ID

19202

Description

PCORnet Common Data Model (CDM) Death Cause PCORnet Common Data Model (CDM) A patient-centered approach to building an agile research platform is at the heart of PCORnet, and data serves as the backbone. Considering the large number and diverse types of organizations that are part of PCORnet, we all benefit from having a streamlined, efficient way to use the data produced by these organizations. Enter the PCORnet Common Data Model. The Common Data Model (or CDM) is a way of organizing data into a standard structure. The approach PCORnet is using to do this mirrors the approaches used by other large national research consortia. Each PCORnet partner network maps data to the same consistent format (i.e., with the same variable name, attributes, and other metadata). By undertaking this step, we create a platform that enables much more rapid responses to research-related questions. Contrast this with having to transform and prepare data each time we want to ask a new research question, and the efficiencies become clear. The PCORnet CDM is based on the FDA Sentinel Initiative Common Data Model (www.sentinelsystem.org) and has been informed by other distributed initiatives such as the Health Care Systems Research Network, the Vaccine Safety Datalink, various AHRQ Distributed Research Network projects, and the ONC Standards & Interoperability Framework Query Health Initiative. The PCORnet CDM leverages standard terminologies and coding systems for healthcare (including ICD, SNOMED, CPT, HCPSC, and LOINC) to enable interoperability with and responsiveness to evolving data standards. The PCORnet CDM (like other parts of PCORnet) will grow and evolve. Version 1.0 focused on a set of data items that are frequently available. Subsequent versions build in additional data elements which are analytically important for patient-centered outcomes research and feasible to standardize across sites.

Link

www.sentinelsystem.org

Keywords

  1. 12/12/16 12/12/16 -
  2. 7/1/19 7/1/19 -
  3. 3/30/20 3/30/20 -
Uploaded on

December 12, 2016

DOI

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License

Creative Commons BY-NC 3.0

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PCORnet Common Data Model (CDM) Death Cause

PCORnet Common Data Model (CDM) Death Cause

Death Cause
Description

Death Cause

Alias
UMLS CUI-1
C0007465
UMLS CUI-2
C0011065
Patient ID
Description

Arbitrary person-level identifier used to link across tables.

Data type

integer

Alias
UMLS CUI [1]
C2348585
Death Cause
Description

Cause of death code. Please include the decimal point in ICD codes (if any).

Data type

text

Alias
UMLS CUI [1]
C0007465
Death Cause Code
Description

Cause of death code type.

Data type

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0805701
Death Cause Type
Description

Cause of death type. There should be only one underlying cause of death.

Data type

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0332307
Death Cause Source
Description

Source of cause of death information.

Data type

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0449416
Death Cause Confidence
Description

Confidence in the accuracy of the cause of death based on source, match, number of reporting sources, discrepancies, etc.

Data type

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0443131
UMLS CUI [1,3]
C1704726

Similar models

PCORnet Common Data Model (CDM) Death Cause

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Death Cause
C0007465 (UMLS CUI-1)
C0011065 (UMLS CUI-2)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Death Cause
Item
Death Cause
text
C0007465 (UMLS CUI [1])
Item
Death Cause Code
text
C0007465 (UMLS CUI [1,1])
C0805701 (UMLS CUI [1,2])
Code List
Death Cause Code
CL Item
ICD-9 (09)
CL Item
ICD-10 (10)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)
Item
Death Cause Type
text
C0007465 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Code List
Death Cause Type
CL Item
Contributory (C)
CL Item
Immediate/Primary (I)
CL Item
Other (O)
CL Item
Underlying (U)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)
Item
Death Cause Source
text
C0007465 (UMLS CUI [1,1])
C0449416 (UMLS CUI [1,2])
Code List
Death Cause Source
CL Item
Other, locally defined (L)
CL Item
National Death Index (N)
CL Item
Social Security (D)
CL Item
State Death files (S)
CL Item
Tumor data (T)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)
Item
Death Cause Confidence
text
C0007465 (UMLS CUI [1,1])
C0443131 (UMLS CUI [1,2])
C1704726 (UMLS CUI [1,3])
Code List
Death Cause Confidence
CL Item
Excellent (E)
CL Item
Fair (F)
CL Item
Poor (P)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)

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