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ID
27806
Description
Swedish Stroke Registry RIKSSTROKE Quelle: http://www.riksstroke.org/eng/ Riksstroke – a Swedish national quality register for stroke care primarily aimed at health professionals and decision makers in health care. We collect, analyze and follow-up data on morbidity and hospital stay. 1-year Follow-up
Link
http://www.riksstroke.org/eng/
Keywords
Versions (1)
- 11/29/17 11/29/17 -
Copyright Holder
Riksstroke
Uploaded on
November 29, 2017
DOI
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License
Creative Commons BY-NC 3.0
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Swedish Stroke Registry RIKSSTROKE
Similar models
1-year Follow-up
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
1-year Follow-up Questionnaire
C0038454 (UMLS CUI-1)
C0034394 (UMLS CUI-2)
C0589121 (UMLS CUI-3)
C0034975 (UMLS CUI-4)
C0034394 (UMLS CUI-2)
C0589121 (UMLS CUI-3)
C0034975 (UMLS CUI-4)
CL Item
In own accomodation without community home-help service In own accomodation with community home-help service (1)
CL Item
Arranged accommodation (e.g. nursing home, old people’s home, service flat with full board, temporary accommodation, sheltered housing, alternate accommodation or equivalent) (2)
CL Item
At acute-care ward (e.g. medical, neurological or surgical ward) (3)
CL Item
At a geriatric or rehabilitation unit (4)
CL Item
(5)
living alone
Item
Do you live on your own?
boolean
C2184149 (UMLS CUI [1,1])
C0439044 (UMLS CUI [1,2])
C0439044 (UMLS CUI [1,2])
CL Item
I move around without help both indoors and outdoors (1)
CL Item
I move around without help indoors but not outdoors (2)
CL Item
I need help to move around (3)
CL Item
I can manage to visit the toilet by myself (1)
CL Item
I need help to visit the toilet (2)
Item
Does someone help you to dress/undress?
integer
C0518459 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
CL Item
I can manage to get dressed and undressed by myself (1)
CL Item
I need help to get dressed and undressed (2)
Item
Does someone help you with your food shopping?
integer
C4055547 (UMLS CUI [1,1])
C0001288 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
C0001288 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
CL Item
I manage my food shopping without any help (1)
CL Item
Someone helps me with my food shopping (2)
CL Item
Not relevant, I live in arranged accommodation (3)
Item
Does someone help you with cleaning?
integer
C0001288 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
CL Item
I manage my cleaning without any help (1)
CL Item
Someone helps me with cleaning (2)
CL Item
Not relevant, I live in arranged accommodation (3)
Item
Does someone help you with your laundry?
integer
C1830412 (UMLS CUI [1,1])
C0001288 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
C0001288 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
CL Item
I manage my laundry without any help (1)
CL Item
Someone helps me with my laundry (2)
CL Item
Not relevant, I live in arranged accommodation (3)
Item
Have you applied for an alarm system, transportation service, home-help etc.?
integer
C1521721 (UMLS CUI [1,1])
C0018747 (UMLS CUI [1,2])
C4048755 (UMLS CUI [1,3])
C0018747 (UMLS CUI [1,2])
C4048755 (UMLS CUI [1,3])
Code List
Have you applied for an alarm system, transportation service, home-help etc.?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Don’t know (3)
Item
Are your requirements fulfilled regarding getting dressed or undressed and/or toilet visits, for example?
integer
C1521721 (UMLS CUI [1,1])
C0564673 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
C0564673 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
Code List
Are your requirements fulfilled regarding getting dressed or undressed and/or toilet visits, for example?
CL Item
I don’t need home-help for personal care (1)
CL Item
Yes, completely fulfilled (2)
CL Item
Yes, partly fulfilled (3)
CL Item
No, not fulfilled at all (4)
CL Item
Don't know (5)
Item
Are your requirements fulfilled regarding help with cleaning and/or food shopping, for example?
integer
C1521721 (UMLS CUI [1,1])
C0341652 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
C0341652 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
Code List
Are your requirements fulfilled regarding help with cleaning and/or food shopping, for example?
CL Item
I don’t need home-help for cleaning or food shopping etc. (1)
CL Item
Yes, completely fulfilled (2)
CL Item
Yes, partly fulfilled (3)
CL Item
No, not fulfilled at all (4)
CL Item
Don’t know (5)
Item
Are your requirements fulfilled regarding walking frame, crutches, wheelchair, raised toilet seat, shower stool, housing adaptation or speech aids such as picture boards, communicator etc.?
integer
C1283236 (UMLS CUI [1,1])
C0205410 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,2])
Code List
Are your requirements fulfilled regarding walking frame, crutches, wheelchair, raised toilet seat, shower stool, housing adaptation or speech aids such as picture boards, communicator etc.?
CL Item
I don’t need any such aids (1)
CL Item
Yes, completely met (2)
CL Item
Yes, partly met (3)
CL Item
No, not met at all (4)
CL Item
Don't know (5)
Item
Are your requirements fulfilled regarding transportation service?
integer
C2003850 (UMLS CUI [1,1])
C0205410 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,2])
CL Item
I don’t need transportation service (1)
CL Item
Yes, completely fulfilled (2)
CL Item
Yes, partly fulfilled (3)
CL Item
No, not fulfilled at all (4)
CL Item
Don’t know (5)
Item
Are your requirements fulfilled regarding help with taking your medications, loading your pill dispenser, redressing wounds, managing your catheter, putting on support socks etc.?
integer
C0019860 (UMLS CUI [1,1])
C0205410 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,2])
Code List
Are your requirements fulfilled regarding help with taking your medications, loading your pill dispenser, redressing wounds, managing your catheter, putting on support socks etc.?
CL Item
I don’t need home nursing (1)
CL Item
Yes, completely fulfilled (2)
CL Item
Yes, partly fulfilled (3)
CL Item
No, not fulfilled at all (4)
CL Item
Don’t know (5)
Item
Rehabilitation includes training and exercises that help you improve or maintain your mobility and ability to manage everyday tasks. Have your requirements for rehabilitation after your stroke been fulfilled?
integer
C0034991 (UMLS CUI [1,1])
C0205410 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,2])
Code List
Rehabilitation includes training and exercises that help you improve or maintain your mobility and ability to manage everyday tasks. Have your requirements for rehabilitation after your stroke been fulfilled?
CL Item
I didn’t require any rehabilitation (1)
CL Item
Yes, my rehabilitation requirements were fulfilled (2)
CL Item
No, my rehabilitation requirements were only fulfilled in part (3)
CL Item
No, my rehabilitation requirements were not fulfilled at all (4)
CL Item
Don’t know (5)
Item
Are you dependent upon family or friends for help or support today?
integer
C1521721 (UMLS CUI [1,1])
C0581904 (UMLS CUI [1,2])
C0581904 (UMLS CUI [1,2])
CL Item
No, not at all (1)
CL Item
Yes, partly dependent (2)
CL Item
Yes, completely dependent (3)
CL Item
Don’t know (4)
CL Item
(5)
Item
Have you returned to gainful employment?
integer
C0242271 (UMLS CUI [1,1])
C0425105 (UMLS CUI [1,2])
C0425105 (UMLS CUI [1,2])
CL Item
No, I was not gainfully employed before the stroke (1)
CL Item
Yes, to the same extent as before the stroke (2)
CL Item
Yes, but to a lesser extent than before the stroke (3)
CL Item
No, but I plan to go back to gainful employment (4)
CL Item
No (5)
CL Item
Don’t know (6)
Item
Work-related rehabilitation refers to the setting up of a rehabilitation plan, adaptation of your work, provision of working aids, changing work tasks or working hours, work training, transfer or training courses, for example. Have you received any work-related rehabilitation after the stroke?
integer
C1318464 (UMLS CUI [1,1])
C0034991 (UMLS CUI [1,2])
C0034991 (UMLS CUI [1,2])
Code List
Work-related rehabilitation refers to the setting up of a rehabilitation plan, adaptation of your work, provision of working aids, changing work tasks or working hours, work training, transfer or training courses, for example. Have you received any work-related rehabilitation after the stroke?
CL Item
No, I was not gainfully employed before the stroke (1)
CL Item
I didn’t require any work-related rehabilitation (2)
CL Item
Yes, very much so (3)
CL Item
Yes, but not enough (4)
CL Item
No, not at all (5)
Item
Have you received help from any of the following in order to go back to gainful employment? (more than one option may be applicable)
integer
C0425105 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
Code List
Have you received help from any of the following in order to go back to gainful employment? (more than one option may be applicable)
CL Item
Not relevant, I was not gainfully employed before the stroke Employer (1)
CL Item
Social insurance office (Försäkringskassan) (2)
CL Item
Employment office (3)
CL Item
I am self-employed (4)
CL Item
Don’t know (5)
CL Item
(6)
Item
During the last six months, have you visited a doctor, or do you have an appointment scheduled?
integer
C1512346 (UMLS CUI [1,1])
C0586344 (UMLS CUI [1,2])
C0586344 (UMLS CUI [1,2])
Code List
During the last six months, have you visited a doctor, or do you have an appointment scheduled?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Don’t know (3)
Item
Have you checked your blood pressure since you were discharged from the hospital after your stroke?
integer
C0005823 (UMLS CUI [1])
Code List
Have you checked your blood pressure since you were discharged from the hospital after your stroke?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Don't know (3)
Item
Have you been to the dentist or dental hygienist in the last six months?
integer
C0011441 (UMLS CUI [1,1])
C1512346 (UMLS CUI [1,2])
C1512346 (UMLS CUI [1,2])
CL Item
Yes (1)
CL Item
No (2)
CL Item
Don’t know (3)
CL Item
Very good (1)
CL Item
Fairly good (2)
CL Item
Pretty bad (3)
CL Item
Very bad (4)
CL Item
Don't know (5)
‘thermometer’ health scale
Item
To help determine how good or bad a person’s health is, we use the ‘thermometer’ scale on the right. On this scale, your best possible health has been marked with 100, and your worst possible health has been marked with 0. We would like you to indicate on the scale how good or bad you consider your own health to be. Please estimate your current health using the numbers between 0 and 100, based on the scale to the right.
integer
C0018759 (UMLS CUI [1,1])
C0349674 (UMLS CUI [1,2])
C0349674 (UMLS CUI [1,2])
CL Item
Yes (1)
CL Item
No (2)
CL Item
Don't know (3)
Item
Have you been offered an anti-smoke cure after your stroke?
integer
C0037369 (UMLS CUI [1,1])
C2746065 (UMLS CUI [1,2])
C1269765 (UMLS CUI [1,3])
C2746065 (UMLS CUI [1,2])
C1269765 (UMLS CUI [1,3])
CL Item
Not relevant, I didn’t smoke before the stroke (1)
CL Item
Yes (2)
CL Item
No (3)
CL Item
Don't know (4)
CL Item
Never or almost never (1)
CL Item
Sometimes (2)
CL Item
Often (3)
CL Item
Always (4)
CL Item
Don't know (5)
Item
Have your pain relief requirements been fulfilled?
integer
C0451615 (UMLS CUI [1,1])
C0205410 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,2])
CL Item
I don’t need any pain relief (1)
CL Item
Yes, completely (2)
CL Item
Yes, partly (3)
CL Item
No, not at all (4)
CL Item
Don't know (5)
CL Item
Never or almost never (1)
CL Item
Sometimes (2)
CL Item
Often (3)
CL Item
Always (4)
CL Item
Don't know (5)
CL Item
Yes, medication (1)
CL Item
Yes, talking therapy (2)
CL Item
Yes, medication and talking therapy (3)
CL Item
No, I am not having any treatment (4)
CL Item
Don't know (5)
Item
Who completed this questionnaire?
integer
C0034394 (UMLS CUI [1,1])
C0508431 (UMLS CUI [1,2])
C0027361 (UMLS CUI [1,3])
C0508431 (UMLS CUI [1,2])
C0027361 (UMLS CUI [1,3])
CL Item
The patient alone in writing (1)
CL Item
The patient with the help of a relative/friend or a member of medical staff (2)
CL Item
Other person (e.g. trustee) (3)
CL Item
Medical staff alone (4)
CL Item
Relative or friend alone (5)