Informatie:
Fout:
ID
28830
Beschrijving
Description of registry: The aim of the National Quality Registry for Breast Cancer is to: -in an objective and standardised manner, monitor the continuum of care from diagnosis to any recurrence and death -enable the identification of regional differences -collectively relate to current guidelines and quality targets set by specialist associations and the National Board of Health and Welfare -facilitate research and developments in breast cancer. Report Source: http://www.cancercentrum.se/samverkan/cancerdiagnoser/brost/kvalitetsregister/dokument/ Facts Owner: Kerstin Sandelin surgeon, Karolinska University Hospital, Solna kerstin.sandelin@sll.se
Link
http://www.cancercentrum.se/samverkan/cancerdiagnoser/brost/kvalitetsregister/dokument/
Trefwoorden
Versies (1)
- 07-02-18 07-02-18 -
Houder van rechten
cancercentrum.se (Bröst)
Geüploaded op
7 februari 2018
DOI
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Licentie
Creative Commons BY-NC 3.0
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Breast Cancer Swedish National Quality Registry
Similar models
Report
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
National Quality Register for Breast Cancer, Local Recurrence post surgery / remote metastasis
C0678222 (UMLS CUI-1)
C0034975 (UMLS CUI-2)
C0034975 (UMLS CUI-2)
Hospital, clinic
Item
Hospital, clinic
text
C0019994 (UMLS CUI [1])
C0442592 (UMLS CUI [2])
C0442592 (UMLS CUI [2])
Correspondent
Item
Correspondent
text
C0337611 (UMLS CUI [1])
Reporting Date
Item
Reporting Date
date
C0011008 (UMLS CUI [1])
Personal ID
Item
Personal ID
text
C2348585 (UMLS CUI [1])
Patient name
Item
Patient name
text
C1299487 (UMLS CUI [1])
Notifying doctor
Item
Notifying doctor
text
C1710470 (UMLS CUI [1])
Item
breast cancer side
integer
C0678222 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,2])
CL Item
Right (1)
CL Item
Left (2)
Operating hospital
Item
Operating hospital
text
C0543467 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0019994 (UMLS CUI [1,2])
Operating unit
Item
Operating unit
text
C0543467 (UMLS CUI [1,1])
C0587450 (UMLS CUI [1,2])
C0587450 (UMLS CUI [1,2])
Item
The same hospital and unit as above is responsible for reporting:
integer
C0019961 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
C0700287 (UMLS CUI [1,2])
Code List
The same hospital and unit as above is responsible for reporting:
CL Item
Follow-up (1)
CL Item
Oncological treatment (2)
Responsible department for oncological treatment
Item
Responsible department for oncological treatment
text
C0087111 (UMLS CUI [1,1])
C0587450 (UMLS CUI [1,2])
C0700287 (UMLS CUI [1,3])
C0587450 (UMLS CUI [1,2])
C0700287 (UMLS CUI [1,3])
Item
The same hospital and unit as above is responsible for reporting:
integer
C0087111 (UMLS CUI [1,1])
C0587450 (UMLS CUI [1,2])
C0700287 (UMLS CUI [1,3])
C0587450 (UMLS CUI [1,2])
C0700287 (UMLS CUI [1,3])
Code List
The same hospital and unit as above is responsible for reporting:
CL Item
Follow-up (1)
CL Item
Oncological treatment (2)
Diagnosis date for well-founded suspicion of cancer
Item
Diagnosis date for well-founded suspicion of cancer
date
C2316983 (UMLS CUI [1,1])
C0678222 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,2])
Date 1st visit to specialized care:
Item
Date 1st visit to specialized care:
date
C1511300 (UMLS CUI [1,1])
C1320303 (UMLS CUI [1,2])
C1320303 (UMLS CUI [1,2])
Item
Screening discovery (refers to non-mammography on their own initiative or after referral only through the organized screening)
integer
C0220908 (UMLS CUI [1,1])
C0678222 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,2])
Code List
Screening discovery (refers to non-mammography on their own initiative or after referral only through the organized screening)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
Preoperatively determined malignancy
integer
C0006826 (UMLS CUI [1,1])
C0678222 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,2])
Code List
Preoperatively determined malignancy
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
Reason for diagnosis
integer
C0011900 (UMLS CUI [1,1])
C0430022 (UMLS CUI [1,2])
C0430022 (UMLS CUI [1,2])
CL Item
Clinical examination (1)
CL Item
X-ray, scintigraphy, ultrasound, MRI or similar examination (2)
CL Item
PAD-verified diagnosis (eg, middle needle, groin needle, test excision or surgery with histopathological examination) (3)
CL Item
Cytological examination (focal point) (4)
Diagnostic pathology / cytology department
Item
Diagnostic pathology / cytology department
text
C0030664 (UMLS CUI [1,1])
C1305671 (UMLS CUI [1,2])
C1305671 (UMLS CUI [1,2])
Specimen identifier
Item
Specimen identifier
text
C0370003 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
C0600091 (UMLS CUI [1,2])
Pathologist
Item
Pathologist
text
C0334866 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
C0600091 (UMLS CUI [1,2])
CL Item
Premenopausal (<6 months after last menstrual period) (1)
CL Item
Postmenopausal (≥ 6 months after last menstrual period) (2)
CL Item
Uncertain (eg hysterectomy) (3)
CL Item
Data missing, not applicable (eg for men) (4)
Item
T-classification - primary tumor
integer
C0475455 (UMLS CUI [1,1])
C0677930 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,3])
C0677930 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,3])
CL Item
T0 No apparent primary tumor (1)
CL Item
Tis Cancer in situ (2)
CL Item
T1 Tumor ≤ 20 mm (3)
CL Item
T2 Tumor> 20 and ≤ 50 mm (4)
CL Item
T3 Tumor> 50 mm (5)
CL Item
T4a Fixed to the chest wall (6)
CL Item
T4b Ulceration, ipsilateral cutaneous satellite tumor or skin edema (incl. Peau d'orange) (7)
CL Item
T4c Both T4a and T4b (8)
CL Item
T4d Inflammatory breast cancer (9)
CL Item
TX Primary tumor can not be estimated (10)
Item
N-Classification - Regional lymph nodes
integer
C0456532 (UMLS CUI [1,1])
C0024204 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,3])
C0024204 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,3])
CL Item
N0 No regional lymph node metastases (1)
CL Item
N1 Detached lymphatic metastasis (s) in the axile ipsilateral (2)
CL Item
N2 Fixed (-e) lymph node metastasis (s) in the axile ipsilateral or intramammary without axillary metastases (3)
CL Item
N3 Lymphatic Metastasis (s) in Fossil Scl / Ic ipsilateral or intramammary in combination with axillary metastases (4)
CL Item
NX lymph nodes can not be estimated (5)
Item
M classification - Metastasis
integer
C0456533 (UMLS CUI [1,1])
C0678222 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,2])
CL Item
M0 No known remote metastases (1)
CL Item
M1 Remote Metastasis exists (2)
Item Group
Care planning
C0017313 (UMLS CUI-1)
C0679909 (UMLS CUI-2)
C0678222 (UMLS CUI-3)
C0679909 (UMLS CUI-2)
C0678222 (UMLS CUI-3)
Date of first treatment discussion
Item
Date of first treatment discussion
date
C2584313 (UMLS CUI [1,1])
C3173309 (UMLS CUI [1,2])
C3173309 (UMLS CUI [1,2])
Item
Has the patient been offered, in the journal documented, contact nurse?
integer
C0028661 (UMLS CUI [1,1])
C0332158 (UMLS CUI [1,2])
C0332158 (UMLS CUI [1,2])
Code List
Has the patient been offered, in the journal documented, contact nurse?
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
Has a written individual care plan (My Care Plan XV019) been prepared in consultation with the patient?
integer
C0178916 (UMLS CUI [1])
Code List
Has a written individual care plan (My Care Plan XV019) been prepared in consultation with the patient?
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
Preoperative MDK (multidisciplinary / multiprofessional conference)
integer
C0178898 (UMLS CUI [1,1])
C0445204 (UMLS CUI [1,2])
C0445204 (UMLS CUI [1,2])
Code List
Preoperative MDK (multidisciplinary / multiprofessional conference)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
The patient is included in the study
integer
C2348568 (UMLS CUI [1])
Code List
The patient is included in the study
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
Planned treatment
integer
C3641097 (UMLS CUI [1,1])
C0678222 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,2])
CL Item
Primary operation (if this option is selected, the form is completed) (1)
CL Item
Preoperative oncological treatment / Conservative treatment (indicate below oncological treatment as planned and pathology data) (2)
CL Item
Not operation / remote metastasis / diagnosis (please indicate the reason for non-operation and fill in pathology data) (3)
Item
Indicate which preoperative oncological treatment / conservative treatment as planned
integer
C1960751 (UMLS CUI [1,1])
C0678222 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,2])
Code List
Indicate which preoperative oncological treatment / conservative treatment as planned
CL Item
Chemotherapy (1)
CL Item
Radiation treatment (2)
CL Item
Endocrine treatment (3)
CL Item
Antibody treatment (4)
Item
No operation, state reason
integer
C0543467 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
CL Item
Local advanced disease (1)
CL Item
Remote Metastasis (2)
CL Item
Other cause (3)
Item Group
Pathology from intervention / needle core biopsy
C1318309 (UMLS CUI-1)
C0030664 (UMLS CUI-2)
C0678222 (UMLS CUI-3)
C0030664 (UMLS CUI-2)
C0678222 (UMLS CUI-3)
CL Item
Invasive cancer with or without cancer in situ (1)
CL Item
Only cancer in situ (2)
CL Item
Assessment not possible (3)
CL Item
Only cytology or tests not performed (4)
Pathology Department
Item
Pathology Department
text
C0030664 (UMLS CUI [1,1])
C0587450 (UMLS CUI [1,2])
C0884358 (UMLS CUI [1,3])
C0587450 (UMLS CUI [1,2])
C0884358 (UMLS CUI [1,3])
Specimen identifier
Item
Specimen identifier
text
C0370003 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
C0600091 (UMLS CUI [1,2])
Pathologist
Item
Pathologist
text
C0334866 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
C0600091 (UMLS CUI [1,2])
Item
Type of invasive cancer
integer
C0853879 (UMLS CUI [1,1])
C0449574 (UMLS CUI [1,2])
C0449574 (UMLS CUI [1,2])
CL Item
Only ductal cancer (85003) (1)
CL Item
Both ductal and lobular cancer (85223) (2)
CL Item
Ductal and other types than lobular cancer (85233) (3)
CL Item
Only lobular cancer (85203) (4)
CL Item
Other invasive cancer, which (5)
Item
Type of cancer in situ
integer
C0686288 (UMLS CUI [1,1])
C0449574 (UMLS CUI [1,2])
C0449574 (UMLS CUI [1,2])
CL Item
Ductal cancer in situ (85002) (1)
CL Item
Lobular cancer in situ (85202) (2)
CL Item
Ductal and lobular cancer in situ (85222) (3)
CL Item
Other cancer in situ, which (4)
CL Item
Positive (1)
CL Item
Negative (2)
CL Item
Not performed (3)
CL Item
Not judicious / data is missing (4)
CL Item
Positive (1)
CL Item
Negative (2)
CL Item
Not performed (3)
CL Item
Not judicious / data is missing (4)
CL Item
0-1 + (1)
CL Item
2+ (2)
CL Item
3+ (3)
CL Item
Not performed (4)
CL Item
Not judicious / data missing (5)
Item
HER2 FISH
integer
C1512127 (UMLS CUI [1,1])
C0162789 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,3])
C0162789 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,3])
CL Item
Amplified (1)
CL Item
Not amplified (2)
CL Item
Not performed (3)
CL Item
Not judicious / data is missing (4)
CL Item
Low (1)
CL Item
High (2)
CL Item
Not performed (3)
CL Item
Not judicious / data is missing (4)