ID

41341

Beschreibung

Lifelines collects questionnaire data, measurements, and biological samples from the entire cohort in rounds or waves called general assessments. The population cohort includes more than 167.000 participants, including children, adults, and elderly, over a 30-year period. Children follow a special child protocol until they turn 18. Elderly participants follow the adult protocol plus some additional questions (in assessments 1A, 1B and 1C) and additional measurements (MMSE). Assessment 1A or “Baseline Assessment” is the first general assessment of Lifelines. Assessment 1A was performed between 2007 and 2013, with the majority of participants being assessed between 2010 and 2013. Assessment 1A was followed by follow-up questionnaires 1B and 1C, and by second assessment 2A. For adult and elderly participants, assessment 1A consisted of the following elements: - 1A Visit 1 (physical measurements, MINI, MMSE) - 1A Visit 2 (blood and urine samples) - children followed an age-dependent program Assessment 2A or “Second Assessment” is the second general assessment of Lifelines. Assessment 2A was performed between 2014 and 2017. Assessment 2A was preceded by general assessment 1A, and is followed by follow-up questionnaire 2B and general assessment 3A. For all participants, assessment 2A consisted of the following elements: - 2A Visit 1 (physical measurements) - 2A Visit 2 (blood and urine samples) - children followed an age-dependent program Adult and elderly Lifelines participants participating in the second general assessment 2A received one follow-up questionnaire, 2B. Questionnaire 2B was sent out from 2015 until the end of 2019. For adult and elderly participants, this assessment also consisted of the following elements: - 2A Questionnaire 1 - 2A Questionnaire 2 Children received an age-dependent set of questionnaires during assessment 2A. Assessment 3A or “Third Assessment” is the third general assessment of Lifelines. Assessment 3A will be performed between 2019 and 2023. Assessment 3A was preceded by general assessment 1A and general assessment 2A. For all participants, assessment 3A consists of the following elements: - 3A Visit 1 - 3A Visit 2 For adult and elderly participants, this assessment also consists of the following elements: - 3A MINI - 3A Questionnaire 1 - 3A Questionnaire 2 - 3A Questionnaire 3 This document contains all sections of the 1A Questionnaire 1 for adult patients (18-65 years of age). More information can be found at http://wiki-lifelines.web.rug.nl/doku.php?id=start and https://www.lifelines.nl

Link

http://wiki-lifelines.web.rug.nl/doku.php?id=start

Stichworte

Gesundheitserhebungen

Patient information

01.09.20 01.09.20 -

Rechteinhaber

Lifelines Cohort and Biobank

Hochgeladen am

1. September 2020

DOI

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Lizenz

Creative Commons BY-NC-SA 4.0

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Lifelines Cohort and Biobank

Modell
Details

Assessment 1A Questionnaire 1 (Age 18+): Medical Treatment

8 Formulare

StudyEvent: ODM

Name

Typ

Description | Question | Decode (Coded Value)

Datentyp

Alias

Hospitalization

Item Group

Hospitalization

C0019993 (UMLS CUI-1)

Hospitalized past 5 years, once Between one year and 5 years ago

Item

How often have you been in contact with health care in the past five years? I have been hospitalized once

boolean

C0019993 (UMLS CUI [1,1])
C3241998 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])
C0019993 (UMLS CUI [2,1])
C3241998 (UMLS CUI [2,2])
C3843292 (UMLS CUI [2,3])

Hospitalized past 5 years, several times

Item

Hospitalized past 5 years, several times

boolean

C0205341 (UMLS CUI [1,1])
C0019993 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])
C0205341 (UMLS CUI [2,1])
C0019993 (UMLS CUI [2,2])
C3843292 (UMLS CUI [2,3])

Intensive care unit past 5 years: >7 days

Item

How often have you been in contact with health care in the past five years? I have been admitted to an intensive care unit for more than 7 days.

boolean

C0583239 (UMLS CUI [1,1])
C3843484 (UMLS CUI [1,2])
C3843292 (UMLS CUI [1,3])
C0583239 (UMLS CUI [2,1])
C3843484 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])

Medication

Item Group

Medication

C0013227 (UMLS CUI-1)

Use of prescripted medication

Item

Do you use prescription medication?

boolean

C0013227 (UMLS CUI [1,1])
C0278329 (UMLS CUI [1,2])

Medication specification

Item

Which medication?

text

C2348235 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])

Age at medication usage

Item

At what age did you take the medication?

integer

C0013227 (UMLS CUI [1,1])
C4698447 (UMLS CUI [1,2])

Reason for medication usage

Item

What was the reason for use of this medication?

text

C0392360 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])

Remedies without prescription, none

Item

Which of the following over-the-counter medications have you used in the past year? / None of them

boolean

C3176469 (UMLS CUI [1,1])
C0445107 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Remedies without prescription, pain/fever: aspirin, paracetamol

Item

Which of the following over-the-counter medications have you used in the past year? / Medications for pain and fever, such as aspirin or paracetamol

boolean

C3176469 (UMLS CUI [1,1])
C0521124 (UMLS CUI [1,2])
C0030193 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])
C3176469 (UMLS CUI [2,1])
C0521124 (UMLS CUI [2,2])
C0015967 (UMLS CUI [2,3])
C4086728 (UMLS CUI [2,4])
C0004057 (UMLS CUI [3,1])
C4086728 (UMLS CUI [3,2])
C0000970 (UMLS CUI [4,1])
C4086728 (UMLS CUI [4,2])

Remedies without prescription, coughs/colds/flu/sore throat

Item

Which of the following over-the-counter medications have you used in the past year? / Medications for cough, cold, flu, sore throat, etc.

boolean

C3176469 (UMLS CUI [1,1])
C0521124 (UMLS CUI [1,2])
C0010200 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])
C3176469 (UMLS CUI [2,1])
C0521124 (UMLS CUI [2,2])
C0009443 (UMLS CUI [2,3])
C4086728 (UMLS CUI [2,4])
C3176469 (UMLS CUI [3,1])
C0521124 (UMLS CUI [3,2])
C0021400 (UMLS CUI [3,3])
C4086728 (UMLS CUI [3,4])
C3176469 (UMLS CUI [4,1])
C0521124 (UMLS CUI [4,2])
C0242429 (UMLS CUI [4,3])
C4086728 (UMLS CUI [4,4])

Remedies without prescription, roborants: vitamins, minerals, tonics, iron pills

Item

Which of the following over-the-counter medications have you used in the past year? / Supplements such as vitamins, minerals, tonics, iron pills

boolean

C3176469 (UMLS CUI [1,1])
C0042890 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])
C3176469 (UMLS CUI [2,1])
C0026162 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])
C3176469 (UMLS CUI [3,1])
C3543842 (UMLS CUI [3,2])
C4086728 (UMLS CUI [3,3])
C3176469 (UMLS CUI [4,1])
C3213539 (UMLS CUI [4,2])
C4086728 (UMLS CUI [4,3])

Remedies without prescription, immune system: Echinaforce

Item

Which of the following remedies have you used without a doctor's prescription in the past year? Remedies that boost the immune system, such as Echinaforce.

boolean

C3176469 (UMLS CUI [1,1])
C1511253 (UMLS CUI [1,2])
C0020962 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])
C3176469 (UMLS CUI [2,1])
C3712557 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])

Remedies without prescription, laxatives

Item

Which of the following over-the-counter medications have you used in the past year? / Laxatives (for regular bowel movement)

boolean

C3176469 (UMLS CUI [1,1])
C0282090 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Remedies without prescription, gastrointestinal complaints and digestives

Item

Which of the following over-the-counter medications have you used in the past year? / Other medications for gastrointestinal complaints, digestives

boolean

C3176469 (UMLS CUI [1,1])
C0521124 (UMLS CUI [1,2])
C0426576 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])
C3176469 (UMLS CUI [2,1])
C3653759 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])

Remedies without prescription, sleeping pills/tranquilliser

Item

Which of the following over-the-counter medications have you used in the past year? / Sleeping pills and tranquillisers

boolean

C3176469 (UMLS CUI [1,1])
C0599396 (UMLS CUI [1,2])
C3176469 (UMLS CUI [2,1])
C0040614 (UMLS CUI [2,2])

Remedies without prescription, other

Item

Which of the following over-the-counter medications have you used in the past year? / Other medications

boolean

C0205394 (UMLS CUI [1,1])
C3176469 (UMLS CUI [1,2])

Remedies without prescription, homeopathic/herbal

Item

Was any of these remedies a homeopathic or herbal medicine?

boolean

C0920324 (UMLS CUI [1])
C2240391 (UMLS CUI [2])

Use of paracetamol in the past year

Item

Which of the painkillers listed below did you use in the past year and how many? / Medicines containing paracetamol

integer

C0000970 (UMLS CUI [1,1])
C4086728 (UMLS CUI [1,2])
C1265611 (UMLS CUI [2,1])
C0000970 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])

Use of paracetamol in the past year

Code List

Which of the painkillers listed below did you use in the past year and how many? / Medicines containing paracetamol

CL Item

none or fewer than 10 a year (1)

CL Item

between 10 and 50 a year (2)

CL Item

between 50 and 200 a year (3)

CL Item

more than 200 a year (4)

CL Item

none (5)

CL Item

less than 10 a year (6)

Acetylsalicylic acid use in the past year

Item

Which of the painkillers listed below did you use in the past year and how many? / Medicines containing acetylsalicylic acid

integer

C0004057 (UMLS CUI [1,1])
C4086728 (UMLS CUI [1,2])
C1265611 (UMLS CUI [2,1])
C0004057 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])

Use of paracetamol in the past year

Code List

Which of the painkillers listed below did you use in the past year and how many? / Medicines containing acetylsalicylic acid

CL Item

none or fewer than 10 a year (1)

CL Item

between 10 and 50 a year (2)

CL Item

between 50 and 200 a year (3)

CL Item

more than 200 a year (4)

CL Item

none (5)

CL Item

less than 10 a year (6)

Use of Ibuprofen or Naproxen in the past year

Item

Which of the painkillers listed below did you use in the past year and how many? / Medicines containing ibuprofen or naproxen

integer

C0020740 (UMLS CUI [1,1])
C4086728 (UMLS CUI [1,2])
C1265611 (UMLS CUI [2,1])
C0020740 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])
C0027396 (UMLS CUI [3,1])
C4086728 (UMLS CUI [3,2])
C1265611 (UMLS CUI [4,1])
C0027396 (UMLS CUI [4,2])
C4086728 (UMLS CUI [4,3])

Use of paracetamol in the past year

Code List

Which of the painkillers listed below did you use in the past year and how many? / Medicines containing ibuprofen or naproxen

CL Item

none or fewer than 10 a year (1)

CL Item

between 10 and 50 a year (2)

CL Item

between 50 and 200 a year (3)

CL Item

more than 200 a year (4)

CL Item

none (5)

CL Item

less than 10 a year (6)

Medication for thyroid, currently

Item

Do you currently use medication for an overactive or underactive thyroid?

boolean

C0521116 (UMLS CUI [1,1])
C0020676 (UMLS CUI [1,2])
C4284232 (UMLS CUI [1,3])
C0521116 (UMLS CUI [2,1])
C0020550 (UMLS CUI [2,2])
C4284232 (UMLS CUI [2,3])

Medication for thyroid, past

Item

Have you used medication for an overactive or underactive thyroid in the past?

boolean

C1444637 (UMLS CUI [1,1])
C0020676 (UMLS CUI [1,2])
C4284232 (UMLS CUI [1,3])
C1444637 (UMLS CUI [2,1])
C0020550 (UMLS CUI [2,2])
C4284232 (UMLS CUI [2,3])

Hormonal treatment

Item

Have you ever received hormonal treatment for a reason other than contraception?

boolean

C0279025 (UMLS CUI [1,1])
C4723751 (UMLS CUI [1,2])
C2985296 (UMLS CUI [1,3])
C1444637 (UMLS CUI [1,4])

Hormonal treatment for pregnancy

Item

Have you ever received hormonal treatment to increase the chance of getting pregnant?

boolean

C0279025 (UMLS CUI [1,1])
C0442805 (UMLS CUI [1,2])
C0237506 (UMLS CUI [1,3])
C0032961 (UMLS CUI [1,4])
C1444637 (UMLS CUI [1,5])

Hormonal treatment for menopause

Item

Have you ever received hormone therapy for menopause?

boolean

C0279025 (UMLS CUI [1,1])
C0025320 (UMLS CUI [1,2])

Duration hormone replacement therapy

Item

During how many months did you receive hormone replacement therapy throughout your life? (total duration)

integer

C0282402 (UMLS CUI [1,1])
C1948053 (UMLS CUI [1,2])

Hormone replacement therapy in past month

Item

Did you receive hormone replacement therapy in the past month?

integer

C0282402 (UMLS CUI [1,1])
C4331910 (UMLS CUI [1,2])

Hormonal treatment in 5 yrs before last menstruation

Item

Have you received hormonal treatment for a reason other than contraception in the 5 years before your last menstruation?

boolean

C0279025 (UMLS CUI [1,1])
C4723751 (UMLS CUI [1,2])
C2985296 (UMLS CUI [1,3])
C0332152 (UMLS CUI [1,4])
C0425932 (UMLS CUI [1,5])
C4086728 (UMLS CUI [1,6])
C3843292 (UMLS CUI [1,7])

Surgery

Item Group

Surgery

C0543467 (UMLS CUI-1)

Surgery in the past

Item

Have you ever had surgery?

boolean

C0543467 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])

No kidney surgery

Item

Have you ever had kidney surgery? No.

boolean

C0194053 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
C0332197 (UMLS CUI [1,3])

Kidney surgery due to kidney stones

Item

Have you ever had kidney surgery? Yes, because of kidney stones.

boolean

C0194053 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C0022650 (UMLS CUI [1,3])
C1444637 (UMLS CUI [1,4])

Year of kidney surgery due to kidney stones

Item

If you have had kidney surgery because of kidney stones, in what year?

boolean

C3274945 (UMLS CUI [1,1])
C0194053 (UMLS CUI [1,2])
C0678226 (UMLS CUI [1,3])
C0022650 (UMLS CUI [1,4])

Kidney surgery, kidney removal

Item

Have you ever had kidney surgery? Yes, kidney was removed because of a medical problem.

boolean

C0027695 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C0012634 (UMLS CUI [1,3])
C1444637 (UMLS CUI [1,4])

Year of kidney removal

Item

If kidney was removed because of a medical problem, in what year?

boolean

C3274945 (UMLS CUI [1,1])
C0027695 (UMLS CUI [1,2])
C0678226 (UMLS CUI [1,3])
C0012634 (UMLS CUI [1,4])

Kidney surgery, kidney donation

Item

Have you ever had kidney surgery? Yes, I have donated a kidney for transplantation.

boolean

C0194053 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C0260788 (UMLS CUI [1,3])
C1444637 (UMLS CUI [1,4])

Year of kidney donation

Item

If you have donated a kidney for transplantation, in what year?

boolean

C3274945 (UMLS CUI [1,1])
C0260788 (UMLS CUI [1,2])

Kidney surgery, kidney transplant

Item

Have you ever had kidney surgery? Yes, I have had a kidney transplant.

boolean

C0022671 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])

Year of kidney transplant

Item

If you have had a kidney transplant, in what year?

boolean

C0022671 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Kidney surgery, renal vessel balloon angioplasty

Item

Have you ever had kidney surgery? Yes, I have had renal vessel balloon angioplasty.

boolean

C0580863 (UMLS CUI [1,1])
C0002996 (UMLS CUI [1,2])
C1444637 (UMLS CUI [1,3])

Year of renal vessel balloon angioplasty

Item

If you have had renal vessel balloon angioplasty, in what year?

boolean

C0580863 (UMLS CUI [1,1])
C0002996 (UMLS CUI [1,2])
C3274945 (UMLS CUI [1,3])

Surgery, tonsillectomy

Item

Have you ever had a tonsillectomy?

boolean

C0040423 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])

Surgery, tonsillectomy (age)

Item

If you have ever had a tonsillectomy, at what age did you have this surgery?

integer

C0040423 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Surgery, tonsillectomy (number of times)

Item

If you have ever had a tonsillectomy, how many times have you had this surgery?

integer

C1265611 (UMLS CUI [1,1])
C0040423 (UMLS CUI [1,2])
C1444637 (UMLS CUI [1,3])

Surgery, appendix

Item

Have you ever had surgery on the appendix?

boolean

C0192819 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])

Surgery, appendix (age)

Item

If you have ever had surgery on the appendix, at what age did you have this surgery?

integer

C0192819 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Surgery, appendix (number of times)

Item

If you have ever had surgery on the appendix, how many times have you had this surgery?

integer

C1265611 (UMLS CUI [1,1])
C0192819 (UMLS CUI [1,2])
C1444637 (UMLS CUI [1,3])

Surgery, inguinal hernia

Item

Have you ever had surgery for an inguinal hernia?

boolean

C0543467 (UMLS CUI [1,1])
C0019294 (UMLS CUI [1,2])
C1444637 (UMLS CUI [1,3])

Surgery, inguinal hernia (age)

Item

If you have ever had surgery for an inguinal hernia, at what age did you have this surgery?

integer

C0206132 (UMLS CUI [1,1])
C0543467 (UMLS CUI [1,2])
C0019294 (UMLS CUI [1,3])

Surgery, inguinal hernia (number of times)

Item

If you have ever had surgery for an inguinal hernia, how many times have you had this surgery?

integer

C1265611 (UMLS CUI [1,1])
C0543467 (UMLS CUI [1,2])
C0019294 (UMLS CUI [1,3])
C1444637 (UMLS CUI [1,4])

Surgery, knee

Item

Have you ever had knee surgery?

boolean

C0187769 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])

Surgery, knee (age)

Item

If you have ever had knee surgery, at what age did you have this surgery?

integer

C0206132 (UMLS CUI [1,1])
C0187769 (UMLS CUI [1,2])

Surgery, knee (number of times)

Item

If you have ever had knee surgery, how many times have you had this surgery?

integer

C1265611 (UMLS CUI [1,1])
C0187769 (UMLS CUI [1,2])
C1444637 (UMLS CUI [1,3])

Surgery, cesarean section

Item

Have you ever had a cesarean section?

boolean

C0007876 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])

Surgery, cesarean section (age)

Item

If you have ever had a cesarean section, at what age did you have this surgery?

integer

C0206132 (UMLS CUI [1,1])
C0007876 (UMLS CUI [1,2])

Surgery, cesarean section (number of times)

Item

If you have ever had a cesarean section, how many times have you had this surgery?

integer

C1265611 (UMLS CUI [1,1])
C0007876 (UMLS CUI [1,2])
C1444637 (UMLS CUI [1,3])

Surgery, sterilization

Item

Have you ever had sterilization surgery?

boolean

C0038288 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])

Surgery, sterilization (age)

Item

If you have ever had sterilization surgery, at what age did you have this surgery?

integer

C0206132 (UMLS CUI [1,1])
C0038288 (UMLS CUI [1,2])

Surgery, sterilization (number of times)

Item

If you have ever had sterilization surgery, how many times have you had this surgery?

integer

C1265611 (UMLS CUI [1,1])
C0038288 (UMLS CUI [1,2])
C1444637 (UMLS CUI [1,3])

Surgery, varicose veins

Item

Have you ever had surgery for varicose veins?

boolean

C1444637 (UMLS CUI [1,1])
C0042345 (UMLS CUI [1,2])
C0543467 (UMLS CUI [1,3])

Surgery, varicose veins (age)

Item

If you have ever had surgery for varicose veins, at what age did you have this surgery?

integer

C0206132 (UMLS CUI [1,1])
C0042345 (UMLS CUI [1,2])
C0543467 (UMLS CUI [1,3])

Surgery, varicose veins (number of times)

Item

If you have ever had surgery for varicose veins, how many times have you had this surgery?

integer

C1265611 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
C0042345 (UMLS CUI [1,3])
C0543467 (UMLS CUI [1,4])

Surgery, spinal disc herniation

Item

Have you ever had surgery for spinal disc herniation?

boolean

C1444637 (UMLS CUI [1,1])
C0242362 (UMLS CUI [1,2])
C0543467 (UMLS CUI [1,3])

Surgery, spinal disc herniation (age)

Item

If you have ever had surgery for spinal disc herniation, at what age did you have this surgery?

integer

C0242362 (UMLS CUI [1,1])
C0543467 (UMLS CUI [1,2])
C0206132 (UMLS CUI [1,3])

Surgery, spinal disc herniation (number of times)

Item

If you have ever had surgery for spinal disc herniation, how many times have you had this surgery?

integer

C1265611 (UMLS CUI [1,1])
C1444637 (UMLS CUI [1,2])
C0242362 (UMLS CUI [1,3])
C0543467 (UMLS CUI [1,4])

Other surgery

Item Group

Other surgery

C0543467 (UMLS CUI-1)
C0205394 (UMLS CUI-2)

Age at the first other surgery

Item

How old were you when you had this surgery for the first time?

integer

C0543467 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205435 (UMLS CUI [1,3])
C0206132 (UMLS CUI [1,4])

Reason for other surgery

Item

Can you indicate for what reason you had surgery?

text

C0392360 (UMLS CUI [1,1])
C0543467 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C1444637 (UMLS CUI [1,4])

Quantity of the other surgery

Item

If you have ever had surgery, how many times have you had surgery for this specific reason?

integer

C1265611 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0543467 (UMLS CUI [1,3])
C1444637 (UMLS CUI [1,4])

Treatment (general)

Item Group

Treatment (general)

C0199174 (UMLS CUI-1)

No contact to health provider past year

Item

Please fill in which of the health providers listed below you have contacted in the past 12 months. / None of them

boolean

C0332197 (UMLS CUI [1,1])
C0332158 (UMLS CUI [1,2])
C0018724 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])

Contact health care professionals, GP

Item

Please fill in which of the health providers listed below you have contacted in the past 12 months. / GP

boolean

C0332158 (UMLS CUI [1,1])
C0017319 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, medical specialist

Item

Please fill in which of the health providers listed below you have contacted in the past 12 months. / Medical specialist

boolean

C0332158 (UMLS CUI [1,1])
C0920580 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, dentist

Item

Please fill in which of the health providers listed below you have contacted in the past 12 months. / Dentist or oral hygienist

boolean

C0332158 (UMLS CUI [1,1])
C0011441 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])
C0332158 (UMLS CUI [2,1])
C0011369 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])

Contact health care professionals, company doctor

Item

Please fill in which of the health providers listed below you have contacted in the past 12 months. / Company doctor

boolean

C0332158 (UMLS CUI [1,1])
C1955959 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, community health service and public health service

Item

Please fill in which of the health providers listed below you have contacted in the past 12 months. / Public Health Service or Community Health Service

boolean

C0332158 (UMLS CUI [1,1])
C0699943 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])
C0332158 (UMLS CUI [2,1])
C0009472 (UMLS CUI [2,2])
C4086728 (UMLS CUI [2,3])

Contact health care professionals, dietitian

Item

Please fill in which of the health providers listed below you have contacted in the past 12 months. / Dietician

boolean

C0332158 (UMLS CUI [1,1])
C3536818 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, occupational therapist

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Occupational therapist

boolean

C0332158 (UMLS CUI [1,1])
C0028807 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, physiotherapist

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Physical therapist

boolean

C0332158 (UMLS CUI [1,1])
C2362565 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, speech therapist

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Speech therapist

boolean

C0332158 (UMLS CUI [1,1])
C0402015 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, Cesar/Mensendieck remedial therapist

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Cesar or Mensendieck remedial therapist

boolean

C0332158 (UMLS CUI [1,1])
C0554177 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, home care

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Home care

boolean

C0332158 (UMLS CUI [1,1])
C0019855 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, Mental health care providers

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Mental health care providers

boolean

C0332158 (UMLS CUI [1,1])
C0184643 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, social worker

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / General welfare work

boolean

C0332158 (UMLS CUI [1,1])
C0037444 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, self-employed psychologist

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Self-employed psychologist

boolean

C0332158 (UMLS CUI [1,1])
C0425092 (UMLS CUI [1,2])
C0033908 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])

Contact health care professionals, private practice psychiatrist

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Private practice psychiatrist.

boolean

C0332158 (UMLS CUI [1,1])
C0425092 (UMLS CUI [1,2])
C0033872 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])

Contact health care professionals, alternative physicians

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Alternative physicians

boolean

C0332158 (UMLS CUI [1,1])
C0949216 (UMLS CUI [1,2])
C1709627 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])

Contact health care professionals, doctors service

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / General practice centre (outside office hours)

boolean

C0332158 (UMLS CUI [1,1])
C5229378 (UMLS CUI [1,2])
C0498340 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])

Contact health care professionals, Addiction Care

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / Addiction care for the Northern Netherlands

boolean

C0332158 (UMLS CUI [1,1])
C0150444 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Contact health care professionals, Care Assessment

Item

Please fill in which of the health providers listed below you have contacted for yourself in the past 12 months. / CIZ centre for indication setting

boolean

C0332158 (UMLS CUI [1,1])
C0028680 (UMLS CUI [1,2])
C0475309 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])

Difficulty with diagnosis past 5 years

Item

How difficult has it been in the past 5 years to diagnose the disease or condition you had?

integer

C0332218 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])
C0332218 (UMLS CUI [2,1])
C0011900 (UMLS CUI [2,2])
C3843292 (UMLS CUI [2,3])

Difficulty with diagnosis past 5 years

Code List

How difficult has it been in the past 5 years to diagnose the disease or condition you had?

CL Item

I have never been ill in the past five years or have not had any condition. (1)

CL Item

The reason for my problems was immediately clear. (2)

CL Item

After a lot of investigations the reason for my problems was identified. (3)

CL Item

Even though a series of investigations have been taken into effect, the origins of my problems were never diagnosed. (4)

Understanding complaints/restrictions

Item

Do you understand the origin of your complaints and restrictions?

integer

C0871764 (UMLS CUI [1,1])
C0162340 (UMLS CUI [1,2])
C1314792 (UMLS CUI [1,3])
C0162340 (UMLS CUI [2,1])
C0443288 (UMLS CUI [2,2])
C0018684 (UMLS CUI [2,3])
C1314792 (UMLS CUI [2,4])

Difficulty with diagnosis past 5 years

Code List

Do you understand the origin of your complaints and restrictions?

CL Item

I have no complaints and restrictions. (1)

CL Item

I understand exactly the origin of my complaints and restrictions. (2)

CL Item

I understand the origin of my complaints and restrictions but have some questions. (3)

CL Item

I slightly understand the origin of my complaints and restrictions but have many questions. (4)

CL Item

I don't understand the origin of my complaints and restrictions at all. (5)

Following health recommendations: diet, physical activity, lifestyle, medication intake

Item

Do you think it is difficult to follow health recommendations regarding for example diet, physical activity, lifestyle or medication intake?

integer

C1299586 (UMLS CUI [1,1])
C4281991 (UMLS CUI [1,2])
C0018684 (UMLS CUI [1,3])
C0034866 (UMLS CUI [1,4])
C1299586 (UMLS CUI [2,1])
C4281991 (UMLS CUI [2,2])
C1439346 (UMLS CUI [2,3])
C1299586 (UMLS CUI [3,1])
C4281991 (UMLS CUI [3,2])
C0026606 (UMLS CUI [3,3])
C0034866 (UMLS CUI [3,4])
C1299586 (UMLS CUI [4,1])
C4281991 (UMLS CUI [4,2])
C0023676 (UMLS CUI [4,3])
C0034866 (UMLS CUI [4,4])
C1299586 (UMLS CUI [5,1])
C4281991 (UMLS CUI [5,2])
C0013227 (UMLS CUI [5,3])
C0034866 (UMLS CUI [5,4])

Difficulty with diagnosis past 5 years

Code List

Do you think it is difficult to follow health recommendations regarding for example diet, physical activity, lifestyle or medication intake?

CL Item

I don’t think this is difficult (1)

CL Item

I think this is difficult, but I manage (2)

CL Item

I think this is difficult, sometimes I manage, sometimes I don’t (3)

CL Item

I think this is very difficult, most of the times I don’t manage (4)

Experience contact with healthcare providers

Item

How did you experience your contacts with doctors and healthcare providers in the past?

integer

C0596545 (UMLS CUI [1,1])
C0018724 (UMLS CUI [1,2])
C1444637 (UMLS CUI [1,3])

Difficulty with diagnosis past 5 years

Code List

How did you experience your contacts with doctors and healthcare providers in the past?

CL Item

I never had problems with doctors and healthcare providers. (1)

CL Item

I or people close to me had negative experiences with a doctor or healthcare provider. (2)

CL Item

As a result of a negative experience, I have gone to another doctor or healthcare provider. (3)

CL Item

I frequently have conflicts with doctors and healthcare providers or have been admitted against my will. (4)

Enough/appropriate care

Item

Do you think you are receiving enough and the appropriate care from your practitioners and health care providers?

integer

C0439655 (UMLS CUI [1,1])
C1514756 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
C0496675 (UMLS CUI [1,4])
C1517320 (UMLS CUI [1,5])
C0018724 (UMLS CUI [1,6])
C0439655 (UMLS CUI [2,1])
C1514756 (UMLS CUI [2,2])
C0205410 (UMLS CUI [2,3])
C0496675 (UMLS CUI [2,4])
C1517320 (UMLS CUI [2,5])
C1709627 (UMLS CUI [2,6])

Difficulty with diagnosis past 5 years

Code List

Do you think you are receiving enough and the appropriate care from your practitioners and health care providers?

CL Item

I do not need any care. (1)

CL Item

I am receiving the care I need. (2)

CL Item

I need more of the care I am already receiving. (3)

CL Item

I need a different type of care. (4)

CL Item

I need a lot more care or a totally different kind of care. (5)

Healthcare providers working together

Item

To what extent do your practitioners and healthcare providers work together?

integer

C0439792 (UMLS CUI [1,1])
C4277663 (UMLS CUI [1,2])
C1709627 (UMLS CUI [1,3])
C0018724 (UMLS CUI [1,4])

Difficulty with diagnosis past 5 years

Code List

To what extent do your practitioners and healthcare providers work together?

CL Item

I do not receive care or just one healthcare worker provides my care. (1)

CL Item

My doctors and healthcare providers work together well. (2)

CL Item

My doctors and healthcare providers work together, however sometimes more communication would be desirable. (3)

CL Item

My doctors and healthcare providers do not work together quite well, leading to problems every now and then. (4)

CL Item

My doctors and healthcare providers do not work together. (5)

Future need for care

Item

In the next 6 months, do you expect that you will be in need of more or less help and support, or that the care you receive will need to be adjusted?

integer

C0679138 (UMLS CUI [1,1])
C0205172 (UMLS CUI [1,2])
C0686904 (UMLS CUI [1,3])
C0344211 (UMLS CUI [1,4])
C0679138 (UMLS CUI [2,1])
C3843156 (UMLS CUI [2,2])
C0686904 (UMLS CUI [2,3])
C0344211 (UMLS CUI [2,4])
C0679138 (UMLS CUI [3,1])
C0686904 (UMLS CUI [3,2])
C0456081 (UMLS CUI [3,3])
C0344211 (UMLS CUI [3,4])

Difficulty with diagnosis past 5 years

Code List

In the next 6 months, do you expect that you will be in need of more or less help and support, or that the care you receive will need to be adjusted?

CL Item

I expect that in the next 6 months no care will be needed or that the care I receive will remain the same. (1)

CL Item

I expect that in the next 6 months my need of care will become less. (2)

CL Item

I expect in the next 6 months that my need of care will increase. (3)

CL Item

I expect that in the next 6 months my need of care will increase and that more coordination will be needed. (4)

CL Item

I expect that in the next 6 months my need of care will increase very much and that much more coordination will be needed. (5)

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Lifelines Cohort and Biobank

Assessment 1A Questionnaire 1 (Age 18+): Medical Treatment

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