Information:
Fel:
ID
27780
Beskrivning
Schwedisches Schlaganfallregister RIKSSTROKE Quelle: http://www.riksstroke.org/eng/ Riksstroke – a Swedish national quality register for stroke care primarily aimed at health professionals and decision makers in health care. We collect, analyze and follow-up data on morbidity and hospital stay. TIA
Länk
http://www.riksstroke.org/eng/
Nyckelord
Versioner (2)
- 2017-11-23 2017-11-23 -
- 2017-11-29 2017-11-29 -
Rättsinnehavare
Riksstroke
Uppladdad den
29 november 2017
DOI
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Licens
Creative Commons BY-NC 3.0
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Swedish Stroke Registry RIKSSTROKE
Similar models
TIA
- StudyEvent: ODM
Name
Typ
Description | Question | Decode (Coded Value)
Datatyp
Alias
Item Group
TIA - Patient Information
C0007787 (UMLS CUI-1)
C1955348 (UMLS CUI-2)
C0034975 (UMLS CUI-3)
C1955348 (UMLS CUI-2)
C0034975 (UMLS CUI-3)
Personal ID number
Item
Personal ID number
integer
C2348585 (UMLS CUI [1])
CL Item
male (1)
CL Item
female (2)
Name
Item
Name
text
C1299487 (UMLS CUI [1])
Date of onset TIA
Item
Date of onset TIA
date
C0007787 (UMLS CUI [1,1])
C0574845 (UMLS CUI [1,2])
C0574845 (UMLS CUI [1,2])
Diagnosis Code
Item
Diagnosis Code (G)
float
C1550350 (UMLS CUI [1,1])
C0007787 (UMLS CUI [1,2])
C0007787 (UMLS CUI [1,2])
Item Group
Sequence of care
C0017313 (UMLS CUI-1)
C0679878 (UMLS CUI-2)
C0007787 (UMLS CUI-3)
C0679878 (UMLS CUI-2)
C0007787 (UMLS CUI-3)
Reporting hospital
Item
Reporting hospital
text
C0019994 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
C0700287 (UMLS CUI [1,2])
Reporting Ward/department
Item
Reporting Ward/department
text
C0019961 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
C0700287 (UMLS CUI [1,2])
name of person completing this form
Item
Completed by (name of person completing this form)
text
C1550483 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
C0027365 (UMLS CUI [1,2])
admitted for treatment for this TIA episode
Item
Has the patient been admitted for treatment for this TIA episode?
boolean
C0007787 (UMLS CUI [1,1])
C0332189 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0332189 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
Item
Did the patient arrive by ambulance?
integer
C0002422 (UMLS CUI [1,1])
C0150390 (UMLS CUI [1,2])
C0150390 (UMLS CUI [1,2])
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Number of hours from onset to arrival at hospital
integer
C0007787 (UMLS CUI [1,1])
C0449244 (UMLS CUI [1,2])
C1320532 (UMLS CUI [1,3])
C0449238 (UMLS CUI [1,4])
C0449244 (UMLS CUI [1,2])
C1320532 (UMLS CUI [1,3])
C0449238 (UMLS CUI [1,4])
Code List
Number of hours from onset to arrival at hospital
CL Item
< 3 hrs (1)
CL Item
< 4.5 hrs (2)
CL Item
< 24 hrs (3)
CL Item
> 24 hrs (4)
CL Item
not known (5)
CL Item
(6)
Item
Thrombolysis alarm “save the brain/stroke alarm”
integer
C0040044 (UMLS CUI [1,1])
C2956061 (UMLS CUI [1,2])
C0007787 (UMLS CUI [2])
C2956061 (UMLS CUI [1,2])
C0007787 (UMLS CUI [2])
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Date of arrival at hospital
Item
Date of arrival at hospital
date
C3263562 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0007787 (UMLS CUI [2])
C0019994 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0007787 (UMLS CUI [2])
Time of arrival at hospital
Item
Time of arrival at hospital
time
C1320532 (UMLS CUI [1])
C0007787 (UMLS CUI [2])
C0007787 (UMLS CUI [2])
Item
Has the patient been admitted to the stroke unit for this episode?
integer
C0587502 (UMLS CUI [1,1])
C0030673 (UMLS CUI [1,2])
C0007787 (UMLS CUI [2])
C0030673 (UMLS CUI [1,2])
C0007787 (UMLS CUI [2])
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Previous TIA / Amaurosis fugax?
integer
C0149793 (UMLS CUI [1])
C0007787 (UMLS CUI [2])
C0007787 (UMLS CUI [2])
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Auricular fibrillation, previously diagnosed
integer
C0004238 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Auricular fibrillation, recently identified on arrival at hospital or during treatment
integer
C0004238 (UMLS CUI [1])
Code List
Auricular fibrillation, recently identified on arrival at hospital or during treatment
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Smoker (>1 cigarette/day, or quit during the last three months)
integer
C0543414 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item Group
Acute Care/Diagnosis TIA
C0007787 (UMLS CUI-1)
C0679878 (UMLS CUI-2)
C0011900 (UMLS CUI-3)
C0679878 (UMLS CUI-2)
C0011900 (UMLS CUI-3)
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
If yes, MR brain scan during acute phase:
integer
C0412675 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
CL Item
shows new cerebral infarction (1)
CL Item
shows no new cerebral infarction (2)
CL Item
examination result uncertain or not known (3)
CL Item
yes (1)
CL Item
no (2)
CL Item
examination performed no more than 28 days before onset (3)
CL Item
not known (4)
Carotid ultrasound date
Item
If yes, examination date
date
C0948945 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
CL Item
yes (1)
CL Item
no (2)
CL Item
not examined due to patient's reduced consciousness (3)
CT angiography date
Item
If yes, examination date
date
C0085532 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
CL Item
yes (1)
CL Item
no (2)
CL Item
examination performed no more than 28 days before onset (3)
CL Item
not known (4)
MR angiography date
Item
If yes, examination date
date
C0002978 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Item
CT or MR angiography performed of vessels affected
integer
C0002978 (UMLS CUI [1])
Code List
CT or MR angiography performed of vessels affected
CL Item
carotid vessels (1)
CL Item
intracranial vessels (2)
CL Item
both carotid and intracranial vessels (3)
CL Item
not known (4)
Item
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
integer
C0430461 (UMLS CUI [1])
Code List
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
CL Item
yes (1)
CL Item
no (2)
CL Item
no, but arranged for period after discharge (3)
CL Item
not known (4)
Item
Has the patient been evaluated by an occupational therapist during the period of treatment?
integer
C1444296 (UMLS CUI [1,1])
C0028807 (UMLS CUI [1,2])
C0028807 (UMLS CUI [1,2])
Code List
Has the patient been evaluated by an occupational therapist during the period of treatment?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Has the patient been evaluated by a physiotherapist during the period of treatment?
integer
C0679830 (UMLS CUI [1,1])
C2362565 (UMLS CUI [1,2])
C2362565 (UMLS CUI [1,2])
Code List
Has the patient been evaluated by a physiotherapist during the period of treatment?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item Group
Pharmaceutical Treatment
C0013227 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
C0007787 (UMLS CUI-3)
C0087111 (UMLS CUI-2)
C0007787 (UMLS CUI-3)
Item
Antihypertensive agents: At onset?
integer
C0003364 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
integer
C0360714 (UMLS CUI [1])
Code List
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
integer
C0360714 (UMLS CUI [1])
Code List
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
ASA + dipyridamole (Asasantin): At discharge?
integer
C0626271 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
integer
C1704311 (UMLS CUI [1])
Code List
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
integer
C1704311 (UMLS CUI [1])
Code List
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
PK (INR) value
Item
If yes, treatment with warfarin at onset state PK (INR) value regardless of diagnosis
float
C0525032 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Peroral anticoagulants other than the above: At onset?
integer
C0354604 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Peroral anticoagulants other than the above: At discharge?
integer
C0354604 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
integer
C0354604 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
Code List
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
CL Item
insertion planned after discharge 2= contraindications (in accordance with FASS) (1)
CL Item
interactions with other drugs/neuropathy (in accordance with FASS) (3)
CL Item
caution (in accordance with FASS) (4)
CL Item
fall-prone (5)
CL Item
dementia (6)
CL Item
patient refuses treatment (7)
CL Item
other reason (8)
CL Item
not known (9)
CL Item
kontraindicerat (enl. FASS) (2)
Item
PAP (physical activity on prescription)?
integer
C0026606 (UMLS CUI [1,1])
C0033080 (UMLS CUI [1,2])
C0033080 (UMLS CUI [1,2])
CL Item
yes (1)
CL Item
no (2)
CL Item
no, the need for physical activity is already being met (3)
CL Item
patient declined (4)
CL Item
not known (5)
Item Group
Information and Follow-up
C1522577 (UMLS CUI-1)
C1533716 (UMLS CUI-2)
C1955348 (UMLS CUI-3)
C0007787 (UMLS CUI-4)
C1533716 (UMLS CUI-2)
C1955348 (UMLS CUI-3)
C0007787 (UMLS CUI-4)
Item
Smoker informed at onset of need to quit smoking
integer
C1273715 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
C1272683 (UMLS CUI [1,2])
CL Item
yes (1)
CL Item
no (2)
CL Item
not relevant given patient's condition (3)
CL Item
not known (4)
Item
Information provided regarding driving
integer
C0004379 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,3])
C1533716 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,3])
CL Item
yes (1)
CL Item
no (2)
CL Item
not relevant/no driving licence (3)
CL Item
not known (4)
Item
Has a follow-up appointment on the basis of this TIA episode been made with a nurse or doctor?
integer
C0007787 (UMLS CUI [1,1])
C0589121 (UMLS CUI [1,2])
C0586344 (UMLS CUI [1,3])
C0589121 (UMLS CUI [1,2])
C0586344 (UMLS CUI [1,3])
Code List
Has a follow-up appointment on the basis of this TIA episode been made with a nurse or doctor?
CL Item
yes, at a special stroke unit (at or outside the hospital) (1)
CL Item
yes, at another hospital admissions ward/department (2)
CL Item
yes, at a health centre/equivalent (3)
CL Item
yes, at arranged accommodation (4)
CL Item
yes, at day rehab (5)
CL Item
not known (7)
CL Item
(6)
Item Group
ABCD2 score
C1518965 (UMLS CUI-1)
C0449821 (UMLS CUI-2)
C0007787 (UMLS CUI-3)
C0449821 (UMLS CUI-2)
C0007787 (UMLS CUI-3)
CL Item
under 60 years (1)
CL Item
over 60 years (0)
CL Item
over 140/90 at time of examination (1)
CL Item
under 140/90 at time of examination (0)
Item
Clinical picture for this TIA episode
integer
C0007787 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
C1457887 (UMLS CUI [1,2])
CL Item
speech difficulties without weakness (1)
CL Item
weakness on one side (unilaterally) could be combined with other symptoms (2)
CL Item
other symptoms (0)
Item
Duration of symptoms
integer
C1457887 (UMLS CUI [1,1])
C0449238 (UMLS CUI [1,2])
C0007787 (UMLS CUI [1,3])
C0449238 (UMLS CUI [1,2])
C0007787 (UMLS CUI [1,3])
CL Item
symptoms lasted 10-59 minutes (1)
CL Item
symptoms lasted over 60 minutes (2)
CL Item
symptoms lasted under 10 minutes (0)
CL Item
diabetes, previously diagnosed or recently identified (1)
CL Item
no diabetes (0)