ID

28421

Description

Description of registry: The aim of the National Quality Registry for Breast Cancer is to: -in an objective and standardised manner, monitor the continuum of care from diagnosis to any recurrence and death -enable the identification of regional differences -collectively relate to current guidelines and quality targets set by specialist associations and the National Board of Health and Welfare -facilitate research and developments in breast cancer. Follow-up Source: http://www.cancercentrum.se/samverkan/cancerdiagnoser/brost/kvalitetsregister/dokument/ Facts Owner: Kerstin Sandelin surgeon, Karolinska University Hospital, Solna kerstin.sandelin@sll.se

Link

http://www.cancercentrum.se/samverkan/cancerdiagnoser/brost/kvalitetsregister/dokument/

Keywords

Versions (1)
  1. 1/12/18 1/12/18 -
Copyright Holder

cancercentrum.se (Bröst)

Uploaded on

January 12, 2018

DOI

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License

Creative Commons BY-NC 3.0
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Breast Cancer Swedish National Quality Registry

English ( localization.languageCode.US ) Swedish

Follow-up

1 forms  
  1. StudyEvent: ODM
    1. Follow-up
National Quality Register for Breast Cancer, Follow-up
Description

National Quality Register for Breast Cancer, Follow-up

Alias
UMLS CUI-1
C0678222
UMLS CUI-2
C1522577
UMLS CUI-3
C0034975
Hospital, clinic
Description

Hospital, clinic

Data type

text

Alias
UMLS CUI [1]
C0019994
UMLS CUI [2]
C0442592
Correspondent
Description

Correspondent

Data type

text

Alias
UMLS CUI [1]
C0337611
Reporting Date
Description

Reporting Date

Data type

date

Alias
UMLS CUI [1]
C0011008
Personal ID
Description

Personal ID

Data type

text

Alias
UMLS CUI [1]
C2348585
Patient name
Description

Patient name

Data type

text

Alias
UMLS CUI [1]
C1299487
Notifying doctor
Description

Notifying doctor

Data type

text

Alias
UMLS CUI [1]
C1710470
breast cancer side
Description

breast cancer side

Data type

integer

Alias
UMLS CUI [1,1]
C0678222
UMLS CUI [1,2]
C0441987
Date of last contact
Description

Date of last contact

Data type

date

Alias
UMLS CUI [1]
C0805839
Post surgery adjuvant endocrine therapy
Description

Post surgery adjuvant endocrine therapy

Alias
UMLS CUI-1
C0279025
UMLS CUI-2
C0032790
UMLS CUI-3
C1522673
UMLS CUI-4
C0678222
Post surgery adjuvant endocrine therapy
Description

Post surgery adjuvant endocrine therapy

Data type

integer

Alias
UMLS CUI [1,1]
C0279025
UMLS CUI [1,2]
C0032790
UMLS CUI [1,3]
C1522673
5-year treatment prematurely discontinued: Cause of interruption / change
Description

Cause of interruption

Data type

integer

Alias
UMLS CUI [1,1]
C0279025
UMLS CUI [1,2]
C1512900
UMLS CUI [1,3]
C0392360
Endocrine treatment ongoing / previous given treatment (several may be indicated)
Description

previous given treatment

Data type

integer

Alias
UMLS CUI [1,1]
C0279025
UMLS CUI [1,2]
C2360065
The patient has been offered (and accepted) prolonged endocrine treatment after 5 years
Description

prolonged endocrine treatment

Data type

boolean

Alias
UMLS CUI [1]
C0279025
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Similar models

Follow-up

1 forms
  1. StudyEvent: ODM
    1. Follow-up
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
National Quality Register for Breast Cancer, Follow-up
C0678222 (UMLS CUI-1)
C1522577 (UMLS CUI-2)
C0034975 (UMLS CUI-3)
Hospital, clinic
Item
Hospital, clinic
text
C0019994 (UMLS CUI [1])
C0442592 (UMLS CUI [2])
Correspondent
Item
Correspondent
text
C0337611 (UMLS CUI [1])
Reporting Date
Item
Reporting Date
date
C0011008 (UMLS CUI [1])
Personal ID
Item
Personal ID
text
C2348585 (UMLS CUI [1])
Patient name
Item
Patient name
text
C1299487 (UMLS CUI [1])
Notifying doctor
Item
Notifying doctor
text
C1710470 (UMLS CUI [1])
Item
breast cancer side
integer
C0678222 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])
breast cancer side
Code List
breast cancer side
CL Item
Right (1)
CL Item
Left (2)
CL Item
Both breasts (3)
Date of last contact
Item
Date of last contact
date
C0805839 (UMLS CUI [1])
Item Group
Post surgery adjuvant endocrine therapy
C0279025 (UMLS CUI-1)
C0032790 (UMLS CUI-2)
C1522673 (UMLS CUI-3)
C0678222 (UMLS CUI-4)
Item
Post surgery adjuvant endocrine therapy
integer
C0279025 (UMLS CUI [1,1])
C0032790 (UMLS CUI [1,2])
C1522673 (UMLS CUI [1,3])
Post surgery adjuvant endocrine therapy
Code List
Post surgery adjuvant endocrine therapy
CL Item
5 years of treatment in progress (1)
CL Item
5 years of treatment interrupted prematurely (2)
CL Item
5 years of treatment completed and reported in the final report (3)
CL Item
5-year treatment already final reported (4)
CL Item
Never received postoperative endocrine treatment (5)
CL Item
Data missing (6)
Item
5-year treatment prematurely discontinued: Cause of interruption / change
integer
C0279025 (UMLS CUI [1,1])
C1512900 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,3])
5-year treatment prematurely discontinued: Cause of interruption / change
Code List
5-year treatment prematurely discontinued: Cause of interruption / change
CL Item
Side effects (1)
CL Item
Other cause (2)
CL Item
Missing data (3)
Item
Endocrine treatment ongoing / previous given treatment (several may be indicated)
integer
C0279025 (UMLS CUI [1,1])
C2360065 (UMLS CUI [1,2])
Endocrine treatment ongoing / previous given treatment (several may be indicated)
Code List
Endocrine treatment ongoing / previous given treatment (several may be indicated)
CL Item
Tamoxifen (1)
CL Item
Aromatase inhibitors (2)
CL Item
GnRH (3)
CL Item
Other endocrine treatment (4)
prolonged endocrine treatment
Item
The patient has been offered (and accepted) prolonged endocrine treatment after 5 years
boolean
C0279025 (UMLS CUI [1])
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