ID

26264

Beskrivning

Ελληνικό Αρχείο Καταγραφής Μυελοδυσπλαστικών και Υποπλαστικών Συνδρόμων (ΕΑΚΜΥΣ) Hellenic National Registry of Myelodysplastic and Hypoplastic Syndromes Source: Prof. Argiris Symeonidis University of Patras Greece

Nyckelord

Versioner (10)
  1. 2017-10-14 2017-10-14 - Martin Dugas
  2. 2017-10-14 2017-10-14 - Martin Dugas
  3. 2017-10-14 2017-10-14 - Martin Dugas
  4. 2017-10-14 2017-10-14 - Martin Dugas
  5. 2017-10-16 2017-10-16 - Martin Dugas
  6. 2017-10-17 2017-10-17 - Martin Dugas
  7. 2017-10-18 2017-10-18 - Martin Dugas
  8. 2017-10-18 2017-10-18 - Martin Dugas
  9. 2017-10-20 2017-10-20 - Martin Dugas
  10. 2021-09-27 2021-09-27 -
Rättsinnehavare

Argiris Symeonidis

Uppladdad den

14 oktober 2017

DOI

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Licens

Creative Commons BY-NC 3.0
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Greek MDS registry

Greek, Modern Engelsk

Baseline

1 Formulär  
  1. StudyEvent: ODM
    1. Baseline
Demographic data
Beskrivning

Demographic data

Alias
UMLS CUI-1
C0011298
Last name
Beskrivning

Last name

Datatyp

text

Alias
UMLS CUI [1]
C1301584
First name
Beskrivning

First name

Datatyp

text

Alias
UMLS CUI [1]
C1443235
Father's name
Beskrivning

Father's name

Datatyp

text

Alias
UMLS CUI [1,1]
C0015671
UMLS CUI [1,2]
C0027365
Initials
Beskrivning

Initials

Datatyp

text

Alias
UMLS CUI [1]
C2986440
Hematology Clinic Code
Beskrivning

Hematology Clinic Code

Datatyp

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C0805701
Hospital registration number
Beskrivning

Hospital registration number

Datatyp

text

Alias
UMLS CUI [1]
C0421459
Date of birth
Beskrivning

Date of birth

Datatyp

date

Alias
UMLS CUI [1]
C0421451
Place of birth
Beskrivning

Place of birth

Datatyp

text

Alias
UMLS CUI [1]
C0032040
Place of residence
Beskrivning

Place of residence

Datatyp

text

Alias
UMLS CUI [1]
C0682130
Gender
Beskrivning

Gender

Datatyp

text

Alias
UMLS CUI [1]
C0079399
Age at diagnosis
Beskrivning

Age at diagnosis

Datatyp

integer

Alias
UMLS CUI [1]
C1828181
Occupation
Beskrivning

Occupation

Datatyp

integer

Alias
UMLS CUI [1]
C0028811
Date of diagnosis
Beskrivning

Date of diagnosis

Datatyp

date

Alias
UMLS CUI [1]
C2316983
Previous exposure to myeloid toxic agents
Beskrivning

Previous exposure to myeloid toxic agents

Datatyp

integer

Alias
UMLS CUI [1]
C0522757
Active clinical problems
Beskrivning

Active clinical problems

Datatyp

text

Alias
UMLS CUI [1,1]
C1254481
UMLS CUI [1,2]
C0205177
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
Beskrivning

Family history of clonal haematological disorder

Datatyp

integer

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0376545
Classification
Beskrivning

Classification

Alias
UMLS CUI-1
C0008902
FAB classification
Beskrivning

FAB classification

Datatyp

text

Alias
UMLS CUI [1]
C2984084
FAB classification
Beskrivning

WHO classification

Datatyp

text

Alias
UMLS CUI [1,1]
C1301142
UMLS CUI [1,2]
C3463824
Hybrid MDS - Myeloproliferative syndromes
Beskrivning

Hybrid MDS - Myeloproliferative syndromes

Datatyp

text

Alias
UMLS CUI [1]
C1443043
Additional features
Beskrivning

Additional features

Datatyp

integer

Alias
UMLS CUI [1]
C1853192
hypoplastic
Beskrivning

hypoplastic

Datatyp

integer

Alias
UMLS CUI [1]
C0543481
connected
Beskrivning

connected

Datatyp

integer

Alias
UMLS CUI [1]
C2986575
Splenomegaly
Beskrivning

Splenomegaly

Datatyp

integer

Alias
UMLS CUI [1]
C0038002
Spleen Size
Beskrivning

Spleen Size

Datatyp

float

Måttenheter
  • cm
Alias
UMLS CUI [1,1]
C0037993
UMLS CUI [1,2]
C0456389
cm
WHO performance status
Beskrivning

WHO performance status

Datatyp

text

Alias
UMLS CUI [1]
C1298650
Hematological findings
Beskrivning

Hematological findings

Alias
UMLS CUI-1
C0279810
UMLS CUI-2
C0243095
Hemoglobin
Beskrivning

Hemoglobin

Datatyp

float

Alias
UMLS CUI [1]
C0019046
MCV
Beskrivning

MCV

Datatyp

float

Alias
UMLS CUI [1]
C0524587
MCH
Beskrivning

MCH

Datatyp

float

Alias
UMLS CUI [1]
C1261502
Leukocytes
Beskrivning

Leukocytes

Datatyp

float

Måttenheter
  • 10E3/mm3
Alias
UMLS CUI [1]
C0023516
10E3/mm3
Leukocytes subtype
Beskrivning

Leukocytes subtype

Datatyp

float

Leukocytes subtype
Beskrivning

Leukocytes subtype

Datatyp

float

Leukocytes subtype
Beskrivning

Leukocytes subtype

Datatyp

float

Leukocytes subtype
Beskrivning

Leukocytes subtype

Datatyp

float

Leukocytes subtype
Beskrivning

Leukocytes subtype

Datatyp

float

Leukocytes subtype
Beskrivning

Leukocytes subtype

Datatyp

float

Absolute neutrophil count
Beskrivning

Absolute neutrophil count

Datatyp

float

Alias
UMLS CUI [1]
C0948762
Absolute monocyte count
Beskrivning

Absolute monocyte count

Datatyp

float

Alias
UMLS CUI [1]
C0200637
Absolute blast count
Beskrivning

Absolute blast count

Datatyp

float

Alias
UMLS CUI [1]
C0523113
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Similar models

Baseline

1 Formulär
  1. StudyEvent: ODM
    1. Baseline
Name
Typ
Description | Question | Decode (Coded Value)
Datatyp
Alias
Item Group
C0011298 (UMLS CUI-1)
Last name
Item
text
C1301584 (UMLS CUI [1])
First name
Item
text
C1443235 (UMLS CUI [1])
Father's name
Item
text
C0015671 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Initials
Item
text
C2986440 (UMLS CUI [1])
Hematology Clinic Code
Item
text
C0019994 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
Hospital registration number
Item
text
C0421459 (UMLS CUI [1])
Date of birth
Item
date
C0421451 (UMLS CUI [1])
Place of birth
Item
text
C0032040 (UMLS CUI [1])
Place of residence
Item
text
C0682130 (UMLS CUI [1])
Item
text
C0079399 (UMLS CUI [1])
Gender
Code List
Gender
CL Item
male (m)
(Comment:el)
C0086582 (UMLS CUI-1)
(Comment:en)
CL Item
female (f)
(Comment:el)
C0015780 (UMLS CUI-1)
(Comment:en)
Age at diagnosis
Item
integer
C1828181 (UMLS CUI [1])
Item
integer
C0028811 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Occupation
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Date of diagnosis
Item
date
C2316983 (UMLS CUI [1])
Item
integer
C0522757 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Previous exposure to myeloid toxic agents
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Active clinical problems
Item
text
C1254481 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
Item
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
integer
C0241889 (UMLS CUI [1,1])
C0376545 (UMLS CUI [1,2])
Family history of clonal haematological disorder
Code List
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item Group
C0008902 (UMLS CUI-1)
FAB classification
Item
FAB classification
text
C2984084 (UMLS CUI [1])
WHO classification
Item
FAB classification
text
C1301142 (UMLS CUI [1,1])
C3463824 (UMLS CUI [1,2])
Hybrid MDS - Myeloproliferative syndromes
Item
text
C1443043 (UMLS CUI [1])
Item
integer
C1853192 (UMLS CUI [1])
Additional features
Code List
Additional features
CL Item
primary (1)
(Comment:en)
C0205225 (UMLS CUI-1)
(Comment:el)
CL Item
secondary (2)
(Comment:en)
C0175668 (UMLS CUI-1)
(Comment:el)
Item
integer
C0543481 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
hypoplastic
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item
integer
C2986575 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
connected
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item
integer
C0038002 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Splenomegaly
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Spleen Size
Item
float
C0037993 (UMLS CUI [1,1])
C0456389 (UMLS CUI [1,2])
Item
text
C1298650 (UMLS CUI [1])
WHO performance status
Code List
WHO performance status
CL Item
 (100)
CL Item
 (90)
CL Item
 (80)
CL Item
 (70)
CL Item
 (60)
CL Item
 (50)
CL Item
 (40)
CL Item
 (30)
CL Item
 (20)
CL Item
 (10)
CL Item
 (0)
Item Group
C0279810 (UMLS CUI-1)
C0243095 (UMLS CUI-2)
Hemoglobin
Item
float
C0019046 (UMLS CUI [1])
MCV
Item
float
C0524587 (UMLS CUI [1])
MCH
Item
float
C1261502 (UMLS CUI [1])
Leukocytes
Item
float
C0023516 (UMLS CUI [1])
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Absolute neutrophil count
Item
float
C0948762 (UMLS CUI [1])
Absolute monocyte count
Item
float
C0200637 (UMLS CUI [1])
Absolute blast count
Item
float
C0523113 (UMLS CUI [1])
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