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ID

41548

Beschrijving

Study Title: LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients https://leoss.net Study Indication: COVID-19 Date: 14.10.2020, 15:13 Published with permission by Prof. Dr. med. J.-J. Vehreschild. LEOSS is mandated by the ESCMID Emerging Infections Task Force (EITaF) and supported by the German Infectious Disease Society. It aims at a better understanding of the implications of the new virus on patients by systematically documenting patient data across Europe (Text adapted from leoss.net). For more information please visit the official website. This document is for Solid organ transplant related data. All questions refer to the day of diagnosis (diagnosis means first positive virus result). Please note that only cases with known outcome are collected at LEOSS!

Link

https://leoss.net

Trefwoorden

Versies (3)
  1. 05-11-20 05-11-20 -
  2. 24-04-21 24-04-21 -
  3. 11-05-21 11-05-21 - Sarah Riepenhausen
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LEOSS

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5 november 2020

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Creative Commons BY 4.0
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    LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients

    Engels

    Solid organ transplant related data

    1 Formulieren  
    Type of functioning organ transplant
    Beschrijving

    Type of functioning organ transplant

    Alias
    UMLS CUI-1
    C0029216
    UMLS CUI-2
    C0332307
    Heart
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0018787
    UMLS CUI [1,2]
    C0029216
    Liver
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0023884
    UMLS CUI [1,2]
    C0029216
    Lung
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0024109
    UMLS CUI [1,2]
    C0029216
    Kidney
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0022646
    UMLS CUI [1,2]
    C0029216
    Pancreas
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0030274
    UMLS CUI [1,2]
    C0029216
    Small bowel
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0021852
    UMLS CUI [1,2]
    C0029216
    Unknown
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0439673
    UMLS CUI [1,2]
    C0029216
    Most recent transplantation
    Beschrijving

    Most recent transplantation

    Alias
    UMLS CUI-1
    C1513491
    UMLS CUI-2
    C0029216
    Most recent transplantation
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C1513491
    UMLS CUI [1,2]
    C0029216
    Immunsuppression at diagnosis of SARS-CoV-2
    Beschrijving

    Immunsuppression at diagnosis of SARS-CoV-2

    Alias
    UMLS CUI-1
    C5203676
    UMLS CUI-2
    C0021079
    UMLS CUI-3
    C0011900
    Azathioprine
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1]
    C0004482
    Belatacept
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1]
    C1619962
    Corticosteroids
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1]
    C0001617
    Cyclosporine
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1]
    C0010592
    mTOR-Inhibitor
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1]
    C2746052
    Mycophenolic acid/mycofenolate mofetil
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1]
    C0026933
    UMLS CUI [2]
    C0209368
    Tacrolimus
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1]
    C0085149
    Other
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0205394
    UMLS CUI [1,2]
    C0021079
    Graft status before COVID-19
    Beschrijving

    Graft status before COVID-19

    Alias
    UMLS CUI-1
    C0478647
    UMLS CUI-2
    C0332152
    UMLS CUI-3
    C5203676
    Stable graft function over >3 months
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0478647
    UMLS CUI [1,2]
    C0205360
    UMLS CUI [1,3]
    C0449238
    Known chronic rejection
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0877542
    UMLS CUI [1,2]
    C0205191
    UMLS CUI [1,3]
    C0205309
    T-cell depleting therapy within last 6 months
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0677960
    UMLS CUI [1,2]
    C0332185
    B-cell depleting therapy within last 6 months
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C1171324
    UMLS CUI [1,2]
    C0332185
    Steroid bolus therapy within last 6 months
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0149783
    UMLS CUI [1,2]
    C1705509
    UMLS CUI [1,3]
    C0332185
    Unknown
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0439673
    UMLS CUI [1,2]
    C0478647
    Therapeutic measures of transplant specific therapy
    Beschrijving

    Therapeutic measures of transplant specific therapy

    Alias
    UMLS CUI-1
    C0087111
    UMLS CUI-2
    C0079809
    UMLS CUI-3
    C0029216
    Azathioprine dose
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0004482
    UMLS CUI [1,2]
    C3174092
    Belatacept dose
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C3174092
    UMLS CUI [1,2]
    C1619962
    Corticosteroid dose
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0001617
    UMLS CUI [1,2]
    C3174092
    Cyclosporine dose
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0010592
    UMLS CUI [1,2]
    C3174092
    mTOR-Inhibitor dose
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C2746052
    UMLS CUI [1,2]
    C3174092
    Mycophenolic acid/mycofenolate mofetil dose
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0026933
    UMLS CUI [1,2]
    C3174092
    UMLS CUI [2,1]
    C0209368
    UMLS CUI [2,2]
    C3174092
    Tacrolimus dose
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0085149
    UMLS CUI [1,2]
    C3174092
    Other
    Beschrijving

    Note: This question is critical for the further course of the questionnaire.

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C0205394
    UMLS CUI [1,2]
    C0087111
    UMLS CUI [1,3]
    C0079809
    UMLS CUI [1,4]
    C0029216
    Is data entry for this section finished?
    Beschrijving

    Is data entry for this section finished?

    Alias
    UMLS CUI-1
    C4684556
    UMLS CUI-2
    C1828479
    UMLS CUI-3
    C0205197
    Is data entry for this section finished?
    Beschrijving

    Is data entry for this section finished?

    Datatype

    integer

    Alias
    UMLS CUI [1,1]
    C4684556
    UMLS CUI [1,2]
    C1828479
    UMLS CUI [1,3]
    C0205197
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    Similar models

    Solid organ transplant related data

    1 Formulieren
    Name
    Type
    Description | Question | Decode (Coded Value)
    Datatype
    Alias
    Item Group
    Type of functioning organ transplant
    C0029216 (UMLS CUI-1)
    C0332307 (UMLS CUI-2)
    Item
    Heart
    integer
    C0018787 (UMLS CUI [1,1])
    C0029216 (UMLS CUI [1,2])
    Heart
    Code List
    Heart
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    Liver
    integer
    C0023884 (UMLS CUI [1,1])
    C0029216 (UMLS CUI [1,2])
    Liver
    Code List
    Liver
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    Lung
    integer
    C0024109 (UMLS CUI [1,1])
    C0029216 (UMLS CUI [1,2])
    Lung
    Code List
    Lung
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    Kidney
    integer
    C0022646 (UMLS CUI [1,1])
    C0029216 (UMLS CUI [1,2])
    Kidney
    Code List
    Kidney
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    Pancreas
    integer
    C0030274 (UMLS CUI [1,1])
    C0029216 (UMLS CUI [1,2])
    Pancreas
    Code List
    Pancreas
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    Small bowel
    integer
    C0021852 (UMLS CUI [1,1])
    C0029216 (UMLS CUI [1,2])
    Small bowel
    Code List
    Small bowel
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    Unknown
    integer
    C0439673 (UMLS CUI [1,1])
    C0029216 (UMLS CUI [1,2])
    Unknown
    Code List
    Unknown
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item Group
    Most recent transplantation
    C1513491 (UMLS CUI-1)
    C0029216 (UMLS CUI-2)
    Item
    Most recent transplantation
    integer
    C1513491 (UMLS CUI [1,1])
    C0029216 (UMLS CUI [1,2])
    TX_recent
    Code List
    Most recent transplantation
    CL Item
    <3 months (1)
    CL Item
    3 - 12 months (2)
    CL Item
    > 12 months (3)
    CL Item
    Unknown (4)
    Item Group
    Immunsuppression at diagnosis of SARS-CoV-2
    C5203676 (UMLS CUI-1)
    C0021079 (UMLS CUI-2)
    C0011900 (UMLS CUI-3)
    Item
    Azathioprine
    integer
    C0004482 (UMLS CUI [1])
    Azathioprine
    Code List
    Azathioprine
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    Belatacept
    integer
    C1619962 (UMLS CUI [1])
    Belatacept
    Code List
    Belatacept
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    Corticosteroids
    integer
    C0001617 (UMLS CUI [1])
    Corticosteroids
    Code List
    Corticosteroids
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    Cyclosporine
    integer
    C0010592 (UMLS CUI [1])
    Cyclosporine
    Code List
    Cyclosporine
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    mTOR-Inhibitor
    integer
    C2746052 (UMLS CUI [1])
    mTOR-Inhibitor
    Code List
    mTOR-Inhibitor
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    Mycophenolic acid/mycofenolate mofetil
    integer
    C0026933 (UMLS CUI [1])
    C0209368 (UMLS CUI [2])
    Mycophenolic acid/mycofenolate mofetil
    Code List
    Mycophenolic acid/mycofenolate mofetil
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    Tacrolimus
    integer
    C0085149 (UMLS CUI [1])
    Tacrolimus
    Code List
    Tacrolimus
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    Other
    integer
    C0205394 (UMLS CUI [1,1])
    C0021079 (UMLS CUI [1,2])
    Unknown
    Code List
    Other
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item Group
    Graft status before COVID-19
    C0478647 (UMLS CUI-1)
    C0332152 (UMLS CUI-2)
    C5203676 (UMLS CUI-3)
    Item
    Stable graft function over >3 months
    integer
    C0478647 (UMLS CUI [1,1])
    C0205360 (UMLS CUI [1,2])
    C0449238 (UMLS CUI [1,3])
    Stable graft function over >3 months
    Code List
    Stable graft function over >3 months
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    Known chronic rejection
    integer
    C0877542 (UMLS CUI [1,1])
    C0205191 (UMLS CUI [1,2])
    C0205309 (UMLS CUI [1,3])
    Known chronic rejection
    Code List
    Known chronic rejection
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    T-cell depleting therapy within last 6 months
    integer
    C0677960 (UMLS CUI [1,1])
    C0332185 (UMLS CUI [1,2])
    T-cell depleting therapy within last 6 months
    Code List
    T-cell depleting therapy within last 6 months
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    B-cell depleting therapy within last 6 months
    integer
    C1171324 (UMLS CUI [1,1])
    C0332185 (UMLS CUI [1,2])
    B-cell depleting therapy within last 6 months
    Code List
    B-cell depleting therapy within last 6 months
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    Steroid bolus therapy within last 6 months
    integer
    C0149783 (UMLS CUI [1,1])
    C1705509 (UMLS CUI [1,2])
    C0332185 (UMLS CUI [1,3])
    Steroid bolus therapy within last 6 months
    Code List
    Steroid bolus therapy within last 6 months
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item
    Unknown
    integer
    C0439673 (UMLS CUI [1,1])
    C0478647 (UMLS CUI [1,2])
    Unknown
    Code List
    Unknown
    CL Item
    not quoted (0)
    CL Item
    quoted (1)
    Item Group
    Therapeutic measures of transplant specific therapy
    C0087111 (UMLS CUI-1)
    C0079809 (UMLS CUI-2)
    C0029216 (UMLS CUI-3)
    Item
    Azathioprine dose
    integer
    C0004482 (UMLS CUI [1,1])
    C3174092 (UMLS CUI [1,2])
    Azathioprine dose
    Code List
    Azathioprine dose
    CL Item
    Unchanged (1)
    CL Item
    >= 50% reduction (2)
    CL Item
    Stopp (3)
    CL Item
    Unknown (4)
    Item
    Belatacept dose
    integer
    C3174092 (UMLS CUI [1,1])
    C1619962 (UMLS CUI [1,2])
    Belatacept dose
    Code List
    Belatacept dose
    CL Item
    Unchanged (1)
    CL Item
    >= 50% reduction (2)
    CL Item
    Stopp (3)
    CL Item
    Unknown (4)
    Item
    Corticosteroid dose
    integer
    C0001617 (UMLS CUI [1,1])
    C3174092 (UMLS CUI [1,2])
    Corticosteroid dose
    Code List
    Corticosteroid dose
    CL Item
    Unchanged (1)
    CL Item
    >= 50% reduction (2)
    CL Item
    Stopp (3)
    CL Item
    Unknown (4)
    Item
    Cyclosporine dose
    integer
    C0010592 (UMLS CUI [1,1])
    C3174092 (UMLS CUI [1,2])
    Cyclosporine dose
    Code List
    Cyclosporine dose
    CL Item
    Unchanged (1)
    CL Item
    >= 50% reduction (2)
    CL Item
    Stopp (3)
    CL Item
    Unknown (4)
    Item
    mTOR-Inhibitor dose
    integer
    C2746052 (UMLS CUI [1,1])
    C3174092 (UMLS CUI [1,2])
    mTOR-Inhibitor dose
    Code List
    mTOR-Inhibitor dose
    CL Item
    Unchanged (1)
    CL Item
    >= 50% reduction (2)
    CL Item
    Stopp (3)
    CL Item
    Unknown (4)
    Item
    Mycophenolic acid/mycofenolate mofetil dose
    integer
    C0026933 (UMLS CUI [1,1])
    C3174092 (UMLS CUI [1,2])
    C0209368 (UMLS CUI [2,1])
    C3174092 (UMLS CUI [2,2])
    Mycophenolic acid/mycofenolate mofetil dose
    Code List
    Mycophenolic acid/mycofenolate mofetil dose
    CL Item
    Unchanged (1)
    CL Item
    >= 50% reduction (2)
    CL Item
    Stopp (3)
    CL Item
    Unknown (4)
    Item
    Tacrolimus dose
    integer
    C0085149 (UMLS CUI [1,1])
    C3174092 (UMLS CUI [1,2])
    Tacrolimus dose
    Code List
    Tacrolimus dose
    CL Item
    Unchanged (1)
    CL Item
    >= 50% reduction (2)
    CL Item
    Stopp (3)
    CL Item
    Unknown (4)
    Item
    Other
    integer
    C0205394 (UMLS CUI [1,1])
    C0087111 (UMLS CUI [1,2])
    C0079809 (UMLS CUI [1,3])
    C0029216 (UMLS CUI [1,4])
    Other
    Code List
    Other
    CL Item
    Unchanged (1)
    CL Item
    >= 50% reduction (2)
    CL Item
    Stopp (3)
    CL Item
    Unknown (4)
    Item Group
    Is data entry for this section finished?
    C4684556 (UMLS CUI-1)
    C1828479 (UMLS CUI-2)
    C0205197 (UMLS CUI-3)
    Item
    Is data entry for this section finished?
    integer
    C4684556 (UMLS CUI [1,1])
    C1828479 (UMLS CUI [1,2])
    C0205197 (UMLS CUI [1,3])
    BL_Completed
    Code List
    Is data entry for this section finished?
    CL Item
    Yes (1)
    CL Item
    No (2)
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