ID
31220
Descrição
INFLAMMATORY BOWEL DISEASE DATA COLLECTION REFERENCE GUIDE Version 1.0.1 Revised April 10th, 2017 www.ichom.org ICHOM was sponsored by Oxford Academic Health Science Network, partly funded by an independent grand form AbbVie. Conditions Covered: An adult (>16) with a diagnosis of Inflammatory Bowel Disease (IBD) including Crohn’s disease, ulcerative colitis and indeterminate colitis (or IBD unclassified) Treatment Approaches: Medical | Surgical | Supportive This ODM-file contains Patient reported Forms. Timepoints: Baseline, 6 months and anually. Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc. Survey used: IBD-Control PROM : IBD-Control is made available to the IBD community without license or fees, but the authors retain copyright and request that the original paper is cited in any published output. For more details, see: Bodger et al. Development and validation of a rapid, generic measure of disease control from the patient’s perspective: the IBD-control questionnaire. Gut 2014;63(7):1092-102. Please note, only some questions of the IBD-Control questionnaire are asked, therefore a total score is not applicable or requested within this guide.
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Versões (3)
- 30/07/2018 30/07/2018 - Sarah Riepenhausen
- 08/08/2019 08/08/2019 - Sarah Riepenhausen
- 30/04/2020 30/04/2020 - Sarah Riepenhausen
Titular dos direitos
ICHOM
Transferido a
30 de julho de 2018
DOI
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Licença
Creative Commons BY-NC 3.0
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ICHOM Inflammatory Bowel Disease
Outcome (Patient reported)
- StudyEvent: ODM
Descrição
Symptoms, function and quality of life
Alias
- UMLS CUI-1
- C1457887
- UMLS CUI-2
- C0542341
- UMLS CUI-3
- C0034380
Descrição
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2911690
- UMLS CUI [1,4]
- C4288440
Descrição
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2911690
- UMLS CUI [1,4]
- C0087111
Descrição
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1457887
- UMLS CUI [1,4]
- C4288440
Descrição
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C3174606
- UMLS CUI [1,4]
- C4288440
Descrição
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2875252
- UMLS CUI [1,4]
- C4288440
Descrição
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2737161
- UMLS CUI [1,4]
- C4288440
Descrição
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C0015672
- UMLS CUI [1,4]
- C4288440
Descrição
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C3828991
- UMLS CUI [1,4]
- C4288440
Descrição
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1299575
- UMLS CUI [1,4]
- C4288440
Descrição
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0016169
- UMLS CUI [1,4]
- C1298908
Descrição
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0267561
Descrição
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0034895
Descrição
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0341318
Descrição
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0016169
- UMLS CUI [1,4]
- C0205394
Descrição
For calculating BMI INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Numerical value of weight in metric or imperial system
Tipo de dados
float
Alias
- UMLS CUI [1,1]
- C0005910
- UMLS CUI [1,2]
- C2826718
Descrição
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0005910
- UMLS CUI [1,2]
- C2826768
Descrição
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0043096
- UMLS CUI [1,2]
- C1283828
Similar models
Outcome (Patient reported)
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C0542341 (UMLS CUI-2)
C0034380 (UMLS CUI-3)
C0034394 (UMLS CUI [1,2])
C2911690 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C2911690 (UMLS CUI [1,3])
C0087111 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C1457887 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C3174606 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C2875252 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C2737161 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C0015672 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C3828991 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C1299575 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C1457887 (UMLS CUI [1,2])
C0016169 (UMLS CUI [1,3])
C1298908 (UMLS CUI [1,4])
C1457887 (UMLS CUI [1,2])
C0267561 (UMLS CUI [1,3])
C1457887 (UMLS CUI [1,2])
C0034895 (UMLS CUI [1,3])
C1457887 (UMLS CUI [1,2])
C0341318 (UMLS CUI [1,3])
C1457887 (UMLS CUI [1,2])
C0016169 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C2826718 (UMLS CUI [1,2])
C1283828 (UMLS CUI [1,2])