ID

3997

Description

Myeloproliferative Erkrankungen Symptom-Erfassungsbogen (MPN-SAF) - German Prof. Steffen Koschmieder skoschmieder@ukaachen.de

Keywords

Versions (1)
  1. 7/1/13 7/1/13 - Martin Dugas
Uploaded on

July 1, 2013

DOI

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License

Creative Commons BY-NC 3.0 Legacy
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MPN-SAF (Patient) MPN-SAF Protocol_7_1_13 MPN

German English

MPN-SAF (Patient)

1 forms  
  1. StudyEvent: MPN
    1. MPN-SAF (Patient)
Myeloproliferative Diseases Symptom Assessment Form - A validation study
Description

Myeloproliferative Diseases Symptom Assessment Form - A validation study

Alias
UMLS CUI 2011AB
C0027022
SNOMEDCT_2012_01_31
425333006
MedDRA 14.1
10028576
ICD-10-CM Version 2010
D47.1
UMLS CUI 2011AB
C1457887
LOINC Version 232
MTHU021540
ICD-9-CM Version 2011
780-789.99
UMLS CUI 2011AB
C1516048
UMLS CUI 2011AB
C0034394
UMLS CUI 2011AB
C0681836
Anonymous patient identification number:
Description

Anonyme Patienten-Identifizierungs-Nummer:

Data type

integer

Alias
UMLS CUI 2011AB
C2346787
UMLS CUI 2011AB
C0030705
SNOMEDCT_2012_01_31
116154003
UMLS CUI 2011AB
C1300638
SNOMEDCT_2012_01_31
396278008
Diagnosis:
Description

Diagnose

Data type

integer

MF (PMF)
Description

MF (PMF)

Data type

string

Alias
UMLS CUI 2011AB
C0026987
SNOMEDCT_2012_01_31
52967002
MedDRA 14.1
10028537
ICD-10-CM Version 2010
D75.81
ICD-9-CM Version 2011
289.83
UMLS CUI 2011AB
C0001815
SNOMEDCT_2012_01_31
307651005
MedDRA 14.1
10028538
ICD-10-CM Version 2010
D75.81
ICD-9-CM Version 2011
238.76
MF(Post ET MF)
Description

MF(Post ET MF)

Data type

string

Alias
UMLS CUI 2011AB
C0026987
SNOMEDCT_2012_01_31
52967002
MedDRA 14.1
10028537
ICD-10-CM Version 2010
D75.81
ICD-9-CM Version 2011
289.83
UMLS CUI 2011AB
C0231290
SNOMEDCT_2012_01_31
237679004
UMLS CUI 2011AB
C0040028
SNOMEDCT_2012_01_31
109994006
MedDRA 14.1
10015493
ICD-10-CM Version 2010
D47.3
ICD-9-CM Version 2011
238.71
UMLS CUI 2011AB
C0026987
SNOMEDCT_2012_01_31
52967002
MedDRA 14.1
10028537
ICD-10-CM Version 2010
D75.81
ICD-9-CM Version 2011
289.83
MF(Post PV MF)
Description

MF(Post PV MF)

Data type

string

Alias
UMLS CUI 2011AB
C0026987
SNOMEDCT_2012_01_31
52967002
MedDRA 14.1
10028537
ICD-10-CM Version 2010
D75.81
ICD-9-CM Version 2011
289.83
UMLS CUI 2011AB
C0231290
SNOMEDCT_2012_01_31
237679004
UMLS CUI 2011AB
C0032463
SNOMEDCT_2012_01_31
109992005
MedDRA 14.1
10036057
ICD-10-CM Version 2010
D45
ICD-9-CM Version 2011
238.4
UMLS CUI 2011AB
C0026987
SNOMEDCT_2012_01_31
52967002
MedDRA 14.1
10028537
ICD-10-CM Version 2010
D75.81
ICD-9-CM Version 2011
289.83
Polycythemia vera (PV)
Description

Polycythaemia vera (PV)

Data type

string

Alias
UMLS CUI 2011AB
C0032463
SNOMEDCT_2012_01_31
109992005
MedDRA 14.1
10036057
ICD-10-CM Version 2010
D45
ICD-9-CM Version 2011
238.4
Essential Thrombocythemia (ET)
Description

Essentielle Thrombozythämie (ET)

Data type

string

Alias
UMLS CUI 2011AB
C0040028
SNOMEDCT_2012_01_31
109994006
MedDRA 14.1
10015493
ICD-10-CM Version 2010
D47.3
ICD-9-CM Version 2011
238.71
Location:
Description

Standort

Data type

integer

Alias
UMLS CUI 2011AB
C0450429
SNOMEDCT_2012_01_31
246267002
MPN symptoms last week
Description

MPN symptoms last week

Alias
UMLS CUI 2011AB
C0027022
SNOMEDCT_2012_01_31
425333006
MedDRA 14.1
10028576
ICD-10-CM Version 2010
D47.1
UMLS CUI 2011AB
C1457887
LOINC Version 232
MTHU021540
ICD-9-CM Version 2011
780-789.99
UMLS CUI 2011AB
C1516048
Instructions: Please fill out all questions, as best as able, reflecting how these symptoms affected you over the LAST WEEK unless directed otherwise. Complete forms until the STOP instruction toward the end of the packet.
Description

Anleitung

Data type

integer

Please rate your fatigue (weariness/tiredness) by circling the one number that best describes your fatigue right NOW
Description

Müdigkeit in diesem Augenblick

Data type

integer

Alias
UMLS CUI 2011AB
C0015672
SNOMEDCT_2012_01_31
267032009
MedDRA 14.1
10016256
LOINC Version 232
MTHU013358
ICD-10-CM Version 2010
R53.83
CTCAE 1105E
E11098
UMLS CUI 2011AB
C1948052
Please rate your fatigue (weariness/tiredness) by circling the one number that best describes your USUAL level of fatigue during past 24 hours
Description

Übliche Müdigkeit während der letzten 24 Stunden

Data type

integer

Alias
UMLS CUI 2011AB
CL381509
UMLS CUI 2011AB
C0449286
SNOMEDCT_2012_01_31
246173007
UMLS CUI 2011AB
C0015672
SNOMEDCT_2012_01_31
267032009
MedDRA 14.1
10016256
LOINC Version 232
MTHU013358
ICD-10-CM Version 2010
R53.83
CTCAE 1105E
E11098
UMLS CUI 2011AB
C0347984
SNOMEDCT_2012_01_31
371881003
UMLS CUI 2011AB
C1517741
UMLS CUI 2011AB
C0439584
SNOMEDCT_2012_01_31
123027009
Please rate your fatigue (weariness/tiredness) by circling the one number that best describes your MAXIMUM level of fatigue during past 24 hours
Description

Höchste Müdigkeit während der letzten 24 Stunden

Data type

integer

Alias
UMLS CUI 2011AB
C1522166
UMLS CUI 2011AB
C0449286
SNOMEDCT_2012_01_31
246173007
UMLS CUI 2011AB
C0015672
SNOMEDCT_2012_01_31
267032009
MedDRA 14.1
10016256
LOINC Version 232
MTHU013358
ICD-10-CM Version 2010
R53.83
CTCAE 1105E
E11098
UMLS CUI 2011AB
C0347984
SNOMEDCT_2012_01_31
371881003
UMLS CUI 2011AB
C1517741
UMLS CUI 2011AB
C0439584
SNOMEDCT_2012_01_31
123027009
Fatigue within the last 24 hours
Description

Fatigue within the last 24 hours

Circle the one number that describes how, during the past 24 hours, fatigue has interfered with your:
Description

Anleitung2

Data type

integer

General activity
Description

Allgemeine Aktivität

Data type

integer

Alias
UMLS CUI 2011AB
C0205246
SNOMEDCT_2012_01_31
60132005
UMLS CUI 2011AB
C0441655
SNOMEDCT_2012_01_31
257733005
LOINC Version 232
MTHU002837
ICD-9-CM Version 2011
E001-E030.9
Mood
Description

Stimmung

Data type

integer

Alias
UMLS CUI 2011AB
C0026516
SNOMEDCT_2012_01_31
85256008
LOINC Version 232
MTHU031584
Walking ability
Description

Gehvermögen

Data type

integer

Alias
UMLS CUI 2011AB
C0559964
SNOMEDCT_2012_01_31
282097004
Normal work (includes work both outside the home and daily chores)
Description

Normale Arbeit

Data type

integer

Alias
UMLS CUI 2011AB
C0205307
SNOMEDCT_2012_01_31
17621005
HL7 V3 2006_05
N
UMLS CUI 2011AB
C0043227
SNOMEDCT_2012_01_31
261041009
UMLS CUI 2011AB
C1709359
UMLS CUI 2011AB
C0332173
SNOMEDCT_2012_01_31
69620002
UMLS CUI 2011AB
C0589414
SNOMEDCT_2012_01_31
311840008
Relations with other people
Description

Beziehungen zu anderen Menschen

Data type

integer

Alias
UMLS CUI 2011AB
C0699792
SNOMEDCT_2012_01_31
263498003
UMLS CUI 2011AB
C0205394
SNOMEDCT_2012_01_31
74964007
UMLS CUI 2011AB
CL428058
Enjoyment of life
Description

Lebensfreude

Data type

integer

Alias
UMLS CUI 2011AB
C0424131
SNOMEDCT_2012_01_31
247794008
Symptoms in the past week
Description

Symptoms in the past week

Filling up quickly when you eat (Early satiety)
Description

Frühes Sättigungsgefühl

Data type

integer

Alias
UMLS CUI 2011AB
C0239233
SNOMEDCT_2012_01_31
442076002
MedDRA 14.1
10059186
ICD-10-CM Version 2010
R68.81
ICD-9-CM Version 2011
780.94
Abdominal Pain
Description

Bauchschmerzen

Data type

integer

Alias
UMLS CUI 2011AB
C0000737
SNOMEDCT_2012_01_31
21522001
MedDRA 14.1
10000081
LOINC Version 232
MTHU013636
ICD-10-CM Version 2010
R10.9
ICD-9-CM Version 2011
789.0
CTCAE 1105E
E10460
Abdominal discomfort
Description

Bauchbeschwerden

Data type

integer

Alias
UMLS CUI 2011AB
C0232487
SNOMEDCT_2012_01_31
43364001
MedDRA 14.1
10000059
Inactivity
Description

Trägheit

Data type

integer

Alias
UMLS CUI 2011AB
C0205254
SNOMEDCT_2012_01_31
73425007
MedDRA 14.1
10039900
Headaches
Description

Kopfschmerzen

Data type

integer

Alias
UMLS CUI 2011AB
C0018681
SNOMEDCT_2012_01_31
25064002
MedDRA 14.1
10019211
LOINC Version 232
MTHU020860
ICD-10-CM Version 2010
R51
ICD-9-CM Version 2011
784.0
CTCAE 1105E
E12678
Problems with concentration - Compared to prior to my MPD)
Description

Konzentrationsschwierigkeiten im Vergleich zu früher

Data type

integer

Alias
UMLS CUI 2011AB
C0858201
MedDRA 14.1
10010248
UMLS CUI 2011AB
C1707455
UMLS CUI 2011AB
C0449438
SNOMEDCT_2012_01_31
263490005
LOINC Version 232
MTHU015827
UMLS CUI 2011AB
C0332152
SNOMEDCT_2012_01_31
288556008
UMLS CUI 2011AB
C0027022
SNOMEDCT_2012_01_31
425333006
MedDRA 14.1
10028576
ICD-10-CM Version 2010
D47.1
UMLS CUI 2011AB
C0011900
SNOMEDCT_2012_01_31
439401001
LOINC Version 232
MTHU008876
Dizziness / Vertigo / Lightheadedness
Description

Schwindel, Gleichgewichtsstörungen, Benommenheit

Data type

integer

Alias
UMLS CUI 2011AB
C0012833
SNOMEDCT_2012_01_31
404640003
MedDRA 14.1
10013573
CTCAE 1105E
E12631
UMLS CUI 2011AB
C0042571
SNOMEDCT_2012_01_31
399153001
MedDRA 14.1
10047340
ICD-10-CM Version 2010
R42
ICD-9-CM Version 2011
780.4
CTCAE 1105E
E10291
UMLS CUI 2011AB
C0220870
SNOMEDCT_2012_01_31
386705008
MedDRA 14.1
10024492
ICD-10-CM Version 2010
R42
Numbness / Tingling (in my hands and feet)
Description

Taubheitsgefühl/Kribbeln an Händen und Füßen

Data type

integer

Alias
UMLS CUI 2011AB
C0028643
SNOMEDCT_2012_01_31
44077006
MedDRA 14.1
10029829
ICD-9-CM Version 2011
782.0
UMLS CUI 2011AB
C0542238
MedDRA 14.1
10043877
Difficulty sleeping
Description

Schlafprobleme, Ein-/Durchschlafschwierigkeiten

Data type

integer

Alias
UMLS CUI 2011AB
C0235162
SNOMEDCT_2012_01_31
301345002
MedDRA 14.1
10012804
UMLS CUI 2011AB
C0332273
SNOMEDCT_2012_01_31
112235009
UMLS CUI 2011AB
C0240526
SNOMEDCT_2012_01_31
2546009
UMLS CUI 2011AB
C0393760
SNOMEDCT_2012_01_31
59050008
MedDRA 14.1
10022035
LOINC Version 232
MTHU039887
Depression or sad mood
Description

Depression oder trübe Stimmung

Data type

integer

Alias
UMLS CUI 2011AB
C0011570
MedDRA 14.1
10012378
LOINC Version 232
MTHU013514
ICD-10-CM Version 2010
F32.9
CTCAE 1105E
E12909
UMLS CUI 2011AB
C0344315
SNOMEDCT_2012_01_31
366979004
MedDRA 14.1
10012374
LOINC Version 232
MTHU031608
Problems with sexual desire or function
Description

Schwierigkeiten im Sexualbereich: Mangelndes Interesse oder Funktionsstörungen

Data type

integer

Alias
UMLS CUI 2011AB
C1409677
Cough
Description

Husten

Data type

integer

Alias
UMLS CUI 2011AB
C0010200
SNOMEDCT_2012_01_31
49727002
MedDRA 14.1
10011224
ICD-10-CM Version 2010
R05
ICD-9-CM Version 2011
786.2
CTCAE 1105E
E13364
Night sweats
Description

Nächtliches Schwitzen

Data type

integer

Alias
UMLS CUI 2011AB
C0028081
SNOMEDCT_2012_01_31
42984000
MedDRA 14.1
10029410
LOINC Version 232
MTHU013525
ICD-10-CM Version 2010
R61
Itching (pruritus)
Description

Juckreiz (Pruritus)

Data type

integer

Alias
UMLS CUI 2011AB
C0033774
SNOMEDCT_2012_01_31
418363000
MedDRA 14.1
10037087
ICD-10-CM Version 2010
L29
ICD-9-CM Version 2011
698.9
CTCAE 1105E
E13686
Bone pain (diffuse not joint pain or arthritis)
Description

Knochenschmerzen

Data type

integer

Alias
UMLS CUI 2011AB
C0151825
SNOMEDCT_2012_01_31
12584003
MedDRA 14.1
10006002
LOINC Version 232
MTHU020858
CTCAE 1105E
E12392
UMLS CUI 2011AB
C0205219
SNOMEDCT_2012_01_31
19648000
UMLS CUI 2011AB
C1518422
UMLS CUI 2011AB
C0003862
SNOMEDCT_2012_01_31
57676002
MedDRA 14.1
10003239
LOINC Version 232
MTHU020863
ICD-10-CM Version 2010
M25.5
ICD-9-CM Version 2011
719.4
CTCAE 1105E
E12374
UMLS CUI 2011AB
C0003864
SNOMEDCT_2012_01_31
3723001
MedDRA 14.1
10003246
LOINC Version 232
MTHU020793
ICD-10-CM Version 2010
M19.90
ICD-9-CM Version 2011
716.9
CTCAE 1105E
E12378
Fever (> 100 F)
Description

Fieber (>37,8°C)

Data type

integer

Alias
UMLS CUI 2011AB
C0015967
SNOMEDCT_2012_01_31
386661006
MedDRA 14.1
10005911
LOINC Version 232
MTHU013518
ICD-10-CM Version 2010
R50.9
ICD-9-CM Version 2011
780.60
CTCAE 1105E
E11102
Unintentional weight loss last 6 months
Description

Unbeabsichtigter Gewichtsverlust in den letzten 6 Monaten

Data type

integer

Alias
UMLS CUI 2011AB
C2363736
SNOMEDCT_2012_01_31
448765001
MedDRA 14.1
10068329
UMLS CUI 2011AB
C1517741
UMLS CUI 2011AB
C0205452
SNOMEDCT_2012_01_31
68244004
UMLS CUI 2011AB
C0439231
SNOMEDCT_2012_01_31
258706009
HL7 V3 2006_05
MO
What is your overall quality of life?
Description

Wie empfinden Sie insgesamt Ihre Lebensqualität?

Data type

integer

Alias
UMLS CUI 2011AB
C1561607
UMLS CUI 2011AB
C0518214
SNOMEDCT_2012_01_31
405152002
Additional questions for the patient:
Description

Additional questions for the patient:

Alias
UMLS CUI 2011AB
C1524062
LOINC Version 232
MTHU013802
UMLS CUI 2011AB
C1522634
UMLS CUI 2011AB
C0030705
SNOMEDCT_2012_01_31
116154003
1. Do you have additional complaints caused by your myeloproliferative disease that are not addressed in this questionnaire? (please enter your complaints here)
Description

zusätzliche Beschwerden

Data type

string

Alias
UMLS CUI 2011AB
C1524062
LOINC Version 232
MTHU013802
UMLS CUI 2011AB
C0277786
SNOMEDCT_2012_01_31
409586006
LOINC Version 232
MTHU001077
UMLS CUI 2011AB
C1314792
SNOMEDCT_2012_01_31
134198009
UMLS CUI 2011AB
C0027022
SNOMEDCT_2012_01_31
425333006
MedDRA 14.1
10028576
ICD-10-CM Version 2010
D47.1
UMLS CUI 2011AB
C1518422
UMLS CUI 2011AB
C1706462
UMLS CUI 2011AB
C0034394
2. The MPN-SAF questionnaire was easily to understand
Description

Verständlichkeit MPN-SAF Fragebogen

Data type

integer

Alias
UMLS CUI 2011AB
C0027022
SNOMEDCT_2012_01_31
425333006
MedDRA 14.1
10028576
ICD-10-CM Version 2010
D47.1
UMLS CUI 2011AB
C1457887
LOINC Version 232
MTHU021540
ICD-9-CM Version 2011
780-789.99
UMLS CUI 2011AB
C1516048
UMLS CUI 2011AB
C0034394
UMLS CUI 2011AB
C0332219
SNOMEDCT_2012_01_31
36203004
UMLS CUI 2011AB
C0162340
SNOMEDCT_2012_01_31
66216009
3. The MPN-SAF questionnaire has queried the most complaints caused by the disease
Description

Abdeckung der Beschwerden durch MPN-SAF Fragebogen

Data type

integer

Alias
UMLS CUI 2011AB
C0027022
SNOMEDCT_2012_01_31
425333006
MedDRA 14.1
10028576
ICD-10-CM Version 2010
D47.1
UMLS CUI 2011AB
C1457887
LOINC Version 232
MTHU021540
ICD-9-CM Version 2011
780-789.99
UMLS CUI 2011AB
C1516048
UMLS CUI 2011AB
C0034394
UMLS CUI 2011AB
C1522634
UMLS CUI 2011AB
C0205393
SNOMEDCT_2012_01_31
4757001
UMLS CUI 2011AB
C0277786
SNOMEDCT_2012_01_31
409586006
LOINC Version 232
MTHU001077
UMLS CUI 2011AB
C1314792
SNOMEDCT_2012_01_31
134198009
UMLS CUI 2011AB
C0012634
SNOMEDCT_2012_01_31
64572001
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Similar models

MPN-SAF (Patient)

1 forms
  1. StudyEvent: MPN
    1. MPN-SAF (Patient)
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Myeloproliferative Diseases Symptom Assessment Form - A validation study
C0027022 (UMLS CUI 2011AB)
425333006 (SNOMEDCT_2012_01_31)
10028576 (MedDRA 14.1)
D47.1 (ICD-10-CM Version 2010)
C1457887 (UMLS CUI 2011AB)
MTHU021540 (LOINC Version 232)
780-789.99 (ICD-9-CM Version 2011)
C1516048 (UMLS CUI 2011AB)
C0034394 (UMLS CUI 2011AB)
C0681836 (UMLS CUI 2011AB)
Anonyme Patienten-Identifizierungs-Nummer:
Item
Anonymous patient identification number:
integer
C2346787 (UMLS CUI 2011AB)
C0030705 (UMLS CUI 2011AB)
116154003 (SNOMEDCT_2012_01_31)
C1300638 (UMLS CUI 2011AB)
396278008 (SNOMEDCT_2012_01_31)
Diagnose
Item
Diagnosis:
integer
MF (PMF)
Item
MF (PMF)
string
C0026987 (UMLS CUI 2011AB)
52967002 (SNOMEDCT_2012_01_31)
10028537 (MedDRA 14.1)
D75.81 (ICD-10-CM Version 2010)
289.83 (ICD-9-CM Version 2011)
C0001815 (UMLS CUI 2011AB)
307651005 (SNOMEDCT_2012_01_31)
10028538 (MedDRA 14.1)
D75.81 (ICD-10-CM Version 2010)
238.76 (ICD-9-CM Version 2011)
MF(Post ET MF)
Item
MF(Post ET MF)
string
C0026987 (UMLS CUI 2011AB)
52967002 (SNOMEDCT_2012_01_31)
10028537 (MedDRA 14.1)
D75.81 (ICD-10-CM Version 2010)
289.83 (ICD-9-CM Version 2011)
C0231290 (UMLS CUI 2011AB)
237679004 (SNOMEDCT_2012_01_31)
C0040028 (UMLS CUI 2011AB)
109994006 (SNOMEDCT_2012_01_31)
10015493 (MedDRA 14.1)
D47.3 (ICD-10-CM Version 2010)
238.71 (ICD-9-CM Version 2011)
C0026987 (UMLS CUI 2011AB)
52967002 (SNOMEDCT_2012_01_31)
10028537 (MedDRA 14.1)
D75.81 (ICD-10-CM Version 2010)
289.83 (ICD-9-CM Version 2011)
MF(Post PV MF)
Item
MF(Post PV MF)
string
C0026987 (UMLS CUI 2011AB)
52967002 (SNOMEDCT_2012_01_31)
10028537 (MedDRA 14.1)
D75.81 (ICD-10-CM Version 2010)
289.83 (ICD-9-CM Version 2011)
C0231290 (UMLS CUI 2011AB)
237679004 (SNOMEDCT_2012_01_31)
C0032463 (UMLS CUI 2011AB)
109992005 (SNOMEDCT_2012_01_31)
10036057 (MedDRA 14.1)
D45 (ICD-10-CM Version 2010)
238.4 (ICD-9-CM Version 2011)
C0026987 (UMLS CUI 2011AB)
52967002 (SNOMEDCT_2012_01_31)
10028537 (MedDRA 14.1)
D75.81 (ICD-10-CM Version 2010)
289.83 (ICD-9-CM Version 2011)
Polycythaemia vera (PV)
Item
Polycythemia vera (PV)
string
C0032463 (UMLS CUI 2011AB)
109992005 (SNOMEDCT_2012_01_31)
10036057 (MedDRA 14.1)
D45 (ICD-10-CM Version 2010)
238.4 (ICD-9-CM Version 2011)
Essentielle Thrombozythämie (ET)
Item
Essential Thrombocythemia (ET)
string
C0040028 (UMLS CUI 2011AB)
109994006 (SNOMEDCT_2012_01_31)
10015493 (MedDRA 14.1)
D47.3 (ICD-10-CM Version 2010)
238.71 (ICD-9-CM Version 2011)
Item
Location:
integer
C0450429 (UMLS CUI 2011AB)
246267002 (SNOMEDCT_2012_01_31)
Standort
Code List
Location:
CL Item
Mayo Clinic Arizona (1)
CL Item
Guys and St. Thomas's UK (2)
CL Item
University hospital Freiburg (3)
CL Item
University hospital Ulm (4)
CL Item
University hospital Aachen (5)
Item Group
MPN symptoms last week
C0027022 (UMLS CUI 2011AB)
425333006 (SNOMEDCT_2012_01_31)
10028576 (MedDRA 14.1)
D47.1 (ICD-10-CM Version 2010)
C1457887 (UMLS CUI 2011AB)
MTHU021540 (LOINC Version 232)
780-789.99 (ICD-9-CM Version 2011)
C1516048 (UMLS CUI 2011AB)
Anleitung
Item
Instructions: Please fill out all questions, as best as able, reflecting how these symptoms affected you over the LAST WEEK unless directed otherwise. Complete forms until the STOP instruction toward the end of the packet.
integer
Item
Please rate your fatigue (weariness/tiredness) by circling the one number that best describes your fatigue right NOW
integer
C0015672 (UMLS CUI 2011AB)
267032009 (SNOMEDCT_2012_01_31)
10016256 (MedDRA 14.1)
MTHU013358 (LOINC Version 232)
R53.83 (ICD-10-CM Version 2010)
E11098 (CTCAE 1105E)
C1948052 (UMLS CUI 2011AB)
Müdigkeit in diesem Augenblick
Code List
Please rate your fatigue (weariness/tiredness) by circling the one number that best describes your fatigue right NOW
CL Item
no fatigue (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe fatigue (10)
Item
Please rate your fatigue (weariness/tiredness) by circling the one number that best describes your USUAL level of fatigue during past 24 hours
integer
CL381509 (UMLS CUI 2011AB)
C0449286 (UMLS CUI 2011AB)
246173007 (SNOMEDCT_2012_01_31)
C0015672 (UMLS CUI 2011AB)
267032009 (SNOMEDCT_2012_01_31)
10016256 (MedDRA 14.1)
MTHU013358 (LOINC Version 232)
R53.83 (ICD-10-CM Version 2010)
E11098 (CTCAE 1105E)
C0347984 (UMLS CUI 2011AB)
371881003 (SNOMEDCT_2012_01_31)
C1517741 (UMLS CUI 2011AB)
C0439584 (UMLS CUI 2011AB)
123027009 (SNOMEDCT_2012_01_31)
Übliche Müdigkeit während der letzten 24 Stunden
Code List
Please rate your fatigue (weariness/tiredness) by circling the one number that best describes your USUAL level of fatigue during past 24 hours
CL Item
no fatigue (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe fatigue (10)
Item
Please rate your fatigue (weariness/tiredness) by circling the one number that best describes your MAXIMUM level of fatigue during past 24 hours
integer
C1522166 (UMLS CUI 2011AB)
C0449286 (UMLS CUI 2011AB)
246173007 (SNOMEDCT_2012_01_31)
C0015672 (UMLS CUI 2011AB)
267032009 (SNOMEDCT_2012_01_31)
10016256 (MedDRA 14.1)
MTHU013358 (LOINC Version 232)
R53.83 (ICD-10-CM Version 2010)
E11098 (CTCAE 1105E)
C0347984 (UMLS CUI 2011AB)
371881003 (SNOMEDCT_2012_01_31)
C1517741 (UMLS CUI 2011AB)
C0439584 (UMLS CUI 2011AB)
123027009 (SNOMEDCT_2012_01_31)
Höchste Müdigkeit während der letzten 24 Stunden
Code List
Please rate your fatigue (weariness/tiredness) by circling the one number that best describes your MAXIMUM level of fatigue during past 24 hours
CL Item
no fatigue (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe fatigue (10)
Item Group
Fatigue within the last 24 hours
Anleitung2
Item
Circle the one number that describes how, during the past 24 hours, fatigue has interfered with your:
integer
Item
General activity
integer
C0205246 (UMLS CUI 2011AB)
60132005 (SNOMEDCT_2012_01_31)
C0441655 (UMLS CUI 2011AB)
257733005 (SNOMEDCT_2012_01_31)
MTHU002837 (LOINC Version 232)
E001-E030.9 (ICD-9-CM Version 2011)
Allgemeine Aktivität
Code List
General activity
CL Item
no limitation (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
maximal limitation (10)
Item
Mood
integer
C0026516 (UMLS CUI 2011AB)
85256008 (SNOMEDCT_2012_01_31)
MTHU031584 (LOINC Version 232)
Stimmung
Code List
Mood
CL Item
no limitation (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
maximal limitation (10)
Item
Walking ability
integer
C0559964 (UMLS CUI 2011AB)
282097004 (SNOMEDCT_2012_01_31)
Gehvermögen
Code List
Walking ability
CL Item
no limitation (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
maximal limitation (10)
Item
Normal work (includes work both outside the home and daily chores)
integer
C0205307 (UMLS CUI 2011AB)
17621005 (SNOMEDCT_2012_01_31)
N (HL7 V3 2006_05)
C0043227 (UMLS CUI 2011AB)
261041009 (SNOMEDCT_2012_01_31)
C1709359 (UMLS CUI 2011AB)
C0332173 (UMLS CUI 2011AB)
69620002 (SNOMEDCT_2012_01_31)
C0589414 (UMLS CUI 2011AB)
311840008 (SNOMEDCT_2012_01_31)
Normale Arbeit
Code List
Normal work (includes work both outside the home and daily chores)
CL Item
no limitation (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
maximal limitation (10)
Item
Relations with other people
integer
C0699792 (UMLS CUI 2011AB)
263498003 (SNOMEDCT_2012_01_31)
C0205394 (UMLS CUI 2011AB)
74964007 (SNOMEDCT_2012_01_31)
CL428058 (UMLS CUI 2011AB)
Beziehungen zu anderen Menschen
Code List
Relations with other people
CL Item
no limitation (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
maximal limitation (10)
Item
Enjoyment of life
integer
C0424131 (UMLS CUI 2011AB)
247794008 (SNOMEDCT_2012_01_31)
Lebensfreude
Code List
Enjoyment of life
CL Item
no limitation (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
maximal limitation (10)
Item Group
Symptoms in the past week
Item
Filling up quickly when you eat (Early satiety)
integer
C0239233 (UMLS CUI 2011AB)
442076002 (SNOMEDCT_2012_01_31)
10059186 (MedDRA 14.1)
R68.81 (ICD-10-CM Version 2010)
780.94 (ICD-9-CM Version 2011)
Frühes Sättigungsgefühl
Code List
Filling up quickly when you eat (Early satiety)
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Abdominal Pain
integer
C0000737 (UMLS CUI 2011AB)
21522001 (SNOMEDCT_2012_01_31)
10000081 (MedDRA 14.1)
MTHU013636 (LOINC Version 232)
R10.9 (ICD-10-CM Version 2010)
789.0 (ICD-9-CM Version 2011)
E10460 (CTCAE 1105E)
Bauchschmerzen
Code List
Abdominal Pain
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Abdominal discomfort
integer
C0232487 (UMLS CUI 2011AB)
43364001 (SNOMEDCT_2012_01_31)
10000059 (MedDRA 14.1)
Bauchbeschwerden
Code List
Abdominal discomfort
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Inactivity
integer
C0205254 (UMLS CUI 2011AB)
73425007 (SNOMEDCT_2012_01_31)
10039900 (MedDRA 14.1)
Trägheit
Code List
Inactivity
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Headaches
integer
C0018681 (UMLS CUI 2011AB)
25064002 (SNOMEDCT_2012_01_31)
10019211 (MedDRA 14.1)
MTHU020860 (LOINC Version 232)
R51 (ICD-10-CM Version 2010)
784.0 (ICD-9-CM Version 2011)
E12678 (CTCAE 1105E)
Kopfschmerzen
Code List
Headaches
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Problems with concentration - Compared to prior to my MPD)
integer
C0858201 (UMLS CUI 2011AB)
10010248 (MedDRA 14.1)
C1707455 (UMLS CUI 2011AB)
C0449438 (UMLS CUI 2011AB)
263490005 (SNOMEDCT_2012_01_31)
MTHU015827 (LOINC Version 232)
C0332152 (UMLS CUI 2011AB)
288556008 (SNOMEDCT_2012_01_31)
C0027022 (UMLS CUI 2011AB)
425333006 (SNOMEDCT_2012_01_31)
10028576 (MedDRA 14.1)
D47.1 (ICD-10-CM Version 2010)
C0011900 (UMLS CUI 2011AB)
439401001 (SNOMEDCT_2012_01_31)
MTHU008876 (LOINC Version 232)
Konzentrationsschwierigkeiten im Vergleich zu früher
Code List
Problems with concentration - Compared to prior to my MPD)
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Dizziness / Vertigo / Lightheadedness
integer
C0012833 (UMLS CUI 2011AB)
404640003 (SNOMEDCT_2012_01_31)
10013573 (MedDRA 14.1)
E12631 (CTCAE 1105E)
C0042571 (UMLS CUI 2011AB)
399153001 (SNOMEDCT_2012_01_31)
10047340 (MedDRA 14.1)
R42 (ICD-10-CM Version 2010)
780.4 (ICD-9-CM Version 2011)
E10291 (CTCAE 1105E)
C0220870 (UMLS CUI 2011AB)
386705008 (SNOMEDCT_2012_01_31)
10024492 (MedDRA 14.1)
R42 (ICD-10-CM Version 2010)
Schwindel, Gleichgewichtsstörungen, Benommenheit
Code List
Dizziness / Vertigo / Lightheadedness
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Numbness / Tingling (in my hands and feet)
integer
C0028643 (UMLS CUI 2011AB)
44077006 (SNOMEDCT_2012_01_31)
10029829 (MedDRA 14.1)
782.0 (ICD-9-CM Version 2011)
C0542238 (UMLS CUI 2011AB)
10043877 (MedDRA 14.1)
Taubheitsgefühl/Kribbeln an Händen und Füßen
Code List
Numbness / Tingling (in my hands and feet)
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Difficulty sleeping
integer
C0235162 (UMLS CUI 2011AB)
301345002 (SNOMEDCT_2012_01_31)
10012804 (MedDRA 14.1)
C0332273 (UMLS CUI 2011AB)
112235009 (SNOMEDCT_2012_01_31)
C0240526 (UMLS CUI 2011AB)
2546009 (SNOMEDCT_2012_01_31)
C0393760 (UMLS CUI 2011AB)
59050008 (SNOMEDCT_2012_01_31)
10022035 (MedDRA 14.1)
MTHU039887 (LOINC Version 232)
Schlafprobleme, Ein-/Durchschlafschwierigkeiten
Code List
Difficulty sleeping
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Depression or sad mood
integer
C0011570 (UMLS CUI 2011AB)
10012378 (MedDRA 14.1)
MTHU013514 (LOINC Version 232)
F32.9 (ICD-10-CM Version 2010)
E12909 (CTCAE 1105E)
C0344315 (UMLS CUI 2011AB)
366979004 (SNOMEDCT_2012_01_31)
10012374 (MedDRA 14.1)
MTHU031608 (LOINC Version 232)
Depression oder trübe Stimmung
Code List
Depression or sad mood
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Problems with sexual desire or function
integer
C1409677 (UMLS CUI 2011AB)
Schwierigkeiten im Sexualbereich: Mangelndes Interesse oder Funktionsstörungen
Code List
Problems with sexual desire or function
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Cough
integer
C0010200 (UMLS CUI 2011AB)
49727002 (SNOMEDCT_2012_01_31)
10011224 (MedDRA 14.1)
R05 (ICD-10-CM Version 2010)
786.2 (ICD-9-CM Version 2011)
E13364 (CTCAE 1105E)
Husten
Code List
Cough
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Night sweats
integer
C0028081 (UMLS CUI 2011AB)
42984000 (SNOMEDCT_2012_01_31)
10029410 (MedDRA 14.1)
MTHU013525 (LOINC Version 232)
R61 (ICD-10-CM Version 2010)
Nächtliches Schwitzen
Code List
Night sweats
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Itching (pruritus)
integer
C0033774 (UMLS CUI 2011AB)
418363000 (SNOMEDCT_2012_01_31)
10037087 (MedDRA 14.1)
L29 (ICD-10-CM Version 2010)
698.9 (ICD-9-CM Version 2011)
E13686 (CTCAE 1105E)
Juckreiz (Pruritus)
Code List
Itching (pruritus)
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Bone pain (diffuse not joint pain or arthritis)
integer
C0151825 (UMLS CUI 2011AB)
12584003 (SNOMEDCT_2012_01_31)
10006002 (MedDRA 14.1)
MTHU020858 (LOINC Version 232)
E12392 (CTCAE 1105E)
C0205219 (UMLS CUI 2011AB)
19648000 (SNOMEDCT_2012_01_31)
C1518422 (UMLS CUI 2011AB)
C0003862 (UMLS CUI 2011AB)
57676002 (SNOMEDCT_2012_01_31)
10003239 (MedDRA 14.1)
MTHU020863 (LOINC Version 232)
M25.5 (ICD-10-CM Version 2010)
719.4 (ICD-9-CM Version 2011)
E12374 (CTCAE 1105E)
C0003864 (UMLS CUI 2011AB)
3723001 (SNOMEDCT_2012_01_31)
10003246 (MedDRA 14.1)
MTHU020793 (LOINC Version 232)
M19.90 (ICD-10-CM Version 2010)
716.9 (ICD-9-CM Version 2011)
E12378 (CTCAE 1105E)
Knochenschmerzen
Code List
Bone pain (diffuse not joint pain or arthritis)
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe symptoms (10)
Item
Fever (> 100 F)
integer
C0015967 (UMLS CUI 2011AB)
386661006 (SNOMEDCT_2012_01_31)
10005911 (MedDRA 14.1)
MTHU013518 (LOINC Version 232)
R50.9 (ICD-10-CM Version 2010)
780.60 (ICD-9-CM Version 2011)
E11102 (CTCAE 1105E)
Fieber (>37,8°C)
Code List
Fever (> 100 F)
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
daily (10)
Item
Unintentional weight loss last 6 months
integer
C2363736 (UMLS CUI 2011AB)
448765001 (SNOMEDCT_2012_01_31)
10068329 (MedDRA 14.1)
C1517741 (UMLS CUI 2011AB)
C0205452 (UMLS CUI 2011AB)
68244004 (SNOMEDCT_2012_01_31)
C0439231 (UMLS CUI 2011AB)
258706009 (SNOMEDCT_2012_01_31)
MO (HL7 V3 2006_05)
Unbeabsichtigter Gewichtsverlust in den letzten 6 Monaten
Code List
Unintentional weight loss last 6 months
CL Item
not present (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
most severe weight loss (10)
Item
What is your overall quality of life?
integer
C1561607 (UMLS CUI 2011AB)
C0518214 (UMLS CUI 2011AB)
405152002 (SNOMEDCT_2012_01_31)
Wie empfinden Sie insgesamt Ihre Lebensqualität?
Code List
What is your overall quality of life?
CL Item
very good (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
very bad (10)
Item Group
Additional questions for the patient:
C1524062 (UMLS CUI 2011AB)
MTHU013802 (LOINC Version 232)
C1522634 (UMLS CUI 2011AB)
C0030705 (UMLS CUI 2011AB)
116154003 (SNOMEDCT_2012_01_31)
zusätzliche Beschwerden
Item
1. Do you have additional complaints caused by your myeloproliferative disease that are not addressed in this questionnaire? (please enter your complaints here)
string
C1524062 (UMLS CUI 2011AB)
MTHU013802 (LOINC Version 232)
C0277786 (UMLS CUI 2011AB)
409586006 (SNOMEDCT_2012_01_31)
MTHU001077 (LOINC Version 232)
C1314792 (UMLS CUI 2011AB)
134198009 (SNOMEDCT_2012_01_31)
C0027022 (UMLS CUI 2011AB)
425333006 (SNOMEDCT_2012_01_31)
10028576 (MedDRA 14.1)
D47.1 (ICD-10-CM Version 2010)
C1518422 (UMLS CUI 2011AB)
C1706462 (UMLS CUI 2011AB)
C0034394 (UMLS CUI 2011AB)
Item
2. The MPN-SAF questionnaire was easily to understand
integer
C0027022 (UMLS CUI 2011AB)
425333006 (SNOMEDCT_2012_01_31)
10028576 (MedDRA 14.1)
D47.1 (ICD-10-CM Version 2010)
C1457887 (UMLS CUI 2011AB)
MTHU021540 (LOINC Version 232)
780-789.99 (ICD-9-CM Version 2011)
C1516048 (UMLS CUI 2011AB)
C0034394 (UMLS CUI 2011AB)
C0332219 (UMLS CUI 2011AB)
36203004 (SNOMEDCT_2012_01_31)
C0162340 (UMLS CUI 2011AB)
66216009 (SNOMEDCT_2012_01_31)
Verständlichkeit MPN-SAF Fragebogen
Code List
2. The MPN-SAF questionnaire was easily to understand
CL Item
very easy (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
very difficult (10)
Item
3. The MPN-SAF questionnaire has queried the most complaints caused by the disease
integer
C0027022 (UMLS CUI 2011AB)
425333006 (SNOMEDCT_2012_01_31)
10028576 (MedDRA 14.1)
D47.1 (ICD-10-CM Version 2010)
C1457887 (UMLS CUI 2011AB)
MTHU021540 (LOINC Version 232)
780-789.99 (ICD-9-CM Version 2011)
C1516048 (UMLS CUI 2011AB)
C0034394 (UMLS CUI 2011AB)
C1522634 (UMLS CUI 2011AB)
C0205393 (UMLS CUI 2011AB)
4757001 (SNOMEDCT_2012_01_31)
C0277786 (UMLS CUI 2011AB)
409586006 (SNOMEDCT_2012_01_31)
MTHU001077 (LOINC Version 232)
C1314792 (UMLS CUI 2011AB)
134198009 (SNOMEDCT_2012_01_31)
C0012634 (UMLS CUI 2011AB)
64572001 (SNOMEDCT_2012_01_31)
Abdeckung der Beschwerden durch MPN-SAF Fragebogen
Code List
3. The MPN-SAF questionnaire has queried the most complaints caused by the disease
CL Item
very good (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
very bad (10)
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