ID

40588

Beschreibung

ICHOM Stroke data collection Version 2.0.1 Revised: June 21th, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For stroke, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Patients who have been hospitalized for an index ischemic stroke (IS) or intracereberal hemorrhage (ICH). Patients with subarachnoid hemorrhage (SAH) are excluded. Inclusion of transient ischemic attack (TIA) or patients with IS or ICH who are evaluated but not hospitalized is not required. Treatment Approaches: IV Thrombolysis | Thrombectomy | Hemicraniectomy This form contains Follow-up - Clinical form. The items cover Discharge +7 and 90 days post index. If a second stroke occurs between discharge and the “90 day post index” collection, you should reset the measurement scale, treating them as a new patient. Questionnaires used in this standard set: PROMIS-10. It is free for all health care organizations, and a license is not needed. There are translations available for Spanish, French, German,and Dutch. As http://www.nihpromis.org is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Simplified Modified Rankin Scale Questionnaire (smRSq) – Clinician. There is no patent on thes smRSq or fee for using it in clinical practice; however Lippincott Williams & Wilkins (LWW) own the rights to the published article where the smRSq is introduced. Therefore here only the total score is included. The smRSq flow chart can be found at http://stroke.ahajournals.org/content/42/8/2276 “Simplified Modified Rankin Scale Questionnaire Reproducibility Over the Telephone and Validation With Quality of Life” Stroke 2011; 42: 2276-2279 © 2011 American Heart Association, Inc. Wolters Kluwer Health. Publication: Salinas J, Sprinkhuizen SM, Ackerson T, et al. An International Standard Set of Patient-Centered Outcome Measures After Stroke. Stroke. 2015;47(1):180–186. doi:10.1161/STROKEAHA.115.010898 For the Stroke Standard Set ICHOM was supported by the American Heart Association and the American Stroke Association. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Stichworte

Versionen (4)
  1. 08.05.19 08.05.19 -
  2. 14.05.19 14.05.19 -
  3. 21.05.19 21.05.19 -
  4. 30.04.20 30.04.20 - Sarah Riepenhausen
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ICHOM

Hochgeladen am

30. April 2020

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ICHOM Conditions and Treatment Approaches Covered for Stroke

Englisch

Follow-up - Clinical

1 Formulare  
  1. StudyEvent: ODM
    1. Follow-up - Clinical
Administrative Data
Beschreibung

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Beschreibung

Supporting Definition: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Datentyp

integer

Alias
UMLS CUI [1]
C1269815
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
Beschreibung

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Datentyp

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Clinician reported health status
Beschreibung

Clinician reported health status

Alias
UMLS CUI-1
C0018759
UMLS CUI-2
C0205210
UMLS CUI-3
C0700287
Indicate the degree of disability or dependence by obtaining the smRSq
Beschreibung

Supporting Definition: The link to the smRSq flow chart and instructions for use can be found in this Reference Guide on page 11 Inclusion Criteria: All patients Timing: Discharge + 7 days; 90 days post admission for index event Data Source: Clinical Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C2984908
UMLS CUI [1,2]
C2964552
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Ähnliche Modelle

Follow-up - Clinical

1 Formulare
  1. StudyEvent: ODM
    1. Follow-up - Clinical
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Clinician reported health status
C0018759 (UMLS CUI-1)
C0205210 (UMLS CUI-2)
C0700287 (UMLS CUI-3)
Item
Indicate the degree of disability or dependence by obtaining the smRSq
integer
C2984908 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Simplified modified Rankin Scale Questionnaire (smRSq)
Code List
Indicate the degree of disability or dependence by obtaining the smRSq
CL Item
0 (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
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