ID
31220
Beschrijving
INFLAMMATORY BOWEL DISEASE DATA COLLECTION REFERENCE GUIDE Version 1.0.1 Revised April 10th, 2017 www.ichom.org ICHOM was sponsored by Oxford Academic Health Science Network, partly funded by an independent grand form AbbVie. Conditions Covered: An adult (>16) with a diagnosis of Inflammatory Bowel Disease (IBD) including Crohn’s disease, ulcerative colitis and indeterminate colitis (or IBD unclassified) Treatment Approaches: Medical | Surgical | Supportive This ODM-file contains Patient reported Forms. Timepoints: Baseline, 6 months and anually. Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc. Survey used: IBD-Control PROM : IBD-Control is made available to the IBD community without license or fees, but the authors retain copyright and request that the original paper is cited in any published output. For more details, see: Bodger et al. Development and validation of a rapid, generic measure of disease control from the patient’s perspective: the IBD-control questionnaire. Gut 2014;63(7):1092-102. Please note, only some questions of the IBD-Control questionnaire are asked, therefore a total score is not applicable or requested within this guide.
Link
Trefwoorden
Versies (3)
- 30-07-18 30-07-18 - Sarah Riepenhausen
- 08-08-19 08-08-19 - Sarah Riepenhausen
- 30-04-20 30-04-20 - Sarah Riepenhausen
Houder van rechten
ICHOM
Geüploaded op
30 juli 2018
DOI
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Licentie
Creative Commons BY-NC 3.0
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ICHOM Inflammatory Bowel Disease
Outcome (Patient reported)
- StudyEvent: ODM
Beschrijving
Symptoms, function and quality of life
Alias
- UMLS CUI-1
- C1457887
- UMLS CUI-2
- C0542341
- UMLS CUI-3
- C0034380
Beschrijving
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2911690
- UMLS CUI [1,4]
- C4288440
Beschrijving
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2911690
- UMLS CUI [1,4]
- C0087111
Beschrijving
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1457887
- UMLS CUI [1,4]
- C4288440
Beschrijving
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C3174606
- UMLS CUI [1,4]
- C4288440
Beschrijving
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2875252
- UMLS CUI [1,4]
- C4288440
Beschrijving
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2737161
- UMLS CUI [1,4]
- C4288440
Beschrijving
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C0015672
- UMLS CUI [1,4]
- C4288440
Beschrijving
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C3828991
- UMLS CUI [1,4]
- C4288440
Beschrijving
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1299575
- UMLS CUI [1,4]
- C4288440
Beschrijving
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0016169
- UMLS CUI [1,4]
- C1298908
Beschrijving
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0267561
Beschrijving
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0034895
Beschrijving
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0341318
Beschrijving
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0016169
- UMLS CUI [1,4]
- C0205394
Beschrijving
For calculating BMI INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Numerical value of weight in metric or imperial system
Datatype
float
Alias
- UMLS CUI [1,1]
- C0005910
- UMLS CUI [1,2]
- C2826718
Beschrijving
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0005910
- UMLS CUI [1,2]
- C2826768
Beschrijving
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0043096
- UMLS CUI [1,2]
- C1283828
Similar models
Outcome (Patient reported)
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C0542341 (UMLS CUI-2)
C0034380 (UMLS CUI-3)
C0034394 (UMLS CUI [1,2])
C2911690 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C2911690 (UMLS CUI [1,3])
C0087111 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C1457887 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C3174606 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C2875252 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C2737161 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C0015672 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C3828991 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C1299575 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C1457887 (UMLS CUI [1,2])
C0016169 (UMLS CUI [1,3])
C1298908 (UMLS CUI [1,4])
C1457887 (UMLS CUI [1,2])
C0267561 (UMLS CUI [1,3])
C1457887 (UMLS CUI [1,2])
C0034895 (UMLS CUI [1,3])
C1457887 (UMLS CUI [1,2])
C0341318 (UMLS CUI [1,3])
C1457887 (UMLS CUI [1,2])
C0016169 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C2826718 (UMLS CUI [1,2])
C1283828 (UMLS CUI [1,2])