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41315

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Jordan, A., Eccleston, C., McCraken, L., Connell, H., Clinch, J.. (2008). The Bath Adolescent Pain – Parental Impact Questionnaire (BAP-PIQ). Measurement Instrument Database for the Social Science. Retrieved 18.08.2020, from www.midss.ie Key references: Jordan, A., Eccleston, C., McCraken, L., Connell, H. and Clinch, J., (2008). The Bath Adolescent Pain – Parental Impact Questionnaire (BAP-PIQ): Development and preliminary psychometric evaluation of an instrument to assess the impact of parenting an adolescent with chronic pain. Pain, 137 (3), pp. 478-487 Primary use / Purpose: The BAP-PIQ measures the impact of an adolescent's chronic pain on their parents in terms of emotional and social functioning. It is a 62 item likert-type questionnaire. Background: The authors had previously created questionnaires assessing the impact of chronic pain on adolescents (Eccleston, Jordan, McCracken, Sleed, Connell,& Clinch, 2005). The Bath Adolescent Pain- Parental Impact Questionnaire extends this knowledge base by looking at how it impacts on the parents involved. Psychometrics: Reliability and Validity are confirmed in Jordan, Eccleston, McCraken, Connell, and Clinch (2008) Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.211

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  1. 18/08/2020 18/08/2020 -
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Jordan, A., Eccleston, C., McCraken, L., Connell, H., Clinch, J.

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18 août 2020

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    Measurement Instrument Database for the Social Science (MIDSS)

    Anglais

    Bath Adolescent Pain- Parental Impact Questionnaire (BAP-PIQ)

    1 Formulaires  
    This questionnaire asks about different ways in which caring for a young person with pain affects your life. There are no right or wrong answers, but please try to be as accurate as possible. Please read each question carefully. Do not spend too much time on any one question as your first answer is usually the most accurate. It is extremely important that you answer all the questions, even if some of them may not seem relevant to you.
    Description

    This questionnaire asks about different ways in which caring for a young person with pain affects your life. There are no right or wrong answers, but please try to be as accurate as possible. Please read each question carefully. Do not spend too much time on any one question as your first answer is usually the most accurate. It is extremely important that you answer all the questions, even if some of them may not seem relevant to you.

    Section One: There are many ways in which caring for a young person with pain can affect people’s lives. Below are some statements that may or may not apply to you. Please read each statement and choose the answer that describes how often you have experienced each of these things in the LAST TWO WEEKS. Please make sure that you answer all questions. Please tell us about feelings and experiences you have encountered. In the last two weeks living with my child in pain I have:
    Description

    Section One: There are many ways in which caring for a young person with pain can affect people’s lives. Below are some statements that may or may not apply to you. Please read each statement and choose the answer that describes how often you have experienced each of these things in the LAST TWO WEEKS. Please make sure that you answer all questions. Please tell us about feelings and experiences you have encountered. In the last two weeks living with my child in pain I have:

    Alias
    UMLS CUI-1
    C1828479
    1. felt sad
    Description

    felt sad

    Type de données

    text

    Alias
    UMLS CUI [1]
    C3536794
    2. had difficulty falling asleep
    Description

    had difficulty falling asleep

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0150079
    3. been satisfied with my life
    Description

    been satisfied with my life

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0392352
    4. had little appetite
    Description

    had little appetite

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0003618
    5. felt hopeless
    Description

    felt hopeless

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0150041
    6. had difficulty making decisions
    Description

    had difficulty making decisions

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0423908
    7. made an effort with my appearance
    Description

    made an effort with my appearance

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0700364
    UMLS CUI [1,2]
    C0015264
    8. felt worthless
    Description

    felt worthless

    Type de données

    text

    Alias
    UMLS CUI [1]
    C1821293
    9. avoided activities I usually enjoy
    Description

    avoided activities I usually enjoy

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0870186
    UMLS CUI [1,2]
    C0023292
    Section Two: Please tell us about worries or concerns you may have experienced. In the last two weeks living with my child in pain I have:
    Description

    Section Two: Please tell us about worries or concerns you may have experienced. In the last two weeks living with my child in pain I have:

    Alias
    UMLS CUI-1
    C1828479
    1. not been able to get my mind off my worries
    Description

    not been able to get my mind off my worries

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0233481
    2. felt shaky
    Description

    felt shaky

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0563270
    3. found that my mind wandered easily
    Description

    found that my mind wandered easily

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0857251
    4. felt tense
    Description

    felt tense

    Type de données

    text

    Alias
    UMLS CUI [1]
    C3641757
    5. felt anxious
    Description

    felt anxious

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0003467
    6. been bothered by feelings of panic
    Description

    been bothered by feelings of panic

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0030318
    Section Three: Please tell us about any feelings or thoughts you have experienced. In the last two weeks living with my child in pain I have:
    Description

    Section Three: Please tell us about any feelings or thoughts you have experienced. In the last two weeks living with my child in pain I have:

    Alias
    UMLS CUI-1
    C1828479
    1. thought that my child's pain would get worse
    Description

    thought that my child's pain would get worse

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C1279889
    2. thought that my child will have difficulty being independent in the future
    Description

    thought that my child will have difficulty being independent in the future

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0085862
    3. been concerned that my child will always experience pain
    Description

    been concerned that my child will always experience pain

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C2003902
    4. thought that my child's pain may lead to something more serious
    Description

    thought that my child's pain may lead to something more serious

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    5. been unable to think of anything other than my child's pain
    Description

    been unable to think of anything other than my child's pain

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C3641841
    Section Four: Please tell us about worries or concerns you have experienced. In the last two weeks living with my child in pain I have:
    Description

    Section Four: Please tell us about worries or concerns you have experienced. In the last two weeks living with my child in pain I have:

    Alias
    UMLS CUI-1
    C1828479
    1. thought that I had failed my child
    Description

    thought that I had failed my child

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0018379
    2. blamed myself for my child's situation
    Description

    blamed myself for my child's situation

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0018379
    3. felt powerless to help my child's pain
    Description

    felt powerless to help my child's pain

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C0150063
    4. not been able to accept that there is no cure for my child's pain
    Description

    not been able to accept that there is no cure for my child's pain

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C0011317
    UMLS CUI [1,4]
    C1880198
    5. felt guilty
    Description

    felt guilty

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0018379
    6. believed that my child's pain is out of control
    Description

    believed that my child's pain is out of control

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C0442802
    7. found it difficult to tolerate my child's suffering
    Description

    found it difficult to tolerate my child's suffering

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0231303
    UMLS CUI [1,3]
    C0683278
    Section Five: In this section, please tell us about your relationship with your partner / spouse. By partner, we mean someone that you feel close to and who has regular contact with both you and your child, such as your husband, wife, boyfriend or girlfriend. In the last two weeks living with my child in pain I have:
    Description

    Section Five: In this section, please tell us about your relationship with your partner / spouse. By partner, we mean someone that you feel close to and who has regular contact with both you and your child, such as your husband, wife, boyfriend or girlfriend. In the last two weeks living with my child in pain I have:

    Alias
    UMLS CUI-1
    C1828479
    If you do not have a partner, please choose "Yes" as the answer to this question and go straight to section six.
    Description

    No Partner

    Type de données

    boolean

    Alias
    UMLS CUI [1]
    C0682323
    1. done fun activities with my partner
    Description

    done fun activities with my partner

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0682323
    UMLS CUI [1,2]
    C0023292
    2. thought that my partner understood my needs
    Description

    thought that my partner understood my needs

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0682323
    UMLS CUI [1,2]
    C0162340
    UMLS CUI [1,3]
    C0027552
    3. felt that my partner supported me
    Description

    felt that my partner supported me

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0682323
    UMLS CUI [1,2]
    C0037438
    4. felt that our physical relationship was strained
    Description

    felt that our physical relationship was strained

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0392367
    UMLS CUI [1,2]
    C0425168
    5. made time to spend with my partner
    Description

    made time to spend with my partner

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0682323
    UMLS CUI [1,2]
    C0206209
    6. discussed things with my partner
    Description

    discussed things with my partner

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0682323
    UMLS CUI [1,2]
    C0009452
    7. felt distant from my partner
    Description

    felt distant from my partner

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0682323
    UMLS CUI [1,2]
    C0558263
    Section Six: Please tell us about your social life and leisure time. In the last two weeks living with my child in pain I have:
    Description

    Section Six: Please tell us about your social life and leisure time. In the last two weeks living with my child in pain I have:

    Alias
    UMLS CUI-1
    C1828479
    1. spent time with friends
    Description

    spent time with friends

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0079382
    UMLS CUI [1,2]
    C0040223
    2. had little time for socialising
    Description

    had little time for socialising

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0040223
    UMLS CUI [1,2]
    C2371613
    3. felt supported by friends
    Description

    felt supported by friends

    Type de données

    text

    Alias
    UMLS CUI [1]
    C4708444
    4. cut back on my usual leisure activities
    Description

    cut back on my usual leisure activities

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0023292
    UMLS CUI [1,2]
    C0392756
    5. spent time talking to people
    Description

    spent time talking to people

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0040223
    UMLS CUI [1,2]
    C0871703
    6. had an interest in pursuing hobbies
    Description

    had an interest in pursuing hobbies

    Type de données

    text

    Alias
    UMLS CUI [1]
    C0019826
    7. found it difficult to do leisure activities
    Description

    found it difficult to do leisure activities

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0023292
    UMLS CUI [1,2]
    C0332218
    8. spent time doing activities that I enjoy
    Description

    spent time doing activities that I enjoy

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0023292
    UMLS CUI [1,2]
    C0040223
    Section Seven: Please tell us about feelings or thoughts you may have experienced, or other things you may have done when your child was in pain. In the last two weeks living with my child in pain I have:
    Description

    Section Seven: Please tell us about feelings or thoughts you may have experienced, or other things you may have done when your child was in pain. In the last two weeks living with my child in pain I have:

    Alias
    UMLS CUI-1
    C1828479
    1. helped my child to avoid pain
    Description

    helped my child to avoid pain

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C0178494
    2. made things as easy as possible for my child
    Description

    made things as easy as possible for my child

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0034380
    3. thought that my child should avoid activities that might cause more pain
    Description

    thought that my child should avoid activities that might cause more pain

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C0178494
    UMLS CUI [1,4]
    C0441655
    4. believed that my child needed my help
    Description

    believed that my child needed my help

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C3828841
    5. participated in an activity with my child regardless of his/her pain
    Description

    participated in an activity with my child regardless of his/her pain

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C3641650
    UMLS CUI [1,3]
    C0030193
    UMLS CUI [1,4]
    C0441655
    6. suggested that my child got on with an activity
    Description

    suggested that my child got on with an activity

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0441655
    UMLS CUI [1,3]
    C0549178
    7. been concerned with my child’s level of pain when planning activities for my child
    Description

    been concerned with my child’s level of pain when planning activities for my child

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C0441655
    UMLS CUI [1,4]
    C2699424
    8. suggested that my child rests
    Description

    suggested that my child rests

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0035253
    9. done whatever I could to reduce my child’s pain
    Description

    done whatever I could to reduce my child’s pain

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C0392756
    10. believed that my child should do activities regardless of pain
    Description

    believed that my child should do activities regardless of pain

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C0441655
    UMLS CUI [1,4]
    C3641650
    11. thought that it was ok for my child to have some pain when they were doing something important
    Description

    thought that it was ok for my child to have some pain when they were doing something important

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0030193
    UMLS CUI [1,3]
    C1705104
    Section Eight: Please tell us about your relationship with your child who experiences pain. In the last two weeks living with my child in pain I have:
    Description

    Section Eight: Please tell us about your relationship with your child who experiences pain. In the last two weeks living with my child in pain I have:

    Alias
    UMLS CUI-1
    C1828479
    1. felt that my child was dependent on me
    Description

    felt that my child was dependent on me

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C3242642
    2. enjoyed being the parent of my child
    Description

    enjoyed being the parent of my child

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0337469
    UMLS CUI [1,3]
    C4316940
    3. found it difficult to be patient with my child
    Description

    found it difficult to be patient with my child

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0516943
    UMLS CUI [1,3]
    C0332218
    4. felt close to my child
    Description

    felt close to my child

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C1821461
    5. shown my child affection
    Description

    shown my child affection

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0871641
    6. felt that my relationship with my child was strained
    Description

    felt that my relationship with my child was strained

    Type de données

    text

    Alias
    UMLS CUI [1]
    C1561688
    7. found my relationship with my child difficult
    Description

    found my relationship with my child difficult

    Type de données

    text

    Alias
    UMLS CUI [1]
    C1561688
    8. felt loving towards my child
    Description

    felt loving towards my child

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C0024028
    9. felt irritated by my child
    Description

    felt irritated by my child

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C0680063
    UMLS CUI [1,2]
    C2700617
    Section Nine
    Description

    Section Nine

    Alias
    UMLS CUI-1
    C1828479
    In the space below please tell us about anything else you feel is important for us to know about how caring for a young person with chronic pain impacts on your life.
    Description

    Other

    Type de données

    text

    Alias
    UMLS CUI [1,1]
    C4049986
    UMLS CUI [1,2]
    C1947933
    UMLS CUI [1,3]
    C0376558
    UMLS CUI [1,4]
    C0150055
    Retour au début de la page

    Similar models

    Bath Adolescent Pain- Parental Impact Questionnaire (BAP-PIQ)

    1 Formulaires
    Name
    Type
    Description | Question | Decode (Coded Value)
    Type de données
    Alias
    Item Group
    This questionnaire asks about different ways in which caring for a young person with pain affects your life. There are no right or wrong answers, but please try to be as accurate as possible. Please read each question carefully. Do not spend too much time on any one question as your first answer is usually the most accurate. It is extremely important that you answer all the questions, even if some of them may not seem relevant to you.
    Item Group
    Section One: There are many ways in which caring for a young person with pain can affect people’s lives. Below are some statements that may or may not apply to you. Please read each statement and choose the answer that describes how often you have experienced each of these things in the LAST TWO WEEKS. Please make sure that you answer all questions. Please tell us about feelings and experiences you have encountered. In the last two weeks living with my child in pain I have:
    C1828479 (UMLS CUI-1)
    Item
    1. felt sad
    text
    C3536794 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    1. felt sad
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    2. had difficulty falling asleep
    text
    C0150079 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    2. had difficulty falling asleep
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    3. been satisfied with my life
    text
    C0392352 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    3. been satisfied with my life
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    4. had little appetite
    text
    C0003618 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    4. had little appetite
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    5. felt hopeless
    text
    C0150041 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    5. felt hopeless
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    6. had difficulty making decisions
    text
    C0423908 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    6. had difficulty making decisions
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    7. made an effort with my appearance
    text
    C0700364 (UMLS CUI [1,1])
    C0015264 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    7. made an effort with my appearance
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    8. felt worthless
    text
    C1821293 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    8. felt worthless
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    9. avoided activities I usually enjoy
    text
    C0870186 (UMLS CUI [1,1])
    C0023292 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    9. avoided activities I usually enjoy
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item Group
    Section Two: Please tell us about worries or concerns you may have experienced. In the last two weeks living with my child in pain I have:
    C1828479 (UMLS CUI-1)
    Item
    1. not been able to get my mind off my worries
    text
    C0233481 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    1. not been able to get my mind off my worries
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    2. felt shaky
    text
    C0563270 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    2. felt shaky
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    3. found that my mind wandered easily
    text
    C0857251 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    3. found that my mind wandered easily
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    4. felt tense
    text
    C3641757 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    4. felt tense
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    5. felt anxious
    text
    C0003467 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    5. felt anxious
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    6. been bothered by feelings of panic
    text
    C0030318 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    6. been bothered by feelings of panic
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item Group
    Section Three: Please tell us about any feelings or thoughts you have experienced. In the last two weeks living with my child in pain I have:
    C1828479 (UMLS CUI-1)
    Item
    1. thought that my child's pain would get worse
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C1279889 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    1. thought that my child's pain would get worse
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    2. thought that my child will have difficulty being independent in the future
    text
    C0680063 (UMLS CUI [1,1])
    C0085862 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    2. thought that my child will have difficulty being independent in the future
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    3. been concerned that my child will always experience pain
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C2003902 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    3. been concerned that my child will always experience pain
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    4. thought that my child's pain may lead to something more serious
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    4. thought that my child's pain may lead to something more serious
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    5. been unable to think of anything other than my child's pain
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C3641841 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    5. been unable to think of anything other than my child's pain
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item Group
    Section Four: Please tell us about worries or concerns you have experienced. In the last two weeks living with my child in pain I have:
    C1828479 (UMLS CUI-1)
    Item
    1. thought that I had failed my child
    text
    C0680063 (UMLS CUI [1,1])
    C0018379 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    1. thought that I had failed my child
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    2. blamed myself for my child's situation
    text
    C0680063 (UMLS CUI [1,1])
    C0018379 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    2. blamed myself for my child's situation
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    3. felt powerless to help my child's pain
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C0150063 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    3. felt powerless to help my child's pain
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    4. not been able to accept that there is no cure for my child's pain
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C0011317 (UMLS CUI [1,3])
    C1880198 (UMLS CUI [1,4])
    had difficulty falling asleep
    Code List
    4. not been able to accept that there is no cure for my child's pain
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    5. felt guilty
    text
    C0018379 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    5. felt guilty
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    6. believed that my child's pain is out of control
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C0442802 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    6. believed that my child's pain is out of control
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    7. found it difficult to tolerate my child's suffering
    text
    C0680063 (UMLS CUI [1,1])
    C0231303 (UMLS CUI [1,2])
    C0683278 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    7. found it difficult to tolerate my child's suffering
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item Group
    Section Five: In this section, please tell us about your relationship with your partner / spouse. By partner, we mean someone that you feel close to and who has regular contact with both you and your child, such as your husband, wife, boyfriend or girlfriend. In the last two weeks living with my child in pain I have:
    C1828479 (UMLS CUI-1)
    No Partner
    Item
    If you do not have a partner, please choose "Yes" as the answer to this question and go straight to section six.
    boolean
    C0682323 (UMLS CUI [1])
    Item
    1. done fun activities with my partner
    text
    C0682323 (UMLS CUI [1,1])
    C0023292 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    1. done fun activities with my partner
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    2. thought that my partner understood my needs
    text
    C0682323 (UMLS CUI [1,1])
    C0162340 (UMLS CUI [1,2])
    C0027552 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    2. thought that my partner understood my needs
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    3. felt that my partner supported me
    text
    C0682323 (UMLS CUI [1,1])
    C0037438 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    3. felt that my partner supported me
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    4. felt that our physical relationship was strained
    text
    C0392367 (UMLS CUI [1,1])
    C0425168 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    4. felt that our physical relationship was strained
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    5. made time to spend with my partner
    text
    C0682323 (UMLS CUI [1,1])
    C0206209 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    5. made time to spend with my partner
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    6. discussed things with my partner
    text
    C0682323 (UMLS CUI [1,1])
    C0009452 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    6. discussed things with my partner
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    7. felt distant from my partner
    text
    C0682323 (UMLS CUI [1,1])
    C0558263 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    7. felt distant from my partner
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item Group
    Section Six: Please tell us about your social life and leisure time. In the last two weeks living with my child in pain I have:
    C1828479 (UMLS CUI-1)
    Item
    1. spent time with friends
    text
    C0079382 (UMLS CUI [1,1])
    C0040223 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    1. spent time with friends
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    2. had little time for socialising
    text
    C0040223 (UMLS CUI [1,1])
    C2371613 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    2. had little time for socialising
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    3. felt supported by friends
    text
    C4708444 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    3. felt supported by friends
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    4. cut back on my usual leisure activities
    text
    C0023292 (UMLS CUI [1,1])
    C0392756 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    4. cut back on my usual leisure activities
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    5. spent time talking to people
    text
    C0040223 (UMLS CUI [1,1])
    C0871703 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    5. spent time talking to people
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    6. had an interest in pursuing hobbies
    text
    C0019826 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    6. had an interest in pursuing hobbies
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    7. found it difficult to do leisure activities
    text
    C0023292 (UMLS CUI [1,1])
    C0332218 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    7. found it difficult to do leisure activities
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    8. spent time doing activities that I enjoy
    text
    C0023292 (UMLS CUI [1,1])
    C0040223 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    8. spent time doing activities that I enjoy
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item Group
    Section Seven: Please tell us about feelings or thoughts you may have experienced, or other things you may have done when your child was in pain. In the last two weeks living with my child in pain I have:
    C1828479 (UMLS CUI-1)
    Item
    1. helped my child to avoid pain
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C0178494 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    1. helped my child to avoid pain
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    2. made things as easy as possible for my child
    text
    C0680063 (UMLS CUI [1,1])
    C0034380 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    2. made things as easy as possible for my child
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    3. thought that my child should avoid activities that might cause more pain
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C0178494 (UMLS CUI [1,3])
    C0441655 (UMLS CUI [1,4])
    had difficulty falling asleep
    Code List
    3. thought that my child should avoid activities that might cause more pain
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    4. believed that my child needed my help
    text
    C0680063 (UMLS CUI [1,1])
    C3828841 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    4. believed that my child needed my help
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    5. participated in an activity with my child regardless of his/her pain
    text
    C0680063 (UMLS CUI [1,1])
    C3641650 (UMLS CUI [1,2])
    C0030193 (UMLS CUI [1,3])
    C0441655 (UMLS CUI [1,4])
    had difficulty falling asleep
    Code List
    5. participated in an activity with my child regardless of his/her pain
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    6. suggested that my child got on with an activity
    text
    C0680063 (UMLS CUI [1,1])
    C0441655 (UMLS CUI [1,2])
    C0549178 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    6. suggested that my child got on with an activity
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    7. been concerned with my child’s level of pain when planning activities for my child
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C0441655 (UMLS CUI [1,3])
    C2699424 (UMLS CUI [1,4])
    had difficulty falling asleep
    Code List
    7. been concerned with my child’s level of pain when planning activities for my child
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    8. suggested that my child rests
    text
    C0680063 (UMLS CUI [1,1])
    C0035253 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    8. suggested that my child rests
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    9. done whatever I could to reduce my child’s pain
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C0392756 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    9. done whatever I could to reduce my child’s pain
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    10. believed that my child should do activities regardless of pain
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C0441655 (UMLS CUI [1,3])
    C3641650 (UMLS CUI [1,4])
    had difficulty falling asleep
    Code List
    10. believed that my child should do activities regardless of pain
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    11. thought that it was ok for my child to have some pain when they were doing something important
    text
    C0680063 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    C1705104 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    11. thought that it was ok for my child to have some pain when they were doing something important
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item Group
    Section Eight: Please tell us about your relationship with your child who experiences pain. In the last two weeks living with my child in pain I have:
    C1828479 (UMLS CUI-1)
    Item
    1. felt that my child was dependent on me
    text
    C0680063 (UMLS CUI [1,1])
    C3242642 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    1. felt that my child was dependent on me
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    2. enjoyed being the parent of my child
    text
    C0680063 (UMLS CUI [1,1])
    C0337469 (UMLS CUI [1,2])
    C4316940 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    2. enjoyed being the parent of my child
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    3. found it difficult to be patient with my child
    text
    C0680063 (UMLS CUI [1,1])
    C0516943 (UMLS CUI [1,2])
    C0332218 (UMLS CUI [1,3])
    had difficulty falling asleep
    Code List
    3. found it difficult to be patient with my child
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    4. felt close to my child
    text
    C0680063 (UMLS CUI [1,1])
    C1821461 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    4. felt close to my child
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    5. shown my child affection
    text
    C0680063 (UMLS CUI [1,1])
    C0871641 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    5. shown my child affection
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    6. felt that my relationship with my child was strained
    text
    C1561688 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    6. felt that my relationship with my child was strained
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    7. found my relationship with my child difficult
    text
    C1561688 (UMLS CUI [1])
    had difficulty falling asleep
    Code List
    7. found my relationship with my child difficult
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    8. felt loving towards my child
    text
    C0680063 (UMLS CUI [1,1])
    C0024028 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    8. felt loving towards my child
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item
    9. felt irritated by my child
    text
    C0680063 (UMLS CUI [1,1])
    C2700617 (UMLS CUI [1,2])
    had difficulty falling asleep
    Code List
    9. felt irritated by my child
    CL Item
    never (never)
    (Comment:en)
    CL Item
    hardly ever (hardly ever)
    (Comment:en)
    CL Item
    sometimes (sometimes)
    (Comment:en)
    CL Item
    often (often)
    (Comment:en)
    CL Item
    always (always)
    (Comment:en)
    Item Group
    Section Nine
    C1828479 (UMLS CUI-1)
    Other
    Item
    In the space below please tell us about anything else you feel is important for us to know about how caring for a young person with chronic pain impacts on your life.
    text
    C4049986 (UMLS CUI [1,1])
    C1947933 (UMLS CUI [1,2])
    C0376558 (UMLS CUI [1,3])
    C0150055 (UMLS CUI [1,4])
    Retour au début de la page 

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