ID
31220
Description
INFLAMMATORY BOWEL DISEASE DATA COLLECTION REFERENCE GUIDE Version 1.0.1 Revised April 10th, 2017 www.ichom.org ICHOM was sponsored by Oxford Academic Health Science Network, partly funded by an independent grand form AbbVie. Conditions Covered: An adult (>16) with a diagnosis of Inflammatory Bowel Disease (IBD) including Crohn’s disease, ulcerative colitis and indeterminate colitis (or IBD unclassified) Treatment Approaches: Medical | Surgical | Supportive This ODM-file contains Patient reported Forms. Timepoints: Baseline, 6 months and anually. Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc. Survey used: IBD-Control PROM : IBD-Control is made available to the IBD community without license or fees, but the authors retain copyright and request that the original paper is cited in any published output. For more details, see: Bodger et al. Development and validation of a rapid, generic measure of disease control from the patient’s perspective: the IBD-control questionnaire. Gut 2014;63(7):1092-102. Please note, only some questions of the IBD-Control questionnaire are asked, therefore a total score is not applicable or requested within this guide.
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Keywords
Versions (3)
- 7/30/18 7/30/18 - Sarah Riepenhausen
- 8/8/19 8/8/19 - Sarah Riepenhausen
- 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder
ICHOM
Uploaded on
July 30, 2018
DOI
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License
Creative Commons BY-NC 3.0
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ICHOM Inflammatory Bowel Disease
Outcome (Patient reported)
- StudyEvent: ODM
Description
Symptoms, function and quality of life
Alias
- UMLS CUI-1
- C1457887
- UMLS CUI-2
- C0542341
- UMLS CUI-3
- C0034380
Description
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2911690
- UMLS CUI [1,4]
- C4288440
Description
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2911690
- UMLS CUI [1,4]
- C0087111
Description
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1457887
- UMLS CUI [1,4]
- C4288440
Description
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C3174606
- UMLS CUI [1,4]
- C4288440
Description
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2875252
- UMLS CUI [1,4]
- C4288440
Description
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2737161
- UMLS CUI [1,4]
- C4288440
Description
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C0015672
- UMLS CUI [1,4]
- C4288440
Description
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C3828991
- UMLS CUI [1,4]
- C4288440
Description
For all IBD-Control items please note the response option number does not correlate with the scoring guide for the IBD-Control tool and is for coding only. INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1299575
- UMLS CUI [1,4]
- C4288440
Description
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0016169
- UMLS CUI [1,4]
- C1298908
Description
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0267561
Description
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0034895
Description
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0341318
Description
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0021390
- UMLS CUI [1,2]
- C1457887
- UMLS CUI [1,3]
- C0016169
- UMLS CUI [1,4]
- C0205394
Description
For calculating BMI INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Numerical value of weight in metric or imperial system
Data type
float
Alias
- UMLS CUI [1,1]
- C0005910
- UMLS CUI [1,2]
- C2826718
Description
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0005910
- UMLS CUI [1,2]
- C2826768
Description
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly REPORTING SOURCE: Patient-reported TYPE: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0043096
- UMLS CUI [1,2]
- C1283828
Similar models
Outcome (Patient reported)
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C0542341 (UMLS CUI-2)
C0034380 (UMLS CUI-3)
C0034394 (UMLS CUI [1,2])
C2911690 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C2911690 (UMLS CUI [1,3])
C0087111 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C1457887 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C3174606 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C2875252 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C2737161 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C0015672 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C3828991 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C0034394 (UMLS CUI [1,2])
C1299575 (UMLS CUI [1,3])
C4288440 (UMLS CUI [1,4])
C1457887 (UMLS CUI [1,2])
C0016169 (UMLS CUI [1,3])
C1298908 (UMLS CUI [1,4])
C1457887 (UMLS CUI [1,2])
C0267561 (UMLS CUI [1,3])
C1457887 (UMLS CUI [1,2])
C0034895 (UMLS CUI [1,3])
C1457887 (UMLS CUI [1,2])
C0341318 (UMLS CUI [1,3])
C1457887 (UMLS CUI [1,2])
C0016169 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C2826718 (UMLS CUI [1,2])
C1283828 (UMLS CUI [1,2])