ID

41341

Description

Lifelines collects questionnaire data, measurements, and biological samples from the entire cohort in rounds or waves called general assessments. The population cohort includes more than 167.000 participants, including children, adults, and elderly, over a 30-year period. Children follow a special child protocol until they turn 18. Elderly participants follow the adult protocol plus some additional questions (in assessments 1A, 1B and 1C) and additional measurements (MMSE). Assessment 1A or “Baseline Assessment” is the first general assessment of Lifelines. Assessment 1A was performed between 2007 and 2013, with the majority of participants being assessed between 2010 and 2013. Assessment 1A was followed by follow-up questionnaires 1B and 1C, and by second assessment 2A. For adult and elderly participants, assessment 1A consisted of the following elements: - 1A Visit 1 (physical measurements, MINI, MMSE) - 1A Visit 2 (blood and urine samples) - children followed an age-dependent program Assessment 2A or “Second Assessment” is the second general assessment of Lifelines. Assessment 2A was performed between 2014 and 2017. Assessment 2A was preceded by general assessment 1A, and is followed by follow-up questionnaire 2B and general assessment 3A. For all participants, assessment 2A consisted of the following elements: - 2A Visit 1 (physical measurements) - 2A Visit 2 (blood and urine samples) - children followed an age-dependent program Adult and elderly Lifelines participants participating in the second general assessment 2A received one follow-up questionnaire, 2B. Questionnaire 2B was sent out from 2015 until the end of 2019. For adult and elderly participants, this assessment also consisted of the following elements: - 2A Questionnaire 1 - 2A Questionnaire 2 Children received an age-dependent set of questionnaires during assessment 2A. Assessment 3A or “Third Assessment” is the third general assessment of Lifelines. Assessment 3A will be performed between 2019 and 2023. Assessment 3A was preceded by general assessment 1A and general assessment 2A. For all participants, assessment 3A consists of the following elements: - 3A Visit 1 - 3A Visit 2 For adult and elderly participants, this assessment also consists of the following elements: - 3A MINI - 3A Questionnaire 1 - 3A Questionnaire 2 - 3A Questionnaire 3 This document contains all sections of the 1A Questionnaire 1 for adult patients (18-65 years of age). More information can be found at http://wiki-lifelines.web.rug.nl/doku.php?id=start and https://www.lifelines.nl

Link

http://wiki-lifelines.web.rug.nl/doku.php?id=start

Keywords

Versions (1)
  1. 9/1/20 9/1/20 -
Copyright Holder

Lifelines Cohort and Biobank

Uploaded on

September 1, 2020

DOI

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License

Creative Commons BY-NC-SA 4.0
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Lifelines Cohort and Biobank

English

Assessment 1A Questionnaire 1 (Age 18+): Reproduction & Development

8 forms  
Contraception
Description

Contraception

Alias
UMLS CUI-1
C0700589
Have you ever used hormonal contraception?
Description

Hormonal contraception use

Data type

boolean

Alias
UMLS CUI [1,1]
C2985296
UMLS CUI [1,2]
C1444637
During how many months did you use hormonal contraception in the past 10 years?
Description

Hormonal contraception use in past 10 yrs

Data type

integer

Measurement units
  • Month
Alias
UMLS CUI [1,1]
C2985296
UMLS CUI [1,2]
C1948053
UMLS CUI [1,3]
C3843825
Month
Did you use hormonal contraception in the past month?
Description

Hormonal contraception use in past month

Data type

boolean

Alias
UMLS CUI [1,1]
C2985296
UMLS CUI [1,2]
C4331910
Have you used hormonal contraception in the 5 years before your last menstruation (also Mirena IUD)?
Description

Hormonal contraception in 5 yrs before last menstruation

Data type

boolean

Alias
UMLS CUI [1,1]
C2985296
UMLS CUI [1,2]
C3842265
UMLS CUI [1,3]
C0332152
UMLS CUI [1,4]
C0425932
UMLS CUI [2,1]
C2985296
UMLS CUI [2,2]
C4086728
UMLS CUI [2,3]
C0332152
UMLS CUI [2,4]
C0425932
Gynecological surgery
Description

Gynecological surgery

Alias
UMLS CUI-1
C0543467
UMLS CUI-2
C0018417
Have you had a hysterectomy?
Description

Hysterectomy

Data type

boolean

Alias
UMLS CUI [1,1]
C0020699
UMLS CUI [1,2]
C1444637
If you have had a hysterectomy, in what year?
Description

Hysterectomy (year)

Data type

integer

Alias
UMLS CUI [1,1]
C0020699
UMLS CUI [1,2]
C3274945
Have you had one ovary removed?
Description

Removal of one ovary

Data type

boolean

Alias
UMLS CUI [1,1]
C0041687
UMLS CUI [1,2]
C1444637
If you have had one ovary removed, in what year?
Description

Removal of one ovary (year)

Data type

integer

Alias
UMLS CUI [1,1]
C0041687
UMLS CUI [1,2]
C3274945
Have you had two ovaries removed?
Description

Removal of two ovary

Data type

boolean

Alias
UMLS CUI [1,1]
C0278321
UMLS CUI [1,2]
C1444637
If you have had two ovaries removed, in what year?
Description

Removal of two ovaries (year)

Data type

integer

Alias
UMLS CUI [1,1]
C0278321
UMLS CUI [1,2]
C3274945
Menstruation
Description

Menstruation

Alias
UMLS CUI-1
C0025344
How old were you when you had your first menstruation?
Description

Age at first menstruation

Data type

integer

Alias
UMLS CUI [1]
C1314691
Are you still menstruating?
Description

Still menstruating

Data type

integer

Alias
UMLS CUI [1,1]
C3174772
UMLS CUI [1,2]
C0025329
Do you have a regular menstrual cycle?
Description

Regularity menstrual cycle

Data type

integer

Alias
UMLS CUI [1,1]
C0025329
UMLS CUI [1,2]
C0205272
What is the usual duration of your menstrual cycle?
Description

Duration menstrual cycle

Data type

integer

Alias
UMLS CUI [1,1]
C0025329
UMLS CUI [1,2]
C0449238
At what age did you have your last menstruation?
Description

Age at last menstruation

Data type

integer

Alias
UMLS CUI [1]
C1629609
Pregnancy outcomes
Description

Pregnancy outcomes

Alias
UMLS CUI-1
C0032972
How many full-term pregnancies have you had?
Description

Number of full-term pregnancies

Data type

integer

Alias
UMLS CUI [1,1]
C2114495
UMLS CUI [1,2]
C0449788
How many times have you been pregnant? (regardless of the outcome)
Description

Number of pregnancies

Data type

integer

Alias
UMLS CUI [1]
C0422807
I have never been pregnant.
Description

Never been pregnant

Data type

boolean

Alias
UMLS CUI [1,1]
C2003901
UMLS CUI [1,2]
C0032961
What was the date of the last delivery?
Description

Date of last delivery

Data type

date

Alias
UMLS CUI [1,1]
C0005615
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C1513491
How many miscarriages (up to 16 weeks) have you had?
Description

Number of miscarriages

Data type

integer

Alias
UMLS CUI [1]
C0429916
I have never had a miscarriage.
Description

Never had a miscarriage

Data type

boolean

Alias
UMLS CUI [1]
C0438081
What was the date of the last miscarriage?
Description

Date of last miscarriage

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C1513491
UMLS CUI [1,3]
C4552766
How many abortive pregnancies have you had? (14-32 weeks)
Description

Number of abortive pregnancies

Data type

integer

Alias
UMLS CUI [1,1]
C0000790
UMLS CUI [1,2]
C0449788
UMLS CUI [1,3]
C0449788
Are you currently pregnant?
Description

Currently pregnant

Data type

boolean

Alias
UMLS CUI [1]
C0549206
How often have you had an abortion?
Description

Number of abortions

Data type

integer

Alias
UMLS CUI [1,1]
C0000790
UMLS CUI [1,2]
C0032961
How often have you given birth?
Description

Number of times given birth

Data type

integer

Alias
UMLS CUI [1,1]
C0005615
UMLS CUI [1,2]
C0449788
I have never given birth.
Description

Never given birth

Data type

boolean

Alias
UMLS CUI [1,1]
C0005615
UMLS CUI [1,2]
C0332197
Information about children's birth
Description

Information about children's birth

Alias
UMLS CUI-1
C0005615
Child 1-13 / Child born in year:
Description

Child born in year

Data type

integer

Alias
UMLS CUI [1,1]
C2826771
UMLS CUI [1,2]
C0008059
Pregnancy duration at delivery (Child 1-13):
Description

Pregnancy duration

Data type

integer

Alias
UMLS CUI [1]
C0460089
Child 1-13 / Child alive after 24 hours:
Description

Child alive after 24h

Data type

boolean

Alias
UMLS CUI [1,1]
C0008059
UMLS CUI [1,2]
C2584946
UMLS CUI [1,3]
C0687676
UMLS CUI [1,4]
C1442770
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Similar models

Assessment 1A Questionnaire 1 (Age 18+): Reproduction & Development

8 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Contraception
C0700589 (UMLS CUI-1)
Hormonal contraception use
Item
Have you ever used hormonal contraception?
boolean
C2985296 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
Hormonal contraception use in past 10 yrs
Item
During how many months did you use hormonal contraception in the past 10 years?
integer
C2985296 (UMLS CUI [1,1])
C1948053 (UMLS CUI [1,2])
C3843825 (UMLS CUI [1,3])
Hormonal contraception use in past month
Item
Did you use hormonal contraception in the past month?
boolean
C2985296 (UMLS CUI [1,1])
C4331910 (UMLS CUI [1,2])
Hormonal contraception in 5 yrs before last menstruation
Item
Have you used hormonal contraception in the 5 years before your last menstruation (also Mirena IUD)?
boolean
C2985296 (UMLS CUI [1,1])
C3842265 (UMLS CUI [1,2])
C0332152 (UMLS CUI [1,3])
C0425932 (UMLS CUI [1,4])
C2985296 (UMLS CUI [2,1])
C4086728 (UMLS CUI [2,2])
C0332152 (UMLS CUI [2,3])
C0425932 (UMLS CUI [2,4])
Item Group
Gynecological surgery
C0543467 (UMLS CUI-1)
C0018417 (UMLS CUI-2)
Hysterectomy
Item
Have you had a hysterectomy?
boolean
C0020699 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
Hysterectomy (year)
Item
If you have had a hysterectomy, in what year?
integer
C0020699 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])
Removal of one ovary
Item
Have you had one ovary removed?
boolean
C0041687 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
Removal of one ovary (year)
Item
If you have had one ovary removed, in what year?
integer
C0041687 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])
Removal of two ovary
Item
Have you had two ovaries removed?
boolean
C0278321 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
Removal of two ovaries (year)
Item
If you have had two ovaries removed, in what year?
integer
C0278321 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])
Item Group
Menstruation
C0025344 (UMLS CUI-1)
Age at first menstruation
Item
How old were you when you had your first menstruation?
integer
C1314691 (UMLS CUI [1])
Item
Are you still menstruating?
integer
C3174772 (UMLS CUI [1,1])
C0025329 (UMLS CUI [1,2])
Still menstruating
Code List
Are you still menstruating?
CL Item
Yes  (1)
CL Item
No  (2)
CL Item
No, I am in menopause  (3)
CL Item
No, I use an IUD  (4)
CL Item
No, other reason (5)
Item
Do you have a regular menstrual cycle?
integer
C0025329 (UMLS CUI [1,1])
C0205272 (UMLS CUI [1,2])
Regularity menstrual cycle
Code List
Do you have a regular menstrual cycle?
CL Item
Yes  (1)
CL Item
No, it has never been regular  (2)
CL Item
No, it has been irregular since a few months  (3)
CL Item
No, it has been irregular since a few years (4)
Item
What is the usual duration of your menstrual cycle?
integer
C0025329 (UMLS CUI [1,1])
C0449238 (UMLS CUI [1,2])
Regularity menstrual cycle
Code List
What is the usual duration of your menstrual cycle?
CL Item
Less than 24 days  (1)
CL Item
24-26 days  (2)
CL Item
27-29 days  (3)
CL Item
30-32 days  (4)
CL Item
More than 32 days (5)
Item
At what age did you have your last menstruation?
integer
C1629609 (UMLS CUI [1])
Regularity menstrual cycle
Code List
At what age did you have your last menstruation?
Item Group
Pregnancy outcomes
C0032972 (UMLS CUI-1)
Number of full-term pregnancies
Item
How many full-term pregnancies have you had?
integer
C2114495 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
Number of pregnancies
Item
How many times have you been pregnant? (regardless of the outcome)
integer
C0422807 (UMLS CUI [1])
Never been pregnant
Item
I have never been pregnant.
boolean
C2003901 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
Date of last delivery
Item
What was the date of the last delivery?
date
C0005615 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C1513491 (UMLS CUI [1,3])
Number of miscarriages
Item
How many miscarriages (up to 16 weeks) have you had?
integer
C0429916 (UMLS CUI [1])
Never had a miscarriage
Item
I have never had a miscarriage.
boolean
C0438081 (UMLS CUI [1])
Date of last miscarriage
Item
What was the date of the last miscarriage?
date
C0011008 (UMLS CUI [1,1])
C1513491 (UMLS CUI [1,2])
C4552766 (UMLS CUI [1,3])
Number of abortive pregnancies
Item
How many abortive pregnancies have you had? (14-32 weeks)
integer
C0000790 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
Currently pregnant
Item
Are you currently pregnant?
boolean
C0549206 (UMLS CUI [1])
Number of abortions
Item
How often have you had an abortion?
integer
C0000790 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
Number of times given birth
Item
How often have you given birth?
integer
C0005615 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
Never given birth
Item
I have never given birth.
boolean
C0005615 (UMLS CUI [1,1])
C0332197 (UMLS CUI [1,2])
Item Group
Information about children's birth
C0005615 (UMLS CUI-1)
Child born in year
Item
Child 1-13 / Child born in year:
integer
C2826771 (UMLS CUI [1,1])
C0008059 (UMLS CUI [1,2])
Pregnancy duration
Item
Pregnancy duration at delivery (Child 1-13):
integer
C0460089 (UMLS CUI [1])
Child alive after 24h
Item
Child 1-13 / Child alive after 24 hours:
boolean
C0008059 (UMLS CUI [1,1])
C2584946 (UMLS CUI [1,2])
C0687676 (UMLS CUI [1,3])
C1442770 (UMLS CUI [1,4])
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