ID

38488

Beschreibung

The Minimum Information About BIobank data Sharing (MIABIS) aims to standardize data elements used to describe biobanks, research on samples and associated data. The work on the MIABIS community standards follows the new MIABIS governance model introduced in 2016 by BBMRI-ERIC. MIABIS Core 2.0 represents the minimum information required to initiate collaborations between biobanks and to enable the exchange of biological samples and data. The aim is to facilitate the reuse of bio-resources and associated data by harmonizing biobanking and biomedical research. The attributes are defined in accordance with epidemiological literature and terminology. For MIABIS Core 2.0 purpose, Sample Collection represents a set of samples with at least one common characteristic (Merino-Martinez et al. Biopreserv Biobank. 2016; 14(4):298-306). More information can be found at https://github.com/MIABIS/miabis/wiki

Link

https://github.com/MIABIS/miabis/wiki

Stichworte

Versionen (1)
  1. 22.10.19 22.10.19 -
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BBMRI ERIC

Hochgeladen am

22. Oktober 2019

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Lizenz

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Minimum Information About BIobank data Sharing (MIABIS) Core 2.0

Englisch

Data describing Sample Collection

1 Formulare  
Data describing Sample Collection
Beschreibung

Data describing Sample Collection

Alias
UMLS CUI-1
C0200345
UMLS CUI-2
C1511726
UMLS CUI-3
C0678257
ID
Beschreibung

Sample Collection ID that also links the sample collection to the hosting biobank or study

Datentyp

text

Alias
UMLS CUI [1,1]
C0600091
UMLS CUI [1,2]
C0200345
MIABIS-attribute code
MIABIS-2.0-01
Acronym
Beschreibung

Short name in use for the sample collection

Datentyp

text

Alias
UMLS CUI [1,1]
C1956259
UMLS CUI [1,2]
C0200345
MIABIS-attribute code
MIABIS-2.0-02
Name
Beschreibung

The name of the sample collection in english

Datentyp

text

Alias
UMLS CUI [1,1]
C0200345
UMLS CUI [1,2]
C0027365
MIABIS-attribute code
MIABIS-2.0-03
Description
Beschreibung

A description of the sample collection. Recommendation max. 2000 char.

Datentyp

text

Alias
UMLS CUI [1,1]
C0678257
UMLS CUI [1,2]
C0200345
MIABIS-attribute code
MIABIS-2.0-08
Sex of the individuals in the sample collection
Beschreibung

Sex of the individuals in the sample collection

Alias
UMLS CUI-1
C0079399
UMLS CUI-2
C2347027
Sex: Male
Beschreibung

Sex: Male

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0079399
UMLS CUI [1,2]
C0086582
UMLS CUI [1,3]
C2347027
MIABIS-attribute code
MIABIS-2.0-09
Sex: Female
Beschreibung

Sex: Female

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0079399
UMLS CUI [1,2]
C0086287
UMLS CUI [1,3]
C2347027
MIABIS-attribute code
MIABIS-2.0-09
Sex: Unknown
Beschreibung

A proper value is applicable but not known

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0079399
UMLS CUI [1,2]
C0439673
UMLS CUI [1,3]
C2347027
MIABIS-attribute code
MIABIS-2.0-09
Sex: Undifferentiated
Beschreibung

Undifferentiated, the gender could not be uniquely identified such as hermaphrodite

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0079399
UMLS CUI [1,2]
C1524083
UMLS CUI [1,3]
C2347027
MIABIS-attribute code
MIABIS-2.0-09
Age of sample donors
Beschreibung

Age of sample donors

Alias
UMLS CUI-1
C0001779
UMLS CUI-2
C0013018
UMLS CUI-3
C2347026
Age Low
Beschreibung

Age of youngest sample donor at time of sample donation

Datentyp

integer

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0332239
UMLS CUI [1,3]
C0013018
UMLS CUI [1,4]
C2347026
MIABIS-attribute code
MIABIS-2.0-10
Age High
Beschreibung

Age of oldest sample donor at time of sample donation

Datentyp

integer

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0205250
UMLS CUI [1,3]
C0013018
UMLS CUI [1,4]
C2347026
MIABIS-attribute code
MIABIS-2.0-11
Age Unit
Beschreibung

Unit defining Age Low and Age High. Can be one of the following values: years, months, weeks, days

Datentyp

text

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0439148
MIABIS-attribute code
MIABIS-2.0-12
Data categories
Beschreibung

Data categories

Alias
UMLS CUI-1
C1511726
UMLS CUI-2
C0683312
Data categories: Biological samples
Beschreibung

Y/N if biological samples are collected from the participants in the sample collection/study.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C2347026
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Survey data
Beschreibung

Y/N if information from surveys are collected from the participants in the sample collection/study.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0038951
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Imaging data
Beschreibung

Y/N if imaging data are collected from the participants in the sample collection/study.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0025086
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Medical records
Beschreibung

Y/N if medical records are collected from the participants in the sample collection/study

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0025102
MIABIS-attribute code
MIABIS-2.0-13
Data categories: National registries
Beschreibung

Y/N if register data is associated to the participants in the sample collection/study.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0034975
UMLS CUI [1,4]
C0681788
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Genealogical records
Beschreibung

Y/N if genealogical records are associated with the participants in the sample collection/study.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0017298
UMLS CUI [1,4]
C0034869
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Physiological/Biochemical measurements
Beschreibung

Y/N if Measurements/tests performed during a clinical/home visit and from samples taken from donor.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0031842
UMLS CUI [1,4]
C0242485
UMLS CUI [2,1]
C1511726
UMLS CUI [2,2]
C0683312
UMLS CUI [2,3]
C0205474
UMLS CUI [2,4]
C0242485
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Other
Beschreibung

Data categories: Other

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0205394
MIABIS-attribute code
MIABIS-2.0-13
Material type
Beschreibung

Material type

Alias
UMLS CUI-1
C0456204
UMLS CUI-2
C2347027
Material type: Blood
Beschreibung

Blood that has not been separated into its various components; blood that has not been modified except for the addition of an anticoagulant.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0005767
MIABIS-attribute code
MIABIS-2.0-14
Material type: DNA
Beschreibung

A long linear double-stranded polymer formed from nucleotides attached to a deoxyribose backbone and found in the nucleus of a cell; associated with the transmission of genetic information.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0012854
MIABIS-attribute code
MIABIS-2.0-14
Material type: Faeces
Beschreibung

The material discharged from the bowel during defecation. It consists of undigested food, intestinal mucus, epithelial cells, and bacteria.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0015733
MIABIS-attribute code
MIABIS-2.0-14
Material type: Immortalized Cell Lines
Beschreibung

Cells of a single type (human, animal, or plant) that have been adapted to grow continuously in the laboratory and are used in research.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0178708
MIABIS-attribute code
MIABIS-2.0-14
Material type: Isolated pathogen
Beschreibung

An isolated biological agent causing disease; a disease producer e.g. virus, bacterium, prion, other microorganism etc.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0450254
MIABIS-attribute code
MIABIS-2.0-14
Material type: Other
Beschreibung

Any other type of material taken from a biological entity, e.g. amniotic fluid, cerebrospinal fluid (CSV), mitochondrial RNA.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0205394
MIABIS-attribute code
MIABIS-2.0-14
Material type: Plasma
Beschreibung

Plasma is the fluid (acellular) portion of the circulating blood, as distinguished from the serum that is the fluid portion of the blood obtained by removal of the fibrin clot and blood cells after coagulation.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0032105
MIABIS-attribute code
MIABIS-2.0-14
Material type: RNA
Beschreibung

One of two types of nucleic acid made by cells. RNA contains information that has been copied from DNA (the other type of nucleic acid). Cells make several different forms of RNA, and each form has a specific job in the cell. Many forms of RNA have functions related to making proteins. RNA is also the genetic material of some viruses instead of DNA. RNA can be made in the laboratory and used in research studies. Also called ribonucleic acid.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0035668
MIABIS-attribute code
MIABIS-2.0-14
Material type: Saliva
Beschreibung

A clear liquid secreted into the mouth by the salivary glands and mucous glands of the mouth; moistens the mouth and starts the digestion of starches.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0036087
MIABIS-attribute code
MIABIS-2.0-14
Material type: Serum
Beschreibung

The clear portion of the blood that remains after the removal of the blood cells and the clotting proteins.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0229671
MIABIS-attribute code
MIABIS-2.0-14
Material type: Tissue (Frozen)
Beschreibung

An anatomical structure consisting of similarly specialized cells and intercellular matrix, aggregated according to genetically determined spatial relationships, performing a specific function.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C4039816
MIABIS-attribute code
MIABIS-2.0-14
Material type: Tissue (FFPE)
Beschreibung

Tissue, formalin fixated and paraffin preserved or equivalent.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0040300
UMLS CUI [1,4]
C4684951
MIABIS-attribute code
MIABIS-2.0-14
Material type: Urine
Beschreibung

The fluid that is excreted by the kidneys. It is stored in the bladder and discharged through the urethra.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0042036
MIABIS-attribute code
MIABIS-2.0-14
Storage temperature
Beschreibung

Storage temperature

Alias
UMLS CUI-1
C1698986
UMLS CUI-2
C0039476
UMLS CUI-3
C0370003
Storage temperature: Room temperature
Beschreibung

The long term storage temperature at which the samples are stored after preparation. Can be several values. Source SPREC 2.0

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1698986
UMLS CUI [1,2]
C0039476
UMLS CUI [1,3]
C0370003
UMLS CUI [1,4]
C2348236
MIABIS-attribute code
MIABIS-2.0-15
Storage temperature: between 2 °C and 10 °C
Beschreibung

The long term storage temperature at which the samples are stored after preparation. Can be several values. Source SPREC 2.0

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1698986
UMLS CUI [1,2]
C0039476
UMLS CUI [1,3]
C0370003
UMLS CUI [1,4]
C0439237
UMLS CUI [1,5]
C0441889
MIABIS-attribute code
MIABIS-2.0-15
Storage temperature: between -18 °C and -35 °C
Beschreibung

The long term storage temperature at which the samples are stored after preparation. Can be several values. Source SPREC 2.0

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1698986
UMLS CUI [1,2]
C0039476
UMLS CUI [1,3]
C0370003
UMLS CUI [1,4]
C0439237
UMLS CUI [1,5]
C0441889
MIABIS-attribute code
MIABIS-2.0-15
Storage temperature: between -60 °C and -85 °C
Beschreibung

The long term storage temperature at which the samples are stored after preparation. Can be several values. Source SPREC 2.0

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1698986
UMLS CUI [1,2]
C0039476
UMLS CUI [1,3]
C0370003
UMLS CUI [1,4]
C0439237
UMLS CUI [1,5]
C0441889
MIABIS-attribute code
MIABIS-2.0-15
Storage temperature: liquid nitrogen, -150 °C to -196 °C
Beschreibung

The long term storage temperature at which the samples are stored after preparation. Can be several values.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1698986
UMLS CUI [1,2]
C0039476
UMLS CUI [1,3]
C0370003
UMLS CUI [1,4]
C0260055
MIABIS-attribute code
MIABIS-2.0-15
Storage temperature: Other
Beschreibung

The long term storage temperature at which the samples are stored after preparation. Can be several values. Any other temperature or long time storage information, please specify below.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1698986
UMLS CUI [1,2]
C0039476
UMLS CUI [1,3]
C0370003
UMLS CUI [1,4]
C0205394
MIABIS-attribute code
MIABIS-2.0-15
Storage temperature: Other, specify
Beschreibung

The long term storage temperature at which the samples are stored after preparation. Can be several values. If any other temperature or long time storage information, please specify.

Datentyp

text

Alias
UMLS CUI [1,1]
C1698986
UMLS CUI [1,2]
C0039476
UMLS CUI [1,3]
C0370003
UMLS CUI [1,4]
C3845569
MIABIS-attribute code
MIABIS-2.0-15
Collection type
Beschreibung

Collection type

Alias
UMLS CUI-1
C0445613
UMLS CUI-2
C2347027
Collection type: Case-control
Beschreibung

The type of the sample collection. A case-control study design compares two groups of subjects: those with the disease or condition under study (cases) and a very similar group of subjects who do not have the disease or condition (controls). Source EMBL (EFO). http://www.ebi.ac.uk/efo/EFO_0001427

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0007328
MIABIS-attribute code
MIABIS-2.0-16
Collection type: Cohort
Beschreibung

The type of the sample collection. A form of longitudinal study for the analysis of risk factors following a group of people who do not have a disease, and uses correlations to determine the absolute risk of subject contraction. Source Wikipedia (rewritten).

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0009247
MIABIS-attribute code
MIABIS-2.0-16
Collection type: Cross-sectional
Beschreibung

The type of the sample collection. A type of observational study that involves data collection from a population, or a representative subset, at one specific point in time. Source Wikipedia.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0010362
MIABIS-attribute code
MIABIS-2.0-16
Collection type: Longitudinal
Beschreibung

The type of the sample collection. Research studies involving repeated observations of the same entity over time. In the biobank context, longitudinal studies sample a group of people in a given time period, and study them at intervals by the acquisition and analyses of data and/or samples over time. Source P3G. http://www.p3gobservatory.org/lexicon/list.htm#l

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0023981
MIABIS-attribute code
MIABIS-2.0-16
Collection type: Twin-study
Beschreibung

The type of the sample collection. Twin studies measure the contribution of genetics (as opposed to environment) to a given trait or condition of interest.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C1096782
MIABIS-attribute code
MIABIS-2.0-16
Collection type: Quality control
Beschreibung

The type of the sample collection. A quality control testing study design type is where some aspect of the experiment is quality controlled for the purposes of quality assurance. Source EMBL (EFO). http://www.ebi.ac.uk/efo/EFO_0001774

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0034378
MIABIS-attribute code
MIABIS-2.0-16
Collection type: Population-based
Beschreibung

The type of the sample collection. Study done at the population level or among the population groups, generally to find the cause, incidence or spread of the disease or to see the response to the treatment, nutrition or environment. Source Wikipedia (rewritten).

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C1709599
MIABIS-attribute code
MIABIS-2.0-16
Collection type: Disease specific
Beschreibung

The type of the sample collection. A study or biobank for which material and information is collected from subjects that have already developed a particular disease. EMBL (EFO). http://www.ebi.ac.uk/efo/EFO_0001430

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C4521204
UMLS CUI [2,1]
C0445613
UMLS CUI [2,2]
C0206512
UMLS CUI [2,3]
C0012634
UMLS CUI [2,4]
C0205369
MIABIS-attribute code
MIABIS-2.0-16
Collection type: Birth cohort
Beschreibung

The type of the sample collection. A corhort study for which the subjects are followed from the time of birth usually including information about gestation and follow up.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0009247
UMLS CUI [1,4]
C1706962
MIABIS-attribute code
MIABIS-2.0-16
Collection type: Other
Beschreibung

The type of the sample collection. Other.

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0445613
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0205394
MIABIS-attribute code
MIABIS-2.0-16
Disease of main interest in the sample collection
Beschreibung

Disease of main interest in the sample collection

Alias
UMLS CUI-1
C2347027
UMLS CUI-2
C3699388
Disease Ontology
Beschreibung

The disease of main interest in the sample collection, if any. Name of ontology used for disease. Can be several values e.g. ICD, SNOMED.

Datentyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C3699388
UMLS CUI [1,3]
C1518584
MIABIS-attribute code
MIABIS-2.0-17A
Disease Ontology Version
Beschreibung

The disease of main interest in the sample collection, if any. Version of selected ontology for disease e.g. ICD-9, ICD-10, SNOMED-CT

Datentyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C3699388
UMLS CUI [1,3]
C1518584
UMLS CUI [1,4]
C0333052
MIABIS-attribute code
MIABIS-2.0-17B
Disease Ontology Code
Beschreibung

The disease of main interest in the sample collection, if any. Disease code from the selected Disease Ontology Version e.g. C61

Datentyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C3699388
UMLS CUI [1,3]
C1518584
UMLS CUI [1,4]
C0805701
MIABIS-attribute code
MIABIS-2.0-17C
Disease Ontology Description
Beschreibung

The disease of main interest in the sample collection, if any. Description from the selected Disease Ontology Code e.g : Malignant neoplasm of prostate

Datentyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C3699388
UMLS CUI [1,3]
C0678257
MIABIS-attribute code
MIABIS-2.0-17D
Disease Free Text
Beschreibung

The disease of main interest in the sample collection, if any. Explanation about disease or symptom in case of unknown disease or insufficient information

Datentyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C3699388
UMLS CUI [1,3]
C2066349
MIABIS-attribute code
MIABIS-2.0-17E
Contact information
Beschreibung

Contact information

Alias
UMLS CUI-1
C1880174
UMLS CUI-2
C0200345
Contact information: First name
Beschreibung

Contact information for the contact person of the biobank. Textual string of letters denoting the first name of the Contact.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1443235
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-A
Contact information: Last name
Beschreibung

Contact information for the contact person of the biobank. Textual string of letters denoting the last name of the Contact.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1301584
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-B
Contact information: Phone
Beschreibung

Contact information for the contact person of the biobank. Phone to the Contact including international call prefix.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1515258
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-C
Contact information: Email
Beschreibung

Contact information for the contact person of the biobank. Email address of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1705961
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-D
Contact information: Address
Beschreibung

Contact information for the contact person of the biobank. Street name and street number or PO Box of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1442065
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-E
Contact information: ZIP
Beschreibung

Contact information for the contact person of the biobank. ZIP of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C0421454
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-F
Contact information: City
Beschreibung

Contact information for the contact person of the biobank. City of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1555315
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-G
Contact information: Country
Beschreibung

Contact information for the contact person of the biobank. Country of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C0454664
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-H
Contact information: Juristic person
Beschreibung

Textual string of letters denoting the juristic person e.g. a university, concern, county council etc.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0200345
UMLS CUI [1,3]
C1545735
MIABIS-attribute code
MIABIS-2.0-23A
Contact information: Department
Beschreibung

Department (e.g. division), or corresponding affiliation of the Contact person

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0200345
UMLS CUI [1,3]
C1704729
MIABIS-attribute code
MIABIS-2.0-23B
Contact information: ORCID
Beschreibung

The persistent digital identifier that distinguishes researchers. As defined by ORCID

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0200345
UMLS CUI [1,3]
C0600091
UMLS CUI [1,4]
C1883674
UMLS CUI [1,5]
C0035173
MIABIS-attribute code
MIABIS-2.0-23C
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Ähnliche Modelle

Data describing Sample Collection

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Data describing Sample Collection
C0200345 (UMLS CUI-1)
C1511726 (UMLS CUI-2)
C0678257 (UMLS CUI-3)
ID
Item
ID
text
C0600091 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
MIABIS-2.0-01 (MIABIS-attribute code)
Acronym
Item
Acronym
text
C1956259 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
MIABIS-2.0-02 (MIABIS-attribute code)
Name
Item
Name
text
C0200345 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
MIABIS-2.0-03 (MIABIS-attribute code)
Description
Item
Description
text
C0678257 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
MIABIS-2.0-08 (MIABIS-attribute code)
Item Group
Sex of the individuals in the sample collection
C0079399 (UMLS CUI-1)
C2347027 (UMLS CUI-2)
Sex: Male
Item
Sex: Male
boolean
C0079399 (UMLS CUI [1,1])
C0086582 (UMLS CUI [1,2])
C2347027 (UMLS CUI [1,3])
MIABIS-2.0-09 (MIABIS-attribute code)
Sex: Female
Item
Sex: Female
boolean
C0079399 (UMLS CUI [1,1])
C0086287 (UMLS CUI [1,2])
C2347027 (UMLS CUI [1,3])
MIABIS-2.0-09 (MIABIS-attribute code)
Sex: Unknown
Item
Sex: Unknown
boolean
C0079399 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C2347027 (UMLS CUI [1,3])
MIABIS-2.0-09 (MIABIS-attribute code)
Sex: Undifferentiated
Item
Sex: Undifferentiated
boolean
C0079399 (UMLS CUI [1,1])
C1524083 (UMLS CUI [1,2])
C2347027 (UMLS CUI [1,3])
MIABIS-2.0-09 (MIABIS-attribute code)
Item Group
Age of sample donors
C0001779 (UMLS CUI-1)
C0013018 (UMLS CUI-2)
C2347026 (UMLS CUI-3)
Age Low
Item
Age Low
integer
C0001779 (UMLS CUI [1,1])
C0332239 (UMLS CUI [1,2])
C0013018 (UMLS CUI [1,3])
C2347026 (UMLS CUI [1,4])
MIABIS-2.0-10 (MIABIS-attribute code)
Age High
Item
Age High
integer
C0001779 (UMLS CUI [1,1])
C0205250 (UMLS CUI [1,2])
C0013018 (UMLS CUI [1,3])
C2347026 (UMLS CUI [1,4])
MIABIS-2.0-11 (MIABIS-attribute code)
Item
Age Unit
text
C0001779 (UMLS CUI [1,1])
C0439148 (UMLS CUI [1,2])
MIABIS-2.0-12 (MIABIS-attribute code)
Age Unit
Code List
Age Unit
CL Item
years (a)
CL Item
months (b)
CL Item
weeks (c)
CL Item
days (d)
Item Group
Data categories
C1511726 (UMLS CUI-1)
C0683312 (UMLS CUI-2)
Data categories: Biological samples
Item
Data categories: Biological samples
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C2347026 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Survey data
Item
Data categories: Survey data
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0038951 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Imaging data
Item
Data categories: Imaging data
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0025086 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Medical records
Item
Data categories: Medical records
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0025102 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: National registries
Item
Data categories: National registries
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0034975 (UMLS CUI [1,3])
C0681788 (UMLS CUI [1,4])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Genealogical records
Item
Data categories: Genealogical records
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0017298 (UMLS CUI [1,3])
C0034869 (UMLS CUI [1,4])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Physiological/Biochemical measurements
Item
Data categories: Physiological/Biochemical measurements
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0031842 (UMLS CUI [1,3])
C0242485 (UMLS CUI [1,4])
C1511726 (UMLS CUI [2,1])
C0683312 (UMLS CUI [2,2])
C0205474 (UMLS CUI [2,3])
C0242485 (UMLS CUI [2,4])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Other
Item
Data categories: Other
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Item Group
Material type
C0456204 (UMLS CUI-1)
C2347027 (UMLS CUI-2)
Material type: Blood
Item
Material type: Blood
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0005767 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: DNA
Item
Material type: DNA
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0012854 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Faeces
Item
Material type: Faeces
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0015733 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Immortailzed Cell Lines
Item
Material type: Immortalized Cell Lines
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0178708 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Isolated pathogen
Item
Material type: Isolated pathogen
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0450254 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Other
Item
Material type: Other
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Plasma
Item
Material type: Plasma
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0032105 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: RNA
Item
Material type: RNA
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0035668 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Saliva
Item
Material type: Saliva
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0036087 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Serum
Item
Material type: Serum
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0229671 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Tissue (Frozen)
Item
Material type: Tissue (Frozen)
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C4039816 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Tissue (FFPE)
Item
Material type: Tissue (FFPE)
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0040300 (UMLS CUI [1,3])
C4684951 (UMLS CUI [1,4])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Urine
Item
Material type: Urine
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0042036 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Item Group
Storage temperature
C1698986 (UMLS CUI-1)
C0039476 (UMLS CUI-2)
C0370003 (UMLS CUI-3)
Storage temperature: RT
Item
Storage temperature: Room temperature
boolean
C1698986 (UMLS CUI [1,1])
C0039476 (UMLS CUI [1,2])
C0370003 (UMLS CUI [1,3])
C2348236 (UMLS CUI [1,4])
MIABIS-2.0-15 (MIABIS-attribute code)
Storage temperature: 2 °C to 10°C
Item
Storage temperature: between 2 °C and 10 °C
boolean
C1698986 (UMLS CUI [1,1])
C0039476 (UMLS CUI [1,2])
C0370003 (UMLS CUI [1,3])
C0439237 (UMLS CUI [1,4])
C0441889 (UMLS CUI [1,5])
MIABIS-2.0-15 (MIABIS-attribute code)
Storage temperature: -18 °C to -35 °C
Item
Storage temperature: between -18 °C and -35 °C
boolean
C1698986 (UMLS CUI [1,1])
C0039476 (UMLS CUI [1,2])
C0370003 (UMLS CUI [1,3])
C0439237 (UMLS CUI [1,4])
C0441889 (UMLS CUI [1,5])
MIABIS-2.0-15 (MIABIS-attribute code)
Storage temperature: -60 °C to -85 °C
Item
Storage temperature: between -60 °C and -85 °C
boolean
C1698986 (UMLS CUI [1,1])
C0039476 (UMLS CUI [1,2])
C0370003 (UMLS CUI [1,3])
C0439237 (UMLS CUI [1,4])
C0441889 (UMLS CUI [1,5])
MIABIS-2.0-15 (MIABIS-attribute code)
Storage temperature: LN
Item
Storage temperature: liquid nitrogen, -150 °C to -196 °C
boolean
C1698986 (UMLS CUI [1,1])
C0039476 (UMLS CUI [1,2])
C0370003 (UMLS CUI [1,3])
C0260055 (UMLS CUI [1,4])
MIABIS-2.0-15 (MIABIS-attribute code)
Storage temperature: Other
Item
Storage temperature: Other
boolean
C1698986 (UMLS CUI [1,1])
C0039476 (UMLS CUI [1,2])
C0370003 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
MIABIS-2.0-15 (MIABIS-attribute code)
Storage temperature: Other, specify
Item
Storage temperature: Other, specify
text
C1698986 (UMLS CUI [1,1])
C0039476 (UMLS CUI [1,2])
C0370003 (UMLS CUI [1,3])
C3845569 (UMLS CUI [1,4])
MIABIS-2.0-15 (MIABIS-attribute code)
Item Group
Collection type
C0445613 (UMLS CUI-1)
C2347027 (UMLS CUI-2)
Collection type: Case-control
Item
Collection type: Case-control
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0007328 (UMLS CUI [1,3])
MIABIS-2.0-16 (MIABIS-attribute code)
Collection type: Cohort
Item
Collection type: Cohort
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0009247 (UMLS CUI [1,3])
MIABIS-2.0-16 (MIABIS-attribute code)
Collection type: Cross-sectional
Item
Collection type: Cross-sectional
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0010362 (UMLS CUI [1,3])
MIABIS-2.0-16 (MIABIS-attribute code)
Collection type: Longitudinal
Item
Collection type: Longitudinal
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0023981 (UMLS CUI [1,3])
MIABIS-2.0-16 (MIABIS-attribute code)
Collection type: Twin-study
Item
Collection type: Twin-study
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C1096782 (UMLS CUI [1,3])
MIABIS-2.0-16 (MIABIS-attribute code)
Collection type: Quality control
Item
Collection type: Quality control
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0034378 (UMLS CUI [1,3])
MIABIS-2.0-16 (MIABIS-attribute code)
Collection type: Population-based
Item
Collection type: Population-based
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C1709599 (UMLS CUI [1,3])
MIABIS-2.0-16 (MIABIS-attribute code)
Collection type: Disease specific
Item
Collection type: Disease specific
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C4521204 (UMLS CUI [1,3])
C0445613 (UMLS CUI [2,1])
C0206512 (UMLS CUI [2,2])
C0012634 (UMLS CUI [2,3])
C0205369 (UMLS CUI [2,4])
MIABIS-2.0-16 (MIABIS-attribute code)
Collection type: Birth cohort
Item
Collection type: Birth cohort
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0009247 (UMLS CUI [1,3])
C1706962 (UMLS CUI [1,4])
MIABIS-2.0-16 (MIABIS-attribute code)
Collection type: Other
Item
Collection type: Other
boolean
C0445613 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
MIABIS-2.0-16 (MIABIS-attribute code)
Item Group
Disease of main interest in the sample collection
C2347027 (UMLS CUI-1)
C3699388 (UMLS CUI-2)
Disease Ontology
Item
Disease Ontology
text
C2347027 (UMLS CUI [1,1])
C3699388 (UMLS CUI [1,2])
C1518584 (UMLS CUI [1,3])
MIABIS-2.0-17A (MIABIS-attribute code)
Disease Ontology Version
Item
Disease Ontology Version
text
C2347027 (UMLS CUI [1,1])
C3699388 (UMLS CUI [1,2])
C1518584 (UMLS CUI [1,3])
C0333052 (UMLS CUI [1,4])
MIABIS-2.0-17B (MIABIS-attribute code)
Disease Ontology Code
Item
Disease Ontology Code
text
C2347027 (UMLS CUI [1,1])
C3699388 (UMLS CUI [1,2])
C1518584 (UMLS CUI [1,3])
C0805701 (UMLS CUI [1,4])
MIABIS-2.0-17C (MIABIS-attribute code)
Disease Ontology Description
Item
Disease Ontology Description
text
C2347027 (UMLS CUI [1,1])
C3699388 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])
MIABIS-2.0-17D (MIABIS-attribute code)
Disease Free Text
Item
Disease Free Text
text
C2347027 (UMLS CUI [1,1])
C3699388 (UMLS CUI [1,2])
C2066349 (UMLS CUI [1,3])
MIABIS-2.0-17E (MIABIS-attribute code)
Item Group
Contact information
C1880174 (UMLS CUI-1)
C0200345 (UMLS CUI-2)
Contact information: First name
Item
Contact information: First name
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1443235 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-A (MIABIS attribute code)
Contact information: Last name
Item
Contact information: Last name
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1301584 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-B (MIABIS attribute code)
Contact information: Phone
Item
Contact information: Phone
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1515258 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-C (MIABIS attribute code)
Contact information: Email
Item
Contact information: Email
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1705961 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-D (MIABIS attribute code)
Contact information: Address
Item
Contact information: Address
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1442065 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-E (MIABIS attribute code)
Contact information: ZIP
Item
Contact information: ZIP
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C0421454 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-F (MIABIS attribute code)
Contact information: City
Item
Contact information: City
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1555315 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-G (MIABIS attribute code)
Contact information: Country
Item
Contact information: Country
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-H (MIABIS attribute code)
Contact information: Juristic person
Item
Contact information: Juristic person
text
C1880174 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
C1545735 (UMLS CUI [1,3])
MIABIS-2.0-23A (MIABIS-attribute code)
Contact information: Department
Item
Contact information: Department
text
C1880174 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
C1704729 (UMLS CUI [1,3])
MIABIS-2.0-23B (MIABIS-attribute code)
Contact information: ORCID
Item
Contact information: ORCID
text
C1880174 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
C0600091 (UMLS CUI [1,3])
C1883674 (UMLS CUI [1,4])
C0035173 (UMLS CUI [1,5])
MIABIS-2.0-23C (MIABIS-attribute code)
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