ID
16822
Description
HLA typing results of patient and donor should be attached and sent: - to your NATIONAL REGISTRY if - you normally report to your National Registry and - you are based in the Netherlands, Switzerland, Turkey or the UK - to the EBMT REGISTRY OFFICE in London for any other centre Contact: Shelley Hewerdine EBMT Registry Office 4th Floor, Tabard House Guy's Hospital Great Maze Pond London SE1 9RT United Kingdom Phone: 00 44-207-188-8409 Fax: 00 44-207-188-8411 Email: shelley.hewerdine@ebmt.org
Keywords
Versions (4)
- 8/9/16 8/9/16 -
- 9/23/16 9/23/16 -
- 9/24/16 9/24/16 -
- 9/20/21 9/20/21 -
Uploaded on
August 9, 2016
DOI
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License
Creative Commons BY-NC 3.0
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100days past HSCT EBMT
20pp 100days past HSCT 02MED
- StudyEvent: ODM
Description
PATIENT DATA
Description
Date of this report
Data type
date
Alias
- UMLS CUI [1]
- C1302584
Description
Patient following national / international study / trial
Data type
integer
Alias
- UMLS CUI [1]
- C1997894
Description
Name of study / trial
Data type
text
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Initials
Data type
text
Description
PersonBirthDate
Data type
date
Alias
- UMLS CUI [1,1]
- C0027361
- UMLS CUI [1,2]
- C0005615
- UMLS CUI [1,3]
- C0011008
Description
Sex
Data type
text
Alias
- UMLS CUI [1]
- C0079399
Description
DISEASE
Description
HSCT
Description
Performance score
Data type
integer
Alias
- UMLS CUI [1]
- C1518965
Description
Score
Data type
text
Alias
- UMLS CUI [1]
- C1518965
Description
Type of HSCT
Data type
integer
Description
Patient CMV status
Data type
text
Description
Multiple donors/products
Data type
boolean
Description
Multiple donors/products
Data type
text
Description
STEM CELLS (autograft or allograft)
Description
Source of Stem Cells
Data type
text
Description
Source of Stem Cells
Data type
text
Description
Donor ID
Data type
text
Alias
- UMLS CUI [1]
- C1718162
Description
Donor ID
Data type
integer
Description
HLA match type
Data type
text
Description
Degree of mismatch
Data type
integer
Description
Name of donor registry/CB Bank
Data type
text
Description
BMDW/WMDA code (up to 4 characters)
Data type
text
Description
Number of mismatches
Data type
text
Description
Number of mismatches
Data type
text
Description
Number of mismatches
Data type
text
Description
Number of mismatches
Data type
text
Description
Number of mismatches
Data type
text
Description
Number of mismatches
Data type
text
Description
Donor Sex
Data type
text
Description
Donor age ys
Data type
integer
Description
Graft manipulation ex-vivo (including T-cell depletion) other than for RBC removal or volume reduction
Data type
boolean
Description
HSCT
Description
Chronological number of HSCT for this patient?
Data type
text
Description
If >1, date of last HSCT before this one
Data type
date
Description
If >1, type of last HSCT before this one
Data type
text
Description
HSCT part of a planned multiple graft protocol?
Data type
boolean
Description
Preparative (conditioning) regimen given?
Data type
boolean
Description
Was this intended to be myeloablative?
Data type
boolean
Description
Reason
Data type
text
Description
Reason
Data type
text
Description
Ara-C (cytarabine)
Data type
float
Measurement units
- mg
Description
Ara-C (cytarabine)
Data type
integer
Description
ALG, ATG (ALS, ATS)
Data type
float
Description
Unit of dosing
Data type
integer
Description
Animal origin
Data type
integer
Description
Animal origin
Data type
text
Description
Bleomycin
Data type
float
Description
Unit of doseing
Data type
integer
Description
Busulfan
Data type
float
Description
Unit of dosing
Data type
integer
Description
Busulfan
Data type
integer
Description
BCNU
Data type
float
Description
Unit of dosing
Data type
integer
Description
Bexar (radiolabelled MoAB)
Data type
float
Description
Unit of dosing
Data type
integer
Description
CCNU
Data type
float
Description
Unit of dosing
Data type
integer
Description
Campath (antiCD52)
Data type
float
Description
Unit of dosing
Data type
integer
Description
Carboplatin
Data type
float
Description
Unit of dosing
Data type
integer
Description
Cisplatin
Data type
float
Description
Unit of dosing
Data type
integer
Description
Corticosteroids
Data type
float
Description
Unit of dosing
Data type
integer
Description
Cyclophosphamide
Data type
float
Description
Unit of dosing
Data type
integer
Description
Daunorubicin
Data type
float
Description
Unit of dosing
Data type
integer
Description
Doxorubicin (adriamycine)
Data type
float
Description
Unit of dosing
Data type
integer
Description
Etoposide (VP16)
Data type
float
Description
Unit of dosing
Data type
integer
Description
Fludarabine
Data type
float
Description
Unit of dosing
Data type
integer
Description
Gemtuzumab
Data type
float
Description
Unit of dosing
Data type
integer
Description
Idarubicin
Data type
float
Description
Unit of dosing
Data type
integer
Description
Ifosfamide
Data type
float
Description
Unit of dosing
Data type
integer
Description
Imatinib mesylate
Data type
float
Description
Unit of dosing
Data type
integer
Description
Melphalan
Data type
float
Description
Unit of dosing
Data type
integer
Description
Mitoxantrone
Data type
float
Description
Unit of dosing
Data type
integer
Description
Paclitaxel
Data type
float
Description
Unit of dosing
Data type
integer
Description
Rituximab (mabthera, antiCD20)
Data type
float
Description
Unit of dosing
Data type
integer
Description
Teniposide
Data type
float
Description
Unit of dosing
Data type
integer
Description
Thiotepa
Data type
float
Description
Unit of dosing
Data type
integer
Description
Zevalin (radiolabelled MoAB)
Data type
float
Description
Unit of dosing
Data type
integer
Description
Other radiolabelled MoAB
Data type
float
Description
Unit of dosing
Data type
integer
Description
Other radiolabelled MoAB
Data type
text
Description
Other MoAB
Data type
float
Description
Unit of dosing
Data type
integer
Description
Other
Data type
float
Description
Unit of dosing
Data type
integer
Description
Total body irradiation
Data type
boolean
Alias
- UMLS CUI [1]
- C0043162
Description
Total Body Irradiation
Data type
text
Description
TLI, TNI, TAI
Data type
boolean
Description
TLI, TNI, TAI
Data type
text
Description
AFTER HSCT
Description
GvHD prophylaxis or preventive treatment
Data type
boolean
Description
GvHD prophylaxis or preventive treatment
Data type
integer
Description
GvHD prophylaxis or preventive treatment
Data type
text
Description
GvHD prophylaxis or preventive treatment
Data type
text
Description
GvHD prophylaxis or preventive treatment
Data type
text
Description
Absolute neutrophil count (ANC) recovery (engraftment) (Neutrophils >0.5X109 /L)
Data type
integer
Description
Date of last assessment
Data type
date
Description
Date of ANC recovery
Data type
date
Description
Date of last assessment
Data type
date
Description
Maximum grade
Data type
integer
Description
ADDITIONAL TREATMENT INCLUDING CELL THERAPY
Description
Cell infusion (CI)
Data type
boolean
Description
(can be the same as HSCT date)
Data type
date
Description
Type of cell(s): (check all that apply)
Data type
integer
Description
Type of cell(s): (check all that apply)
Data type
text
Description
Chronological no. of CI for this patient
Data type
text
Description
Indication
Data type
text
Alias
- UMLS CUI [1,1]
- C3146298
- UMLS CUI [1,2]
- C0302189
Description
Indication:
Data type
text
Description
Infusion count
Data type
float
Alias
- UMLS CUI [1,1]
- C0574032
- UMLS CUI [1,2]
- C0750480
Description
Disease treatment
Data type
integer
Alias
- UMLS CUI [1]
- C0087111
Description
DISEASE STATUS
Description
Best disease status (response) after HSCT
Data type
integer
Description
CR achieved: Date achieved
Data type
date
Description
Never in CR: Date assessed
Data type
date
Description
Date of last follow up or death
Data type
date
Alias
- UMLS CUI [1,1]
- C3694716
- UMLS CUI [1,2]
- C0011065
Description
Date of last follow up or death
Description
First Relapse or Progression after HSCT
Data type
text
Description
Date assessed
Data type
date
Description
Date first seen
Data type
date
Description
Relapse/progression detected by clinical/haematological method
Data type
text
Description
Date assessed
Data type
date
Description
Date first seen
Data type
date
Description
Relapse/progression detected by cytogenetic method
Data type
integer
Description
Date assessed
Data type
date
Description
Date first seen
Data type
date
Description
Relapse/progression detected by molecular method
Data type
integer
Description
Date assessed
Data type
date
Description
Date first seen
Data type
date
Description
DISEASE PRESENCE/DETECTION AT LAST CONTACT
Description
Was disease detected by clinical/haematological method?:
Data type
date
Description
Last date assessed
Data type
date
Description
Was disease detected by cytogenetic/FISH method?:
Data type
integer
Description
Considered disease relapse/progression
Data type
boolean
Description
Last date assessed
Data type
date
Description
PATIENT STATUS AT LAST CONTACT
Description
Survival Status
Data type
text
Description
Check here if patient lost to follow up
Data type
boolean
Description
Cause of Death
Data type
integer
Alias
- UMLS CUI [1]
- C0007465
Description
HSCT related cause
Data type
integer
Description
DATE OF NEXT HSCT
Data type
date
Description
COVER PAGE FOR HISTOCOMPATIBILITY REPORTS
Description
EBMT Code (CIC):
Data type
text
Description
Hospital
Data type
text
Alias
- UMLS CUI [1]
- C0019994
Description
Unit:
Data type
text
Description
Contact person
Data type
text
Description
Data type
text
Description
Has the HSCT been registered in the EBMT database ?
Data type
boolean
Alias
- UMLS CUI [1]
- C0421512
Description
Has the HSCT been registered in the EBMT database ?
Data type
text
Description
Hospital Unique Patient Number/ Code
Data type
text
Description
Initials
Data type
text
Description
Gender
Data type
text
Description
Date of Birth
Data type
date
Description
Date of HSCT
Data type
date
Description
Donor ID
Data type
text
Description
PATIENT ETHNIC OR RACIAL ORIGIN
Description
DISEASE OF SECONDARY ORIGIN
Description
THERAPY GIVEN PRIOR TO THIS HSCT
Description
THERAPY GIVEN PRIOR TO THIS HSCT
Data type
boolean
Description
THERAPY GIVEN PRIOR TO THIS HSCT
Data type
date
Description
Tyrosine kinase receptor antagonist given
Data type
boolean
Description
Tyrosine kinase receptor antagonist given
Data type
integer
Description
Other agent
Data type
text
Description
Were there any clinically significant co-existing disease or organ impairment at time of patient assessment prior to preparative (conditioning) regimen?
Data type
boolean
Description
Comorbidity
Description
Treated at any time point in the patient's past history, excluding nonmelanoma skin cancer
Data type
integer
Description
Crohn's disease or ulcerative colitis
Data type
integer
Alias
- UMLS CUI [1]
- C0021390
Description
SLE, RA, polymyositis, mixed CTD, or polymyalgia rheumatica
Data type
integer
Description
Requiring continuation of antimicrobial treatment after day 0
Data type
integer
Description
Requiring treatment with insulin or oral hypoglycaemics but not diet alone
Data type
integer
Description
Serum creatinine > 2 mg/dL or >177 μmol/L, on dialysis, or prior renal transplantation
Data type
integer
Description
Chronic hepatitis, bilirubin between Upper Limit Normal (ULN) and 1.5 x the ULN, or AST/ALT between ULN and 2.5 × ULN
Data type
integer
Description
Liver cirrhosis, bilirubin greater than 1.5 × ULN, or AST/ALT greater than 2.5 × ULN
Data type
integer
Description
Atrial fibrillation or flutter, sick sinus syndrome, or ventricular arrhythmias
Data type
integer
Description
Coronary artery disease, congestive heart failure, myocardial infarction, or EF ≤ 50%
Data type
integer
Description
Transient ischemic attack or cerebrovascular accident
Data type
integer
Description
Except mitral valve prolapse
Data type
integer
Description
DLco and/or FEV1 66-80% or dyspnoea on slight activity
Data type
integer
Description
DLco and/or FEV1 ≤ 65% or dyspnoea at rest or requiring oxygen
Data type
integer
Description
Patients with a body mass index > 35 kg/m2
Data type
integer
Description
Peptic ulcer
Data type
integer
Description
Depression or anxiety requiring psychiatric consult or treatment
Data type
integer
Description
Other Comorbidity
Data type
text
Description
GRAFT PERFORMANCE Compulsory for CIBMTR Research centres
Description
GRAFT PERFORMANCE
Description
Platelet reconstitution
Data type
text
Description
Date Platelets > 20 x 10 9 /l
Data type
date
Description
Compulsory for CIBMTR Research centres. Fill in only if you answered Yes: Planned to the question on Disease treatment under Additional treatment
Data type
date
Description
Chemo/drug
Data type
boolean
Description
Chemo/drug
Data type
integer
Description
Radiotherapy
Data type
boolean
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 1
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code (UPN)
Data type
text
Description
Date of Initial Diagnosis
Data type
date
Description
Classification
Description
AML with recurrent genetic abnormalities
Data type
integer
Description
AML not otherwise categorised
Data type
integer
Description
Precursor Lymphoid Neoplasms (old ALL)
Data type
integer
Description
AML transformed from
Data type
integer
Description
Secondary origin
Data type
text
Description
Date of this HSCT
Data type
date
Description
Status at HSCT
Data type
integer
Description
NUMBER
Data type
integer
Description
Cytogenetic
Data type
integer
Description
Molecular
Data type
integer
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 2
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Classification
Description
Translocation (9;22)
Data type
text
Alias
- UMLS CUI [1]
- C3897138
Description
bcr-abl
Data type
text
Alias
- UMLS CUI [1]
- C1835417
Description
Date of this HSCT
Data type
date
Description
Status at HSCT
Data type
integer
Description
NUMBER
Data type
integer
Description
Haematological
Data type
text
Description
Cytogenetic (t[9;22))
Data type
integer
Description
Molecular (bcr-abl)
Data type
integer
Description
Classification
Description
HSCT - Minimum Essential Data – A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 3
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of Initial Diagnosis
Data type
date
Description
Mature B-cell Neoplasms
Data type
integer
Description
Follicular lymphoma
Data type
integer
Description
Mature T-cell & NK-cell Neoplasms
Data type
integer
Description
Hodgkin
Data type
integer
Description
Date of this HSCT
Data type
date
Description
STATUS HSCT
Data type
integer
Description
NUMBER
Data type
integer
Description
SENSITIVITY TO CHEMOTHERAPY
Data type
text
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 4
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
WHO Classification at diagnosis
Data type
integer
Description
FAB Classification at diagnosis
Data type
integer
Description
Status at HSCT
Data type
integer
Description
NUMBER
Data type
text
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 5
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of Initial Diagnosis
Data type
date
Description
Classification at diagnosis
Data type
integer
Description
Classification at HSCT
Data type
integer
Description
Date of this HSCT
Data type
date
Description
Treated with chemotherapy
Data type
integer
Description
NUMBER
Data type
integer
Description
jMML
Data type
integer
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 6
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Classification at diagnosis
Data type
integer
Description
Secondary origin
Data type
integer
Description
Date of this HSCT
Data type
date
Description
Classification at HSCT
Data type
integer
Description
Classification at HSCT
Data type
text
Description
Status at HSCT
Data type
text
Description
NUMBER (complete for CR or relapse)
Data type
integer
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 7
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of Initial Diagnosis
Data type
date
Description
Classification
Data type
integer
Description
LIGHT CHAIN TYPE
Data type
text
Description
SALMON & DURIE STAGE AT DIAGNOSIS
Data type
integer
Description
Date of this HSCT
Data type
date
Description
Status at HSCT
Data type
text
Description
NUMBER (complete for sCR, CR,VGPR, PR or relapse)
Data type
integer
Description
BONE MARROW FAILURE SYNDROMES including APLASTIC ANAEMIA (main disease code 7)ISMC
Description
Classification
Data type
integer
Description
Acquired Severe Aplastic Anaemia (SAA)
Data type
integer
Description
Congenital
Data type
integer
Description
Congenital
Data type
text
Description
Date of this HSCT
Data type
date
Description
HAEMOGLOBINOPATHY Classification
Data type
text
Description
HAEMOGLOBINOPATHY Classification
Data type
text
Description
Date of this HSCT
Data type
date
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 8
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Staging at Diagnosis
Data type
text
Description
STAGE
Data type
integer
Description
CLASSIFICATION
Data type
integer
Description
Date of this HSCT
Data type
date
Description
Status at HSCT
Data type
integer
Description
Complete remission (CR)
Data type
integer
Description
Relapse
Data type
integer
Description
OTHER MALIGNANCIES (main disease code 5) Classification
Data type
text
Description
Classification
Data type
text
Description
Date of this HSCT
Data type
date
Description
Status at HSCT
Data type
text
Description
Complete remission (CR)
Data type
integer
Description
NUMBER
Data type
integer
Description
SENSITIVITY TO CHEMOTHERAPY
Data type
integer
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 9
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of Initial Diagnosis
Data type
date
Description
Classification
Data type
integer
Description
Date of this HSCT
Data type
date
Description
INHERITED DISORDERS OF METABOLISM (main disease code 8) DISMCLFD INHDIS Classification
Data type
integer
Description
Date of this HSCT
Data type
date
Description
INHERITED DISORDERS OF METABOLISM (main disease code 8)
Data type
text
Description
Date of this HSCT
Data type
date
Description
PLATELET and OTHER INHERITED DISORDERS (main disease code 8)
Data type
integer
Description
Date of this HSCT
Data type
date
Description
HISTIOCYTIC DISORDERS (main disease code 9)
Data type
text
Description
Date of this HSCT
Data type
date
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 10
Description
EBMT Centre Identification Code (CIC)
Data type
text
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Name of Referring Physician
Data type
text
Description
Address
Data type
text
Description
Fax
Data type
text
Description
Data type
text
Description
AUTOIMMUNE DISORDERS – I (main disease code 10)
Data type
integer
Description
Date of this HSCT
Data type
date
Description
diffuse cutaneous
Data type
boolean
Description
limited cutaneous
Data type
boolean
Description
lung parenchyma
Data type
boolean
Description
pulmonary hypertension
Data type
boolean
Description
systemic hypertension
Data type
boolean
Description
renal (biopsy type
Data type
boolean
Description
oesophagus
Data type
boolean
Description
other GI tract
Data type
boolean
Description
Raynaud
Data type
boolean
Description
CREST
Data type
boolean
Description
diffuse cutaneous
Data type
boolean
Description
limited cutaneous
Data type
boolean
Description
lung parenchyma
Data type
boolean
Description
pulmonary hypertension
Data type
boolean
Description
systemic hypertension
Data type
boolean
Description
renal (biopsy type
Data type
boolean
Description
oesophagus
Data type
boolean
Description
other GI tract
Data type
boolean
Description
Raynaud
Data type
boolean
Description
CREST
Data type
boolean
Description
Antibodies studied
Data type
integer
Description
Scl 70 positive
Data type
text
Description
ACA positive
Data type
integer
Description
Date of this HSCT
Data type
date
Description
renal
Data type
text
Description
renal
Data type
boolean
Description
renal
Data type
boolean
Description
CNS
Data type
text
Description
CNS
Data type
boolean
Description
CNS
Data type
boolean
Description
PNS
Data type
text
Description
PNS
Data type
boolean
Description
PNS
Data type
boolean
Description
lung
Data type
boolean
Description
lung
Data type
boolean
Description
serositis
Data type
boolean
Description
serositis
Data type
boolean
Description
arthritis
Data type
boolean
Description
arthritis
Data type
boolean
Description
skin
Data type
text
Description
skin
Data type
boolean
Description
skin
Data type
boolean
Description
haematological
Data type
text
Description
haematological
Data type
boolean
Description
haematological
Data type
boolean
Description
vasculitis
Data type
text
Description
vasculitis
Data type
boolean
Description
vasculitis
Data type
boolean
Description
Complement reduced
Data type
integer
Description
Antibodies studied
Data type
text
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 11
Description
EBMT Centre Identification Code (CIC)
Data type
text
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of Initial Diagnosis
Data type
date
Description
Name of Referring Physician
Data type
text
Description
Address
Data type
text
Description
Fax
Data type
text
Description
Data type
text
Alias
- UMLS CUI [1]
- C0013849
Description
UTOIMMUNE DISORDERS – II (main disease code 10) Classification
Data type
integer
Description
Date of this HSCT
Data type
date
Description
proximal weakness
Data type
boolean
Description
proximal weakness
Data type
boolean
Description
generalized weakness (including bulbar)
Data type
boolean
Description
generalized weakness (including bulbar)
Data type
boolean
Description
pulmonary fibrosis
Data type
boolean
Description
pulmonary fibrosis
Data type
boolean
Description
vasculitis
Data type
text
Description
vasculitis
Data type
boolean
Description
vasculitis
Data type
boolean
Description
Manifestation with
Data type
text
Description
Date of this HSCT
Data type
date
Description
SICCA
Data type
boolean
Description
SICCA
Data type
boolean
Description
exocrine gland swelling
Data type
boolean
Description
exocrine gland swelling
Data type
boolean
Description
other organ lymphocytic infiltration
Data type
boolean
Description
other organ lymphocytic infiltration
Data type
boolean
Description
lymphoma, paraproteinaemia
Data type
boolean
Description
lymphoma, paraproteinaemia
Data type
boolean
Description
other clinical problem
Data type
text
Description
Date of this HSCT
Data type
date
Description
hrombosis
Data type
text
Description
hrombosis
Data type
boolean
Description
hrombosis
Data type
boolean
Description
CNS
Data type
text
Description
CNS
Data type
boolean
Description
CNS
Data type
boolean
Description
abortion
Data type
boolean
Description
abortion
Data type
boolean
Description
skin
Data type
boolean
Description
skin (livido, vasculitis)
Data type
boolean
Description
haematological
Data type
text
Description
haematological
Data type
boolean
Description
haematological
Data type
boolean
Description
Other Involvement/Clinical problem
Data type
text
Description
Antibodies studied
Data type
integer
Description
Anticardiolipin lgG
Data type
integer
Description
Anticardiolipin lgM
Data type
integer
Description
Other Antibodies studied
Data type
text
Description
Date of this HSCT
Data type
date
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 12
Description
EBMT Centre Identification Code (CIC)
Data type
text
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of Initial Diagnosis
Data type
date
Description
Name of Referring Physician
Data type
text
Description
Address
Data type
text
Description
Fax
Data type
text
Description
Data type
text
Alias
- UMLS CUI [1]
- C0013849
Description
Classification VASCULITIS
Data type
integer
Description
Date of this HSCT
Data type
date
Description
upper respiratory tract
Data type
boolean
Description
upper respiratory tract
Data type
boolean
Description
pulmonary
Data type
boolean
Description
pulmonary
Data type
boolean
Description
renal
Data type
text
Description
renal
Data type
boolean
Description
renal
Data type
boolean
Description
skin
Data type
boolean
Description
skin
Data type
boolean
Description
Other Involvement / Clinical problem
Data type
text
Description
Antibodies studied
Data type
integer
Description
c-ANCA
Data type
integer
Description
Date of this HSCT
Data type
date
Description
renal
Data type
text
Description
renal
Data type
boolean
Description
renal
Data type
boolean
Description
mononeuritis multiplex
Data type
boolean
Description
mononeuritis multiplex
Data type
boolean
Description
pulmonary haemorrhage
Data type
boolean
Description
pulmonary haemorrhage
Data type
boolean
Description
skin
Data type
boolean
Description
skin
Data type
boolean
Description
GI tract
Data type
boolean
Description
GI tract
Data type
boolean
Description
Involvement/Clinical problem
Data type
text
Description
Antibodies studied
Data type
integer
Description
p-ANCA
Data type
integer
Description
c-ANCA
Data type
integer
Description
Hepatitis serology
Data type
integer
Description
Other vasculitis
Data type
integer
Description
Date of this HSCT
Data type
date
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 13
Description
EBMT Centre Identification Code (CIC)
Data type
text
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of Initial Diagnosis
Data type
date
Description
Name of Referring Physician
Data type
text
Description
Address
Data type
text
Description
Fax
Data type
text
Description
Data type
text
Alias
- UMLS CUI [1]
- C0013849
Description
AUTOIMMUNE DISORDERS – IV (main disease code 10) ARTHRITIS
Data type
integer
Description
Date of this HSCT
Data type
date
Description
destructive arthritis
Data type
boolean
Description
destructive arthritis
Data type
boolean
Description
eye
Data type
text
Description
eye
Data type
boolean
Description
eye
Data type
boolean
Description
pulmonary
Data type
boolean
Description
pulmonary
Data type
boolean
Description
extra articular
Data type
text
Description
extra articular
Data type
boolean
Description
extra articular
Data type
boolean
Description
Date of this HSCT
Data type
date
Description
destructive arthritis
Data type
boolean
Description
destructive arthritis
Data type
boolean
Description
psoriasis
Data type
text
Description
psoriasis
Data type
boolean
Description
Date of this HSCT
Data type
date
Description
MULTIPLE SCLEROSIS
Data type
boolean
Description
Date of this HSCT
Data type
date
Description
MULTIPLE SCLEROSIS
Data type
integer
Description
OTHER NEUROLOGICAL AUTOIMMUNE DISEASE
Data type
text
Description
Other autoimmune neurological disorder
Data type
text
Description
Date of this HSCT
Data type
date
Description
HAEMATOLOGICAL AUTOIMMUNE DISEASES
Data type
integer
Description
other autoimmune cytopenia
Data type
text
Description
Date of this HSCT
Data type
date
Description
BOWEL DISEASE
Data type
text
Description
Other autoimmune bowel disease
Data type
text
Description
Date of this HSCT
Data type
date
Description
HSCT - Minimum Essential Data - A Follow up report: 1 year post transplant and annually thereafter
Description
PRIMARY DISEASE DIAGNOSIS
Data type
text
Description
EBMT Code (CIC)
Data type
text
Description
Hospital:
Data type
text
Description
Klinik
Data type
text
Alias
- UMLS CUI [1]
- C0019994
Description
Unit
Data type
text
Description
Contact person
Data type
text
Alias
- UMLS CUI [1]
- C0337611
Description
Date of this Report
Data type
date
Description
Patient following national / international study / trial
Data type
integer
Description
Name of study / trial
Data type
text
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Initials
Data type
text
Description
Date of Birth
Data type
date
Description
Sex
Data type
text
Alias
- UMLS CUI [1]
- C0079399
Description
Date of the most recent transplant before this follow up
Data type
date
Description
Best disease status (response) after transplant
Data type
integer
Description
Date achieved
Data type
date
Description
Date assessed
Data type
date
Description
Date of last follow up or death
Data type
date
Description
Chronic Graft Versus Host Disease present during this period
Data type
text
Description
Date of diagnosis of cGvHD
Data type
date
Description
Date first evidence of cGVHD during this period
Data type
date
Description
Maximum extent during this period
Data type
integer
Description
Late graft failure (allografts only)
Data type
boolean
Description
Did a secondary malignancy, lymphoproliferative or myeloproliferative disorder occur?
Data type
boolean
Description
Date of diagnosis
Data type
date
Description
Diagnosis:
Data type
text
Description
ADDITIONAL DISEASE TREATMENT INCLUDING CELL THERAPY
Data type
boolean
Description
ADDITIONAL DISEASE TREATMENT INCLUDING CELL THERAPY
Data type
date
Description
Additional cell infusion (not HSCT or auto re-infusion)
Data type
boolean
Description
Other treatment of disease
Data type
integer
Description
First Relapse or Progression after HSCT
Data type
text
Description
Date assessed
Data type
date
Description
Date first seen
Data type
date
Description
Relapse/progression detected by clinical/haematological method
Data type
integer
Description
Date assessed
Data type
date
Description
Date first seen
Data type
date
Description
Relapse/progression detected by cytogenetic method
Data type
integer
Description
Date assessed
Data type
boolean
Description
Date first seen
Data type
date
Description
Relapse/progression detected by molecular method
Data type
integer
Description
Date assessed
Data type
date
Description
Date first seen
Data type
date
Description
Last disease status (record the most recent status and date for each method, relating to the initial disease for which HSCT was given)
Data type
integer
Description
Last date assessed
Data type
date
Description
Was disease detected by cytogenetic/FISH method?:
Data type
boolean
Description
Considered disease relapse/progression
Data type
boolean
Description
Last date assessed
Data type
date
Description
Was disease detected by molecular method?
Data type
integer
Description
Considered disease relapse/progression
Data type
boolean
Description
Last date assessed
Data type
date
Description
Has patient or partner become pregnant after this transplant?
Data type
integer
Description
Survival Status
Data type
integer
Alias
- UMLS CUI [1]
- C1148433
Description
Check here if patient lost to follow up
Data type
boolean
Description
Cause of Death
Data type
integer
Alias
- UMLS CUI [1]
- C0007465
Description
HSCT Related Cause
Data type
text
Description
HSCT Related Cause
Data type
text
Description
HSCT - Minimum Essential Data - A Follow up report: Annual follow up CELL INFUSION (CI) SHEET
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
text
Description
Date of first infusion
Data type
date
Description
Disease status before this CI
Data type
integer
Description
Date of first infusion
Data type
date
Description
Disease status before this CI
Data type
integer
Description
Cell infusion (CI) regimen
Data type
text
Description
Cell infusion (CI) regimen
Data type
text
Description
Chronological no. of CI for this patient
Data type
text
Description
Indication
Data type
integer
Description
Infusion count
Data type
float
Alias
- UMLS CUI [1,1]
- C0574032
- UMLS CUI [1,2]
- C0750480
Description
Maximum Grade
Data type
integer
Similar models
20pp 100days past HSCT 02MED
- StudyEvent: ODM
C0005615 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0302189 (UMLS CUI [1,2])
C0750480 (UMLS CUI [1,2])
C0011065 (UMLS CUI [1,2])
C0750480 (UMLS CUI [1,2])