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ID

40532

Descrizione

CHRONIC KIDNEY DISEASE DATA COLLECTION REFERENCE GUIDE Version 1.0.0 Revised October 25th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Chronic Kidney Disease Stage G3a/A3 | Chronic Kidney Disease StageG 3b/A2/A3 | Chronic Kidney Disease Stage G4 | Chronic Kidney Disease Stage G5 (KDIGO 2012 Stages) Treatment Approaches: Pre-RRT = Pre-Renal Replacement Therapy | HD = Haemodialysis | PD = Peritoneal Dialysis | Tx = Renal Transplantation | CC = Conservative Care This ODM-file contains Baseline Characteristics, Baseline Condition factors and Treatment-specific variables, clinical or administrative. To be collected at Baseline Visit. Surveys used: The OptumTM SF-36v2® Health Survey: The SF-36v2 Health Survey requires a license agreement prior to the use or reprodution of the tool. Information on how to obtain a license can be found here: bit.ly/SF36LIC . The scoring guide for the SF36v2 is only available upon a license agreement being made. Due to the requirement of a license the Score cannot be found in this version of the standard set. PROMIS-Global Health and PROMIS-29: Free for use in clinical practice and a license is not required. Information http://www.nihpromis.org/measures/translations . The scoring guides for the two PROMIS Scores can be found at bit.ly/PROMISGLOBALSCORE and bit.ly/PROMIS29SCORE . RAND-36: Free for use in clinical practice and a license is not required. The RAND-36 is available in English and Arabic. https://www.rand.org/health/surveys_tools/mos/36-item-short-form.html . The Scoring guide can be found at bit.ly/RAND36Score . Publication: Verberne WR, Das-Gupta Z, Allegretti AS, et al. Development of an International Standard Set of Value-Based Outcome Measures for Patients With Chronic Kidney Disease: A Report of the International Consortium for Health Outcomes Measurement (ICHOM) CKD Working Group. American Journal of Kidney Diseases. Volume 73, Issue 3, 2019, Pages 372-384, ISSN 0272-6386, https://doi.org/10.1053/j.ajkd.2018.10.007 ICHOM was supported for the Chronic Kidney Disease Standard Set by NSW Agency for Clinical Innovation, Providence Health and Services, ERCPA, santeon and Dutch Kidney Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

collegamento

www.ichom.org

Keywords

  1. 2018-07-27 2018-07-27 - Sarah Riepenhausen
  2. 2018-07-27 2018-07-27 - Sarah Riepenhausen
  3. 2020-04-30 2020-04-30 - Sarah Riepenhausen
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30 april 2020

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    ICHOM Chronic Kidney Disease

    Baseline Characteristics, Baseline Condition Factors and Treatment-specific Variables (administrative / clinical)

    Patient ID
    Descrizione

    Patient ID

    Alias
    UMLS CUI-1
    C1269815
    Indicate the patient's medical record number.
    Descrizione

    This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution. INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1269815
    Baseline Characteristics
    Descrizione

    Baseline Characteristics

    Alias
    UMLS CUI-1
    C1442488
    UMLS CUI-2
    C0815172
    Indicate which treatment pathway the patient is following
    Descrizione

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0087111
    UMLS CUI [1,2]
    C0332307
    Indicate the patient's previous modality treatment(s) 0 = None
    Descrizione

    INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

    Tipo di dati

    boolean

    Alias
    UMLS CUI [1,1]
    C1561643
    UMLS CUI [1,2]
    C1514463
    UMLS CUI [1,3]
    C0549184
    Indicate the patient's previous modality treatment(s) 1 = Haemodialysis
    Descrizione

    INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

    Tipo di dati

    boolean

    Alias
    UMLS CUI [1,1]
    C1561643
    UMLS CUI [1,2]
    C1514463
    UMLS CUI [1,3]
    C0019004
    Indicate the patient's previous modality treatment(s) 2 = peritoneal dialysis
    Descrizione

    INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

    Tipo di dati

    boolean

    Alias
    UMLS CUI [1,1]
    C1561643
    UMLS CUI [1,2]
    C1514463
    UMLS CUI [1,3]
    C0031139
    Indicate the patient's previous modality treatment(s) 3 = Kidney Transplant
    Descrizione

    INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

    Tipo di dati

    boolean

    Alias
    UMLS CUI [1,1]
    C1561643
    UMLS CUI [1,2]
    C1514463
    UMLS CUI [1,3]
    C0022671
    Indicate the patient's previous modality treatment(s) 999 = Unknown
    Descrizione

    INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

    Tipo di dati

    boolean

    Alias
    UMLS CUI [1,1]
    C1561643
    UMLS CUI [1,2]
    C1514463
    UMLS CUI [1,3]
    C0439673
    Indicate the patient's height
    Descrizione

    Height and weight are used to calculate BMI INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Numerical value RESPONSE OPTIONS: Numerical value of height in centimeters or inches

    Tipo di dati

    float

    Alias
    UMLS CUI [1]
    C0005890
    Indicate the patient's height
    Descrizione

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single Answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0005890
    UMLS CUI [1,2]
    C1519795
    Indicate the patient's weight
    Descrizione

    Height and weight are used to calculate BMI Height and weight are used to calculate BMI INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Numerical value RESPONSE OPTIONS: Numerical value of weight in kilograms or pounds

    Tipo di dati

    float

    Alias
    UMLS CUI [1]
    C0005910
    Indicate units of weight
    Descrizione

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single Answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0005910
    UMLS CUI [1,2]
    C1519795
    Baseline Condition Factors
    Descrizione

    Baseline Condition Factors

    Alias
    UMLS CUI-1
    C1442488
    UMLS CUI-2
    C1705348
    Indicate the patient’s primary renal disease
    Descrizione

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0022658
    UMLS CUI [1,2]
    C0277554
    How many kidney allografts has the patient previously received (excluding current allograft)?
    Descrizione

    INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0022671
    UMLS CUI [1,2]
    C0205156
    Indicate the most recent type of vascular access
    Descrizione

    INCLUSION CRITERIA: HD TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0750138
    UMLS CUI [1,2]
    C0019004
    Indicate the type of the most recent transplant
    Descrizione

    INCLUSION CRITERIA: Tx TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    text

    Alias
    UMLS CUI [1,1]
    C0022671
    UMLS CUI [1,2]
    C0029206
    Indicate how the patient's baseline renal/kidney allograft function was measured
    Descrizione

    INCLUSION CRITERIA: Pre-RRT, CC, Tx TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0232804
    UMLS CUI [1,2]
    C0564454
    UMLS CUI [1,3]
    C1299991
    Provide the date of baseline renal/kidney allograft function measurement
    Descrizione

    INCLUSION CRITERIA: If "1 = Serum Creatinine", "2 = eGFR" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

    Tipo di dati

    date

    Unità di misura
    • DD/MM/YYYY
    Alias
    UMLS CUI [1,1]
    C0232804
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0242485
    DD/MM/YYYY
    Indicate the units used for serum creatinine measurement
    Descrizione

    INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0201976
    UMLS CUI [1,2]
    C1519795
    Indicate which serum creatinine assay is used
    Descrizione

    INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0201976
    UMLS CUI [1,2]
    C0871511
    Indicate if isotope dilution mass spectrometry is used
    Descrizione

    INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C3274766
    UMLS CUI [1,2]
    C0201976
    Provide the serum creatinine value
    Descrizione

    INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical

    Tipo di dati

    float

    Alias
    UMLS CUI [1,1]
    C0201976
    UMLS CUI [1,2]
    C2826772
    Provide the eGFR equation
    Descrizione

    INCLUSION CRITERIA: If "2 = eGFR" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C4544895
    Provide the eGFR value
    Descrizione

    INCLUSION CRITERIA: If "2 = eGFR" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical

    Tipo di dati

    float

    Alias
    UMLS CUI [1,1]
    C3811844
    UMLS CUI [1,2]
    C2826772
    Indicate whether albuminuria was measured
    Descrizione

    Urine albumin/creatinine ratio in spot urine (preferred), or urine protein/creatinine ratio (alternative) INCLUSION CRITERIA: Pre-RRT, CC, Tx TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0001925
    UMLS CUI [2]
    C0033687
    Indicate the units used for albuminuria measurement
    Descrizione

    INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" or "2 = Urine protein/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0001925
    UMLS CUI [1,2]
    C1519795
    UMLS CUI [2,1]
    C1519795
    UMLS CUI [2,2]
    C0033687
    Indicate which albuminuria assay is used
    Descrizione

    INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" or "2 = Urine protein/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0001925
    UMLS CUI [1,2]
    C0871511
    UMLS CUI [2,1]
    C0033687
    UMLS CUI [2,2]
    C0871511
    Provide urine ACR in spot urine (mg/g, mg/mmol)
    Descrizione

    INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical value

    Tipo di dati

    float

    Alias
    UMLS CUI [1,1]
    C0001925
    UMLS CUI [1,2]
    C2826772
    Provide urine PCR in spot urine(mg/g, mg/mmol)
    Descrizione

    INCLUSION CRITERIA: If "2 = Urine protein/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical

    Tipo di dati

    float

    Alias
    UMLS CUI [1,1]
    C0033687
    UMLS CUI [1,2]
    C1274040
    Provide the date of the most recent albuminuria measurement
    Descrizione

    INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" or "2 = Urine protein/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

    Tipo di dati

    date

    Unità di misura
    • DD/MM/YYYY
    Alias
    UMLS CUI [1,1]
    C0001925
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0242485
    UMLS CUI [2,1]
    C0033687
    UMLS CUI [2,2]
    C0011008
    UMLS CUI [2,3]
    C0242485
    DD/MM/YYYY
    Indicate whether the patient has hypertension and/or uses antihypertensive medication at baseline
    Descrizione

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0020538
    UMLS CUI [2]
    C0003364
    Indicate whether the patient has baseline diabetes mellitus
    Descrizione

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0011849
    Indicate whether the patient has baseline chronic lung disease
    Descrizione

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0746102
    Indicate whether the patient has baseline chronic liver disease
    Descrizione

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0023895
    Indicate whether the patient has had any baseline cardiovascular events
    Descrizione

    Cardiovascular events of interest are acute myocardial infarction, stroke (excluding transient ischemic attacks), and limb amputation (excluding traumatic injury) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1320716
    Indicate whether the patient has had a myocardial infarction
    Descrizione

    INCLUSION CRITERIA: If "1 = yes" to BASECVE TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0027051
    Indicate whether the patient has had a stroke (excluding transient ischemic attacks)
    Descrizione

    INCLUSION CRITERIA: If "1 = yes" to BASECVE TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0038454
    Indicate whether the patient has had a limb amputation (not due to traumatic injury)
    Descrizione

    INCLUSION CRITERIA: If "1 = yes" to BASECVE TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0002689
    Indicate whether the patient has any malignancies
    Descrizione

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0006826
    Indicate whether the malignancy is a solid tumour
    Descrizione

    INCLUSION CRITERIA: If "1 = yes" to BASEMALIG TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0006826
    UMLS CUI [1,2]
    C0280100
    Indicate whether the malignancy is skin cancer
    Descrizione

    INCLUSION CRITERIA: If "1 = yes" to BASEMALIG TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0007114
    Indicate whether the malignancy is a haematological malignancy
    Descrizione

    INCLUSION CRITERIA: If "1 = yes" to BASEMALIG TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0006826
    UMLS CUI [1,2]
    C0376545
    Treatment-Specific
    Descrizione

    Treatment-Specific

    Alias
    UMLS CUI-1
    C0087111
    Indicate when haemodialysis was started
    Descrizione

    INCLUSION CRITERIA: HD TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

    Tipo di dati

    date

    Unità di misura
    • DD/MM/YYYY
    Alias
    UMLS CUI [1,1]
    C0019004
    UMLS CUI [1,2]
    C3173309
    DD/MM/YYYY
    Indicate when peritoneal dialysis was started
    Descrizione

    First fluid exchange with intention of causing solute or fluid clearance INCLUSION CRITERIA: PD TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

    Tipo di dati

    date

    Unità di misura
    • DD/MM/YYYY
    Alias
    UMLS CUI [1,1]
    C0031139
    UMLS CUI [1,2]
    C3173309
    DD/MM/YYYY

    Similar models

    Baseline Characteristics, Baseline Condition Factors and Treatment-specific Variables (administrative / clinical)

    Name
    genere
    Description | Question | Decode (Coded Value)
    Tipo di dati
    Alias
    Item Group
    Patient ID
    C1269815 (UMLS CUI-1)
    Patient ID
    Item
    Indicate the patient's medical record number.
    integer
    C1269815 (UMLS CUI [1])
    Item Group
    Baseline Characteristics
    C1442488 (UMLS CUI-1)
    C0815172 (UMLS CUI-2)
    Item
    Indicate which treatment pathway the patient is following
    integer
    C0087111 (UMLS CUI [1,1])
    C0332307 (UMLS CUI [1,2])
    Code List
    Indicate which treatment pathway the patient is following
    CL Item
    Pre-Renal Replacement Therapy (1)
    CL Item
    Conservative care (2)
    CL Item
    Haemodialysis (3)
    CL Item
    Peritoneal Dialysis (4)
    CL Item
    Functioning kidney transplant (5)
    Previous modality treatment(s): None
    Item
    Indicate the patient's previous modality treatment(s) 0 = None
    boolean
    C1561643 (UMLS CUI [1,1])
    C1514463 (UMLS CUI [1,2])
    C0549184 (UMLS CUI [1,3])
    Previous modality treatment(s): Haemodialysis
    Item
    Indicate the patient's previous modality treatment(s) 1 = Haemodialysis
    boolean
    C1561643 (UMLS CUI [1,1])
    C1514463 (UMLS CUI [1,2])
    C0019004 (UMLS CUI [1,3])
    Previous modality treatment(s): Peritoneal Dialysis
    Item
    Indicate the patient's previous modality treatment(s) 2 = peritoneal dialysis
    boolean
    C1561643 (UMLS CUI [1,1])
    C1514463 (UMLS CUI [1,2])
    C0031139 (UMLS CUI [1,3])
    Previous modality treatment(s): Kidney Transplant
    Item
    Indicate the patient's previous modality treatment(s) 3 = Kidney Transplant
    boolean
    C1561643 (UMLS CUI [1,1])
    C1514463 (UMLS CUI [1,2])
    C0022671 (UMLS CUI [1,3])
    Previous modality treatment(s): Unknown
    Item
    Indicate the patient's previous modality treatment(s) 999 = Unknown
    boolean
    C1561643 (UMLS CUI [1,1])
    C1514463 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Height
    Item
    Indicate the patient's height
    float
    C0005890 (UMLS CUI [1])
    Item
    Indicate the patient's height
    integer
    C0005890 (UMLS CUI [1,1])
    C1519795 (UMLS CUI [1,2])
    Code List
    Indicate the patient's height
    CL Item
    centimeters (1)
    CL Item
    inches (2)
    Weight
    Item
    Indicate the patient's weight
    float
    C0005910 (UMLS CUI [1])
    Item
    Indicate units of weight
    integer
    C0005910 (UMLS CUI [1,1])
    C1519795 (UMLS CUI [1,2])
    Code List
    Indicate units of weight
    CL Item
    kilograms (1)
    CL Item
    pounds (2)
    Item Group
    Baseline Condition Factors
    C1442488 (UMLS CUI-1)
    C1705348 (UMLS CUI-2)
    Item
    Indicate the patient’s primary renal disease
    integer
    C0022658 (UMLS CUI [1,1])
    C0277554 (UMLS CUI [1,2])
    Code List
    Indicate the patient’s primary renal disease
    CL Item
    Uncertain aetiology (1)
    CL Item
    Diabetes mellitus (2)
    CL Item
    Glomerulonephritis (3)
    CL Item
    Hypertension (4)
    CL Item
    Polycystic kidney disease (5)
    CL Item
    Pyelonephritis (6)
    CL Item
    Renal vascular disease (7)
    CL Item
    Other (8)
    Previous kidney allografts
    Item
    How many kidney allografts has the patient previously received (excluding current allograft)?
    integer
    C0022671 (UMLS CUI [1,1])
    C0205156 (UMLS CUI [1,2])
    Item
    Indicate the most recent type of vascular access
    integer
    C0750138 (UMLS CUI [1,1])
    C0019004 (UMLS CUI [1,2])
    Code List
    Indicate the most recent type of vascular access
    CL Item
    AV graft (1)
    CL Item
    AV fistula (2)
    CL Item
    Catheter (3)
    Item
    Indicate the type of the most recent transplant
    text
    C0022671 (UMLS CUI [1,1])
    C0029206 (UMLS CUI [1,2])
    Code List
    Indicate the type of the most recent transplant
    CL Item
    Deceased donor (1)
    CL Item
    Living donor (2)
    Item
    Indicate how the patient's baseline renal/kidney allograft function was measured
    integer
    C0232804 (UMLS CUI [1,1])
    C0564454 (UMLS CUI [1,2])
    C1299991 (UMLS CUI [1,3])
    Code List
    Indicate how the patient's baseline renal/kidney allograft function was measured
    CL Item
    No measurement taken (0)
    CL Item
    Serum Creatinine (1)
    CL Item
    eGFR (2)
    CL Item
    Serum Creatinine + eGFR (3)
    CL Item
    Unknown (999)
    Renal function/kidney allograft measurement date
    Item
    Provide the date of baseline renal/kidney allograft function measurement
    date
    C0232804 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0242485 (UMLS CUI [1,3])
    Item
    Indicate the units used for serum creatinine measurement
    integer
    C0201976 (UMLS CUI [1,1])
    C1519795 (UMLS CUI [1,2])
    Code List
    Indicate the units used for serum creatinine measurement
    CL Item
    umol/l (1)
    CL Item
    mg/dl (2)
    Item
    Indicate which serum creatinine assay is used
    integer
    C0201976 (UMLS CUI [1,1])
    C0871511 (UMLS CUI [1,2])
    Code List
    Indicate which serum creatinine assay is used
    CL Item
    Jaffe (1)
    CL Item
    Enzymatic (2)
    CL Item
    Unknown (999)
    Item
    Indicate if isotope dilution mass spectrometry is used
    integer
    C3274766 (UMLS CUI [1,1])
    C0201976 (UMLS CUI [1,2])
    Code List
    Indicate if isotope dilution mass spectrometry is used
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Serum Creatinine
    Item
    Provide the serum creatinine value
    float
    C0201976 (UMLS CUI [1,1])
    C2826772 (UMLS CUI [1,2])
    Item
    Provide the eGFR equation
    integer
    C4544895 (UMLS CUI [1])
    Code List
    Provide the eGFR equation
    CL Item
    CKD-EPI Serum Creatinine (1)
    CL Item
    MDRD-4 (2)
    CL Item
    MDRD-6 (3)
    CL Item
    Cockcroft-Gault (4)
    CL Item
    Other (5)
    eGFR value
    Item
    Provide the eGFR value
    float
    C3811844 (UMLS CUI [1,1])
    C2826772 (UMLS CUI [1,2])
    Item
    Indicate whether albuminuria was measured
    integer
    C0001925 (UMLS CUI [1])
    C0033687 (UMLS CUI [2])
    Code List
    Indicate whether albuminuria was measured
    CL Item
    No  (0)
    CL Item
    Urine albumin/creatinine ratio in spot urine (1)
    CL Item
    Urine protein/creatinine ratio in spot urine (2)
    CL Item
    Unknown (999)
    Item
    Indicate the units used for albuminuria measurement
    integer
    C0001925 (UMLS CUI [1,1])
    C1519795 (UMLS CUI [1,2])
    C1519795 (UMLS CUI [2,1])
    C0033687 (UMLS CUI [2,2])
    Code List
    Indicate the units used for albuminuria measurement
    CL Item
    mg/g (1)
    CL Item
    mg/mmol (2)
    Item
    Indicate which albuminuria assay is used
    integer
    C0001925 (UMLS CUI [1,1])
    C0871511 (UMLS CUI [1,2])
    C0033687 (UMLS CUI [2,1])
    C0871511 (UMLS CUI [2,2])
    Code List
    Indicate which albuminuria assay is used
    CL Item
    Immunoassay (1)
    CL Item
    Dipstick (2)
    CL Item
    Unknown (999)
    Urine ACR
    Item
    Provide urine ACR in spot urine (mg/g, mg/mmol)
    float
    C0001925 (UMLS CUI [1,1])
    C2826772 (UMLS CUI [1,2])
    Urine PCR
    Item
    Provide urine PCR in spot urine(mg/g, mg/mmol)
    float
    C0033687 (UMLS CUI [1,1])
    C1274040 (UMLS CUI [1,2])
    Albuminuria measurement
    Item
    Provide the date of the most recent albuminuria measurement
    date
    C0001925 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0242485 (UMLS CUI [1,3])
    C0033687 (UMLS CUI [2,1])
    C0011008 (UMLS CUI [2,2])
    C0242485 (UMLS CUI [2,3])
    Item
    Indicate whether the patient has hypertension and/or uses antihypertensive medication at baseline
    integer
    C0020538 (UMLS CUI [1])
    C0003364 (UMLS CUI [2])
    Code List
    Indicate whether the patient has hypertension and/or uses antihypertensive medication at baseline
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the patient has baseline diabetes mellitus
    integer
    C0011849 (UMLS CUI [1])
    Code List
    Indicate whether the patient has baseline diabetes mellitus
    CL Item
    No  (0)
    CL Item
    Diabetes mellitus type 1 (1)
    CL Item
    Diabetes mellitus type 2 (2)
    CL Item
    Unknown (999)
    Item
    Indicate whether the patient has baseline chronic lung disease
    integer
    C0746102 (UMLS CUI [1])
    Code List
    Indicate whether the patient has baseline chronic lung disease
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the patient has baseline chronic liver disease
    integer
    C0023895 (UMLS CUI [1])
    Code List
    Indicate whether the patient has baseline chronic liver disease
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the patient has had any baseline cardiovascular events
    integer
    C1320716 (UMLS CUI [1])
    Code List
    Indicate whether the patient has had any baseline cardiovascular events
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the patient has had a myocardial infarction
    integer
    C0027051 (UMLS CUI [1])
    Code List
    Indicate whether the patient has had a myocardial infarction
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the patient has had a stroke (excluding transient ischemic attacks)
    integer
    C0038454 (UMLS CUI [1])
    Code List
    Indicate whether the patient has had a stroke (excluding transient ischemic attacks)
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the patient has had a limb amputation (not due to traumatic injury)
    integer
    C0002689 (UMLS CUI [1])
    Code List
    Indicate whether the patient has had a limb amputation (not due to traumatic injury)
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the patient has any malignancies
    integer
    C0006826 (UMLS CUI [1])
    Code List
    Indicate whether the patient has any malignancies
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the malignancy is a solid tumour
    integer
    C0006826 (UMLS CUI [1,1])
    C0280100 (UMLS CUI [1,2])
    Code List
    Indicate whether the malignancy is a solid tumour
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the malignancy is skin cancer
    integer
    C0007114 (UMLS CUI [1])
    Code List
    Indicate whether the malignancy is skin cancer
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate whether the malignancy is a haematological malignancy
    integer
    C0006826 (UMLS CUI [1,1])
    C0376545 (UMLS CUI [1,2])
    Code List
    Indicate whether the malignancy is a haematological malignancy
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item Group
    Treatment-Specific
    C0087111 (UMLS CUI-1)
    Haemodialysis start
    Item
    Indicate when haemodialysis was started
    date
    C0019004 (UMLS CUI [1,1])
    C3173309 (UMLS CUI [1,2])
    Peritoneal dialysis start
    Item
    Indicate when peritoneal dialysis was started
    date
    C0031139 (UMLS CUI [1,1])
    C3173309 (UMLS CUI [1,2])

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