ID

41341

Description

Lifelines collects questionnaire data, measurements, and biological samples from the entire cohort in rounds or waves called general assessments. The population cohort includes more than 167.000 participants, including children, adults, and elderly, over a 30-year period. Children follow a special child protocol until they turn 18. Elderly participants follow the adult protocol plus some additional questions (in assessments 1A, 1B and 1C) and additional measurements (MMSE). Assessment 1A or “Baseline Assessment” is the first general assessment of Lifelines. Assessment 1A was performed between 2007 and 2013, with the majority of participants being assessed between 2010 and 2013. Assessment 1A was followed by follow-up questionnaires 1B and 1C, and by second assessment 2A. For adult and elderly participants, assessment 1A consisted of the following elements: - 1A Visit 1 (physical measurements, MINI, MMSE) - 1A Visit 2 (blood and urine samples) - children followed an age-dependent program Assessment 2A or “Second Assessment” is the second general assessment of Lifelines. Assessment 2A was performed between 2014 and 2017. Assessment 2A was preceded by general assessment 1A, and is followed by follow-up questionnaire 2B and general assessment 3A. For all participants, assessment 2A consisted of the following elements: - 2A Visit 1 (physical measurements) - 2A Visit 2 (blood and urine samples) - children followed an age-dependent program Adult and elderly Lifelines participants participating in the second general assessment 2A received one follow-up questionnaire, 2B. Questionnaire 2B was sent out from 2015 until the end of 2019. For adult and elderly participants, this assessment also consisted of the following elements: - 2A Questionnaire 1 - 2A Questionnaire 2 Children received an age-dependent set of questionnaires during assessment 2A. Assessment 3A or “Third Assessment” is the third general assessment of Lifelines. Assessment 3A will be performed between 2019 and 2023. Assessment 3A was preceded by general assessment 1A and general assessment 2A. For all participants, assessment 3A consists of the following elements: - 3A Visit 1 - 3A Visit 2 For adult and elderly participants, this assessment also consists of the following elements: - 3A MINI - 3A Questionnaire 1 - 3A Questionnaire 2 - 3A Questionnaire 3 This document contains all sections of the 1A Questionnaire 1 for adult patients (18-65 years of age). More information can be found at http://wiki-lifelines.web.rug.nl/doku.php?id=start and https://www.lifelines.nl

Lien

http://wiki-lifelines.web.rug.nl/doku.php?id=start

Mots-clés

Health Surveys

Patient information

01/09/2020 01/09/2020 -

Détendeur de droits

Lifelines Cohort and Biobank

Téléchargé le

1 septembre 2020

DOI

Pour une demande vous connecter.

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Creative Commons BY-NC-SA 4.0

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Lifelines Cohort and Biobank

model
Détails

Assessment 1A Questionnaire 1 (Age 18+): Lifestyle and Environment

8 Formulaires

StudyEvent: ODM

Name

Type

Description | Question | Decode (Coded Value)

Type de données

Alias

Electronic device use

Item Group

Electronic device use

C2712614 (UMLS CUI-1)

Hours per day spent watching TV on average

Item

On average how many hours and minutes per day do you spend watching TV?

integer

C0871498 (UMLS CUI [1,1])
C0556974 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])

Minutes per day spent watching TV on average

Item

On average how many minutes per day do you spend watching TV?

integer

C0871498 (UMLS CUI [1,1])
C0556973 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])

Home environment (general)

Item Group

Home environment (general)

C0442519 (UMLS CUI-1)

Moving house in whole life

Item

How many times have you moved house in your life, including the period that you lived with your parents?

integer

C1265611 (UMLS CUI [1,1])
C2977593 (UMLS CUI [1,2])
C0332257 (UMLS CUI [1,3])
C1948053 (UMLS CUI [1,4])
C0557133 (UMLS CUI [1,5])

Not having a permanent address

Item

For a period of x years I did not have a permanent address.

integer

C1549637 (UMLS CUI [1,1])
C0332197 (UMLS CUI [1,2])
C1948053 (UMLS CUI [1,3])

Always having a permanent address

Item

I've always had a permanent address.

boolean

C2003902 (UMLS CUI [1,1])
C1549637 (UMLS CUI [1,2])

Living situation

Item

What is your living situation?

integer

C2184149 (UMLS CUI [1])

Living situation

Code List

What is your living situation?

CL Item

I live independently. (1)

CL Item

I live independently with help (home care, etc.). (2)

CL Item

I live with parent(s)/guardians. (3)

CL Item

I live in an institution. (4)

CL Item

I live in a service flat/sheltered housing complex. (5)

CL Item

I live in an assisted living facility. (6)

CL Item

I live in a nursing home or residential care home. (7)

CL Item

Other, namely (8)

Flooring in living room

Item

What type of floor covering do you have in the living room?

integer

C0557645 (UMLS CUI [1,1])
C0016249 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])

Flooring in living room

Code List

What type of floor covering do you have in the living room?

CL Item

Smooth (vinyl/tiles/parquet/laminate/etc.) (1)

CL Item

Broadloom carpet (synthetic/wool/etc.) (2)

CL Item

Smooth with a separate rug (3)

Flooring in bed room

Item

What type of floor covering do you have in the bedroom?

integer

C0557652 (UMLS CUI [1,1])
C0016249 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])

Flooring in living room

Code List

What type of floor covering do you have in the bedroom?

CL Item

Smooth (vinyl/tiles/parquet/laminate/etc.) (1)

CL Item

Broadloom carpet (synthetic/wool/etc.) (2)

CL Item

Smooth with a separate rug (3)

Central heating in living room

Item

Do you have central heating in the living room?

boolean

C2047157 (UMLS CUI [1,1])
C0557645 (UMLS CUI [1,2])

Electric heater in living room

Item

Do you have an electric heater in the living room?

boolean

C0441040 (UMLS CUI [1,1])
C0557645 (UMLS CUI [1,2])

Gas heater in living room

Item

Do you have a gas heater in the living room?

boolean

C2047168 (UMLS CUI [1,1])
C0557645 (UMLS CUI [1,2])

Wood burning stove in living room

Item

Do you have a wood burning stove/multi-fuel stove in the living room?

boolean

C0557645 (UMLS CUI [1,1])
C1268550 (UMLS CUI [1,2])
C0336754 (UMLS CUI [2,1])
C0557645 (UMLS CUI [2,2])

Fireplace in living room

Item

Do you have a fireplace in the living room?

boolean

C0336758 (UMLS CUI [1,1])
C0557645 (UMLS CUI [1,2])

Fireplace use

Item

If you have a fireplace, how often do you use it in the winter?

integer

C0336758 (UMLS CUI [1,1])
C0457083 (UMLS CUI [1,2])
C0241737 (UMLS CUI [1,3])

Fireplace use

Code List

If you have a fireplace, how often do you use it in the winter?

CL Item

I do not have a fireplace (1)

CL Item

(Almost) daily (2)

CL Item

At least 3 times a week (3)

CL Item

At least once a week (4)

CL Item

Once every 2 weeks (5)

CL Item

Once a month (6)

CL Item

Less than once a month (7)

CL Item

(Almost) never (8)

Living area description

Item

What is the best description of the place where you lived most of the time when you were younger than 5 years old?

integer

C0678257 (UMLS CUI [1,1])
C1542147 (UMLS CUI [1,2])
C0337646 (UMLS CUI [1,3])
C0728836 (UMLS CUI [1,4])
C0678257 (UMLS CUI [2,1])
C1542147 (UMLS CUI [2,2])
C0337646 (UMLS CUI [2,3])
C0021270 (UMLS CUI [2,4])

Fireplace use

Code List

What is the best description of the place where you lived most of the time when you were younger than 5 years old?

CL Item

Farmhouse (1)

CL Item

Village in a rural area (2)

CL Item

Small city/large village (3)

CL Item

Suburb of a large city (4)

CL Item

City centre (5)

CL Item

Other situation (6)

Living area description - specification

Item

If you ticked "Other", description of the place where you lived most of the time when you were younger than 5 years old

text

C0678257 (UMLS CUI [1,1])
C1542147 (UMLS CUI [1,2])
C0337646 (UMLS CUI [1,3])
C0021270 (UMLS CUI [1,4])
C2348235 (UMLS CUI [1,5])
C0678257 (UMLS CUI [2,1])
C1542147 (UMLS CUI [2,2])
C0337646 (UMLS CUI [2,3])
C0728836 (UMLS CUI [2,4])
C2348235 (UMLS CUI [2,5])

Informal care

Item Group

Informal care

C3494177 (UMLS CUI-1)

Informal care hours/week

Item

On average how many hours per week do you spend caring for one or more family members?

integer

C3494177 (UMLS CUI [1,1])
C0086282 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])

Not giving informal care

Item

Not applicable, I do not provide care for family members, friends or neighbors.

boolean

C3494177 (UMLS CUI [1,1])
C0086282 (UMLS CUI [1,2])
C0332197 (UMLS CUI [1,3])
C3494177 (UMLS CUI [2,1])
C0079382 (UMLS CUI [2,2])
C0332197 (UMLS CUI [2,3])
C3494177 (UMLS CUI [3,1])
C1553702 (UMLS CUI [3,2])
C0332197 (UMLS CUI [3,3])

Sleep (general)

Item Group

Sleep (general)

C0037313 (UMLS CUI-1)

Sleeping, hours/full day

Item

On average how many hours do you sleep per full day (24 hours)?

integer

C2220397 (UMLS CUI [1,1])
C1510992 (UMLS CUI [1,2])

Sleeping, minutes/full day

Item

On average how many minutes do you sleep per full day (24 hours)?

integer

C0037313 (UMLS CUI [1,1])
C0556973 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,3])

Smoking and tobacco use

Item Group

Smoking and tobacco use

C0543414 (UMLS CUI-1)

Smoking for full year

Item

Have you ever smoked for a full year?

boolean

C4082117 (UMLS CUI [1,1])
C0205197 (UMLS CUI [1,2])
C0037369 (UMLS CUI [1,3])

Age at starting smoking

Item

How old were you when you started smoking?

integer

C0453999 (UMLS CUI [1])

Currently smoking

Item

Do you smoke now, or have you smoked in the past month?

boolean

C0521116 (UMLS CUI [1,1])
C0037369 (UMLS CUI [1,2])
C0037369 (UMLS CUI [2,1])
C4331910 (UMLS CUI [2,2])

Current number of cigarettes per day

Item

Number of cigarettes and/or roll-ups a day / How much do you smoke on average now?

integer

C0521116 (UMLS CUI [1,1])
C0677453 (UMLS CUI [1,2])
C0439505 (UMLS CUI [1,3])

Currently smoking less than 1 cigarette per day

Item

I smoke, but fewer than 1 a day / How much do you smoke now, on average? (cigarettes and/or roll-ups)

integer

C0677453 (UMLS CUI [1,1])
C0439092 (UMLS CUI [1,2])
C3844185 (UMLS CUI [1,3])

Current number of cigarillos per day

Item

Number of cigarillos a day / How much do you smoke on average now?

integer

C0521116 (UMLS CUI [1,1])
C3273806 (UMLS CUI [1,2])

Currently smoking less than 1 cigarillo per day

Item

I smoke, but fewer than 1 a day / How much do you smoke now, on average? (cigarillos)

integer

C0521116 (UMLS CUI [1,1])
C3273806 (UMLS CUI [1,2])
C0439092 (UMLS CUI [1,3])
C3844185 (UMLS CUI [1,4])

Current number of cigars per day

Item

Number of cigars a day / How much do you smoke on average now?

integer

C0521116 (UMLS CUI [1,1])
C0678446 (UMLS CUI [1,2])

Currently smoking less than 1 cigars per day

Item

I smoke, but fewer than 1 a day / How much do you smoke now, on average? (cigars)

integer

C0521116 (UMLS CUI [1,1])
C0678446 (UMLS CUI [1,2])
C0439092 (UMLS CUI [1,3])
C3844185 (UMLS CUI [1,4])

Current grams of pipe tabacco per day

Item

Pipe tobacco in grams a day / How much do you smoke on average now?

integer

C0521116 (UMLS CUI [1,1])
C0459842 (UMLS CUI [1,2])
C0439417 (UMLS CUI [1,3])

Currently smoking less than 1 gram pipe tobacco per day

Item

I smoke, but fewer than 1 a day / How much do you smoke now, on average? (pipe tobacco in grams)

integer

C0521116 (UMLS CUI [1,1])
C0678447 (UMLS CUI [1,2])
C0439092 (UMLS CUI [1,3])
C3844185 (UMLS CUI [1,4])

Stopped smoking

Item

Have you stopped smoking?

boolean

C0425310 (UMLS CUI [1])

Age at stopping smoking

Item

If you no longer smoke, how old were you when you stopped smoking?

integer

C3873640 (UMLS CUI [1])

Inhaling smoke

Item

Do you inhale or have you inhaled while smoking?

integer

C2239229 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
C2239229 (UMLS CUI [2,1])
C1444637 (UMLS CUI [2,2])

Smoking and tobacco use Part II

Item Group

Smoking and tobacco use

C4721824 (UMLS CUI-1)
C0040329 (UMLS CUI-2)

Type of tobacco smoked previously

Item

How much have you smoked up until now? Type of tobacco smoked during this period.

text

C4721824 (UMLS CUI [1,1])
C0040329 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])

Type of tobacco smoked previously

Item

How much have you smoked up until now? Type of tobacco smoked during this period. Type 2-10

integer

C4721824 (UMLS CUI [1,1])
C0040329 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])
C1524063 (UMLS CUI [1,4])
C1948053 (UMLS CUI [1,5])

Age at starting smoking

Item

How much have you smoked up until now? Age at the start of this period.

integer

C0001779 (UMLS CUI [1,1])
C0425315 (UMLS CUI [1,2])
C1948053 (UMLS CUI [1,3])

Age at stopping smoking

Item

How much have you smoked up until now? Age at the end of this period.

integer

C0001779 (UMLS CUI [1,1])
C0425310 (UMLS CUI [1,2])
C1948053 (UMLS CUI [1,3])

Amount of tobacco smoked until now

Item

How much have you smoked up until now? Number of cigarettes, roll-up cigarettes, cigarillos, cigars or grams of pipe tobacco per day during this period.

integer

C0237753 (UMLS CUI [1,1])
C0677453 (UMLS CUI [1,2])
C0439505 (UMLS CUI [1,3])
C1720302 (UMLS CUI [1,4])
C1948052 (UMLS CUI [1,5])
C0237753 (UMLS CUI [2,1])
C3273806 (UMLS CUI [2,2])
C0439505 (UMLS CUI [2,3])
C1720302 (UMLS CUI [2,4])
C1948052 (UMLS CUI [2,5])
C0237753 (UMLS CUI [3,1])
C0678446 (UMLS CUI [3,2])
C0439505 (UMLS CUI [3,3])
C1720302 (UMLS CUI [3,4])
C1948052 (UMLS CUI [3,5])
C0439208 (UMLS CUI [4,1])
C0459842 (UMLS CUI [4,2])
C0439505 (UMLS CUI [4,3])
C1720302 (UMLS CUI [4,4])
C1948052 (UMLS CUI [4,5])

Volunteer work

Item Group

Volunteer work

C2367294 (UMLS CUI-1)

Volunteering, hours/week

Item

On average how many hours per week do you spend on organized volunteer work?

integer

C2367294 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])

Not volunteering

Item

Not applicable, I do not do any organized volunteer work.

boolean

C3840725 (UMLS CUI [1,1])
C2367294 (UMLS CUI [1,2])

Values, beliefs, priorities

Item Group

Only for elderly patients (65+): Values, beliefs, priorities

C0004951 (UMLS CUI-1)
C0439607 (UMLS CUI-2)
C0042295 (UMLS CUI-3)

Importance of enjoying food/drinks

Item

Is enjoying food and drinks important to you?

boolean

C3898777 (UMLS CUI [1,1])
C1821728 (UMLS CUI [1,2])
C4316940 (UMLS CUI [2,1])
C0452428 (UMLS CUI [2,2])
C3898777 (UMLS CUI [2,3])

Satisfaction enjoying food and drinks

Item

Are you satisfied with the following? Enjoying food and drinks.

boolean

C0242428 (UMLS CUI [1,1])
C1821728 (UMLS CUI [1,2])
C0242428 (UMLS CUI [2,1])
C4316940 (UMLS CUI [2,2])
C0452428 (UMLS CUI [2,3])

Importance sleeping well

Item

Is the following important to you? Resting and sleeping well.

boolean

C2984071 (UMLS CUI [1,1])
C3898777 (UMLS CUI [1,2])
C3898777 (UMLS CUI [2,1])
C0035253 (UMLS CUI [2,2])

Satisfaction sleeping well

Item

Are you satisfied with the following? Resting and sleeping well.

boolean

C2984071 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
C0242428 (UMLS CUI [2,1])
C0035253 (UMLS CUI [2,2])

Importance pleasant relationships

Item

Is having pleasant relationships and contacts important to you?

boolean

C1705104 (UMLS CUI [1,1])
C2987187 (UMLS CUI [1,2])
C0439849 (UMLS CUI [1,3])
C1705104 (UMLS CUI [2,1])
C2987187 (UMLS CUI [2,2])
C0237101 (UMLS CUI [2,3])

Satisfaction pleasant relationships

Item

Are you satisfied with the following? Pleasant relationships and contacts.

integer

C0242428 (UMLS CUI [1,1])
C2987187 (UMLS CUI [1,2])
C0439849 (UMLS CUI [1,3])
C0242428 (UMLS CUI [2,1])
C2987187 (UMLS CUI [2,2])
C0237101 (UMLS CUI [2,3])

Satisfaction pleasant relationships

Code List

Are you satisfied with the following? Pleasant relationships and contacts.

CL Item

Yes (1)

CL Item

No, it could be better (2)

Importance being active

Item

Is the following important to you? Being active.

boolean

C0556453 (UMLS CUI [1,1])
C3898777 (UMLS CUI [1,2])

Satisfaction being active

Item

Are you satisfied with the following? Being active.

integer

C0242428 (UMLS CUI [1,1])
C0556453 (UMLS CUI [1,2])

Satisfaction pleasant relationships

Code List

Are you satisfied with the following? Being active.

CL Item

Yes (1)

CL Item

No, it could be better (2)

Importance managing on your own

Item

Is the following important to you? Managing on your own.

boolean

C3898777 (UMLS CUI [1,1])
C4727533 (UMLS CUI [1,2])

Satisfaction managing on your own

Item

Are you satisfied with the following? Managing on your own.

integer

C0242428 (UMLS CUI [1,1])
C4727533 (UMLS CUI [1,2])

Satisfaction pleasant relationships

Code List

Are you satisfied with the following? Managing on your own.

CL Item

Yes (1)

CL Item

No, it could be better (2)

Importance being yourself

Item

Is the following important to you? Being yourself.

boolean

C3898777 (UMLS CUI [1,1])
C0871897 (UMLS CUI [1,2])

Satisfaction being yourself

Item

Are you satisfied with the following? Being yourself.

integer

C0242428 (UMLS CUI [1,1])
C0871897 (UMLS CUI [1,2])

Satisfaction pleasant relationships

Code List

Are you satisfied with the following? Being yourself.

CL Item

Yes (1)

CL Item

No, it could be better (2)

Importance feeling healthy

Item

Is the following important to you? Feeling healthy physically and mentally.

boolean

C3898777 (UMLS CUI [1,1])
C0439655 (UMLS CUI [1,2])
C3898900 (UMLS CUI [1,3])
C3898777 (UMLS CUI [2,1])
C0025353 (UMLS CUI [2,2])

Satisfaction feeling healthy

Item

Are you satisfied with the following? Feeling healthy physically and mentally.

integer

C0242428 (UMLS CUI [1,1])
C0439655 (UMLS CUI [1,2])
C3898900 (UMLS CUI [1,3])
C0242428 (UMLS CUI [2,1])
C0025353 (UMLS CUI [2,2])

Satisfaction pleasant relationships

Code List

Are you satisfied with the following? Feeling healthy physically and mentally.

CL Item

Yes (1)

CL Item

No, it could be better (2)

Importance living pleasantly

Item

Is the following important to you? Living pleasantly.

boolean

C3898777 (UMLS CUI [1,1])
C2987187 (UMLS CUI [1,2])
C4520849 (UMLS CUI [1,3])

Satisfaction living pleasantly

Item

Are you satisfied with the following? Living pleasantly.

integer

C0242428 (UMLS CUI [1,1])
C2987187 (UMLS CUI [1,2])
C4520849 (UMLS CUI [1,3])

Satisfaction pleasant relationships

Code List

Are you satisfied with the following? Living pleasantly.

CL Item

Yes (1)

CL Item

No, it could be better (2)

None of the above is important

Item

I find none of these areas important.

boolean

C0151453 (UMLS CUI [1,1])
C3898777 (UMLS CUI [1,2])

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ID

Description

Lien

Mots-clés

Versions (1)

Détendeur de droits

Téléchargé le

DOI

Licence

Modèle Commentaires :

Groupe Item commentaires pour :

Item commentaires pour :

Lifelines Cohort and Biobank

Assessment 1A Questionnaire 1 (Age 18+): Lifestyle and Environment

Description

Alias

Description

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