ID

38486

Beskrivning

The Minimum Information About BIobank data Sharing (MIABIS) aims to standardize data elements used to describe biobanks, research on samples and associated data. The work on the MIABIS community standards follows the new MIABIS governance model introduced in 2016 by BBMRI-ERIC. MIABIS Core 2.0 represents the minimum information required to initiate collaborations between biobanks and to enable the exchange of biological samples and data. The aim is to facilitate the reuse of bio-resources and associated data by harmonizing biobanking and biomedical research. The attributes are defined in accordance with epidemiological literature and terminology. For MIABIS Core 2.0 purpose, Study represents a set of samples brought together in the context of a research study. A study can combine samples from several sample collections and from several biobanks. One sample can be included in multiple studies. (Merino-Martinez et al. Biopreserv Biobank. 2016; 14(4):298-306). More information can be found at https://github.com/MIABIS/miabis/wiki

Länk

https://github.com/MIABIS/miabis/wiki

Nyckelord

Versioner (1)
  1. 2019-10-22 2019-10-22 -
Rättsinnehavare

BBMRI ERIC

Uppladdad den

22 oktober 2019

DOI

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Licens

Creative Commons BY-NC 3.0
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Minimum Information About BIobank data Sharing (MIABIS) Core 2.0

Engelsk

Data describing study

1 Formulär  
  1. StudyEvent: ODM
    1. Data describing study
Data describing Study
Beskrivning

Data describing Study

Alias
UMLS CUI-1
C1511726
UMLS CUI-2
C0678257
UMLS CUI-3
C2603343
ID
Beskrivning

The unique ID or acronym of the study

Datatyp

text

Alias
UMLS CUI [1]
C2826693
MIABIS-attribute code
MIABIS-2.0-01
Name
Beskrivning

The name of the study in English

Datatyp

text

Alias
UMLS CUI [1]
C2348560
MIABIS-attribute code
MIABIS-2.0-02
Description
Beskrivning

A description of the study aim. Recommendation max. 2000 char.

Datatyp

text

Alias
UMLS CUI [1,1]
C0678257
UMLS CUI [1,2]
C2603343
MIABIS-attribute code
MIABIS-2.0-08
Principal Investigator
Beskrivning

The name of the person responsible for the study e.g. the principal investigator

Datatyp

text

Alias
UMLS CUI [1,1]
C1521895
UMLS CUI [1,2]
C2603343
MIABIS-attribute code
MIABIS-2.0-18
Total number of participants
Beskrivning

Total number of individuals recruited to the study

Datatyp

integer

Alias
UMLS CUI [1,1]
C4554048
UMLS CUI [1,2]
C4288115
MIABIS-attribute code
MIABIS-2.0-20
Total number of sample donors
Beskrivning

Total number of individuals with biological samples in the study

Datatyp

integer

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0013018
UMLS CUI [1,3]
C4288115
MIABIS-attribute code
MIABIS-2.0-21
Contact information
Beskrivning

Contact information

Alias
UMLS CUI-1
C1880174
UMLS CUI-2
C0200345
Contact information: First name
Beskrivning

Contact information for the contact person of the biobank. Textual string of letters denoting the first name of the Contact.

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1443235
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-A
Contact information: Last name
Beskrivning

Contact information for the contact person of the biobank. Textual string of letters denoting the last name of the Contact.

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1301584
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-B
Contact information: Phone
Beskrivning

Contact information for the contact person of the biobank. Phone to the Contact including international call prefix.

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1515258
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-C
Contact information: Email
Beskrivning

Contact information for the contact person of the biobank. Email address of the Contact person.

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1705961
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-D
Contact information: Address
Beskrivning

Contact information for the contact person of the biobank. Street name and street number or PO Box of the Contact person.

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1442065
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-E
Contact information: ZIP
Beskrivning

Contact information for the contact person of the biobank. ZIP of the Contact person.

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C0421454
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-F
Contact information: City
Beskrivning

Contact information for the contact person of the biobank. City of the Contact person.

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C1555315
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-G
Contact information: Country
Beskrivning

Contact information for the contact person of the biobank. Country of the Contact person.

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0337611
UMLS CUI [1,3]
C0454664
UMLS CUI [1,4]
C0206512
MIABIS attribute code
MIABIS-2.0-07-H
Contact information: Juristic person
Beskrivning

Textual string of letters denoting the juristic person e.g. a university, concern, county council etc.

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0200345
UMLS CUI [1,3]
C1545735
MIABIS-attribute code
MIABIS-2.0-23A
Contact information: Department
Beskrivning

Department (e.g. division), or corresponding affiliation of the Contact person

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0200345
UMLS CUI [1,3]
C1704729
MIABIS-attribute code
MIABIS-2.0-23B
Contact information: ORCID
Beskrivning

The persistent digital identifier that distinguishes researchers. As defined by ORCID

Datatyp

text

Alias
UMLS CUI [1,1]
C1880174
UMLS CUI [1,2]
C0200345
UMLS CUI [1,3]
C0600091
UMLS CUI [1,4]
C1883674
UMLS CUI [1,5]
C0035173
MIABIS-attribute code
MIABIS-2.0-23C
Study design
Beskrivning

Study design

Alias
UMLS CUI-1
C4687732
UMLS CUI-2
C2347027
Study design: Case-control
Beskrivning

The design of the study. Can be one or several values. A case-control study design compares two groups of subjects: those with the disease or condition under study (cases) and a very similar group of subjects who do not have the disease or condition (controls). Source EMBL (EFO). http://www.ebi.ac.uk/efo/EFO_0001427

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0007328
MIABIS-attribute code
MIABIS-2.0-19
Study design: Cohort
Beskrivning

The design of the study. Can be one or several values. A form of longitudinal study for the analysis of risk factors following a group of people who do not have a disease, and uses correlations to determine the absolute risk of subject contraction. Source Wikipedia (rewritten).

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0009247
MIABIS-attribute code
MIABIS-2.0-19
Study design: Cross-sectional
Beskrivning

The design of the study. Can be one or several values. A type of observational study that involves data collection from a population, or a representative subset, at one specific point in time. Source Wikipedia.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0010362
MIABIS-attribute code
MIABIS-2.0-19
Study design: Longitudinal
Beskrivning

The design of the study. Can be one or several values. Research studies involving repeated observations of the same entity over time. In the biobank context, longitudinal studies sample a group of people in a given time period, and study them at intervals by the acquisition and analyses of data and/or samples over time. Source P3G. http://www.p3gobservatory.org/lexicon/list.htm#l

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0023981
MIABIS-attribute code
MIABIS-2.0-19
Study design: Twin-study
Beskrivning

The design of the study. Can be one or several values. Twin studies measure the contribution of genetics (as opposed to environment) to a given trait or condition of interest.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C1096782
MIABIS-attribute code
MIABIS-2.0-19
Study design: Quality control
Beskrivning

The design of the study. Can be one or several values. A quality control testing study design type is where some aspect of the experiment is quality controlled for the purposes of quality assurance. Source EMBL (EFO). http://www.ebi.ac.uk/efo/EFO_0001774

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0034378
MIABIS-attribute code
MIABIS-2.0-19
Study design: Population-based
Beskrivning

The design of the study. Can be one or several values. Study done at the population level or among the population groups, generally to find the cause, incidence or spread of the disease or to see the response to the treatment, nutrition or environment. Source Wikipedia (rewritten).

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C1709599
MIABIS-attribute code
MIABIS-2.0-19
Study design: Disease specific
Beskrivning

The design of the study. Can be one or several values. A study or biobank for which material and information is collected from subjects that have already developed a particular disease. EMBL (EFO). http://www.ebi.ac.uk/efo/EFO_0001430

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C4521204
UMLS CUI [2,1]
C4687732
UMLS CUI [2,2]
C0206512
UMLS CUI [2,3]
C0012634
UMLS CUI [2,4]
C0205369
MIABIS-attribute code
MIABIS-2.0-19
Study design: Birth cohort
Beskrivning

The design of the study. Can be one or several values. A corhort study for which the subjects are followed from the time of birth usually including information about gestation and follow up.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0009247
UMLS CUI [1,4]
C1706962
MIABIS-attribute code
MIABIS-2.0-19
Study design: Other
Beskrivning

The design of the study. Can be one or several values. Other.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C4687732
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0205394
MIABIS-attribute code
MIABIS-2.0-19
Sex of the study participants
Beskrivning

Sex of the study participants

Alias
UMLS CUI-1
C0079399
UMLS CUI-2
C4554048
Sex: Male
Beskrivning

Sex: Male

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0079399
UMLS CUI [1,2]
C0086582
UMLS CUI [1,3]
C4554048
MIABIS-attribute code
MIABIS-2.0-09
Sex: Female
Beskrivning

Sex: Female

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0079399
UMLS CUI [1,2]
C0086287
UMLS CUI [1,3]
C4554048
MIABIS-attribute code
MIABIS-2.0-09
Sex: Unknown
Beskrivning

A proper value is applicable but not known

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0079399
UMLS CUI [1,2]
C0439673
UMLS CUI [1,3]
C4554048
MIABIS-attribute code
MIABIS-2.0-09
Sex: Undifferentiated
Beskrivning

Undifferentiated, the gender could not be uniquely identified such as hermaphrodite

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0079399
UMLS CUI [1,2]
C1524083
UMLS CUI [1,3]
C2347027
MIABIS-attribute code
MIABIS-2.0-09
Age of study participants
Beskrivning

Age of study participants

Alias
UMLS CUI-1
C0001779
UMLS CUI-2
C4554048
UMLS CUI-3
C2347026
Age Low
Beskrivning

Age of youngest study participant at time of inclusion

Datatyp

integer

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0332239
UMLS CUI [1,3]
C4554048
UMLS CUI [1,4]
C1512693
MIABIS-attribute code
MIABIS-2.0-10
Age High
Beskrivning

Age of oldest study participant at time of inclusion.

Datatyp

integer

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0205250
UMLS CUI [1,3]
C4554048
UMLS CUI [1,4]
C1512693
MIABIS-attribute code
MIABIS-2.0-11
Age Unit
Beskrivning

Unit defining Age Low and Age High. Can be one of the following values: years, months, weeks, days

Datatyp

text

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0439148
MIABIS-attribute code
MIABIS-2.0-12
Data categories
Beskrivning

Data categories

Alias
UMLS CUI-1
C1511726
UMLS CUI-2
C0683312
Data categories: Biological samples
Beskrivning

Y/N if biological samples are collected from the participants in the sample collection/study.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C2347026
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Survey data
Beskrivning

Y/N if information from surveys are collected from the participants in the sample collection/study.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0038951
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Imaging data
Beskrivning

Y/N if imaging data are collected from the participants in the sample collection/study.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0025086
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Medical records
Beskrivning

Y/N if medical records are collected from the participants in the sample collection/study

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0025102
MIABIS-attribute code
MIABIS-2.0-13
Data categories: National registries
Beskrivning

Y/N if register data is associated to the participants in the sample collection/study.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0034975
UMLS CUI [1,4]
C0681788
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Genealogical records
Beskrivning

Y/N if genealogical records are associated with the participants in the sample collection/study.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0017298
UMLS CUI [1,4]
C0034869
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Physiological/Biochemical measurements
Beskrivning

Y/N if Measurements/tests performed during a clinical/home visit and from samples taken from donor.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0031842
UMLS CUI [1,4]
C0242485
UMLS CUI [2,1]
C1511726
UMLS CUI [2,2]
C0683312
UMLS CUI [2,3]
C0205474
UMLS CUI [2,4]
C0242485
MIABIS-attribute code
MIABIS-2.0-13
Data categories: Other
Beskrivning

Data categories: Other

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1511726
UMLS CUI [1,2]
C0683312
UMLS CUI [1,3]
C0205394
MIABIS-attribute code
MIABIS-2.0-13
Material type
Beskrivning

Material type

Alias
UMLS CUI-1
C0456204
UMLS CUI-2
C2347027
Material type: Blood
Beskrivning

Blood that has not been separated into its various components; blood that has not been modified except for the addition of an anticoagulant.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0005767
MIABIS-attribute code
MIABIS-2.0-14
Material type: DNA
Beskrivning

A long linear double-stranded polymer formed from nucleotides attached to a deoxyribose backbone and found in the nucleus of a cell; associated with the transmission of genetic information.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0012854
MIABIS-attribute code
MIABIS-2.0-14
Material type: Faeces
Beskrivning

The material discharged from the bowel during defecation. It consists of undigested food, intestinal mucus, epithelial cells, and bacteria.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0015733
MIABIS-attribute code
MIABIS-2.0-14
Material type: Immortalized Cell Lines
Beskrivning

Cells of a single type (human, animal, or plant) that have been adapted to grow continuously in the laboratory and are used in research.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0178708
MIABIS-attribute code
MIABIS-2.0-14
Material type: Isolated pathogen
Beskrivning

An isolated biological agent causing disease; a disease producer e.g. virus, bacterium, prion, other microorganism etc.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0450254
MIABIS-attribute code
MIABIS-2.0-14
Material type: Other
Beskrivning

Any other type of material taken from a biological entity, e.g. amniotic fluid, cerebrospinal fluid (CSV), mitochondrial RNA.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0205394
MIABIS-attribute code
MIABIS-2.0-14
Material type: Plasma
Beskrivning

Plasma is the fluid (acellular) portion of the circulating blood, as distinguished from the serum that is the fluid portion of the blood obtained by removal of the fibrin clot and blood cells after coagulation.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0032105
MIABIS-attribute code
MIABIS-2.0-14
Material type: RNA
Beskrivning

One of two types of nucleic acid made by cells. RNA contains information that has been copied from DNA (the other type of nucleic acid). Cells make several different forms of RNA, and each form has a specific job in the cell. Many forms of RNA have functions related to making proteins. RNA is also the genetic material of some viruses instead of DNA. RNA can be made in the laboratory and used in research studies. Also called ribonucleic acid.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0035668
MIABIS-attribute code
MIABIS-2.0-14
Material type: Saliva
Beskrivning

A clear liquid secreted into the mouth by the salivary glands and mucous glands of the mouth; moistens the mouth and starts the digestion of starches.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0036087
MIABIS-attribute code
MIABIS-2.0-14
Material type: Serum
Beskrivning

The clear portion of the blood that remains after the removal of the blood cells and the clotting proteins.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0229671
MIABIS-attribute code
MIABIS-2.0-14
Material type: Tissue (Frozen)
Beskrivning

An anatomical structure consisting of similarly specialized cells and intercellular matrix, aggregated according to genetically determined spatial relationships, performing a specific function.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C4039816
MIABIS-attribute code
MIABIS-2.0-14
Material type: Tissue (FFPE)
Beskrivning

Tissue, formalin fixated and paraffin preserved or equivalent.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0040300
UMLS CUI [1,4]
C4684951
MIABIS-attribute code
MIABIS-2.0-14
Material type: Urine
Beskrivning

The fluid that is excreted by the kidneys. It is stored in the bladder and discharged through the urethra.

Datatyp

boolean

Alias
UMLS CUI [1,1]
C0456204
UMLS CUI [1,2]
C2347027
UMLS CUI [1,3]
C0042036
MIABIS-attribute code
MIABIS-2.0-14
Inclusion criteria
Beskrivning

Inclusion criteria

Alias
UMLS CUI-1
C1512693
UMLS CUI-2
C0243161
Inclusion criteria: Health status
Beskrivning

Inclusion criteria: Health status

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0018759
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Hospital patient
Beskrivning

Inclusion criteria: Hospital patient

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0701159
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Use of medication
Beskrivning

Inclusion criteria: Use of medication

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0240320
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Gravidity
Beskrivning

Inclusion criteria: Gravidity

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0600457
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Age group
Beskrivning

Inclusion criteria: Age group

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0001779
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Familial status
Beskrivning

Inclusion criteria: Familial status

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0015602
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Sex
Beskrivning

Inclusion criteria: Sex

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0079399
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Country of residence
Beskrivning

Inclusion criteria: Country of residence

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C1562954
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Ethnic origin
Beskrivning

Inclusion criteria: Ethnic origin

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0015031
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Population representative sampling
Beskrivning

Inclusion criteria: Population representative sampling

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C1257890
UMLS CUI [1,4]
C1882932
UMLS CUI [1,5]
C0370003
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Lifestyle/Exposure
Beskrivning

Inclusion criteria: Lifestyle/Exposure

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0023676
UMLS CUI [2,1]
C1512693
UMLS CUI [2,2]
C0243161
UMLS CUI [2,3]
C0332157
MIABIS-attribute code
MIABIS-2.0-22
Inclusion criteria: Other
Beskrivning

Inclusion criteria: Other

Datatyp

boolean

Alias
UMLS CUI [1,1]
C1512693
UMLS CUI [1,2]
C0243161
UMLS CUI [1,3]
C0205394
MIABIS-attribute code
MIABIS-2.0-22
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Similar models

Data describing study

1 Formulär
  1. StudyEvent: ODM
    1. Data describing study
Name
Typ
Description | Question | Decode (Coded Value)
Datatyp
Alias
Item Group
Data describing Study
C1511726 (UMLS CUI-1)
C0678257 (UMLS CUI-2)
C2603343 (UMLS CUI-3)
ID
Item
ID
text
C2826693 (UMLS CUI [1])
MIABIS-2.0-01 (MIABIS-attribute code)
Name
Item
Name
text
C2348560 (UMLS CUI [1])
MIABIS-2.0-02 (MIABIS-attribute code)
Description
Item
Description
text
C0678257 (UMLS CUI [1,1])
C2603343 (UMLS CUI [1,2])
MIABIS-2.0-08 (MIABIS-attribute code)
Principal Investigator
Item
Principal Investigator
text
C1521895 (UMLS CUI [1,1])
C2603343 (UMLS CUI [1,2])
MIABIS-2.0-18 (MIABIS-attribute code)
Total number of participants
Item
Total number of participants
integer
C4554048 (UMLS CUI [1,1])
C4288115 (UMLS CUI [1,2])
MIABIS-2.0-20 (MIABIS-attribute code)
Total number of sample donors
Item
Total number of sample donors
integer
C2347026 (UMLS CUI [1,1])
C0013018 (UMLS CUI [1,2])
C4288115 (UMLS CUI [1,3])
MIABIS-2.0-21 (MIABIS-attribute code)
Item Group
Contact information
C1880174 (UMLS CUI-1)
C0200345 (UMLS CUI-2)
Contact information: First name
Item
Contact information: First name
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1443235 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-A (MIABIS attribute code)
Contact information: Last name
Item
Contact information: Last name
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1301584 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-B (MIABIS attribute code)
Contact information: Phone
Item
Contact information: Phone
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1515258 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-C (MIABIS attribute code)
Contact information: Email
Item
Contact information: Email
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1705961 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-D (MIABIS attribute code)
Contact information: Address
Item
Contact information: Address
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1442065 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-E (MIABIS attribute code)
Contact information: ZIP
Item
Contact information: ZIP
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C0421454 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-F (MIABIS attribute code)
Contact information: City
Item
Contact information: City
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C1555315 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-G (MIABIS attribute code)
Contact information: Country
Item
Contact information: Country
text
C1880174 (UMLS CUI [1,1])
C0337611 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
C0206512 (UMLS CUI [1,4])
MIABIS-2.0-07-H (MIABIS attribute code)
Contact information: Juristic person
Item
Contact information: Juristic person
text
C1880174 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
C1545735 (UMLS CUI [1,3])
MIABIS-2.0-23A (MIABIS-attribute code)
Contact information: Department
Item
Contact information: Department
text
C1880174 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
C1704729 (UMLS CUI [1,3])
MIABIS-2.0-23B (MIABIS-attribute code)
Contact information: ORCID
Item
Contact information: ORCID
text
C1880174 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
C0600091 (UMLS CUI [1,3])
C1883674 (UMLS CUI [1,4])
C0035173 (UMLS CUI [1,5])
MIABIS-2.0-23C (MIABIS-attribute code)
Item Group
Study design
C4687732 (UMLS CUI-1)
C2347027 (UMLS CUI-2)
Study design: Case-control
Item
Study design: Case-control
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0007328 (UMLS CUI [1,3])
MIABIS-2.0-19 (MIABIS-attribute code)
Study design: Cohort
Item
Study design: Cohort
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0009247 (UMLS CUI [1,3])
MIABIS-2.0-19 (MIABIS-attribute code)
Study design: Cross-sectional
Item
Study design: Cross-sectional
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0010362 (UMLS CUI [1,3])
MIABIS-2.0-19 (MIABIS-attribute code)
Study design: Longitudinal
Item
Study design: Longitudinal
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0023981 (UMLS CUI [1,3])
MIABIS-2.0-19 (MIABIS-attribute code)
Study design: Twin-study
Item
Study design: Twin-study
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C1096782 (UMLS CUI [1,3])
MIABIS-2.0-19 (MIABIS-attribute code)
Study design: Quality control
Item
Study design: Quality control
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0034378 (UMLS CUI [1,3])
MIABIS-2.0-19 (MIABIS-attribute code)
Study design: Population-based
Item
Study design: Population-based
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C1709599 (UMLS CUI [1,3])
MIABIS-2.0-19 (MIABIS-attribute code)
Study design: Disease specific
Item
Study design: Disease specific
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C4521204 (UMLS CUI [1,3])
C4687732 (UMLS CUI [2,1])
C0206512 (UMLS CUI [2,2])
C0012634 (UMLS CUI [2,3])
C0205369 (UMLS CUI [2,4])
MIABIS-2.0-19 (MIABIS-attribute code)
Study design: Birth cohort
Item
Study design: Birth cohort
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0009247 (UMLS CUI [1,3])
C1706962 (UMLS CUI [1,4])
MIABIS-2.0-19 (MIABIS-attribute code)
Study design: Other
Item
Study design: Other
boolean
C4687732 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
MIABIS-2.0-19 (MIABIS-attribute code)
Item Group
Sex of the study participants
C0079399 (UMLS CUI-1)
C4554048 (UMLS CUI-2)
Sex: Male
Item
Sex: Male
boolean
C0079399 (UMLS CUI [1,1])
C0086582 (UMLS CUI [1,2])
C4554048 (UMLS CUI [1,3])
MIABIS-2.0-09 (MIABIS-attribute code)
Sex: Female
Item
Sex: Female
boolean
C0079399 (UMLS CUI [1,1])
C0086287 (UMLS CUI [1,2])
C4554048 (UMLS CUI [1,3])
MIABIS-2.0-09 (MIABIS-attribute code)
Sex: Unknown
Item
Sex: Unknown
boolean
C0079399 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C4554048 (UMLS CUI [1,3])
MIABIS-2.0-09 (MIABIS-attribute code)
Sex: Undifferentiated
Item
Sex: Undifferentiated
boolean
C0079399 (UMLS CUI [1,1])
C1524083 (UMLS CUI [1,2])
C2347027 (UMLS CUI [1,3])
MIABIS-2.0-09 (MIABIS-attribute code)
Item Group
Age of study participants
C0001779 (UMLS CUI-1)
C4554048 (UMLS CUI-2)
C2347026 (UMLS CUI-3)
Age Low
Item
Age Low
integer
C0001779 (UMLS CUI [1,1])
C0332239 (UMLS CUI [1,2])
C4554048 (UMLS CUI [1,3])
C1512693 (UMLS CUI [1,4])
MIABIS-2.0-10 (MIABIS-attribute code)
Age High
Item
Age High
integer
C0001779 (UMLS CUI [1,1])
C0205250 (UMLS CUI [1,2])
C4554048 (UMLS CUI [1,3])
C1512693 (UMLS CUI [1,4])
MIABIS-2.0-11 (MIABIS-attribute code)
Item
Age Unit
text
C0001779 (UMLS CUI [1,1])
C0439148 (UMLS CUI [1,2])
MIABIS-2.0-12 (MIABIS-attribute code)
Age Unit
Code List
Age Unit
CL Item
years (a)
CL Item
months (b)
CL Item
weeks (c)
CL Item
days (d)
Item Group
Data categories
C1511726 (UMLS CUI-1)
C0683312 (UMLS CUI-2)
Data categories: Biological samples
Item
Data categories: Biological samples
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C2347026 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Survey data
Item
Data categories: Survey data
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0038951 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Imaging data
Item
Data categories: Imaging data
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0025086 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Medical records
Item
Data categories: Medical records
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0025102 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: National registries
Item
Data categories: National registries
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0034975 (UMLS CUI [1,3])
C0681788 (UMLS CUI [1,4])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Genealogical records
Item
Data categories: Genealogical records
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0017298 (UMLS CUI [1,3])
C0034869 (UMLS CUI [1,4])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Physiological/Biochemical measurements
Item
Data categories: Physiological/Biochemical measurements
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0031842 (UMLS CUI [1,3])
C0242485 (UMLS CUI [1,4])
C1511726 (UMLS CUI [2,1])
C0683312 (UMLS CUI [2,2])
C0205474 (UMLS CUI [2,3])
C0242485 (UMLS CUI [2,4])
MIABIS-2.0-13 (MIABIS-attribute code)
Data categories: Other
Item
Data categories: Other
boolean
C1511726 (UMLS CUI [1,1])
C0683312 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
MIABIS-2.0-13 (MIABIS-attribute code)
Item Group
Material type
C0456204 (UMLS CUI-1)
C2347027 (UMLS CUI-2)
Material type: Blood
Item
Material type: Blood
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0005767 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: DNA
Item
Material type: DNA
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0012854 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Faeces
Item
Material type: Faeces
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0015733 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Immortailzed Cell Lines
Item
Material type: Immortalized Cell Lines
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0178708 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Isolated pathogen
Item
Material type: Isolated pathogen
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0450254 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Other
Item
Material type: Other
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Plasma
Item
Material type: Plasma
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0032105 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: RNA
Item
Material type: RNA
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0035668 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Saliva
Item
Material type: Saliva
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0036087 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Serum
Item
Material type: Serum
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0229671 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Tissue (Frozen)
Item
Material type: Tissue (Frozen)
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C4039816 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Tissue (FFPE)
Item
Material type: Tissue (FFPE)
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0040300 (UMLS CUI [1,3])
C4684951 (UMLS CUI [1,4])
MIABIS-2.0-14 (MIABIS-attribute code)
Material type: Urine
Item
Material type: Urine
boolean
C0456204 (UMLS CUI [1,1])
C2347027 (UMLS CUI [1,2])
C0042036 (UMLS CUI [1,3])
MIABIS-2.0-14 (MIABIS-attribute code)
Item Group
Inclusion criteria
C1512693 (UMLS CUI-1)
C0243161 (UMLS CUI-2)
Inclusion criteria: Health status
Item
Inclusion criteria: Health status
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0018759 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Hospital patient
Item
Inclusion criteria: Hospital patient
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0701159 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Use of medication
Item
Inclusion criteria: Use of medication
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0240320 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Gravidity
Item
Inclusion criteria: Gravidity
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0600457 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Age group
Item
Inclusion criteria: Age group
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0001779 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Familial status
Item
Inclusion criteria: Familial status
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0015602 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Sex
Item
Inclusion criteria: Sex
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0079399 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Country of residence
Item
Inclusion criteria: Country of residence
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C1562954 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Ethnic origin
Item
Inclusion criteria: Ethnic origin
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0015031 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Population representative sampling
Item
Inclusion criteria: Population representative sampling
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C1257890 (UMLS CUI [1,3])
C1882932 (UMLS CUI [1,4])
C0370003 (UMLS CUI [1,5])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Lifestyle/Exposure
Item
Inclusion criteria: Lifestyle/Exposure
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0023676 (UMLS CUI [1,3])
C1512693 (UMLS CUI [2,1])
C0243161 (UMLS CUI [2,2])
C0332157 (UMLS CUI [2,3])
MIABIS-2.0-22 (MIABIS-attribute code)
Inclusion criteria: Other
Item
Inclusion criteria: Other
boolean
C1512693 (UMLS CUI [1,1])
C0243161 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
MIABIS-2.0-22 (MIABIS-attribute code)
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