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ID

37580

Beskrivning

INFLAMMATORY BOWEL DISEASE DATA COLLECTION Version 1.0.1 Revised April 10th, 2017 Based mainly on the above version, additions/modifications August 2019 www.ichom.org Conditions Covered: An adult (>16) with a diagnosis of Inflammatory Bowel Disease (IBD) including Crohn’s disease, ulcerative colitis and indeterminate colitis (or IBD unclassified) Treatment Approaches: Medical | Surgical | Supportive This ODM-file contains Patient reported Forms: Demographics and Baseline Clinical Factors. Timepoints: Mainly Baseline only; Smoking and Infection Status annually, too. Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc. Survey used: IBD-Control PROM : IBD-Control is made available to the IBD community without license or fees, but the authors retain copyright and request that the original paper is cited in any published output. For more details, see: Bodger et al. Development and validation of a rapid, generic measure of disease control from the patient’s perspective: the IBD-control questionnaire. Gut 2014;63(7):1092-102. (Please note, only some questions of the IBD-Control questionnaire are asked, therefore a total score is not applicable or requested within this guide). ICHOM was supported for this standard set by Oxford Academic Health Science Network (partly funded by AbbVie). Kim AH, Roberts C, Feagan BG, et al. Developing a Standard Set of Patient-Centred Outcomes for Inflammatory Bowel Disease — an International, Cross-disciplinary Consensus. Journal of Crohn's and Colitis. 2017;1–11. doi:10.1093/ecco-jcc/jjx161

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www.ichom.org

Nyckelord

Versioner (4)
  1. 2018-07-23 2018-07-23 - Sarah Riepenhausen
  2. 2018-07-23 2018-07-23 - Sarah Riepenhausen
  3. 2019-08-08 2019-08-08 - Sarah Riepenhausen
  4. 2020-04-30 2020-04-30 - Sarah Riepenhausen
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8 augusti 2019

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    ICHOM Inflammatory Bowel Disease

    Engelsk

    Demographics, Baseline Clinical Factors (Patient reported)

    1 Formulär  
    Administrative Data
    Beskrivning

    Administrative Data

    Alias
    UMLS CUI-1
    C1320722 (Administrative documentation)
    SNOMED
    405624007
    Indicate the patient's medical record number.
    Beskrivning

    This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution. INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C1269815 (Patient identification)
    SNOMED
    372039005
    Time Relative to Baseline (e.g. Baseline, 1 year follow-up, 2 year follow-up, ...)
    Beskrivning

    This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C0439564 (Relative time)
    SNOMED
    118578006
    LOINC
    LP21276-8
    UMLS CUI [1,2]
    C1442488 (Baseline)
    LOINC
    LA16758-7
    Demographic Factors
    Beskrivning

    Demographic Factors

    Alias
    UMLS CUI-1
    C1704791 (Demographics Domain)
    In what year were you born?
    Beskrivning

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Numerical (changed to "Single Answer") REFERENCE: NHS

    Datatyp

    partialDate

    Måttenheter
    • YYYY
    Alias
    UMLS CUI [1]
    C0001779 (Age)
    SNOMED
    424144002
    LOINC
    LP28815-6
    UMLS CUI [2]
    C2826771 (Birth Year)
    YYYY
    Please indicate your sex at birth
    Beskrivning

    The distinction between male, female, and others who do not have biological characteristics typically associated with either the male or female sex, as represented by a code INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Single Answer REFERENCE: METeOR

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0079399 (Gender)
    SNOMED
    263495000
    LOINC
    LP61312-2
    What is the highest level of schooling you have completed?
    Beskrivning

    The level of schooling is defined in each country as per ISCED [International Standard Classification] INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Single answer REFERENCE: ISCED ISCED MAP: Red: 0 = None, 1 = Early Childhood Education Orange: 2 = Primary Education, 3 = Lower Secondary Education Blue: 4 = Upper Secondary Education, 5 = Short-Cycle Tertiary Education Black: 6 = Bachelor's or Equivalent Level, 7 = Master's or Equivalent Level, 8 = Doctoral or Equivalent Level

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0013658 (Educational Status)
    SNOMED
    266981003
    Smoking status (of cigarettes, cigars or tobacco)
    Beskrivning

    A person's current and past smoking behavior, as represented by a code. INCLUSION CRITERIA: All patients TIMING: Baseline, Annually REPORTING SOURCE: Patient reported TYPE: Single Answer REFERENCE: METeOR

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C1519386 (Smoking Status)
    Baseline Clinical Factors
    Beskrivning

    Baseline Clinical Factors

    Alias
    UMLS CUI-1
    C1442488 (Baseline)
    LOINC
    LA16758-7
    UMLS CUI-2
    C0449440 (Clinical status)
    SNOMED
    263493007
    UMLS CUI-3
    C0035648 (risk factors)
    SNOMED
    80943009
    Indicate the patient's height
    Beskrivning

    The height of a person measured in centimetres Height and weight are used to calculate BMI INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical RESPONSE OPTIONS: Numerical value of height in m or in; 999.9 = not measured REFERENCE: METeOR

    Datatyp

    float

    Alias
    UMLS CUI [1]
    C0005890 (Body Height)
    SNOMED
    50373000
    Indicate units of height
    Beskrivning

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single Answer

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0005890 (Body Height)
    SNOMED
    50373000
    UMLS CUI [1,2]
    C1519795 (Unit of Measure)
    SNOMED
    767524001
    Indicate the patient's weight
    Beskrivning

    The weight (body mass) of a person measured in kilograms Height and weight are used to calculate BMI INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical RESPONSE OPTIONS: Numerical value of weight in kg or lbs; 999.9 = not collected REFERENCE: METeOR

    Datatyp

    float

    Alias
    UMLS CUI [1]
    C0005910 (Body Weight)
    SNOMED
    27113001
    Indicate units of weight
    Beskrivning

    INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: Single Answer

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0005910 (Body Weight)
    SNOMED
    27113001
    UMLS CUI [1,2]
    C1519795 (Unit of Measure)
    SNOMED
    767524001
    Have you been told by a doctor or care provider that you have any of the following? Tick all that apply. 0 = The patient has no other diseases
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0009488 (Comorbidity)
    UMLS CUI [1,2]
    C1298908 (no)
    SNOMED
    373067005
    Have you been told by a doctor or care provider that you have any of the following? 1 = Heart disease (For example angina, heart attack, or heart failure)
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0009488 (Comorbidity)
    UMLS CUI [1,2]
    C0018799 (Heart Diseases)
    SNOMED
    56265001
    Have you been told by a doctor or care provider that you have any of the following? 2 = High blood pressure (sometimes referred to as 'hypertension')
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0020538 (Hypertensive disease)
    SNOMED
    38341003
    LOINC
    MTHU020789
    Have you been told by a doctor or care provider that you have any of the following? 3 = Lung disease (For example asthma, chronic bronchitis, or emphysema)
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0024115 (Lung diseases)
    SNOMED
    19829001
    Have you been told by a doctor or care provider that you have any of the following? 4 = Leg pain when walking due to poor circulation
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0085096 (Peripheral Vascular Diseases)
    SNOMED
    400047006
    Have you been told by a doctor that you have any of the following? 5 = Diabetes (Type I or Type II)
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0011849 (Diabetes Mellitus)
    SNOMED
    73211009
    Have you been told by a doctor that you have any of the following? 6 = Kidney disease
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0022658 (Kidney Diseases)
    SNOMED
    90708001
    Have you been told by a doctor that you have any of the following? 7 = Disease of the nervous system (For example Parkinson’s disease or Multiple Sclerosis)
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0027765 (nervous system disorder)
    SNOMED
    118940003
    LOINC
    LA10590-0
    Have you been told by a doctor that you have any of the following? 8 = Liver Disease
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0023895 (Liver diseases)
    SNOMED
    235856003
    LOINC
    LA17774-3
    Have you been told by a doctor that you have any of the following? 9 = Cancer (within the last 5 years)
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0006826 (Malignant Neoplasms)
    SNOMED
    363346000
    LOINC
    LP100805-3
    Have you been told by a doctor that you have any of the following? 10 = Depression
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0011581 (Depressive disorder)
    SNOMED
    35489007
    LOINC
    LA10576-9
    Have you been told by a doctor that you have any of the following? 11=High cholesterol (sometimes referred to as hyperlipidemia)
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0020443 (Hypercholesterolemia)
    SNOMED
    13644009
    Have you been told by a doctor that you have any of the following? 12 = Problems caused by stroke
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0038454 (Cerebrovascular accident)
    SNOMED
    230690007
    LOINC
    MTHU020801
    Have you been told by a doctor that you have any of the following? 13=Osteoarthritis, or degenerative arthritis
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0029408 (Degenerative polyarthritis)
    SNOMED
    396275006
    LOINC
    LA17768-5
    Have you been told by a doctor that you have any of the following? 14=Back pain
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0004604 (Back Pain)
    SNOMED
    161891005
    Have you been told by a doctor that you have any of the following? 15=Rheumatoid arthritis
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0003873 (Rheumatoid Arthritis)
    SNOMED
    69896004
    LOINC
    LA15161-5
    Have you been told by a doctor that you have any of the following? 16=Ankylosing spondylitis
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer, Separate multiple entries with ";"

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0038013 (Ankylosing spondylitis)
    SNOMED
    9631008
    Have you been told by a doctor that you have any of the following? 17=Primary sclerosing cholangitis
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0009488 (Comorbidity)
    UMLS CUI [2]
    C0566602 (Primary sclerosing cholangitis)
    SNOMED
    197441003
    Have you been told by a doctor that you have any of the following? 888=other
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0009488 (Comorbidity)
    UMLS CUI [1,2]
    C0205394 (Other)
    SNOMED
    74964007
    LOINC
    LP21049-9
    Have you been told by a doctor that you have any of the following? 999=unknown
    Beskrivning

    Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Patient-reported TYPE: Multiple answer

    Datatyp

    boolean

    Alias
    UMLS CUI [1,1]
    C0009488 (Comorbidity)
    UMLS CUI [1,2]
    C0439673 (Unknown)
    SNOMED
    261665006
    LOINC
    LA4489-6
    Have you been previously diagnosed with or treated for Hepatitis B virus?
    Beskrivning

    INCLUSION CRITERIA: All patients TIMING: Baseline, Annually REPORTING SOURCE: Patient reported TYPE: Single Answer

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0019163 (Hepatitis B)
    SNOMED
    66071002
    LOINC
    LA18126-5
    UMLS CUI [1,2]
    C0205156 (Previous)
    SNOMED
    9130008
    LOINC
    LP21061-4
    Have you been previously diagnosed with or treated for human immunodeficiency virus (HIV)?
    Beskrivning

    INCLUSION CRITERIA: All patients TIMING: Baseline, Annually REPORTING SOURCE: Patient reported TYPE: Single Answer

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0019693 (HIV Infections)
    SNOMED
    86406008
    UMLS CUI [1,2]
    C0205156 (Previous)
    SNOMED
    9130008
    LOINC
    LP21061-4
    Have you been previously diagnosed with or treated for tuberculosis (TB)?
    Beskrivning

    INCLUSION CRITERIA: All patients TIMING: Baseline, Annually REPORTING SOURCE: Patient reported TYPE: Single Answer

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0205156 (Previous)
    SNOMED
    9130008
    LOINC
    LP21061-4
    UMLS CUI [1,2]
    C0041296 (Tuberculosis)
    SNOMED
    373576009
    LOINC
    LP28599-6
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    Similar models

    Demographics, Baseline Clinical Factors (Patient reported)

    1 Formulär
    Name
    Typ
    Description | Question | Decode (Coded Value)
    Datatyp
    Alias
    Item Group
    Administrative Data
    C1320722 (UMLS CUI-1)
    Patient ID
    Item
    Indicate the patient's medical record number.
    integer
    C1269815 (UMLS CUI [1])
    Time Relative to Baseline
    Item
    Time Relative to Baseline (e.g. Baseline, 1 year follow-up, 2 year follow-up, ...)
    text
    C0439564 (UMLS CUI [1,1])
    C1442488 (UMLS CUI [1,2])
    Item Group
    Demographic Factors
    C1704791 (UMLS CUI-1)
    Year of birth
    Item
    In what year were you born?
    partialDate
    C0001779 (UMLS CUI [1])
    C2826771 (UMLS CUI [2])
    Item
    Please indicate your sex at birth
    integer
    C0079399 (UMLS CUI [1])
    Sex
    Code List
    Please indicate your sex at birth
    CL Item
    Male (1)
    C0086582 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Female (2)
    C0086287 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Other (3)
    C0205394 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Not stated/inadequately described (9)
    C0439673 (UMLS CUI-1)
    (Comment:en)
    Item
    What is the highest level of schooling you have completed?
    integer
    C0013658 (UMLS CUI [1])
    Educational level
    Code List
    What is the highest level of schooling you have completed?
    CL Item
    None (0)
    C0557286 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Primary (1)
    C0013658 (UMLS CUI-1)
    C0033145 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Secondary (2)
    C0557289 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Tertiary (3)
    C0557291 (UMLS CUI-1)
    (Comment:en)
    Item
    Smoking status (of cigarettes, cigars or tobacco)
    integer
    C1519386 (UMLS CUI [1])
    Smoking status
    Code List
    Smoking status (of cigarettes, cigars or tobacco)
    CL Item
    Daily smoker (1)
    C3241966 (UMLS CUI-1)
    C0332173 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Weekly smoker (2)
    C3241966 (UMLS CUI-1)
    C0332174 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Irregular smoker (3)
    C3241966 (UMLS CUI-1)
    C0205271 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Ex-smoker (4)
    C0337671 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Never smoked (5)
    C0425293 (UMLS CUI-1)
    (Comment:en)
    Item Group
    Baseline Clinical Factors
    C1442488 (UMLS CUI-1)
    C0449440 (UMLS CUI-2)
    C0035648 (UMLS CUI-3)
    Body Height
    Item
    Indicate the patient's height
    float
    C0005890 (UMLS CUI [1])
    Item
    Indicate units of height
    integer
    C0005890 (UMLS CUI [1,1])
    C1519795 (UMLS CUI [1,2])
    Height units
    Code List
    Indicate units of height
    CL Item
    meters (1)
    C0475209 (UMLS CUI-1)
    (Comment:en)
    CL Item
    inches (2)
    C0439204 (UMLS CUI-1)
    (Comment:en)
    Body Weight
    Item
    Indicate the patient's weight
    float
    C0005910 (UMLS CUI [1])
    Item
    Indicate units of weight
    integer
    C0005910 (UMLS CUI [1,1])
    C1519795 (UMLS CUI [1,2])
    Weight units
    Code List
    Indicate units of weight
    CL Item
    kilograms (1)
    C0439209 (UMLS CUI-1)
    (Comment:en)
    CL Item
    pounds (2)
    C0439219 (UMLS CUI-1)
    (Comment:en)
    Comorbidities - No
    Item
    Have you been told by a doctor or care provider that you have any of the following? Tick all that apply. 0 = The patient has no other diseases
    boolean
    C0009488 (UMLS CUI [1,1])
    C1298908 (UMLS CUI [1,2])
    Comorbidities - Heart Disease
    Item
    Have you been told by a doctor or care provider that you have any of the following? 1 = Heart disease (For example angina, heart attack, or heart failure)
    boolean
    C0009488 (UMLS CUI [1,1])
    C0018799 (UMLS CUI [1,2])
    Comorbidities - Hypertension
    Item
    Have you been told by a doctor or care provider that you have any of the following? 2 = High blood pressure (sometimes referred to as 'hypertension')
    boolean
    C0009488 (UMLS CUI [1])
    C0020538 (UMLS CUI [2])
    Comorbidities - Lung disease
    Item
    Have you been told by a doctor or care provider that you have any of the following? 3 = Lung disease (For example asthma, chronic bronchitis, or emphysema)
    boolean
    C0009488 (UMLS CUI [1])
    C0024115 (UMLS CUI [2])
    Comorbidities - peripheral vascular disease
    Item
    Have you been told by a doctor or care provider that you have any of the following? 4 = Leg pain when walking due to poor circulation
    boolean
    C0009488 (UMLS CUI [1])
    C0085096 (UMLS CUI [2])
    Comorbidities - Diabetes
    Item
    Have you been told by a doctor that you have any of the following? 5 = Diabetes (Type I or Type II)
    boolean
    C0009488 (UMLS CUI [1])
    C0011849 (UMLS CUI [2])
    Comorbidities - Kidney Disease
    Item
    Have you been told by a doctor that you have any of the following? 6 = Kidney disease
    boolean
    C0009488 (UMLS CUI [1])
    C0022658 (UMLS CUI [2])
    Comorbidities - Disease of the nervous system
    Item
    Have you been told by a doctor that you have any of the following? 7 = Disease of the nervous system (For example Parkinson’s disease or Multiple Sclerosis)
    boolean
    C0009488 (UMLS CUI [1])
    C0027765 (UMLS CUI [2])
    Comorbidities - Liver Disease
    Item
    Have you been told by a doctor that you have any of the following? 8 = Liver Disease
    boolean
    C0009488 (UMLS CUI [1])
    C0023895 (UMLS CUI [2])
    Comorbidities - Cancer
    Item
    Have you been told by a doctor that you have any of the following? 9 = Cancer (within the last 5 years)
    boolean
    C0009488 (UMLS CUI [1])
    C0006826 (UMLS CUI [2])
    Comorbidities - Depression
    Item
    Have you been told by a doctor that you have any of the following? 10 = Depression
    boolean
    C0009488 (UMLS CUI [1])
    C0011581 (UMLS CUI [2])
    Comorbidities - High Cholesterol
    Item
    Have you been told by a doctor that you have any of the following? 11=High cholesterol (sometimes referred to as hyperlipidemia)
    boolean
    C0009488 (UMLS CUI [1])
    C0020443 (UMLS CUI [2])
    Comorbidities - Stroke
    Item
    Have you been told by a doctor that you have any of the following? 12 = Problems caused by stroke
    boolean
    C0009488 (UMLS CUI [1])
    C0038454 (UMLS CUI [2])
    Comorbidities - Osteoarthritis
    Item
    Have you been told by a doctor that you have any of the following? 13=Osteoarthritis, or degenerative arthritis
    boolean
    C0009488 (UMLS CUI [1])
    C0029408 (UMLS CUI [2])
    Comorbidities - Back Pain
    Item
    Have you been told by a doctor that you have any of the following? 14=Back pain
    boolean
    C0009488 (UMLS CUI [1])
    C0004604 (UMLS CUI [2])
    Comorbidities - Rheumatoid arthritis
    Item
    Have you been told by a doctor that you have any of the following? 15=Rheumatoid arthritis
    boolean
    C0009488 (UMLS CUI [1])
    C0003873 (UMLS CUI [2])
    Comorbidities - Ankylosing spondylitis
    Item
    Have you been told by a doctor that you have any of the following? 16=Ankylosing spondylitis
    boolean
    C0009488 (UMLS CUI [1])
    C0038013 (UMLS CUI [2])
    Comorbidities - Primary Sclerosing Cholangitis
    Item
    Have you been told by a doctor that you have any of the following? 17=Primary sclerosing cholangitis
    boolean
    C0009488 (UMLS CUI [1])
    C0566602 (UMLS CUI [2])
    Comorbidities - other
    Item
    Have you been told by a doctor that you have any of the following? 888=other
    boolean
    C0009488 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    Comorbidities - unknown
    Item
    Have you been told by a doctor that you have any of the following? 999=unknown
    boolean
    C0009488 (UMLS CUI [1,1])
    C0439673 (UMLS CUI [1,2])
    Item
    Have you been previously diagnosed with or treated for Hepatitis B virus?
    integer
    C0019163 (UMLS CUI [1,1])
    C0205156 (UMLS CUI [1,2])
    Previous HBV infection
    Code List
    Have you been previously diagnosed with or treated for Hepatitis B virus?
    CL Item
    No (0)
    C1298908 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Yes (1)
    C1705108 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Undisclosed (2)
    C4331933 (UMLS CUI-1)
    (Comment:en)
    CL Item
    unknown (999)
    C0439673 (UMLS CUI-1)
    (Comment:en)
    Item
    Have you been previously diagnosed with or treated for human immunodeficiency virus (HIV)?
    integer
    C0019693 (UMLS CUI [1,1])
    C0205156 (UMLS CUI [1,2])
    Previous HBV infection
    Code List
    Have you been previously diagnosed with or treated for human immunodeficiency virus (HIV)?
    CL Item
    No (0)
    C1298908 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Yes (1)
    C1705108 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Undisclosed (2)
    C4331933 (UMLS CUI-1)
    (Comment:en)
    CL Item
    unknown (999)
    C0439673 (UMLS CUI-1)
    (Comment:en)
    Item
    Have you been previously diagnosed with or treated for tuberculosis (TB)?
    integer
    C0205156 (UMLS CUI [1,1])
    C0041296 (UMLS CUI [1,2])
    Previous HBV infection
    Code List
    Have you been previously diagnosed with or treated for tuberculosis (TB)?
    CL Item
    No (0)
    C1298908 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Yes (1)
    C1705108 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Undisclosed (2)
    C4331933 (UMLS CUI-1)
    (Comment:en)
    CL Item
    unknown (999)
    C0439673 (UMLS CUI-1)
    (Comment:en)
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