ID

40532

Description

CHRONIC KIDNEY DISEASE DATA COLLECTION REFERENCE GUIDE Version 1.0.0 Revised October 25th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Chronic Kidney Disease Stage G3a/A3 | Chronic Kidney Disease StageG 3b/A2/A3 | Chronic Kidney Disease Stage G4 | Chronic Kidney Disease Stage G5 (KDIGO 2012 Stages) Treatment Approaches: Pre-RRT = Pre-Renal Replacement Therapy | HD = Haemodialysis | PD = Peritoneal Dialysis | Tx = Renal Transplantation | CC = Conservative Care This ODM-file contains Baseline Characteristics, Baseline Condition factors and Treatment-specific variables, clinical or administrative. To be collected at Baseline Visit. Surveys used: The OptumTM SF-36v2® Health Survey: The SF-36v2 Health Survey requires a license agreement prior to the use or reprodution of the tool. Information on how to obtain a license can be found here: bit.ly/SF36LIC . The scoring guide for the SF36v2 is only available upon a license agreement being made. Due to the requirement of a license the Score cannot be found in this version of the standard set. PROMIS-Global Health and PROMIS-29: Free for use in clinical practice and a license is not required. Information http://www.nihpromis.org/measures/translations . The scoring guides for the two PROMIS Scores can be found at bit.ly/PROMISGLOBALSCORE and bit.ly/PROMIS29SCORE . RAND-36: Free for use in clinical practice and a license is not required. The RAND-36 is available in English and Arabic. https://www.rand.org/health/surveys_tools/mos/36-item-short-form.html . The Scoring guide can be found at bit.ly/RAND36Score . Publication: Verberne WR, Das-Gupta Z, Allegretti AS, et al. Development of an International Standard Set of Value-Based Outcome Measures for Patients With Chronic Kidney Disease: A Report of the International Consortium for Health Outcomes Measurement (ICHOM) CKD Working Group. American Journal of Kidney Diseases. Volume 73, Issue 3, 2019, Pages 372-384, ISSN 0272-6386, https://doi.org/10.1053/j.ajkd.2018.10.007 ICHOM was supported for the Chronic Kidney Disease Standard Set by NSW Agency for Clinical Innovation, Providence Health and Services, ERCPA, santeon and Dutch Kidney Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

www.ichom.org

Keywords

Versions (3)
  1. 7/27/18 7/27/18 - Sarah Riepenhausen
  2. 7/27/18 7/27/18 - Sarah Riepenhausen
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

April 30, 2020

DOI

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Creative Commons BY-NC 4.0
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ICHOM Chronic Kidney Disease

English

Baseline Characteristics, Baseline Condition Factors and Treatment-specific Variables (administrative / clinical)

1 forms  
Patient ID
Description

Patient ID

Alias
UMLS CUI-1
C1269815
Indicate the patient's medical record number.
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution. INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Baseline Characteristics
Description

Baseline Characteristics

Alias
UMLS CUI-1
C1442488
UMLS CUI-2
C0815172
Indicate which treatment pathway the patient is following
Description

INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0332307
Indicate the patient's previous modality treatment(s) 0 = None
Description

INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C1561643
UMLS CUI [1,2]
C1514463
UMLS CUI [1,3]
C0549184
Indicate the patient's previous modality treatment(s) 1 = Haemodialysis
Description

INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C1561643
UMLS CUI [1,2]
C1514463
UMLS CUI [1,3]
C0019004
Indicate the patient's previous modality treatment(s) 2 = peritoneal dialysis
Description

INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C1561643
UMLS CUI [1,2]
C1514463
UMLS CUI [1,3]
C0031139
Indicate the patient's previous modality treatment(s) 3 = Kidney Transplant
Description

INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C1561643
UMLS CUI [1,2]
C1514463
UMLS CUI [1,3]
C0022671
Indicate the patient's previous modality treatment(s) 999 = Unknown
Description

INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or clinical TYPE: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C1561643
UMLS CUI [1,2]
C1514463
UMLS CUI [1,3]
C0439673
Indicate the patient's height
Description

Height and weight are used to calculate BMI INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Numerical value RESPONSE OPTIONS: Numerical value of height in centimeters or inches

Data type

float

Alias
UMLS CUI [1]
C0005890
Indicate the patient's height
Description

INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005890
UMLS CUI [1,2]
C1519795
Indicate the patient's weight
Description

Height and weight are used to calculate BMI Height and weight are used to calculate BMI INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Numerical value RESPONSE OPTIONS: Numerical value of weight in kilograms or pounds

Data type

float

Alias
UMLS CUI [1]
C0005910
Indicate units of weight
Description

INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005910
UMLS CUI [1,2]
C1519795
Baseline Condition Factors
Description

Baseline Condition Factors

Alias
UMLS CUI-1
C1442488
UMLS CUI-2
C1705348
Indicate the patient’s primary renal disease
Description

INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0022658
UMLS CUI [1,2]
C0277554
How many kidney allografts has the patient previously received (excluding current allograft)?
Description

INCLUSION CRITERIA: Tx, HD, PD, CC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical

Data type

integer

Alias
UMLS CUI [1,1]
C0022671
UMLS CUI [1,2]
C0205156
Indicate the most recent type of vascular access
Description

INCLUSION CRITERIA: HD TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0750138
UMLS CUI [1,2]
C0019004
Indicate the type of the most recent transplant
Description

INCLUSION CRITERIA: Tx TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

text

Alias
UMLS CUI [1,1]
C0022671
UMLS CUI [1,2]
C0029206
Indicate how the patient's baseline renal/kidney allograft function was measured
Description

INCLUSION CRITERIA: Pre-RRT, CC, Tx TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0232804
UMLS CUI [1,2]
C0564454
UMLS CUI [1,3]
C1299991
Provide the date of baseline renal/kidney allograft function measurement
Description

INCLUSION CRITERIA: If "1 = Serum Creatinine", "2 = eGFR" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0232804
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0242485
DD/MM/YYYY
Indicate the units used for serum creatinine measurement
Description

INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0201976
UMLS CUI [1,2]
C1519795
Indicate which serum creatinine assay is used
Description

INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0201976
UMLS CUI [1,2]
C0871511
Indicate if isotope dilution mass spectrometry is used
Description

INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C3274766
UMLS CUI [1,2]
C0201976
Provide the serum creatinine value
Description

INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical

Data type

float

Alias
UMLS CUI [1,1]
C0201976
UMLS CUI [1,2]
C2826772
Provide the eGFR equation
Description

INCLUSION CRITERIA: If "2 = eGFR" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4544895
Provide the eGFR value
Description

INCLUSION CRITERIA: If "2 = eGFR" or "3 = Serum Creatinine + eGFR" to BASERFUNC TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical

Data type

float

Alias
UMLS CUI [1,1]
C3811844
UMLS CUI [1,2]
C2826772
Indicate whether albuminuria was measured
Description

Urine albumin/creatinine ratio in spot urine (preferred), or urine protein/creatinine ratio (alternative) INCLUSION CRITERIA: Pre-RRT, CC, Tx TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0001925
UMLS CUI [2]
C0033687
Indicate the units used for albuminuria measurement
Description

INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" or "2 = Urine protein/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0001925
UMLS CUI [1,2]
C1519795
UMLS CUI [2,1]
C1519795
UMLS CUI [2,2]
C0033687
Indicate which albuminuria assay is used
Description

INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" or "2 = Urine protein/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0001925
UMLS CUI [1,2]
C0871511
UMLS CUI [2,1]
C0033687
UMLS CUI [2,2]
C0871511
Provide urine ACR in spot urine (mg/g, mg/mmol)
Description

INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical value

Data type

float

Alias
UMLS CUI [1,1]
C0001925
UMLS CUI [1,2]
C2826772
Provide urine PCR in spot urine(mg/g, mg/mmol)
Description

INCLUSION CRITERIA: If "2 = Urine protein/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Numerical

Data type

float

Alias
UMLS CUI [1,1]
C0033687
UMLS CUI [1,2]
C1274040
Provide the date of the most recent albuminuria measurement
Description

INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" or "2 = Urine protein/creatinine ratio in spot urine" to BASEALB TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0001925
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0242485
UMLS CUI [2,1]
C0033687
UMLS CUI [2,2]
C0011008
UMLS CUI [2,3]
C0242485
DD/MM/YYYY
Indicate whether the patient has hypertension and/or uses antihypertensive medication at baseline
Description

INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0020538
UMLS CUI [2]
C0003364
Indicate whether the patient has baseline diabetes mellitus
Description

INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0011849
Indicate whether the patient has baseline chronic lung disease
Description

INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0746102
Indicate whether the patient has baseline chronic liver disease
Description

INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0023895
Indicate whether the patient has had any baseline cardiovascular events
Description

Cardiovascular events of interest are acute myocardial infarction, stroke (excluding transient ischemic attacks), and limb amputation (excluding traumatic injury) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1320716
Indicate whether the patient has had a myocardial infarction
Description

INCLUSION CRITERIA: If "1 = yes" to BASECVE TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0027051
Indicate whether the patient has had a stroke (excluding transient ischemic attacks)
Description

INCLUSION CRITERIA: If "1 = yes" to BASECVE TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0038454
Indicate whether the patient has had a limb amputation (not due to traumatic injury)
Description

INCLUSION CRITERIA: If "1 = yes" to BASECVE TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0002689
Indicate whether the patient has any malignancies
Description

INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0006826
Indicate whether the malignancy is a solid tumour
Description

INCLUSION CRITERIA: If "1 = yes" to BASEMALIG TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0006826
UMLS CUI [1,2]
C0280100
Indicate whether the malignancy is skin cancer
Description

INCLUSION CRITERIA: If "1 = yes" to BASEMALIG TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0007114
Indicate whether the malignancy is a haematological malignancy
Description

INCLUSION CRITERIA: If "1 = yes" to BASEMALIG TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0006826
UMLS CUI [1,2]
C0376545
Treatment-Specific
Description

Treatment-Specific

Alias
UMLS CUI-1
C0087111
Indicate when haemodialysis was started
Description

INCLUSION CRITERIA: HD TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0019004
UMLS CUI [1,2]
C3173309
DD/MM/YYYY
Indicate when peritoneal dialysis was started
Description

First fluid exchange with intention of causing solute or fluid clearance INCLUSION CRITERIA: PD TIMING: Baseline REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0031139
UMLS CUI [1,2]
C3173309
DD/MM/YYYY
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Similar models

Baseline Characteristics, Baseline Condition Factors and Treatment-specific Variables (administrative / clinical)

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Patient ID
C1269815 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number.
integer
C1269815 (UMLS CUI [1])
Item Group
Baseline Characteristics
C1442488 (UMLS CUI-1)
C0815172 (UMLS CUI-2)
Item
Indicate which treatment pathway the patient is following
integer
C0087111 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Treatment pathway
Code List
Indicate which treatment pathway the patient is following
CL Item
Pre-Renal Replacement Therapy (1)
CL Item
Conservative care (2)
CL Item
Haemodialysis (3)
CL Item
Peritoneal Dialysis (4)
CL Item
Functioning kidney transplant (5)
Previous modality treatment(s): None
Item
Indicate the patient's previous modality treatment(s) 0 = None
boolean
C1561643 (UMLS CUI [1,1])
C1514463 (UMLS CUI [1,2])
C0549184 (UMLS CUI [1,3])
Previous modality treatment(s): Haemodialysis
Item
Indicate the patient's previous modality treatment(s) 1 = Haemodialysis
boolean
C1561643 (UMLS CUI [1,1])
C1514463 (UMLS CUI [1,2])
C0019004 (UMLS CUI [1,3])
Previous modality treatment(s): Peritoneal Dialysis
Item
Indicate the patient's previous modality treatment(s) 2 = peritoneal dialysis
boolean
C1561643 (UMLS CUI [1,1])
C1514463 (UMLS CUI [1,2])
C0031139 (UMLS CUI [1,3])
Previous modality treatment(s): Kidney Transplant
Item
Indicate the patient's previous modality treatment(s) 3 = Kidney Transplant
boolean
C1561643 (UMLS CUI [1,1])
C1514463 (UMLS CUI [1,2])
C0022671 (UMLS CUI [1,3])
Previous modality treatment(s): Unknown
Item
Indicate the patient's previous modality treatment(s) 999 = Unknown
boolean
C1561643 (UMLS CUI [1,1])
C1514463 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Height
Item
Indicate the patient's height
float
C0005890 (UMLS CUI [1])
Item
Indicate the patient's height
integer
C0005890 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Height units
Code List
Indicate the patient's height
CL Item
centimeters (1)
CL Item
inches (2)
Weight
Item
Indicate the patient's weight
float
C0005910 (UMLS CUI [1])
Item
Indicate units of weight
integer
C0005910 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Weight units
Code List
Indicate units of weight
CL Item
kilograms (1)
CL Item
pounds (2)
Item Group
Baseline Condition Factors
C1442488 (UMLS CUI-1)
C1705348 (UMLS CUI-2)
Item
Indicate the patient’s primary renal disease
integer
C0022658 (UMLS CUI [1,1])
C0277554 (UMLS CUI [1,2])
Primary renal disease
Code List
Indicate the patient’s primary renal disease
CL Item
Uncertain aetiology (1)
CL Item
Diabetes mellitus (2)
CL Item
Glomerulonephritis (3)
CL Item
Hypertension (4)
CL Item
Polycystic kidney disease (5)
CL Item
Pyelonephritis (6)
CL Item
Renal vascular disease (7)
CL Item
Other (8)
Previous kidney allografts
Item
How many kidney allografts has the patient previously received (excluding current allograft)?
integer
C0022671 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
Item
Indicate the most recent type of vascular access
integer
C0750138 (UMLS CUI [1,1])
C0019004 (UMLS CUI [1,2])
Vascular access type
Code List
Indicate the most recent type of vascular access
CL Item
AV graft (1)
CL Item
AV fistula (2)
CL Item
Catheter (3)
Item
Indicate the type of the most recent transplant
text
C0022671 (UMLS CUI [1,1])
C0029206 (UMLS CUI [1,2])
Transplant type
Code List
Indicate the type of the most recent transplant
CL Item
Deceased donor (1)
CL Item
Living donor (2)
Item
Indicate how the patient's baseline renal/kidney allograft function was measured
integer
C0232804 (UMLS CUI [1,1])
C0564454 (UMLS CUI [1,2])
C1299991 (UMLS CUI [1,3])
Renal/kidney allograft function
Code List
Indicate how the patient's baseline renal/kidney allograft function was measured
CL Item
No measurement taken (0)
CL Item
Serum Creatinine (1)
CL Item
eGFR (2)
CL Item
Serum Creatinine + eGFR (3)
CL Item
Unknown (999)
Renal function/kidney allograft measurement date
Item
Provide the date of baseline renal/kidney allograft function measurement
date
C0232804 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0242485 (UMLS CUI [1,3])
Item
Indicate the units used for serum creatinine measurement
integer
C0201976 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Serum Creatinine unit
Code List
Indicate the units used for serum creatinine measurement
CL Item
umol/l (1)
CL Item
mg/dl (2)
Item
Indicate which serum creatinine assay is used
integer
C0201976 (UMLS CUI [1,1])
C0871511 (UMLS CUI [1,2])
Serum Creatinine callibration
Code List
Indicate which serum creatinine assay is used
CL Item
Jaffe (1)
CL Item
Enzymatic (2)
CL Item
Unknown (999)
Item
Indicate if isotope dilution mass spectrometry is used
integer
C3274766 (UMLS CUI [1,1])
C0201976 (UMLS CUI [1,2])
Isotope dilution mass spectrometry (IDMS) callibration
Code List
Indicate if isotope dilution mass spectrometry is used
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Serum Creatinine
Item
Provide the serum creatinine value
float
C0201976 (UMLS CUI [1,1])
C2826772 (UMLS CUI [1,2])
Item
Provide the eGFR equation
integer
C4544895 (UMLS CUI [1])
eGFR equation
Code List
Provide the eGFR equation
CL Item
CKD-EPI Serum Creatinine (1)
CL Item
MDRD-4 (2)
CL Item
MDRD-6 (3)
CL Item
Cockcroft-Gault (4)
CL Item
Other (5)
eGFR value
Item
Provide the eGFR value
float
C3811844 (UMLS CUI [1,1])
C2826772 (UMLS CUI [1,2])
Item
Indicate whether albuminuria was measured
integer
C0001925 (UMLS CUI [1])
C0033687 (UMLS CUI [2])
Albuminuria
Code List
Indicate whether albuminuria was measured
CL Item
No  (0)
CL Item
Urine albumin/creatinine ratio in spot urine (1)
CL Item
Urine protein/creatinine ratio in spot urine (2)
CL Item
Unknown (999)
Item
Indicate the units used for albuminuria measurement
integer
C0001925 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
C1519795 (UMLS CUI [2,1])
C0033687 (UMLS CUI [2,2])
Units of albuminuria measurement
Code List
Indicate the units used for albuminuria measurement
CL Item
mg/g (1)
CL Item
mg/mmol (2)
Item
Indicate which albuminuria assay is used
integer
C0001925 (UMLS CUI [1,1])
C0871511 (UMLS CUI [1,2])
C0033687 (UMLS CUI [2,1])
C0871511 (UMLS CUI [2,2])
Albuminuria callibration
Code List
Indicate which albuminuria assay is used
CL Item
Immunoassay (1)
CL Item
Dipstick (2)
CL Item
Unknown (999)
Urine ACR
Item
Provide urine ACR in spot urine (mg/g, mg/mmol)
float
C0001925 (UMLS CUI [1,1])
C2826772 (UMLS CUI [1,2])
Urine PCR
Item
Provide urine PCR in spot urine(mg/g, mg/mmol)
float
C0033687 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
Albuminuria measurement
Item
Provide the date of the most recent albuminuria measurement
date
C0001925 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0242485 (UMLS CUI [1,3])
C0033687 (UMLS CUI [2,1])
C0011008 (UMLS CUI [2,2])
C0242485 (UMLS CUI [2,3])
Item
Indicate whether the patient has hypertension and/or uses antihypertensive medication at baseline
integer
C0020538 (UMLS CUI [1])
C0003364 (UMLS CUI [2])
High blood pressure
Code List
Indicate whether the patient has hypertension and/or uses antihypertensive medication at baseline
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the patient has baseline diabetes mellitus
integer
C0011849 (UMLS CUI [1])
Diabetes mellitus
Code List
Indicate whether the patient has baseline diabetes mellitus
CL Item
No  (0)
CL Item
Diabetes mellitus type 1 (1)
CL Item
Diabetes mellitus type 2 (2)
CL Item
Unknown (999)
Item
Indicate whether the patient has baseline chronic lung disease
integer
C0746102 (UMLS CUI [1])
Chronic lung disease
Code List
Indicate whether the patient has baseline chronic lung disease
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the patient has baseline chronic liver disease
integer
C0023895 (UMLS CUI [1])
Liver disease
Code List
Indicate whether the patient has baseline chronic liver disease
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the patient has had any baseline cardiovascular events
integer
C1320716 (UMLS CUI [1])
Cardiovascular events
Code List
Indicate whether the patient has had any baseline cardiovascular events
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the patient has had a myocardial infarction
integer
C0027051 (UMLS CUI [1])
Myocardial infarction
Code List
Indicate whether the patient has had a myocardial infarction
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the patient has had a stroke (excluding transient ischemic attacks)
integer
C0038454 (UMLS CUI [1])
Stroke (excluding transient ischemic attacks)
Code List
Indicate whether the patient has had a stroke (excluding transient ischemic attacks)
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the patient has had a limb amputation (not due to traumatic injury)
integer
C0002689 (UMLS CUI [1])
Limb amputation (not due to traumatic injury)
Code List
Indicate whether the patient has had a limb amputation (not due to traumatic injury)
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the patient has any malignancies
integer
C0006826 (UMLS CUI [1])
Malignancies
Code List
Indicate whether the patient has any malignancies
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the malignancy is a solid tumour
integer
C0006826 (UMLS CUI [1,1])
C0280100 (UMLS CUI [1,2])
Malignancies type 1
Code List
Indicate whether the malignancy is a solid tumour
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the malignancy is skin cancer
integer
C0007114 (UMLS CUI [1])
Malignancies type 2
Code List
Indicate whether the malignancy is skin cancer
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the malignancy is a haematological malignancy
integer
C0006826 (UMLS CUI [1,1])
C0376545 (UMLS CUI [1,2])
Malignancies type 3
Code List
Indicate whether the malignancy is a haematological malignancy
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item Group
Treatment-Specific
C0087111 (UMLS CUI-1)
Haemodialysis start
Item
Indicate when haemodialysis was started
date
C0019004 (UMLS CUI [1,1])
C3173309 (UMLS CUI [1,2])
Peritoneal dialysis start
Item
Indicate when peritoneal dialysis was started
date
C0031139 (UMLS CUI [1,1])
C3173309 (UMLS CUI [1,2])
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