ID

41341

Description

Lifelines collects questionnaire data, measurements, and biological samples from the entire cohort in rounds or waves called general assessments. The population cohort includes more than 167.000 participants, including children, adults, and elderly, over a 30-year period. Children follow a special child protocol until they turn 18. Elderly participants follow the adult protocol plus some additional questions (in assessments 1A, 1B and 1C) and additional measurements (MMSE). Assessment 1A or “Baseline Assessment” is the first general assessment of Lifelines. Assessment 1A was performed between 2007 and 2013, with the majority of participants being assessed between 2010 and 2013. Assessment 1A was followed by follow-up questionnaires 1B and 1C, and by second assessment 2A. For adult and elderly participants, assessment 1A consisted of the following elements: - 1A Visit 1 (physical measurements, MINI, MMSE) - 1A Visit 2 (blood and urine samples) - children followed an age-dependent program Assessment 2A or “Second Assessment” is the second general assessment of Lifelines. Assessment 2A was performed between 2014 and 2017. Assessment 2A was preceded by general assessment 1A, and is followed by follow-up questionnaire 2B and general assessment 3A. For all participants, assessment 2A consisted of the following elements: - 2A Visit 1 (physical measurements) - 2A Visit 2 (blood and urine samples) - children followed an age-dependent program Adult and elderly Lifelines participants participating in the second general assessment 2A received one follow-up questionnaire, 2B. Questionnaire 2B was sent out from 2015 until the end of 2019. For adult and elderly participants, this assessment also consisted of the following elements: - 2A Questionnaire 1 - 2A Questionnaire 2 Children received an age-dependent set of questionnaires during assessment 2A. Assessment 3A or “Third Assessment” is the third general assessment of Lifelines. Assessment 3A will be performed between 2019 and 2023. Assessment 3A was preceded by general assessment 1A and general assessment 2A. For all participants, assessment 3A consists of the following elements: - 3A Visit 1 - 3A Visit 2 For adult and elderly participants, this assessment also consists of the following elements: - 3A MINI - 3A Questionnaire 1 - 3A Questionnaire 2 - 3A Questionnaire 3 This document contains all sections of the 1A Questionnaire 1 for adult patients (18-65 years of age). More information can be found at http://wiki-lifelines.web.rug.nl/doku.php?id=start and https://www.lifelines.nl

Lien

http://wiki-lifelines.web.rug.nl/doku.php?id=start

Mots-clés

D006306

Patient information

01/09/2020 01/09/2020 -

Détendeur de droits

Lifelines Cohort and Biobank

Téléchargé le

1 septembre 2020

DOI

Pour une demande vous connecter.

Licence

Creative Commons BY-NC-SA 4.0

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Lifelines Cohort and Biobank

model
Détails

Assessment 1A Questionnaire 1 (Age 18+): Diseases & symptoms

8 Formulaires

StudyEvent: ODM

Name

Type

Description | Question | Decode (Coded Value)

Type de données

Alias

Acne

Item Group

Acne

C0702166 (UMLS CUI-1)

Severe acne

Item

Could you indicate which of the following disorders you have (had)? Severe acne

integer

C0262926 (UMLS CUI [1,1])
C0205082 (UMLS CUI [1,2])
C0702166 (UMLS CUI [1,3])

Severe acne

Code List

Could you indicate which of the following disorders you have (had)? Severe acne

CL Item

Yes (1)

Allergies

Item Group

Allergies

C0020517 (UMLS CUI-1)

Nasal allergy and hay fever

Item

Do you have any form of nasal allergy, including hay fever, or have you ever had this?

boolean

C0262926 (UMLS CUI [1,1])
C0847614 (UMLS CUI [1,2])
C0262926 (UMLS CUI [2,1])
C0018621 (UMLS CUI [2,2])

Age of onset of nasal allergy

Item

If you have (had) any form of nasal allergy, how old were you when you first had hay fever or nasal allergy?

integer

C0847614 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])
C0206132 (UMLS CUI [2,1])
C0018621 (UMLS CUI [2,2])

Current nasal allergy

Item

Do you still suffer from hay fever or nasal allergy?

boolean

C0521116 (UMLS CUI [1,1])
C0847614 (UMLS CUI [1,2])
C0521116 (UMLS CUI [2,1])
C0018621 (UMLS CUI [2,2])

Age at recovery from nasal allergy

Item

If you do not suffer from hay fever or nasal allergy anymore, since what age has it stopped?

integer

C0847614 (UMLS CUI [1,1])
C2004454 (UMLS CUI [1,2])
C0001779 (UMLS CUI [1,3])
C0018621 (UMLS CUI [2,1])
C2004454 (UMLS CUI [2,2])
C0001779 (UMLS CUI [2,3])

No allergy

Item

Could you indicate which of the following things you are allergic to? I'm not allergic to any of the things mentioned.

boolean

C0020517 (UMLS CUI [1,1])
C0332197 (UMLS CUI [1,2])

Dust allergy

Item

Could you indicate which of the following things you are allergic to? Dust (house dust and the like).

boolean

C0013330 (UMLS CUI [1,1])
C0020517 (UMLS CUI [1,2])

Allergy to animals

Item

Could you indicate which of the following things you are allergic to? Animals (cat, dog etc.).

boolean

C4082933 (UMLS CUI [1])

Allergy to pollen

Item

Could you indicate which of the following things you are allergic to? Pollen (grass, birch etc.).

boolean

C0020517 (UMLS CUI [1,1])
C0032385 (UMLS CUI [1,2])

Food allergy

Item

Could you indicate which of the following things you are allergic to? Foods (egg, peanut etc.).

boolean

C0016470 (UMLS CUI [1])

Drug allergy

Item

Could you indicate which of the following things you are allergic to? Medication (antibiotics and the like).

boolean

C0013182 (UMLS CUI [1])

Contact allergy

Item

Could you indicate which of the following things you are allergic to? Contact allergy (nickel, latex etc.).

boolean

C2106655 (UMLS CUI [1])

Allergy to insect bites

Item

Could you indicate which of the following things you are allergic to? Insects (bites).

boolean

C0854051 (UMLS CUI [1])

Other allergy

Item

Could you indicate which of the following things you are allergic to? Other

boolean

C0020517 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])

Other allergy - Specification

Item

Specification of other allergy.

text

C0020517 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C2348235 (UMLS CUI [1,3])

Blood disorders

Item Group

Blood disorders

C0018939 (UMLS CUI-1)

Thrombosis

Item

Could you indicate which of the following disorders you have (had)? Thrombosis.

boolean

C0040053 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Pulmonary embolism

Item

Could you indicate which of the following disorders you have (had)? Pulmonary embolism

boolean

C0034065 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Anemia

Item

Could you indicate which of the following disorders you have (had)? Anemia

boolean

C0002871 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Blood clotting disorder

Item

Could you indicate which of the following disorders you have (had)? Blood clotting disorder

boolean

C0005779 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Year of onset of blood clotting disorder

Item

Since what year do you have a blood clotting disorder?

partialDate

C0005779 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Cancer

Item Group

Cancer

C0006826 (UMLS CUI-1)

Cancer

Item

Do you have cancer or have you had cancer?

boolean

C0006826 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
C0006826 (UMLS CUI [2,1])
C1444637 (UMLS CUI [2,2])

Type of cancer

Item

If you have (had) cancer, what type of cancer?

text

C0872066 (UMLS CUI [1])

Cancer: Age of onset

Item

If you have (had) cancer, how old were you when you got cancer?

integer

C0206132 (UMLS CUI [1,1])
C0006826 (UMLS CUI [1,2])

Cure from cancer

Item

If you have had cancer, were you cured from cancer?

boolean

C0006826 (UMLS CUI [1,1])
C0205249 (UMLS CUI [1,2])

Year of onset of cancer

Item

Since what year do you have cancer?

partialDate

C3274945 (UMLS CUI [1,1])
C0006826 (UMLS CUI [1,2])

Cardiovascular diseases

Item Group

Cardiovascular diseases

C0007222 (UMLS CUI-1)

Heart attack in the past

Item

Have you ever had a heart attack?

boolean

C0027051 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Heart attack age of onset

Item

If you have ever had a heart attack, how old were you when you had your (first) heart attack?

boolean

C0027051 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Year of onset of heart attack

Item

Since what year do you have a heart attack?

partialDate

C0027051 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Aortic aneurysm

Item

Were you ever diagnosed with a dilatation of the aorta (aortic aneurysm)?

boolean

C0003486 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Aortic aneurysm year of onset

Item

Since what year do you have the aortic aneurysm?

partialDate

C0003486 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Aortic aneurysm age of onset

Item

If you were ever diagnosed with a dilatation of the aorta, how old were you when the dilatation of the aorta was diagnosed for the first time?

integer

C0003486 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Balloon angioplasty / bypass surgery

Item

Have you ever had a balloon angioplasty (stretching of artery with balloon) and/or bypass surgery?

boolean

C0262926 (UMLS CUI [1,1])
C1536078 (UMLS CUI [1,2])
C0262926 (UMLS CUI [2,1])
C0002996 (UMLS CUI [2,2])

Year of onset of aortic aneurysm needing therapy

Item

Since what year do you have the aortic aneurysm, for which a balloon angioplasty or bypass surgery was necessary?

partialDate

C3274945 (UMLS CUI [1,1])
C0003486 (UMLS CUI [1,2])
C0815189 (UMLS CUI [1,3])
C1536078 (UMLS CUI [1,4])
C3274945 (UMLS CUI [2,1])
C0003486 (UMLS CUI [2,2])
C0815189 (UMLS CUI [2,3])
C0002996 (UMLS CUI [2,4])

Age at first ballon angioplasty/ bypass surgery

Item

If you have ever had a balloon angioplasty and/or bypass surgery, how old were you when you had the (first) balloon angioplasty/bypass surgery?

integer

C4698447 (UMLS CUI [1,1])
C1882330 (UMLS CUI [1,2])
C0741847 (UMLS CUI [1,3])
C4698447 (UMLS CUI [2,1])
C1882330 (UMLS CUI [2,2])
C0002996 (UMLS CUI [2,3])

Occasional Arrhythmia / Tachycardia

Item

Do you at times have complaints of an irregular heartbeat or a heartbeat that is too fast?

boolean

C1998882 (UMLS CUI [1,1])
C0003811 (UMLS CUI [1,2])
C1998882 (UMLS CUI [2,1])
C0039231 (UMLS CUI [2,2])

Arrhythmia diagnosed

Item

If you have arrhythmia, was the arrhythmia ever diagnosed by a doctor and/or in the hospital?

boolean

C0003811 (UMLS CUI [1,1])
C0521093 (UMLS CUI [1,2])
C0031831 (UMLS CUI [1,3])
C0003811 (UMLS CUI [2,1])
C0521093 (UMLS CUI [2,2])
C0019994 (UMLS CUI [2,3])

Year of onset - Arrhythmia

Item

Since what year do you have cardiac arrhythmia?

partialDate

C3274945 (UMLS CUI [1,1])
C0003811 (UMLS CUI [1,2])

Arrythmia - age of onset

Item

If you have arrhythmia, how old were you when the complaints of arrhythmia first occurred?

integer

C0003811 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Year of onset - Arrhythmia

Item

Since what year do you have cardiac arrhythmia?

partialDate

C3274945 (UMLS CUI [1,1])
C0003811 (UMLS CUI [1,2])

Arrhythmia not treated

Item

How are you being treated for arrhythmia? - I am not being treated for arrhythmia.

boolean

C0003811 (UMLS CUI [1,1])
C0746919 (UMLS CUI [1,2])

Arrhythmia treated with blood thinners

Item

How are you being treated for arrhythmia? - With blood thinners.

boolean

C0003811 (UMLS CUI [1,1])
C0238662 (UMLS CUI [1,2])

Arrhythmia treated by slowing down the heartbeat

Item

How are you being treated for arrhythmia? - With medication that slows down the heartbeat.

boolean

C0003811 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
C0011100 (UMLS CUI [1,3])
C0425583 (UMLS CUI [1,4])

Arrhythmia treated by normalizing the heartbeat

Item

How are you being treated for arrhythmia? - With medication that normalizes the heart rhythm.

boolean

C0003811 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
C1882115 (UMLS CUI [1,3])
C0425583 (UMLS CUI [1,4])

Arrhythmia treated with a pacemaker

Item

How are you being treated for arrhythmia? - With a pacemaker.

boolean

C0003811 (UMLS CUI [1,1])
C0030163 (UMLS CUI [1,2])

Arrhythmia - other treatment

Item

How are you being treated for arrhythmia? - With another treatment.

boolean

C0003811 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])

Arrhythmia - other treatment specification

Item

How are you being treated for arrhythmia? - Type of other treatment for arrhythmia:

text

C0003811 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C2348235 (UMLS CUI [1,4])

Heart failure

Item

Do you have heart failure (decreased pumping of the heart)?

integer

C0018801 (UMLS CUI [1])

Heart failure

Code List

Do you have heart failure (decreased pumping of the heart)?

CL Item

Yes (1)

CL Item

No (2)

CL Item

I do not know (3)

Heart failure - Year of onset

Item

Since what year do you have heart failure?

partialDate

C0018801 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Heart failure - age of onset

Item

If you have heart failure, how old were you when heart failure first occured?

integer

C0018801 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Heart failure - no treatment

Item

How are you being treated for heart failure? - I am not being treated for heart failure.

boolean

C0018801 (UMLS CUI [1,1])
C0746919 (UMLS CUI [1,2])

Heart failure - low-salt diet / fluid restriction

Item

How are you being treated for heart failure? - With a low-salt diet and/or fluid restriction.

boolean

C0018801 (UMLS CUI [1,1])
C0012169 (UMLS CUI [1,2])
C0018801 (UMLS CUI [2,1])
C0204700 (UMLS CUI [2,2])

Heart failure treated with medication

Item

How are you being treated for heart failure? - With medication.

boolean

C0018801 (UMLS CUI [1,1])
C0013216 (UMLS CUI [1,2])

Heart failure treated with a pacemaker

Item

How are you being treated for heart failure? - With a pacemaker.

boolean

C0018801 (UMLS CUI [1,1])
C0030163 (UMLS CUI [1,2])

Heart failure treated with a transplant

Item

How are you being treated for heart failure? - I have had a transplant.

boolean

C0018801 (UMLS CUI [1,1])
C0018823 (UMLS CUI [1,2])

Heart failure - year of transplantation

Item

How are you being treated for heart failure? - I have had a transplant in (year):

partialDate

C0018801 (UMLS CUI [1,1])
C0018823 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,3])

Heart failure - other treatment

Item

How are you being treated for heart failure? - With another treatment

text

C0018801 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])

Heart failure - other treatment specification

Item

How are you being treated for heart failure? - With another treatment, namely:

text

C0018801 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C2348235 (UMLS CUI [1,4])

Hypertension

Item

Have you ever had hypertension?

integer

C0020538 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Hypertension

Code List

Have you ever had hypertension?

CL Item

Yes (1)

CL Item

No (2)

CL Item

I do not know (3)

High cholesterol

Item

Have you ever been diagnosed with high cholesterol?

integer

C0020443 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Hypertension

Code List

Have you ever been diagnosed with high cholesterol?

CL Item

Yes (1)

CL Item

No (2)

CL Item

I do not know (3)

High cholesterol - age of onset

Item

If you have ever been diagnosed with high cholesterol, how old were you when high cholesterol was first diagnosed?

integer

C0020443 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Hypertension

Code List

If you have ever been diagnosed with high cholesterol, how old were you when high cholesterol was first diagnosed?

High cholesterol - treatment

Item

How are you being treated for high cholesterol?

integer

C0020443 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])

High cholesterol - treatment

Code List

How are you being treated for high cholesterol?

CL Item

I am not being treated (1)

CL Item

With a diet (2)

CL Item

With medication (3)

CL Item

With both (4)

Stroke

Item

Have you ever had a stroke?

boolean

C0038454 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Stroke - Year of onset

Item

Since what year do you have a stroke?

partialDate

C0038454 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Stroke - Age of onset

Item

If you have ever had a stroke, how old were you when you had the (first) stroke?

integer

C0038454 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Narrowing in carotid arteries

Item

Have you ever been diagnosed with a narrowing in one or both carotid arteries?

boolean

C0007282 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Heart valve problems

Item

Could you indicate which of the following disorders you have (had)? Heart valve problems.

boolean

C0018824 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Atherosclerosis

Item

Could you indicate which of the following disorders you have (had)? Atherosclerosis.

boolean

C0004153 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Cardiovascular symptoms

Item Group

Cardiovascular symptoms

C0476270 (UMLS CUI-1)

Chest pain, burdensome, oppressive or heavy feeling on the chest

Item

Have you ever had chest pain, or other complaints such as a burdensome, oppressive or heavy feeling on the chest?

text

C0262926 (UMLS CUI [1,1])
C3842521 (UMLS CUI [1,2])
C0262926 (UMLS CUI [2,1])
C0581912 (UMLS CUI [2,2])
C0817096 (UMLS CUI [2,3])
C0262926 (UMLS CUI [3,1])
C0546947 (UMLS CUI [3,2])

Occasional swollen ankles / accumulating fluids

Item

Do you at times have swollen ankles (edema), or does fluid accumulate elsewhere?

boolean

C1998882 (UMLS CUI [1,1])
C0235439 (UMLS CUI [1,2])
C1998882 (UMLS CUI [2,1])
C1511559 (UMLS CUI [2,2])
C0005889 (UMLS CUI [2,3])

Temporary sudden loss of function

Item

Have you ever had a sudden loss of function which you later regained (such as loss of strength, sensory disturbance, blindness in one eye, slurred speech)?

boolean

C0262926 (UMLS CUI [1,1])
C5201090 (UMLS CUI [1,2])
C0205374 (UMLS CUI [1,3])
C4061179 (UMLS CUI [1,4])
C0262926 (UMLS CUI [2,1])
C0205374 (UMLS CUI [2,2])
C3714552 (UMLS CUI [2,3])
C0262926 (UMLS CUI [3,1])
C0205374 (UMLS CUI [3,2])
C0152027 (UMLS CUI [3,3])
C0262926 (UMLS CUI [4,1])
C0205374 (UMLS CUI [4,2])
C0271240 (UMLS CUI [4,3])
C0262926 (UMLS CUI [5,1])
C0205374 (UMLS CUI [5,2])
C0234518 (UMLS CUI [5,3])

Diabetes

Item Group

Diabetes

C0011849 (UMLS CUI-1)

Diabetes mellitus

Item

Do you have diabetes mellitus?

boolean

C0011849 (UMLS CUI [1])

Type of Diabetes mellitus

Item

If you have diabetes, what type of diabetes do you have?

integer

C0011849 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])

Type of Diabetes mellitus

Code List

If you have diabetes, what type of diabetes do you have?

CL Item

Type 1 (juvenile diabetes, from childhood) (1)

CL Item

Type 2 (adult-onset diabetes, later in life) (2)

CL Item

Other type, namely (3)

CL Item

I do not know (4)

Other type of Diabetes mellitus

Item

If you have diabetes, what type of diabetes do you have? Another type of diabetes:

text

C0011849 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])

Diabetes mellitus - Age of onset

Item

If you have diabetes, how old were you when you got diabetes?

integer

C0011849 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Diabetes mellitus treatment

Item

If you have diabetes, how are you being treated?

integer

C0011849 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])

Diabetes mellitus treatment

Code List

If you have diabetes, how are you being treated?

CL Item

I am not being treated for diabetes mellitus (1)

CL Item

Only tablets (2)

CL Item

Only insulin (through injection or pump) (3)

CL Item

Tablets and insulin (4)

CL Item

Only a diet (5)

Diabetes mellitus- year of onset

Item

Since what year do you have diabetes?

partialDate

C0011849 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Digestive system diseases

Item Group

Digestive system diseases

C0012242 (UMLS CUI-1)

No digestive diseases

Item

Could you indicate which of the following disorders you have (had)? No digestive diseases.

boolean

C0012242 (UMLS CUI [1,1])
C0332197 (UMLS CUI [1,2])

Stomach ulcer

Item

Could you indicate which of the following disorders you have (had)? Stomach ulcer.

boolean

C0038358 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C0038358 (UMLS CUI [2,1])
C0521116 (UMLS CUI [2,2])

Ulcerative colitis

Item

Could you indicate which of the following disorders you have (had)? Ulcerative colitis.

boolean

C0009324 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C0009324 (UMLS CUI [2,1])
C0521116 (UMLS CUI [2,2])

Crohn's disease

Item

Could you indicate which of the following disorders you have (had)? Crohn's disease.

boolean

C0010346 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C0010346 (UMLS CUI [2,1])
C0521116 (UMLS CUI [2,2])

Irritable Bowel Syndrome (IBS)

Item

Could you indicate which of the following disorders you have (had)? Irritable Bowel Syndrome (IBS)

boolean

C0022104 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C0022104 (UMLS CUI [2,1])
C0521116 (UMLS CUI [2,2])

Hepatitis

Item

Could you indicate which of the following disorders you have (had)? Hepatitis.

boolean

C0019158 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C0019158 (UMLS CUI [2,1])
C0521116 (UMLS CUI [2,2])

Liver cirrhosis

Item

Could you indicate which of the following disorders you have (had)? Liver cirrhosis

boolean

C0023890 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C0023890 (UMLS CUI [2,1])
C0521116 (UMLS CUI [2,2])

Disorders: celiac disease

Item

Could you indicate which of the following disorders you have (had)? Celiac disease

boolean

C0007570 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C0007570 (UMLS CUI [2,1])
C0521116 (UMLS CUI [2,2])

Gallstones

Item

Could you indicate which of the following disorders you have (had)? Gallstones.

boolean

C0008350 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C0008350 (UMLS CUI [2,1])
C0521116 (UMLS CUI [2,2])

Ear conditions

Item Group

Ear conditions

C0013447 (UMLS CUI-1)

Need of hearing aid

Item

Do you need a hearing aid?

boolean

C0686904 (UMLS CUI [1,1])
C0018768 (UMLS CUI [1,2])

Limits in daily life due to hearing problems

Item

Are you limited by problems with your hearing in daily life?

integer

C0221099 (UMLS CUI [1,1])
C0871707 (UMLS CUI [1,2])
C0678226 (UMLS CUI [1,3])
C0260662 (UMLS CUI [1,4])

Limits in daily life due to hearing problems

Code List

Are you limited by problems with your hearing in daily life?

CL Item

Yes, severely limited (1)

CL Item

Yes, somewhat limited (2)

CL Item

No, not limited at all (3)

Eye conditions (general)

Item Group

Eye conditions (general)

C0015397 (UMLS CUI-1)

Need for glasses / contact lenses

Item

Do you need glasses or contact lenses?

integer

C0686904 (UMLS CUI [1,1])
C3843284 (UMLS CUI [1,2])

Need for glasses / contact lenses

Code List

Do you need glasses or contact lenses?

CL Item

Yes, only for nearby (reading etc.) (1)

CL Item

Yes, only for seeing far away (driving a car, watching television) (2)

CL Item

Yes, both for nearby and far away (3)

CL Item

No (4)

Limits in daily life due to eyesight problems

Item

Are you limited by problems with your eyesight in daily life?

integer

C0221099 (UMLS CUI [1,1])
C0871707 (UMLS CUI [1,2])
C0678226 (UMLS CUI [1,3])
C3665386 (UMLS CUI [1,4])

Limits in daily life due to eyesight problems

Code List

Are you limited by problems with your eyesight in daily life?

CL Item

Yes, severely limited (1)

CL Item

Yes, somewhat limited (2)

CL Item

No, not limited at all (3)

Cataract

Item

Could you indicate which of the following disorders you have (had)? Cataract.

boolean

C0086543 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Eating disorders

Item Group

Eating disorders

C0013473 (UMLS CUI-1)

Eating disorder

Item

Could you indicate which of the following disorders you have (had)? Eating disorder.

boolean

C0013473 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Fatigue

Item Group

Fatigue

C0015672 (UMLS CUI-1)

Chronic fatigue syndrome

Item

Could you indicate which of the following disorders you have (had)? Chronic fatigue syndrome (CFS/ME).

boolean

C0015674 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Kidney & bladder diseases

Item Group

Kidney & bladder diseases

C0022658 (UMLS CUI-1)
C0005686 (UMLS CUI-2)

No kidney disorder

Item

Have you had one or more of the following kidney disorders? No kidney disorder.

boolean

C0549184 (UMLS CUI [1,1])
C0022658 (UMLS CUI [1,2])
C0262926 (UMLS CUI [1,3])

Narrowing of the renal artery/arteries

Item

Have you had one or more of the following kidney disorders? Narrowing of the renal artery/arteries.

boolean

C0035067 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Contracted kidney

Item

Have you had one or more of the following kidney disorders? Contracted kidney.

boolean

C3495403 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Hydronephrosis

Item

Have you had one or more of the following kidney disorders? Hydronephrosis

boolean

C0020295 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Blood test for kidney problem

Item

Was your blood ever tested for a possible kidney problem?

boolean

C0008000 (UMLS CUI [1,1])
C0022658 (UMLS CUI [1,2])
C0262926 (UMLS CUI [1,3])

Urine test

Item

Have you ever had a urine test?

integer

C0042014 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Urine test

Code List

Have you ever had a urine test?

CL Item

Yes, once (1)

CL Item

Yes, multiple times (2)

CL Item

No (3)

Number of urine tests

Item

Number of urine tests:

integer

C0042014 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])

Urine test: no abnormabilities

Item

Do you know the outcome of these urine tests? No abnormalities.

boolean

C0042014 (UMLS CUI [1,1])
C3809765 (UMLS CUI [1,2])

Urine test: amount of outcomes with no abnormabilities

Item

No abnormalities. How many times was this outcome established?

integer

C0042014 (UMLS CUI [1,1])
C3809765 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])

Urine test: cystitis / kidney stones

Item

Do you know the outcome of these urine tests? (Signs of) cystitis or kidney stones

boolean

C0042014 (UMLS CUI [1,1])
C0010692 (UMLS CUI [1,2])
C0042014 (UMLS CUI [2,1])
C0392525 (UMLS CUI [2,2])

Urine test: amout of outcomes with cystitis / kidney stones

Item

(Signs of) cystitis or kidney stones. How many times was this outcome established?

integer

C0042014 (UMLS CUI [1,1])
C0010692 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C0042014 (UMLS CUI [2,1])
C0392525 (UMLS CUI [2,2])
C0449788 (UMLS CUI [2,3])

Urine test: microscopic hematuria without cystitis / kidney stones

Item

Do you know the outcome of these urine tests? A small amount of blood, without cystitis or kidney stones.

boolean

C0042014 (UMLS CUI [1,1])
C0239937 (UMLS CUI [1,2])
C0332288 (UMLS CUI [1,3])
C0010692 (UMLS CUI [1,4])
C0042014 (UMLS CUI [2,1])
C0239937 (UMLS CUI [2,2])
C0332288 (UMLS CUI [2,3])
C0392525 (UMLS CUI [2,4])

Urine test: amount of outcomes with microscopic hematuria without cystitis / kidney stones

Item

A small amount of blood, without cystitis or kidney stones. How many times was this outcome established?

integer

C0042014 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0239937 (UMLS CUI [1,3])
C0332288 (UMLS CUI [1,4])
C0010692 (UMLS CUI [1,5])
C0042014 (UMLS CUI [2,1])
C0449788 (UMLS CUI [2,2])
C0239937 (UMLS CUI [2,3])
C0332288 (UMLS CUI [2,4])
C0392525 (UMLS CUI [2,5])

Urine test: protein in the urine

Item

Do you know the outcome of these urine tests? Protein in the urine.

boolean

C0042014 (UMLS CUI [1,1])
C0948586 (UMLS CUI [1,2])

Urine test: amout of outcomes with protein in the urine

Item

Protein in the urine. How many times was this outcome established?

integer

C0042014 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0948586 (UMLS CUI [1,3])

Urine test: result unknown

Item

Do you know the outcome of these urine tests? I do not know the outcome of the test (anymore).

boolean

C0042014 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])

Urine test: number of unknown test result

Item

Of how many urine tests do you not know the outcome (anymore)?

integer

C0042014 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,3])
C0439673 (UMLS CUI [1,4])

Urine test: ongoing proteinuria

Item

Have you ever been diagnosed with protein in the urine, and is that currently still the case?

integer

C0042014 (UMLS CUI [1,1])
C0033687 (UMLS CUI [1,2])
C0521116 (UMLS CUI [1,3])

Urine test: ongoing proteinuria

Code List

Have you ever been diagnosed with protein in the urine, and is that currently still the case?

CL Item

Yes, but only during pregnancy (1)

CL Item

Yes, I have been diagnosed with protein in the urine in the past (2)

CL Item

Yes, I still have protein in my urine (3)

CL Item

No, I have never been diagnosed with protein in the urine (4)

CL Item

I do not know (5)

Disturbed kidney function

Item

Have you ever been diagnosed with a disturbed kidney function?

boolean

C0262926 (UMLS CUI [1,1])
C0151746 (UMLS CUI [1,2])

Current disturbed kidney function

Item

Is this still the case?

boolean

C0521116 (UMLS CUI [1,1])
C0151746 (UMLS CUI [1,2])

Disturbed kidney function - patients knowledge about severity

Item

If you have ever been diagnosed with a disturbed kidney function, do you know the severity of the disorder?

integer

C0151746 (UMLS CUI [1,1])
C0030705 (UMLS CUI [1,2])
C0376554 (UMLS CUI [1,3])
C0392364 (UMLS CUI [1,4])

Disturbed kidney function - patients knowledge about severity

Code List

If you have ever been diagnosed with a disturbed kidney function, do you know the severity of the disorder?

CL Item

Light (1)

CL Item

Moderate (2)

CL Item

Severe (3)

CL Item

I do not know (4)

History of kidney disease

Item

Have you been diagnosed with a kidney disease?

boolean

C0262926 (UMLS CUI [1,1])
C0022658 (UMLS CUI [1,2])

Treated for kidney disease

Item

Are you being treated for this?

integer

C0087111 (UMLS CUI [1,1])
C0022658 (UMLS CUI [1,2])

Treated for kidney disease

Code List

Are you being treated for this?

CL Item

No, I am not being treated for kidney disease (1)

CL Item

Yes, with medication (2)

CL Item

Yes, with medication and diet (3)

CL Item

Yes, with dialysis (4)

CL Item

Yes, I have had a transplant (5)

Kidney stones

Item

Could you indicate which of the following disorders you have (had)? Kidney stones.

boolean

C0022650 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Chronic cystitis

Item

Could you indicate which of the following disorders you have (had)? Chronic cystitis.

boolean

C0221763 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Incontinence

Item

Could you indicate which of the following disorders you have (had)? Incontinence

boolean

C0021167 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Renal failure

Item

Do you have renal failure?

boolean

C0035078 (UMLS CUI [1])

Renal failure - Year of onset

Item

Since what year do you have renal failure?

partialDate

C0035078 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Mental illnessess

Item Group

Mental illnesses

C0004936 (UMLS CUI-1)

Burnout

Item

Could you indicate which of the following disorders you have (had)? Burnout.

boolean

C1696945 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Depression

Item

Could you indicate which of the following disorders you have (had)? Depression.

boolean

C0011581 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Depression - Year of onset

Item

Since what year do you have a depression?

partialDate

C0011581 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Social phobia

Item

Could you indicate which of the following disorders you have (had)? Social phobia.

boolean

C0031572 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Agoraphobia

Item

Could you indicate which of the following disorders you have (had)? Agoraphobia (fear of open spaces).

boolean

C0001818 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Panic disorder

Item

Could you indicate which of the following disorders you have (had)? Panic disorder.

boolean

C0030319 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

(Other) anxiety disorder

Item

Could you indicate which of the following disorders you have (had)? (Other) anxiety disorder.

boolean

C0205394 (UMLS CUI [1,1])
C0003469 (UMLS CUI [1,2])
C0262926 (UMLS CUI [1,3])

Bipolar disorder

Item

Could you indicate which of the following disorders you have (had)? Manic-depressive disorder (bipolar disorder).

boolean

C0005586 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Bipolar disorder - Year of onset

Item

Since what year do you have manic depressive disorder?

partialDate

C0005586 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Schizophrenia

Item

Could you indicate which of the following disorders you have (had)? Schizophrenia.

boolean

C0036341 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Schizophrenia - Year of onset

Item

Since what year do you have schizophrenia?

partialDate

C3274945 (UMLS CUI [1,1])
C0036341 (UMLS CUI [1,2])

Obsessive disorder

Item

Could you indicate which of the following disorders you have (had)? Obsessive/compulsive disorder.

boolean

C0028768 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

ADHD

Item

Could you indicate which of the following disorders you have (had)? ADHD.

boolean

C1263846 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Phobia

Item

Do you have a phobia?

boolean

C0236801 (UMLS CUI [1])

Phobia - Year of onset

Item

Since what year do you have a phobia?

partialDate

C0236801 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Anxiety disorder

Item

Do you have an anxiety disorder?

boolean

C0003469 (UMLS CUI [1])

Anxiety disorder - Year of onset

Item

Since what year do you have an anxiety disorder?

partialDate

C0003469 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

No of the mentioned disorders

Item

Could you indicate which of the following disorders you have (had)? None of the disorders.

boolean

C1552738 (UMLS CUI [1,1])
C0004936 (UMLS CUI [1,2])
C0332197 (UMLS CUI [1,3])
C0262926 (UMLS CUI [1,4])

Expectations of changes during the next 6 month

Item

In the next 6 months, do you expect your psychological complaints to change?

integer

C0679138 (UMLS CUI [1,1])
C0392747 (UMLS CUI [1,2])
C1306597 (UMLS CUI [1,3])
C4082120 (UMLS CUI [1,4])

Expectations of changes during the next 6 month

Code List

In the next 6 months, do you expect your psychological complaints to change?

CL Item

In the next 6 months I still have no psychological complaints. (1)

CL Item

In the next 6 months my psychological complaints will be the same. (2)

CL Item

In the next 6 months I will have less psychological complaints. (3)

CL Item

In the next 6 months I will have slightly more psychological complaints. (4)

CL Item

In the next 6 months I will have a lot more psychological complaints. (5)

Musculoskeletal conditions

Item Group

Musculoskeletal conditions

C0026860 (UMLS CUI-1)

Fibromyalgia

Item

Could you indicate which of the following disorders you have (had)? Fibromyalgia.

boolean

C0262926 (UMLS CUI [1,1])
C0016053 (UMLS CUI [1,2])

Fibromyalgia - Year of onset

Item

Since what year do you have fibromyalgia?

partialDate

C0016053 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Osteoarthritis

Item

Could you indicate which of the following disorders you have (had)? Osteoarthritis (joint degradation).

boolean

C0262926 (UMLS CUI [1,1])
C0029408 (UMLS CUI [1,2])

Rheumatoid arthritis

Item

Could you indicate which of the following disorders you have (had)? Rheumatoid arthritis (joint inflammation).

boolean

C0262926 (UMLS CUI [1,1])
C0003873 (UMLS CUI [1,2])

Rheumatoid arthritis - Year of onset

Item

Since what year do you have rheumatoid arthritis?

partialDate

C0035435 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Arthrosis

Item

Do you have arthrosis?

boolean

C4760573 (UMLS CUI [1])

Arthrosis - Year of onset

Item

Since what year do you have arthrosis?

partialDate

C4760573 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Other type of rheumatism

Item

Do you have a different type of rheumatism?

boolean

C0205394 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0035435 (UMLS CUI [1,3])

Other type of rheumatism - Year of onset

Item

Since what year do you have a different type of rheumatism?

partialDate

C0205394 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0035435 (UMLS CUI [1,3])
C3274945 (UMLS CUI [1,4])

Type of rheumatism not known

Item

I have rheumatism but do not know what type.

boolean

C0205394 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0035435 (UMLS CUI [1,3])
C0439673 (UMLS CUI [1,4])

Unknown type of rheumatism - Year of onset

Item

Since what year do you have the unknown type of rheumatism?

partialDate

C0439673 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0035435 (UMLS CUI [1,3])
C3274945 (UMLS CUI [1,4])

Different type of rheumatism - Description

Item

Description different type of rheumatism.

text

C0205394 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0035435 (UMLS CUI [1,3])
C0678257 (UMLS CUI [1,4])

Osteoporosis

Item

Could you indicate which of the following disorders you have (had)? Osteoporosis (reduced bone mineral density).

boolean

C0262926 (UMLS CUI [1,1])
C0029456 (UMLS CUI [1,2])

Osteoporosis - Year of onset

Item

Since what year do you have osteoporosis?

partialDate

C0029456 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Back or neck hernia

Item

Could you indicate which of the following disorders you have (had)? Back or neck hernia.

boolean

C0262926 (UMLS CUI [1,1])
C0027530 (UMLS CUI [1,2])
C0019270 (UMLS CUI [1,3])
C0262926 (UMLS CUI [2,1])
C0242362 (UMLS CUI [2,2])

Repetitive strain injury

Item

Could you indicate which of the following disorders you have (had)? RSI.

boolean

C0262926 (UMLS CUI [1,1])
C0035127 (UMLS CUI [1,2])

Hip fracture

Item

Could you indicate which of the following disorders you have (had)? Hip fracture (in the past 12 months).

boolean

C0262926 (UMLS CUI [1,1])
C0019557 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])

Fractures other than a hip fracture

Item

Could you indicate which of the following disorders you have (had)? Fractures other than a hip fracture (in the past 12 months).

boolean

C0262926 (UMLS CUI [1,1])
C0016658 (UMLS CUI [1,2])
C4723751 (UMLS CUI [1,3])
C0019557 (UMLS CUI [1,4])
C4086728 (UMLS CUI [1,5])

Foot/leg amputation

Item

Was a (part of a) foot/leg amputated?

boolean

C0262926 (UMLS CUI [1,1])
C0576410 (UMLS CUI [1,2])
C0262926 (UMLS CUI [2,1])
C0586286 (UMLS CUI [2,2])
C0262926 (UMLS CUI [3,1])
C0744107 (UMLS CUI [3,2])
C0262926 (UMLS CUI [4,1])
C0728938 (UMLS CUI [4,2])
C0586286 (UMLS CUI [4,3])

Foot/leg amputation - age

Item

How old were you when the (first) amputation took place?

boolean

C0576410 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])
C0586286 (UMLS CUI [2,1])
C0206132 (UMLS CUI [2,2])

Amputation

Item

Have you had an amputation?

boolean

C0002688 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Amputation specification

Item

Specification of amputation.

text

C0002688 (UMLS CUI [1,1])
C2348235 (UMLS CUI [1,2])

Year of amputation

Item

Since what year do you have an amputation?

partialDate

C0002688 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Musculoskeletal symptoms

Item Group

Musculoskeletal symptoms

C0231443 (UMLS CUI-1)

Complaints in legs while walking

Item

Have you ever had complaints (pain, heavy or tired feeling, tingling) in one or both legs while walking?

integer

C0262926 (UMLS CUI [1,1])
C0497268 (UMLS CUI [1,2])
C0080331 (UMLS CUI [1,3])
C0238767 (UMLS CUI [1,4])
C0262926 (UMLS CUI [2,1])
C0497268 (UMLS CUI [2,2])
C0080331 (UMLS CUI [2,3])
C0205092 (UMLS CUI [2,4])

Complaints in legs while walking

Code List

Have you ever had complaints (pain, heavy or tired feeling, tingling) in one or both legs while walking?

CL Item

Yes (1)

CL Item

No (2)

CL Item

Not applicable, because I cannot walk (3)

Complaints in legs at night

Item

Have you ever had complaints (pain, heavy or tired feeling, tingling) in one or both legs at night?

boolean

C0262926 (UMLS CUI [1,1])
C0497268 (UMLS CUI [1,2])
C0240526 (UMLS CUI [1,3])
C0238767 (UMLS CUI [1,4])
C0262926 (UMLS CUI [2,1])
C0497268 (UMLS CUI [2,2])
C0240526 (UMLS CUI [2,3])
C0205092 (UMLS CUI [2,4])

Complaints in legs - age of onset

Item

If you have ever had complaints (pain, heavy or tired feeling, tingling) in one or both legs, how old were you when the complaints first occurred?

integer

C0497268 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])
C0238767 (UMLS CUI [1,3])
C0497268 (UMLS CUI [2,1])
C0206132 (UMLS CUI [2,2])
C0205092 (UMLS CUI [2,3])

Poorly healing wounds on feet

Item

Have you ever had poorly healing wounds on your feet?

integer

C0262926 (UMLS CUI [1,1])
C1851789 (UMLS CUI [1,2])
C0016504 (UMLS CUI [1,3])

Joint pain in hands

Item

Do you regularly (several times a week) have pain in the joints of your hands?

boolean

C0205272 (UMLS CUI [1,1])
C0018563 (UMLS CUI [1,2])
C0003862 (UMLS CUI [1,3])

Joint pain in feet

Item

Do you regularly (several times a week) have pain in the joints of your feet?

boolean

C0205272 (UMLS CUI [1,1])
C0016504 (UMLS CUI [1,2])
C0003862 (UMLS CUI [1,3])

Joint stiffness in hands

Item

Do you regularly (several times a week) have stiffness in the joints of your hands?

boolean

C0205272 (UMLS CUI [1,1])
C0018563 (UMLS CUI [1,2])
C0162298 (UMLS CUI [1,3])

Joint stiffness in feet

Item

Do you regularly (several times a week) have stiffness in the joints of your feet?

boolean

C0205272 (UMLS CUI [1,1])
C0016504 (UMLS CUI [1,2])
C0162298 (UMLS CUI [1,3])

Neurological disorders

Item Group

Neurological disorders

C0027765 (UMLS CUI-1)

Migraine

Item

Could you indicate which of the following disorders you have (had)? Migraine.

boolean

C0149931 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Epilepsy

Item

Could you indicate which of the following disorders you have (had)? Epilepsy.

boolean

C0262926 (UMLS CUI [1,1])
C0014544 (UMLS CUI [1,2])

Epilepsy - Year of onset

Item

Since what year do you have epilepsy?

partialDate

C0014544 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Multiple sclerosis

Item

Could you indicate which of the following disorders you have (had)? Multiple sclerosis.

boolean

C0262926 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])

Multiple sclerosis - Year of onset

Item

Since what year do you have multiple sclerosis?

partialDate

C0026769 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Spasticity

Item

Could you indicate which of the following disorders you have (had)? Spasticity.

boolean

C0262926 (UMLS CUI [1,1])
C0026838 (UMLS CUI [1,2])

Dementia

Item

Could you indicate which of the following disorders you have (had)? Dementia.

boolean

C0497327 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Dizziness with falling in the past year

Item

Could you indicate which of the following disorders you have (had)? Dizziness with falling (in the past 12 months).

boolean

C0262926 (UMLS CUI [1,1])
C1561668 (UMLS CUI [1,2])
C0012833 (UMLS CUI [1,3])
C4086728 (UMLS CUI [1,4])

Alzheimer's disease

Item

Do you have Alzheimer's disease?

boolean

C0002395 (UMLS CUI [1])

Alzheimer's disease - Year of onset

Item

Since what year do you have Alzheimer's disease?

partialDate

C0002395 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

Oral cavity conditions

Item Group

Oral cavity conditions

C0226896 (UMLS CUI-1)
C0012634 (UMLS CUI-2)

Diagnosed periodontitis

Item

Have you been diagnosed with periodontitis by your/a dentist?

boolean

C0031099 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])

Diagnosed periodontitis - Age at diagnosis

Item

If you have been diagnosed with periodontitis by your/a dentist, how old were you when you were diagnosed with periodontitis?

integer

C0031099 (UMLS CUI [1,1])
C1828181 (UMLS CUI [1,2])

Respiratory diseases

Item Group

Respiratory diseases

C0035204 (UMLS CUI-1)

Asthma

Item

Have you ever had asthma?

boolean

C0004096 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Asthma confirmed by doctor

Item

If you have ever had asthma, was this confirmed by a doctor?

boolean

C0004096 (UMLS CUI [1,1])
C0521093 (UMLS CUI [1,2])
C0031831 (UMLS CUI [1,3])

Age at first asthma attack

Item

How old were you when you had your first asthma attack?

integer

C0347950 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])

Age at last asthma attack

Item

How old were you when you had your last asthma attack?

integer

C0001779 (UMLS CUI [1,1])
C1517741 (UMLS CUI [1,2])
C0347950 (UMLS CUI [1,3])

Asthma - Year of onset

Item

Since what year do you have asthma?

partialDate

C0004096 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])

COPD/emphysema/chronic bronchitis

Item

Do you have COPD, emphysema or chronic bronchitis?

boolean

C0024117 (UMLS CUI [1])
C0006277 (UMLS CUI [2])
C0034067 (UMLS CUI [3])

COPD/emphysema/chronic bronchitis - Age of onset

Item

If you have COPD, emphysema or chronic bronchitis, how old were you when you acquired COPD, emphysema or chronic bronchitis?

integer

C0024117 (UMLS CUI [1,1])
C0206132 (UMLS CUI [1,2])
C0006277 (UMLS CUI [2,1])
C0206132 (UMLS CUI [2,2])
C0034067 (UMLS CUI [3,1])
C0206132 (UMLS CUI [3,2])

Since what year do you have COPD or chronic bronchitis?

Item

Since what year do you have COPD or chronic bronchitis?

integer

C0024117 (UMLS CUI [1,1])
C3274945 (UMLS CUI [1,2])
C0008677 (UMLS CUI [2,1])
C3274945 (UMLS CUI [2,2])

Chronic inflammation of throat/nasal cavity.

Item

Could you indicate which of the following disorders you have (had)? Chronic inflammation of throat/nasal cavity.

boolean

C0262926 (UMLS CUI [1,1])
C0021376 (UMLS CUI [1,2])
C0027423 (UMLS CUI [1,3])
C0262926 (UMLS CUI [2,1])
C0205191 (UMLS CUI [2,2])
C0031350 (UMLS CUI [2,3])

Respiratory Problems (general)

Item Group

Respiratory Problems (general)

C1659989 (UMLS CUI-1)

Wheezing

Item

Have you ever suffered from wheezing?

boolean

C0043144 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Wheezing with shortness of breath

Item

If you have ever suffered from wheezing, were you short of breath during this wheezing?

boolean

C0013404 (UMLS CUI [1,1])
C0347984 (UMLS CUI [1,2])
C0043144 (UMLS CUI [1,3])

Wheezing when not having a cold

Item

Have you had wheezing when you did not have a cold?

boolean

C0043144 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0009443 (UMLS CUI [1,3])

Attack of shortness of breath at rest

Item

Have you ever had an attack of shortness of breath during daytime while at rest?

boolean

C0262926 (UMLS CUI [1,1])
C0748649 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,3])

Shortness of breath after exertion

Item

Have you ever had an attack of shortness of breath after an exertion?

boolean

C0231807 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Waking up from shortness of breath

Item

Have you ever woken up from an attack of shortness of breath?

boolean

C0262926 (UMLS CUI [1,1])
C0393761 (UMLS CUI [1,2])
C0678226 (UMLS CUI [1,3])
C0013404 (UMLS CUI [1,4])

Waking up from coughing fit

Item

Have you ever woken up from a coughing fit?

boolean

C0393761 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C0231911 (UMLS CUI [1,3])

Coughing in winter when getting up

Item

Do you usually cough in winter when getting up?

boolean

C3173632 (UMLS CUI [1,1])
C0241737 (UMLS CUI [1,2])

Frequency of coughing in winter when getting up

Item

If you usually cough in winter when getting up, do you cough almost daily, for at least three months a year?

integer

C0439603 (UMLS CUI [1,1])
C3173632 (UMLS CUI [1,2])
C0241737 (UMLS CUI [1,3])

Coughing in winter - daytime or at night

Item

Do you usually cough in winter during daytime or at night?

boolean

C1822001 (UMLS CUI [1,1])
C0241737 (UMLS CUI [1,2])
C0010200 (UMLS CUI [2,1])
C0332169 (UMLS CUI [2,2])
C0241737 (UMLS CUI [2,3])

Coughing in winter - daytime or at night - frequency

Item

If you usually cough in winter during daytime or at night, do you cough like that almost daily, for at least three months a year?

integer

C0439603 (UMLS CUI [1,1])
C1822001 (UMLS CUI [1,2])
C0241737 (UMLS CUI [1,3])
C0439603 (UMLS CUI [2,1])
C0010200 (UMLS CUI [2,2])
C0332169 (UMLS CUI [2,3])
C0241737 (UMLS CUI [2,4])

Coughing up phlegm in winter after getting up

Item

Do you usually cough up phlegm in winter immediately after getting up?

boolean

C3888388 (UMLS CUI [1,1])
C0239134 (UMLS CUI [1,2])
C0205548 (UMLS CUI [1,3])
C0241737 (UMLS CUI [1,4])

Coughing up phlegm in winter after getting up - frequency

Item

If you usually cough up phlegm in winter immediately after getting up, do you cough up phlegm like that almost daily, for at least three months a year?

integer

C3173643 (UMLS CUI [1,1])
C0241737 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,3])

Coughing up phlegm in winter during daytime or at night

Item

Do you usually cough up phlegm in winter during daytime or at night?

boolean

C0239134 (UMLS CUI [1,1])
C0241737 (UMLS CUI [1,2])
C0240526 (UMLS CUI [1,3])
C0239134 (UMLS CUI [2,1])
C0241737 (UMLS CUI [2,2])
C0332169 (UMLS CUI [2,3])

Coughing up phlegm in winter during daytime or at night - frequency

Item

If you usually cough up phlegm in winter during daytime or at night, do you cough up phlegm like that almost daily, for at least three months a year?

integer

C0239134 (UMLS CUI [1,1])
C0241737 (UMLS CUI [1,2])
C0240526 (UMLS CUI [1,3])
C0439603 (UMLS CUI [1,4])
C0239134 (UMLS CUI [2,1])
C0241737 (UMLS CUI [2,2])
C0332169 (UMLS CUI [2,3])
C0439603 (UMLS CUI [2,4])

Breathing problems at times

Item

Do you at times have breathing problems?

boolean

C1260922 (UMLS CUI [1,1])
C1998882 (UMLS CUI [1,2])

Frequency breathing problems

Item

If you at times have breathing problems, do you have these problems:

integer

C0439603 (UMLS CUI [1,1])
C1260922 (UMLS CUI [1,2])

Frequency breathing problems

Code List

If you at times have breathing problems, do you have these problems:

CL Item

Continually, so that your breathing is never quite right (1)

CL Item

Repeatedly, after which your breathing fully recovers (2)

CL Item

Only rarely (3)

Difficulty walking without heart or lung disease

Item

Do you experience difficulties with walking caused by a condition other than a heart or lung disease?

boolean

C0311394 (UMLS CUI [1,1])
C0024115 (UMLS CUI [1,2])
C0332197 (UMLS CUI [1,3])
C0311394 (UMLS CUI [2,1])
C0018799 (UMLS CUI [2,2])
C0332197 (UMLS CUI [2,3])

Shortness of breath walking fast, a slight slope or take the stairs

Item

If you do not experience difficulties with walking caused by a condition other than a heart or lung disease, do you suffer from shortness of breath when you hurry on level ground or when you walk a slight slope or take the stairs at a normal pace?

boolean

C3173658 (UMLS CUI [1])

Shortness of breath when walking with normal pace

Item

If you experience difficulties with walking caused by a condition other than a heart or lung disease, do you suffer from shortness of breath when you walk on level ground at a normal pace with other people your age?

boolean

C0013404 (UMLS CUI [1,1])
C4288584 (UMLS CUI [1,2])
C0678226 (UMLS CUI [1,3])
C0012634 (UMLS CUI [1,4])
C4723751 (UMLS CUI [1,5])
C0018799 (UMLS CUI [1,6])
C0013404 (UMLS CUI [2,1])
C4288584 (UMLS CUI [2,2])
C0678226 (UMLS CUI [2,3])
C0012634 (UMLS CUI [2,4])
C4723751 (UMLS CUI [2,5])
C0024115 (UMLS CUI [2,6])

Shortness of breath walking with own pace

Item

If you experience difficulties with walking caused by a condition other than a heart or lung disease, do you at times have to stop to catch your breath, when you are walking on level ground at your own pace?

boolean

C4696828 (UMLS CUI [1])

Shortness of breath at rest

Item

If you experience difficulties with walking caused by a condition other than a heart or lung disease, are you short of breath when you are at rest?

boolean

C0748649 (UMLS CUI [1])

Condition causing difficulty walking

Item

If you experience difficulties with walking caused by a condition other than a heart or lung disease, what condition is this?

text

C0311394 (UMLS CUI [1,1])
C0348080 (UMLS CUI [1,2])
C2348235 (UMLS CUI [1,3])

Shortness of breath lying flat

Item

Do you become short of breath when you lie (too) flat?

boolean

C4534449 (UMLS CUI [1])

Waking up with shortness of breath

Item

Do you at times wake up at night with shortness of breath?

boolean

C0393761 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C0013404 (UMLS CUI [1,3])

Skin conditions

Item Group

Skin conditions

C0037274 (UMLS CUI-1)

Eczema

Item

Could you indicate which of the following disorders you have (had)? Eczema.

boolean

C0013595 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Psoriasis

Item

Could you indicate which of the following disorders you have (had)? Psoriasis.

boolean

C0033860 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])

Symptoms Checklist SCL-90

Item Group

Symptoms Checklist SCL-90

C4688315 (UMLS CUI-1)

SCL 90 - Somatic symptom score

Item

Symptoms Checklist SCL-90 - Somatic symptom score

integer

C4688315 (UMLS CUI [1,1])
C2986476 (UMLS CUI [1,2])
C3476546 (UMLS CUI [1,3])

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Lifelines Cohort and Biobank

Assessment 1A Questionnaire 1 (Age 18+): Diseases & symptoms

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