ID

41341

Descripción

Lifelines collects questionnaire data, measurements, and biological samples from the entire cohort in rounds or waves called general assessments. The population cohort includes more than 167.000 participants, including children, adults, and elderly, over a 30-year period. Children follow a special child protocol until they turn 18. Elderly participants follow the adult protocol plus some additional questions (in assessments 1A, 1B and 1C) and additional measurements (MMSE). Assessment 1A or “Baseline Assessment” is the first general assessment of Lifelines. Assessment 1A was performed between 2007 and 2013, with the majority of participants being assessed between 2010 and 2013. Assessment 1A was followed by follow-up questionnaires 1B and 1C, and by second assessment 2A. For adult and elderly participants, assessment 1A consisted of the following elements: - 1A Visit 1 (physical measurements, MINI, MMSE) - 1A Visit 2 (blood and urine samples) - children followed an age-dependent program Assessment 2A or “Second Assessment” is the second general assessment of Lifelines. Assessment 2A was performed between 2014 and 2017. Assessment 2A was preceded by general assessment 1A, and is followed by follow-up questionnaire 2B and general assessment 3A. For all participants, assessment 2A consisted of the following elements: - 2A Visit 1 (physical measurements) - 2A Visit 2 (blood and urine samples) - children followed an age-dependent program Adult and elderly Lifelines participants participating in the second general assessment 2A received one follow-up questionnaire, 2B. Questionnaire 2B was sent out from 2015 until the end of 2019. For adult and elderly participants, this assessment also consisted of the following elements: - 2A Questionnaire 1 - 2A Questionnaire 2 Children received an age-dependent set of questionnaires during assessment 2A. Assessment 3A or “Third Assessment” is the third general assessment of Lifelines. Assessment 3A will be performed between 2019 and 2023. Assessment 3A was preceded by general assessment 1A and general assessment 2A. For all participants, assessment 3A consists of the following elements: - 3A Visit 1 - 3A Visit 2 For adult and elderly participants, this assessment also consists of the following elements: - 3A MINI - 3A Questionnaire 1 - 3A Questionnaire 2 - 3A Questionnaire 3 This document contains all sections of the 1A Questionnaire 1 for adult patients (18-65 years of age). More information can be found at http://wiki-lifelines.web.rug.nl/doku.php?id=start and https://www.lifelines.nl

Link

http://wiki-lifelines.web.rug.nl/doku.php?id=start

Palabras clave

Versiones (1)
  1. 01-09-20 01-09-20 -
Titular de derechos de autor

Lifelines Cohort and Biobank

Subido en

1 september 2020

DOI

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Licencia

Creative Commons BY-NC-SA 4.0
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Lifelines Cohort and Biobank

Inglés

Assessment 1A Questionnaire 1 (age 65+): Elderly

8 formularios  
Groningen Frailty Indicator (GFI)
Descripción

Groningen Frailty Indicator (GFI)

Alias
UMLS CUI-1
C4075886
Groningen Frailty Indicator (GFI) - Total score
Descripción

The Groningen Frailty Indicator is a self-assessment instrument designed to measure frailty in the elderly from a multidimensional perspective. The GFI was validated in the population of elderly participants in Lifelines1).

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C2964552
UMLS CUI [1,2]
C4075876
Independence
Descripción

Independence

Alias
UMLS CUI-1
C0085862
Are you able to carry out the following tasks single-handedly and without any help? (The use of help resources, such as a walking stick, walking frame, or wheelchair, is considered to be independent.) Shopping.
Descripción

Shopping independently

Tipo de datos

boolean

Alias
UMLS CUI [1]
C1290967
Are you able to carry out the following tasks single-handedly and without any help? (The use of help resources, such as a walking stick, walking frame, or wheelchair, is considered to be independent.) Dressing and undressing.
Descripción

Dressing independently

Tipo de datos

boolean

Alias
UMLS CUI [1]
C4479843
Are you able to carry out the following tasks single-handedly and without any help? (The use of help resources, such as a walking stick, walking frame, or wheelchair, is considered to be independent.) Walking around outside (around the house or to the neighbors).
Descripción

Walking around outside independently

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0429979
UMLS CUI [1,2]
C2371431
Are you able to carry out the following tasks single-handedly and without any help? (The use of help resources, such as a walking stick, walking frame, or wheelchair, is considered to be independent.) Going to the toilet.
Descripción

Going to the toilet independently

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0429975
To what extent does your living situation fit your circumstances; are any adjustments required?
Descripción

Appropriateness living situation

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C2184149
UMLS CUI [1,2]
C0814634
UMLS CUI [1,3]
C0851829
UMLS CUI [2,1]
C0456081
UMLS CUI [2,2]
C1514873
Do you expect that something will need to be changed in your (living) situation in the coming 6 months?
Descripción

Needed changes in (living) situation coming 6 months

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0686904
UMLS CUI [1,2]
C2184149
UMLS CUI [1,3]
C0392747
UMLS CUI [1,4]
C0332282
UMLS CUI [1,5]
C4082120
Do you receive unpaid care because you have long-term disabilities / health problems? This concerns care by someone close to you, such as your partner, a relative, friend, etc.?
Descripción

Unpaid care

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C1514756
UMLS CUI [1,2]
C3845218
UMLS CUI [1,3]
C0678226
UMLS CUI [1,4]
C0443252
UMLS CUI [1,5]
C0231170
UMLS CUI [2,1]
C1514756
UMLS CUI [2,2]
C3845218
UMLS CUI [2,3]
C0678226
UMLS CUI [2,4]
C0012634
Living situation
Descripción

Living situation

Alias
UMLS CUI-1
C2184149
What is your living situation? I live independently.
Descripción

Living situation: independent

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0021189
What is your living situation? I live independently with help.
Descripción

Living situation: independent with help

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0021189
UMLS CUI [1,2]
C3827451
What is your living situation? I live in a service flat/sheltered housing complex.
Descripción

Living situation: service flat

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0425211
UMLS CUI [2]
C0337650
What is your living situation? I live in a service flat/sheltered housing complex since year:
Descripción

Living situation: service flat since (yr)

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C1948053
UMLS CUI [1,2]
C0425211
UMLS CUI [2,1]
C1948053
UMLS CUI [2,2]
C0557854
UMLS CUI [2,3]
C0457933
What is your living situation? I live in an assisted living facility.
Descripción

Living situation: assisted living

Tipo de datos

boolean

Alias
UMLS CUI [1]
C2136015
What is your living situation? I live in a nursing home or residential care home.
Descripción

Living situation: nursing/residential care home

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0425205
UMLS CUI [2,1]
C4520849
UMLS CUI [2,2]
C0035186
What is your living situation? I live in a residential care home since year:
Descripción

Living situation: residential care home since (yr)

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1948053
UMLS CUI [1,2]
C4520849
UMLS CUI [1,3]
C0035186
What is your living situation? I live in a nursing home.
Descripción

Living situation: nursing home

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0425205
What is your living situation? Other living situation, namely:
Descripción

Living situation: other

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C2184149
Self-assessment (Intermed)
Descripción

Self-assessment (Intermed)

Alias
UMLS CUI-1
C0036591
UMLS CUI-2
C0686904
UMLS CUI-3
C0086388
Intermed Questionnaire Result
Descripción

In this Lifelines Questionnaire Questions 3, 5, 6, 7, 9, 11, 13, 14, 15, 17,18, 19, 21, 22, 23 were used. They are aggregated in this item. Please fill in the answer for each question separately (e.g. Question 3: 0; Question 5: ...) The Self-Assessment Questionnaire of INTERMED (IM-SA) 1) is an instrument to identify individual (complex) health care needs. This instrument assesses biopsychosocial complexity, health care needs and barriers to receive standard care. Lifelines participants of 65 years and older received (parts of the) Intermed in assessment 1A and 2A(section: elderly). Background The IM-SA score indicates an individual level of complexity of health care needs. Complexity is subdivided in four domains: Biological, Psychological, Social and Health System. Every domain is divided into three time segments: History, Current State and Vulnerability/Prognosis. All IM-SA items are scored on a four-level rating scale. The rating scores range from 0 to 3: 0 Zero evidence for a symptom, disturbance or health care need 1 Mild vulnerability/need for monitoring or prevention 2 Moderate vulnerability/need for treatment or inclusion in treatment plan 3 Severe vulnerability/need for immediate or intensive treatment For an overview of possible answers and associated scores, see here: IM-SA scores The total maximum score of the IM-SA is 60. The complexity cutoff point of the IM-SA is 19, i.e. a score of 19 or higher indicates complexity.

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0036591
UMLS CUI [1,2]
C0686904
UMLS CUI [1,3]
C0086388
UMLS CUI [1,4]
C0449820
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Similar models

Assessment 1A Questionnaire 1 (age 65+): Elderly

8 formularios
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de datos
Alias
Item Group
Groningen Frailty Indicator (GFI)
C4075886 (UMLS CUI-1)
Groningen Frailty Indicator (GFI) - Total score
Item
Groningen Frailty Indicator (GFI) - Total score
integer
C2964552 (UMLS CUI [1,1])
C4075876 (UMLS CUI [1,2])
Item Group
Independence
C0085862 (UMLS CUI-1)
Shopping independently
Item
Are you able to carry out the following tasks single-handedly and without any help? (The use of help resources, such as a walking stick, walking frame, or wheelchair, is considered to be independent.) Shopping.
boolean
C1290967 (UMLS CUI [1])
Dressing independently
Item
Are you able to carry out the following tasks single-handedly and without any help? (The use of help resources, such as a walking stick, walking frame, or wheelchair, is considered to be independent.) Dressing and undressing.
boolean
C4479843 (UMLS CUI [1])
Walking around outside independently
Item
Are you able to carry out the following tasks single-handedly and without any help? (The use of help resources, such as a walking stick, walking frame, or wheelchair, is considered to be independent.) Walking around outside (around the house or to the neighbors).
boolean
C0429979 (UMLS CUI [1,1])
C2371431 (UMLS CUI [1,2])
Going to the toilet independently
Item
Are you able to carry out the following tasks single-handedly and without any help? (The use of help resources, such as a walking stick, walking frame, or wheelchair, is considered to be independent.) Going to the toilet.
boolean
C0429975 (UMLS CUI [1])
Item
To what extent does your living situation fit your circumstances; are any adjustments required?
integer
C2184149 (UMLS CUI [1,1])
C0814634 (UMLS CUI [1,2])
C0851829 (UMLS CUI [1,3])
C0456081 (UMLS CUI [2,1])
C1514873 (UMLS CUI [2,2])
Appropriateness living situation
Code List
To what extent does your living situation fit your circumstances; are any adjustments required?
CL Item
There are currently no adjustments needed, I can manage.  (1)
CL Item
There are currently no adjustments needed, because I receive enough support and care from others.  (2)
CL Item
There are adjustments needed, but not immediately.  (3)
CL Item
There are adjustments needed immediately. (4)
Item
Do you expect that something will need to be changed in your (living) situation in the coming 6 months?
integer
C0686904 (UMLS CUI [1,1])
C2184149 (UMLS CUI [1,2])
C0392747 (UMLS CUI [1,3])
C0332282 (UMLS CUI [1,4])
C4082120 (UMLS CUI [1,5])
Appropriateness living situation
Code List
Do you expect that something will need to be changed in your (living) situation in the coming 6 months?
CL Item
Nothing will need to be changed in my (living) situation in the coming 6 months.  (1)
CL Item
I can go home or can stay home, but I will need home care in the coming 6 months.  (2)
CL Item
I will temporarily have to go to another (living) situation in the coming 6 months.  (3)
CL Item
I will have to permanently move to another type of housing within 6 months.  (4)
Item
Do you receive unpaid care because you have long-term disabilities / health problems? This concerns care by someone close to you, such as your partner, a relative, friend, etc.?
integer
C1514756 (UMLS CUI [1,1])
C3845218 (UMLS CUI [1,2])
C0678226 (UMLS CUI [1,3])
C0443252 (UMLS CUI [1,4])
C0231170 (UMLS CUI [1,5])
C1514756 (UMLS CUI [2,1])
C3845218 (UMLS CUI [2,2])
C0678226 (UMLS CUI [2,3])
C0012634 (UMLS CUI [2,4])
Appropriateness living situation
Code List
Do you receive unpaid care because you have long-term disabilities / health problems? This concerns care by someone close to you, such as your partner, a relative, friend, etc.?
CL Item
No  (1)
CL Item
Yes, mostly from my partner  (2)
CL Item
Yes, mostly from my daughter  (3)
CL Item
Yes, mostly from my son  (4)
CL Item
Yes, mostly from a friend or acquaintance  (5)
CL Item
Yes, mostly from someone else:  (6)
CL Item
No, I do not have these disabilities or problems  (7)
CL Item
No, although I do have these disabilities or problems, I do not want such care  (8)
CL Item
No, although I do have these disabilities or problems, I unfortunately do not receive this care  (9)
Item Group
Living situation
C2184149 (UMLS CUI-1)
Living situation: independent
Item
What is your living situation? I live independently.
boolean
C0021189 (UMLS CUI [1])
Living situation: independent with help
Item
What is your living situation? I live independently with help.
boolean
C0021189 (UMLS CUI [1,1])
C3827451 (UMLS CUI [1,2])
Living situation: service flat
Item
What is your living situation? I live in a service flat/sheltered housing complex.
boolean
C0425211 (UMLS CUI [1])
C0337650 (UMLS CUI [2])
Living situation: service flat since (yr)
Item
What is your living situation? I live in a service flat/sheltered housing complex since year:
integer
C1948053 (UMLS CUI [1,1])
C0425211 (UMLS CUI [1,2])
C1948053 (UMLS CUI [2,1])
C0557854 (UMLS CUI [2,2])
C0457933 (UMLS CUI [2,3])
Living situation: assisted living
Item
What is your living situation? I live in an assisted living facility.
boolean
C2136015 (UMLS CUI [1])
Living situation: nursing/residential care home
Item
What is your living situation? I live in a nursing home or residential care home.
boolean
C0425205 (UMLS CUI [1])
C4520849 (UMLS CUI [2,1])
C0035186 (UMLS CUI [2,2])
Living situation: residential care home since (yr)
Item
What is your living situation? I live in a residential care home since year:
boolean
C1948053 (UMLS CUI [1,1])
C4520849 (UMLS CUI [1,2])
C0035186 (UMLS CUI [1,3])
Living situation: nursing home
Item
What is your living situation? I live in a nursing home.
boolean
C0425205 (UMLS CUI [1])
Living situation: other
Item
What is your living situation? Other living situation, namely:
text
C0205394 (UMLS CUI [1,1])
C2184149 (UMLS CUI [1,2])
Item Group
Self-assessment (Intermed)
C0036591 (UMLS CUI-1)
C0686904 (UMLS CUI-2)
C0086388 (UMLS CUI-3)
Self-assessment (Intermed) Result
Item
Intermed Questionnaire Result
integer
C0036591 (UMLS CUI [1,1])
C0686904 (UMLS CUI [1,2])
C0086388 (UMLS CUI [1,3])
C0449820 (UMLS CUI [1,4])
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