ID

27477

Beschrijving

Swedish Bladder Cancer Registry Healthcare Quality http://www.cancercentrum.se/vast/cancerdiagnoser/urinvagar/urinblase--och-urinvagscancer/kvalitetsregister/dokument/ Registry

Link

http://www.cancercentrum.se/vast/cancerdiagnoser/urinvagar/urinblase--och-urinvagscancer/kvalitetsregister/dokument/

Trefwoorden

Versies (1)
  1. 15-11-17 15-11-17 -
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Regionalt CancerCentrum Väst

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15 november 2017

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Creative Commons BY-NC-ND 3.0
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Swedish Bladder Cancer Registry

Engels Zweeds

Registry

1 Formulieren  
  1. StudyEvent: ODM
    1. Registry
Registry - applies as Cancer Registry
Beschrijving

Registry - applies as Cancer Registry

Alias
UMLS CUI-1
C0034975
The form must be completed and submitted to: Regional Cancer Centre in each region.
Beschrijving

Cancer Centre

Datatype

text

Alias
UMLS CUI [1]
C1301943
Physician
Beschrijving

Physician

Datatype

text

Alias
UMLS CUI [1]
C2826892
Hospital/Clinic
Beschrijving

Hospital

Datatype

text

Alias
UMLS CUI [1]
C0019994
Date of Report
Beschrijving

Date of Report

Datatype

date

Maateenheden
  • yy-mm-dd
Alias
UMLS CUI [1]
C1302584
yy-mm-dd
Patient-No.: (yyyy-mm-dd-xxxx)
Beschrijving

Patient ID

Datatype

text

Alias
UMLS CUI [1]
C2348585
Name
Beschrijving

Patient's Name

Datatype

text

Alias
UMLS CUI [1]
C1299487
Tasks for Primary Diagnosis
Beschrijving

Tasks for Primary Diagnosis

Alias
UMLS CUI-1
C0086143
UMLS CUI-2
C0332137
Investigated according to standardized care procedures?
Beschrijving

Standard Diagnosistic Procedure

Datatype

boolean

Alias
UMLS CUI [1,1]
C0430022
UMLS CUI [1,2]
C1442989
Date of Referral
Beschrijving

If the patient has applied for himself, the date of the visit is the date of the referral

Datatype

date

Maateenheden
  • yy-mm-dd
Alias
UMLS CUI [1]
C2735614
yy-mm-dd
Arrival
Beschrijving

Arrival

Datatype

text

Alias
UMLS CUI [1]
C3263562
Arrival Date
Beschrijving

= Date when a referral was registered at the receiving clinic or when the patient searched for himself

Datatype

date

Maateenheden
  • yy-mm-dd
Alias
UMLS CUI [1]
C1320532
yy-mm-dd
Date of First Visit at Specialist
Beschrijving

Date of First Visit at Specialist

Datatype

date

Maateenheden
  • yy-mm-dd
Alias
UMLS CUI [1,1]
C1320303
UMLS CUI [1,2]
C2348234
yy-mm-dd
Date of Diagnosis at Cancer Registry
Beschrijving

= Date of diagnosis diagnosis clinically (cystoscopy, x-ray) and / or morphological (PAD)

Datatype

date

Maateenheden
  • yy-mm-dd
Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C0805443
yy-mm-dd
Date of Diagnostic Transurethral Resection (TUR/px)
Beschrijving

Date of Diagnostic Transurethral Resection

Datatype

date

Maateenheden
  • yy-mm-dd
Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C1519630
yy-mm-dd
Primary Diagnosis for Cancer Registry based on:
Beschrijving

Diagnostic Procedure

Datatype

text

Alias
UMLS CUI [1]
C0430022
For Cancer Registry: Preparation-No. (TUR-B):
Beschrijving

Preparation Number

Datatype

text

Alias
UMLS CUI [1,1]
C1521827
UMLS CUI [1,2]
C0237753
For Cancer Registry: Preparation Year:
Beschrijving

Preparation Year

Datatype

date

Maateenheden
  • yyyy
Alias
UMLS CUI [1,1]
C1521827
UMLS CUI [1,2]
C0439234
yyyy
Cytology-/ Pathology-Lab:
Beschrijving

Cytology

Datatype

text

Alias
UMLS CUI [1]
C1305671
Tumor Type:
Beschrijving

Tumor Type

Datatype

text

Alias
UMLS CUI [1]
C4263544
Tumor Size (of the largest tumor)
Beschrijving

Tumor Size

Datatype

text

Maateenheden
  • mm
Number of Tumors
Beschrijving

Number of Tumors

Datatype

text

Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0677930
Carcinoma in situ
Beschrijving

Carcinoma in situ of bladder

Datatype

text

Alias
UMLS CUI [1]
C0154091
Clinical Stage: T-stage (TNM-2009)
Beschrijving

T-stage (UICC: TNM-classification 2009) Tis: Non-invasive flat carcinoma (flat, non-exofytic tumor) Ta: Non-invasive papillary carcinoma T1: The tumor has grown from the layer of cells lining the bladder into the connective tissue below. T2: superficial muscle <1/2 and deep muscle> 1/2 T3: extravesical. resistance / macroscopic and perivesic / microscopic T4: T4a: The tumor has spread to the stroma of the prostate (in men), or to the uterus and/or vagina (in women). T4b: The tumor has spread to the pelvic wall or the abdominal wall. Tx: Criteria not met

Datatype

text

Alias
UMLS CUI [1,1]
C0475455
UMLS CUI [1,2]
C0005684
Clinical Stage: Grade (WHO 1999)
Beschrijving

Grading (WHO 1999): LMP: Urothelial neoplasm of low malignancy potential G1: Urothelial cancer grade I G2: Urothelial cancer grade II G3: Urothelial cancer grade III GX: Differentiation can not be estimated

Datatype

text

Alias
UMLS CUI [1,1]
C0441800
UMLS CUI [1,2]
C0005684
Clinical Stage: N-Stage (TNM-2009):
Beschrijving

N-Stage (UICC: TNM-Classification 2009): N0: No lymph node metastases detected (at CT / MR / UL a/o PAD / cytology) N1: Metastasis in a single lymphe node in the pelvis (iliaca external, iliiaca internal, obturatorius or presacral). N2: Metastasis in multiple lymph nodes in the pelvis (iliaca external, iliaca internal, or obturatorius area or presacral). N3: Metastasis in one or more lymph nodes in the iliaca communis area .. NX: Criteria for diagnosis of lymph node metastases not met (Verification with CT / MR / UL a/o PAD / cytology required)

Datatype

text

Alias
UMLS CUI [1,1]
C0456532
UMLS CUI [1,2]
C0005684
Clincal Stage: M-Stage (TNM-2009)
Beschrijving

M-Stage (UICC: TNM-Classification 2009): M0: Distant metastases not detected M1: Distant metastases detected

Datatype

text

Alias
UMLS CUI [1,1]
C0456533
UMLS CUI [1,2]
C0005684
Patient has a designated contact nurse?
Beschrijving

Contact Nurse

Datatype

boolean

Alias
UMLS CUI [1]
C0583629
The patient is referred to:
Beschrijving

Only indicated if treatment will be in a different hospital / clinic than reporting the notification.

Datatype

text

Alias
UMLS CUI [1]
C0034927
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Similar models

Registry

1 Formulieren
  1. StudyEvent: ODM
    1. Registry
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Registry - applies as Cancer Registry
C0034975 (UMLS CUI-1)
Cancer Centre
Item
The form must be completed and submitted to: Regional Cancer Centre in each region.
text
C1301943 (UMLS CUI [1])
Physician
Item
Physician
text
C2826892 (UMLS CUI [1])
Hospital
Item
Hospital/Clinic
text
C0019994 (UMLS CUI [1])
Date of Report
Item
Date of Report
date
C1302584 (UMLS CUI [1])
Patient ID
Item
Patient-No.: (yyyy-mm-dd-xxxx)
text
C2348585 (UMLS CUI [1])
Patient's Name
Item
Name
text
C1299487 (UMLS CUI [1])
Item Group
Tasks for Primary Diagnosis
C0086143 (UMLS CUI-1)
C0332137 (UMLS CUI-2)
Standard Diagnosistic Procedure
Item
Investigated according to standardized care procedures?
boolean
C0430022 (UMLS CUI [1,1])
C1442989 (UMLS CUI [1,2])
Date of Referral
Item
Date of Referral
date
C2735614 (UMLS CUI [1])
Item
Arrival
text
C3263562 (UMLS CUI [1])
Arrival
Code List
Arrival
CL Item
 (remiss registrerad)
CL Item
 (Patienten söker själv)
CL Item
 (Annat)
Arrival Date
Item
Arrival Date
date
C1320532 (UMLS CUI [1])
Date of First Visit at Specialist
Item
Date of First Visit at Specialist
date
C1320303 (UMLS CUI [1,1])
C2348234 (UMLS CUI [1,2])
Date of Diagnosis at Cancer Registry
Item
Date of Diagnosis at Cancer Registry
date
C0011008 (UMLS CUI [1,1])
C0805443 (UMLS CUI [1,2])
Date of Diagnostic Transurethral Resection
Item
Date of Diagnostic Transurethral Resection (TUR/px)
date
C2316983 (UMLS CUI [1,1])
C1519630 (UMLS CUI [1,2])
Item
Primary Diagnosis for Cancer Registry based on:
text
C0430022 (UMLS CUI [1])
Diagnostic Procedure
Code List
Primary Diagnosis for Cancer Registry based on:
CL Item
 (Cytologi)
CL Item
 (PAD/biopsi)
CL Item
 (Annat)
Preparation Number
Item
For Cancer Registry: Preparation-No. (TUR-B):
text
C1521827 (UMLS CUI [1,1])
C0237753 (UMLS CUI [1,2])
Preparation Year
Item
For Cancer Registry: Preparation Year:
date
C1521827 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Cytology
Item
Cytology-/ Pathology-Lab:
text
C1305671 (UMLS CUI [1])
Item
Tumor Type:
text
C4263544 (UMLS CUI [1])
Tumor Type
Code List
Tumor Type:
CL Item
 (Urotelial cancer)
CL Item
 (Annan än urotelial cancer (grad ska ej anges))
Item
Tumor Size (of the largest tumor)
text
Tumor Size
Code List
Tumor Size (of the largest tumor)
CL Item
0-10 (0-10)
CL Item
11-30 (11-30)
CL Item
>30 (>30)
CL Item
 (Uppgift saknas)
Item
Number of Tumors
text
C0449788 (UMLS CUI [1,1])
C0677930 (UMLS CUI [1,2])
Number of Tumors
Code List
Number of Tumors
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6-10 (6-10)
CL Item
>10 (>10)
CL Item
 (Uppgift saknas)
Item
Carcinoma in situ
text
C0154091 (UMLS CUI [1])
Carcinoma in situ of bladder
Code List
Carcinoma in situ
CL Item
 (Nej)
CL Item
 (Ja)
CL Item
 (Ej undersökt)
Item
Clinical Stage: T-stage (TNM-2009)
text
C0475455 (UMLS CUI [1,1])
C0005684 (UMLS CUI [1,2])
Bladder Cancer: T Staging
Code List
Clinical Stage: T-stage (TNM-2009)
CL Item
T1 (lamina propria) (T1 (lamina propria))
CL Item
 (Tis (endast primär, in situ))
CL Item
 (Ta (ej invasiv))
CL Item
 (T2 (ytlig muskel <1/2 och djup muskel >1/2))
CL Item
 (T3 (extravesical. resistens/makroskopisk och perivesic/mikroskopisk))
CL Item
 (T4a (prostata/vagina, uterus) T4b (bäckenvägg, bukvägg, rektum))
CL Item
 (TX (kriterier ej uppfyllda))
Item
Clinical Stage: Grade (WHO 1999)
text
C0441800 (UMLS CUI [1,1])
C0005684 (UMLS CUI [1,2])
Bladder Cancer: WHO Grading
Code List
Clinical Stage: Grade (WHO 1999)
CL Item
LMP (LMP)
CL Item
G1 (G1)
CL Item
G2 (G2)
CL Item
G3 (G3)
CL Item
GX (GX)
Item
Clinical Stage: N-Stage (TNM-2009):
text
C0456532 (UMLS CUI [1,1])
C0005684 (UMLS CUI [1,2])
Bladder Cancer: N-Stage
Code List
Clinical Stage: N-Stage (TNM-2009):
CL Item
N1 (N1)
CL Item
N2 (N2)
CL Item
N3 (N3)
CL Item
NX (NX)
CL Item
 (N0 (CT/MR/UL och/ eller PAD/Cyt))
Item
Clincal Stage: M-Stage (TNM-2009)
text
C0456533 (UMLS CUI [1,1])
C0005684 (UMLS CUI [1,2])
Bladder Cancer: M-Stage
Code List
Clincal Stage: M-Stage (TNM-2009)
CL Item
M0 (M0)
CL Item
M1 (M1)
Contact Nurse
Item
Patient has a designated contact nurse?
boolean
C0583629 (UMLS CUI [1])
Referral
Item
The patient is referred to:
text
C0034927 (UMLS CUI [1])
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