0 Evaluaciones
ID

31163

Descripción

INFLAMMATORY BOWEL DISEASE COLLECTION REFERENCE GUIDE Version 1.0.1 Revised April 10th, 2017 www.ichom.org ICHOM was sponsored by Oxford Academic Health Science Network for this guide, partly funded by an independent grand form AbbVie. Conditions Covered: An adult (>16) with a diagnosis of Inflammatory Bowel Disease (IBD) including Crohn’s disease, ulcerative colitis and indeterminate colitis (or IBD unclassified) Treatment Approaches: Medical | Surgical | Supportive This ODM-file contains Clinician Reported Outcome Factors. Timepoints: Baseline and Follow-up. Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. TEST StudyFor example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc. Survey used: IBD-Control PROM : IBD-Control is made available to the IBD community without license or fees, but the authors retain copyright and request that the original paper is cited in any published output. For more details, see: Bodger et al. Development and validation of a rapid, generic measure of disease control from the patient’s perspective: the IBD-control questionnaire. Gut 2014;63(7):1092-102. (Please note, only some questions of the IBD-Control questionnaire are asked, therefore a total score is not applicable or requested within this guide)

Link

www.ichom.org

Palabras clave

Versiones (3)
  1. 24/7/18 24/7/18 - Sarah Riepenhausen
  2. 8/8/19 8/8/19 - Sarah Riepenhausen
  3. 30/4/20 30/4/20 - Sarah Riepenhausen
Titular de derechos de autor

ICHOM

Subido en

24 de julio de 2018

DOI

Para solicitar uno, por favor iniciar sesión.

Licencia

Creative Commons BY-NC 3.0
Comentarios del modelo :

Puede comentar sobre el modelo de datos aquí. A través de las burbujas de diálogo en los grupos de elementos y elementos, puede agregar comentarios específicos.

Volver a los comentarios del modelo
Comentarios de grupo de elementos para :

Comentarios del elemento para :

  • El más nuevo
  • Más antiguo
  • Popular
  • El más nuevo
    • El más nuevo
    • Más antiguo
    • Popular

    Sin comentarios

    Para descargar modelos de datos, debe haber iniciado sesión. Por favor iniciar sesión o Registrate gratis.

    ICHOM Inflammatory Bowel Disease

    Inglés

    Outcome (Clinican reported)

    1 formularios  
    Administrative Data
    Descripción

    Administrative Data

    Alias
    UMLS CUI-1
    C1320722
    Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
    Descripción

    This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C0439564
    UMLS CUI [1,2]
    C1442488
    Indicate the patient's medical record number
    Descripción

    This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1269815
    Disutility of care
    Descripción

    Disutility of care

    Alias
    UMLS CUI-1
    C0231185
    UMLS CUI-2
    C0086388
    UMLS CUI-3
    C0021390
    Please indicate whether prednisolone has been used in the last 12 months
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0281991
    UMLS CUI [1,2]
    C3887293
    Indicate whether the patient experienced a (unexpected or expected) complication whist during IBD intervention (this can be any type of intervention) or 3 months following intervention
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0009566
    UMLS CUI [1,2]
    C0021390
    Indicate whether the patient experienced a (unexpected or expected) complication whist during IBD intervention (this can be any type of intervention) or 3 months following intervention
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0184788
    UMLS CUI [1,2]
    C0009566
    UMLS CUI [1,3]
    C0021390
    Did the complication lead to prolonged hospitalization
    Descripción

    (i.e. longer than reasonably expected) INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0184788
    UMLS CUI [1,2]
    C0009566
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C0745041
    If the complication lead to prolonged hospitalization, indicate the total number of days the patient was hospitalized for
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Numerical

    Tipo de datos

    integer

    Unidades de medida
    • days
    Alias
    UMLS CUI [1,1]
    C0184788
    UMLS CUI [1,2]
    C0009566
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C0745041
    UMLS CUI [1,5]
    C3640790
    days
    Did the complication lead to an unplanned admission
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0184788
    UMLS CUI [1,2]
    C0009566
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C0030673
    UMLS CUI [1,5]
    C3854240
    If the complication lead to an unplanned admission, indicate the total length of stay for all unplanned admissions due to complication within 1 year
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Numerical

    Tipo de datos

    integer

    Unidades de medida
    • days
    Alias
    UMLS CUI [1,1]
    C0184788
    UMLS CUI [1,2]
    C0009566
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C0030673
    UMLS CUI [1,5]
    C3854240
    UMLS CUI [1,6]
    C3640790
    days
    Healthcare utilization
    Descripción

    Healthcare utilization

    Alias
    UMLS CUI-1
    C0042153
    UMLS CUI-2
    C0086388
    How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months (IBD-related)?
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Numerical

    Tipo de datos

    integer

    Unidades de medida
    • times
    Alias
    UMLS CUI [1,1]
    C0574846
    UMLS CUI [1,2]
    C0019993
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C3887293
    times
    How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months ( IBD-related) for a planned admission?
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Numerical

    Tipo de datos

    integer

    Unidades de medida
    • times
    Alias
    UMLS CUI [1,1]
    C0574846
    UMLS CUI [1,2]
    C0019993
    UMLS CUI [1,3]
    C1301732
    UMLS CUI [1,4]
    C0021390
    UMLS CUI [1,5]
    C3887293
    times
    How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months (IBD-related) for a unplanned admission?
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Numerical

    Tipo de datos

    integer

    Unidades de medida
    • times
    Alias
    UMLS CUI [1,1]
    C0574846
    UMLS CUI [1,2]
    C0019993
    UMLS CUI [1,3]
    C3854240
    UMLS CUI [1,4]
    C0021390
    UMLS CUI [1,5]
    C3887293
    times
    Total length of all, (all-cause) admissions and readmissions within 1 year
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Numerical

    Tipo de datos

    integer

    Unidades de medida
    • days
    Alias
    UMLS CUI [1,1]
    C3640790
    UMLS CUI [1,2]
    C0021390
    UMLS CUI [1,3]
    C3887293
    days
    Total number of emergency room or emergency department visits within 1 year
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Numerical

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0574846
    UMLS CUI [1,2]
    C0583237
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C3887293
    Survival and Disease Control
    Descripción

    Survival and Disease Control

    Indicate if there is evidence of anaemia?
    Descripción

    Anaemia is defined by the WHO as a haemoglobin (at sea level) of <12.0 g/dl in non-pregnant women, <11.0g/dl in pregnant women and <13.5 g/dl in men INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0002871
    Is the patient clinically in remission?
    Descripción

    This could be determined using any recognised assessment or questionnaire. INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0544452
    UMLS CUI [1,2]
    C0205210
    UMLS CUI [1,3]
    C0021390
    Is the patient in biological remission?
    Descripción

    This could be determined using any approach, e.g. endoscopically, radiological, histologically INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0544452
    UMLS CUI [1,2]
    C0205460
    UMLS CUI [1,3]
    C0021390
    If the patient is in biological remission, how was this determined? 0= Endoscopically (e.g. endoscopy, colonoscopy)
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Multiple Answer

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1,1]
    C0544452
    UMLS CUI [1,2]
    C0205460
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C2911685
    UMLS CUI [1,5]
    C0014245
    If the patient is in biological remission, how was this determined? 1= Radiologically (e.g. fluoroscopy, CT, MRI)
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Multiple Answer

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1,1]
    C0544452
    UMLS CUI [1,2]
    C0205460
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C2911685
    UMLS CUI [1,5]
    C0011923
    If the patient is in biological remission, how was this determined? 2= Biochemistry (e.g. CRP, faecal calprotectin)
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Multiple Answer

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1,1]
    C0544452
    UMLS CUI [1,2]
    C0205460
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C2911685
    UMLS CUI [1,5]
    C0005477
    If the patient is in biological remission, how was this determined? 3=Histologically (tissue analysis)
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Multiple Answer

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1,1]
    C0544452
    UMLS CUI [1,2]
    C0205460
    UMLS CUI [1,3]
    C0021390
    UMLS CUI [1,4]
    C2911685
    UMLS CUI [1,5]
    C0205462
    In the last 6 months, my disease has been
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Patient reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C2707252
    UMLS CUI [1,2]
    C0021390
    UMLS CUI [1,3]
    C0747307
    Has colorectal cancer been diagnosed?
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0009402
    If colorectal cancer has been diagnosed, had colorectal dysplasia previously been diagnosed?
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0555952
    UMLS CUI [1,2]
    C0334044
    UMLS CUI [1,3]
    C0332152
    UMLS CUI [1,4]
    C0009402
    Indicate the date of death
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Numerical

    Tipo de datos

    date

    Unidades de medida
    • DD/MM/YYYY
    Alias
    UMLS CUI [1]
    C1148348
    DD/MM/YYYY
    Indicate if death was attributed to IBD
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0007465
    UMLS CUI [1,2]
    C0021390
    Indicate if death was attributed to an intervention for IBD
    Descripción

    INCLUSION CRITERIA: All Patients TIMING: Baseline and Follow-Up REPORTING SOURCE: Clinician reported TYPE: Single Answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0007465
    UMLS CUI [1,2]
    C0021390
    UMLS CUI [1,3]
    C0184661
    Volver a la parte superior de la página

    Similar models

    Outcome (Clinican reported)

    1 formularios
    Name
    Tipo
    Description | Question | Decode (Coded Value)
    Tipo de datos
    Alias
    Item Group
    Administrative Data
    C1320722 (UMLS CUI-1)
    Time Relative to Baseline
    Item
    Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
    text
    C0439564 (UMLS CUI [1,1])
    C1442488 (UMLS CUI [1,2])
    Patient ID
    Item
    Indicate the patient's medical record number
    integer
    C1269815 (UMLS CUI [1])
    Item Group
    Disutility of care
    C0231185 (UMLS CUI-1)
    C0086388 (UMLS CUI-2)
    C0021390 (UMLS CUI-3)
    Item
    Please indicate whether prednisolone has been used in the last 12 months
    integer
    C0281991 (UMLS CUI [1,1])
    C3887293 (UMLS CUI [1,2])
    Steroid use
    Code List
    Please indicate whether prednisolone has been used in the last 12 months
    CL Item
    No use of prednisolone in the last 12 months (0)
    CL Item
    Use of prednisolone in the last 12 months of less than 3 months total duration (1)
    CL Item
    Use of prednisolone in the last 12 months for more than 3 months total duration (2)
    Item
    Indicate whether the patient experienced a (unexpected or expected) complication whist during IBD intervention (this can be any type of intervention) or 3 months following intervention
    integer
    C0009566 (UMLS CUI [1,1])
    C0021390 (UMLS CUI [1,2])
    Occurrence of a complication
    Code List
    Indicate whether the patient experienced a (unexpected or expected) complication whist during IBD intervention (this can be any type of intervention) or 3 months following intervention
    CL Item
    No complication occurred (0)
    CL Item
    Yes, complication occurred (1)
    Item
    Indicate whether the patient experienced a (unexpected or expected) complication whist during IBD intervention (this can be any type of intervention) or 3 months following intervention
    integer
    C0184788 (UMLS CUI [1,1])
    C0009566 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    Outcome of the complication
    Code List
    Indicate whether the patient experienced a (unexpected or expected) complication whist during IBD intervention (this can be any type of intervention) or 3 months following intervention
    CL Item
    No further intervention required (0)
    CL Item
    Surgical intervention required (1)
    CL Item
    Radiological intervention required (2)
    CL Item
    Endoscopic intervention required (3)
    CL Item
    Medical intervention required (4)
    Item
    Did the complication lead to prolonged hospitalization
    integer
    C0184788 (UMLS CUI [1,1])
    C0009566 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C0745041 (UMLS CUI [1,4])
    Outcome of the complication - hospitalization
    Code List
    Did the complication lead to prolonged hospitalization
    CL Item
    Yes (0)
    CL Item
    No (1)
    CL Item
    Unknown (2)
    Outcome of the complication - hospitalization
    Item
    If the complication lead to prolonged hospitalization, indicate the total number of days the patient was hospitalized for
    integer
    C0184788 (UMLS CUI [1,1])
    C0009566 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C0745041 (UMLS CUI [1,4])
    C3640790 (UMLS CUI [1,5])
    Item
    Did the complication lead to an unplanned admission
    integer
    C0184788 (UMLS CUI [1,1])
    C0009566 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C0030673 (UMLS CUI [1,4])
    C3854240 (UMLS CUI [1,5])
    Outcome of the complication - unplanned admission
    Code List
    Did the complication lead to an unplanned admission
    CL Item
    Yes (0)
    CL Item
    No (1)
    CL Item
    Unknown (2)
    Outcome of the complication - unplanned admission
    Item
    If the complication lead to an unplanned admission, indicate the total length of stay for all unplanned admissions due to complication within 1 year
    integer
    C0184788 (UMLS CUI [1,1])
    C0009566 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C0030673 (UMLS CUI [1,4])
    C3854240 (UMLS CUI [1,5])
    C3640790 (UMLS CUI [1,6])
    Item Group
    Healthcare utilization
    C0042153 (UMLS CUI-1)
    C0086388 (UMLS CUI-2)
    All IBD-related admission to hospitals
    Item
    How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months (IBD-related)?
    integer
    C0574846 (UMLS CUI [1,1])
    C0019993 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C3887293 (UMLS CUI [1,4])
    All IBD-related planned admissions to hospitals
    Item
    How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months ( IBD-related) for a planned admission?
    integer
    C0574846 (UMLS CUI [1,1])
    C0019993 (UMLS CUI [1,2])
    C1301732 (UMLS CUI [1,3])
    C0021390 (UMLS CUI [1,4])
    C3887293 (UMLS CUI [1,5])
    All IBD-related unplanned admissions to hospitals
    Item
    How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months (IBD-related) for a unplanned admission?
    integer
    C0574846 (UMLS CUI [1,1])
    C0019993 (UMLS CUI [1,2])
    C3854240 (UMLS CUI [1,3])
    C0021390 (UMLS CUI [1,4])
    C3887293 (UMLS CUI [1,5])
    Total length of all admissions and readmissions
    Item
    Total length of all, (all-cause) admissions and readmissions within 1 year
    integer
    C3640790 (UMLS CUI [1,1])
    C0021390 (UMLS CUI [1,2])
    C3887293 (UMLS CUI [1,3])
    Total number of emergency room visits
    Item
    Total number of emergency room or emergency department visits within 1 year
    integer
    C0574846 (UMLS CUI [1,1])
    C0583237 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C3887293 (UMLS CUI [1,4])
    Item Group
    Survival and Disease Control
    Item
    Indicate if there is evidence of anaemia?
    integer
    C0002871 (UMLS CUI [1])
    Presence of anaemia
    Code List
    Indicate if there is evidence of anaemia?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (2)
    Item
    Is the patient clinically in remission?
    integer
    C0544452 (UMLS CUI [1,1])
    C0205210 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    Disease activity - clinical remission
    Code List
    Is the patient clinically in remission?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (2)
    Item
    Is the patient in biological remission?
    integer
    C0544452 (UMLS CUI [1,1])
    C0205460 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    Disease activity - biological remission
    Code List
    Is the patient in biological remission?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (2)
    Disease activity - method of determining biological remission: Endoscopy
    Item
    If the patient is in biological remission, how was this determined? 0= Endoscopically (e.g. endoscopy, colonoscopy)
    boolean
    C0544452 (UMLS CUI [1,1])
    C0205460 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C2911685 (UMLS CUI [1,4])
    C0014245 (UMLS CUI [1,5])
    Disease activity - method of determining biological remission: Radiological
    Item
    If the patient is in biological remission, how was this determined? 1= Radiologically (e.g. fluoroscopy, CT, MRI)
    boolean
    C0544452 (UMLS CUI [1,1])
    C0205460 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C2911685 (UMLS CUI [1,4])
    C0011923 (UMLS CUI [1,5])
    Disease activity - method of determining biological remission: Biochemistry
    Item
    If the patient is in biological remission, how was this determined? 2= Biochemistry (e.g. CRP, faecal calprotectin)
    boolean
    C0544452 (UMLS CUI [1,1])
    C0205460 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C2911685 (UMLS CUI [1,4])
    C0005477 (UMLS CUI [1,5])
    Disease activity - method of determining biological remission: Histologically
    Item
    If the patient is in biological remission, how was this determined? 3=Histologically (tissue analysis)
    boolean
    C0544452 (UMLS CUI [1,1])
    C0205460 (UMLS CUI [1,2])
    C0021390 (UMLS CUI [1,3])
    C2911685 (UMLS CUI [1,4])
    C0205462 (UMLS CUI [1,5])
    Item
    In the last 6 months, my disease has been
    integer
    C2707252 (UMLS CUI [1,1])
    C0021390 (UMLS CUI [1,2])
    C0747307 (UMLS CUI [1,3])
    Disease activity
    Code List
    In the last 6 months, my disease has been
    CL Item
    Constantly active giving me symptoms every day (0)
    CL Item
    Often active, giving me symptoms most days (1)
    CL Item
    Sometimes active, giving me symptoms on some days (for instance 1–2 days/week) (2)
    CL Item
    Occasionally active, giving me symptoms 1–2 days/month; (3)
    CL Item
    Rarely active, giving me symptoms on a few days in the past 6 months (4)
    CL Item
    I was well in the past 6 months, what I consider a remission or absence of symptoms (5)
    Item
    Has colorectal cancer been diagnosed?
    integer
    C0009402 (UMLS CUI [1])
    Colorectal cancer
    Code List
    Has colorectal cancer been diagnosed?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (2)
    Item
    If colorectal cancer has been diagnosed, had colorectal dysplasia previously been diagnosed?
    integer
    C0555952 (UMLS CUI [1,1])
    C0334044 (UMLS CUI [1,2])
    C0332152 (UMLS CUI [1,3])
    C0009402 (UMLS CUI [1,4])
    Colorectal dysplasia
    Code List
    If colorectal cancer has been diagnosed, had colorectal dysplasia previously been diagnosed?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (2)
    Date of death
    Item
    Indicate the date of death
    date
    C1148348 (UMLS CUI [1])
    Item
    Indicate if death was attributed to IBD
    integer
    C0007465 (UMLS CUI [1,1])
    C0021390 (UMLS CUI [1,2])
    Cause of death attributable to IBD
    Code List
    Indicate if death was attributed to IBD
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (2)
    Item
    Indicate if death was attributed to an intervention for IBD
    integer
    C0007465 (UMLS CUI [1,1])
    C0021390 (UMLS CUI [1,2])
    C0184661 (UMLS CUI [1,3])
    Cause of death attributable to IBD-related intervention
    Code List
    Indicate if death was attributed to an intervention for IBD
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (2)
    Volver a la parte superior de la página 

    Ayuda

    Do you need help on how to use the search function? Please watch the corresponding tutorial video for more details and learn how to use the search function most efficiently.

    Watch Tutorial