ID

38487

Beschreibung

The Minimum Information About BIobank data Sharing (MIABIS) aims to standardize data elements used to describe biobanks, research on samples and associated data. The work on the MIABIS community standards follows the new MIABIS governance model introduced in 2016 by BBMRI-ERIC. MIABIS Core 2.0 represents the minimum information required to initiate collaborations between biobanks and to enable the exchange of biological samples and data. The aim is to facilitate the reuse of bio-resources and associated data by harmonizing biobanking and biomedical research. The attributes are defined in accordance with epidemiological literature and terminology. For MIABIS Core 2.0 purpose, Biobank is defined as an organization or an organizational unit that stores samples and data related to the samples. In MIABIS Core 2.0 biobanks do not contain samples directly, but they are hosting sample collections. On the level of biobanks, only attributes related to the organizational aspect of the biobanks are represented. (Merino-Martinez et al. Biopreserv Biobank. 2016; 14(4):298-306). More information can be found at https://github.com/MIABIS/miabis/wiki

Link

https://github.com/MIABIS/miabis/wiki

Stichworte

Versionen (1)
  1. 22/10/19 22/10/19 -
Rechteinhaber

BBMRI ERIC

Hochgeladen am

22 ottobre 2019

DOI

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Lizenz

Creative Commons BY-NC 3.0
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Minimum Information About BIobank data Sharing (MIABIS) Core 2.0

Englisch

Data describing Biobank

1 Formulare  
Data describing Biobank
Beschreibung

Data describing Biobank

Alias
UMLS CUI-1
C0206512
UMLS CUI-2
C1511726
UMLS CUI-3
C0678257
ID
Beschreibung

Textual string of letters starting with the country code (according to standard ISO1366 alpha2) followed by the underscore “_” and post-fixed by a biobank ID or name specified by its juristic person (nationally specific)

Datentyp

text

Alias
UMLS CUI [1,1]
C0600091
UMLS CUI [1,2]
C0206512
MIABIS attribute code
MIABIS-2.0-01
Acronym
Beschreibung

Textual string of short name in use for the biobank. If applicable

Datentyp

text

Alias
UMLS CUI [1,1]
C1956259
UMLS CUI [1,2]
C0206512
MIABIS attribute code
MIABIS-2.0-02
Name
Beschreibung

Textual string of letters denoting the name of the biobank in English

Datentyp

text

Alias
UMLS CUI [1,1]
C0027365
UMLS CUI [1,2]
C0206512
MIABIS attribute code
MIABIS-2.0-03
URL
Beschreibung

Textual string of letters with the complete http-address for the biobank

Datentyp

text

Alias
UMLS CUI [1,1]
C3541384
UMLS CUI [1,2]
C0206512
MIABIS attribute code
MIABIS-2.0-04
Juristic Person
Beschreibung

Textual string of letters denoting the juristic person e.g. a university, concern, county council etc. for the biobank

Datentyp

text

Alias
UMLS CUI [1,1]
C1545735
UMLS CUI [1,2]
C0206512
MIABIS attribute code
MIABIS-2.0-05
Country
Beschreibung

ISO-standard (3166 alpha2), two letter code for the country of the biobank

Datentyp

text

Alias
UMLS CUI [1,1]
C0206512
UMLS CUI [1,2]
C0454664
UMLS CUI [1,3]
C1546826
MIABIS attribute code
MIABIS-2.0-06
Description
Beschreibung

Textual string of letters with a description about the biobank in English.

Datentyp

text

Alias
UMLS CUI [1,1]
C0206512
UMLS CUI [1,2]
C0678257
MIABIS attribute code
MIABIS-2.0-08
Contact information for the contact person of the biobank
Beschreibung

Contact information for the contact person of the biobank

Alias
UMLS CUI-1
C1880174
UMLS CUI-2
C0337611
UMLS CUI-3
C0206512
Contact information: First name
Beschreibung

Contact information for the contact person of the biobank. Textual string of letters denoting the first name of the Contact.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1443235
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-A
Contact information: Last name
Beschreibung

Contact information for the contact person of the biobank. Textual string of letters denoting the last name of the Contact.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1301584
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-B
Contact information: Phone
Beschreibung

Contact information for the contact person of the biobank. Phone to the Contact including international call prefix.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1515258
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-C
Contact information: Email
Beschreibung

Contact information for the contact person of the biobank. Email address of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1705961
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-D
Contact information: Address
Beschreibung

Contact information for the contact person of the biobank. Street name and street number or PO Box of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1442065
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-E
Contact information: ZIP
Beschreibung

Contact information for the contact person of the biobank. ZIP of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C0421454
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-F
Contact information: City
Beschreibung

Contact information for the contact person of the biobank. City of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1555315
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-G
Contact information: Country
Beschreibung

Contact information for the contact person of the biobank. Country of the Contact person.

Datentyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C0454664
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-H
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Ähnliche Modelle

Data describing Biobank

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Data describing Biobank
C0206512 (UMLS CUI-1)
C1511726 (UMLS CUI-2)
C0678257 (UMLS CUI-3)
ID
Item
ID
text
C0600091 (UMLS CUI [1,1])
C0206512 (UMLS CUI [1,2])
MIABIS-2.0-01 (MIABIS attribute code)
Acronym
Item
Acronym
text
C1956259 (UMLS CUI [1,1])
C0206512 (UMLS CUI [1,2])
MIABIS-2.0-02 (MIABIS attribute code)
Name
Item
Name
text
C0027365 (UMLS CUI [1,1])
C0206512 (UMLS CUI [1,2])
MIABIS-2.0-03 (MIABIS attribute code)
URL
Item
URL
text
C3541384 (UMLS CUI [1,1])
C0206512 (UMLS CUI [1,2])
MIABIS-2.0-04 (MIABIS attribute code)
Juristic Person
Item
Juristic Person
text
C1545735 (UMLS CUI [1,1])
C0206512 (UMLS CUI [1,2])
MIABIS-2.0-05 (MIABIS attribute code)
Country
Item
Country
text
C0206512 (UMLS CUI [1,1])
C0454664 (UMLS CUI [1,2])
C1546826 (UMLS CUI [1,3])
MIABIS-2.0-06 (MIABIS attribute code)
Description
Item
Description
text
C0206512 (UMLS CUI [1,1])
C0678257 (UMLS CUI [1,2])
MIABIS-2.0-08 (MIABIS attribute code)
Item Group
Contact information for the contact person of the biobank
C1880174 (UMLS CUI-1)
C0337611 (UMLS CUI-2)
C0206512 (UMLS CUI-3)
Contact information: First name
Item
Contact information: First name
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1443235 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-A (MIABIS attribute code)
Contact information: Last name
Item
Contact information: Last name
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1301584 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-B (MIABIS attribute code)
Contact information: Phone
Item
Contact information: Phone
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1515258 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-C (MIABIS attribute code)
Contact information: Email
Item
Contact information: Email
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1705961 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-D (MIABIS attribute code)
Contact information: Address
Item
Contact information: Address
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1442065 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-E (MIABIS attribute code)
Contact information: ZIP
Item
Contact information: ZIP
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C0421454 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-F (MIABIS attribute code)
Contact information: City
Item
Contact information: City
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1555315 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-G (MIABIS attribute code)
Contact information: Country
Item
Contact information: Country
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-H (MIABIS attribute code)
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