ID

26264

Descripción

Ελληνικό Αρχείο Καταγραφής Μυελοδυσπλαστικών και Υποπλαστικών Συνδρόμων (ΕΑΚΜΥΣ) Hellenic National Registry of Myelodysplastic and Hypoplastic Syndromes Source: Prof. Argiris Symeonidis University of Patras Greece

Palabras clave

Versiones (10)
  1. 14/10/17 14/10/17 - Martin Dugas
  2. 14/10/17 14/10/17 - Martin Dugas
  3. 14/10/17 14/10/17 - Martin Dugas
  4. 14/10/17 14/10/17 - Martin Dugas
  5. 16/10/17 16/10/17 - Martin Dugas
  6. 17/10/17 17/10/17 - Martin Dugas
  7. 18/10/17 18/10/17 - Martin Dugas
  8. 18/10/17 18/10/17 - Martin Dugas
  9. 20/10/17 20/10/17 - Martin Dugas
  10. 27/9/21 27/9/21 -
Titular de derechos de autor

Argiris Symeonidis

Subido en

14 de octubre de 2017

DOI

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Licencia

Creative Commons BY-NC 3.0
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Greek MDS registry

Griego Inglés

Baseline

1 formularios  
  1. StudyEvent: ODM
    1. Baseline
Demographic data
Descripción

Demographic data

Alias
UMLS CUI-1
C0011298
Last name
Descripción

Last name

Tipo de datos

text

Alias
UMLS CUI [1]
C1301584
First name
Descripción

First name

Tipo de datos

text

Alias
UMLS CUI [1]
C1443235
Father's name
Descripción

Father's name

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0015671
UMLS CUI [1,2]
C0027365
Initials
Descripción

Initials

Tipo de datos

text

Alias
UMLS CUI [1]
C2986440
Hematology Clinic Code
Descripción

Hematology Clinic Code

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C0805701
Hospital registration number
Descripción

Hospital registration number

Tipo de datos

text

Alias
UMLS CUI [1]
C0421459
Date of birth
Descripción

Date of birth

Tipo de datos

date

Alias
UMLS CUI [1]
C0421451
Place of birth
Descripción

Place of birth

Tipo de datos

text

Alias
UMLS CUI [1]
C0032040
Place of residence
Descripción

Place of residence

Tipo de datos

text

Alias
UMLS CUI [1]
C0682130
Gender
Descripción

Gender

Tipo de datos

text

Alias
UMLS CUI [1]
C0079399
Age at diagnosis
Descripción

Age at diagnosis

Tipo de datos

integer

Alias
UMLS CUI [1]
C1828181
Occupation
Descripción

Occupation

Tipo de datos

integer

Alias
UMLS CUI [1]
C0028811
Date of diagnosis
Descripción

Date of diagnosis

Tipo de datos

date

Alias
UMLS CUI [1]
C2316983
Previous exposure to myeloid toxic agents
Descripción

Previous exposure to myeloid toxic agents

Tipo de datos

integer

Alias
UMLS CUI [1]
C0522757
Active clinical problems
Descripción

Active clinical problems

Tipo de datos

text

Alias
UMLS CUI [1,1]
C1254481
UMLS CUI [1,2]
C0205177
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
Descripción

Family history of clonal haematological disorder

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0376545
Classification
Descripción

Classification

Alias
UMLS CUI-1
C0008902
FAB classification
Descripción

FAB classification

Tipo de datos

text

Alias
UMLS CUI [1]
C2984084
FAB classification
Descripción

WHO classification

Tipo de datos

text

Alias
UMLS CUI [1,1]
C1301142
UMLS CUI [1,2]
C3463824
Hybrid MDS - Myeloproliferative syndromes
Descripción

Hybrid MDS - Myeloproliferative syndromes

Tipo de datos

text

Alias
UMLS CUI [1]
C1443043
Additional features
Descripción

Additional features

Tipo de datos

integer

Alias
UMLS CUI [1]
C1853192
hypoplastic
Descripción

hypoplastic

Tipo de datos

integer

Alias
UMLS CUI [1]
C0543481
connected
Descripción

connected

Tipo de datos

integer

Alias
UMLS CUI [1]
C2986575
Splenomegaly
Descripción

Splenomegaly

Tipo de datos

integer

Alias
UMLS CUI [1]
C0038002
Spleen Size
Descripción

Spleen Size

Tipo de datos

float

Unidades de medida
  • cm
Alias
UMLS CUI [1,1]
C0037993
UMLS CUI [1,2]
C0456389
cm
WHO performance status
Descripción

WHO performance status

Tipo de datos

text

Alias
UMLS CUI [1]
C1298650
Hematological findings
Descripción

Hematological findings

Alias
UMLS CUI-1
C0279810
UMLS CUI-2
C0243095
Hemoglobin
Descripción

Hemoglobin

Tipo de datos

float

Alias
UMLS CUI [1]
C0019046
MCV
Descripción

MCV

Tipo de datos

float

Alias
UMLS CUI [1]
C0524587
MCH
Descripción

MCH

Tipo de datos

float

Alias
UMLS CUI [1]
C1261502
Leukocytes
Descripción

Leukocytes

Tipo de datos

float

Unidades de medida
  • 10E3/mm3
Alias
UMLS CUI [1]
C0023516
10E3/mm3
Leukocytes subtype
Descripción

Leukocytes subtype

Tipo de datos

float

Leukocytes subtype
Descripción

Leukocytes subtype

Tipo de datos

float

Leukocytes subtype
Descripción

Leukocytes subtype

Tipo de datos

float

Leukocytes subtype
Descripción

Leukocytes subtype

Tipo de datos

float

Leukocytes subtype
Descripción

Leukocytes subtype

Tipo de datos

float

Leukocytes subtype
Descripción

Leukocytes subtype

Tipo de datos

float

Absolute neutrophil count
Descripción

Absolute neutrophil count

Tipo de datos

float

Alias
UMLS CUI [1]
C0948762
Absolute monocyte count
Descripción

Absolute monocyte count

Tipo de datos

float

Alias
UMLS CUI [1]
C0200637
Absolute blast count
Descripción

Absolute blast count

Tipo de datos

float

Alias
UMLS CUI [1]
C0523113
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Similar models

Baseline

1 formularios
  1. StudyEvent: ODM
    1. Baseline
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de datos
Alias
Item Group
C0011298 (UMLS CUI-1)
Last name
Item
text
C1301584 (UMLS CUI [1])
First name
Item
text
C1443235 (UMLS CUI [1])
Father's name
Item
text
C0015671 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Initials
Item
text
C2986440 (UMLS CUI [1])
Hematology Clinic Code
Item
text
C0019994 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
Hospital registration number
Item
text
C0421459 (UMLS CUI [1])
Date of birth
Item
date
C0421451 (UMLS CUI [1])
Place of birth
Item
text
C0032040 (UMLS CUI [1])
Place of residence
Item
text
C0682130 (UMLS CUI [1])
Item
text
C0079399 (UMLS CUI [1])
Gender
Code List
Gender
CL Item
male (m)
(Comment:el)
C0086582 (UMLS CUI-1)
(Comment:en)
CL Item
female (f)
(Comment:el)
C0015780 (UMLS CUI-1)
(Comment:en)
Age at diagnosis
Item
integer
C1828181 (UMLS CUI [1])
Item
integer
C0028811 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Occupation
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Date of diagnosis
Item
date
C2316983 (UMLS CUI [1])
Item
integer
C0522757 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Previous exposure to myeloid toxic agents
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Active clinical problems
Item
text
C1254481 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
Item
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
integer
C0241889 (UMLS CUI [1,1])
C0376545 (UMLS CUI [1,2])
Family history of clonal haematological disorder
Code List
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item Group
C0008902 (UMLS CUI-1)
FAB classification
Item
FAB classification
text
C2984084 (UMLS CUI [1])
WHO classification
Item
FAB classification
text
C1301142 (UMLS CUI [1,1])
C3463824 (UMLS CUI [1,2])
Hybrid MDS - Myeloproliferative syndromes
Item
text
C1443043 (UMLS CUI [1])
Item
integer
C1853192 (UMLS CUI [1])
Additional features
Code List
Additional features
CL Item
primary (1)
(Comment:en)
C0205225 (UMLS CUI-1)
(Comment:el)
CL Item
secondary (2)
(Comment:en)
C0175668 (UMLS CUI-1)
(Comment:el)
Item
integer
C0543481 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
hypoplastic
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item
integer
C2986575 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
connected
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item
integer
C0038002 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Splenomegaly
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Spleen Size
Item
float
C0037993 (UMLS CUI [1,1])
C0456389 (UMLS CUI [1,2])
Item
text
C1298650 (UMLS CUI [1])
WHO performance status
Code List
WHO performance status
CL Item
 (100)
CL Item
 (90)
CL Item
 (80)
CL Item
 (70)
CL Item
 (60)
CL Item
 (50)
CL Item
 (40)
CL Item
 (30)
CL Item
 (20)
CL Item
 (10)
CL Item
 (0)
Item Group
C0279810 (UMLS CUI-1)
C0243095 (UMLS CUI-2)
Hemoglobin
Item
float
C0019046 (UMLS CUI [1])
MCV
Item
float
C0524587 (UMLS CUI [1])
MCH
Item
float
C1261502 (UMLS CUI [1])
Leukocytes
Item
float
C0023516 (UMLS CUI [1])
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Leukocytes subtype
Item
float
Absolute neutrophil count
Item
float
C0948762 (UMLS CUI [1])
Absolute monocyte count
Item
float
C0200637 (UMLS CUI [1])
Absolute blast count
Item
float
C0523113 (UMLS CUI [1])
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