ID

26263

Beschrijving

Ελληνικό Αρχείο Καταγραφής Μυελοδυσπλαστικών και Υποπλαστικών Συνδρόμων (ΕΑΚΜΥΣ) Hellenic National Registry of Myelodysplastic and Hypoplastic Syndromes Source: Prof. Argiris Symeonidis University of Patras Greece

Trefwoorden

Versies (10)
  1. 14-10-17 14-10-17 - Martin Dugas
  2. 14-10-17 14-10-17 - Martin Dugas
  3. 14-10-17 14-10-17 - Martin Dugas
  4. 14-10-17 14-10-17 - Martin Dugas
  5. 16-10-17 16-10-17 - Martin Dugas
  6. 17-10-17 17-10-17 - Martin Dugas
  7. 18-10-17 18-10-17 - Martin Dugas
  8. 18-10-17 18-10-17 - Martin Dugas
  9. 20-10-17 20-10-17 - Martin Dugas
  10. 27-09-21 27-09-21 -
Houder van rechten

Argiris Symeonidis

Geüploaded op

14 oktober 2017

DOI

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Licentie

Creative Commons BY-NC 3.0
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Greek MDS registry

Greek, Modern Engels

Baseline

1 Formulieren  
  1. StudyEvent: ODM
    1. Baseline
Demographic data
Beschrijving

Demographic data

Alias
UMLS CUI-1
C0011298
Last name
Beschrijving

Last name

Datatype

text

Alias
UMLS CUI [1]
C1301584
First name
Beschrijving

First name

Datatype

text

Alias
UMLS CUI [1]
C1443235
Father's name
Beschrijving

Father's name

Datatype

text

Alias
UMLS CUI [1,1]
C0015671
UMLS CUI [1,2]
C0027365
Initials
Beschrijving

Initials

Datatype

text

Alias
UMLS CUI [1]
C2986440
Hematology Clinic Code
Beschrijving

Hematology Clinic Code

Datatype

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C0805701
Hospital registration number
Beschrijving

Hospital registration number

Datatype

text

Alias
UMLS CUI [1]
C0421459
Date of birth
Beschrijving

Date of birth

Datatype

date

Alias
UMLS CUI [1]
C0421451
Place of birth
Beschrijving

Place of birth

Datatype

text

Alias
UMLS CUI [1]
C0032040
Place of residence
Beschrijving

Place of residence

Datatype

text

Alias
UMLS CUI [1]
C0682130
Gender
Beschrijving

Gender

Datatype

text

Alias
UMLS CUI [1]
C0079399
Age at diagnosis
Beschrijving

Age at diagnosis

Datatype

integer

Alias
UMLS CUI [1]
C1828181
Occupation
Beschrijving

Occupation

Datatype

integer

Alias
UMLS CUI [1]
C0028811
Date of diagnosis
Beschrijving

Date of diagnosis

Datatype

date

Alias
UMLS CUI [1]
C2316983
Previous exposure to myeloid toxic agents
Beschrijving

Previous exposure to myeloid toxic agents

Datatype

integer

Alias
UMLS CUI [1]
C0522757
Active clinical problems
Beschrijving

Active clinical problems

Datatype

text

Alias
UMLS CUI [1,1]
C1254481
UMLS CUI [1,2]
C0205177
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
Beschrijving

Family history of clonal haematological disorder

Datatype

integer

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0376545
Classification
Beschrijving

Classification

Alias
UMLS CUI-1
C0008902
FAB classification
Beschrijving

FAB classification

Datatype

text

Alias
UMLS CUI [1]
C2984084
FAB classification
Beschrijving

WHO classification

Datatype

text

Alias
UMLS CUI [1,1]
C1301142
UMLS CUI [1,2]
C3463824
Hybrid MDS - Myeloproliferative syndromes
Beschrijving

Hybrid MDS - Myeloproliferative syndromes

Datatype

text

Alias
UMLS CUI [1]
C1443043
Additional features
Beschrijving

Additional features

Datatype

integer

Alias
UMLS CUI [1]
C1853192
hypoplastic
Beschrijving

hypoplastic

Datatype

integer

Alias
UMLS CUI [1]
C0543481
connected
Beschrijving

connected

Datatype

integer

Alias
UMLS CUI [1]
C2986575
Splenomegaly
Beschrijving

Splenomegaly

Datatype

integer

Alias
UMLS CUI [1]
C0038002
Spleen Size
Beschrijving

Spleen Size

Datatype

float

Maateenheden
  • cm
Alias
UMLS CUI [1,1]
C0037993
UMLS CUI [1,2]
C0456389
cm
WHO performance status
Beschrijving

WHO performance status

Datatype

text

Alias
UMLS CUI [1]
C1298650
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Similar models

Baseline

1 Formulieren
  1. StudyEvent: ODM
    1. Baseline
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
C0011298 (UMLS CUI-1)
Last name
Item
text
C1301584 (UMLS CUI [1])
First name
Item
text
C1443235 (UMLS CUI [1])
Father's name
Item
text
C0015671 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Initials
Item
text
C2986440 (UMLS CUI [1])
Hematology Clinic Code
Item
text
C0019994 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
Hospital registration number
Item
text
C0421459 (UMLS CUI [1])
Date of birth
Item
date
C0421451 (UMLS CUI [1])
Place of birth
Item
text
C0032040 (UMLS CUI [1])
Place of residence
Item
text
C0682130 (UMLS CUI [1])
Item
text
C0079399 (UMLS CUI [1])
Gender
Code List
Gender
CL Item
male (m)
(Comment:el)
C0086582 (UMLS CUI-1)
(Comment:en)
CL Item
female (f)
(Comment:el)
C0015780 (UMLS CUI-1)
(Comment:en)
Age at diagnosis
Item
integer
C1828181 (UMLS CUI [1])
Item
integer
C0028811 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Occupation
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Date of diagnosis
Item
date
C2316983 (UMLS CUI [1])
Item
integer
C0522757 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Previous exposure to myeloid toxic agents
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Active clinical problems
Item
text
C1254481 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
Item
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
integer
C0241889 (UMLS CUI [1,1])
C0376545 (UMLS CUI [1,2])
Family history of clonal haematological disorder
Code List
Οικογενές ιστορικό κλωνικής αιματολογικής διαταραχής
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item Group
C0008902 (UMLS CUI-1)
FAB classification
Item
FAB classification
text
C2984084 (UMLS CUI [1])
WHO classification
Item
FAB classification
text
C1301142 (UMLS CUI [1,1])
C3463824 (UMLS CUI [1,2])
Hybrid MDS - Myeloproliferative syndromes
Item
text
C1443043 (UMLS CUI [1])
Item
integer
C1853192 (UMLS CUI [1])
Additional features
Code List
Additional features
CL Item
primary (1)
(Comment:en)
C0205225 (UMLS CUI-1)
(Comment:el)
CL Item
secondary (2)
(Comment:en)
C0175668 (UMLS CUI-1)
(Comment:el)
Item
integer
C0543481 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
hypoplastic
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item
integer
C2986575 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
connected
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Item
integer
C0038002 (UMLS CUI [1])
Family history of clonal haematological disorder
Code List
Splenomegaly
CL Item
yes (1)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:el)
CL Item
no (2)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:el)
CL Item
unknown (3)
(Comment:en)
C0439673 (UMLS CUI-1)
(Comment:el)
Spleen Size
Item
float
C0037993 (UMLS CUI [1,1])
C0456389 (UMLS CUI [1,2])
Item
text
C1298650 (UMLS CUI [1])
WHO performance status
Code List
WHO performance status
CL Item
 (100)
CL Item
 (90)
CL Item
 (80)
CL Item
 (70)
CL Item
 (60)
CL Item
 (50)
CL Item
 (40)
CL Item
 (30)
CL Item
 (20)
CL Item
 (10)
CL Item
 (0)
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