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ID
27788
Descrizione
Schwedisches Schlaganfallregister RIKSSTROKE Quelle: http://www.riksstroke.org/eng/ Riksstroke – a Swedish national quality register for stroke care primarily aimed at health professionals and decision makers in health care. We collect, analyze and follow-up data on morbidity and hospital stay. Riks-Stroke questions for a relative of a stroke patient
collegamento
http://www.riksstroke.org/eng/
Keywords
versioni (1)
- 29/11/17 29/11/17 -
Titolare del copyright
Riksstroke
Caricato su
29 novembre 2017
DOI
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Licenza
Creative Commons BY-NC 3.0
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Swedish Stroke Registry RIKSSTROKE
Riks-Stroke questions for a relative of a stroke patient
- StudyEvent: ODM
Similar models
Riks-Stroke questions for a relative of a stroke patient
- StudyEvent: ODM
Name
genere
Description | Question | Decode (Coded Value)
Tipo di dati
Alias
Item Group
Riks-Stroke questions for a relative of a stroke patient
C0038454 (UMLS CUI-1)
C0034975 (UMLS CUI-2)
C0262926 (UMLS CUI-3)
C0080103 (UMLS CUI-4)
C0034975 (UMLS CUI-2)
C0262926 (UMLS CUI-3)
C0080103 (UMLS CUI-4)
birth year
Item
What year were you born (ex 19XX)?
partialDate
C2826771 (UMLS CUI [1])
CL Item
male (1)
CL Item
female (2)
live with the stroke patient
Item
Do you live with the stroke patient?
boolean
C2184149 (UMLS CUI [1])
Item
What is your relationship with the stroke patient?
integer
C0439849 (UMLS CUI [1,1])
C0030705 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,3])
C0030705 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,3])
CL Item
Husband / wife (1)
CL Item
Partner (2)
CL Item
Children (3)
CL Item
Siblings (4)
CL Item
Other (5)
Item
Are your relatives today dependent on supervision and help from you?
integer
C0581904 (UMLS CUI [1,1])
C3244310 (UMLS CUI [1,2])
C3244310 (UMLS CUI [1,2])
CL Item
Yes, completely dependent (1)
CL Item
Yes, partly dependent (2)
CL Item
No, not at all (3)
Item
What do you help your relativ with? Clothing (getting dressed)
integer
C0518459 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
CL Item
Never (1)
CL Item
Sometimes (2)
CL Item
Often (3)
CL Item
Always (4)
Item
What do you help your relativ with? toilet use
integer
C0562816 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
CL Item
Never (1)
CL Item
Sometimes (2)
CL Item
Often (3)
CL Item
Always (4)
Item
What do you help your relativ with? Moving indoors
integer
C0449580 (UMLS CUI [1,1])
C0442519 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
C0442519 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
CL Item
Never (1)
CL Item
Sometimes (2)
CL Item
Often (3)
CL Item
Always (4)
Item
What do you help your relativ with? Moving outdoors
integer
C4055526 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
CL Item
Never (1)
CL Item
Sometimes (2)
CL Item
Often (3)
CL Item
Always (4)
Item
Can your close relative cope without your supervision?
integer
C0038842 (UMLS CUI [1])
CL Item
No (1)
CL Item
Yes, up to one hour (2)
CL Item
Yes, up to 3 hours (3)
CL Item
Yes, up to a half day (4)
CL Item
Yes, a whole day (5)
CL Item
Yes, one day (6)
CL Item
Yes, several days (7)
Item
Do you need to support your close relative in any of the following ways? (You can check for multiple options)
integer
C1521721 (UMLS CUI [1])
Code List
Do you need to support your close relative in any of the following ways? (You can check for multiple options)
CL Item
Yes, I am active in contact with public health and care (1)
CL Item
Yes, with rehabilitation (eg walking, implementing training programs) (2)
CL Item
Yes, I help him / her with specific goals (eg economics, writing letters) (3)
CL Item
Yes, I have taken over many of the tasks previously done by him / her (eg cleaning, driving, declining, etc.) (4)
CL Item
Yes, other (5)
Item
How do you judge your general health condition?
integer
C0516984 (UMLS CUI [1])
CL Item
Very good (1)
CL Item
Pretty good (2)
CL Item
Pretty bad (3)
CL Item
Very bad (4)
CL Item
Do not know (5)
Item
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you felt calm and harmonious?
integer
C0522165 (UMLS CUI [1])
Code List
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you felt calm and harmonious?
CL Item
All the time (1)
CL Item
Most of the time (2)
CL Item
A lot of time (3)
CL Item
Part of time (4)
CL Item
Lite ac tin (5)
CL Item
Not at all (6)
Item
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you been full of energy?
integer
C3830037 (UMLS CUI [1])
Code List
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you been full of energy?
CL Item
All the time (1)
CL Item
Most of the time (2)
CL Item
A lot of time (3)
CL Item
Part of time (4)
CL Item
Lite ac tin (5)
CL Item
Not at all (6)
Item
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you felt sad and sad?
integer
C2987511 (UMLS CUI [1])
Code List
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you felt sad and sad?
CL Item
All the time (1)
CL Item
Most of the time (2)
CL Item
A lot of time (3)
CL Item
Part of time (4)
CL Item
Lite ac tin (5)
CL Item
Not at all (6)
Item
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you known fear, concern and anxiety?
integer
C0003467 (UMLS CUI [1])
C1288289 (UMLS CUI [2])
C2699424 (UMLS CUI [3])
C1288289 (UMLS CUI [2])
C2699424 (UMLS CUI [3])
Code List
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you known fear, concern and anxiety?
CL Item
All the time (1)
CL Item
Most of the time (2)
CL Item
A lot of time (3)
CL Item
Part of time (4)
CL Item
Lite ac tin (5)
CL Item
Not at all (6)
Item
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you known fatigue and exhaustion?
integer
C0015672 (UMLS CUI [1])
Code List
This question is about how you feel and how you used it lately four weeks. For each query, enter the answer option that best describes how you felt. How much part of the time in the last four weeks ... have you known fatigue and exhaustion?
CL Item
All the time (1)
CL Item
Most of the time (2)
CL Item
A lot of time (3)
CL Item
Part of time (4)
CL Item
Lite ac tin (5)
CL Item
Not at all (6)
Item
Can you exercise the interests you had before your stroke affected?
integer
C0023292 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,2])
CL Item
Yes, as before (1)
CL Item
Yes, but not exactly as before (2)
CL Item
No, almost not at all or never (3)
Item
Have your opportunities for work experience been affected by the fact that your close relatives was affected by stroke?
integer
C0043227 (UMLS CUI [1])
Code List
Have your opportunities for work experience been affected by the fact that your close relatives was affected by stroke?
CL Item
Yes, has gone down in working hours (1)
CL Item
Yes, have had to leave my work (2)
CL Item
No, not at all (3)
CL Item
Not applicable, is retired or had already left the labor market (4)
Item
Do you have contact with any local association within eg Stroke Riksförbundet, Afasiforbundet in Sweden, National Association of Neurologically Disability, Brain Power?
integer
C0036606 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,2])
Code List
Do you have contact with any local association within eg Stroke Riksförbundet, Afasiforbundet in Sweden, National Association of Neurologically Disability, Brain Power?
CL Item
Yes (1)
CL Item
No (2)
CL Item
No, but I would like to get in touch with any local association (3)
CL Item
No, I did not know there were any associations (4)
contact healthcare
Item
Do you know who you can contact today in healthcare (county council or municipality) when you as a relative need advice or support?
boolean
C0086388 (UMLS CUI [1,1])
C0332158 (UMLS CUI [1,2])
C0332158 (UMLS CUI [1,2])
Item
Do you as a relative need to get more knowledge about stroke? (You can check for multiple options)
integer
C0038454 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
C1533716 (UMLS CUI [1,2])
Code List
Do you as a relative need to get more knowledge about stroke? (You can check for multiple options)
CL Item
No, I have enough knowledge (1)
CL Item
Yes, about the stroke disease and its course (2)
CL Item
Yes, about different specific treatment methods (3)
CL Item
Yes, about different possibilities for family support (4)
CL Item
Yes, about cohabitation (5)
CL Item
Yes, about drugs (6)
CL Item
Yes, about the possibilities for housing adaptation (7)
CL Item
Yes, about the possibilities for technical assistance / disability aid (8)
CL Item
Other, describe what (9)
Item
What kind of help does your stroke victim currently have? (You can check for multiple options)
integer
C1521721 (UMLS CUI [1])
Code List
What kind of help does your stroke victim currently have? (You can check for multiple options)
CL Item
Home service (1)
CL Item
Day activities (2)
CL Item
Short-term care (3)
CL Item
Housing support (4)
CL Item
Training / Rehabilitation (5)
CL Item
Housing adaptation (6)
CL Item
Aids (7)
CL Item
Ferry service (8)
CL Item
LSS efforts (9)
CL Item
Other, describe what (10)
CL Item
Not applicable (11)
help
Item
Do you get help for your own part?
boolean
C1521721 (UMLS CUI [1])
help
Item
Yes, I get help How or which help?
text
C1521721 (UMLS CUI [1])
reason for no help
Item
Has been offered help but thanked no WHY then?
text
C1521721 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
would like help
Item
Get no help - but would like help WHAT?
text
C1521721 (UMLS CUI [1])
Item
How satisfied or dissatisfied are you with ... the care your close relatives have received hospitalization?
integer
C0017313 (UMLS CUI [1,1])
C0019993 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,3])
C0038454 (UMLS CUI [2])
C0019993 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,3])
C0038454 (UMLS CUI [2])
Code List
How satisfied or dissatisfied are you with ... the care your close relatives have received hospitalization?
CL Item
Very satisfied (1)
CL Item
Satisfied (2)
CL Item
Unhappy (3)
CL Item
Very dissatisfied (4)
CL Item
Do not know (5)
Item
How satisfied or dissatisfied are you with ... rehabilitation or exercise like yours Relatives received after hospitalization?
integer
C0034991 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
C0038454 (UMLS CUI [2])
C0242428 (UMLS CUI [1,2])
C0038454 (UMLS CUI [2])
Code List
How satisfied or dissatisfied are you with ... rehabilitation or exercise like yours Relatives received after hospitalization?
CL Item
Very satisfied (1)
CL Item
Satisfied (2)
CL Item
Unhappy (3)
CL Item
Very dissatisfied (4)
CL Item
Do not know (5)
Item
How satisfied or dissatisfied are you with ... the care your close relatives received from primary care after hospitalization?
integer
C0033137 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
C0038454 (UMLS CUI [2])
C0242428 (UMLS CUI [1,2])
C0038454 (UMLS CUI [2])
Code List
How satisfied or dissatisfied are you with ... the care your close relatives received from primary care after hospitalization?
CL Item
Very satisfied (1)
CL Item
Satisfied (2)
CL Item
Unhappy (3)
CL Item
Very dissatisfied (4)
CL Item
Do not know (5)
Item
How satisfied or dissatisfied are you with ... the care your family members have received from the municipality after hospitalization?
integer
C1521721 (UMLS CUI [1,1])
C0086282 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,3])
C0038454 (UMLS CUI [2])
C0086282 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,3])
C0038454 (UMLS CUI [2])
Code List
How satisfied or dissatisfied are you with ... the care your family members have received from the municipality after hospitalization?
CL Item
Very satisfied (1)
CL Item
Satisfied (2)
CL Item
Unhappy (3)
CL Item
Very dissatisfied (4)
CL Item
Do not know (5)
Item
How satisfied or dissatisfied are you as a relative of ... the help you received for your own part?
integer
C1521721 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,2])
Code List
How satisfied or dissatisfied are you as a relative of ... the help you received for your own part?
CL Item
Very satisfied (1)
CL Item
Satisfied (2)
CL Item
Unhappy (3)
CL Item
Very dissatisfied (4)
CL Item
Do not know (5)
discussing strokes
Item
In the end, is there something we forgot to touch as discussing strokes and which you feel anxious to add? Or is there something that you think we should know more about? Please tell me more with your own words.
text
C0038454 (UMLS CUI [1,1])
C2584313 (UMLS CUI [1,2])
C2584313 (UMLS CUI [1,2])