ID

28356

Description

Swedish Heart Failure Registry (RiksSvikt/SwedeHF) Sweden has a long tradition of measuring results and performance of the given health care. In order to stimulate to achieve better results, we try to find explanations for the discrepancies between different regions/hospitals/primary care units. In recent years, quality registries have become an increasingly important source of Swedish clinical research. SwedeHF (or RiksSvikt) was created in order to give the participating units knowledge, about how they diagnosed and treated their patients. The given information obtains indications where further efforts are needed in order to give patients with heart failure an optimal management. SwedeHF is an Internet-based registry, where participating units register their heart failure patient on-line, using transferred data from standardized forms or from computerized patients records. SHFR Hospital

Keywords

  1. 10/7/17 10/7/17 - Martin Dugas
  2. 10/7/17 10/7/17 - Martin Dugas
  3. 10/7/17 10/7/17 - Martin Dugas
  4. 10/10/17 10/10/17 - Martin Dugas
  5. 10/10/17 10/10/17 - Martin Dugas
  6. 10/13/17 10/13/17 - Martin Dugas
  7. 1/6/18 1/6/18 -
  8. 9/20/21 9/20/21 -
Copyright Holder

RiksSvikt

Uploaded on

January 6, 2018

DOI

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License

Creative Commons BY-NC 3.0

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Swedish Heart Failure Registry (RiksSvikt)

SHFR Hospital

  1. StudyEvent: ODM
    1. SHFR Hospital
Demography and Lifestyle at admission
Description

Demography and Lifestyle at admission

Alias
UMLS CUI-1
C0011298
UMLS CUI-2
C0023676
UMLS CUI-3
C0030673
Date of Admission/date of visit
Description

Date of Admission

Data type

date

Alias
UMLS CUI [1]
C1302393
Date of discharge
Description

Date of discharge

Data type

date

Alias
UMLS CUI [1]
C2361123
Caregiver
Description

Caregiver

Data type

integer

Alias
UMLS CUI [1]
C0085537
Clinic
Description

Clinic

Data type

integer

Alias
UMLS CUI [1,1]
C0442592
UMLS CUI [1,2]
C0019961
Reason for hospitalization/visit
Description

Reason for hospitalization

Data type

integer

Alias
UMLS CUI [1]
C1830395
Previous Chronic Heart Failure hospitalization
Description

Previous hospitalization

Data type

integer

Alias
UMLS CUI [1]
C2114455
Duration of Heart Failure
Description

Heart Failure Duration

Data type

integer

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0449238
Lifestyles and quality of life acquired at the time of care?
Description

Lifestyles and quality of life questionnaire

Data type

integer

Alias
UMLS CUI [1,1]
C0034380
UMLS CUI [1,2]
C0023676
UMLS CUI [1,3]
C0034394
Relationship status
Description

Relationship status

Data type

integer

Alias
UMLS CUI [1]
C0439849
living situation
Description

living situation

Data type

integer

Alias
UMLS CUI [1]
C2184149
Participation in organized physical exercise for heart failure
Description

Participation in organized physical exercise for heart failure

Data type

integer

Alias
UMLS CUI [1,1]
C1535955
UMLS CUI [1,2]
C0018801
UMLS CUI [1,3]
C2348568
Participation in heart failure school
Description

Participation in heart failure school

Data type

integer

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0036375
UMLS CUI [1,3]
C2348568
Tobacco – Smoking habits
Description

Tobacco

Data type

integer

Alias
UMLS CUI [1]
C0543414
Tobacco – snuff habits
Description

Tobacco

Data type

integer

Alias
UMLS CUI [1,1]
C0543414
UMLS CUI [1,2]
C0008038
How many standard drinks do You drink a usual week?
Description

Alcohol

Data type

integer

Alias
UMLS CUI [1]
C0001948
How often do You as a woman drink 4 standard drinks and You as a man 5 standard drinks or more at one time?
Description

Alcohol

Data type

integer

Alias
UMLS CUI [1]
C0001948
Patient self rated symptoms at discharge or after visit
Description

Patient self rated symptoms at discharge or after visit

Alias
UMLS CUI-1
C2987124
Fatigue
Description

Fatigue

Data type

integer

Alias
UMLS CUI [1]
C0015672
Shortness of breath
Description

Shortness of breath

Data type

integer

Alias
UMLS CUI [1]
C0013404
Mobility
Description

Mobility

Data type

integer

Alias
UMLS CUI [1]
C0449580
Self Care
Description

Self Care

Data type

integer

Alias
UMLS CUI [1]
C0474417
Usual activities
Description

Usual activities

Data type

integer

Alias
UMLS CUI [1]
C0001288
Pain/discomfort
Description

Pain/discomfort

Data type

integer

Alias
UMLS CUI [1]
C0030193
Anxiety/depression
Description

Anxiety/depression

Data type

integer

Alias
UMLS CUI [1,1]
C0003467
UMLS CUI [1,2]
C0011581
Quality of Life
Description

Quality of Life

Data type

integer

Alias
UMLS CUI [1]
C0034380
Previous or current diseases
Description

Previous or current diseases

Alias
UMLS CUI-1
C0262926
Previous MI
Description

History of myocardial infarction

Data type

integer

Alias
UMLS CUI [1]
C1275835
Hypertension
Description

Hypertension

Data type

integer

Alias
UMLS CUI [1]
C0020538
Atrial fibrillation/flutter
Description

Atrial arrhythmia

Data type

integer

Alias
UMLS CUI [1,1]
C0085611
UMLS CUI [1,2]
C0004238
Diabetes
Description

Diabetes

Data type

integer

Alias
UMLS CUI [1]
C0011849
COPD
Description

COPD

Data type

integer

Alias
UMLS CUI [1]
C0024117
Heart Valve disease
Description

Heart Valve disease

Data type

integer

Alias
UMLS CUI [1]
C0018824
Dilated cardiomyopathy
Description

Dilated cardiomyopathy

Data type

integer

Alias
UMLS CUI [1]
C0007193
Other serious illness that causes deviations from treatment guidelines
Description

Other serious illness

Data type

integer

Alias
UMLS CUI [1]
C3258154
Primary etiology
Description

Primary etiology

Data type

integer

Alias
UMLS CUI [1,1]
C1314792
UMLS CUI [1,2]
C0018799
Performed procedures ever
Description

Performed procedures ever

Alias
UMLS CUI-1
C2985643
UMLS CUI-2
C0189573
UMLS CUI-3
C0262926
Revascularization
Description

Revascularization

Data type

integer

Alias
UMLS CUI [1]
C0581603
Heart Valve Surgery
Description

Heart Valve Surgery

Data type

integer

Alias
UMLS CUI [1,1]
C0018826
UMLS CUI [1,2]
C0543467
Diagnostics at discharge or after visit
Description

Diagnostics at discharge or after visit

Alias
UMLS CUI-1
C0430022
ECG rhythm
Description

ECG rhythm

Data type

integer

Alias
UMLS CUI [1,1]
C0232187
UMLS CUI [1,2]
C1623258
Left Bundle Branch Block (LBBB)
Description

Left Bundle Branch Block

Data type

integer

Alias
UMLS CUI [1]
C0023211
QRS-width
Description

QRS-width

Data type

float

Measurement units
  • ms
Alias
UMLS CUI [1]
C0429025
ms
Heart Rate
Description

Heart Rate

Data type

integer

Measurement units
  • bpm
Alias
UMLS CUI [1]
C0018810
bpm
LVEF %
Description

LVEF

Data type

integer

Measurement units
  • %
Alias
UMLS CUI [1]
C0428772
LVEF method
Description

LVEF method

Data type

integer

Alias
UMLS CUI [1]
C2708658
Chest X-ray for diagnosis
Description

Chest X-ray

Data type

integer

Alias
UMLS CUI [1]
C0039985
Exercise ECG for diagnosis
Description

Exercise ECG

Data type

integer

Alias
UMLS CUI [1]
C1304755
Spirometry for diagnosis
Description

Spirometry

Data type

integer

Alias
UMLS CUI [1]
C0037981
Biometrics and physical signs at discharge or after visit
Description

Biometrics and physical signs at discharge or after visit

Alias
UMLS CUI-1
C0587081
UMLS CUI-2
C0031809
Height
Description

Height

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0005890
cm
Weight
Description

Weight

Data type

float

Measurement units
  • kg
Alias
UMLS CUI [1]
C0005910
kg
B-HB
Description

Hemoglobin

Data type

float

Measurement units
  • g/L
Alias
UMLS CUI [1]
C0518015
g/L
S-Creatinine
Description

Serum Creatinine

Data type

float

Measurement units
  • μmol/L
Alias
UMLS CUI [1]
C0201976
μmol/L
S-Potassium
Description

Potassium

Data type

float

Measurement units
  • mmol/L
Alias
UMLS CUI [1]
C0202194
mmol/L
S-Sodium
Description

Sodium

Data type

float

Measurement units
  • mmol/L
Alias
UMLS CUI [1]
C0337443
mmol/L
BP systolic
Description

Systolic BP

Data type

float

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0871470
mmHg
BP diastolic
Description

Diastolic BP

Data type

float

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0428883
mmHg
e-GFR
Description

GFR

Data type

float

Alias
UMLS CUI [1]
C0017654
B-type Natriuretic Peptide
Description

BNP

Data type

float

Measurement units
  • pg/ml
Alias
UMLS CUI [1]
C1095989
pg/ml
BNPT
Description

NT-proBNP

Data type

float

Measurement units
  • pg/ml
Alias
UMLS CUI [1]
C3272900
pg/ml
S-Ferritin
Description

S-Ferritin

Data type

float

Measurement units
  • µg/l
Alias
UMLS CUI [1]
C0373607
µg/l
P-Transferrin mättnad
Description

P-transferrin saturation

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C1277709
%
NYHA classification
Description

NYHA classification

Data type

integer

Alias
UMLS CUI [1]
C1275491
Treatment at discharge or at date of visit
Description

Treatment at discharge or at date of visit

Alias
UMLS CUI-1
C1553894
UMLS CUI-2
C0013227
UMLS CUI-3
C0087111
ACE-Inhibitor
Description

ACE-Inhibitor

Data type

integer

Alias
UMLS CUI [1]
C0003015
Pharmacological name of the ACE-inhibitor
Description

Substance name ACE-Inhibitor

Data type

integer

Alias
UMLS CUI [1,1]
C2360065
UMLS CUI [1,2]
C0003015
Dose of ACE-Inhibitor
Description

Dose ACE inhibitor

Data type

float

Measurement units
  • mg/24hrs
Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C0003015
mg/24hrs
A2-blocker/ARB
Description

A2-blocker/ARB

Data type

integer

Alias
UMLS CUI [1]
C2936570
UMLS CUI [2]
C0521942
Substance name A2-Blocker/ARB
Description

Substance name A2-Blocker/ARB

Data type

integer

Alias
UMLS CUI [1,1]
C2360065
UMLS CUI [1,2]
C2936570
UMLS CUI [1,3]
C0521942
Dose RAS
Description

Dose RAS

Data type

float

Measurement units
  • mg/dygn
Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C2936570
UMLS CUI [1,3]
C0521942
mg/dygn
Betablocker
Description

Betablocker

Data type

integer

Alias
UMLS CUI [1]
C0001645
substance name betablocker
Description

substance name betablocker

Data type

integer

Alias
UMLS CUI [1,1]
C2360065
UMLS CUI [1,2]
C0001645
dose betablocker
Description

dose betablocker

Data type

float

Measurement units
  • mg/dygn
Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C0001645
mg/dygn
Mineralocorticoid Receptor Antagonists (MRA)
Description

Mineralocorticoid Receptor Antagonist

Data type

integer

Alias
UMLS CUI [1]
C1579268
Mineralocorticoid Receptor Antagonists (MRA) Type
Description

MRA substance name

Data type

integer

Alias
UMLS CUI [1,1]
C2360065
UMLS CUI [1,2]
C1579268
If MRA state Dose
Description

Dose MRA

Data type

float

Measurement units
  • mg/24hrs
Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C1579268
mg/24hrs
Diuretics
Description

Diuretics

Data type

integer

Alias
UMLS CUI [1]
C0012798
if Loopdiuretics state Dose
Description

Dose loop diuretics

Data type

float

Measurement units
  • mg/24hrs
Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C0354100
mg/24hrs
substance name loop diuretics
Description

substance name loop diuretics

Data type

integer

Alias
UMLS CUI [1,1]
C2360065
UMLS CUI [1,2]
C0354100
Digitalis
Description

Digitalis

Data type

integer

Alias
UMLS CUI [1]
C0012253
Statins
Description

Statins

Data type

integer

Alias
UMLS CUI [1]
C0360714
i.v. inotropic support type
Description

inotropic support

Data type

integer

Alias
UMLS CUI [1]
C0304509
substance name inotropic support
Description

substance name inotropic support

Data type

integer

Alias
UMLS CUI [1,1]
C2360065
UMLS CUI [1,2]
C0304509
dose inotropic support
Description

dose inotropic support

Data type

float

Measurement units
  • mg/dygn
Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C0304509
mg/dygn
Long acting nitrates
Description

Long acting nitrates

Data type

integer

Alias
UMLS CUI [1,1]
C0028125
UMLS CUI [1,2]
C0439591
Anticoagulants
Description

Anticoagulants

Data type

integer

Alias
UMLS CUI [1]
C0003280
ASA or antiplatelet
Description

antiplatelet

Data type

integer

Alias
UMLS CUI [1]
C1096021
Number of non CV drugs
Description

Number of non cardiovascular drugs

Data type

integer

Alias
UMLS CUI [1,1]
C1718138
UMLS CUI [1,2]
C0205394
Device therapy
Description

Device therapy

Data type

integer

Alias
UMLS CUI [1]
C1504335
Participating/participated in organized physical training
Description

physical training

Data type

integer

Alias
UMLS CUI [1]
C1535955
Deceased during hospitalization
Description

Deceased during hospitalization

Data type

integer

Alias
UMLS CUI [1]
C3260027
Patient and relative Information
Description

Patient and relative Information

Alias
UMLS CUI-1
C1955348
UMLS CUI-2
C0080103
UMLS CUI-3
C1533716
Heart failure information given
Description

Heart failure information given

Data type

integer

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C1533716
Relatives / close associates participated
Description

Relatives / close associates participated

Data type

integer

Alias
UMLS CUI [1,1]
C0080103
UMLS CUI [1,2]
C0679823
Conversation about prognosis and disease progression
Description

Conversation about prognosis and disease progression

Data type

integer

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0242656
UMLS CUI [1,3]
C0023671
UMLS CUI [2]
C0018801
Is palliative care relevant?
Description

palliative care

Data type

integer

Alias
UMLS CUI [1]
C0030231
Recieves patient palliative care
Description

palliative care

Data type

integer

Alias
UMLS CUI [1]
C0030231
Planned Follow-Up
Description

Planned Follow-Up

Alias
UMLS CUI-1
C1522577
Follow up – level of care
Description

Monitoring follow up - Care Level

Data type

integer

Alias
UMLS CUI [1,1]
C1547668
UMLS CUI [1,2]
C1522577
Follow-up - Heart failure monitoring
Description

Follow-up - Heart failure monitoring

Data type

integer

Alias
UMLS CUI [1,1]
C1522577
UMLS CUI [1,2]
C0018801
UMLS CUI [1,3]
C0030695
Follow-Up Monitoring unit
Description

Follow-Up Monitoring unit

Data type

integer

Alias
UMLS CUI [1,1]
C1522577
UMLS CUI [1,2]
C0030695
UMLS CUI [1,3]
C0019961

Similar models

SHFR Hospital

  1. StudyEvent: ODM
    1. SHFR Hospital
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Demography and Lifestyle at admission
C0011298 (UMLS CUI-1)
C0023676 (UMLS CUI-2)
C0030673 (UMLS CUI-3)
Date of Admission
Item
Date of Admission/date of visit
date
C1302393 (UMLS CUI [1])
Date of discharge
Item
Date of discharge
date
C2361123 (UMLS CUI [1])
Item
Caregiver
integer
C0085537 (UMLS CUI [1])
Code List
Caregiver
CL Item
Institutional Care (1)
C0868975 (UMLS CUI-1)
(Comment:en)
CL Item
Non Institutional Care (2)
C0868975 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
(Comment:en)
CL Item
Heart Failure Clinic (3)
C1563224 (UMLS CUI-2)
(Comment:en)
Item
Clinic
integer
C0442592 (UMLS CUI [1,1])
C0019961 (UMLS CUI [1,2])
Code List
Clinic
CL Item
Dept of Internal medicine (1)
C1550685 (UMLS CUI-1)
(Comment:en)
CL Item
Dept of cardiology (2)
C0587453 (UMLS CUI-1)
(Comment:en)
CL Item
Dept of Geriatrics (3)
C0017469 (UMLS CUI-2)
(Comment:en)
Item
Reason for hospitalization/visit
integer
C1830395 (UMLS CUI [1])
Code List
Reason for hospitalization/visit
CL Item
Worsening Heart Failure (1)
C0018801 (UMLS CUI-1)
C0332271 (UMLS CUI-2)
(Comment:en)
CL Item
De novo Heart Failure (2)
C0018801 (UMLS CUI-2)
C1515568 (UMLS CUI-3)
(Comment:en)
CL Item
Routine visit (3)
C0205547 (UMLS CUI-1)
(Comment:en)
CL Item
Other (4)
C0205394 (UMLS CUI-1)
(Comment:en)
Item
Previous Chronic Heart Failure hospitalization
integer
C2114455 (UMLS CUI [1])
Code List
Previous Chronic Heart Failure hospitalization
CL Item
No (1)
C3845590 (UMLS CUI-2)
(Comment:en)
CL Item
Yes<30 days (2)
C4028326 (UMLS CUI-1)
C1524031 (UMLS CUI-2)
(Comment:en)
CL Item
> 30 days (3)
CL Item
Unknown (4)
Item
Duration of Heart Failure
integer
C0018801 (UMLS CUI [1,1])
C0449238 (UMLS CUI [1,2])
Code List
Duration of Heart Failure
CL Item
< 6 months (1)
(Comment:sv)
C3843634 (UMLS CUI-1)
(Comment:en)
CL Item
> 6 months (2)
(Comment:sv)
C3846158 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (3)
Item
Lifestyles and quality of life acquired at the time of care?
integer
C0034380 (UMLS CUI [1,1])
C0023676 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
Code List
Lifestyles and quality of life acquired at the time of care?
CL Item
No (1)
CL Item
Yes (2)
Item
Relationship status
integer
C0439849 (UMLS CUI [1])
Code List
Relationship status
CL Item
Married / cohabitant (1)
CL Item
Single (2)
CL Item
Unknown (3)
Item
living situation
integer
C2184149 (UMLS CUI [1])
Code List
living situation
CL Item
Other accommodation (1)
CL Item
Own accommodation (2)
CL Item
Unknown (3)
Item
Participation in organized physical exercise for heart failure
integer
C1535955 (UMLS CUI [1,1])
C0018801 (UMLS CUI [1,2])
C2348568 (UMLS CUI [1,3])
Code List
Participation in organized physical exercise for heart failure
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Participation in heart failure school
integer
C0018801 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C2348568 (UMLS CUI [1,3])
Code List
Participation in heart failure school
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Tobacco – Smoking habits
integer
C0543414 (UMLS CUI [1])
Code List
Tobacco – Smoking habits
CL Item
Never been smoking (0)
(Comment:en)
C0425293 (UMLS CUI-1)
(Comment:sv)
CL Item
Quit smoking more than 6 months ago (1)
(Comment:en)
C0337671 (UMLS CUI-1)
(Comment:sv)
CL Item
Quit smoking less than 6 months ago (2)
(Comment:en)
C0337671 (UMLS CUI-1)
(Comment:sv)
CL Item
Smoking but not on a daily basis (3)
(Comment:en)
C3241966 (UMLS CUI-1)
C0205271 (UMLS CUI-2)
(Comment:sv)
CL Item
Smoking daily (4)
(Comment:en)
C3241966 (UMLS CUI-1)
C0332173 (UMLS CUI-2)
(Comment:sv)
CL Item
Unknown (5)
Item
Tobacco – snuff habits
integer
C0543414 (UMLS CUI [1,1])
C0008038 (UMLS CUI [1,2])
Code List
Tobacco – snuff habits
CL Item
Never (0)
CL Item
Quit snuff more than 6 months ago (1)
CL Item
Quit snuff less than 6 months ago (2)
CL Item
Yes but not daily (3)
CL Item
Yes daily (4)
CL Item
Unknown (5)
Item
How many standard drinks do You drink a usual week?
integer
C0001948 (UMLS CUI [1])
Code List
How many standard drinks do You drink a usual week?
CL Item
< 1 standard drink per week or not at all (0)
(Comment:sv)
C3843304 (UMLS CUI-1)
(Comment:en)
CL Item
1-4 standard drinks per week (1)
(Comment:sv)
C0001948 (UMLS CUI-1)
C2984078 (UMLS CUI-2)
(Comment:en)
CL Item
5-9 standard drinks per week (2)
(Comment:sv)
C0001948 (UMLS CUI-1)
C0205103 (UMLS CUI-2)
(Comment:en)
CL Item
10-14 standard drinks per week (3)
(Comment:sv)
C0001948 (UMLS CUI-1)
C0442821 (UMLS CUI-2)
(Comment:en)
CL Item
15 or more standard drinks per week (4)
(Comment:sv)
C0001948 (UMLS CUI-1)
C2984081 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (5)
Item
How often do You as a woman drink 4 standard drinks and You as a man 5 standard drinks or more at one time?
integer
C0001948 (UMLS CUI [1])
Code List
How often do You as a woman drink 4 standard drinks and You as a man 5 standard drinks or more at one time?
CL Item
Never (0)
C2003901 (UMLS CUI-1)
(Comment:en)
CL Item
Less than once a month (1)
C3841785 (UMLS CUI-1)
(Comment:en)
CL Item
Every month (2)
C0585302 (UMLS CUI-2)
(Comment:en)
CL Item
Every week (3)
C0558293 (UMLS CUI-1)
(Comment:en)
CL Item
Every day or almost every day (4)
C3843157 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (5)
Item Group
Patient self rated symptoms at discharge or after visit
C2987124 (UMLS CUI-1)
Item
Fatigue
integer
C0015672 (UMLS CUI [1])
Code List
Fatigue
CL Item
No fatigue or limitation at ordinary physical activity (1)
C3165508 (UMLS CUI-1)
(Comment:en)
CL Item
Fatigue and slight limitation during ordinary activity (2)
(Comment:en)
CL Item
Marked limitation in activity due to fatigue, even during less-than-ordinary activity (e.g. walking short distances >20-100 m) comfortable only at rest (3)
(Comment:en)
CL Item
Severe limitations due to fatigue. Experiences fatigue even while at rest, mostly bed bound (4)
C0015672 (UMLS CUI-2)
C0205082 (UMLS CUI-3)
(Comment:en)
Item
Shortness of breath
integer
C0013404 (UMLS CUI [1])
Code List
Shortness of breath
CL Item
No shortness of breath or limitation at ordinary physical activity (1)
CL Item
Shortness of breath and slight limitation during ordinary activity (2)
CL Item
Marked limitation in activity due to shortness of breath, even during less-than ordinary activity (e.g. walking short distances, >20-100m) comfortable only at rest (3)
CL Item
Severe limitations due to shortness of breath. Experiences shortness of breath even while at rest, mostly bed bound (4)
Item
Mobility
integer
C0449580 (UMLS CUI [1])
Code List
Mobility
CL Item
I have no problem in walking around (1)
CL Item
I have some problems in walking around (2)
CL Item
I am confined to bed (3)
Item
Self Care
integer
C0474417 (UMLS CUI [1])
Code List
Self Care
CL Item
I have no problems with self care (1)
CL Item
I have some problems washing or dressing myself (2)
CL Item
I am unable to wash or dress myself (3)
Item
Usual activities
integer
C0001288 (UMLS CUI [1])
Code List
Usual activities
CL Item
I have no problems when performing my usual activities (1)
CL Item
I have some problems when performing my usual activities (2)
CL Item
I am unable to perform my usual activities (3)
Item
Pain/discomfort
integer
C0030193 (UMLS CUI [1])
Code List
Pain/discomfort
CL Item
I have no pain or discomfort (1)
CL Item
I have moderate pain or discomfort (2)
CL Item
I have extreme pain or discomfort (3)
Item
Anxiety/depression
integer
C0003467 (UMLS CUI [1,1])
C0011581 (UMLS CUI [1,2])
Code List
Anxiety/depression
CL Item
I am not anxious or depressed (1)
CL Item
I am moderately anxious or depressed (2)
CL Item
I am extremely anxious or depressed (3)
Quality of Life
Item
Quality of Life
integer
C0034380 (UMLS CUI [1])
Item Group
Previous or current diseases
C0262926 (UMLS CUI-1)
Item
Previous MI
integer
C1275835 (UMLS CUI [1])
CL Item
No (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Hypertension
integer
C0020538 (UMLS CUI [1])
Code List
Hypertension
CL Item
No (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Atrial fibrillation/flutter
integer
C0085611 (UMLS CUI [1,1])
C0004238 (UMLS CUI [1,2])
Code List
Atrial fibrillation/flutter
CL Item
No (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Diabetes
integer
C0011849 (UMLS CUI [1])
Code List
Diabetes
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Type 1 (1)
C0011854 (UMLS CUI-1)
(Comment:en)
CL Item
Type 2 diet (2)
C4014362 (UMLS CUI-2)
C0012155 (UMLS CUI-3)
(Comment:en)
CL Item
Type 2 insulin (3)
(Comment:en)
Item
COPD
integer
C0024117 (UMLS CUI [1])
CL Item
No (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Heart Valve disease
integer
C0018824 (UMLS CUI [1])
Code List
Heart Valve disease
CL Item
No (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Dilated cardiomyopathy
integer
C0007193 (UMLS CUI [1])
Code List
Dilated cardiomyopathy
CL Item
No (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Other serious illness that causes deviations from treatment guidelines
integer
C3258154 (UMLS CUI [1])
Code List
Other serious illness that causes deviations from treatment guidelines
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Cancer (1)
C0006826 (UMLS CUI-1)
(Comment:en)
CL Item
Dementia  (2)
C0497327 (UMLS CUI-1)
(Comment:en)
CL Item
Other (3)
C0205394 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Primary etiology
integer
C1314792 (UMLS CUI [1,1])
C0018799 (UMLS CUI [1,2])
Code List
Primary etiology
CL Item
Hypertension (1)
(Comment:en)
C0020538 (UMLS CUI-1)
(Comment:sv)
CL Item
Ischemic heart disease (2)
(Comment:en)
C0151744 (UMLS CUI-1)
(Comment:sv)
CL Item
Dilated cardiomyopathy (3)
(Comment:en)
C0007193 (UMLS CUI-1)
(Comment:sv)
CL Item
Known alcoholic cardiomyopathy (4)
(Comment:en)
C0878544 (UMLS CUI-1)
C0236664 (UMLS CUI-2)
(Comment:sv)
CL Item
Heart valve disease (5)
(Comment:en)
C0018824 (UMLS CUI-1)
(Comment:sv)
CL Item
Other (6)
(Comment:en)
C0205394 (UMLS CUI-1)
(Comment:sv)
CL Item
Unknown (7)
Item Group
Performed procedures ever
C2985643 (UMLS CUI-1)
C0189573 (UMLS CUI-2)
C0262926 (UMLS CUI-3)
Item
Revascularization
integer
C0581603 (UMLS CUI [1])
Code List
Revascularization
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
CABG (1)
C0010055 (UMLS CUI-1)
(Comment:en)
CL Item
PCI (2)
C1532338 (UMLS CUI-1)
(Comment:en)
CL Item
CABG+PCI (3)
C0010055 (UMLS CUI-1)
C1532338 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Heart Valve Surgery
integer
C0018826 (UMLS CUI [1,1])
C0543467 (UMLS CUI [1,2])
Code List
Heart Valve Surgery
CL Item
No (0)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Aortic (1)
(Comment:en)
C0003501 (UMLS CUI-1)
(Comment:sv)
CL Item
Mitral (2)
(Comment:en)
C0026264 (UMLS CUI-1)
(Comment:sv)
CL Item
Aortic+Mitral (3)
(Comment:en)
C0003501 (UMLS CUI-1)
C0026264 (UMLS CUI-2)
(Comment:sv)
CL Item
Other (4)
(Comment:en)
C0205394 (UMLS CUI-1)
(Comment:sv)
CL Item
Unknown (9)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:sv)
Item Group
Diagnostics at discharge or after visit
C0430022 (UMLS CUI-1)
Item
ECG rhythm
integer
C0232187 (UMLS CUI [1,1])
C1623258 (UMLS CUI [1,2])
Code List
ECG rhythm
CL Item
Sinus rhythm (1)
C0232201 (UMLS CUI-1)
(Comment:en)
CL Item
Atrial fibrillation/flutter (2)
C0085611 (UMLS CUI-1)
(Comment:en)
CL Item
Pacemaker rhythm (3)
C1167946 (UMLS CUI-1)
(Comment:en)
CL Item
Other rhythm (4)
C0232187 (UMLS CUI-1)
C0205394 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Left Bundle Branch Block (LBBB)
integer
C0023211 (UMLS CUI [1])
Code List
Left Bundle Branch Block (LBBB)
CL Item
No (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Yes (2)
CL Item
Unknown (3)
QRS-width
Item
QRS-width
float
C0429025 (UMLS CUI [1])
Heart Rate
Item
Heart Rate
integer
C0018810 (UMLS CUI [1])
Item
LVEF %
integer
C0428772 (UMLS CUI [1])
Code List
LVEF %
CL Item
Normal global LV-function (LVEF >50%)  (1)
C3661818 (UMLS CUI-1)
(Comment:en)
CL Item
Mild reduction LV-function (LVEF 40-49%) (2)
C4022793 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate reduction LV-function (LVEF 30-39 %) (3)
C4022791 (UMLS CUI-1)
(Comment:en)
CL Item
Severe reduction LV-function (LVEF <30%) (4)
C4022790 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
LVEF method
integer
C2708658 (UMLS CUI [1])
Code List
LVEF method
CL Item
ECHO (1)
C0013516 (UMLS CUI-1)
(Comment:en)
CL Item
MR (2)
C0024485 (UMLS CUI-1)
(Comment:en)
CL Item
Scintigraphy (3)
C2350391 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Chest X-ray for diagnosis
integer
C0039985 (UMLS CUI [1])
Code List
Chest X-ray for diagnosis
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
(Comment:en)
CL Item
Pulmonary congestion (2)
C0242073 (UMLS CUI-1)
(Comment:en)
CL Item
Cardiomegaly (3)
C0018800 (UMLS CUI-1)
(Comment:en)
CL Item
Pulmonary congestion and Cardiomegaly (4)
C0242073 (UMLS CUI-1)
C0018800 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Exercise ECG for diagnosis
integer
C1304755 (UMLS CUI [1])
Code List
Exercise ECG for diagnosis
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Exercise ECG (1)
C1304755 (UMLS CUI-1)
(Comment:en)
CL Item
6 min walk test (2)
C0430515 (UMLS CUI-1)
(Comment:en)
CL Item
Peak VO2 (ml/kg/min) (3)
C4054223 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Spirometry for diagnosis
integer
C0037981 (UMLS CUI [1])
Code List
Spirometry for diagnosis
CL Item
No (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Yes (2)
CL Item
Unknown (3)
Item Group
Biometrics and physical signs at discharge or after visit
C0587081 (UMLS CUI-1)
C0031809 (UMLS CUI-2)
Height
Item
Height
integer
C0005890 (UMLS CUI [1])
Weight
Item
Weight
float
C0005910 (UMLS CUI [1])
Hemoglobin
Item
B-HB
float
C0518015 (UMLS CUI [1])
Serum Creatinine
Item
S-Creatinine
float
C0201976 (UMLS CUI [1])
Potassium
Item
S-Potassium
float
C0202194 (UMLS CUI [1])
Sodium
Item
S-Sodium
float
C0337443 (UMLS CUI [1])
Systolic BP
Item
BP systolic
float
C0871470 (UMLS CUI [1])
Diastolic BP
Item
BP diastolic
float
C0428883 (UMLS CUI [1])
GFR
Item
e-GFR
float
C0017654 (UMLS CUI [1])
BNP
Item
B-type Natriuretic Peptide
float
C1095989 (UMLS CUI [1])
NT-proBNP
Item
BNPT
float
C3272900 (UMLS CUI [1])
S-Ferritin
Item
S-Ferritin
float
C0373607 (UMLS CUI [1])
P-transferrin saturation
Item
P-Transferrin mättnad
float
C1277709 (UMLS CUI [1])
Item
NYHA classification
integer
C1275491 (UMLS CUI [1])
Code List
NYHA classification
CL Item
NYHA I (1)
C1536130 (UMLS CUI-1)
(Comment:en)
CL Item
NYHA II (2)
C1536131 (UMLS CUI-1)
(Comment:en)
CL Item
NYHA III (3)
C1536132 (UMLS CUI-1)
(Comment:en)
CL Item
NYHA IV (4)
C1536133 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Treatment at discharge or at date of visit
C1553894 (UMLS CUI-1)
C0013227 (UMLS CUI-2)
C0087111 (UMLS CUI-3)
Item
ACE-Inhibitor
integer
C0003015 (UMLS CUI [1])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Pharmacological name of the ACE-inhibitor
integer
C2360065 (UMLS CUI [1,1])
C0003015 (UMLS CUI [1,2])
Code List
Pharmacological name of the ACE-inhibitor
CL Item
Enalapril (1)
CL Item
Fosinopril (2)
CL Item
Kaptopril (3)
CL Item
Kinapril (4)
CL Item
Lisinopril (5)
CL Item
Perindopril (6)
CL Item
Ramipril (7)
Dose ACE inhibitor
Item
Dose of ACE-Inhibitor
float
C3174092 (UMLS CUI [1,1])
C0003015 (UMLS CUI [1,2])
Item
A2-blocker/ARB
integer
C2936570 (UMLS CUI [1])
C0521942 (UMLS CUI [2])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Substance name A2-Blocker/ARB
integer
C2360065 (UMLS CUI [1,1])
C2936570 (UMLS CUI [1,2])
C0521942 (UMLS CUI [1,3])
Code List
Substance name A2-Blocker/ARB
CL Item
Atenolol (1)
CL Item
Bisoprolol (2)
CL Item
Karvedilol (3)
CL Item
Labetalol (4)
CL Item
Metoprolol (5)
CL Item
Pindolol (6)
CL Item
Propanolol (7)
CL Item
Sotalol (8)
Dose RAS
Item
Dose RAS
float
C3174092 (UMLS CUI [1,1])
C2936570 (UMLS CUI [1,2])
C0521942 (UMLS CUI [1,3])
Item
Betablocker
integer
C0001645 (UMLS CUI [1])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
substance name betablocker
integer
C2360065 (UMLS CUI [1,1])
C0001645 (UMLS CUI [1,2])
Code List
substance name betablocker
CL Item
Atenolol (1)
CL Item
Bisoprolol (2)
CL Item
Karvedilol (3)
CL Item
Labetalol (4)
CL Item
Metoprolol (5)
CL Item
Pindolol (6)
CL Item
Propanolol (7)
CL Item
Sotalol (8)
dose betablocker
Item
dose betablocker
float
C3174092 (UMLS CUI [1,1])
C0001645 (UMLS CUI [1,2])
Item
Mineralocorticoid Receptor Antagonists (MRA)
integer
C1579268 (UMLS CUI [1])
Code List
Mineralocorticoid Receptor Antagonists (MRA)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Mineralocorticoid Receptor Antagonists (MRA) Type
integer
C2360065 (UMLS CUI [1,1])
C1579268 (UMLS CUI [1,2])
Code List
Mineralocorticoid Receptor Antagonists (MRA) Type
CL Item
Spironolactone (0)
C0037982 (UMLS CUI-1)
(Comment:en)
CL Item
Eplerenone (1)
C0961485 (UMLS CUI-1)
(Comment:en)
Dose MRA
Item
If MRA state Dose
float
C3174092 (UMLS CUI [1,1])
C1579268 (UMLS CUI [1,2])
Item
Diuretics
integer
C0012798 (UMLS CUI [1])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Dose loop diuretics
Item
if Loopdiuretics state Dose
float
C3174092 (UMLS CUI [1,1])
C0354100 (UMLS CUI [1,2])
Item
substance name loop diuretics
integer
C2360065 (UMLS CUI [1,1])
C0354100 (UMLS CUI [1,2])
Code List
substance name loop diuretics
CL Item
Bumetanid (1)
CL Item
Furosemid (2)
CL Item
Toresamid (3)
Item
Digitalis
integer
C0012253 (UMLS CUI [1])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Statins
integer
C0360714 (UMLS CUI [1])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
i.v. inotropic support type
integer
C0304509 (UMLS CUI [1])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
substance name inotropic support
integer
C2360065 (UMLS CUI [1,1])
C0304509 (UMLS CUI [1,2])
Code List
substance name inotropic support
dose inotropic support
Item
dose inotropic support
float
C3174092 (UMLS CUI [1,1])
C0304509 (UMLS CUI [1,2])
Item
Long acting nitrates
integer
C0028125 (UMLS CUI [1,1])
C0439591 (UMLS CUI [1,2])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Anticoagulants
integer
C0003280 (UMLS CUI [1])
Code List
Anticoagulants
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Warfarin (2)
CL Item
NOAK (3)
CL Item
Unknown (4)
Item
ASA or antiplatelet
integer
C1096021 (UMLS CUI [1])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Number of non cardiovascular drugs
Item
Number of non CV drugs
integer
C1718138 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Device therapy
integer
C1504335 (UMLS CUI [1])
Code List
Device therapy
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Pacemaker (1)
C0030163 (UMLS CUI-1)
(Comment:en)
CL Item
CRT (2)
C1167956 (UMLS CUI-1)
(Comment:en)
CL Item
CRT-D (3)
C1736558 (UMLS CUI-1)
(Comment:en)
CL Item
ICD (4)
C0162589 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Participating/participated in organized physical training
integer
C1535955 (UMLS CUI [1])
Code List
Participating/participated in organized physical training
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Previous participation (2)
C0679823 (UMLS CUI-1)
C0205156 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Deceased during hospitalization
integer
C3260027 (UMLS CUI [1])
Code List
Deceased during hospitalization
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item Group
Patient and relative Information
C1955348 (UMLS CUI-1)
C0080103 (UMLS CUI-2)
C1533716 (UMLS CUI-3)
Item
Heart failure information given
integer
C0018801 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Relatives / close associates participated
integer
C0080103 (UMLS CUI [1,1])
C0679823 (UMLS CUI [1,2])
Code List
Relatives / close associates participated
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Conversation about prognosis and disease progression
integer
C0871703 (UMLS CUI [1,1])
C0242656 (UMLS CUI [1,2])
C0023671 (UMLS CUI [1,3])
C0018801 (UMLS CUI [2])
Code List
Conversation about prognosis and disease progression
CL Item
No (1)
CL Item
Yes (2)
Item
Is palliative care relevant?
integer
C0030231 (UMLS CUI [1])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Recieves patient palliative care
integer
C0030231 (UMLS CUI [1])
Code List
Recieves patient palliative care
CL Item
No (1)
CL Item
General palliative care (2)
CL Item
Specialized palliative care (3)
CL Item
Unknown (4)
Item Group
Planned Follow-Up
C1522577 (UMLS CUI-1)
Item
Follow up – level of care
integer
C1547668 (UMLS CUI [1,1])
C1522577 (UMLS CUI [1,2])
Code List
Follow up – level of care
CL Item
Hospital (1)
C0019994 (UMLS CUI-1)
(Comment:en)
CL Item
Primary care (2)
C0033137 (UMLS CUI-1)
(Comment:en)
CL Item
Other (3)
C0205394 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Follow-up - Heart failure monitoring
integer
C1522577 (UMLS CUI [1,1])
C0018801 (UMLS CUI [1,2])
C0030695 (UMLS CUI [1,3])
Code List
Follow-up - Heart failure monitoring
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Follow-Up Monitoring unit
integer
C1522577 (UMLS CUI [1,1])
C0030695 (UMLS CUI [1,2])
C0019961 (UMLS CUI [1,3])
Code List
Follow-Up Monitoring unit
CL Item
Own center (1)
CL Item
Other nationally-connected center (2)
CL Item
Not connected center (3)
CL Item
No follow-up (4)
CL Item
deceased (5)
CL Item
Unknown (6)

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