040 (UMLS CUI [1,1])
C0231242 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Glucose concentration - Complicated phase
CL Item
Normal (1)
CL Item
Reduced (2)
CL Item
Increased (3)
CL Item
Not done / unknown (4)
Item
Glucose concentration - Critical phase
integer
C0202040 (UMLS CUI [1,1])
C1511545 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Glucose concentration - Critical phase
CL Item
Normal (1)
CL Item
Reduced (2)
CL Item
Increased (3)
CL Item
Not done / unknown (4)
Item
Lactate concentration - Uncomplicated phase
integer
C1167936 (UMLS CUI [1,1])
C0443334 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Lactate concentration - Uncomplicated phase
CL Item
<2.1 mmol/L (1)
CL Item
2.2 - 2-6 mmol/L (2)
CL Item
2.6 - 3.5 mmol/L (3)
CL Item
>3.5 mmol/L (4)
CL Item
Not done / unknown (5)
Item
Lactate concentration - Complicated phase
integer
C1167936 (UMLS CUI [1,1])
C0231242 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Lactate concentration - Complicated phase
CL Item
<2.1 mmol/L (1)
CL Item
2.2 - 2-6 mmol/L (2)
CL Item
2.6 - 3.5 mmol/L (3)
CL Item
>3.5 mmol/L (4)
CL Item
Not done / unknown (5)
Item
Lactate concentration - Critical phase
integer
C1167936 (UMLS CUI [1,1])
C1511545 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Lactate concentration - Critical phase
CL Item
<2.1 mmol/L (1)
CL Item
2.2 - 2-6 mmol/L (2)
CL Item
2.6 - 3.5 mmol/L (3)
CL Item
>3.5 mmol/L (4)
CL Item
Not done / unknown (5)
Item
Protein concentration - Uncomplicated phase
integer
C0201943 (UMLS CUI [1,1])
C0443334 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Protein concentration - Uncomplicated phase
CL Item
<0.14 g/L (1)
CL Item
0.15-0.45 g/L (normal) (2)
CL Item
0.46-1.0 g/L (3)
CL Item
1.0-2.0 g/L (4)
CL Item
>2.0 g/L (5)
CL Item
Not done / unknown (6)
Item
Protein concentration - Complicated phase
integer
C0201943 (UMLS CUI [1,1])
C0231242 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Protein concentration - Complicated phase
CL Item
<0.14 g/L (1)
CL Item
0.15-0.45 g/L (normal) (2)
CL Item
0.46-1.0 g/L (3)
CL Item
1.0-2.0 g/L (4)
CL Item
>2.0 g/L (5)
CL Item
Not done / unknown (6)
Item
Protein concentration - Critical phase
integer
C0201943 (UMLS CUI [1,1])
C1511545 (UMLS CUI [1,2])
C0205390 (UMLS CUI [1,3])
Code List
Protein concentration - Critical phase
CL Item
<0.14 g/L (1)
CL Item
0.15-0.45 g/L (normal) (2)
CL Item
0.46-1.0 g/L (3)
CL Item
1.0-2.0 g/L (4)
CL Item
>2.0 g/L (5)
CL Item
Not done / unknown (6)
Item
Oligoclonal bands type - Uncomplicated phase
integer
C0201942 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0443334 (UMLS CUI [1,3])
C0205390 (UMLS CUI [1,4])
Code List
Oligoclonal bands type - Uncomplicated phase
CL Item
Type 1 or 4 (normal or identical bands) (1)
CL Item
Type 2 or 3 (intrathecal antibody synthesis) (2)
CL Item
Type 5 (monoclonal bands (3)
CL Item
Not done / unknown (4)
Item
Oligoclonal bands type - Complicated phase
integer
C0201942 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0231242 (UMLS CUI [1,3])
C0205390 (UMLS CUI [1,4])
Code List
Oligoclonal bands type - Complicated phase
CL Item
Type 1 or 4 (normal or identical bands) (1)
CL Item
Type 2 or 3 (intrathecal antibody synthesis) (2)
CL Item
Type 5 (monoclonal bands (3)
CL Item
Not done / unknown (4)
Item
Oligoclonal bands type - Critical phase
integer
C0201942 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C1511545 (UMLS CUI [1,3])
C0205390 (UMLS CUI [1,4])
Code List
Oligoclonal bands type - Critical phase
CL Item
Type 1 or 4 (normal or identical bands) (1)
CL Item
Type 2 or 3 (intrathecal antibody synthesis) (2)
CL Item
Type 5 (monoclonal bands (3)
CL Item
Not done / unknown (4)
Item Group
Cerebrospinal fluid: Pathogen and antibody testing status
C1167875 (UMLS CUI-1)
C0450254 (UMLS CUI-2)
C0003241 (UMLS CUI-3)
Item
Bacteria
integer
C0007806 (UMLS CUI [1,1])
C0004611 (UMLS CUI [1,2])
Code List
Bacteria
CL Item
Borrelia burgdorferi (1)
CL Item
Haemophilus influenzae (2)
CL Item
Listeria monocytogenes (3)
CL Item
Neisseria meningitidis (4)
CL Item
Pseudomonas aeruginosa (5)
CL Item
Staphylococcus aureus (6)
CL Item
Staphylococcus epidermidis (7)
CL Item
Streptococcus pneumoniae (8)
CL Item
Treponema pallidum (9)
CL Item
Other (10)
CL Item
None (11)
CL Item
Not done / unknown (12)
Item
Fungi
integer
C0007806 (UMLS CUI [1,1])
C0016832 (UMLS CUI [1,2])
Code List
Fungi
CL Item
Positive (1)
CL Item
Negative (2)
CL Item
Not done / unknown (3)
Item
Virus
integer
C0007806 (UMLS CUI [1,1])
C0042776 (UMLS CUI [1,2])
Code List
Virus
CL Item
CMV (1)
CL Item
EBV (2)
CL Item
Enterovirus (3)
CL Item
HIV (4)
CL Item
HSV 1 (5)
CL Item
HSV 2 (6)
CL Item
JCV (7)
CL Item
SARS-CoV-2 (8)
CL Item
VZV (9)
CL Item
Other (10)
CL Item
None (11)
CL Item
Not done / unknown (12)
Item
Antineuronal Antibody Status
integer
C0007806 (UMLS CUI [1,1])
C3203587 (UMLS CUI [1,2])
Code List
Antineuronal Antibody Status
CL Item
LGI1 (1)
CL Item
NMDAR (2)
CL Item
Other (3)
CL Item
None (4)
CL Item
Not done / unknown (5)
Item
Phase
integer
C0007806 (UMLS CUI [1,1])
C0205390 (UMLS CUI [1,2])
Code List
Phase
CL Item
Uncomplicated phase (1)
CL Item
Complicated phase (2)
CL Item
Critical phase (3)
Item Group
Neurodegeneration
C0524851 (UMLS CUI-1)
Item
Please specify: Dementia
integer
C0497327 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Code List
Please specify: Dementia
CL Item
Alzheimer's disease (AD) (1)
CL Item
Dementia with Lewy-bodies (DLB) (2)
CL Item
Frontotemporal dementia (FTD) (3)
CL Item
Parkinson's dementia (PDD) (4)
CL Item
Vascular dementia (VD) (5)
CL Item
Other dementia, please specify (6)
CL Item
Unknown (7)
If other dementia, please specify
Item
Other dementia, please specify
text
C0205394 (UMLS CUI [1,1])
C0497327 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Please specify: Movement disorder
integer
C0026650 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Code List
Please specify: Movement disorder
CL Item
Ataxia, hereditary (1)
CL Item
Ataxia, other (2)
CL Item
Corticobasal Syndrome (CBS) (3)
CL Item
Dystonia (4)
CL Item
Essential Tremor (5)
CL Item
Tremor, other (6)
CL Item
Huntington's disease (HD) (7)
CL Item
Multiple System Atrophy (MSA) (8)
CL Item
Parkinson's disease (PD) (9)
CL Item
Other Parkinsonism (10)
CL Item
Progressive Supranuclear Palsy (PSP) (11)
CL Item
Unknown (12)
Item
Please specify Motoneuron Disease
integer
C0026609 (UMLS CUI [1,1])
C0012634 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Code List
Please specify Motoneuron Disease
CL Item
Amyotrophic lateral sclerosis (ALS) (1)
CL Item
Spinal muscular atrophy (SMA) (2)
CL Item
Other: (3)
CL Item
Unknown (4)
If other Motoneuron Disease, please specify
Item
Other:
text
C0205394 (UMLS CUI [1,1])
C0026609 (UMLS CUI [1,2])
C0012634 (UMLS CUI [1,3])
C1521902 (UMLS CUI [1,4])
Item
Disease duration
integer
C0872146 (UMLS CUI [1,1])
C0524851 (UMLS CUI [1,2])
Code List
Disease duration
CL Item
2 - 5 years (1)
CL Item
2 - 5 years (1)
CL Item
6 - 10 years (2)
CL Item
11 - 20 years (3)
CL Item
>20 years (4)
CL Item
Unknown (5)
Item
Neurological status prior to current illness: History of Gait
integer
C0746866 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C5203676 (UMLS CUI [1,3])
C0016928 (UMLS CUI [2,1])
C0019664 (UMLS CUI [2,2])
Code List
Neurological status prior to current illness: History of Gait
CL Item
< 4 steps without walking aid (1)
CL Item
Wheelchair (3)
CL Item
< 4 steps without walking aid (1)
CL Item
Use a walking aid (2)
CL Item
Wheelchair (3)
CL Item
Bedridden (4)
CL Item
Unknown (5)
Item
Neurological status prior to current illness: History of falls
integer
C0746866 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C5203676 (UMLS CUI [1,3])
C0085639 (UMLS CUI [2,1])
C0019664 (UMLS CUI [2,2])
Code List
Neurological status prior to current illness: History of falls
CL Item
None (1)
CL Item
Any (2)
CL Item
Unknown (3)
Item
Neurological status prior to current illness: Cognitive status
integer
C0746866 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C5203676 (UMLS CUI [1,3])
C0945985 (UMLS CUI [2])
Code List
Neurological status prior to current illness: Cognitive status
CL Item
Subjective cognitive impairment (1)
CL Item
Subjective cognitive impairment (1)
CL Item
Mild cognitive impairment (2)
CL Item
Mild dementia (3)
CL Item
Moderate dementia (4)
CL Item
Severe dementia (5)
CL Item
Unknown (6)
If Mild cognitive impairment, please specify
Item
Mild cognitive impairment
text
C1270972 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
If Mild dementia, please specify
Item
Mild dementia
text
C1521902 (UMLS CUI [1,1])
C0497327 (UMLS CUI [1,2])
C2945599 (UMLS CUI [1,3])
If Moderate dementia, please specify
Item
Moderate dementia
text
C1521902 (UMLS CUI [1,1])
C3494871 (UMLS CUI [1,2])
If Severe dementia, please specify
Item
Severe dementia
text
C1521902 (UMLS CUI [1,1])
C3494652 (UMLS CUI [1,2])
Item
Neurological status prior to current illness: Speech
integer
C0746866 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
C0037817 (UMLS CUI [2])
Code List
Neurological status prior to current illness: Speech
CL Item
Normal (1)
CL Item
Aphasic (2)
CL Item
Slurred (dysarthric) (3)
CL Item
Unknown (4)
Item
Neurological status prior to current illness: Swallowing
integer
C0746866 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
C0011167 (UMLS CUI [2])
Code List
Neurological status prior to current illness: Swallowing
CL Item
Normal (1)
CL Item
E.g. dysphagic, but oral nutrition possible (2)
CL Item
Percutaneous endoscopic gastrostomy (PEG) (3)
CL Item
Parenteral nutrition (4)
CL Item
Unknown (5)
Item
Neurological status prior to current illness: Respiration
integer
C0746866 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
C0035203 (UMLS CUI [2])
Code List
Neurological status prior to current illness: Respiration
CL Item
Normal (1)
CL Item
Dyspnoeic, at rest (2)
CL Item
Dyspnoeic, on exertion (3)
CL Item
Non-invasive ventilation (NIV), intermittent (4)
CL Item
Non-invasive ventilation (NIV), permanent (5)
CL Item
Invasive ventilation (IV), permanent (6)
CL Item
Unknown (7)
Item
Previous nursing need
integer
C0204650 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
Code List
Previous nursing need
CL Item
None (independent) (1)
CL Item
Minimal (independent, but some help needed) (2)
CL Item
Significant (dependent for some activities of daily life) (3)
CL Item
Severe (dependent for many activities of daily life) (4)
CL Item
Massive (dependent for most activities of daily life) (5)
CL Item
Complete (dependent for all activities of daily life) (6)
CL Item
Unknown (7)
Item Group
Neurological medication prior to current disease
C2064865 (UMLS CUI-1)
C0332152 (UMLS CUI-2)
C5203676 (UMLS CUI-3)
Item
None
integer
C2064865 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C5203676 (UMLS CUI [1,3])
C0549184 (UMLS CUI [1,4])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Antidementive drugs
integer
C4722077 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C5203676 (UMLS CUI [1,3])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Antidepressant drugs
integer
C0332152 (UMLS CUI [1,1])
C5203676 (UMLS CUI [1,2])
C0003289 (UMLS CUI [1,3])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Antiepileptic drugs
integer
C0332152 (UMLS CUI [1,1])
C5203676 (UMLS CUI [1,2])
C0003299 (UMLS CUI [1,3])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Antipsychotic drugs
integer
C0332152 (UMLS CUI [1,1])
C5203676 (UMLS CUI [1,2])
C0040615 (UMLS CUI [1,3])
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Levodopa
integer
C0023570 (UMLS CUI [1])
C0003405 (UMLS CUI [2])
Code List
Levodopa
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Dopamine Agonists
integer
C0178601 (UMLS CUI [1])
C0003405 (UMLS CUI [2])
Code List
Dopamine Agonists
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0003405 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other Antiparkinsonian drugs, please specify
Item
Other, please specify
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
C0003405 (UMLS CUI [1,3])
Item
Riluzole
integer
C0007680 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0073379 (UMLS CUI [2])
Code List
Riluzole
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0007680 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other CNS acting drugs, please specify
Item
Other, please specify
text
C0007680 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Unknown
integer
C0007680 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Is data entry for this section finished?
C4684556 (UMLS CUI-1)
C1828479 (UMLS CUI-2)
C0205197 (UMLS CUI-3)
Item
Is data entry for this section finished?
integer
C4684556 (UMLS CUI [1,1])
C1828479 (UMLS CUI [1,2])
C0205197 (UMLS CUI [1,3])
Code List
Is data entry for this section finished?
CL Item
Yes (1)
CL Item
No (2)

Please use this form for feedback, questions and suggestions for improvements.

Fields marked with * are required.

Do you need help on how to use the search function? Please watch the corresponding tutorial video for more details and learn how to use the search function most efficiently.

Watch Tutorial